Physiology & Medicine / Re: How are transcatheter aortic valve replacement - TAVR - procedures carried out?« on: 13/06/2018 09:35:09 »
It's all rather amazing to me sad.... But I am very grateful to be here in this case.
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Have not been bombarded with any except my own.... Lol... Alan and I have kinda the same mindset in regards to the bovine Donation.. I am extremely grateful to the animal but find myself wondering if they are harvested during butchering or are they taken from bovine cadavers? Not sure if after or before?My Daughter is driving me home.So how many bovine jokes did you have to endure?
When you feel better and able, do please tell us about the procedure, what happened and what it was like. It would be really interesting to hear about it and how they do the procedure.I will do just that. the transcatheter or TAVR team were incredible.... I understood that they would not do bicuspid patients but I am assuming when they checked my valve it was not as oval as had been expected so they accepted me as a good candidate for the surgery...... I am incredibly humbled and very grateful... I can't talk a lot about it today cause It keeps making me cry but give me a couple weeks when my heart can handle the emotional stuff without flipping out on me. Lol.... My pulse rate skyrockets when I cry or get over excited too happy or too teary.....xxx
Mazeltov and best wishes for a long and healthy enjoyment of your new component! You have provided the ultimate argument against vegetarianism - why waste the rest of the cow?Yes indeedy....Thank you Alan very much!
Congratulations, delighted to hear it went so well. You are obviously feeling sooo much better.Hi sorry they released me got so excited and emotional it set my heart into a tizzy.. They told me to relax.. Don't get over excited.. Try not to cry cause my heart was racing up over 150 pulse rate...... So the said I best check the excitement for a few weeks till everything stabilized. I am assuming it will get better and the fast flutter and breathless thing will get better.. But I will watch it. My Daughter is driving me home.. I can't drive for at least a week then they want to recheck me before. Thank you guys very much. Xxx
Are you going to drive yourself?? Wow, big improvement
I can't tell you about that procedure. However, I was diagnosedThank you for your post. I am glad you are doing better. Do keep an eye on your valves regardless. I have had calcium tests regularly and am fine, I was low once, but they retested me, and it had something to do with my breast Cancer and chemo therapy. I have had new tests since and only been extremely D deficient, but almost all Humboldt county people are. My doctor got me onto massive doses, to get me caught up, and I am now in the good. I am now taking a maintenance dose. I am back up into the good zone as it was almost non existent. Otherwise I am a firm believer in science and Doctors. They have kept me alive since my birth, being born with multiple birth defects in 1960, at a time when I was blessed to have been put on the pretty new heart lung machine, and had major open heart surgery when I was 1 year old and only 9 pounds! I was a very sick baby.. My mom found me not breathing, after I had a heart attack. She scooped me up and slapped me repeatedly on the back... I finally caught my breath, and she said I was totally blue. It scared her because over the 4 previous years she lost both my sister and a brother before me to crib death. She thought it was happening again.... When she got me breathing she climbed in the car, laid me on the seat, and sped to the hospital thumping me sharply on the back everytime I stopped breathing. We live in the boonies and our hospitals were not equipped to handle those kind of issues with heart. still are not. A plane was readied and I was flown about 400 miles to San Francisco, to a children's hospital, where they took me straight into surgery. I was in surgery for over 16 hours initially and I am told that I was pronounced dead three times. The final time the surgery was halted at closure. After the intern or attendant taking me to the basement morgue area, he saw me moving and ran me straight back to the OR. The Doctors hooked me back up to machine and began monitoring my vitals which were now going strong.. Apparently they basically finished the work and we're quite sure I was dead. To the point they had already told my mom I was gone... Since then I have been repeatedly saved by the medical community, and I hold them in high esteem.. And again now they have expected that I would not live these last ten years but through medicine good doctors good friends and family They have kept me alive to this point! Now in front of me again, I am hoping to have this new miraculous procedure that was not previously available to me earlier, to be a possibility for me to continue to live and enjoy my children, and grandchildren, and friends, loved ones. Each time I have been saved by new advances in medicine and extremely skilled surgeons and Doctors who put their careers out their dedicating their lives to keeping people like me and you alive... I am so grateful for them. Thank you for your post and I wish you all the best also....
