[CertainlyPOIS]

In terms of sexdream, which is what i call dreams that give pois without ejaculation.
I remember someone saying you can pee out sperm. Maybe after one of those dreams, you just pee out the sperm ant that is good enough to cause pois.


I guess now we know why there is some many different symptoms according to dr waldinger, in immune reaction is all over body, so since we have different bodies, we will react differently.

[CertainlyPOIS]

Thank you for your work Dr Waldinger. But if it is an allergic reaction wouldn't white blood cell counts be elevated in a routine blood test? Mine have always been normal in POIS.

GC posted this link: http://www.babycenter.com/404_what-is-a-sperm-allergy-and-how-do-i-know-whether-i-have-one_6150.bc

I find this interesting:

Although we don't know why a woman develops sperm antibody reactions, a man develops antibodies to his own sperm when it comes into contact with his blood, usually after he has a vasectomy, testicular torsion (where a testicle twists inside the scrotum), infection, or trauma. Since the two fluids don't normally mix, blood mounts an allergic reaction against sperm. Men who reverse vasectomies in the hope of fathering children often develop an allergic reaction to their own sperm.

If this is true then that it's possible that a kick to the gonads in my youth might have done something. But why would only certain individuals with the allergy get POIS, why would most cases be symptomless? And wouldn't it follow that cleaning out the urethra by urination immediately after orgasm reduce the symptoms. Has anyone tried drinking lots of water an hour or two before sex? or maybe cranberry juice...

I got more than a kick to the gonads, i had a full blown kicked soccer ball hit my gonad, the most painfull thing i ever felt.
I think i peed blood when i went to bathroom to check, but since then i had no problems.

I also think we all need to start with the urethra to see if there is
something wrong.

[rock27]

Many thanks to Dr. Waldinger and his team!

A new day and hopefully a big step to a new life!

Also thanks to Demo for keeping the forum alive and the others for sharing!

[Counterpoints]

I really don't like that this is how the news is reporting the symptoms:
"People with the condition, known as post orgasmic illness syndrome or POIS and documented in medical journals since 2002, get flu-like symptoms such as feverishness, runny nose, extreme fatigue and burning eyes immediately after they ejaculate. Symptoms can last for up to week."

People from our forum will show their physicians this description and will get "but you don't have this".  The whole cognitive aspect of POIS, which affects at least a third of us exclusively -- without physical symptoms -- is being ignored.  Indeed the first poster in this thread, the one who started the whole POIS thread (John21) had exclusively cognitive symptoms.

I think the Wikipedia description is a lot more accurate.

[Nightingale]

I went out and picked up some Benadryl (regular) which is an antihistamine commonly used for treating allergic reactions.  I dont have much going on today, so I'm gonna take some and watch what happens...  (last night I ejaculated, symptoms are present)

[daveman]

Thank you very much for those investigations !

......

I wonder how urinate can help to wash the urethra but it could worth to try it  [] drinking a lot before an O and see the results at the end!
If it is "only an urethra allergy", we have to focus on this ? is it possible to change our urethra without risk? (yes, perhaps a stupid question^^) or to make it "unsensitive" to our stuff?
.....

I wonder if it's completely restricted to the urethra, seems he said between the testicles and urethra. I say this because I usually have the tubes or ducts leading from the testicles and up towards the urethra  swolen and sore for at least the first several days of POIS.

[Guthrie]

First, congrats to Dr. Waldinger and his team!  This is a really big step!


I agree with what Counterpoints said, though:

I really don't like that this is how the news is reporting the symptoms:
"People with the condition, known as post orgasmic illness syndrome or POIS and documented in medical journals since 2002, get flu-like symptoms such as feverishness, runny nose, extreme fatigue and burning eyes immediately after they ejaculate. Symptoms can last for up to week."

People from our forum will show their physicians this description and will get "but you don't have this".  The whole cognitive aspect of POIS, which affects at least a third of us exclusively -- without physical symptoms -- is being ignored.  Indeed the first poster in this thread, the one who started the whole POIS thread (John21) had exclusively cognitive symptoms.

I think the Wikipedia description is a lot more accurate.

I was also confused as to why Dr. Waldinger (or at least the reports) focus only only the physical, rather than the cognitive and the emotional.  However (and this is only a hopeful guess), it may be that Dr. Waldinger specifically and strategically framed his description in purely physical ("flu-like") terms, in order to prevent people from interpreting the syndrome psychologically.  That is, if had had also emphasized cognitive and emotional aspects, it might have been easier for people to dismiss it by "It's all in their heads!"  With this description, it might be more readily accepted and acknowledged, which will help a lot in the long run.  However, it would be nice if, in future reports, the cognitive/emotional side gets mentioned as well.

