[demografx]

This is what TNT Magazine thinks POIS looks like.

[CertainlyPOIS]

Does anybody else have sperm in their pee after abstaining from the big O for a while and still recovered 100%.
I think this might be the reason why am not recovering all the way, may be there is still minute inflammation.

[horizon]

not me, no sperm in pee ever.

[horizon]

I called some allergen clinics and I'm not going to pay outrageous amounts every week to get them to do my shots. 

how much did they quote for the immunotherapy?
how much for the initial allergy test?
first thing is to see if you're allergic.

[horizon]

With this skinprick test, how many days after the ejaculation, should it be carried out?

The report doesn't say. It's reported as though it were independant, but without any mention or reference at all to advance of any previous POIS session.

If one is "clean" (like a week after any POIS symptoms have disappeared), the reaction would start from scratch I suppose. Likewise we could assume that if one was at some point "in POIS", it would sort of be like having an "O" while still in POIS.

Im might be completely wrong here but I feel I can effect the results of the skinprick test simply by what day I do the test on!

Last summer on Day 14+, I was getting no hayfever reactions.
But in POIS, hayfever itchy eyes etc.

I feel like Im more likely to get an allergic reaction from the skinprick test In-POIS!.. does anyone else have this feeling???...I dont know.... I guess Ive got to be wrong on this one....

[Z_one]

DEAR ALL,PLZ READ CAREFULLY : Honestly speaking,,,,,and after tons & tons of research; consultations ; research; readings & trial & errors : iv personally &  with respect to all opinions reached to that conclusion : For the general population (except listed exceptions below) POIS is nothing more than neurotransmitters brain deficiency related to excessive & prolonged stress & leading to Chronic fatigue syndrome like symptoms due to depletion of the body's key precursors & nutrients.
Causes :  Prolonged stress/ depression; poor nutrition; single/excessive sex; lack of exercise; pollution; anxiety; traumas & others.,,,
Exceptions : People suffering from preliminary disorders such as : Autoimmune; adrenal exhaustion; hormonal imbalance; STDs * others,,,,,,Usually those suffering from any single or combined of any of the above will suffer additional symptoms like allergies; fever; anorexia; pain and depending on each and every case ( Remember each and everyone is very different while the human body itself is very complex---> That is why there can't be a universal cure for everyone,,,,because each case needs to be tackled; diagnosed & treated differently and that is exactly why we have so many different cases & claimed cures on this forum,,,because every tested/ cured member is different!) 
Treatment cure for the general population : Gradually replenish serotonin & other neurotransmitter deficiency using natural MAOIS; exercise; sun baths; healthy nutrition; stress reduction ; relaxation techniques& others,,,,,Use of homeopathy & herbal medicine to re-balance the system & reach homeostasis during exhaustion & recovery phases.
Conclusion: To me & thx God after lots of suffering & hard work POIS is a closed case now! Though I still suffer from undesired symptoms from time to time ; Iam 100% aware of what it is going on with my system & specifically inside my brain . In addition I fully understand the thirst of POIS sufferers like me to learn & know more & get into the nifty tiny details,,,,but trust me the problem AND solution for the general population,,,,is much much MUCH simpler than it seems,,,,,Sometimes we drawn into the details & forget the big picture,,,,,,and that has in my opinion has been the case for POIS ,,,and again with my deepest respect to all researchers; specialists; active members; & moderators of this forum,,,,,get well everyone.
Regards,

[rock27]

Does anybody else have sperm in their pee after abstaining from the big O for a while and still recovered 100%.
I think this might be the reason why am not recovering all the way, may be there is still minute inflammation.

I do get this too. I think I had an O and at the time not noticed it. Then when you pee you notice the sperm.  It's like an NE but then during the day. Could also be seminal leakage; I guess it's also related to premature ejaculation; some here mentioned that due to arousal they also get pois symptoms; I think it's the same here; the excitement just opened the gateway a little bit. I searched for this on the net and this could be due to high dopamine/high adrenaline/low serotonin and high histamine (though not confirmed). For now I'll try antihistamine as this also fights allergies.

I actually had my pee researched a while ago. For a while I had the same as some other member mentioned; cloudy pee a few days after O and then feeling much much better. So I peed in a bottle, couldn't see through the bottle anymore and the next morning there were clouds in it. So took it to GP. He scared me first, he tested it at his office and said he found blood and then said it might be cancer. But in the afternoon he called me and said the lab couldn't find anything. But I was high in something that had to do with kidney stones, but still in normal range.

