0 Members and 1 Guest are viewing this topic.
Quote from: mellivora on 17/07/2011 19:44:22Daveman, that's terrific. I've had blank looks from doctors in the past after they have looked up POIS on a computer database of illnesses to find it wasn't there. I'm sure it'll make a difference.YA! I can't wait to tell my next disbelieving doctor to "Look It Up, Buddy".... although maybe i'll be a bit nicer than that about it. Good work in getting this accomplished!
Daveman, that's terrific. I've had blank looks from doctors in the past after they have looked up POIS on a computer database of illnesses to find it wasn't there. I'm sure it'll make a difference.
Quote from: hurray on 17/07/2011 14:35:20Quote from: jivetalk on 17/07/2011 08:32:44Results:OMG - I feel fine. In fact I feel really good. I seem to have a lot more energy. Seems to have kicked me out of the POIS that I had yesterday also. Very Very minor signs of brain fog - I feel I could sit down and have a good conversation with someone, which is very rare for me after O. Am pretty excited about this so thought I'd write on the forum. Of course this still could be Placebo, or one of those rare times that an O kicks me out of POIS. I am still cautiously optimistic. Will keep experimenting and reporting.P.S- I am not sure about the long term effects of Niacin, I am tempted to up my dosage - but Probably won't until I research Niacin a bit more and what ill effects it might have.Very exciting news jivetalk! It would be awesome if high-dose niacin turned out to be a cure for POIS for at least some of the people on the forum. Having googled about niacin a bit, the main issue people mention is that high-dose niacin has the potential to cause damage to the liver. So if you are contemplating taking large quantities, swing by your local doctor and tell him about your plans. Even if your doctor is sceptical about POIS, it is his/her professional duty to give you a liver function test if you ask for one - whether you are drinking a bottle of whisky every day or taking high-dose niacin []Some sites mention that taking niacin and alcohol together has the potential to harm your liver - I need to look further into this, as I enjoy alcohol and sex, and would rather not be forced to give one of them up!Thanks, guys! (edit - red emphasis mine)
Quote from: jivetalk on 17/07/2011 08:32:44Results:OMG - I feel fine. In fact I feel really good. I seem to have a lot more energy. Seems to have kicked me out of the POIS that I had yesterday also. Very Very minor signs of brain fog - I feel I could sit down and have a good conversation with someone, which is very rare for me after O. Am pretty excited about this so thought I'd write on the forum. Of course this still could be Placebo, or one of those rare times that an O kicks me out of POIS. I am still cautiously optimistic. Will keep experimenting and reporting.P.S- I am not sure about the long term effects of Niacin, I am tempted to up my dosage - but Probably won't until I research Niacin a bit more and what ill effects it might have.Very exciting news jivetalk! It would be awesome if high-dose niacin turned out to be a cure for POIS for at least some of the people on the forum. Having googled about niacin a bit, the main issue people mention is that high-dose niacin has the potential to cause damage to the liver. So if you are contemplating taking large quantities, swing by your local doctor and tell him about your plans. Even if your doctor is sceptical about POIS, it is his/her professional duty to give you a liver function test if you ask for one - whether you are drinking a bottle of whisky every day or taking high-dose niacin []Some sites mention that taking niacin and alcohol together has the potential to harm your liver - I need to look further into this, as I enjoy alcohol and sex, and would rather not be forced to give one of them up!
Results:OMG - I feel fine. In fact I feel really good. I seem to have a lot more energy. Seems to have kicked me out of the POIS that I had yesterday also. Very Very minor signs of brain fog - I feel I could sit down and have a good conversation with someone, which is very rare for me after O. Am pretty excited about this so thought I'd write on the forum. Of course this still could be Placebo, or one of those rare times that an O kicks me out of POIS. I am still cautiously optimistic. Will keep experimenting and reporting.P.S- I am not sure about the long term effects of Niacin, I am tempted to up my dosage - but Probably won't until I research Niacin a bit more and what ill effects it might have.
Quote from: daveman on 06/07/2011 23:02:17We have to stop going from one thing to another, and just dumping them if they don't work. We throw the baby away with the bath-water. When we could be learning from every failure. We just FAIL.Don't we get tired of just failing?I don't agree with these sentiments. Yes, it's good to exercise some discipline when testing a new drug. But, assuming the person has checked out the associated dangers and is acting responsibly, there is a HUGE amount of value in testing these drugs, even in a disorganised, uncontrolled manner. I doubt any one drug will help all of us, but there may well be drugs which help many or most of us, and we can learn that through feedback on the forum. The main thing I worry about is someone trying too little of a drug, or not taking it in the right way, and then dismissing it. However, on the whole, that risk does not outweigh the benefits of cautious experimentation. We just have to be especially wary when someone reports a 'negative' result.I have spent the last 14 years trying various drugs, and seeing whether they have any effect on my POIS. I assumed that maybe after another 30 years of experimenting, that I may find something that helps me manage my symptoms better. When I found this forum, many years ago, I was really excited because then it seemed we could communicate our experiments to one another. It was as if I suddenly had 300 lifetimes of experiments, instead of just one; in this light it seemed like maybe there would be a good treatment in only a few years. This was partly my motivation to develop the questionnaire. It was useful to see what everyone had already tried.Finally, we are not 'just failing'. People have tried things, like testosterone, fenugreek, etc., told others here about it, and they have also been treated. Their lives have been saved. So let us not dramatically undervalue the power of the experimentation that has taken place here, just to make a point.
We have to stop going from one thing to another, and just dumping them if they don't work. We throw the baby away with the bath-water. When we could be learning from every failure. We just FAIL.Don't we get tired of just failing?
