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Quote from: Mutant Man on 16/11/2011 12:50:26Does anyone reflect symptoms that incorporate extreme changes in facial expression, ageing of the skin as a result of loss in elasticity? In my case, this amounts to significant differences in appearance. Yes in POIS my facial muscles and skin connection to my bone become inflamed and thus begin to sag down my face and over my eyes causing me to look angry and tired all the time. It's an extremely uncomfortable feeling especially around the eyes. It feels like there is a sheet of plastic between the flesh of my face and my skull where the flesh attaches. claritin and fenugreek eliminate more than 50% of this feeling and make it bearable and allow me to forget about it when I have important things to do.
Does anyone reflect symptoms that incorporate extreme changes in facial expression, ageing of the skin as a result of loss in elasticity? In my case, this amounts to significant differences in appearance.
Quote from: EDS on 03/10/2011 13:46:24Quote from: apostate801 on 02/10/2011 23:34:55I don't donate [to the POIS Research Fund] because even with all the hard core POIS advocates donating/knowing about it, we're only in about 10%. I also am wary of NORD and people asking me for money but I'm paranoid. If we were a lot closer I'd consider it. However if someone did come up with a cure and charged 20 grand for it, I'd sign up tomorrow.Apostate801,I think this is the cure of which you speak!And for a lot less than $20,000 out of your pocket!That is the great thing about this opportunity - we can collectively donate a fraction of that amount and have world class scientists working on OUR specific illness.WE MUST DO THIS!!This is our self test. Our moment in time. Our time to have some faith in people that are trained to help people like us.You know the old saying "It's time to stop talking and take action".I am not advocating that we stop talking, but certainly, it IS time to take action!!Also, if I remember correctly, NORD did not solicit money from us in the beginning... we asked them for help.I know there may be some of us that cannot afford to contribute, but looking at the list of professions, it seems to me that most of us are fairly well compensated and could spare $50 or more.Can we not forgo a dinner out, a sitting at a casino, one concert, one fishing trip, etc, (you get the point), to greatly improve our odds of managing this malady?It may be something very simple, but we will never know if we don't get professional help!Sorry for the rambling, but this seems like such a no brainer! A small sacrifice when approached collectively!I feel so strongly about this opportunity, I am willing to donate more than my original pledge of $1000 to help offset the few that truly cannot afford to give.Everyone here - please take a leap of faith and donate!!!!!
Quote from: apostate801 on 02/10/2011 23:34:55I don't donate [to the POIS Research Fund] because even with all the hard core POIS advocates donating/knowing about it, we're only in about 10%. I also am wary of NORD and people asking me for money but I'm paranoid. If we were a lot closer I'd consider it. However if someone did come up with a cure and charged 20 grand for it, I'd sign up tomorrow.Apostate801,I think this is the cure of which you speak!And for a lot less than $20,000 out of your pocket!That is the great thing about this opportunity - we can collectively donate a fraction of that amount and have world class scientists working on OUR specific illness.WE MUST DO THIS!!This is our self test. Our moment in time. Our time to have some faith in people that are trained to help people like us.You know the old saying "It's time to stop talking and take action".I am not advocating that we stop talking, but certainly, it IS time to take action!!Also, if I remember correctly, NORD did not solicit money from us in the beginning... we asked them for help.I know there may be some of us that cannot afford to contribute, but looking at the list of professions, it seems to me that most of us are fairly well compensated and could spare $50 or more.Can we not forgo a dinner out, a sitting at a casino, one concert, one fishing trip, etc, (you get the point), to greatly improve our odds of managing this malady?It may be something very simple, but we will never know if we don't get professional help!Sorry for the rambling, but this seems like such a no brainer! A small sacrifice when approached collectively!I feel so strongly about this opportunity, I am willing to donate more than my original pledge of $1000 to help offset the few that truly cannot afford to give.Everyone here - please take a leap of faith and donate!!!!!
I don't donate [to the POIS Research Fund] because even with all the hard core POIS advocates donating/knowing about it, we're only in about 10%. I also am wary of NORD and people asking me for money but I'm paranoid. If we were a lot closer I'd consider it. However if someone did come up with a cure and charged 20 grand for it, I'd sign up tomorrow.
Hhmm, interesting comment about the sinusitis (I have it too) but are these not just indicators and expressions of a heightened immune reaction?For example I wonder how many POIS sufferers have digestive discomfort, irregular bowel movements and skin problems?
An interesting thing:For those who are having cognitive symptoms, anyone here feel like there's high pressure inside the head or a disconnect between two sides of the brain, or a feeling like theres an obstruction of blood flow?It seems for me it almost feels as if POIS causes cerebral vasoconstriction. Every time during the process of recovery, I would feel as if I'm having increased blood flow to the brain. It's interesting because during POIS when I try rotating my eyes if feels as if theres some sort of resistance behind the eyes in the brain area. From personal experience only, it seems that the mental symptoms and the increased pressure/weird feeling inside the head are completely linked.Looking to thoughts/experiences/feedback
Does anyone here have the latest recommended treatment plan by Dr. Waldinger? His study was very long but I'm thinking for an actual treatment it could be done quicker.