[rock27]

I feel like Im more likely to get an allergic reaction from the skinprick test In-POIS!.. does anyone else have this feeling???...I dont know.... I guess Ive got to be wrong on this one....

Agree. In pois I am very very vulnerable to a lot of things.

[demografx]

Her final note back to me was terse and said they cannot help.

The medical establishment in America is profit driven, worried about liability, and subsequently small minded in my opinion.

Alot is explained in the contraceptive article, and it was a great article.

Testosterone undulate + a progestin/progestongen(same thing basically) = highly efficacious, well tolerated male contraceptive.

This is very intriguing because if sperm allergy is truly the cause of POIS, reducing/eliminating the sperm should cause a drastic loss of symptoms in my estimation.

ALSO, this would explain the article from 2002 about the post coital headaches relieved by norethisterone(a prgestin/progestogen).
AND it would explain the testosterone reduction of symptoms people have on the forum.

It's a pretty elegant solution until a more permanant solution is found IF indeed it works.

Both Testosterone undulate plus various progestin/progestogen's are available for prescription if you guy's have any open minded doctors. 

It would be interesting to hear about.

Also, I was thinking that the  hyposensitivity therapy could still be carried out while taking this hormone medication to more permanantly immunize you. 

I called some allergen clinics and I'm not going to pay outrageous amounts every week to get them to do my shots.  But I did pick the allergen clinic's brain.

With what I've found out they inject approximately .1 to .5 cc(which = 1ml) of diluted antigen subcutaneously(fat, NOT BLOOD).  If you do the math from Waldinger's article of a one in 40,000 dilution to start and ending up one in 280 over 2 or 3 years, you can get the correct sample calculations.
You need a micropipette to make the dilutions and store the samples in your freezer (at 4 degrees).
I have no money because I am in grad school but if I had money I would do this and write a blog detailing exactly how to do this/get the supplies etc.
My stepmother is also a phd in molecular biology so any lab related advice I could ask her about. 
I think we could do this for under 500 bucks.
Where/how can we get grant money?

These are all just theories, however very intriguing.

NICK, thank you! You turned around my disappointment with her. []

[horizon]

I feel like Im more likely to get an allergic reaction from the skinprick test In-POIS!.. does anyone else have this feeling???...I dont know.... I guess Ive got to be wrong on this one....

Agree. In pois I am very very vulnerable to a lot of things.

Then I wonder..can it really be a fair test?

Im sure its something Dr.W thought about/covered.

[demografx]

gadhouse, welcome to the POIS thread of The Naked Science Forum!




Here are some POIS resources which may be helpful to you:


Our POIS Information Website, built by "mat780", is here:
http://sites.google.com/site/POISwebsite/

Please see "B_Jim"'s POIS Summary of All Cases, here as well as others on the Web. This includes remedies that we have tested, and results.
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg149009#msg149009

"Girlwind" has created an excellent POIS Video:

Our new POIS chatroom (realtime chat). Invite or visit another member(s) there, ANY TIME. We can all get to know each other better:
http://forums.delphiforums.com/POIS/chat


* Most recent POIS Research Studies, 2011 *

If you will send Prof. dr. Waldinger an e-mail, stating that you have read his message on the Forum, at http://www.thenakedscientists.com/forum/index.php?topic=6576.msg340138#msg340138 and that you are willing to fill in a questionnaire, he will send you the copies of both 2011 research articles by return through email. At a later date, he will send you the questionnaire which, after having filled in, you should send him back by e-mail.
His email:
prof.dr.waldinger.pois@gmail.com

Prof. dr. Marcel D. Waldinger's website:
http://www.post-orgasmic-illness-syndrome.com/en/index.html


First POIS Research Study, 2002

We have a copy of the first formal medical investigation on POIS by Prof. dr. Marcel D. Waldinger,MD,PhD, and Dr. Dave Schweitzer, MD.

  
Recent POIS Research Study, 2010

CASE REPORT
Postorgasm Illness Syndrome - A Spectrum of Illnesses
Jane Ashby, MRCP, and David Goldmeier, MRCP
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg316781#msg316781


British Medical Journal Case Report, 2010

Case study by Dr. Selwyn Dexter of a patient with a headache-featured POIS symptom treated with progesterone/norethisterone.
http://casereports.bmj.com/content/2010/bcr.10.2009.2359.short?rss=1


There are a couple of ways to get any or all of the above 3 studies: (1) if you want a PDF copy, send me a Private Message (PM) with your regular email address (use "AT" instead of "@" ) and I'll send you back the PDF.

