1

New Theories / Re: Post Orgasmic Illness Syndrome (POIS)

« on: 25/11/2013 13:20:24 »

Any news on how the POIS research is going with the $30,000 NORD grant? Or any news on when there will be some more news?

hello
demografx
 
When will the [POIS] research [begin with NORD]?

thank you

This December.

I should be getting an update first week in December, maybe not who or what yet, but they are in the final throes of choosing the researcher.

So very soon we should know.

The first real professionally administered and controlled research on POIS.

Whatever the results, it will have to be useful.

I'll let you all know when the news comes out.

2

New Theories / Re: Post Orgasmic Illness Syndrome (POIS)

« on: 02/10/2012 09:33:10 »

Thanks for your perspectives Kurtosis and alphaq.  Found a pretty interesting overview, which appears to be contributed by individual POIS sufferers:
http://feelalike.com/conditions/postorgasmic_illness_syndrome

Never seen it before. Weird that there's sometimes little feedback being provided by sufferers on the poiscenter.com forum but treatments are being described and rated on this feelalike.com site.

Feelalike.com is a facebook of sorts for people with different healthcare problems to connect.    The site allows you to share a picture of yourself and information such as city and age, but it doesn't give out email addresses or last names, in order to retain anonymity.  I've been on the site for a while now, and enjoy using it.  Feelalike was actually created by a really smart former POIS forum member (Willem), who cured himself of POIS through sublingual desensitization.  His site is good because it's a)very user-friendly b) more personal c)aggregates data really well, like you saw in that Summary list of treatments page.  Just like with facebook, each person has their own profile page, which includes a list of treatments that work/ don't work for you.  The website then aggregates all that information into the very useful Summary page that ya'll just saw.  So the site is just users chatting to each other and posting their own experiences - which is why nothing about the site is scientific and why you saw incorrect information on testosterone causing hair-loss.  But the goal of the site, besides being a place to connect, is to give everyone a voice, while also aggregating data to provide a view of macro trends across all the members with POIS.  There's only a handful of us on that site, but the more participants that join the more robust that Summary page would be.   

Hi All it's been a while since I've posted.... so this seems to be a good place to jump in!

We're a POIS community of 400 or so. We can go where we want, share our data, compare ourselves to other illnesses, make lists and even run them through databases. There just so much that can be done!

Some of the sites are more "user friendly" perhaps, others are more technical or "scientific", a little of everything! Unfortunately, where want want to go, where we Like to go, is not always the best thing for us, we see that every time we masturbate. LOL

Anyways. Let's just suppose that we, somewhere here in this ever more diversifying community, compile, and sort, and use science and logic, developing theories and discarding bad ideas, find something that works..... MAYBE even a cure!?? WOW, we're home free!! Eventually the cure MAY trickle down to the straggling few who picked the wrong forum.

At least 400 will be cured. 400. Here they can tell you how hard it is to acquire Google visibility. I can vouch for this. Yet, how hard has it been for each of us to find one of our sites? Most have worked for a couple of years at least to find a POIS home. So how many other POIS sufferers are there out there? A hand full at the site mentioned above or even the 400 in our combined forums are just a percentage. Are there 1000, 2000, in it's varying degrees and intensities, I'd say there could be maybe 100,000 POIS sufferers in the world, perhaps a third of those don't have computers.

So my friends, we are helping ourselves. Is that enough? They tell me, NO, we have to get out there we have to let the world know! I wonder what the BIGGEST network of individuals is that can connect ALL the potential POIS patients in the world?

The clue is the word "patient". Patient goes to doctor. As it stands now, we all know that this is not a functional interface for POIS. If we could improve that interface, we could reach many more patients. If we could improve this interface, we bring the treatment to the patient instead of a blank stare or another SSRI.

Wouldn't you love to go to a doctor and say, "Gee doc., after I have sex I fell like crap for a week and a half", and have him say, "Ahh OK you have POIS, here take one of these two times a day and call me in 2 wks!" Doesn't that sort of ring a bell somewhere?