Also, the fact of framing as an allergic reaction can be helpful in expanding it to cognitive realms (and convincing physicians)--if you do a google search for the combination of 'brain fog' and 'allergies' you get a lot of hits. 

[Animus]

I went out and picked up some Benadryl (regular) which is an antihistamine commonly used for treating allergic reactions.  I dont have much going on today, so I'm gonna take some and watch what happens...  (last night I ejaculated, symptoms are present)

I was surprised to hear the "allergy theory". I have had allergic reactions to things, and they are totally unlike POIS symptoms. From my understanding, an allergy is caused by something like an irritant that the body is trying to reject through things like swelling, itching, sneezing, redness, etc.  
Are there any other instances of allergies which cause the same core symptoms as POIS? Ie. severe exhaustion, fatigue, social withdrawal, nervous system stress, etc.

[Habibou]

I wonder if it's completely restricted to the urethra, seems he said between the testicles and urethra. I say this because I usually have the tubes or ducts leading from the testicles and up towards the urethra  swolen and sore for at least the first several days of POIS.


[/quote]
So if we have a surgery, it would be the whole system where semens is in contact with...?  or perhaps it is only the path from the testicles to the urethra? It would be great to know!  

I am also curious how anti-histaminic can change things !

[nick2k22]

Things like arthritis are an auto immune reaction to the body.

Benadryl doesn't work on such strong reactions, it is simply an antihistamine.

What they give people with these types of powerful allergic reactions are corticosteroids which decrease the entire immune response not just histamine.

Prednisone is an example of a corticosteroid.  This is also what they give to people who have really intense hay fever allergys and people with asthma and coincidentally women with semen allergys. 
Its' pretty much the goto drug for doctors treating allergic reactions.

If this is truly an immune response, prednisone, or some related corticosteroid should dampen down the immune response and a person should feel better within the hour.

[jplewin]

Hi everyone

I'm back after a long time out of the forum. I had just lost hope.
Today is a great day, knowing there is a team working on POIS. I feel the same joy as the first time I visited this forum years ago. Let's hope everything works out well for us all.

Greetings from Chile, Juan Pablo Lewin.

JP

[daveman]

I went out and picked up some Benadryl (regular) which is an antihistamine commonly used for treating allergic reactions.  I dont have much going on today, so I'm gonna take some and watch what happens...  (last night I ejaculated, symptoms are present)

Antihistamines haven't helped me much, it seems like sending a boy to do a man's job.

It seems you can have immune system reactions, particularly when they are more systemic, yet they are not neccesarily entirely "alergic" reactions (the type where antihistamines work), even though a pin-***** on the arm produces a reaction. For instance dirty water could produce a reaction even though it's not an allergic one.

But sperm in a pin-***** of a normal person doesn't produce a reaction if I'm not mistaken. There's a reaction, and it appears that desensitization is possible yet it is not your typical "abnormal response" to a non-organic alergen.

Although it seems atypicaal, seems to me that's even better, it points more clearly to a specific direction.... to someone who knows how to wade through the science!!!

[daveman]

I wonder if it's completely restricted to the urethra, seems he said between the testicles and urethra. I say this because I usually have the tubes or ducts leading from the testicles and up towards the urethra  swolen and sore for at least the first several days of POIS.

So if we have a surgery, it would be the whole system where semens is in contact with...?  or perhaps it is only the path from the testicles to the urethra? It would be great to know!  

I am also curious how anti-histaminic can change things !

I know that many have had vasectomy reversal without problems. I had mine after 22 yrs. and my doc said that I will have produce sperm antibodies. That is, my sperm wouldn't have much chance once released to the system. He said that also, the battle would probably leave the duct damaged before too long.

He hadn't mentioned the systemic repercutions, and being that he mentioned every possibility he could think of to protect himself, I think that he just didn't know that it would have a systemic reach.

1) I had a reversal after many, many years, which most don't, and 2) vasectomy reversal hasn't been around long enough to have extensive related feedback.

[Vandemolen3]

Things like arthritis are an auto immune reaction to the body.

Benadryl doesn't work on such strong reactions, it is simply an antihistamine.

What they give people with these types of powerful allergic reactions are corticosteroids which decrease the entire immune response not just histamine.

Prednisone is an example of a corticosteroid.  This is also what they give to people who have really intense hay fever allergys and people with asthma and coincidentally women with semen allergys. 
Its' pretty much the goto drug for doctors treating allergic reactions.

