[demografx]

Robtabasco51, welcome to the POIS thread of The Naked Science Forum!  We believe that 2012 is POIS' Breakthrough Year. We hope to launch serious POIS Medical Research. A great time to be here.     


**(If you have any technical questions, please feel free to PM (private message) Daveman or me -- or another forum member - - go towards the end of this welcome message (after the 5 available research articles are described) for instuctions on how to send PM. We'll be happy to explain.)***


If you haven't already done so, but would like to like to join the new forum,  send "daveman" a PM here at the Naked Science Forum.


Here are some POIS resources which may be helpful to you:

Click here to see Mat780's excellent YouTube POIS Channel.   Mat's YouTube videos include (1) our great new April 12 POIS TV Documentary. A must-see. And (2) The Learning Channel documentary, featuring our forum member "Animus".

Click here to see The POIS reddit post.  Outsiders (non-POISers) spontaneously gifted NORD's POIS Research Grant $1,000+ from this reddit post. Thanks to "mellivora" and "CCconfucius"!

Our POIS chatroom (realtime chat). Invite or visit another member(s) there, ANY TIME. We can all get to know each other better:
Just click here first, and then look for "CHAT" button towards top of page, 4th button to your right!

Our alternate POIS Forum - architectural genius: "daveman" - for detailed subject-by-subject discussion.
http://www.POISCenter.com/forums/index.php
Our 5-year-old POIS thread here at Naked Science Forum will also always remain open for newcomers, for general unstructured discussion, and historical research of the 10,000+ postings here since 2007.

Our POIS Information Website, built by "mat780", is here:
http://sites.google.com/site/POISwebsite/

The POIS Information Website is home to the POIS Forum Compendium, written by "Pyropeach", and contains theories already discussed here and treatments that have both worked and failed.

Please see "B_Jim"'s POIS Summary of All Cases, here as well as others on the Web. This includes remedies that we have tested, and results.
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg149009#msg149009

"Girlwind" has created an excellent POIS Video:
http://www.youtube.com/watch?v=UWBxAUC9k1g


Post Orgasmic Illness Syndrome "POIS": Case report

Authors:
Abdalla M Attia*, Magda H Al-Ziny, Hossam A Yasien
*Corresponding author: Andrology Unit, Minoufiya University, Shibin El Kom, Eygpt

For more info, check out emi_b's  SMF POIS thread:
http://poiscenter.com/forums/index.php?topic=191.0;topicseen


POIS Research Studies available Upon Request:

1. and 2. POIS Research Studies, 2011

These 2 papers reveal Dr. Waldinger's POIS autoimmune hypothesis and suggest one possible avenue of treatment.

3. First POIS Research Study, 2002

We have a copy of the first formal medical investigation on POIS by Prof. dr. Marcel D. Waldinger,MD, Ph.D., and Dr. Dave Schweitzer, MD.

   
4. Recent POIS Research Study, 2010

CASE REPORT
Postorgasm Illness Syndrome - A Spectrum of Illnesses
Jane Ashby, MRCP, and David Goldmeier, MRCP
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg316781#msg316781


5. British Medical Journal Case Report, 2010

Case study by Dr. Selwyn Dexter of a patient with a headache-featured POIS symptom treated with progesterone/norethisterone.
http://casereports.bmj.com/content/2010/bcr.10.2009.2359.short?rss=1


How to get any or all of the above 5 studies: send me or "daveman" a Private Message (PM) with your regular email address (use "AT" instead of "@" ) and we'll send you back the PDF(s).

To send a Private Message, click on "My Messages" at the top of this page. Then click "Send Message". From that point on, it works just like posting a message here, except that it only goes to the person(s) you designate.