HOW DO WE GET THERE? Chatting in a comfy user friendly armchair? Holding private science conferences. They probably make us feel better! All 400 of us. Well ,no. For some, it isn't an issue of being comfortable, and chatting. I mean that's nice and all, and maybe, just maybe, somehow the ideal that leads us to a cure will surface.

But HOW DO WE GET IT TO THE DOCTORS? Some of us have gone in banging the door off the hinges armed with papers and internet links. The doctor thinks to himself, "Oh Gawd, here's another internet doctor... who's the doctor here". But we say, NO, we have to be firm. WE tell THEM what to do.... NOT!

Who tells the doctors what to do? Have we ever asked that? THAT's the system we have to link up to.

Doctors learn how to be doctors in the universities! But they don't really learn about all of the diseases. Just liek other professionals, they are connected to networks of study, and discoveries filter through their industry. Medical research produces papers that get to the doctors through their own internal source. These papers don't often come through the door in the hands of a patient, and if they do, they are not usually recognized as "official". They have to be validated, corroborated, need to be trusted by them and their peers. With all the lawsuits these days, the information has to be clean and sure.

So let's not bark up the wrong tree. I know I grate on a lot of your nerves, always pushing and pestering for research. But it's the ONLY channel to the doctors, the doctors who treat ALL of the people in the world.

Unfortunately it not one of the most pleasurable things to do.

3

New Theories / Re: Post Orgasmic Illness Syndrome (POIS)

« on: 13/07/2012 13:32:32 »

I will be looking into testing similar formulations  with more people, especially those who have had problems with just niacin. Also we have to be careful with higher strength B complexes, and find a safe balance.

The tests of course are not practicable here.

4

New Theories / Re: Post Orgasmic Illness Syndrome (POIS)

« on: 13/07/2012 02:04:55 »

Might be a little difficult to coordinate all that HERE.

5

New Theories / Re: Post Orgasmic Illness Syndrome (POIS)

« on: 05/07/2012 20:11:02 »

I'm having trouble signing up on the other forum. I'm not getting my approval email. Does anyone have any suggestions? Thanks!

We have a SPAM filter which has filtered over 10,000 applications in about 4 months. It uses a SPAM database. My name was on the database however, the reason I'm not too sure about, but I deal with(delete)  a lot of SPAMMers who probably put me on the list.

But somehow you may be on the list, maybe on a server that has SPAMMers or whatever. I'll look up your information and see what we can do.

6

New Theories / Re: Post Orgasmic Illness Syndrome (POIS)

« on: 21/06/2012 20:55:04 »

The following post
http://poiscenter.com/forums/index.php?topic=423.msg4803#msg4803
is about something I’ve noticed before, that a full and complete “O” seems to produce less symptoms than a partial or restricted one. In part it could be to do with retro-ejaculation (during a bad “O”), which for me causes much worse POIS, or it could be to do with the PGD2 and PGE2 cycles. Not being to up on the biology, could somebody check out the referenced post and comment.

It seems that niacin for instance feeds the creation cycle of these prostaglandins, and if we orgasm too early the bad PGs are bolstered, whereas if we wait, the good ones are bolstered. Do I have this right?
In the post above,  the dreamy state he mentions is associated with what I have felt when I “O” early with too much niacin. However the benefit of the niacin is not as strong when that happens.

However like him, if my “O´s” are complete (in a  non-niacin scenario) the dreamy state is more prevalent yet my symptoms are less.

Can anyone decipher this?

7

New Theories / Re: Post Orgasmic Illness Syndrome (POIS)

« on: 16/06/2012 13:14:35 »

Yeah B_Daniel, sounds like he's a better salesman than a doctor.

Thanks for your donation.

We are putting together a very good informational blog,  it's from our Spanish crew that got organized as a result of ObserverCenter's exposure. The link above is in English and here is in Spanish.

