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Quote from: John21 on 14/03/2012 22:02:13Quote from: B_Jim on 14/03/2012 12:59:55Quote from: Porke on 14/03/2012 12:59:55To be honest with you guys, I am very skeptical about Dr Waldinger and the 'sperm allergy / reaction' theorymod edit: emphasis above is mine - demo Now I'm 99% convinced I'm not an immune/allergy pois's case too. It's hormonal. I want to try testosterone as soon I can. Demo was right since the beginning.I'm not quite buying it either. I'll be looking in, around, and outside the box for the answer until someone figures it out.Don't worry, Porke, B_Jim, and John21, you have plenty of good company at the forum "Hmm. POIS = allergy???"
Quote from: B_Jim on 14/03/2012 12:59:55Quote from: Porke on 14/03/2012 12:59:55To be honest with you guys, I am very skeptical about Dr Waldinger and the 'sperm allergy / reaction' theorymod edit: emphasis above is mine - demo Now I'm 99% convinced I'm not an immune/allergy pois's case too. It's hormonal. I want to try testosterone as soon I can. Demo was right since the beginning.I'm not quite buying it either. I'll be looking in, around, and outside the box for the answer until someone figures it out.
Quote from: Porke on 14/03/2012 12:59:55To be honest with you guys, I am very skeptical about Dr Waldinger and the 'sperm allergy / reaction' theorymod edit: emphasis above is mine - demo Now I'm 99% convinced I'm not an immune/allergy pois's case too. It's hormonal. I want to try testosterone as soon I can. Demo was right since the beginning.
To be honest with you guys, I am very skeptical about Dr Waldinger and the 'sperm allergy / reaction' theorymod edit: emphasis above is mine - demo
Quote from: observercenter on 13/03/2012 18:36:59Important, for those living in Australia(and for those who do not too!)I want to announce that ABC - Australia Broadcasting Corporation - is going to broadcast the POIS documentary on 12th April, Thursday, at 8 PM - in "The Catalyst" program. http://www.abc.net.au/catalyst/ As you know, i decided to be interviewed in the documentary and talked about the forum, and i was recorded having an allergy test of my own semen in The Hague clinic- where Dr.Waldinger and his allergist work-. They are going to send me a copy of the program after they broadcast it, but i would really like to know beforehand your opinion, australian people! I will share any info i could have on this topic. I hope this will help our cause! Hi, Observercenter!!!Major congratulations to you for making that ABC/Australia news episode possible!!! We are all looking forward to watching it!!!There is no question that you will have furthered the POIS cause -- and I KNOW that you will be the scene-stealer! Your wonderful personality has shone through via every post that you've made.Break a leg on April 12th!!Stefanie
Important, for those living in Australia(and for those who do not too!)I want to announce that ABC - Australia Broadcasting Corporation - is going to broadcast the POIS documentary on 12th April, Thursday, at 8 PM - in "The Catalyst" program. http://www.abc.net.au/catalyst/ As you know, i decided to be interviewed in the documentary and talked about the forum, and i was recorded having an allergy test of my own semen in The Hague clinic- where Dr.Waldinger and his allergist work-. They are going to send me a copy of the program after they broadcast it, but i would really like to know beforehand your opinion, australian people! I will share any info i could have on this topic. I hope this will help our cause!
I was wondering if we could still make changes to our POIS compendium website as currently antihistamines are located in the "unsuccessful remedial methods", but in light of the multiple members who now claim its efficacy in dealing with POIS (including myself) I'd like to see it moved to the "successful" section. Here is the site I'm referring to: http://sites.google.com/site/poiswebsite/test-page/unsuccessful-methods/antihistaminesIn addition perhaps saw palmetto could be added there as well as it has been working well for me for a good number of months and I know there were some others it worked for too.And Niacin hasn't been added there yet.
I want to announce that ABC - Australia Broadcasting Corporation - is going to broadcast the POIS documentary on 12th April, Thursday, at 8 PM - in "The Catalyst" program. http://www.abc.net.au/catalyst/ As you know, i decided to be interviewed in the documentary and talked about the forum, and i was recorded having an allergy test of my own semen in The Hague clinic- where Dr.Waldinger and his allergist work-. They are going to send me a copy of the program after they broadcast it, but i would really like to know beforehand your opinion, australian people!
