Author Topic: Post Orgasmic Illness Syndrome (POIS) (Read 2318898 times)

John21 · **Reply #17200 on:** 31/05/2012 09:57:08

Stef, thank you, that is very informitave. I hope we can make the July/August deadline.

nathan123 · **Reply #17201 on:** 31/05/2012 15:36:42

I got my semen culture results. Nothing found.

What Next? ................................ to free from POIS

CertainlyPOIS · **Reply #17202 on:** 31/05/2012 17:57:59

Quote from: nathan123 on 31/05/2012 15:36:42

I got my semen culture results. Nothing found.

What Next? ................................ to free from POIS

does semen culture also look at viruses to.

am at loss right now at what to check next.

Vasian1980 · **Reply #17203 on:** 31/05/2012 18:07:23

There was a urologist, diagnosed prostatitis, ultrasound shows the scars. Maybe it has something to do? Tomorrow I will take the secret of prostate infection.

Omen 30 · **Reply #17204 on:** 01/06/2012 02:57:53

Has anybody tried fish oil capsules on daily basis yet?

demografx · **Reply #17205 on:** 01/06/2012 04:58:31

Quote from: makrofag on 31/05/2012 07:45:23

OMG guys... Reiki is seriously the last thing that this thread needs. New age medicine has been debunked so many times it's wondrous that people believe in real effects and not just in a temporary psychosomatic fix. Yep.. the results of these treatments just never seem to last ;)

Exactly, makrofag, thanks for the support.

demografx · **Reply #17206 on:** 01/06/2012 05:05:25

Quote from: kurtosis on 30/05/2012 18:36:11

Quote from: Habibou on 30/05/2012 16:41:53

-I really want to know exactly, by a scientific way, what caused my condition for such a long time so that I could explain to people "it was not in the head"

Amen to that. Apart from having POIS, the 2nd most infuriating thing is not having an accepted medical diagnosis.
There are no malingerers on this forum but I'm sure that some of us have been labelled as such by colleagues and friends who didn't understand what we're going through. That's a real tragedy.

Well said.

kurtosis · **Reply #17207 on:** 01/06/2012 07:28:12

Quote from: Omen 30 on 01/06/2012 02:57:53

Has anybody tried fish oil capsules on daily basis yet?

Yes. Fish oil and Krill oil. KO seems to have more of an effect but I've used 2 brands and the quality seems quite variable. What I mean by this is that one of the brands smells quite fishy (rancid?) and has little effect on POIS and the other has no smell and helps reduce symptoms. Given there's also large variability in price of KO (the less smelly brand is twice the price of the other one) I decided to look for alternatives.

prister · **Reply #17208 on:** 01/06/2012 16:34:37

Has someone tried immune supression?

Balourd · **Reply #17209 on:** 01/06/2012 21:48:51

Hello guys!

I am 23 years old. Generally i masturbated a lot 5> times per day.I had several and severe problems with headache , depersonalization, brain fog all related things.
That lead me to depression. What helped me was acupuncture. Today i am lot better than then but still not like i should be.

I had always trouble with social contact etc. Before some years i felt that masturbation might cause me that fatigue and all related stuff. When i quit it for a week and with meditation and reiki , i felt lot better ,amazingly better. I found a girlfriend after two years within that week and was lot more social and smarter.

However , although i had sex i masturbated too much. I have many of the symptoms after ejacuation.. My mind stops working , i have almost nothing to say , feel lazy and cant help it (even having a deadline for work). This week i decided to try to live again more normal life. After 1-2 days of absistence i was feeling lot better. But after having sex i felt like hit by a bus. It was a sudden return. Within this week i have ejacuated one time only because of sex. Before finding this i was looking at over masturbation sites..
I have noticed that Monster energy drink that has B vitamins helps but has caffeine which makes me nervous. I tried niacin and felt better.. I am going to try niacin before sex to see if anything changes.. Generally i feel that i need 1-2 days for recovery..
I dont know what i should do but this thing keeps me back.My plans is niacin before sex and serious work with my self (meditation etc) and start excersising again. Also i think that i should find a good naturopath and test my hormones.
What helps me is eating meat, and B vitamins and abstaining and meditation.. Maybe all i have is sexual exhaustion because i masturbated more than 5 times daily and worked 12-15 hours per day ..

