1

New Theories / Re: Post Orgasmic Illness Syndrome (POIS)

« on: 13/11/2013 13:07:57 »

Hello, I haven't posted here for a while.

Just went over to poiscenter.com, the forum is dead. What happened? Did everyone get better?

Any news on how the POIS research is going with the $30,000 NORD grant? Or any news on when there will be some more news?

Fenugreek is still doing a good job for me, I'm pleased to say. I haven't had much luck with Niacin. A good meal and Fenugreek before O is the best thing I have managed to come up with, after trying A LOT of other different pills etc.

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New Theories / Re: Post Orgasmic Illness Syndrome (POIS)

« on: 30/06/2012 19:48:26 »

Yes, I tried Cabergoline, and it didn't provide me with a great deal of relief. I bought the tablets from an online pharmacy which I had not used before, so it is possible that the product I was taking was not genuine. I'd rate my confidence at around 75% that I was taking the real thing.

I've also tried L-Tyrosine (amino acid), selegiline and Bupropion, which are supposed to have a substantial effect on dopamine levels, but didn't help my POIS very much. The deservedly-reviled cigarette is my best dopamine-based weapon against POIS - nicotine is supposed to raise dopamine levels, but it doesn't work particularly well. I would never ever recommend somebody started smoking to help their POIS.

Fenugreek is still my best aid for POIS, although the B6 I tried was giving good results until I ran out of tablets. It's  difficult to buy in my current location.

3

New Theories / Re: Post Orgasmic Illness Syndrome (POIS)

« on: 28/12/2011 07:00:10 »

so my grandfather had Alzheimers stage 2 almost to stage 3.

anyone else here with POIS have a parent or grandparent with Alzheimers as well?

im considering corresponding with some Alzheimers researchers in hopes that they find some interest in the similarity of the effects of my POIS and Alzheimers.

You may be onto something, Defsync. My Grandfather died of Alzheimers. I was researching it a while ago, and came across some research stating that even in normal people, dopamine levels drop by an average of 10% every decade. The conclusion was that if humans lived long enough, EVERYBODY would get Alzheimers eventually. People with Alzheimers are experiencing the dopamine dropping at a higher rate, so it is diagnosed within their lifetimes.

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New Theories / Post Orgasmic Illness Syndrome (POIS)

« on: 20/08/2011 05:46:02 »

Thank you for your encouragement, Victor and Jivetalk  []

I will definitely keep you posted with my results!

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New Theories / Post Orgasmic Illness Syndrome (POIS)

« on: 18/08/2011 05:03:16 »

I was a little reluctant to post with incomplete results, but I have tried niacin (250mg) before O twice now, and it does a lot to alleviate my symptoms. For now, the 250mg seems to be enough to give me the flush. I would say that compared to nothing, it reduces my symptoms (mostly cognitive brain fog) by about 60-70%.

So far I have only tried it on its own - normally, I would take a dose of fenugreek before and after O. It will be interesting to try niacin in combination with fenugreek, and I will do this at some point, but I thought it would be more "scientific" to let niacin do its work without any assistance.

So, mark up another success for niacin! I hope it proves effective in the long-term as well as the short-term.

6

New Theories / Post Orgasmic Illness Syndrome (POIS)

« on: 25/07/2011 12:28:25 »

On this first phase, if we have good success, (let's say 50% of us have 80% relief, or some similar indicator) we should look into why and how it is working. Because one thing is "breakthrough" in finding symptom relief, and another is "breakthrough" as in cure!

The early indications are that Dr Waldinger was right on the money - his method of treating an allergic reaction to semen is textbook medical science:

http://en.wikipedia.org/wiki/Allergen_immunotherapy

My uninformed guess would be that the niacin is depleting the body's supply of histamine, so that the POIS allergic reaction ends up being far less severe. I'm not knowledgable enough to understand the exact mechanism by which niacin might prevent POIS, but the link between histamines and allergic reactions is very strong - it seems very likely that niacin's interaction with histamines is the key to why niacin "works".

I don't think that niacin will end up being regarded as a cure, but it could well turn out to be the best short-term solution for dealing with day-to-day POIS. If it can work long-term without causing liver damage (as determined by regular blood tests), then it would be pretty amazing.

Dr Waldinger's semen desensitisation may well be the long-term cure, but only time can tell how effective it will be years from now. In the meantime, if niacin holds up, it could be the closest we have come so far to ridding ourselves of POIS.