If this is truly an immune response, prednisone, or some related corticosteroid should dampen down the immune response and a person should feel better within the hour.

Prednisone is given to one patient of dr. Waldinger. And didn't work. But that doesn't mean it shouldn't work for others. Because this patient also has spontaneous ejaculations. And a few of us don't have this.
My neurologist wanted to give me also Prednisone. It is the most powerful medicine against allergy's. I tried two Antihistamines and it didn't help.

[Vandemolen3]

I know that many have had vasectomy reversal without problems. I had mine after 22 yrs. and my doc said that I will have produce sperm antibodies. That is, my sperm wouldn't have much chance once released to the system. He said that also, the battle would probably leave the duct damaged before too long.

He hadn't mentioned the systemic repercutions, and being that he mentioned every possibility he could think of to protect himself, I think that he just didn't know that it would have a systemic reach.

1) I had a reversal after many, many years, which most don't, and 2) vasectomy reversal hasn't been around long enough to have extensive related feedback.

Is vasectomy not an option to get rid of POIS? Maybe for the older patients?

[Vandemolen3]

When I had an O. under the shower my POIS-symptoms were 50 % less.

Maybe this is because I cleaned myself from the semen. And that's why because the allergic reaction is less.

I think my allergy began because I didn't wash me after an O. I used only a bit of paper and then went to sleep. The next day I washed my self.

A few months ago I searched on Google 'sex and hygiene'. I found out that Arabs have to wash them selves directly after sex. This is obligatory from their religion. Maybe they have this wisdom because their medicine was well developed.

This is in the bible.

Maybe it's use in all the religions?

To reduce the allergic reaction maybe we can do two things:
1. Wash the private parts directly after an O.
2. Urinate as soon as possible. This brings the semen out of the body.

[Vandemolen3]

Thank you for your work Dr Waldinger. But if it is an allergic reaction wouldn't white blood cell counts be elevated in a routine blood test? Mine have always been normal in POIS.

GC posted this link: http://www.babycenter.com/404_what-is-a-sperm-allergy-and-how-do-i-know-whether-i-have-one_6150.bc

I find this interesting:

Although we don't know why a woman develops sperm antibody reactions, a man develops antibodies to his own sperm when it comes into contact with his blood, usually after he has a vasectomy, testicular torsion (where a testicle twists inside the scrotum), infection, or trauma. Since the two fluids don't normally mix, blood mounts an allergic reaction against sperm. Men who reverse vasectomies in the hope of fathering children often develop an allergic reaction to their own sperm.

If this is true then that it's possible that a kick to the gonads in my youth might have done something. But why would only certain individuals with the allergy get POIS, why would most cases be symptomless? And wouldn't it follow that cleaning out the urethra by urination immediately after orgasm reduce the symptoms. Has anyone tried drinking lots of water an hour or two before sex? or maybe cranberry juice...

Yes John we talked about this earlier. I asked then to other forum members if their semen was in contact with their blood.
Ten years ago I used to masturbate so often and so long that the skin is affected and there was a little bit of blood on the p. In my case at that time there was contact between my semen and my blood. Maybe others have this too.

[Vandemolen3]

In the Yahoo article (CC posted the link in an earlier message on this page - thanks CC), it says: "For these studies, Waldinger and colleagues analyzed 45 Dutch men who were diagnosed with the illness." If they were indeed all Dutch then this to me suggests there are many more sufferers out there, I guess we assumed this already. As far as I'm aware, there are not 45 Dutch people involved with this forum. There must be many people out there still completely in the dark about what is happening to them. Let's hope they find help. I recommend forwarding references to Prof Waldinger's new papers in the Journal of Sexual Medicine to all doctors you may have had contact with to inform them of  the latest news and emphasise that the condition is real and should be taken seriously. Most doctors seem unaware of Prof Waldinger's 2002 publication despite the fact that is had a fair bit of coverage on a variety of internet sites at the time. It is quite possible that most doctors might miss the latest papers too. So lets make sure they seem them.

I had contacted other Dutch forum members. But no one is a patient of dr. Waldinger. I am also not a patient of dr. Waldinger.
My GP, my neurologist and my urologist have all the POIS-papers.

[Counterpoints]

There are many potential things to try. But I think it's best to carefully read the two published articles, not just the news reports, and to consult with a physician, before proceeding further.

[Animus]

I think dr. Waldinger has too much of a Monopoly on this issue, and there are not enough people studying it. I wonder now that he has put forth a hypothesis, if he will consider any other ones too, or will stick to his hypothesis. I'm not saying it's a bad hypothesis-- but the way it is being presented it's like he's a Messiah, and these are the stone tablets!