New York Times article,

January 20, 2009
Mind
Sex and Depression: In the Brain, if Not the Mind
By RICHARD A. FRIEDMAN, M.D.
http://www.nytimes.com/2009/01/20/health/views/20mind.html?_r=1&scp=1&sq=friedman%20sexual%20January%2020&st=cse

- - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -

In addition to serving our own informational interests, the resources listed above can be useful for you to show our credibility to the medical world - which often shows little understanding and is sometimes skeptical of our condition: POIS has scientific underpinnings and POIS is not "just another psychological problem" related to sex - to be treated by the psychiatric/psychotherapeutic community. All of this information can greatly help you to fight the immediate reaction of some doctors: so just tell them, "IT'S NOT 'ALL IN YOUR HEAD'! "





It can be very  helpful to you when dealing with medical professionals to point this out. Click to see

POIS' official listing, as recognized by the
National Institutes for Health (NIH), Office of Rare Diseases Research:

And in Europe: Orphanet now lists POIS on their website. - Click here.

POIS also appears in credible medical sources such as the Journal of Sexual Medicine (Dr. Waldinger's study), British Medical Journal (Dr. Selwyn Dexter's study), and wikipedia:
http://en.wikipedia.org/wiki/Postorgasmic_illness_syndrome

For over 5 years, our POIS forum has attracted over 200 POIS sufferers worldwide who have posted here, research on an additional 200 sufferers elsewhere on the internet, plus our pages have been read nearly 2,000,000 times. Not bad for a rare malady.

Show some of this to your doctor - with pride. Chances are, you know far more about POIS than s/he does. Don't be intimidated by fancy diplomas. It's almost impossible for any one doctor to know much about POIS before you walk into his/her office. Unfortunately, it's up to you to educate them. And if you happen to find yourself with a disagreeable "student"-doctor (you're the teacher), find another doctor. Quickly!

SEARCH THE FORUM WITH GOOGLE

We have an overwhelming amount of data: more than 5 years' worth of posts (over  10,000 posts!) from 200+ Forum members, and an additional 200 POIS sufferers found elsewhere on the Internet by Member B_Jim.

In the Google search box, type
whatever-it-is-you're-interested-in-finding-out[space]POIS[space]site:http://thenakedscientists.com/

for example, I tried
nocturnal emission POIS site:http://thenakedscientists.com/

and 740 results came up for "nocturnal emission" within the Forum.

be careful with spaces (you can use them before the word "site") and no-spaces (everything after the word "site")

Google even provides you results with the Message# for each result. But Message #'s do change, so be patient and look for the approximate Message#.

[demografx]

There are more and more sites, blogs and forums talking about Pois. ;)

Great news.

Yes!

B_Jim, you have done an amazing job collecting all the POIS case studies from the many forums, sites, and blogs that you have visited on the internet and reported on POIS here since 2007. Thank you very much for this.

[meteo74]

A question for all

Does pois affect the body weight??
for me I think it does!!

[Vasian1980]

It helps get rid of the symptoms  Amino Gold, 3 weeks without symptoms!

[demografx]

Congratulations, Vasian1980.

I hope it continues to work for you.

[Vasian1980]

I tried to be engaged in the gym, the coach gave the bank an amine, in the 1st day, the mood has improved, I did not believe it but for me it started working! Remained at 10 days, then try without them! My symptoms were not just after 0 and after excessive exercise.

[demografx]

A question for all

Does pois affect the body weight??
for me I think it does!!

meteo74, if you wish, you can also post that good question at our polling center.
http://poiscenter.com/forums/index.php?board=15.0

edit: I listed an incorrect link in my earlier post.

[Vincent M]

A question for all

Does pois affect the body weight??
for me I think it does!!

I think POIS was causing me to gain some weight, but when I found fenugreek the weight gain stopped. However I may have mistaken the inflammation and swelling of my face and the bloating of my stomach to be weight gain. My actual weight in lbs hasn't changed since before I got POIS, but I've lost a lot of muscle since then.

[alphaq]

Here is one interesting question for everyone:

Did you remember the details of the instance or day that POIS first started occuring? Specifically, what I mean is this:

- Do you believe that after having one particular orgasm, you felt/knew something was wrong or different? (or was it the next morning?)
- Anything different/remarkable about how you were masturbating/having sex, or the frequency of masturbation that day or week?