with a moderate leaky aortic valve a couple years ago. I had read
that vitamin K2 had been shown to successfully reduce hardening of
arteries, calcium build up in mice. So I thought I would take it, probably
could not hurt. So I took "Super K" available from life extension
website. I mixed a cut open capsule with a tablespoon of olive
oil or fish oil, daily. I did that for months religiously. Then I was retested
and found to have no aortic leakage. Also pretty soon I read that
tests on people also showed reduction in calcium deposits in people
taking vitamin K. So it would appear that it worked for me. I still take
the vitamin K daily mixed with flax oil. Also I take calcium supplements,
calcium aspertate daily. It is counter intuitive, but Dr Joel Wallach says
that calcium deficiency is the cause of calcium deposits and heart
disease. What is counter intuitive about it, is that lack of calcium
causes the body to rob bone of calcium and it is this calcium that
get deposited, and cause hardening of valves and arteries. Also
according to him, almost everyone is calcium deficient. It probably
can't hurt for you to look into adding vitamin K and calcium to your
diet. It sounds like you have progressed pretty far along the line
of calcium deposits, and will need other measures, but we don't
really know, and it won't hurt you to supplement with these things,
Actually most people are deficient in many minerals, on top
of calcium and vitamin K. If you want to hear more about it,
you can check out "Joel Wallach" on youtube, and you can also
read his books, the most popular of his books is "Dead Doctors
Don't Lie", which you can also find info on, at youtube.com.
Hi @Karen W. Sorry to hear that your disease has accelerated. Bicuspid aortic valve is reasonably common (1-2% of the population), and one consequence is valvular disease with stenosis and regurgitation along the lines you describe.Thank you Chris.. You have answered the questions that I have been so worried about. As you stated, patients for this procedure here are generally extremely high risk for undergoing a regular open heart surgery. They mentioned scarring from my previous open heart surgeries, as being one of the issues, as well as my weight, and other health issues. Being diet controlled diabetic, and kidney issues as well as lungs etc. He said that I fall into a critical risk for regular open heart valve replacement. I leave Monday in the early AM, to drive 5 Hours 30 minutes To the city. Palo Alto in order to arrive arrive by 2:00 P.M. , in radiology for the lower body scan. Then, Tuesday early A. M. For blood panels and pulmonary function tests, then meeting with surgical team to see if they will be able to do it. I tried finding answers to my main worries about second replacement after the new valve fails, because I feel young and don't want this to be it.. I have been struggling more then ten years now.. And finally there is a procedure that looks promising if I make it through the procedure. It was how long will the valves have been lasting..I had read things that said it could only be done once but what you say makes more sense, because of it improving my situation..it can potentially improve things and put me into a better position to do the other procedures aneurysms etc...... I was worried about the aneurysms being a problem to pass the catheter through. I was worried that the aorta
Your symptoms are most certainly directly a consequence of the high cardiac workload imposed by the valve incompetence (leakiness) and the restricted outflow. Pushing a higher than normal blood volume (because some is leaking back with each beat) through a narrower than normal valve is greatly increasing the demands on the heart and also leading to an over-full ventricle, which will ultimately (as it progresses) lead to worsening cardiac failure. This is probably going to increase the risk of atrial fibrillation too for various reasons.
You have angina because the heart is having to work so hard to push the blood out through the diseased valve, so its oxygen demand is high, but downstream of the valve the systemic pressure is probably too low to push the blood down the coronary arteries to perfuse the heart adequately. Hence you are in a vicious cycle, because poor coronary flow (despite normal arteries) is starving the heart of oxygen, reducing its pumping capability and making the failure worse.
It sounds to me like you have limited options and should probably bear this intervention in mind. Let's hope that they are willing to do it, because your quality of life will improve enormously if the valve can be replaced. The failure (which is why you feel exhausted) and the angina will immediately improve.
All procedures carry risk, but because this one (TARV) is "endovascular" - conducted from within the blood vessel space itself - it is lower risk than an open-chest procedures and has much improved healing / recovery times.
You - and the valve performance - will be closely monitored non-invasively afterwards. If the valve does deteriorate then that does not count you out of other procedures subsequently. In fact, if your general health improves because cardiac function is better, then you become a better candidate for other interventions. This procedure might therefore be regarded as a bridge to further interventions later. I would ask the team who assess you about this when you see them.
I wish you the best of luck.
Nervous! Iím not surprised.Thanks Colin... I will read those also. I appreciate your sentiment. Thank you all.
This is the UK health service site which gives the considered, evidence based recommendations for treatments. Itís worth looking at the openings of each main paragraph first as it gives a feel for the risks and expectations. Itís worth noting that the TAVR patients were considered high risk for surgical replacement SAVR. Hope it helps.
Hang on in there, we are all thinking of you and wishing you the best
Also see the next page on safety