1

New Theories / Re: Post Orgasmic Illness Syndrome (POIS)

« on: 13/05/2020 17:27:17 »

Hi, Demo!
---------------------------

Recently, I've begun to believe that my symptoms align more closely with Chronic Fatigue Syndrome "CFS", than with POIS. 

When I was 20, simply abstaining from sexual activity for a few days would have me feeling like a new person.  But from about 24 and onwards, there has always been some degree of the flu-like symptoms that lingered.  I'm 36 now.  Sex still heightens my brain fog, lethargy, anxiety, etc.  But the symptoms never disappear.

The main symptom I have, if I were to narrow it down to just one, is my lack of energy.  Some days are better than others, but on the whole, I wear out quicker when taking on stress and need more rest periods throughout the day than the avg person.  If I push myself too hard (can be mental or physical stress), I'll crash and be a zombie the next day. 

I think I initially latched on to POIS as an explanation bc of how clear the connection was.  1-3 hours after sex, I felt awful nearly every time.  But I'm now thinking that sex is just a very concentrated way of depleting my energy.  And all forms of that push me over the edge.

Those with CFS often have low testosterone, gastro issues, and sensitivities to certain foods like wheat dairy and soy.  Treatments that help include TRT/HRT, NSAIDs, LDN, B Vitamins, Magnesium and a few other supplements.  So it's similar to what many have said have helped for POIS. 

What I like most about characterizing my illness as CFS is that it's easier to talk to others about (physicians, family members), and there is a larger body of research, more established treatments, and a larger community to lean on.  On the POIS side, we're kinda each inventing the wheel, trying everything under the sun.  In this forum, we've all seen the posts of "If I stand on my head for 30 minutes and then scratch my belly really hard, my POIS goes away".  In the CFS support groups, I haven't seen that.  There's more discussion of the various established treatments. After you've tried those 20 things, you can rest knowing you've tried the bulk of what's likely to help, and then focus on stress reduction and improving your health overall. 
 
Anyway, just wanted to share this, as I view it as a major insight for me.  If I find anything that works for me on the CFS side I'll of course share it over here. 

If this sounds like something you'd like to learn more about, here are a couple of helpful pages I've come across
https://www.healthrising.org/blog/2018/12/10/the-basics-a-guide-to-learning-sharing-and-making-a-difference-in-chronic-fatigue-syndrome-me-cfs/
https://www.healthrising.org/blog/2018/12/01/tips-newbies-fibromyalgia-chronic-fatigue-syndrome-me-cfs/

2

New Theories / Re: Post Orgasmic Illness Syndrome (POIS)

« on: 03/05/2020 04:08:07 »

Hi akt1.  I'm appreciative of your well thought out theory.  Many people on the forum, including myself, have had success with many of the supplements which convert Glutamate to Gaba.  However I believe this is coincidental, because at least in my case, this theory doesn't hold water.

For starters, I used to take gaba pills.  For months I took them.  Didn't help my pois, however I liked the way it calmed me.

Even if gaba doesn't help me, your theory could still apply to too much Glutamate.  However this doesn't work for me either
1) From everything I can see, my methylation appears to be optimal.  I've performed blood work, looked at my genes, etc.  Overall, I've thoroughly researched and reviewed my methylation pathways, and this is not a weakness of mine. 
2) High glutamate would lead to a racing mind and insomnia.  POIS has a nearly opposite effect in me.  It makes me lethargic and clears my mind of all thought and then blocks my ability to think much at all. 

Perhaps others have a different take?

3

New Theories / Re: Post Orgasmic Illness Syndrome (POIS)

« on: 06/10/2019 05:22:46 »

Ya, that first picture of your face is how I feel with POIS.  LOL, that explains it perfectly.

4

New Theories / Re: Post Orgasmic Illness Syndrome (POIS)

« on: 10/12/2017 06:11:38 »

Do you take this one?
"Nature's Way, Ginger Root, 550 mg, 240 Vegetarian Capsules"

Yup - that's the same one I take.  Glad youve also found success w it. 

5

New Theories / Re: Post Orgasmic Illness Syndrome (POIS)

« on: 18/10/2017 14:44:59 »

It's been over 3 months, and I want to followup and report that Ginger still works for me. 