The idea of this is multi-fold, to have a single place where POIS is explained. When we talk to someone, all we have to say is, if you want to find out more, go THERE. We are trying very hard also to post a definitve definition of POIS there. One that has it stand out on it's own, one that helps to resist the stupidity of these kinds of doctors. We are working to have a clean, informative, professional presentation of what POIS is, who we are and what we are trying to do about it.

We are looking  for collaborators too.

8

New Theories / Re: Post Orgasmic Illness Syndrome (POIS)

« on: 12/06/2012 18:59:03 »

Kurtosis or anyone with a good understanding of how niacin might be working. There are those members who find tha niacin doesn’t work, and some who have tried initially and it didn’t work, but after coming back and giving it another go, found that if it’s done just right, it DOES work.

However there are still those who have troubles. I’m confused by one person who, on his first try, found that it worked… first time in his life relatively POIS free. But since hasn’t been able to duplicate the success. Seems to be following all of the rules. And even duplicating the effort that worked!

1)   if it worked once, it would have to work again right?
2)   Perhaps state of health is an influence, this person is fit and healthy, but seems to require upwards of 500mg to get a flush after several hours of fasting.
3)   I wonder if it could be a matter of zeroing in on one of the other B vitamins instead of niacin?
Any suggestions. Since this is a difficult case, it might give insight into resolving the problem for those who find success with niacin difficult, and therefore getting closer to a real solution for all.

9

New Theories / Re: Post Orgasmic Illness Syndrome (POIS)

« on: 09/06/2012 21:57:15 »

So, what is happening with Daniel? Has he achieved to regain normal Vitamin B-6 levels with the supplement, and is his body now able to convert tryptophan into niacin, so the chain is not disrupted anymore(for some time) when he has an Orgasm? This is what Daniel told us several months ago:


Hey guys,

I think that I am cured. The last eight weeks I had orgasms 99% free of symptoms.

(...) This winter I took vitamine B pills (B1, B6 and B12). Every day one for 3 weeks. These pills made me feel much better, I felt much more clear in my head. Additionally, I took every day one fenugreek capsule.

After 3 weeks I quited with the vitamine B (you can get an overdose of B6, so I thought to take care with this) and I also quited with the fenugreek. I did not get orgasms in this period, simply because I had so much work to do at my job, I could not afford to have one.
Then, after one or one and half week I started vitamine B again, every week 2 or 3 pills. So every second day. Some weeks after that I addionally started my fenugreek again. I now take two capsules every morning after my breakfast. I was following this for about 4 or 5 weeks.

First I could get every week an orgasm without any problem. And now I can get two orgasms in two days without any problem! More orgasms induced some symptoms which disappeared during the day. But I think, I will improve more so this will also be possible in the future.
I also avoid stressful situations as much as possible, I think this is important.
My life improved a lot, having an orgasm without any problem, it is really great. I hope that everybody with this disease will be cured, because it is pretty much like hell.

http://poiscenter.com/forums/index.php?topic=346.0

That would make sense. Once b6 and b3 levels were high enough to reduce the number of allergic reactions, his body could balance the amount of neurotransmitters it made and, perhaps, reduce the amount of receptors for catecholamines such that he's less "jumpy".
However, the b1, b6, b12 combination seems a bit specific. Did he say what pills he was taking and what amounts of these b vitamins were in each? I know Merck pharmaceutical produce(d?) a b-complex called neurobion forte with the specific ratio of B1 100mg, B6 200 mg, B12 200mcg. This pill is/was sold in Asia and was sometimes prescribed to people with b vitamin deficiencies by family doctors. It would be interesting to learn more from Daniel about how he ended up taking this specific combination.

The only problem that I have, is that pretty much everything fits, except that I don't have allergies. (Other than a reaction to whatever *down there* when I orgasm).

My whole "package" swells afterwards. I might say prostate, but it's more. Everything from the empididymis (that soft tissue on the testicles) up through the tubes leading upwards, through the prostate to the lower bladder area all swell up. With niacin the swelling is less, but no POIS.