Habibou · **Reply #17210 on:** 01/06/2012 23:54:03

If you put together the donations made + the pledges , we now reach the huge amount of 28, 500 $ !!!

Congratulations everybody !! We still need 5,000$ and the target is reached...
We should be ready to turn our pledges into real donations ;)

demografx · **Reply #17211 on:** 02/06/2012 04:22:40

Balourd, welcome to the POIS thread of The Naked Science Forum! We believe that 2012 is POIS' Breakthrough Year. We hope to launch serious POIS Medical Research. A great time to be here!

Please check your mail inbox for a complete list of POIS resources.
(click on "My Messages" at the top of this page)

Welcome aboard!
Daveman and Demografx
Your forum moderators

thereishope · **Reply #17212 on:** 02/06/2012 04:25:12

hey guys, quick question, is there anyone experience POIS symptoms located in Montreal, Canada? If so please contact me at christoslycos@gmail.com.

Hope to hear from you.

thereishope · **Reply #17213 on:** 02/06/2012 04:52:55

I am really sorry guys, I have a confession to make and I hope no one takes it seriously. I we have remind guys that post about how depressing their lives are and start focusing more on the facts we have, solutions, ideas, symptoms and what might make this better.
Please guys no more depressing sh1t, lets step it up a notch and get to the bottom of this. We need less of a passive voice and more of an actionable voice. Everyone should speak up, opinions and ideas matter. Last but not least, lets make focus groups. In other words, we should put together groups of POIS sufferers and meet on a regular basis and meet each other physically. I don't know how were going to do this but I know if there's a will there's a way. Goodluck to everyone, stay strong!

B_Daniel · **Reply #17214 on:** 02/06/2012 09:47:55

Quote from: Omen 30 on 01/06/2012 02:57:53

Has anybody tried fish oil capsules on daily basis yet?

I've been taking 2-3 fish oil pills per day for about 3 years now. I have dry eyes that this helps tremendously with. Also, my fingers get very sore when I don't take the fish oil. The fish oil reduces inflammation in the tendon sheaths in my hand (my rheumatologist confirmed this). Fish oil must be taken for 2 months straight before full effects kick in.

Does fish oil help my pois- not in a significant way.

B_Daniel · **Reply #17215 on:** 02/06/2012 09:58:30

Quote from: tatvamasi on 29/05/2012 16:01:22

Finally by Gods grace, I found this Lady in florida, who worked on me and cleared over the phone for last six months ..

Nathan123, tatvamasi - thanks for sharing your experiences. Positive or negative, questionable or not, I think it's helpful for us all to share experiences that we've tested more than a couple times.

I have recently had my own Alternative medicine experience I'd like to share. I've been seeing a NAET acupuncture specialist for the last few weeks. For those unfamiliar, NAET is a form of acupuncture which is supposed to cure/treat allergies. NAET isn't based on any scientific reasoning, so I was skeptical from day 1. That said, my insurance covered most of the visits, and I've tried so many other things, I thought I'd go for it. I don't really have the energy to write up my whole experience seeing this lady, but today was the big day that I was tested for semen. I went through the short procedure hoping it'd help. Alas, I've still got exactly the same amount of POIS as I had going in there. The only positive thing I can say about NAET is that I can cross another treatment option off my list, and that the sessions were super relaxing and the lady was very kind. But NAET didn't help.

Also, I've seen a regular acupuncturist a few times as well. He was of no help either.

strikef1 · **Reply #17216 on:** 02/06/2012 10:57:18

Hi all,

it seems that I am one of the 45 people where the study was performed on and did the skin test (positive result). As there was not much found on the internet a couple of years ago, I gave up searching and was waiting for Dr. Waldinger's publications. After seeing a tv programme on TLC yesterday on POIS, it made me search the internet again and found several new sites on the POIS topic - including this one! Thanks for all you efforts!

It also motivated me to stop waiting and contacting Dr. Waldinger again.

