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Guthrie, I'm curious. You're the first person I've heard mention a partner in the two weeks I've been posting. How does your partner respond to your illness?
Guthrie,I get away , scott-free, 10-15% of the time. That was the most perplexing part of the disease , for me. Also for EM's there's an even higher percentage.
Quote from: Finally on 27/12/2008 21:21:44My current program of Herbs/enzymes has worked remarkably well in breaking up the "cement" and restoring muscle fleibility. I am being as abstinent as possible to prevent any setbacks. It seems as if by restoring the energy levels, the body begins to heal itself? I avoid Calcium supplements as the last time I took them I could barely stand up. I know you took a lotof supplements at the same time. Do you have an idea which one was the best to achieve these results. It's great that you have some success !
My current program of Herbs/enzymes has worked remarkably well in breaking up the "cement" and restoring muscle fleibility. I am being as abstinent as possible to prevent any setbacks. It seems as if by restoring the energy levels, the body begins to heal itself? I avoid Calcium supplements as the last time I took them I could barely stand up.
Quote from: SteveD on 05/01/2009 07:01:05Guthrie,I get away , scott-free, 10-15% of the time. That was the most perplexing part of the disease , for me. Also for EM's there's an even higher percentage. I realize that some people may get away scot-free a certain percentage of the time--I simply wanted to emphasize that it had never happened to me before, so I was trying to figure out what could have been the cause in this exceptional instance.
Quote from: SteveD on 05/01/2009 07:01:05Guthrie, I'm curious. You're the first person I've heard mention a partner in the two weeks I've been posting. How does your partner respond to your illness?Hey Steve--Guthrie's not the only one with a partner. There are a few married people on this forum, and I too have a long-term partner. In my situation, I am very grateful to be with a truly compassionate male human, This is an ongoing negotiation, sometimes easier than others.
I've been married 30 years. POIS is just one issue in a lifetime of many issues.It all works out okay. As Steve has so eloquently observed, there are many dimensions to this existence. My wife deals with it, thinks I'm a little nuts, which I am.
I haven't had an orgasm in 2 months. The physical desire goes down as long as there isn't too much stress to deal with. Kind of keeping my mind on other things as much as possible. Having good results and progress keeps positive mental energy.
It seems there is an interesting link between Iron metabolism and immunity, Pois and dopamine. I'm not sure, it is just a start of theory...- Orgasm seems to cause autoimmune disorder for us (especially if flulike symptoms).- Then it causes inflammation and increases IL-6. (Demo's physician friend thinks IL6 are linked to Pois)- IL-6 increases hepcidin Here and here. - Hepcidin decreases iron levels (its job)- Low Iron level decreases catecholamines metabolism (Iron is cofactor of tyrosine hydroxylase (th). Th regulates the metabolism of L-Tyrosine to Dopamine). B3 is a cofactor too.I'm convinced we can reduce IL-6 with good diet. I think to iron because Guthrie's link gives me this idea of "post-orgasm anemia" and because i said you I wait infos from another case. He has possible deletion of flulike symptoms with iron supplement. Everybody must check his iron level. But it's not enough because there are a lot of biological factors linked to iron. We talked with SteveD and he said he had Pois even when his iron level was good. But i remember even a low-limit level of iron can have effect on Dopamine (restless legs syndrome for example). Another problem is the role of iron on immunity. It seems to be a very complex problem because iron can be anti-inflammatory or pro-inflammatory, depending its form or its association with other molecules. Excessive iron can increase problems and be dangerous for body : No self-medication with iron! only doctors choose to try supplement or not . When Iron is "free" it might be used in pro-inflammation reaction too. Maybe the solution is to improve the absorption of iron instead of iron supplement. Lactoferrin can do the job . And why not heal the autimmune disorder itself ? Beside anti-inflammatory properties, LF was found to inhibit some autoimmune disorders. It seems safe but i prefer to have opinion of the doctor.
Thanks for your post Guthrie. I have a working hypothesis that actually your experience supports.
Demo, I'm glad to hear there is no tumor! Hopefully the "partially empty sella" finding will lead to some possibilities for you. Empty Sella Syndrome
...the sheer, massive, physical force of the loss of neurochemicals from my brain brought on by simple orgasm.
In a normal (i.e. non-POIS) person, it could be that a certain hormone rises after orgasm from its baseline state, and then shortly thereafter returns to baseline. This person experiences no negative symptoms in connection with orgasm...
While some people experience a greater sense of connectedness, warmth, emotional safety and physical closeness upon orgasm, I am, if I am honest with myself, not one of them. This is why the Hindu-esque or Taoist-esque expositions around semen retention always, sort of, appealed to me, but even that explanation was insufficient. While I don't experience 'flu-like symptoms' there is an 'allergic' quality, upon orgasm, extremely similar, identical actually, to what the alcoholics describe in their literature as 'hangovers'. The 'allergy' I feel on the one extreme, compared to the magic I feel from 'semen retention' make this a slam dunk, for me.