10

New Theories / Re: Post Orgasmic Illness Syndrome (POIS)

« on: 08/06/2012 21:16:34 »

Dang!  I just set up a monthly recurring donation on the NORD site and got an error.  I will try again later. Waiting for the site administrators to check out the error.

Anyway, I've been a silent reader of this forum for the past year.  I was overjoyed to see that I wasn't the only one with this crazy illness.  To keep things short:

My age: 30 yrs
Start of POIS: Age 11 (19 years living with it, worsened as I got older)
Symptoms: Dermatitis, Acute back pain (like acid flowing through my spine), brain fog, severe irritability and anger, anxiety, severe fatigue,
                   digestive issues (tightness in the lower left side of my abdomen, like a knot), fingers and toes get really cold also.
Duration of symptoms: 3-4 weeks (no joke, I wish it only lasted a few days)

When I was 11 and O'ed the first time, I started getting dermatitis, and had to start taking claritine to reduce the itching all over my body.  This still happens everytime I have an O.
Two months ago, I abstained for 5 weeks (don't know how the heck I did it, especially with having my wife in bed every night).  I was determined to try it.  Then I couldn't hold it any longer, I was going out of my mind.  I took 250 mg of niacin and had sex while I was having a flush.  I felt like I was having sex on a bed full of broken glass, wasn't pleasant at all.  The next 2 days were the best days of my life, I was clear headed, had so much energy, I was very happy and just didn't know how to handle all that energy.  I'm too used to having low motivation to do anything.  Anyway, the symptoms started coming back again after the 2 amazing days, so I tried some more niacin, but it didn't work that time.  I'm now seeing a Urologist that has some knowledge of this illness.  He told me I have low testosterone levels (~202, normal is above 300 I think).  He also recommended I see an endocrinologist to check out my adrenal gland since I apparently have low cortisol levels.  He prescribed some Clomiphene (clomiphene citrate) which is supposed to raise my testosterone levels slowly, even though it clearly states that this medication is for women.  I will see him again in 6 weeks and will give an update if anything great comes out of this. I will try niacin again, but this time I'll give it 45 minutes AFTER the flush, like someone mentioned on this post. 
By the way, I live in Atlanta.  If anyone else lives in Atlanta, the Urologist's name is Dr Wayland Hsiao at the Emory University.  He's a really enthusiastic person.

BTW Lapanique,
It helps a lot to wait until the flush passes a bit, not only so you don’t feel like you are doing it on broken glass, but for some reason the effectively against POIS is several fold better.

It’s like the niacin integrates into the system more completely as the peak of the flush unfolds.

11

New Theories / Re: Post Orgasmic Illness Syndrome (POIS)

« on: 08/06/2012 18:46:27 »

All I can say on this V B6 issue is WOW you guys.

Gives me goosebumps!

I KNOW we're on to something!

It would also be great if we could somehow reduce what has just been said down into something we can get our mind around (for the less technical of us), although you've already gone a long way to helping digest it all.

It's important that we can see that "SOMEBODY" understands at least, so THANKS you guys.

We could split off a couple of threads over on poiscenter as work areas and summary areas. Of course we will be sure that there's access here too.

12

New Theories / Re: Post Orgasmic Illness Syndrome (POIS)

« on: 07/06/2012 17:07:30 »

It’s often mentioned that Niacin doesn’t work for everyone, and it could well be, BUT I have worked recently with at least 3 people on a one to one basis to help with the use of niacin, and it is a VERY precise process. If it’s not done JUST RIGHT, it doesn’t work. So I’m certain that many who have tried it and failed have just not applied the “rules” correctly and given up too soon.

It’s really worth trying to make it work, because when it works it’s amazing. I suggest that if you are one of those for which it hasn’t worked, that you get in contact with one of us on a one on one to try to see if you can’t make it work. I haven’t spoken to any of the others yet about this, but I’m sure ObserverCenter for instance would be glad to help out.

