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First, congrats to Dr. Waldinger and his team! This is a really big step!I agree with what Counterpoints said, though:Quote from: Counterpoints on 17/01/2011 19:31:12I really don't like that this is how the news is reporting the symptoms:"People with the condition, known as post orgasmic illness syndrome or POIS and documented in medical journals since 2002, get flu-like symptoms such as feverishness, runny nose, extreme fatigue and burning eyes immediately after they ejaculate. Symptoms can last for up to week."People from our forum will show their physicians this description and will get "but you don't have this". The whole cognitive aspect of POIS, which affects at least a third of us exclusively -- without physical symptoms -- is being ignored. Indeed the first poster in this thread, the one who started the whole POIS thread (John21) had exclusively cognitive symptoms.I think the Wikipedia description is a lot more accurate. I was also confused as to why Dr. Waldinger (or at least the reports) focus only only the physical, rather than the cognitive and the emotional. However (and this is only a hopeful guess), it may be that Dr. Waldinger specifically and strategically framed his description in purely physical ("flu-like") terms, in order to prevent people from interpreting the syndrome psychologically. That is, if had had also emphasized cognitive and emotional aspects, it might have been easier for people to dismiss it by "It's all in their heads!" With this description, it might be more readily accepted and acknowledged, which will help a lot in the long run. However, it would be nice if, in future reports, the cognitive/emotional side gets mentioned as well.Also, the fact of framing as an allergic reaction can be helpful in expanding it to cognitive realms (and convincing physicians)--if you do a google search for the combination of 'brain fog' and 'allergies' you get a lot of hits.
I really don't like that this is how the news is reporting the symptoms:"People with the condition, known as post orgasmic illness syndrome or POIS and documented in medical journals since 2002, get flu-like symptoms such as feverishness, runny nose, extreme fatigue and burning eyes immediately after they ejaculate. Symptoms can last for up to week."People from our forum will show their physicians this description and will get "but you don't have this". The whole cognitive aspect of POIS, which affects at least a third of us exclusively -- without physical symptoms -- is being ignored. Indeed the first poster in this thread, the one who started the whole POIS thread (John21) had exclusively cognitive symptoms.I think the Wikipedia description is a lot more accurate.
Quote from: daveman on 17/01/2011 20:23:57I know that many have had vasectomy reversal without problems. I had mine after 22 yrs. and my doc said that I will have produce sperm antibodies. That is, my sperm wouldn't have much chance once released to the system. He said that also, the battle would probably leave the duct damaged before too long.He hadn't mentioned the systemic repercutions, and being that he mentioned every possibility he could think of to protect himself, I think that he just didn't know that it would have a systemic reach.1) I had a reversal after many, many years, which most don't, and 2) vasectomy reversal hasn't been around long enough to have extensive related feedback.Is vasectomy not an option to get rid of POIS? Maybe for the older patients?
I know that many have had vasectomy reversal without problems. I had mine after 22 yrs. and my doc said that I will have produce sperm antibodies. That is, my sperm wouldn't have much chance once released to the system. He said that also, the battle would probably leave the duct damaged before too long.He hadn't mentioned the systemic repercutions, and being that he mentioned every possibility he could think of to protect himself, I think that he just didn't know that it would have a systemic reach.1) I had a reversal after many, many years, which most don't, and 2) vasectomy reversal hasn't been around long enough to have extensive related feedback.
Quote from: GoingCrazy on 17/01/2011 02:49:48Maybe drinking our own semen was a good idea... haha. I really hope this is the case for all of us. But I still am confused on how a person can develop this over a period of time, and why symptoms, such as mine, only appear mentally, e.g. I don't get any bodily reactions, no flare ups, sores of anything. Is there semen flowing through my brain when this happens? I don't mean to appear as a skeptic or anything it just seems very confusing.I do agree how those the brain get connected to all these, i understand the flu reaction but not the fatigue and brain symptoms. And how does girlwind figure into all of these women dont make sperm.
Maybe drinking our own semen was a good idea... haha. I really hope this is the case for all of us. But I still am confused on how a person can develop this over a period of time, and why symptoms, such as mine, only appear mentally, e.g. I don't get any bodily reactions, no flare ups, sores of anything. Is there semen flowing through my brain when this happens? I don't mean to appear as a skeptic or anything it just seems very confusing.
