I spotted the post on reddit and my jaw dropped. I've been unable to function normaly for many years and over time my understanding of what I have has evolved. What I always found hard was to describe how I feel. The way I finally described to my doctor last week instead of explaining the aches and pains I just said I basically feel like I have the flu and I'm 100% convinced it's related to ejaculation. He was not ready to make the link because he's not aware of any such case. I quickly browsed some posts here and I'm not sure if all my symptoms match.
Here are my symptoms
-After ejacualation I tend to get dry itchy skin on the inside of my forearms within minutes. The more ejaculations over the course of a week I get the worst it will get until it's like dermatitis.
-Some times I'll also get itchy eyes.
-I'll crash for 4-5 days. Day 2 and 3 being the hardest.
-My back feels inflamed and sore and dead tired.
-I get some joint pain in the back/shoulders.
-When I've crashed I dread going to sleep cause sleep is difficult as I'm restless and cant find a relaxing position.
-I wake up feeling worst.
-Everything feels like a chore. I basically dont want to do anything.
-This all started after I got a mono 8 years ago or so.
What do you guys think?
I'm seeing my doctor again in a few weeks and I will definitely bring some documentation on POIS.
Funny you mention that POIS started after a mono infection (a.k.a EBV or "the kissing disease") because I have the impression that my misery also started sometime after getting EBV. In most cases ppl do not even get fever but in my case I had fever for months and had to lay in hospital for a couple of weeks. before that incident I can hardly remember having any POIS. Any comments out there?