Or, if you prefer, (2) I can simply reply with a Private Message (no regular email needed) and provide you with a simple text version embedded in your PM.

To send a Private Message, click on "Messages" at the top of this page. At the Messages page, click on "New Message". From that point on, it works just like posting a message here, except that it only goes to the person(s) you designate.

Remember to put a quote around my name, i.e., "demografx".


New York Times article,

January 20, 2009
Mind
Sex and Depression: In the Brain, if Not the Mind
By RICHARD A. FRIEDMAN, M.D.
http://www.nytimes.com/2009/01/20/health/views/20mind.html?_r=1&scp=1&sq=friedman%20sexual%20January%2020&st=cse

- - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -

In addition to serving our own informational interests, the resources listed above can be useful for you to show our credibility to the medical world - which often shows little understanding and is sometimes skeptical of our condition: POIS has scientific underpinnings and POIS is not "just another psychological problem" related to sex - to be treated by the psychiatric/psychotherapeutic community. All of this information can greatly help you to fight the immediate reaction of some doctors: so just tell them, "IT'S NOT 'ALL IN OUR HEADS'! "

Also, it can be helpful when dealing with medical professionals to point out the successful existence of our rapidly growing forum, which has already been referenced in respectable sources such as the Journal of Sexual Medicine (Dr. Waldinger's study), British Medical Journal and wikipedia:
http://en.wikipedia.org/wiki/Postorgasmic_illness_syndrome

For nearly 4 years, our POIS forum has attracted over 200 POIS sufferers worldwide who have posted here, research on an additional 200 sufferers elsewhere on the internet, plus nearly 1,000,000 page visits. Not bad for a rare malady!

[demografx]

gadhouse, this post will help you find information about POIS that we have already discussed, by tailoring a Google search to this forum:


SEARCH THE FORUM WITH GOOGLE

We have an overwhelming amount of data: almost 4 years' worth of posts (over  10,000 posts!) from 150+ Forum members, and an additional 150 POIS sufferers found elsewhere on the Internet by Member B_Jim.

In the Google search box, type
whatever-it-is-you're-interested-in-finding-out[space]POIS[space]site:http://thenakedscientists.com/

for example, I tried
nocturnal emission POIS site:http://thenakedscientists.com/

and 740 results came up for "nocturnal emission" within the Forum.

be careful with spaces (you can use them before the word "site") and no-spaces (everything after the word "site")

Google even provides you results with the Message# for each result. But Message #'s do change, so be patient and look for the approximate Message#.

[Vandemolen3]

Now I know why I have sinusitis so often. That's because when you have an allergy (in my case POIS) you are very vulnerable for a lot of diseases.

[horizon]

I just seen Dr.Waldinger interviewed on TV for a BBC 1 science program about Pleasure and Pain.
He was talking about persistant arousal syndrome and it featured a woman with it. He seems like a nice guy!

[demografx]

Horizon, he is. I've spent much time on the phone with him.

[daveman]

Does anybody else have sperm in their pee after abstaining from the big O for a while and still recovered 100%.
I think this might be the reason why am not recovering all the way, may be there is still minute inflammation.

I had what seemed to be sperm in the pee, fianlly it turned out to be the effects of too much Ibuprofen. As soon as I stopped Ibu, no more milky pee.

Several months now and not even once. I was getting it once or twice per session.

[daveman]

DEAR ALL,PLZ READ CAREFULLY : blah, blah, blah etc.etc.  .........
........seems,,,,,Sometimes we drawn into the details & forget the big picture,,,,,,and that has in my opinion has been the case for POIS ,,,and again with my deepest respect to all researchers; specialists; active members; & moderators of this forum,,,,,get well everyone.
Regards,

Sorry demo, I can still read it!

[daveman]

I feel like Im more likely to get an allergic reaction from the skinprick test In-POIS!.. does anyone else have this feeling???...I dont know.... I guess Ive got to be wrong on this one....

Agree. In pois I am very very vulnerable to a lot of things.

Then I wonder..can it really be a fair test?

Im sure its something Dr.W thought about/covered.

Probably.
I wonder if he'd really risk stacking the results???

[pyropeach]

Here's a cool, new wiki site called qwiki that uses speech and video to present information.  I looked up POIS, and was surprised to find it, but so far there is no content (video or text), it probably wouldn't hurt if we contributed to this site as well.

Check it out : http://www.qwiki.com/q/#!/Postorgasmic_illness_syndrome

[demografx]

Pyro, amazing find!