Quote from: horizon on 15/11/2010 14:06:57Quote from: horizon on 15/11/2010 00:51:27these are interesting!!http://health.discovery.com/videos/sexual-health-allergic-to-semen.htmlhttp://health.discovery.com/videos/sexual-health-anatomy-of-arousal.htmlanyone live in cinnicinati?http://www.livescience.com/health/061113_women_allergy.htmlhttp://www.ucomparehealthcare.com/drs/new_york/R21.htmlDr. David ResnickAllergy / Immunology3959 BroadwayNew York Presbyterian HospitalNew York, NYIve just got a feeling some kind of diluted prolactin solution (or whatever he suggests) could cure POIS over time. He maybe able to figure out if we are allergic to one or all of the sexual arousal hormones.Any New Yorkers here?How about this as an experimental POIS treatment?- Diluted injections of either or/and Nitric Oxide, ??Norepinephrine, Serotonin, Oxytocin, Vasopressin, Prolactin and Melatonin ?? - Diluted semen ??Quote from: daveman on 15/11/2010 12:08:19 but rather than as a treatment, perhaps we could consider something similar to what the alergists do.... that is expose one's self to diluted versions of suspected antagonists in a controlled maner to see if there's something in particular that we react to. Once (if)identified, we could imagine that the solution would be one step closer.no, we expose ourselves to diluted versions of suspected antagonists in a controlled manner to "desensitize" ourselves so we wont react in the future to the current antagonists..a POIS cure.like the way hayfever jabs worklike in the video, which showed a woman allergic to her husbands semen, they made a serum from his semen to immunize her (they took a blood test to work out what proteins she is allergic to), so that she no longer reacts to the semen.Sure we need a good doctor like Bernstein or Resnick to find out what proteins or hormones we need "immunizing" from. (If it works natural Free testosterone levels in the body may raise?) I agree we should wait for Dr.Waldingers reports before proceeding this line but its the idea that excites me the most since joining the forum.Horizon, with the million-and-one POIS-treatment possibilities that you've seen here, I'm really glad to see your excitement over one in particular.
Quote from: horizon on 15/11/2010 00:51:27these are interesting!!http://health.discovery.com/videos/sexual-health-allergic-to-semen.htmlhttp://health.discovery.com/videos/sexual-health-anatomy-of-arousal.htmlanyone live in cinnicinati?http://www.livescience.com/health/061113_women_allergy.htmlhttp://www.ucomparehealthcare.com/drs/new_york/R21.htmlDr. David ResnickAllergy / Immunology3959 BroadwayNew York Presbyterian HospitalNew York, NYIve just got a feeling some kind of diluted prolactin solution (or whatever he suggests) could cure POIS over time. He maybe able to figure out if we are allergic to one or all of the sexual arousal hormones.Any New Yorkers here?How about this as an experimental POIS treatment?- Diluted injections of either or/and Nitric Oxide, ??Norepinephrine, Serotonin, Oxytocin, Vasopressin, Prolactin and Melatonin ?? - Diluted semen ??Quote from: daveman on 15/11/2010 12:08:19 but rather than as a treatment, perhaps we could consider something similar to what the alergists do.... that is expose one's self to diluted versions of suspected antagonists in a controlled maner to see if there's something in particular that we react to. Once (if)identified, we could imagine that the solution would be one step closer.no, we expose ourselves to diluted versions of suspected antagonists in a controlled manner to "desensitize" ourselves so we wont react in the future to the current antagonists..a POIS cure.like the way hayfever jabs worklike in the video, which showed a woman allergic to her husbands semen, they made a serum from his semen to immunize her (they took a blood test to work out what proteins she is allergic to), so that she no longer reacts to the semen.Sure we need a good doctor like Bernstein or Resnick to find out what proteins or hormones we need "immunizing" from. (If it works natural Free testosterone levels in the body may raise?) I agree we should wait for Dr.Waldingers reports before proceeding this line but its the idea that excites me the most since joining the forum.
these are interesting!!http://health.discovery.com/videos/sexual-health-allergic-to-semen.htmlhttp://health.discovery.com/videos/sexual-health-anatomy-of-arousal.htmlanyone live in cinnicinati?http://www.livescience.com/health/061113_women_allergy.htmlhttp://www.ucomparehealthcare.com/drs/new_york/R21.htmlDr. David ResnickAllergy / Immunology3959 BroadwayNew York Presbyterian HospitalNew York, NYIve just got a feeling some kind of diluted prolactin solution (or whatever he suggests) could cure POIS over time. He maybe able to figure out if we are allergic to one or all of the sexual arousal hormones.Any New Yorkers here?How about this as an experimental POIS treatment?- Diluted injections of either or/and Nitric Oxide, ??Norepinephrine, Serotonin, Oxytocin, Vasopressin, Prolactin and Melatonin ?? - Diluted semen ??
