[kristy]

Chris,

Your prolactin levels were higher than normal?

Nick

Hello Nick

Yes my Prolactin levels were high, the report I was given states a minimum acceptable level is 85, highest acceptable level is 315 mine was at 816.

The report stated the reasons for this could be due to stress, Hyperthyroidism or an irregularity with my Pituritary gland which could be a swelling or a tumor.

My Doctor has wrote to the consultant I was intially reffered to at the Hostpital to let him know and see what/if he wants to do.

My Doctor told me he may want me to have an MRI scan on my head to investigate but to be honest with you all I think they MAY find would be a swelling of the gland which is causing the over production which MAY be down to POIS or not, I don't know.   

[Habibou]

To answer nick and everybody...
I made some blood tests, 8 hours after an O about :
-prolactine
-progesterone
-œstradiol
-LH /FSH
-testosteron
-cortisol (with and without synacthène)


+ lately = serotonine
Nothing was wrong for my case !
And to answer Zoop , ja, i know that the dopamine level sin't the only issue
i talked about it with my doctor and he said "you can have normal level of dopamine, but a dopamine dysfunction anyways!"
He said that if my dopamine level is normal, he has lot of products to balance the dopamine function
And ja, if the dopamine has dysfunction , it can "play on" others neurotransmetters also...
We will see what Doctor Waldinger says ^^ just 2 days

[nick2k22]

Thanks Chris,

That may be important.
Interestingly, prolactin is a dopamine inhibitor and the treatment for overproduction of prolactin is parkinson drugs, i.e. dopamine agonists which is in line with Habibou's post.

http://en.wikipedia.org/wiki/Hyperprolactinaemia

Nick

[kristy]

I just found that sebum, compound of earwax and oil of skin was stimulated by some androgens hormones (particulary progesterone) and by some pituatary hormones (STH, LPH, MSH). So this is probably due to the hormone disorder. I guess I'll by a book about hormones ans all that, there are lots of things to illuminate, I'm convinced there are a lot of answers hiden in books.
How good is it to be able to think and seek, I love fenugreek and ginseng

You just reminded me I have used Korean Ginseng in the past and felt great mentally, physical symptoms also subsided slightly though after maybe 2 weeks it stopped having any effect I then stopped taking it, the following 2 weeks were really bad and I swore I'd never use it again.

[demografx]

Hi Animus,
I know your symptoms are severe, and I sympathize with your situation.  I am also sorry for my mistake about the 1/2 day duration, I misread something you wrote earlier -- you said it takes about 1/2 a day to fully feel the symptoms.  And it is great that you want to help, I genuinely appreciate it.  I am just sincerely concerned that you would not represent the typical POIS sufferer.  Many of your symptoms are not representative -- earwax, plaque, walking with feet turned inwards, spinal curvature, more semen volume, etc.  Also, the way you say your symptoms started is unique.  I do not want to be harsh or judgemental, I am just concerned.  I hope everyone can discuss their concerns openly.

I do not live in the US so I am not a candidate for TLC.  But I join you in encouraging as many people as possible to consider it and at least talk to Lindsay.

Just to respond to your points: I believe you are picking out a few odd symptoms from an exhaustive list which I once published. I repeat: My core symptoms are the same as what defines POIS for all of us.

I see your point about finding a "typical" sufferer.  The fact that POIS usually emerges during puberty is important to note because that is when there is most growth occurring in the genitals. By taking herbal sexual stimulants, one also causes a growth spurt in the genitals. However, agreed that this is not the way most of us developed the problem. From my recollection though, not everyone here developed it at puberty either.

I would also like to see a more typical case if there is one.

Animus, many thanks for your clarification!

[demografx]

I apologize if some news about Prof. dr. Waldinger's new research is being temporarily discouraged, but he wishes to announce the news himself to us at our forum on Monday, without any potential  distortions that may be reported.

Thank you everyone very much for your cooperation!

[dbfd588]

awesome news demo.

[demografx]

Thanks Chris,

That may be important.
Interestingly, prolactin is a dopamine inhibitor and the treatment for overproduction of prolactin is parkinson drugs, i.e. dopamine agonists which is in line with Habibou's post.

http://en.wikipedia.org/wiki/Hyperprolactinaemia

Nick

My prolactin was sky-high, 1,000% above norm. I self-cured (with endocrinologist's blessing) from reading that same wikipedia article about hyperprolactinemia and getting off Reglan. That simple. The article states that Rx drugs are to blame in many, maybe most cases.

[kristy]

Thanks Chris,

That may be important.
Interestingly, prolactin is a dopamine inhibitor and the treatment for overproduction of prolactin is parkinson drugs, i.e. dopamine agonists which is in line with Habibou's post.

http://en.wikipedia.org/wiki/Hyperprolactinaemia [nofollow]

Nick

My prolactin was sky-high, 1,000% above norm. I self-cured (with endocrinologist's blessing) from reading that same wikipedia article about hyperprolactinemia and getting off Reglan. That simple. The article states that Rx drugs are to blame in many, maybe most cases.