Quote from: Vincent Marcus on 17/11/2011 00:11:50Quote from: Mutant Man on 16/11/2011 12:50:26Does anyone reflect symptoms that incorporate extreme changes in facial expression, ageing of the skin as a result of loss in elasticity? In my case, this amounts to significant differences in appearance. Yes in POIS my facial muscles and skin connection to my bone become inflamed and thus begin to sag down my face and over my eyes causing me to look angry and tired all the time. It's an extremely uncomfortable feeling especially around the eyes. It feels like there is a sheet of plastic between the flesh of my face and my skull where the flesh attaches. claritin and fenugreek eliminate more than 50% of this feeling and make it bearable and allow me to forget about it when I have important things to do.Lovely, I understand claritin is an anti-allergy but have no background knowledge concerning fenugreek. Is it some kind of herbal medicine?
Quotevenkyreddy97 :im too experiencing same problem so for this we have to stop sex for health...how to enjoy sexual lifeTry to take 100-200mg of vitamin B3 1-2 hours before orgasm.
venkyreddy97 :im too experiencing same problem so for this we have to stop sex for health...how to enjoy sexual life
i took claritin yesterday during pois day 1. No noticable affects for me.
Quote from: Mutant Man on 17/11/2011 06:41:10Quote from: Vincent Marcus on 17/11/2011 00:11:50Quote from: Mutant Man on 16/11/2011 12:50:26Does anyone reflect symptoms that incorporate extreme changes in facial expression, ageing of the skin as a result of loss in elasticity? In my case, this amounts to significant differences in appearance. Yes in POIS my facial muscles and skin connection to my bone become inflamed and thus begin to sag down my face and over my eyes causing me to look angry and tired all the time. It's an extremely uncomfortable feeling especially around the eyes. It feels like there is a sheet of plastic between the flesh of my face and my skull where the flesh attaches. claritin and fenugreek eliminate more than 50% of this feeling and make it bearable and allow me to forget about it when I have important things to do.Lovely, I understand claritin is an anti-allergy but have no background knowledge concerning fenugreek. Is it some kind of herbal medicine?fenugreek is a common food spice used in India. The capsules I take are crushed fenugreek seed powder and if I take two 620mg caps with a glass of hot green tea most of my facial irritation will disappear within an hour. The effect lasts about an entire day or two I've noticed as when I perform my fenugreek regimen for 3 days in a row I'll feel best by the third day. Only thing is that the combination energizes me a lot so I can't take it past noon or I'll be up all night. You can buy it off of amazon it's fairly cheap. For me it seems to help by reducing inflammation, improving digestion, reducing bloating, and it also acts as a slight laxative when taken with the tea.
Quote from: GoingCrazy on 18/11/2011 18:29:30i took claritin yesterday during pois day 1. No noticable affects for me.GoingCrazy, did you take the claritin 15 to 30 minutes before your "o"? So far that's the only way it's worked for me. Well actually I can have an "o" per day for about 3 days after taking one pill with almost no POIS symptoms. But I still think the key is to take the Claritin before the "o".
Quoteexcedrin migraine works like a charm for me and helps with pois symptomsIt's a good thing for you. Aspirin and paracetamol never helped my pois but I have not really migraines in Pois and rarely out of Pois.--Alexander Russian has used the words anaphylactic shock. Some women are very allergic to their husband's semen. I read a story of a woman which has been hospitalised after intercourse and the conclusion is an anaphylactic shock. (wiki)After a second contact with allergen, there is a a degranulation of mast cells or basophils mediated by IgE and a release of vaso-active mediators : histamines, prostaglandines, serotonine, leukotriene, bradykinin.
excedrin migraine works like a charm for me and helps with pois symptoms
Quote from: Green on 14/11/2011 23:58:56 I found a lot of what he talks about is prevalent in my life.Everyone has hidden issues in the back of their mind...sounds like a scam to me. I'm not saying that addressing these issues won't make you feel better mentally and perhaps physically as well, but addressing hidden mental issues will not cure POIS. That would be like curing AIDS or cancer with hypnosis.It's not as simple as that, do not underestimate just how powerful the mind actually is, I too do not believe even slightly that this is in my mind, but psychosomatic medicine is often successful with chronic fatigue patients even though the etology of it is recognised to be Neurological. The Psychiatrist I am working with has a lot of clinical experience and has said he'll be able to cure me of the symptoms, if that's the case then I don't really care if he labels the illness as Psychosomatic he recognises the set of symptoms to be real, not hysterical, I hope it pans out quite well, I've tried numerous drugs and therapies without much success and I know I was bought up in a tough way which are the causative reasons of some of my psychological issues.Quote from: Green on 14/11/2011 23:58:56 There are patients who experience a whole range of symptoms, who like us, have tiresomely gone down the conventional diagnostical route to find the genesis of their symptoms to no avail...whoa now many of us have reduced our symptoms vastly using this "conventional diagnostical route". Don't discount our successes please. edit- unless you were referring to the ignorance of M.D.s. towards our condition. It just seemed to me you were talking about treating our condition with various medications based on researching our symptoms.
I found a lot of what he talks about is prevalent in my life.
There are patients who experience a whole range of symptoms, who like us, have tiresomely gone down the conventional diagnostical route to find the genesis of their symptoms to no avail...