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Other than a support group, as laymen we can only go so far.
So maybe as a support group, we can still do a lot. Finding outside help has not been a picnic! (Which seems to be common, unfortunately, for rare disorders).Someone here once said that "if we can find a physician who also has POIS, our road to full recovery will be rapid!".
About the ExcelsOK, thanks, it'll probably be a week or so before I've got something presentable anyways. The idea is to show something to stimulate ideas among us. For instance even though it's in a early stage, I'm already seeing things that I hadn't thought about. We all maintain a vague idea of what is happening with our bodies ( and mind ), but when you see it graphically and are taking time to enter information while it's somewhat fresh, you see that it's not just that "I felt bad for five days", you see that it was worse when I ate such and such, and when I took such and such the physical improved and when it's longer or shorter you can see more clearly other influences as to why, etc..Hopefully more of us could see a few graphs and perhaps it might spur ideas as to how they could be enhanced to see more stuff. The idea would be that in a bit, we could eventually create a link to a page where everybody could begin making their own graphs. The results of experiments may be more clear.eg. My (suposed) MSG peak today was a lot shorter than I thought, only two hours.
let me know what you think to that [oxygen] suggestion!!
Is blueberry the same fruit than bilberry ?
But I want to add that glycemia must be linked to inflammation. When glycmia is under controle = less inflammation. I have posted some studies. Effect of sugar on my flu-like symptoms is clear.
Carbohydrates contain single sugars or combinations of sugars. Glucose is an example of a single sugar. Sucrose or common table sugar is a double sugar. Starch contains thousands of sugar molecules bound together, while fiber contains millions of sugars bound together so tightly that your body cannot break them down. Only single sugars can pass from your intestines into your bloodstream. Double, triple, other combinations of sugars and starches must first be split into single sugars before they can be absorbed. These reactions occur so rapidly in your intestines that most starches cause rises in blood sugar that are not much lower than those of single sugars
Sorry what's NE, being a newbie?