I would like to share this with you - as you all have shared your life with me!
For me it also matters when I have an O. After sleep, I mostly am recovered.

In the morning: I get more and more fatigue / ill / concentration problems / hurting eyes / headache / diffulculty finding words and it influences my social life. And have to sleep early to recover - next day mostly recovered.
In the afternoon: same as above, but lighter.
Ideal moment around 6-7 pm: not too much problems, but I fall asleep at 11pm, no matter what.
After 9: all the symptoms as above but a more serious headache and even more tired the next day. Need to sleep to recover again.
After 0:00: not a good idea to have sex & O. (but that's when the wife likes it the most)[\li]

Problems are getting worse over the years - now 45 and suffering for 20 or more years. I furthermore have light hay fever / allergic to mosquito bites / allergic to sun (skin).

And I almost forgot: i am hyper sensitive.

I don't have any solutions or relief found yet - but I am going to try Xyzal as I have it also for my hay fever - and some of the symptoms are the same.

I really hope 2012 is our year!

Omen 30 · **Reply #17217 on:** 02/06/2012 13:44:51

Yes,sleeping early helps me too...

Habibou · **Reply #17218 on:** 02/06/2012 13:58:03

I also tried NAET without any success !

demografx · **Reply #17219 on:** 02/06/2012 18:26:37

strikef1, welcome to the POIS thread of The Naked Science Forum! We believe that 2012 is POIS' Breakthrough Year. We hope to launch serious POIS Medical Research. A great time to be here!

Please check your mail inbox for a complete list of POIS resources.
(click on "My Messages" at the top of this page)

Welcome aboard!
daveman and demografx
Your forum moderators

demografx · **Reply #17220 on:** 02/06/2012 18:42:54

Quote from: strikef1 on 02/06/2012 10:57:18

It also motivated me to stop waiting [to contact] Dr. Waldinger again.

This is a frequent problem.

But don't worry, anyone who needs a timely reply, including a copy of Waldinger's papers, please send a Private Message (PM) to me or to "daveman". (To send a message, just click on MY MESSAGES at the top of this page)

You are an important part of our search here for a POIS cure, since you participated in The Netherlands' studies!

Welcome again, strikef1!

demografx · **Reply #17221 on:** 02/06/2012 19:02:16

thereishope, welcome to the POIS thread of The Naked Science Forum! We believe that 2012 is POIS' Breakthrough Year. We hope to launch serious POIS Medical Research. A great time to be here!

Please check your mail inbox for a complete list of POIS resources.
(click on "My Messages" at the top of this page)

Welcome aboard!
daveman and demografx
Your forum moderators

nordnurse · **Reply #17222 on:** 02/06/2012 20:06:07

For those of you who are interested in learning more about alternative/complementary medicine, you may find some reliable information at the National Center for Complementary and Alternative Medicine (NCCAM). This is one of the centers of the US National Institutes for Health (NIH).

The link is http://nccam.nih.gov/.

They don't push any agendas or attempt to convince people to do anything. This is a serious, scientific research arm of NIH, and provides general information and reports of studies undertaken on the various types of alternative medicine.

Stef

B_Daniel · **Reply #17223 on:** 02/06/2012 20:53:35

I just saw some info on a male oral contraceptive in China. I know that sperm count is only a small part of our pois, but still found this interesting:

"Gossypol has been used as oral contraceptive for man in People's Republic of China. In this study we used tablet preparation of gossypol, which is actually used as oral contraceptive for male in People's Republic of China, on a volunteer. The administration of 20 mg/day gossypol tablets for 19 days resulted in a tendency of decreasing sperm density and total sperm count, but had no effect on serum LH, FSH, PRL or testosterone. Furthermore, the volunteer had no complaints of side effects and his general laboratory findings were normal. Ten days after the termination of gossypol administration, sperm density returned to its preadministrative level. Our study suggests gossypol may be effective as a male oral contraceptive with no acute side effect."

demografx · **Reply #17224 on:** 02/06/2012 22:03:32

Interesting, B_Daniel! Since my sperm count inexplicably dropped to zero, this has my attention.