Thanks Demo. I sent Pyropeach a message about it.
Quote from: demografx on 15/03/2012 19:15:26Quote from: John21 on 14/03/2012 22:02:13Quote from: B_Jim on 14/03/2012 12:59:55Quote from: Porke on 14/03/2012 12:59:55To be honest with you guys, I am very skeptical about Dr Waldinger and the 'sperm allergy / reaction' theorymod edit: emphasis above is mine - demo Now I'm 99% convinced I'm not an immune/allergy pois's case too. It's hormonal. I want to try testosterone as soon I can. Demo was right since the beginning.I'm not quite buying it either. I'll be looking in, around, and outside the box for the answer until someone figures it out.Don't worry, Porke, B_Jim, and John21, you have plenty of good company at the forum "Hmm. POIS = allergy???"I'm very grateful that Dr Waldinger is trying to do anything at all about POIS, even if he sometimes seems secretive and non-sharing in his ways. The papers he has published have helped give us credibility. I'm not sure either if he's on the right track. If I were to guess, I'd say probably for some of us he is and for some of us he isn't. But I don't know. I'm sure he himself would admit he doesn't have all the answers. And if immunotherapy works for some, it'll still be unknown what it is specifically in semen that's causing the problem.We've all struggled with POIS for far too long. How much longer we struggle with POIS depends on us. POIS exists so there is an explanation for it. We need more research and the reality is we need to raise money for it to happen.Imagine one of your best friends, or a brother or sister, revealing to you that they have a rare illness and they've been suffering silently with it for years. It's wasted years of their life and all this time you've known them, you didn't even know about it. They didn't feel able to talk about it. Your best friend. They recount to you the story of everything their illness has affected in their lives: career and other life aspirations, friendships, family, lovelife. You had no idea. You learn that little is known about their condition and they're desperately trying to raise money to get their illness researched and find a solution. I'd give some money toward my best friend's health in this situation, who wouldn't? You're worth helping too. Every cent helps. Please help yourself, help the relationships you have with those who care about you, help me to help myself and help everyone here who knows POIS firsthand like you do. That's a lot of help from one donation.
Quote from: Vincent Marcus on 16/03/2012 22:09:10I was wondering if we could still make changes to our POIS compendium website as currently antihistamines are located in the "unsuccessful remedial methods", but in light of the multiple members who now claim its efficacy in dealing with POIS (including myself) I'd like to see it moved to the "successful" section. Here is the site I'm referring to: http://sites.google.com/site/poiswebsite/test-page/unsuccessful-methods/antihistaminesIn addition perhaps saw palmetto could be added there as well as it has been working well for me for a good number of months and I know there were some others it worked for too.And Niacin hasn't been added there yet."Pyropeach" the Compendium author, is on leave of absence. If you are interested in contributing to the compendium as a "Wikipedia-type" editor, please PM him!
QuoteI have great news regarding my POIS, IT HAS ALMOST COMPLETELY DISAPPEARED! What happened? I got married, and with all the charged/positive emotions involved, I find myself almost POIS free (able to read, think, regain much of my cognitive functions) after O. I accidentally deleted John21's original post. Here it is. Sorry - demoMore evidence for oxytocin's role? Might POIS be an oxytocin-deficit-induced syndrome?
I have great news regarding my POIS, IT HAS ALMOST COMPLETELY DISAPPEARED! What happened? I got married, and with all the charged/positive emotions involved, I find myself almost POIS free (able to read, think, regain much of my cognitive functions) after O.
For those interested, this is the initial email I wrote. As you can see, I didn't even give up my anonymity. Nor have I for any approaches I've made to outside funders so far. I'd like to add that I had the idea to write to Orphanet after Daveman and Demo successfully managed to get POIS listed in the National Institutes of Health database in the States (presumably with a similar letter and approach). Stefanie from NORD gave invaluable advice and encouragement. Without her and Daveman and Demo, the idea might not even have come about. At the end of the day, as I said, all I did was decide to write one letter and followed it up. You never know where things can go and the difference you could make with just 30 minutes of your time.