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New Theories / Re: Post Orgasmic Illness Syndrome (POIS)

« on: 18/07/2008 21:39:25 »

I was symptom free at the beginning of this current episode, but 3-5 days later I have experienced symptoms: mentally wiped, dull pain in lower back, a barely perceivable ache in groin area. My current thoughts: my problem (and possibly ours) is due to chronic prostatis. I have been tested for this years ago when I was relentlessly going to doctors looking for a cure. I had my PSA checked, secretion analyzed, semen ananlyzed, had more than one physical and had a camera jammed up my urethra for a look-see. Everything was "normal". But what I'm feeling now is telling me the tests were imperfect. Perhaps it is easier on a swollen prostate when you eat soluble fiber, less pressure against it. This of course would not explain girlwind's situation, but at the moment I am convinced. 

Hi John,

I'm in the same situation: I was diagnosed for chronic prostatitis many years ago, before I even got aware of POIS (but it's not impossible I already was suffering from it). I underwent the same tests as you (already had two yearly PSA checks, close to but just under the normal limit), except for the camera up the urethra (that sounds scary). I did have several echographies showing cristallisations (English ?)

Maybe there is something worth investigating here.

Also take a look at Wikipedia's entry for chronic prostatitis: http://en.wikipedia.org/wiki/Chronic_prostatitis/chronic_pelvic_pain_syndrome

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New Theories / Re: Post Orgasmic Illness Syndrome (POIS)

« on: 24/02/2008 21:34:45 »

Hallo

Just a quick questionaire to my fellow sufferers. If you can answer to the below symptoms please do so, I would like to narrow down the symptoms to possible diseases that I have read up about:


1)  lipodystrophy (fatty deposits like acne on face, back of neck, on collarbone area, between legs

2)   an asthma like breathless feeling after an orgasm

3)   inflammation

4)   blocked nose

5)   itchy skin, especially hands

6)   turn very red colour on chest after orgasm

7)   proximal muscle weakness (hips, shoulders)

   no urge for orgasm for the next hour, unless taken a stimulant

Please reply "yes" or "now" to the above symptoms to narrow down the disease.

Thanks

I posted my list of symptoms a few weeks ago, but they included none of the above, except #2. I also have #8 of course but in my opinion that is just the normal refractory period.

Referring to your previous posts, how do you actually take L-Tyrosine? I mean brand name and such...

Anyway I will soon be testing your DHEA treatment - I'll be having some from someone returning from the US. I'll keep all of you informed.

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New Theories / Re: Post Orgasmic Illness Syndrome (POIS)

« on: 27/01/2008 20:40:17 »

My problem is I just don't know which doctor I should consult...

I guess that is the real problem after all. I think there are no doctors that specialise in our deficiency.

I'll be seeing a sexologist in a few days. I'll keep you updated...

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New Theories / Re: Post Orgasmic Illness Syndrome (POIS)

« on: 25/01/2008 22:16:00 »

Hi Jim. I haven't tested any meds yet, I would like to get medical advice first (I have an appointment in a few days). Same answer for bloodtests.

You don't mention beta blockers, although they are quoted in page one of this thread. Has anybody tested these?

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New Theories / Re: Post Orgasmic Illness Syndrome (POIS)

« on: 24/01/2008 21:29:58 »

Hi everybody. Thank you so much for this topic, it's such a relief to discover I'm not the only one with this strange disease.

Let me describe my symptoms; as you will see they are not strictly identical to those posted here before. However, they are so strongly correlated to orgasm that for me POIS is the best explanation for my disorder.

First some personal details : male, age 49, computer scientist, living in France. I'm suffering from this condition for probably at least three years, and probably much more. It has worsened recently - at first it occurred occasionally, but not systematically as is the case now. To be precise, I'm now in the situation that having an orgasm during intercourse (not masturbation) leaves me sick the following days, in a systematic way. Actually my latest observations lead me to think that intensity of my symptoms are proportional to the actual length and intensity of the orgasm.

I understand those who speak of denial. I still have difficulty coming to terms with the facts. Speaking to others helps a lot - in my case I spoke to it with my wife first, and now this forum. The best explanation for this denial is that until recently I suffered from sleep apnea. Since I had mandibulary surgery this summer the apnea disappeared completely, but not the symptoms that I had attributed to it.

Here are my latest observations, starting last Sunday at about 9 PM, just after sex (I wrote everything like in a diary actually).

H =0
Everything normal.

H+1 to H+1:30
Feeling of anxiety.
I feel a strange burning/oppressed feeling when breathing, like I've just been bathing in cold seawater (I must say it's very hard to describe).
My temperature rises to about 37.5°C. I feel great warmth over all my body.
My breathing gets heavier.

H+3
I awake with the same symptoms as above, only worse. Anxiety is close to panic. I realize that this episode is probably the most severe I've ever had - probably because the orgasm I experienced was sensibly longer and more intense than usual.
My temperature has dropped to 37.5°C.
Nausea.

D+1 (morning)
I have a hard time getting up - I wake up and fall back to sleep repeatedly.
The oppressed feeling during breathing is still there. I feel like a weight on my chest.
My face in general and mouth in particular feel very tense, almost making it difficult to talk.
I feel terribly tired during breakfast, exhausted actually.

D+1 (rest of the day)
Physical activity seems to be highly demanding. I avoid the staircases, even walking is difficult.
I can do my work, but it's a very, very, uncomfortable day. I lose my concentration now and then.
Back home in the evening, my temperature is back to normal (slightly below 37°)

D+2
Like D+1, it's hard to get out of bed, and even harder to get wide awake.
I feel terribly tired, exhausted, making me irritable, hardly sociable.
However, I don't feel even half as bad as on D+1, although breathing still feels difficult.

D+3
Same as D+2, just slightly better

D+4 (today)
Things are almost back to normal, except that I'm really, really tired.

Well that's it... Just before I finish this long post (I hope you don't mind), I'd like to ask just one question: in your opinion, which field of medicine is most concerned by this syndrome: neurology, sexology, endocrinology, urology,..., psychiatry (just joking...) ? My problem is I just don't know which doctor I should consult...

Thank you in advance for your reactions, and sorry again for being so long.