Why I ask this is the instance when POIS first started for me was one night I was masturbating lying down facing up, and this was a week where it was almost excessive (1+ times a day). And right after that particular orgasm something felt strange inside my head. It felt like as if suddenly something was different. The next day I woke up and during the daytime pressure started building up in my head and I started thinking less clearly. That was how POIS started for me.

Anyone want to share their experience?

[jferr]

Here is one interesting question for everyone:

Did you remember the details of the instance or day that POIS first started occuring? Specifically, what I mean is this:

- Do you believe that after having one particular orgasm, you felt/knew something was wrong or different? (or was it the next morning?)
- Anything different/remarkable about how you were masturbating/having sex, or the frequency of masturbation that day or week?

Why I ask this is the instance when POIS first started for me was one night I was masturbating lying down facing up, and this was a week where it was almost excessive (1+ times a day). And right after that particular orgasm something felt strange inside my head. It felt like as if suddenly something was different. The next day I woke up and during the daytime pressure started building up in my head and I started thinking less clearly. That was how POIS started for me.

Anyone want to share their experience?

alphaq, Yes I had a similar experience to start my POIS. It happened at the moment of orgasm, felt like something 'shut off' in my head. It has not since turned back on and my POIS is constant, Not just a certain number of days. I have not been the same since.

[alphaq]

alphaq, Yes I had a similar experience to start my POIS. It happened at the moment of orgasm, felt like something 'shut off' in my head. It has not since turned back on and my POIS is constant, Not just a certain number of days. I have not been the same since.

Yeah, the answer to this question might give some insight on the mechanics of POIS. For me, it's rather strange/interesting that POIS seemed to start immediately after one particular orgasm. Before that, there were pretty much no symptoms at all.

I suppose for some people it could be different?

[acronym]

A question for all

Does pois affect the body weight??
for me I think it does!!

I think POIS was causing me to gain some weight, but when I found fenugreek the weight gain stopped. However I may have mistaken the inflammation and swelling of my face and the bloating of my stomach to be weight gain. My actual weight in lbs hasn't changed since before I got POIS, but I've lost a lot of muscle since then.

From my perspective it does the opposite. An orgasm kind of like boosts my metabolism and advsersely effects my appetite. I have a hard time putting on weight. I remember seeing some pois + body type survey (not a large number of responses though) and I thought it was skewed (not significant indicator though) to pois sufferers being on the underweight side.
Well meteo, what effect do you suspect pois is having on your weight?

[meteo74]

For me The symptoms was gradually not suddenly.

[meteo74]

I woud ask u what is amine and where I can get it and how to use??

[kurtosis]

I woud ask u what is amine and where I can get it and how to use??

Sounds like an amino acid supplement. Many of the amino acids have an effect on the creation and regulation of neurotransmitters.
Examples include L-Tyrosine (http://en.wikipedia.org/wiki/Tyrosine) , L-Tryptophan and Phenylalanine (http://en.wikipedia.org/wiki/Phenylalanine). These are all found in complete proteins like whey (commonly used by weight lifters), soy, eggs and certain algae like spirulina.

When you think about what weight lifters use these supplements for (recovering from extreme physical exertion) then it's possible that they have an effect on POIS recovery. I found they did but they weren't a complete solution for me.

Even if you're lactose intolerant there are some whey proteins available which have very low lactose content, probiotics and little or no artificial sweeteners or flavours. Stuff I wouldn't mind taking every day (& I did :)). I used to use one. Not all amino acid supplements fall into this category and I found some very difficult to digest which is how I ended up taking algae.

[demografx]

As a lactose intolerant, I'm glad to hear this, kurtosis.

[demografx]

Here is one interesting question for everyone:

Did you remember the details of the instance or day that POIS first started occuring?

Excellent question.

I do not remember and wish I could.

I usually say "my POIS began 30+ years ago".

Only because that is as far back as I can remember connecting-the-dots-between-sex-and-symptoms=POIS. It takes many members here years before they see the connection. Sometimes POIS is really only felt  _two_  days after sex.