Hello Demografx

Just to clarify you were taking prescribed drugs when that level was taken and then stopped to return it to normal or you were prescribed something.

Thanks 

[CertainlyPOIS]

I apologize if some news about Prof. dr. Waldinger's new research is being temporarily discouraged, but he wishes to announce the news himself to us at our forum on Monday, without any potential  distortions that may be reported.

Thank you everyone very much for your cooperation!

do you know what time that is happneing so i can get up, i love sleeping but this time around i will stay up all night starting today.

[demografx]

Thanks Chris,

That may be important.
Interestingly, prolactin is a dopamine inhibitor and the treatment for overproduction of prolactin is parkinson drugs, i.e. dopamine agonists which is in line with Habibou's post.

http://en.wikipedia.org/wiki/Hyperprolactinaemia

Nick

My prolactin was sky-high, 1,000% above norm. I self-cured (with endocrinologist's blessing) from reading that same wikipedia article about hyperprolactinemia and getting off Reglan. That simple. The article states that Rx drugs are to blame in many, maybe most cases.

Hello Demografx

Just to clarify you were taking prescribed drugs when that level was taken and then stopped to return it to normal or you were prescribed something.

Thanks 

Kristy, I was on Reglan for 10 years. Two years ago, when I began hormonal testing for POIS, testosterone was low, so I went on TRT and dramatically improved POIS  since then.

At the same testing time, my prolactin was sky high, and I was put through brain scans with a focus on the pituitary. The concern was that sometimes, that high a reading of prolactin could mean presence of a tumor.

Thankfully, no tumor. So that left me on my own. I read that various Rx drugs can be the culprit in hyperprolactinemia, with Reglan being named specifically. So I ditched Reglan and I was cured of hyperprolactinemia! []

[demografx]

I apologize if some news about Prof. dr. Waldinger's new research is being temporarily discouraged, but he wishes to announce the news himself to us at our forum on Monday, without any potential  distortions that may be reported.

Thank you everyone very much for your cooperation!

do you know what time that is happneing so i can get up, i love sleeping but this time around i will stay up all night starting today.

CC, it's not known, but I will ask him this weekend.

[afghan666]

hello guys,
 Am new here.my names omar.age 22.i suffer frm 24/7 fatigue.most noticable symptoms wen i wake up or sleep.
 My pois increased gradually aftr i started mastbing at 17.a few years later i frequently used bad drugs,which potentiated my symptoms.symptms are : brain fog,lethargy,guilt,mood swings,depression,a strange feeling under the skin,etc
 I hav succesfuly reduced my pois symptoms aftr many trail and error exps.best herbs that help are fenugreek,arcalion tabs,shalajeet herb,berberis artista and gingko biloba.i was prescribed xanax and arcalion when i told the dr abt my fatigue and a lil symptms of pois.xanax helps me relax and thus increases my libido bt it gives u p.e.i thnk it myt hav helpd ,please google about berberis artista's anti inflamtry props.also do check out kalonji.its the best thng for my pois.it helps reduce my pois by 50%. il b around if u hav any questions.cheers khude paman POISons.

[demografx]

afghan666, welcome to the POIS thread of The Naked Science Forum!



Here are some POIS resources which may be helpful to you:


Our POIS Information Website, built by "mat780", is here:
http://sites.google.com/site/POISwebsite/

Please see "B_Jim"'s POIS Summary of All Cases, here as well as others on the Web. This includes remedies that we have tested, and results.
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg149009#msg149009

"Girlwind" has created an excellent POIS Video:

Our new POIS chatroom (realtime chat). Invite or visit another member(s) there, ANY TIME. We can all get to know each other better:
http://forums.delphiforums.com/POIS/chat

First POIS Research Study, 2002

We have a copy of the first formal medical investigation on POIS by Prof. dr. Marcel D. Waldinger,MD,PhD, and Dr. Dave Schweitzer, MD.

  
Recent POIS Research Study, 2010

CASE REPORT
Postorgasm Illness Syndrome - A Spectrum of Illnesses
Jane Ashby, MRCP, and David Goldmeier, MRCP
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg316781#msg316781


British Medical Journal Case Report, 2010

Case study by Dr. Selwyn Dexter of a patient with a headache-featured POIS symptom treated with progesterone/norethisterone.
http://casereports.bmj.com/content/2010/bcr.10.2009.2359.short?rss=1


There are a couple of ways to get any or all of the above 3 studies: (1) if you want a PDF copy, send me a Private Message (PM) with your regular email address (use "AT" instead of "@" ) and I'll send you back the PDF.

Or, if you prefer, (2) I can simply reply with a Private Message (no regular email needed) and provide you with a simple text version embedded in your PM.

To send a Private Message, click on "Messages" at the top of this page. At the Messages page, click on "New Message". From that point on, it works just like posting a message here, except that it only goes to the person(s) you designate.

Remember to put a quote around my name, i.e., "demografx".