Quote from: B_Daniel on 18/07/2011 05:48:57Quote from: mellivora on 17/07/2011 19:44:22Daveman, that's terrific. I've had blank looks from doctors in the past after they have looked up POIS on a computer database of illnesses to find it wasn't there. I'm sure it'll make a difference.YA! I can't wait to tell my next disbelieving doctor to "Look It Up, Buddy".... although maybe i'll be a bit nicer than that about it. Good work in getting this accomplished!Daveman, Demo - Great Job Gents...Very Very exciting times for POIS sufferers thanks to you guys.
Quote from: Counterpoints on 08/07/2011 17:19:48Quote from: daveman on 06/07/2011 23:02:17We have to stop going from one thing to another, and just dumping them if they don't work. We throw the baby away with the bath-water. When we could be learning from every failure. We just FAIL.Don't we get tired of just failing?I don't agree with these sentiments. Yes, it's good to exercise some discipline when testing a new drug. But, assuming the person has checked out the associated dangers and is acting responsibly, there is a HUGE amount of value in testing these drugs, even in a disorganised, uncontrolled manner. I doubt any one drug will help all of us, but there may well be drugs which help many or most of us, and we can learn that through feedback on the forum. The main thing I worry about is someone trying too little of a drug, or not taking it in the right way, and then dismissing it. However, on the whole, that risk does not outweigh the benefits of cautious experimentation. We just have to be especially wary when someone reports a 'negative' result.I have spent the last 14 years trying various drugs, and seeing whether they have any effect on my POIS. I assumed that maybe after another 30 years of experimenting, that I may find something that helps me manage my symptoms better. When I found this forum, many years ago, I was really excited because then it seemed we could communicate our experiments to one another. It was as if I suddenly had 300 lifetimes of experiments, instead of just one; in this light it seemed like maybe there would be a good treatment in only a few years. This was partly my motivation to develop the questionnaire. It was useful to see what everyone had already tried.Finally, we are not 'just failing'. People have tried things, like testosterone, fenugreek, etc., told others here about it, and they have also been treated. Their lives have been saved. So let us not dramatically undervalue the power of the experimentation that has taken place here, just to make a point.Counterpoints, I agree...
Quote from: daveman on 06/07/2011 23:02:17We have to stop going from one thing to another, and just dumping them if they don't work. We throw the baby away with the bath-water. When we could be learning from every failure. We just FAIL.Don't we get tired of just failing?I don't agree with these sentiments.......
You can put me down to pledge $500 [to NORD-POIS].
Hi Everyone,Apologies as usual for my sporadic appearance on the forum. I see there has been lots of recent activity I need to catch up with here! Well done.I've been asked once again by Dr Goldmeier to shout out to any POIS sufferers in the UK. He's an author of one of the few scientific papers on POIS and is trying to conduct more research. He's widely published in medical journals and is based at St Mary's Hospital in London and Imperial College. He's part of a unit that conducts clinical research in sexual medicine. He and his team really need more POIS sufferers to come forward and see him. Dr Goldmeier is very approachable, and you can refer yourself to his clinic at St Mary's Hospital in London, there's no need to get your GP to do it for you. Just send him an email at: David.Goldmeier@imperial.nhs.ukWhat's more it doesn't cost you anything to go and see him (except for your travel to London). Its an amazing opportunity to get POIS thoroughly investigated. If Dr Waldinger has 45 or more POIS patients in the Netherlands (as suggested by his last POIS research paper), its hard to believe that there aren't at least that many sufferers willing to come forward in the UK. Dr Goldmeier is willing to see any UK POIS patients and I think so far he's seen about 8. Simply get in touch with him by email. Dr Goldmeier and his team seem willing and able to look at POIS from all angles including investigating any immunological connections as suggested by Dr Waldinger. Even an fMRI study, something many forum members here have called for, seems to be a possibility if he can get enough POIS sufferers to see him. So if you're in the UK, and haven't yet got in touch with Dr Goldmeier, please take a step forward for your own sake and for the rest of us in tackling this illness that's affected us all so badly. I see there is much activity with NORD which is fantastic. I'll catch up with that. We need to pursue every avenue in getting this investigated.
Hi Everyone,Not sure if anyone else has come across this. I just came across another Group which is very similar to ours with the same problem as ours. Except they call it sexual exhaustion/dysfunction.http://recover.forumup.org/You have to register to get into their forums, but the guys there are having similar discussions. Have a look!
Quote from: jivetalk on 19/07/2011 12:45:05Hi Everyone,Not sure if anyone else has come across this. I just came across another Group which is very similar to ours with the same problem as ours. Except they call it sexual exhaustion/dysfunction.http://recover.forumup.org/You have to register to get into their forums, but the guys there are having similar discussions. Have a look!Search the forum for http://recover.forumup.org/ and you'll see that the website has been brought up sporadically over the past 3 years. My own personal take on the SE forum is that it proves there are many more people with POIS out there. It'd be great if our forums could collaborate in some form or fashion, or at least have a few people be a member of both and update everyone here with any progress or developments on their end - and vice versa. I think the main difference between our groups is that our forum is very specifically focused on finding a cure, especially via a scientific, medical approach - and our posts are moderated in accordance with that, meaning we have very few off-topic posts. From the perspective of a lifestyle diary and posts about daily living with POIS, the SE forum is basically a bizzaro world's NSF. daveman - would that be an appropriate explanation??
Sexual exhaustion is NOT POIS. And although certain solutions may be common, and certainly the goal is common, we MUST maintain our focus in POIS.