Conceivably, POIS for me could have started as far back as 50 years ago.

alphaq, this might be a good question for our polling center:
http://poiscenter.com/forums/index.php?board=15.0

[John21]

Here is one interesting question for everyone:

Did you remember the details of the instance or day that POIS first started occuring? Specifically, what I mean is this:

- Do you believe that after having one particular orgasm, you felt/knew something was wrong or different? (or was it the next morning?)
- Anything different/remarkable about how you were masturbating/having sex, or the frequency of masturbation that day or week?

My first symptom was sharp back pain that would happen in the day(s) following orgasm. The back pain went away before long but was replaced with mental distress.

[acronym]

When you think about what weight lifters use these supplements for (recovering from extreme physical exertion) then it's possible that they have an effect on POIS recovery. I found they did but they weren't a complete solution for me.

Even if you're lactose intolerant there are some whey proteins available which have very low lactose content, probiotics and little or no artificial sweeteners or flavours. Stuff I wouldn't mind taking every day (& I did :)). I used to use one. Not all amino acid supplements fall into this category and I found some very difficult to digest which is how I ended up taking algae.

I have taken WPI (Whey Protein Isolate) on and off over the years, with some brands indicationg that it had been processed to such a level that no lactose remained. Its superior to whey or WPC in this regard. After a little while though I still would have trouble with it which was a shame as it is such a great source of protien with great amino acid profile. As part of a gym program though I was taking multiple scoops each day, every day...increasing intolerance (not allergy) to something in it...maybe its not the lactose but just the protien source. I had a blood test that showed I was fine for goats milk, and initally I was, but after a little while I ended up with continuous digestive troubles. Since I do go to the gym, I take extra protein with Hempseed Protein + Pea Protein and tolerate these. I dont think whey will make a huge difference for anyone here as regards pois, but if they do go to the gym, then yes it will. I know when I took extra protein supplements I felt a lot better with my gym program (hair + skin + sleep + anxiety + muscle definition were better) Whey is big business now but not too long ago it was considered worthless by product and thrown away.

[0002ppdnuos]

I've been taking 2g of Vitamin C (Nature Made, 500mg), and drinking 4 glasses of high-calcium milk (Anlene, high-calcium milk powder) daily during my POIS (caused by nocturnal emission). I actually feel the difference (my symptoms are mainly in my brain). I'll continue with this approach and see if it further improves my symptoms. I'm on abstinence too. 

Besides, I found the following book contains lots of practical information on nutrition (from which we could gain inspiration on finding the cure for POIS): Adelle Davis, Let's Eat Right to Keep Fit. It's very helpful to me.

The following websites contains lots of information on cortisol and its effects on our body. I list them down in an order of their usefulness. I hope it saves your time in searching the cortisol-related information:
http://stress.about.com/od/stresshealth/a/cortisol.htm
http://answers.google.com/answers/threadview/id/757599.html
http://answers.google.com/answers/threadview?id=252375

I'd ordered Relora from Vitacost as well. I'll try it when it reaches me in the mid of May.

*Thanks warriors, you made me feel like I'm not fighting it all alone.*

[demografx]

Welcome back, warrior : - )

[kurtosis]

When you think about what weight lifters use these supplements for (recovering from extreme physical exertion) then it's possible that they have an effect on POIS recovery. I found they did but they weren't a complete solution for me.

Even if you're lactose intolerant there are some whey proteins available which have very low lactose content, probiotics and little or no artificial sweeteners or flavours. Stuff I wouldn't mind taking every day (& I did :)). I used to use one. Not all amino acid supplements fall into this category and I found some very difficult to digest which is how I ended up taking algae.