If you are one for which it works, perhaps you can volunteer here to receive PMs to help guide someone through. They are just simple things that one might miss or “do wrong”, but they make all the difference in the world.

It would be a shame to be suffering when it isn’t necessary.

Besides, if it is just a procedural thing, then we can move one step closer to understanding the mechanisms. If it’s just procedural but we think it’s a non-compatibility, then we understand the mechanism improperly. We misunderstand the reason for it not working in some.

13

New Theories / Re: Post Orgasmic Illness Syndrome (POIS)

« on: 06/06/2012 19:56:37 »

Badgerstripe,
I have had a lot of experience with mindfulness and meditation. Not as practiced now as I used to be, it's sort of like sports in that way, but with more than 5 or 6 years of intense study and practice, something stays with you.

There was a time when I believed that meditation could help cure anything. It gives you highly focused access to normally subconscious aspects of your mind. You can feel things happing inside of you, that can actually be verified physically, and as such you also have access to methods to change them.

Alas, there are just some things that you cannot modify, like altered or damaged brain circuitry whether external or hereditary for instance. I have seen depressive people on meditation programs seemingly get better, but short times after stopping their medicines they are back down in the  grunge again.

Do their mindfulness if you wish. The only way to understand. It may lighten the load for a little while.

But is it a lifestyle, to battle an uphill battle against a physical ailment? My impression is that one can drive themselves to the same level of stress by trying to “cure the uncurable” with mindfulness, as the original failure of sex to relieve your anxieties is supposedly causing you right now. What’s more, the practice of “mindfulness” IS like sports. It doesn’t come easy nor have much benefit until you begin to master it.

It drives me crazy to see someone dedicate, months, following a lead like this, just to realize……. That he has POIS.

14

New Theories / Re: Post Orgasmic Illness Syndrome (POIS)

« on: 06/06/2012 19:55:07 »

Hey guys,

Its been a while since I've posted.

I recently watched this TED talk on pornography and the effect it has on the brain

http://www.youtube.com/watch?v=wSF82AwSDiU&feature=youtu.be

Dopamine is mentioned several times, and its a neuro transmitter we have discussed quite often in this forum (eluding to the fact that dopamine might play a part in POIS).

Admittedly, I do have quite a long history of watching porn (normal for most guys i guess). The points raised do make sense to me. The presenter says that watching online pornography has a reward seeking effect, and doing this repeatedly over many years has adverse affects on the brain - just like an alcoholic or drug user.  Our primitive brains aren't wired for it.

There is even a reddit group called 'No Fap 90 days' - a bunch of guys trying to stop watching online pornography.

Its all very interesting, and I think that if it has such a big affect on people, POIS could also fit in in some way.

Because I'm so desperate for a lifestyle change, I reckon im going to give it a go and delete all pr0n off my PC, and not watch it at all for a few months and see what happens. My brain might just rewire itself...

Good Luck!

Man do we need research!

15

New Theories / Re: Post Orgasmic Illness Syndrome (POIS)

« on: 05/06/2012 14:53:06 »

I have just got my blood test results back from Dr Goldmeier (the clinic lost the first lot which caused a delay of a few weeks)

All the below were normal:
Thyroid, testosterone,prolactin, glucose, liver, kidney, blood screen ( anaemia etc), calcium.

He said my Phospate level was a bit low and will redo that next time he sees me.

Low phosphate levels can have a number of causes, for example high calcium levels can put phosphate levels down, but i obviously dont definitely know why this might be. Poor absorption of nutrients can lead to it and i believe i have suffered from that in the past due to food allergies and intolerances so i could hazard a guess at that. Low phosphate levels can cause confusion, changes in mental state, irritable behavior and pain in muscles, also some of my POIS symptoms.