My protocol for using it has never changed.  I simply take 2 ginger pills immediately before or after an O.  As a result, most times the next day I can't tell that I had an O.  For best results, I limit my Os to 1-2x a week.  If I have too many my body will weaken and I'll get some of the symptoms, but still not all of them.

It's clear that Ginger doesn't work for everyone.  By that same token, niacin never worked for me and it worked for others. 

Best part about it is how simple it is.  A large bottle of Nature's Way (which I use) is under $10.  And there's no discomfort by taking 2 pills.  And you can even take it right after the O.  Could not be easier. 

6

New Theories / Re: Post Orgasmic Illness Syndrome (POIS)

« on: 13/08/2017 21:32:14 »

I'm skinny, nervous and I suffer from severe premature ejaculation. I'm a good candidate to be deficient in Gaba.

I fit your same profile above.  I've taken pure gaba for many many months.  Didn't do a thing.  I upgraded to Picamilon, which is a mixture of gaba and niacin.  The niacin allows the gaba to cross the blood-brain barrier.  This supplement definitely has an effect on me as it makes me more calm.  However it also didn't help my POIS.

7

New Theories / Re: Post Orgasmic Illness Syndrome (POIS)

« on: 21/07/2017 18:55:22 »

Ginger has worked for me many times... but one time so far it did not.  It's important to be transparent about the good and the bad.

8

New Theories / Re: Post Orgasmic Illness Syndrome (POIS)

« on: 09/07/2017 17:11:16 »

Sorry to hear it didn't work, and thanks for reporting back.  That is the correct dosage.  I guess as we've found from testosterone replacement and niacin, what works for some doesn't work for all.

9

New Theories / Re: Post Orgasmic Illness Syndrome (POIS)

« on: 03/07/2017 19:39:50 »

Update: I've had 5 Os over 3 days with the use of the ginger and astonishingly, I still feel completely fine.  I've always thought that POIS was a deficiency in some mineral, which is exacerbated during the release of fluid upon the O.  I'm forced to completely re-think that theory now that ginger's anti-inflammatory properties seem to completely block all the nasty effects of POIS.   

10

New Theories / Re: Post Orgasmic Illness Syndrome (POIS)

« on: 01/07/2017 17:21:38 »

Hi everyone - I joined this forum 6yrs ago, but took a 3yr break out of frustration with how dysfunctional this place can be.  At one point it was probably also unhealthy how often I was on here, scanning for cures, and buying supplements ppl would recommend after having only tried once.  Yes, my name is a copy of b_jim, one of the founding members - in hindsight I feel silly about copying him. 

I'm writing because I would like to add to the growing list of members who have found significant relief with GINGER.  (fwiw I'm taking it in pill form)
 
Granted, I'd like to put out a qualifier as I only have 3 wks of experience with it and admittedly some products which initially helped me didn't withstand the test of time.  But so far, the lethargy, anxiety, brainfog, etc have all been sharply reduced by simply taking it around the time of the O.  I will provide a follow-up update, whether it be good or bad, when I have more data points.

Thanks to Vincent M (for discovering it), akt1 (for heavily promoting it), & awpirates321 (for providing additional confirmation). 

11

New Theories / Re: Post Orgasmic Illness Syndrome (POIS)

« on: 14/04/2015 04:57:54 »

I haven't posted in a while bc i get frustrated with how dysfunctional this place is.  It's been about 4 yrs since I initially came across this site.  Over this time period I've tried about everything.  I got better for a 3 month period in 2013 with mineral balancing and hair testing, but pois returned and I haven't been successful in escaping its grip since then. 

There's only 1 thing I can resolutely say helps me, and that's reducing the frequency of Os.  The easiest way to do this is to avoid scanning provocative pictures on a daily basis, and when you do masturbate, use your memory only.  Your pois will be lighter without the visual porn aid, but not only that, after the deed you'll likely be able to then push sex out of your mind for a few days.  With porn, you'll often be horny 20mins later and the next couple days are especially difficult to abstain. 

