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Hi people, I went along to my university health coordinator and she was very sympathetic and supportive with our cause =) She said she is going to contact some neurologists in oxford/at oxford (cant remember which:P) she had a special name for the institute, but i cant remember. She said hopefully because it is coming from her they will have the courtesy to reply shedding what knowledge they have. Also she suggested that I try and find a neurologist, because she definately thinks its something physiological rathern than psychological, and run tests to see what actual changes are in the brain. This would mean masturbating for the process of the test. Has anybody done anything like this before? Im will to give it a go i think, but admittadly we were both in agreement that finding a neurologist will be difficult, but she said it can and should be done. She wondered if it might be a form of epilepsy?
...I have been diagnosed with CFS or Fibromyalgia in the past.
No it was just to clarify the time when i was writing. Now the Pois has been reduces to less than 24 hours. It's a real improvement. I have stopped fenugreek seed. I will maybe retry with fenugreek supplement later.
...I was also wondering is Relora still supported as help in reducting symptoms and has any body else tried it. I bought some and i will be posting it effects on me.
How do you explain your condition to your family and co-workers? For me it would be just too big an embarassment to tell them the truth ...
Girlwind, thanks for the ZRT info again. Too much data flying around here, though, I can't recall what thyroid tests I should ask my GP to request from ZRT. Can you please say again? Many thanks.My GP is an HMO, should I be prepared for resistance? If the GP has a lab that does thyroid testing should I just go with that?
So I've recently stopped taking fenugreek until I can determine how it effects estrogen and breast tissue development. I haven't grown tits just yet:) but I was reading about a guy who had an increase in breast size from taking fenugreek for fifteen weeks straight. This is a lot of fenugreek, and probably more than any of us would take, but I still want to know more about fenugreek before I continue taking more of it. I'm not worried of toxicity as it is a safe herb to take...just unwanted side effects.
According to this article, maybe you should also take an adrenal test with a thyroid test.http://thyroid.about.com/cs/endocrinology/a/adrenalfatigue_2.htmIt's incredible how the symptoms mentionned in this page are identical to pois.Also in the second page of the article they have interesting suggestions, including the following :-low-dose hydrocortisone-avoid stimulants-low sugar diet-siberian ginseng-astragalus-fo-ti root-triphala-black cohosh-chamomile-lemon balm (melissa) (also it has an antiviral effect)
Girlwind, thank you, VERY helpful! Sorry I made you repeat things, I have *CRS.*Can't Remember Sh**
Demografx: PLEASE READ MY POST TO MARTIN (above) re: cortisol and adrenals.
Yes, girlwind, I was just about to point out to martin that adrenal testing - which he recommends - is part of the Comprehensives.Can most chiropractics/accupuncturists help interpret the results? (What's low? what's high?)Girlwind, I think you agreed before that it might be good to do testing "in-POIS" and "out-of-POIS". Boy, this is getting complicated (and costly?)
...getting a baseline on a not-POIS day should be revealing in and of itself...
...I was lucky to have a good interpreter of the test--a local naturopath who works at the local health food store has used this lab for her patients for many years...
...But for the most part anybody can see what is IN and OUT of range...
...Some-times patients know more than doctors about these kind of things...