Another of Dr Goldmeier's suggestions was that POIS was caused by my using sexual behaviour to ease anxiety ( i know i do this) and the consequent drop in certain stimulating and "feel good" hormones after orgasm can be part of POIS. I find this to be a reasonable explanation but don't think this means "it's all in the mind", rather that body and brain chemistry effects thinking and mood  as a contributory factor in the depressed feeling of POIS. This doesnt completely explain my physical symptoms however.

If anybody has thoughts about any of the above - blood test results, phosphates or POIS's relationship to anxiety I would be glad to hear them.

I´m sorry, all I can say is HOGWASH!

Doesn't fit at ALL. He needs a good dose of POIS to know what we go through. There's a lot more to it than what he is suggesting.

If there is a consequent drop in certain stimulating and "feel good" hormones after orgasm, this is not normal, even if you do tend to rely on sex to relieve anxiety. A normal person, can be "horny" and relieve himself at least once or twice a day and not suffer these kinds of consequences. MAYBE he might come to feel a little weak or "burnt" out. This is NOT AT ALL like POIS.

This man has no idea of what POIS is in my honest opinion. And Yes, what about the physical symptoms?!!


Sorry!!

16

New Theories / Re: Post Orgasmic Illness Syndrome (POIS)

« on: 03/06/2012 21:23:34 »

Wow!!

Hello, strikef1!

It's not my job to welcome people to this forum -- that's strictly Demografx's and Daveman's domain.

But -- WELCOME TO THE FORUM!!!!!

I've wondered where all of the 45 men who participated in Dr. Waldinger's study had gone. I think you are the one and only participant to grace this forum.

It sounds like you found your way here via the TLC channel's story about "Animus" (his user name), the first POIS forum member to go public, about 2-3 years ago.  He's the POIS PIONEER (my expression, nothing official!).  Animus was so brave to be the first to go public, and now others have followed (Observercenter and Hoping were just involved in a huge story for El Mundo, Spain's largest newspaper).

The ripple effect is alive and well! 2-3 years later, the TLC channel's story is still reaching out to people.

Your isolation because of POIS is now over. You've found your comrades. :-)

Stef

 

Hi Stef,

Yes, my isolation is over and that really feels good! When I went to Dr. Waldinger in 2003 or so and the years after, I searched the internet for POIS. Then I only found one website, indicating the research by Dr. Waldinger as 'remarkable and funny'.
Now it gives me strength to share my experiences with you and for discussion with other people.

I received the articles from Demo and will study them in detail in the coming days.

Rob

Hi strikef1,

Many of us here have had success with niacin in reducing (practically eliminating in some) POIS symptoms. You may not have read this yet, so you might want to consider it.

I have heard members call it a miracle. It can be an emotional experience to be POIS free! (The results in some have been THAT good). Not all report positive results with it, in part this may be due to the procedure for taking it, which is VERY specific. If not followed to the letter, there are NO positive results. If followed correctly, the results are over-whelming.

There is information here http://poiscenter.com/forums/index.php?topic=174.0 and here http://poiscenter.com/forums/index.php?topic=319.0 . This is also one of our forums, many of the same members with 4400 posts and 207 members.

17

New Theories / Re: Post Orgasmic Illness Syndrome (POIS)

« on: 27/05/2012 22:10:20 »

Some visitors have nothing intelligent to say about POIS, so they resort to nitpicking tangential matters. LOL. Kinda like ad hominems, but less clever : - )

All this really is an expression of the difference here on this thread. Many other threads are more intent on proving who's right, who has the better catch phrase, showing how cult they are, arguing points that are pointless.

Here it's a serious group trying to resolve a life wrecking ailment. There is no place for troublemakers or egos, where we are just trying to get to the bottom of a real problem.

We have a delicate balance and have worked hard at maintaining it, with lives that become unraveled in an instant by some ignorant bully ([generically speaking] and whether they realize it or not).

Not to mention the fact that there is a good deal of traffic from real medical investigators recompiling information on thei little know illness. It behooves us to keep the chaff OUT.