12

New Theories / Re: Post Orgasmic Illness Syndrome (POIS)

« on: 24/10/2014 18:28:05 »

I was also very heavy into bodybuilding. I was skinny all my life so wanted to put on muscle. I became a gym freak but with very little results. At one time, I was eating more and more but getting more and more skinny due to malabsorption issues. Your lack of results in the gym plus depression and suicidal thoughts scream digestive issues to me. These go hand in hand with POIS. I strongly suggest avoiding any sugar, grains, gluten or milk. Gut is very often affected by mercury as a major detox pathway. 

I completely agree with LupeNL.  If you can't control your weight/ can't build muscle, the problem is almost always gut related.  I went through this myself, for years not being able to gain at all.  At times I looked sickly I've been so thin.  FINALLY, 3 months ago i got my gut issues sorted out.  I was diagnosed with H Pylori which I got rid of.  Then I started keeping a food diary to sort out what upset my stomach.  I cut out all the things which gave me issues, which include processed foods, dairy, wheat, beans, and i'm still iffy on nuts.  I've gained 10 pounds of muscle since then and continue to put on more   

13

New Theories / Re: Post Orgasmic Illness Syndrome (POIS)

« on: 11/07/2014 03:52:58 »

Desperate man, you are true to your name.  Very sorry to hear things are difficult at the moment for you.    -Daniel

14

New Theories / Re: Post Orgasmic Illness Syndrome (POIS)

« on: 11/12/2013 21:31:29 »

I'm just going to repeat myself because nobody seemed to hear me: As a 2.5 year NSF forum member, I am claiming for the first time ever that I'm completely CURED.  not just feeling a little better.  And this is over a period of months, not 1 night like most of you deem is relevant to post about.

While I'm finally better after 15 years of POIS and would like to help others feel like I do, I'm not getting any traction so no point in continuing to post.  So this'll be my last post for a while.  If you're interested in my help, send me a PM.  Good luck everyone.

15

New Theories / Re: Post Orgasmic Illness Syndrome (POIS)

« on: 08/12/2013 12:01:05 »

Would you guys benefit from me posting a less complex version of herman's theory, with all the included amino acids and digestive aids that I've been taking that have really helped me?

16

New Theories / Re: Post Orgasmic Illness Syndrome (POIS)

« on: 08/12/2013 11:27:08 »

I don't think this is the root cause of POIS. If I have 4 orgasms in a week I have POIS.

But if I have one orgasm in a month I don't have POIS. So it's not immune system fighting sperm.

I used to notice something similar.  The reason is that sperm is composed of 3,000mg of amino acids.  So you drain your body of a lot of its resources every time ejaculate.  When you only ejaculate once a month your body has more time to replenish and is why you feel fine on 1 orgasm per month.  I'd reckon most people here would atleast feel better from once a month orgasms.  The problem with most POISers, is that their hormonal balance puts them in a state where it's near impossible to reduce their Os to once a week, let alone once a month.

To answer your theory MrVat7, you could take a quick survey.  How do other people here feel after 3 orgasms in a row?  Personally I used to do that a lot and I felt terrible afterwards. 

17

New Theories / Re: Post Orgasmic Illness Syndrome (POIS)

« on: 08/12/2013 01:37:35 »

I've been working closely with Herman for just over 10 months now.  I've wanted to reserve judgment until I could say for sure.  At this point I can reasonably safely say for sure.  As of the last month, my POIS is basically gone.  I still have lingering CFS and that will take time, but it continues to improve.

Everyone always asks: What % better are you.  Well, those percentages throughout this site are completely made up baloney so I'm not going to use numbers.  Instead I'll describe my progression and you can decide for yourself how much better you think I am.

One year ago, on an AVERAGE DAY, I used to have some kind of barrier in my brain that made it difficult to think clearly, carry a conversation, speak fluidly, etc.  I had extremely low energy and would have to take breaks when WALKING too much.  I would get burnt out at work each week by Tuesday - the rest of the week I'd get little done.  Muscle aches in my mid back.  Lots of digestion issues.  I wanted to avoid social interaction with most people, especially those in positions of authority or people I didnt know very well.  I bit my fingernails all the time.  I was frightened to speak in class or speak up in meetings at work... scared as could be.  Before lunch with a friend I'd drink a cup of coffee and take advil to try to reduce my symptoms for an hour.  The thought of working out was basically a joke and my life was extremely frustrating and not going anywhere.  Going more than 2 days with no O was difficult for me to do.  When I did masturbate I could get off within 15 seconds if i wanted to.  My BAD DAYS (read POIS days) were unbearable, with walking to the car being a struggle.  I would crawl inside my body and not want anyone to talk to me.  I'd be irritable and my gf would get frustrated with me on 100% of these days.