but rather than as a treatment, perhaps we could consider something similar to what the alergists do.... that is expose one's self to diluted versions of suspected antagonists in a controlled maner to see if there's something in particular that we react to. Once (if)identified, we could imagine that the solution would be one step closer.
Very interesting !So we have to focus on "intralymphatic allergen administration enhanced"This method reduce the treatment from 3 years to 8 weeks !I wonder how it is possible but i would take it anyways [] Do you think we can have more information about it?
Having started the thread at the beginning, I'm just now seeing this major update, I have to say, it didn't put a smile on my face. Allergic to one's own semen treated by years of injecting semen into your skin??I feel like slamming my head against a wall until it splits open and my brain drips out.
I think there is much greater hope now. And that doesn't necessarily mean 5 years of waiting. My last 2 years - because of this forum - have been a dramatic, wonderful improvement in my 30-year POIS agony history.Now, I look forward to even more improvement, and with further research by Prof. dr. Waldinger.And our road is now paved more smoothly with serious scientific medical papers that we can confidently wave in the faces of all those silly naysayers who say, "it's all in your heads" !
but heres afew of many questionsWEEKLY INJECTIONS FOR 2 YEARS? CANT BE GOOD FOR YOUR VEINS/ARMS??DOES IT NEED CONSTANT FRESH WEEKLY SEMINAL FLUID?? ONE JUST JUST ON LOAD AT THE START? CAN LOCAL DOCTORS DO THE INJECTIONS (IF THE SERUM IS POSTED)? CAN WALDINGER TELL THE 2 IN THE STUDY TO JOIN THE FORUM PLS OR ANY OF THE 45?
Quote from: Nightingale on 17/01/2011 19:39:38I went out and picked up some Benadryl (regular) which is an antihistamine commonly used for treating allergic reactions. I dont have much going on today, so I'm gonna take some and watch what happens... (last night I ejaculated, symptoms are present)I was surprised to hear the "allergy theory". I have had allergic reactions to things, and they are totally unlike POIS symptoms. From my understanding, an allergy is caused by something like an irritant that the body is trying to reject through things like swelling, itching, sneezing, redness, etc. Are there any other instances of allergies which cause the same core symptoms as POIS? Ie. severe exhaustion, fatigue, social withdrawal, nervous system stress, etc.
I went out and picked up some Benadryl (regular) which is an antihistamine commonly used for treating allergic reactions. I dont have much going on today, so I'm gonna take some and watch what happens... (last night I ejaculated, symptoms are present)
I was surprised to hear the "allergy theory". I have had allergic reactions to things, and they are totally unlike POIS symptoms. From my understanding, an allergy is caused by something like an irritant that the body is trying to reject through things like swelling, itching, sneezing, redness, etc. Are there any other instances of allergies which cause the same core symptoms as POIS? Ie. severe exhaustion, fatigue, social withdrawal, nervous system stress, etc.
As Counterpoints I believe pointed out and I have read just a moment ago, that "POIS is characterized by sneazing, runny nose, burning eyes...", I would do anything to trade for those symptoms. I believe our main POIS is mental. If it were an auto-immune reaction, shouldn't we be sneezing and having a runny nose?
As is commonly known, autoimmune diseases like asthma, arthritis and so on are inherited.So one who has genetic predisposition for them is more likely to get it. My mum has asthma and I had early signs of it at puberty. So seems like I must be prone to autoimmune diseases.I'm just reflecting (talking aloud) now, but I didn't have any sort of allergy (or just didn't face an allergen) before POIS started, but I found myself allergic to cats 2 years ago (or 3 years since POIS started), which I for sure wasn't before POIS...Does anyone here has close or distant relatives with autoimmune diseases?
Hi everyoneI'm back after a long time out of the forum. I had just lost hope.Today is a great day, knowing there is a team working on POIS. I feel the same joy as the first time I visited this forum years ago. Let's hope everything works out well for us all.Greetings from Chile, Juan Pablo Lewin.JP