7

New Theories / Post Orgasmic Illness Syndrome (POIS)

« on: 24/07/2011 12:23:35 »

Thank you also to jivetalk, silverandcol and Guthrie! Initial reports seem very promising indeed - I wish I could test niacin for myself, but it's not too easy to buy in my current location ...

All the reports so far seem positive with regards to reducing/eliminating POIS symptoms - perhaps we are on the verge of a breakthrough here  []

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New Theories / Post Orgasmic Illness Syndrome (POIS)

« on: 24/07/2011 05:26:10 »

Thank you for the continued reports Victor - your experiments are helping us all! Especially since you have already found a cure for yourself - I for one am very happy that you are trying out the niacin/nicotinic acid solution orally. I dislike injections very much, and of course the injectable XN isn't easy to find in every part of the world.

9

New Theories / Post Orgasmic Illness Syndrome (POIS)

« on: 17/07/2011 14:35:20 »

Results:

OMG - I feel fine. In fact I feel really good. I seem to have a lot more energy. Seems to have kicked me out of the POIS that I had yesterday also. Very Very minor signs of brain fog - I feel I could sit down and have a good conversation with someone, which is very rare for me after O. Am pretty excited about this so thought I'd write on the forum. Of course this still could be Placebo, or one of those rare times that an O kicks me out of POIS. I am still cautiously optimistic. Will keep experimenting and reporting.

P.S- I am not sure about the long term effects of Niacin, I am tempted to up my dosage - but Probably won't until I research Niacin a bit more and what ill effects it might have.

Very exciting news jivetalk! It would be awesome if high-dose niacin turned out to be a cure for POIS for at least some of the people on the forum. Having googled about niacin a bit, the main issue people mention is that high-dose niacin has the potential to cause damage to the liver. So if you are contemplating taking large quantities, swing by your local doctor and tell him about your plans. Even if your doctor is sceptical about POIS, it is his/her professional duty to give you a liver function test if you ask for one - whether you are drinking a bottle of whisky every day or taking high-dose niacin  []

Some sites mention that taking niacin and alcohol together has the potential to harm your liver - I need to look further into this, as I enjoy alcohol and sex, and would rather not be forced to give one of them up!

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New Theories / Post Orgasmic Illness Syndrome (POIS)

« on: 17/07/2011 14:08:03 »

I have searched on the internet to know more about the pre-ejaculatory fluid and it turns out that the liquid mainly originates from bulbourethral gland, also called a Cowper's gland.

I strongly see a connection from this liquid and my POIS symptoms as for several times I got some portions of the symptoms even when I did not have any orgasm. I only was sexually excited and got the symptoms with no orgasmic ejaculation in my previous POIS experiences.

This time when I experienced the symptoms after the release of the pre-ejaculatory fluid I thought maybe there is a connection between the contents of this liquid and appearance of the symptoms.

I justify the weakness of the symptoms in this case to the fact that there is less pre-ejaculatory fluid released. However, during a complete orgasm more of this liquid gets released and that might be a reason for the higher intensity symptoms after an orgasm.

I also get POIS symptoms from pre-ejaculatory fluid Mer - a minority of people on this forum have the same problem as we do. Semen is made up of many different "ingredients", including sperm, pre-cum and a bunch of other things (fructose, various acids, zinc etc).

So according to the theory which says that POIS suffers are allergic to their own semen, we could be allergic to any number of the components of semen, from one or two to all of them.

Different people are allergic to different things, so our "precum POIS" is just as real as full-blown "ejaculation POIS". When (eventually) medical science breaks semen down into all its different elements and finds out which parts cause POIS, I'm betting that precum will be one of the biggest troublemakers.

Of course that doesn't mean that we are not allergic to sperm as well as precum! Or fructose, citrate, phosphorylcholine, or some of the many other components of semen.

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New Theories / Post Orgasmic Illness Syndrome (POIS)

« on: 21/05/2011 07:55:16 »

Hurray

As far ss the www. thing. I do remember that, but I thought I had registered both.. It was quite a while ago, and I might be wrong. Have you heard of that?

Hi Daveman,

When you register a .com domain, you automatically own both the www and non-www address. Unless you have set up your domain in a very strange (non-sensible) way, typing either version directly into your address bar will work just fine for people visiting the site. That's what you want to happen. www is just a subdomain that says "this is a www site" - a relic from the days when the internet used all kinds of different protocols to access information (gopher, ftp etc).