These days, I no longer burn out.  My anxiety is mostly unnoticeable.  I sometimes speak up in class too much - and I somewhat enjoy presenting and defending my point.  I still drink coffee before presentations, but I've stopped taking advil and coffee for social engagements.  I sometimes go to after-school activities because I still have energy left at the end of the day.  There's no barrier in my head anymore and conversations are effortless for the most part.  I haven't had the thought of "what am i going to do to make sure this upcoming conversation doesn't become awkward" in a couple months.  The muscle ache in my back is still there sometimes but it's much less severe.  I still don't work out, but am probably not too far away from that.  I still bite my fingernails but less.  I can now limit my Os to once a week and have no strong urges to have more.  When I masturbate it takes a lot longer than 15 seconds!  I have 0 BAD DAYS because my pois is hardly noticeable/ gone. 

Here's my detailed progression:
-Big ups and downs month 1 on Herman's protocol.  Altogether a little better.

-Next 5 months, not much improvement. This was very frustrating by month 5. (It turns out the reason for this was two-fold.  One is that I shouldnt have waited 5 months for my 2nd hair test.  Second is that Herman didn't yet know about all the digestive aids and amino acids that he does now.  That would have undoubtedly sped up my progress.) 

-Upon the return of my updated hair test in July, we added manganese and changed up my supplements a little. Within the next 2 weeks I noticed a moderate improvement.

-Next 2 months I stayed on this same protocol and I did 3 liver flushes and about 10-15 coffee enemas over this period. I probably only got a tiny better. 

-Next 1 month we added Wobenzym, Okra Pepsin, Pancreatin, HCL, Peppermint Oil, Amino Acids and L Carnosine. At first the Wobenzym was tough for me and that week was pretty depressing. Now I can take 10 pills at a time no problem. From all the digestion supplements my constant bloating and gas went from a 9 to a 3 (on a scale out of 10). I can get on a 5 hour airplane with no problem anymore. My stomach rumbles much less frequently. My IBS is greatly reduced. I would say this gave me a big bump to my quality of life and from this point on, my pois and cfs have been reducing on a straight-line basis.  Another exciting thing is that at this point, I stopped burning out.  I still become worn out occasionally but have never again burned out.

The most recent month- I've realized that I'm no longer controlled by sexual urges. Because of my now reduced infrequency in sexual activity, the net amino acids IN from food and supplements are now GREATER THAN the amino acids i'm LOSING. Every week I continue to feel better. POIS symptoms have been gone for about 4 weeks. 

That's where I'm at. As long as don't start smoking pot or wanking it all the time, pois should no longer be a concern of mine.  As of said, my CFS still remains, but it continues to get better.  I think the best way I can sum up my progression to day is to say that my average day is on par with my best days 6 months ago and my worst days are significantly better than my previously average days. 

18

New Theories / Re: Post Orgasmic Illness Syndrome (POIS)

« on: 05/12/2013 18:57:56 »

I've been feeling substantially better for the last 2 months.  As many know I've been working with Herman for 10 months now.  I wanted to reserve judgment of Herman's methods until I knew for sure whether they worked or not.  At this point it's obvious that they do work and it's not fair for me to withhold my story any longer.  I'll type something out and post tomorrow or the next day.

19

New Theories / Re: Post Orgasmic Illness Syndrome (POIS)

« on: 28/10/2013 13:57:50 »

I've been away for a while now - 2 months maybe?- and just popped back in to see what was going on. 

I am saddened to report that this place is quite a hole.  Maybe it's always been like this but I couldn't see it while i was here everyday.

All the people on this site who have used real names and provided their real email addresses.  You are the people that are helping to move this place forward.  GBolduev (Herman), BrettA, Urano57 (Adrian), jferr (jon), nathan123, etc.  If you're using a fake name and fake everything, this place becomes a random internet chat room, where you can leave your nasty comments and disappear.

