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From Demo, Your T/P Guinea Pig!This is really exciting. I just now received a voicemail from my endocrinologist: after weeks of reading up on T/P (Testosterone + Progesterone), male contraceptives, etc. he finally approved it!!He will start me with 5mg of Norethindrone, titrating me up till it is determined how much I need - plus the 15mg daily of testosterone - in the hopes of raising my POIS cure from 80% to 100%!Wow! Another possible major change in my life of 30+ years' POIS agony!Norethindrone info:http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0000278/As always, do not take this as a recommendation for YOU. Keep looking till you find a good medical team - and fire them when they don't serve you!Thank you soooooooooo much, Doctor G!!
Quote from: demografx on 03/04/2011 04:24:31Quote from: lauracostis on 02/04/2011 20:34:03I actually do agree with CC about getting a sperm count, I think it would tell us why this is working. of course, this would cost money if it is not covered by your insurance.Laurac, do you know what specific test should I ask for?I am not totally sure, but i would just ask if you can get a sperm count. someone can do it
Quote from: lauracostis on 02/04/2011 20:34:03I actually do agree with CC about getting a sperm count, I think it would tell us why this is working. of course, this would cost money if it is not covered by your insurance.Laurac, do you know what specific test should I ask for?
I actually do agree with CC about getting a sperm count, I think it would tell us why this is working. of course, this would cost money if it is not covered by your insurance.
Demo, it seems that doing sperm counts is common and routine for men in fertility clinics. Many couples who do not conceive in a reasonable amount of time may go to get a sperm count.
Quote from: lauracostis on 03/04/2011 08:26:08Demo, it seems that doing sperm counts is common and routine for men in fertility clinics. Many couples who do not conceive in a reasonable amount of time may go to get a sperm count.Thanks again! This is an education for me!As long as I don't have to count my own sperm! []
Here's a little bit of POIS humor to start your week off: according to this article, "Doctors have known of [POIS] for decades" []http://www.news-worthy.info/post-orgasmic-illness-syndrome-some-men-may-be-allergic-to-their-own-semen/10909/
About hyposensitisation and skin test, I need to understand the dosage. If someone can help me...skin-test :semen diluted with saline 0.9% to a concentration of 1:40,000 . Injection of 0.05ml of each solution.edit : I didn't know the other word for puncture/sting was censured .
I agree 1:40.000 means 1 for 40 liters so as you said it's an heavy dilution. But if it's correct it means only 1cc of pure sperm in our blood can trigger extrem Pois and maybe the death. In other words, we have TNT in testies []More seriously, we need to write a mail to dr Waldinger to confirm this point and to have more details about the saline factor and how they make the dilution. And what about my idea to freeze lot of samples of correct preparation for the repeted injections.
But the good point is when you made it seriously 1 time maybe you can freeze the liquid for the other injections. ( 112 injections for a year )
Yes, I understand it can be done, but they say that fresh sperm is better, and more effective. Potentially meaning that it would take longer with frozen.Van says his arm hurt like the dickens afterwards. But couldn't say if it caused POIS symptoms, or not, because it was done with fresh and he was already in POIS.
I don't know if it is there we can post, but I will do here for the moment ! [] Tell me where I should post it on the New Forum, please.I just called ImVision, the Switzerland Laboratory which "practices Intra Lymphatic Injections".The doctor which caught the phone gave me his mail address : m.steiner@imvision-therapeutics.com He was really kind to answer me through the phone, and I really appreciated it ! []I didn't say anything about our condition, but I told him I would send him a mail with Dr Waldinger's Papers...He told me that this procedure is new and it would take 4 years to develop it ! []There is a study in Canada in which they test those intralymphatic injections.For the moment, they only treat Cat's allergy with Intralymphatic Injections and are seeking for others allergies now.It would be great we also contact the Dutch Laboratory which practices Intralymphatic Injections to get more and more information about it.The Intralymphatic injections cure from allergies in 8 weeks, I would be glad to test it for me in the first place and it could be a fast cure for our condition if it works ! []
to do dilutions you use a Micropipette, they can measure microliters( 1 millionth of a litter). I have done dilutions like that in the microbiology lab with bacteria before. the 1:40000 can be easily done with small amounts of saline by doing a few dilutions with the micropipette. I think I could do the dilution with just 3 or 4 test tubes maximum. "this 40 litters talk can be forgotten about"The part about semen not being soluble in water could be solved. I found out that after 20 minutes out side the body, semen under goes a process called Liquefaction."The liquefaction is the process when the gel formed by proteins from the seminal vesicles is broken up and the semen becomes more liquid. It normally takes less than 20 minutes for the sample to change from a thick gel into a liquid." http://en.wikipedia.org/wiki/Sperm_countthis may make it possible to dilute in saline.
Quote from: B_Jim on 04/04/2011 19:31:46But the good point is when you made it seriously 1 time maybe you can freeze the liquid for the other injections. ( 112 injections for a year )It's better to use fresh semen istead of frozen semen. That's what they told me. Frozen semen has the advantage that 1 ejaculation is enough for a lot of injections. But when they told me that fresh semen is better, I go for that. Because I hope that after a few months there will be less POIS-symptoms.
Quote from: Habibou on 04/04/2011 17:07:05I don't know if it is there we can post, but I will do here for the moment ! [] Tell me where I should post it on the New Forum, please.I just called ImVision, the Switzerland Laboratory which "practices Intra Lymphatic Injections".The doctor which caught the phone gave me his mail address : m.steiner@imvision-therapeutics.com He was really kind to answer me through the phone, and I really appreciated it ! []I didn't say anything about our condition, but I told him I would send him a mail with Dr Waldinger's Papers...He told me that this procedure is new and it would take 4 years to develop it ! []There is a study in Canada in which they test those intralymphatic injections.For the moment, they only treat Cat's allergy with Intralymphatic Injections and are seeking for others allergies now.It would be great we also contact the Dutch Laboratory which practices Intralymphatic Injections to get more and more information about it.The Intralymphatic injections cure from allergies in 8 weeks, I would be glad to test it for me in the first place and it could be a fast cure for our condition if it works ! []I agree we should be actively pursuing intralymphatic injections as a possible treatment.The conventional method seems almost implausible because of the amount of injections you have to do. If you can even find a MD to do the desensitization, you may have to fly to get to your 80 appointments a year; then you have to pay the MD for the 80 appointments a year. This seems about a 50,000-100,000$ dollar a year cost. not too mention you would need to take a total of about three months off from work intermittently to attend your appointments. "if you live by a MD that you can drive to, in a country with universal health care, you may be alright."If I have to do it the conventional way, I will do it myself.
Yes, The intra lymphatic injections procedure seems definitively the best way both economically and safely/quickly, for our conditions in the long term, that's why i try to find a laboratory which is in willing to pratice it for us in a safe condition...I guess the UCLA laboratory someone found on the forum is this one : http://www.ilitherapy.com/ ?Today, I will call the french association of allergies specialist /immunologist, will update!thank you []