BUT when google works out your Pagerank for the different pages on your site, it treats www and non-www differently if you have made use of both forms of web address. Rather than dilute your Pagerank between www and non-www, you should choose 1 or the other and stick to it (the vast majority of sites still use the www prefix, although there are plenty of exceptions like slashdot.org).

If you decide to change your internal web addresses to www.poiscenter.com, it's pretty easy - just do a global search and replace for poiscenter.com > www.poiscenter.com. Alternatively, make sure that you everybody that you give your link to uses the non-www version (including google analytics, adwords, webmaster tools etc). Adding Analytics to your site is probably a pretty useful idea and relatively straightforward (30 minute job, lots of data for you to use to optimise your site).

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New Theories / Post Orgasmic Illness Syndrome (POIS)

« on: 20/05/2011 18:38:31 »

Hurray, POIS Center showed up in a Google-Alert today! (I'm assuming that's good news).



On May 19, 2011, at 7:02 AM, Google Alerts <googlealerts-noreply@google.com> wrote:

Web   1 new result for Post Orgasmic Illness Syndrome POIS
 
Relationships
Post Orgasmic Illness Syndrome (P.O.I.S.) ... Spell Check has been added to Posts! 782 Posts in 93 Topics by 52 Members Latest Member: UnderstandingPois ...
poiscenter.com/forums/index.php?board=11.0

It's always a good thing when google are indexing your content  []

With regards to the poiscenter.com URL, Daveman needs to decide whether he is going to use www.poiscenter.com or poiscenter.com as the new site's URL. Crazy as it may seem, google treat www and non-www as two different sites for SEO purposes. So it's best to make sure that all your internal and external site links are either prefixed with www or not. It's something that's a lot easier to fix at the birth of a site than when the site has been running for several months!

Just thought I would throw that out there.

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New Theories / Post Orgasmic Illness Syndrome (POIS)

« on: 19/05/2011 15:37:24 »

No problem Demo. Google DOES genuinely try to reward good content with high rankings, so as long as we keep on doing what we are doing, we are well on the way to success.

(and if some sites sympathetic to our cause would like to link to the new forum it certainly woudn't hurt  [])

The best way I know to do that would be to offer link-placement exchanges, e.g., the National Dandruff Society will post our link on their site, but only if we reciprocate and do the same.

Link-exchanges aren't a bad thing as such, but the amount of google juice that you get from the link is substantially reduced when google realises that two sites are linking to each other. The link is still worth having, but one-way links are highly preferable.

The ultimate in good inbound links are those from sites that 1) Have a reasonable PageRank (2 upwards) 2) Have few outgoing links. Each site with Pagerank is basically sharing the "google juice" around with all the sites that it links out to. A pagerank 2 site with 1000 outgoing links would be almost useless to us, since you are only getting 1/1000th of the Pagerank available from that site.

Relevance is another major factor - a link from a medical site would be rated much more highly by google than one from "Bob's auto repairs". Too many irrelevant reciprocal links would put the new forum's status with google at risk - the recent J C Penney scandal showed how even the big online players can get SEO very wrong: http://blog.chrisenglund.com/new-york-times-exposes-jc-penney-link-scheme

Using creativity and persuasion is the key to getting high-quality 1 way links. For example, you (Demo) could offer to put another site's link on your welcome sig that you post to new members, in return for a 1-way link to the new forum. That way the link would be counted as 1-way and both parties would be getting something positive from the deal.

Since the new forum is non-commercial, you may be pleasantly surprised at how many sites offer to help you with one way or reciprocal links. An email personally tailored to the owner of the site is essential - bulk-mailing a general HELP US PLEASE PLEASE PLEASE email will get you nowhere and cause ill-will. If the site you are contacting has a very low Pagerank and/or a very high number of outgoing links, don't even bother getting in touch - it's a waste of your time.

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New Theories / Post Orgasmic Illness Syndrome (POIS)

« on: 17/05/2011 08:59:31 »

No problem Demo. Google DOES genuinely try to reward good content with high rankings, so as long as we keep on doing what we are doing, we are well on the way to success.

(and if some sites sympathetic to our cause would like to link to the new forum it certainly woudn't hurt  [])

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New Theories / Post Orgasmic Illness Syndrome (POIS)

« on: 17/05/2011 07:52:54 »

Hurray, to add to your post, for a part it can also come from a human decision. Websites submited to and accepted by the directory dmoz.org were boosted by Google. And TNS is in dmoz.org which is a big achievement. However according to a forum, Google removed this guideline.