Overit - I don't really know who you are.  You seem like a decently smart guy but you are terribly closed minded.  I know BrettA personally and I can vouch for him.  He literally just presented at the prestigious and cutting edge MedX conference at Stanford- if that's not good enough for you to give him a chance then I think your primary problem is psychiatric and pois secondary. 

Johanstefansson (and many others)- all these posts of how you felt for 1 day and 2 days, or 30 things you did which helped you feel better but you're not sure which one helped you- they obscure the real results people sometimes post.  Imagine, if you can't single out what is making you feel better, how is somebody else going to.   

Demo - You're a gentle soul who wants to help people, but you've got serious serious control issues.  While it's not my place to say, you should consider apologizing to those banned people and coming back to this site and helping out every once in a while.  It needs it.  Just be more inclusive and toss out the banning stick. 

To all those eyeballs out there who are reading but have never posted, say Hi sometime.  You don't need to say much, but just make yourself into a real entity for us.  That way if you ever have something important to tell the group, we'll be less likely to think you're made up.  Gaurav who is right now being treated by nathan and his doctor - we knew nothing about him which led to many questions about the whole thing.

If a new member or longtime reader has just posted for the first time, like ckckck recently, RESPOND TO THEM!!!  Say hi!  Acknowledge them.  Remember your first post and how nervous you were to send or excited you were for a reply?!?  Not responding to people is the worst thing you can do to someone's 1st post.  It ruins the forum.

I used to get excited when I'd feel better for 1 day or 2 days.  I'd think for sure I'd cracked it.  I'd tell my girlfriend excitedly and get my hopes up and then I'd feel such despair the next day or later that day when the fog and muscle fatigue would inevitably kick back in.  Alas, POIS is systemic.  The sooner we realize this the sooner we can work to SLOWLY get better.  Questforlife, B_Jim, John21 and many more are on this path.  Also, consequently, they're never claiming cures which gets OTHER peoples hopes up and causes them to spend $ on supplements which don't work in the longterm.  This all leads to my next point

Have a measured approach and try to take emotions out of this.  There's NOTHING that can't wait a week to post.  If you're so excited that you have to post immediately, I guarantee you you're not helping anyone.

Have accountability if your professed "cure" doesn't work.  Nathan123 has actually been pretty good about this.   Kima,  you said you were cured by Herman, then it took you many weeks and a post by Goldal for you to come back and say you weren't.  can't do that.   

This forum has many years of smart people and good info.  Dante88, I don't know how you can ask a question on BH4 supplements without PM'ing Kurtosis and then pasting his response for all to see.  That guy is a genius if I've ever come across one and is a great resource.  CertainlyPOIS, Vandemolen3, John21, B_Jim - these guys have been here forever.  Victor.Kons runs the Russian forum.  Reach out to them.

Lots of genuine and good people I've met on this forum.  mellivora, pharaoh, prancer, Habibou, nightingale, lauracostis, acronym, hoping, green, etc  Most aren't really active anymore.  Why?  They're not cured.  Because after a couple years here this place begins to go in a circle and it feels like you've been on the world's longest merry-go-round.  I don't know the answer, but one of the problems is that we don't build on former information.

With regard to an update from me, I'm still working with Herman, talking with him every couple days.  He's incredibly knowledgable and still does a lot of research trying to find not a better cure, but a quicker and more universal treatment.  While he searches for this, I continue my nutritional balancing, which is a very slow process to rid your body of copper.  I've been on it for over 9 months and could still be a year away.   

I am working hard to find a cure away from the forum and will come back if i have a big update, or every 2-3 months whichever comes first.  I don't like to ride the merry go round all the time anymore.  See you later.

20

New Theories / Re: Post Orgasmic Illness Syndrome (POIS)

« on: 07/09/2013 16:16:56 »

i'm gonna take a 4 week break and clear my mind a bit.  I've been checking this forum 3 times a day lately which just isn't healthy for me.  If I discover anything I'll let ya'll know for sure.  Send me a PM if you need anything  Goodluck gentleman (and ladies).  Ttyl