0 Members and 1 Guest are viewing this topic.
An interesting phenomenon, perhaps nothing: 1)I often get mini panic attacks in sleep that awaken me, but NEVER have I experienced a euphoria type of episode. This was very strange, but very welcome. This was two nights ago. I learned that, perhaps, our chemistry can be reversible. 2) Last night, during sleep, I should have definitely had an NE (all sensations clearly dictated it). In the past, it would have been 100 out of 100 certain. But I didn't. In both cases, it seeems to me (perhaps erroneously) that there may be other parts of my brain/nervous system functioning to offer "another way". I'm reticent to share this, but I think the give and take of this forum is a very effective tool for a therapeutic/psychiatric type of interactive catharsis that may be in itself a healing instrument.
Thanks Demo for email update
Again a major finding Demografx, however I'm not so happy to hear about this. I wouldn't have expected such a problem. Is it really the cause for pois, the treatment will say it if any.Your pois started a long time ago, do you have this since the beginning... What is amazing is that your usual doctors didn't find this. It was a simple blood test. You had to ask yourself for a prolactin test! I can't believe this. Good luck for the next steps.
I'm sorry I don't contribute much to the discussion. I'm afraid I'm unable to "keep up" with the high level of pioneering and experimenting everybody on here provides on such a regular basis. I'm still reading this and checking for new posts every day, though. Let me know if there's anything I can do to contribute here (I know about the questionaire, of course!).
Quote from: Finally on 06/01/2009 00:47:35It seems that FenuGreek and Maca which I take 3x/day along with Garden of life Restore(FYI Ultra also works ) has the greatest effect on the CFS/Fibromyalgia symptoms. Yohimbe and Horney goat weed seem to be more of a secondary help in the formula. Works good taken with fruit juice(berries Pomegranite etc) I also take about 50mg. od DHEA. When I took it alone there wasn't a great effect. I haven't had an orgasm in 2 months. The physical desire goes down as long as there isn't too much stress to deal with. Kind of keeping my mind on other things as much as possible. Having good results and progress keeps positive mental energy. I took Maca a long time ago and there was no improvement.(maybe a bad brand..). You're able to stay 2 months without orgasm while taking horny goat, it's not what is written about this plant ! As I said before I'll try fenugreek.
It seems that FenuGreek and Maca which I take 3x/day along with Garden of life Restore(FYI Ultra also works ) has the greatest effect on the CFS/Fibromyalgia symptoms. Yohimbe and Horney goat weed seem to be more of a secondary help in the formula. Works good taken with fruit juice(berries Pomegranite etc) I also take about 50mg. od DHEA. When I took it alone there wasn't a great effect. I haven't had an orgasm in 2 months. The physical desire goes down as long as there isn't too much stress to deal with. Kind of keeping my mind on other things as much as possible. Having good results and progress keeps positive mental energy.
Girlwind--You mention "resistance" in reference to sometimes not being able to go to the core of the feeling. This is how I often feel. I used the word relax, in that I often just can't get there or hold it if I do. When I can remove this resistance or obtain this relaxation, I feel an envelope of warmth and serenity coming over me. This is rare, but I get it enough to know that it is quite desireable. As far as POIS is concerned, I want to take my "relaxation/removal of resistance" to new, deeper levels. Perhaps this will significantly reduce POIS.
I take a 7:1 concentrate(Paradise Herbs) which is equal to 1750 MG of whole root 3xday. Iyt seems to have a synergy with others especially Fenugreek.Horney Goat doesn't have that effect on me(surprising) although I haven't had a NE in a couple years. I used to have a lot but stopped taking pian relievers(aspirin Ibupofen) later in day seemed to help. Getting older(50) might have a lot to do wih it. Of course cancelling Cinemax also helped.For me the 1st two weeks are the toughest then the strength of the urge lessens.
Demo--Thanks for the information--It was strange "not" to have an NE--Perhaps it will (not)happen again, who knows--A panic episode usually precedes my POIS episode--In this case, obviously, no POIS but no panic!!! That's why I'm feeling pretty good right now; but disappointments always await. However, I am going to try to remain optimistic. I will continue to do any little thing that might help, but most of all optimism. For most of the last 20 years I've had an anxious attitude about POIS, like it's always there; when is it coming next?. Now, I'm going to try to be positive and try to relax all the time, and if it happens, it will happen without the backdrop of dread. [While of course, I continue to experiment with herbs, supplements etc.]
Martin, thank you, you're too kind! Sorry that I've taken longer than usual to reply to you, I have been visiting family recently, without using my laptop, and my cellphone internet doesn't allow for forum posting here.Until further testing, and then seeing what happens in my next POIS-cycle, it's difficult to say whether the prolactinemia (high prolactin) is from POIS or not. But POIS is the reason I am seeing this doctor, and POIS is what he is looking for.You ask a very good question, why hasn't prolactinemia been discovered before. I suspect it is because GP's (general practioner MD's) don't normally test hormones in depth. THAT is why I went to an endocrinologist! And it is only because of this forum that I would have thought to see an endocrinologist. Thank you for asking!
It seems there is an interesting link between Iron metabolism and immunity, Pois and dopamine. I'm not sure, it is just a start of theory...- Orgasm seems to cause autoimmune disorder for us (especially if flulike symptoms).- Then it causes inflammation and increases IL-6. (Demo's physician friend thinks IL6 are linked to Pois)- IL-6 increases hepcidin Here and here. - Hepcidin decreases iron levels (its job)- Low Iron level decreases catecholamines metabolism (Iron is cofactor of tyrosine hydroxylase (th). Th regulates the metabolism of L-Tyrosine to Dopamine). B3 is a cofactor too.I'm convinced we can reduce IL-6 with good diet. I think to iron because Guthrie's link gives me this idea of "post-orgasm anemia" and because i said you I wait infos from another case. He has possible deletion of flulike symptoms with iron supplement. Everybody must check his iron level. But it's not enough because there are a lot of biological factors linked to iron. We talked with SteveD and he said he had Pois even when his iron level was good. But i remember even a low-limit level of iron can have effect on Dopamine (restless legs syndrome for example). Another problem is the role of iron on immunity. It seems to be a very complex problem because iron can be anti-inflammatory or pro-inflammatory, depending its form or its association with other molecules. Excessive iron can increase problems and be dangerous for body : No self-medication with iron! only doctors choose to try supplement or not . When Iron is "free" it might be used in pro-inflammation reaction too. Maybe the solution is to improve the absorption of iron instead of iron supplement. Lactoferrin can do the job . And why not heal the autimmune disorder itself ? Beside anti-inflammatory properties, LF was found to inhibit some autoimmune disorders. It seems safe but i prefer to have opinion of the doctor.
TENSION RELIEVERIt's been 6 weeks. Enough! Maybe that's the right length of cycle interval for me. Do feel better, more energized "in spite of". Hope it lasts.Next endo visit/more labwork is in 3 days. As always, this place is hopping with ideas!Thanks, everyone!
I would like join the band but I have no sort of musical talent. But i wont mind being the one throwing my panties on the stage.