Dmoz has been diminishing in importance for years (like the Yahoo directory), and Google factors this into their search algorithm. 5 years ago, a dmoz listing was a big deal - now, not so much. But it isn't worthless - we should certainly submit the new site to dmoz - they can take over a year to approve your site (really!), so if there is no dmoz listing after a few months it doesn't always mean that your application has been rejected.

Thanks for bringing the dmoz issue up, martin  []

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New Theories / Post Orgasmic Illness Syndrome (POIS)

« on: 16/05/2011 08:14:47 »

Thanks Hurray. Some people will think this subject is disruptive but in my opinion is very important to discuss to increase our chance to attract more cases, so potentially more interest from researchers. I remember how Dr Waldinger was impressed by our number of cases. I think it's great you help with this. I agree with you for duplicate content, what decided me to post about it was to prevent copying entire pages and because Google said they want to keep some quality for the users who are forced to read two times the same thing so I had a little doubt.

I'm sure you know that the exact ways search engines are managing rankings is somewhat secret so it's hard to be perfect.
Yes forums with low pagerank are indexed and I think they won't appear first in the results compared with best PR, even for Google, the web is big.. If an other topic at TNS is 4 then we can do it too by following your suggestions, we are 3/10! But it's not only pagerank. Keywords are important, if someone talk about Lyme disease in the new forum and not here, then maybe for the next two years we'll fail to attract new POIS cases who have Lyme disease and who could help us with treatments as well. I know we must start somewhere but indexing should be done asap.

I agree with you 110% for what you say about the new forum and I'm now reassured it will be indexed because it was not sure at the beginning, I was dismissed several times when trying to discuss about it.

I think we definitely need a MAIN forum with more complexity (but not too much!) ---because the way we are discussing here is not adapted:
I understand we should have the discussions topic after topic rather than posts after posts in one topic, this has many advantages:
e.g: we can come back easily on unanswered points - There's a search functionality in all SMF forums limited only to the first pages of a topic- More keywords are in the title of the topics page (better for search engines)--- but the question is will everybody post in the new forum?  I'll go with the majority.
btw we can do polls at forumup.org

Perhaps there would have been serious other places on the web ready to give us a childboard and we can try again here first in case they changed their opinion. There are medical forums, science forums, where we can ask. Like Demo said one day, we can have several churches.
This could be a temporary solution the time everything is in place at the new forum. And I really think having our own forum with our own domain name is an advantage if the site represent the majority of the POIS sufferers.

About adwords it can be good and can add something but personally I avoid to click on sponsored links to have reliable scientific info. Except maybe if I see "fatigue after orgasm"..

Just wrote a long reply, which disappeared into the depths of the internet - bah! My main points were - I share your concern about keywords, but I think we have so many on TNS already that anybody who is fairly determined will almost certainly stumble across this forum with a few searches.

Another way pagerank can be misleading is that the "published" pagerank (the one you see in pagerank checkers) trails several months behind the "effective" pagerank (the one that google searches use). So our new site might appear to have no pagerank for a while, when really it is doing well on google. Google does this to prevent people gaming their search algorithms to work out ways to increase PR. Also, pagerank isn't everything - the google algorithm has a multitude of factors (some of which you can see publically as they are part of google's patent filings on their search methods).

Given a few months, the new site should start getting fairly good listings on google, and these will improve as it accumulates more posts. Despite my initial fears, both forums seem to be co-existing fine - both are averaging about 14 posts a day since April, compared to the 9 posts a day that this thread has averaged since it began in 2007.

Having been opposed to a new offsite forum initially, I'm very happy to admit that Daveman and Demo have done a fine job - no solution can please everybody 100%. If some disaster should strike, we can always revert to TNS and regroup - we can't let Daveman and Demo travel on the same plane   []

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New Theories / Post Orgasmic Illness Syndrome (POIS)

« on: 14/05/2011 13:02:08 »

i agree with your all your points, but i believed the goal was to eventually make the move to the other website so things can be more organize. I was not sure about how quickly that transition was going to happen that is why i was curious why we are not trying to create visibility as early as possible and using all the tools available.
As long as we are taking it slowly, nsf is definately taking care of the exposure we need, evident by the current flow of new people.
When it is time to get a domain i believe there is a ways we can share the cost one person shouldnt just do it. 