New York Times article,

January 20, 2009
Mind
Sex and Depression: In the Brain, if Not the Mind
By RICHARD A. FRIEDMAN, M.D.
http://www.nytimes.com/2009/01/20/health/views/20mind.html?_r=1&scp=1&sq=friedman%20sexual%20January%2020&st=cse

- - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -

In addition to serving our own informational interests, the resources listed above can be useful for you to show our credibility to the medical world - which often shows little understanding and is sometimes skeptical of our condition: POIS has scientific underpinnings and POIS is not "just another psychological problem" related to sex - to be treated by the psychiatric/psychotherapeutic community. All of this information can greatly help you to fight the immediate reaction of some doctors: so just tell them, "IT'S NOT 'ALL IN OUR HEADS'! "

Also, it can be helpful when dealing with medical professionals to point out the successful existence of our rapidly growing forum, which has already been referenced in respectable sources such as the British Medical Journal and wikipedia:
http://en.wikipedia.org/wiki/Postorgasmic_illness_syndrome

For over 3 years, our POIS forum has attracted over 200 POIS sufferers worldwide who have posted here, research on an additional 200 sufferers elsewhere on the internet, plus nearly 1,000,000 page visits. Not bad for a rare malady!

[demografx]

afghan666, this post will help you find information about POIS that we have already discussed, by tailoring a Google search to this forum:


SEARCH THE FORUM WITH GOOGLE

We have an overwhelming amount of data: 3 years' worth of posts (over  10,000 posts!) from 150+ Forum members, and an additional 150 POIS sufferers found elsewhere on the Internet by Member B_Jim.

In the Google search box, type
whatever-it-is-you're-interested-in-finding-out[space]POIS[space]site:http://thenakedscientists.com/

for example, I tried
nocturnal emission POIS site:http://thenakedscientists.com/

and 740 results came up for "nocturnal emission" within the Forum.

be careful with spaces (you can use them before the word "site") and no-spaces (everything after the word "site")

Google even provides you results with the Message# for each result. But Message #'s do change, so be patient and look for the approximate Message#.

[GoingCrazy]

I apologize if some news about Prof. dr. Waldinger's new research is being temporarily discouraged, but he wishes to announce the news himself to us at our forum on Monday, without any potential  distortions that may be reported.

Thank you everyone very much for your cooperation!

That's great news

[GoingCrazy]

Also for the TLC show.  I too believe that just being shown on TV many people will think that the person will have some sort of masturbation addiction, or something that we don't want to be wrongly perceived about this condition... because clearly long term abstinence works, but too our knowledge only until the next orgasm.  A lot of people will misjudge.  Also, if I volunteered for the show, I wouldn't want to be alone because currently I'm without a partner, and if they just interviewed me, I'd almost like to make a joke out of it because I would laugh to myself that I actually am a victim to this disease that couldn't possibly exist... but it does.  I'd probably make the show "non-serious", even though the condition is.  But.... can't wait until Monday, hopefully something good will come that day.

[Animus]

I would also like to see a more typical case if there is one.

There are more typical cases and that was my point...  John21 and Demografx would be examples.  But there is no point in arguing over this. You seem to have a sense of what the common symptoms are, which is good.  Also, I don't think the onset of POIS being near puberty has as much to do with 'genital development'.  Rather, it is because they are able to achieve orgasm.

Edit: I am sorry for somewhat misrepresenting your situation in my haste to 'make things right'.

Yes, they are more typical cases.

Also, I was able to achieve orgasm well before I ever reached puberty. I think I was masturbating as early as 4 years old. And I have heard the same is a common thing. Which actually brings up a good point about whether this should be called Post Ejaculatory Illness Syndrome!

Thank you for your apology- no offense taken!

[Counterpoints]

I would also like to see a more typical case if there is one.

There are more typical cases and that was my point...  John21 and Demografx would be examples.  But there is no point in arguing over this. You seem to have a sense of what the common symptoms are, which is good.  Also, I don't think the onset of POIS being near puberty has as much to do with 'genital development'.  Rather, it is because they are able to achieve orgasm.

Edit: I am sorry for somewhat misrepresenting your situation in my haste to 'make things right'.

I don't know about you, but I was able to achieve orgasm well before I ever reached puberty. I think I was masturbating as early as 4 years old. And I have heard the same is a common thing. Which actually brings up a good point about whether this should be called Post Ejaculatory Illness Syndrome!

Thank you for your apology- no offense taken!

This is an interesting point.  I definitely could not achieve orgasm until I was about 14, and my symptoms started shortly after -- about 6 months after.  I have heard about other cases of people being able to get orgasm when they are very young though (about 4 years old).  The huge difference in age has some interesting developmental implications.  The people who told me this were quite surprised when I told them that I was about 14 -- which I think is fairly normal.

As far as ejaculation vs orgasm... I have thought about this quite a lot.  I used to suppress ejaculation from wet dreams, in the hope that it would improve or stop symptoms from occurring.  The symptoms were still quite bad, so I concluded that (in my case) it was the neuro-chemical trigger of orgasm that was at the root of the problems.

[demografx]

Very interesting, CP!