I have taken WPI (Whey Protein Isolate) on and off over the years, with some brands indicationg that it had been processed to such a level that no lactose remained. Its superior to whey or WPC in this regard. After a little while though I still would have trouble with it which was a shame as it is such a great source of protien with great amino acid profile. As part of a gym program though I was taking multiple scoops each day, every day...increasing intolerance (not allergy) to something in it...maybe its not the lactose but just the protien source. I had a blood test that showed I was fine for goats milk, and initally I was, but after a little while I ended up with continuous digestive troubles. Since I do go to the gym, I take extra protein with Hempseed Protein + Pea Protein and tolerate these. I dont think whey will make a huge difference for anyone here as regards pois, but if they do go to the gym, then yes it will. I know when I took extra protein supplements I felt a lot better with my gym program (hair + skin + sleep + anxiety + muscle definition were better) Whey is big business now but not too long ago it was considered worthless by product and thrown away.

I know. Most of the cheese manufacturers near where I live make as much or more money from supplying ingredients to sports supplements companies as they do from boring old cheese and milk. Funny how times change. I think WPI with creatine and glutamine will undoubtedly have some effect on cognitive symptoms as some amino acids in isolation and the other 2 ingredients have been shown to have a beneficial effect on mental stamina as well as physical stamina. This was my experience and is aside from any concerns about the long term safety of ingesting creatine or L-glutamine.

But if POIS has an autoimmune element then POIS sufferers may have problems in extracting the nutrients from these foods and would eventually become allergic to them. That was my experience which is why I ended up taking algae capsules and vitamin C every morning. I felt the protein was doing me good but I just couldn't stomach, literally, drinking more whey protein. I tried soya protein too but that was worse and gave me really bad gas.

[nathan123]

Hi everyone,

I tried Vitamin C tablet with sea salt for 15 days under the supervision of doctor.  For first 5 days, I felt a dramatical improvement in recovery of POIS symptoms.  But after words as usual, this medicine is also become dead / inactive (after successful for few days).  I don't know why this is happen in POIS.  I have experienced 20 to 25 medicines which worked initially, but as time moves (within 15 days), the medicine will inactive and not respond to in positive way. 

My doctor also astonished after seeing my results and he does not know how the medicine iniitially works and later become inactive and finally he quits his treatment.   He suggested there is no problem physical and he concluded POIS for me is a pyschological one which is caused by negative energy / black magic  and he suggested to go in this way and he has the assurance that there will be cure.    I apologies for mentioning this negative energy / black magic in this science forum.  I not at all has belief in these aspects.  But due to my doctors advice, I am going to go in this way and lets see what will happen.

What is your views about this? Is any one think, whether POIS is because of negative energy in mind / black magic / misconception about sex in mind?  As any one tried this option?

 

[kurtosis]

Hi everyone,

I tried Vitamin C tablet with sea salt for 15 days under the supervision of doctor.  For first 5 days, I felt a dramatical improvement in recovery of POIS symptoms.  But after words as usual, this medicine is also become dead / inactive (after successful for few days).  I don't know why this is happen in POIS.  I have experienced 20 to 25 medicines which worked initially, but as time moves (within 15 days), the medicine will inactive and not respond to in positive way. 

My doctor also astonished after seeing my results and he does not know how the medicine iniitially works and later become inactive and finally he quits his treatment.   He suggested there is no problem physical and he concluded POIS for me is a pyschological one which is caused by negative energy / black magic  and he suggested to go in this way and he has the assurance that there will be cure.    I apologies for mentioning this negative energy / black magic in this science forum.  I not at all has belief in these aspects.  But due to my doctors advice, I am going to go in this way and lets see what will happen.

What is your views about this? Is any one think, whether POIS is because of negative energy in mind / black magic / misconception about sex in mind?  As any one tried this option?

It does seem slightly odd that your doctor is talking about negative energy and black magic.  That said you may be feeling so depressed and anxious about POIS that that needs to be treated aswell. What did your doctor say exactly?

[0002ppdnuos]

...
What is your views about this? Is any one think, whether POIS is because of negative energy in mind / black magic / misconception about sex in mind?  As any one tried this option?

Based on my 20 years of POIS experience, I totally don't think it is due to negative energy in mind / black magic / misconception about sex in mind. However, in my humble opinion, our psychological condition does affect hormone secretion, and hence is indirectly inducing the occurance of POIS.