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BTW, I'm just trying to get to a better understanding of how we relate to our pains in POIS, can some people just please take a look at this picture and explain where you mentally feel your pois. I know some people feel it all throughout but mine follows a distinct pattern. (#17 is the front of the brain)For me, my usual POIS starts at between the numbers 38, 44 and 45, somewhere around there. That is where I can say I feel the "imbalance" or whatever is taking place.
Quote from: kurtosis on 15/01/2012 20:28:33Quote from: daveman on 15/01/2012 11:38:53Surveys often don't link the user to his vote, so this is a slight touch I'm going to give to ours. Of all the surveys that we will undertake, an important one will be a POIS profile per individual.Later when we do other surveys, each individual will be linked to his answers so that we can always extract information relative to a certain profile.The survey programs that are available (free) usually have a limited set of evaluation criteria and usually just say, "to this question 47.3% andswered 'yes' and 52.7% answered 'no', useful, but limited.But once the database is available, we can use different programs to extract the same answers but related to a specific "user profile", "Individuals that suffer mostly physical symptoms don't respond to niacin, and those with cognitive problems do" for instance.So it should be interesting.That's a great point caveman. What format will the survey be published in? CSV file format works very well with most statistical analysis packages like minitab for example (or even the Excel stats stuff). Would be interesting to do some hypothesis testing on the data. That's Daveman by the way []!Yes it has CSV output, can be imported into excel etc. I usually don't do too much myself in that area, like to work directly on the database for WEB output.But it's great if there are people like you available to run it through excel scripts or other analysis programs, all the more minds working on the possibilities.The program has it's own WEB reporting tool, pretty basic, just says how the group responded. But I will be writing an interface to be able to do more extensive cross tabulation and extraction of more specific information (ej. treatment efficacy for instance referenced to specific POIS profiles ).
Quote from: daveman on 15/01/2012 11:38:53Surveys often don't link the user to his vote, so this is a slight touch I'm going to give to ours. Of all the surveys that we will undertake, an important one will be a POIS profile per individual.Later when we do other surveys, each individual will be linked to his answers so that we can always extract information relative to a certain profile.The survey programs that are available (free) usually have a limited set of evaluation criteria and usually just say, "to this question 47.3% andswered 'yes' and 52.7% answered 'no', useful, but limited.But once the database is available, we can use different programs to extract the same answers but related to a specific "user profile", "Individuals that suffer mostly physical symptoms don't respond to niacin, and those with cognitive problems do" for instance.So it should be interesting.That's a great point caveman. What format will the survey be published in? CSV file format works very well with most statistical analysis packages like minitab for example (or even the Excel stats stuff). Would be interesting to do some hypothesis testing on the data.
Surveys often don't link the user to his vote, so this is a slight touch I'm going to give to ours. Of all the surveys that we will undertake, an important one will be a POIS profile per individual.Later when we do other surveys, each individual will be linked to his answers so that we can always extract information relative to a certain profile.The survey programs that are available (free) usually have a limited set of evaluation criteria and usually just say, "to this question 47.3% andswered 'yes' and 52.7% answered 'no', useful, but limited.But once the database is available, we can use different programs to extract the same answers but related to a specific "user profile", "Individuals that suffer mostly physical symptoms don't respond to niacin, and those with cognitive problems do" for instance.So it should be interesting.
I think this idea should support semen allergy more. I dont know if somebody brought it up or not. If doctor waldinger is wrong and all men are allergic to semen and our problem is not semen allergy. then when i get my injections i shouldnt get pois symptoms to, i should just get pure allergy symptoms like people with other allergies.at 1;100 i got pois symptoms from shot. hoping waited till he was out of pois to do allergy test, and allergy test gave him pois.
Quote from: CCconfucius on 16/01/2012 23:43:00Dr. Waldinger said when i visited him that non-POIS sufferers do not experiment any kind of reaction to an allergy tes
do you any way know why he did not put that in his paper
Quote from: CCconfucius on 17/01/2012 01:21:12do you any way know why he did not put that in his paperI did not know that he did not put that in his paper. I think he will explain this better in the POIS documentary of ABC television, because the journalist asked one question about this.
Quote from: mellivora on 16/01/2012 11:53:10Quote from: B_Jim on 16/01/2012 07:18:46The other point I want to repeat is frozen semen can't trigger the immune reaction. So for a scientist it may help to identify what is the element in semen causing the Pois which is active in fresh semen but inactive in frozen semen.I think we can't say frozen definitely doesn't work yet, as we don't have enough data or adequately refined techniques and controls in place, just that fresh semen does work and frozen may not. The way things are frozen might be important - eg. how fast/slow is the freezing, do the contents separate out at all somehow during the process etc).However, if you have more evidence do let me know, I have only read Habibou's case (which I admit is significant!) and just a few other forum posts on this..Quote from: Hoping on 06/04/2011 04:19:43Quote from: B_Jim on 04/04/2011 19:31:46QuoteIf you say skinprick, all in one word, it gets through.Thanks, I understand my mistake [] I received an intradermal test from Dr. Nguyen and Dr. Bewtra (so did CCconfucius). The semen was not diluted at all. I froze the sample about a week before the test and thawed it in the fridge a few hours before the test and kept it cool on the way to the doctor's office. I believe keeping the sample fresh is important. Anyway, for treatment, the doctor may need to dilute the sample, but for my testing (and for CCconfucius) it wasn't.evidence frozen semen still causes reaction.
Quote from: B_Jim on 16/01/2012 07:18:46The other point I want to repeat is frozen semen can't trigger the immune reaction. So for a scientist it may help to identify what is the element in semen causing the Pois which is active in fresh semen but inactive in frozen semen.I think we can't say frozen definitely doesn't work yet, as we don't have enough data or adequately refined techniques and controls in place, just that fresh semen does work and frozen may not. The way things are frozen might be important - eg. how fast/slow is the freezing, do the contents separate out at all somehow during the process etc).However, if you have more evidence do let me know, I have only read Habibou's case (which I admit is significant!) and just a few other forum posts on this..
The other point I want to repeat is frozen semen can't trigger the immune reaction. So for a scientist it may help to identify what is the element in semen causing the Pois which is active in fresh semen but inactive in frozen semen.
Quote from: B_Jim on 04/04/2011 19:31:46QuoteIf you say skinprick, all in one word, it gets through.Thanks, I understand my mistake [] I received an intradermal test from Dr. Nguyen and Dr. Bewtra (so did CCconfucius). The semen was not diluted at all. I froze the sample about a week before the test and thawed it in the fridge a few hours before the test and kept it cool on the way to the doctor's office. I believe keeping the sample fresh is important. Anyway, for treatment, the doctor may need to dilute the sample, but for my testing (and for CCconfucius) it wasn't.
QuoteIf you say skinprick, all in one word, it gets through.Thanks, I understand my mistake []
If you say skinprick, all in one word, it gets through.
How do I find this documentary...
Quote from: Mutant Man on 17/01/2012 09:54:00How do I find this documentary...You must wait 2,3 months because it is going to be broadcast on that date.
Anyone got any potentially effective treatments I can try? So far, Niacin incoporated wellman doesn't work on me. Should I try independent niacin by itself? Loratadine does only as little help as my POIS is predominantly physical....
Thats a good idea, Quasar.Also, Has anyone taken a testosterone supplement? If so, What amount and during what times of POIS is it taken? I am debating trying to get a prescription as I believe it may help. Thanks.