18

New Theories / Re: Post Orgasmic Illness Syndrome (POIS)

« on: 26/05/2012 12:55:51 »

Dear all, can I ask? If Niacin is supposed to be taken an hour prior to an orgasm, how do you guys use it to prevent POIS caused by involuntary nocturnal emission?

As you can imagine, we can´t. But in my case, something very significative happens(viktor.kons and i think others have reported the same...) if i am POIS and i have another orgasm after taking niacin. A brief summary of what i am saying:

- I have a NE. I develop POIS symptoms.
- I wake up, with POIS symptoms (brain fog, dizzy head, poor cognitive functioning, bad digestion). Then i take my 200 mg niacin.
- Niacin improves my POIS symptoms. If i don´t have another ejac, my POIS symptoms return in several hours. But If, and only If, i have another orgasm(1-4 hours after i took the niacin), my POIS - The same cognitive symptoms that have improved, but not dissappeared, with the niacin i took- is completely wiped off in the very moment i´m having a ejac. Amazing, isn´t it??

I don´t know if this serves for everyone, but it is not the first time that some POIS sufferers have reported that an O. while in POIS wipes off its previous POIS symptoms.

Yes, it's been mentioned before, but I've never had the nerve to try it. Without niacin, my second ejac in close proximity creates very sever POIS. Niacin works very well for me, but I still am afraid to try.

What is good about this is what it might mean medically. It's so very specific that it must be tied directly to the mechanism that causes POIS.

19

New Theories / Re: Post Orgasmic Illness Syndrome (POIS)

« on: 21/05/2012 21:46:08 »

"POIS has discovered a new key treatment for POIS as well that works for many of us, and works very well. Although it does not work for ALL, it works
very well on those for whom it DOES work and gives hope for unlocking a key mechanism in the breaking of the POIS cycle."


Ummm so what is this treatment?? It seems really hard to get through, when I click through the links i am met with donation pages and silly advertisements that seem to undermine the credibility of all this.

Hi connor!!. This treatment is the niacin or Vitamin B-3. I have no POIS symptoms after an ejac. - and some of us neither. You should take it 1 hour before. Watch it here on POIS documentary recorded by ABC Australia:

Connor,
Also there is a lot of information about it in the following links.

http://poiscenter.com/forums/index.php?topic=319.0
http://poiscenter.com/forums/index.php?topic=174.0

It has worked miracles, really for many of us, but not for all, but it's worth giving it a try. I consider myself ALL but cured.

BTW, the donations and silly advertisements are the ONLY things that are going to find a definitive cure, other than a ton of luck, which we haven't seen yet in 5 years.

We already have almost $10,000 stashed away which has come from those silly ads.  Every $10 helps, and it's as important as anything else, or more.

20

New Theories / Re: Post Orgasmic Illness Syndrome (POIS)

« on: 12/05/2012 19:44:34 »

Guys,

Sometimes I really wonder if taking all these medications before and after orgasm (in my case niacin before orgasm and a multitude of supplements within a minute after orgasm) will have bad long term effects for us if we ever choose to stop supplementing ourselves. Even if we don't stop with the supplementation, I wonder if it could be a negative thing for us to put all this 'ammo' in our bodys and brains to deal with sexual activity. Sometimes I feel like it could be messing with our cognitive state as a whole and maybe even our body's ability to recover.

Thoughts?

Of course, for most NEW drugs, they test for years to see if there are any long term effects. I personally wonder what long term affects POIS has on us. When I was with POIS, I had urine deposits/residue, never had them tested, muscle and bone sensitivity got worse with time (probably something I was losing in the urine) and didn't improve when I was out of POIS, so I felt as though it was a long term result of POIS.

Niacin has stopped all that. So what do you do? I don't know, I can't make the decision to stop relieving my POIS,  I won't!

Most of these supplements are vitamins, and already tested for long term effects. I guess we check our livers from time to time, go to the doctor more or less regularly for check ups. What more can we do?

Oh.... we could donate to the investigation that answer many of these questions!!