Thanks, CCconfucus! It sounds like Daveman is working to achieve greater visibility for the new site - of course, the biggest thing that will make it visible is the unique content (POIS posts) that we are contributing. This will build up over time and gradually give us google rankings for all kinds of search words - perfect for finding new POIS sufferers who can contribute with their ideas. I'm not sure we will ever entirely move over to the other site, but that doesn't mean that both sites can't be valuable together.

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New Theories / Post Orgasmic Illness Syndrome (POIS)

« on: 14/05/2011 12:51:20 »

Some good points hurray. Particularly what you say about both forums being quite active.

One of the MOST important factors to consider in the creation of the new forum, was the potent pull that NSF has.

The desire was to provide a new forum where a focus in activity could be achieved through the ability to separate topics. We didn't want two NSFs, nor to take away from what NSF had. The new forum has a completely diferent style, and initial reactions to this new style and interactions desired by the users tended to stay tied to a NSF way. But now that the forum is up and running, a natural feel and usage style is setting in for each forum, just as you indicate; you go to one for one thing and another for another.

What we want to do, to further facilitate access and a more seamless interactivity is join everything together with a well designed POIS Center.

We are in the process of preparing conditions and implementing an integrated Search Engine Optimization Scheme. Part of this plan in a second stage involves dedicated sponsors which will initially help pay for Google Ad exposure.

Google Ad exposure is very efficient for our application. Whereas it may have a 1% efficiency per click at best for normal sales applications, it has an efficiency closer to 80% per click for POIS sufferers looking for a "home".

So although in this moment it seems like forums here and forums there, and databases in other place and compendiums etc. we are going to unite into one entity. And new resources are and will be attracted, like NORD and other rare disease facilities, where you tend to find community in the understanding of little understood suffering.

I feel that we are JUST getting started, and with OUR group, it's going to be really exciting!

You are going to use Google AdWords? That should be interesting! The more people who find out about our forums, the better. The new forum has certainly flourished thanks to the work that you and Demo have put into it - I admit to being pleasantly surprised by its success so far  [] I have every faith that you can achieve what you are setting out to do - good luck, you have set yourself a big challenge  []

19

New Theories / Post Orgasmic Illness Syndrome (POIS)

« on: 14/05/2011 12:25:23 »

Interesting point Hurray with page rank, thanks for that. I tend to agree the traffic here will never decrease for the pages already indexed but we have to make sure our traffic will continue to increase, and this is not done by posting in a hidden forum.
TNS pagerank is 7/10 but the first page of the POIS forum is only 3/10, proof that Google treat it separately than TNS, at least partially. There are other topics at TNS with 0/10 pagerank. Maybe it's the number of links toward the topic that make the difference and perhaps for a small part the number of pages with the same title...
It would be really nice to have a main forum bigger than what we have now at TNS and very well exposed in search engines with a good pagerank.

An other point about search engines, Google does not recommend to have duplicate content within or across sites. I don't know if cross posting can be considered as duplicate content. After years of doing this the amount of duplicate can be huge but I would not think it's a problem if only a small part of each page is duplicate.
From Google guidelines:
http://www.google.com/support/webmasters/bin/answer.py?answer=66359

You make a good point about the difference between the TNS pagerank and the POIS thread internal pagerank. Internal pageranks can be misleading, though - the biggest subforum on google webmaster central "Crawling, indexing & ranking" has over 50,000 threads and shows an internal pagerank of 0! However, the content there is still very heavily indexed.

The vast majority of websites have a front page with a pagerank of less than 3 - for a single thread on a subforum, 3 is pretty darned impressive. The number is derived from external links that go directly to this thread and the internal link(s) from our PR7 friends at TNS.

It's entirely possible that we could get the pagerank of the front page of the new site up to 2 or 3 with lots of unique content and some high-quality external links. The internal pages would almost certainly have a lower pagerank though. I would predict that both forums will continue to co-exist for many years to come, and that's no bad thing.

Duplicate content is a real issue with SEO, but it mostly affects sites that steal content wholesale from other websites. If you have 90%+ original content, you are fine - I see no harm in people cross-posting messages between forums where it is appropriate; we have so much unique content on this thread already that the chance of us getting penalised by google for duplicate content is negligible.

While it's hugely important that POIS sufferers can find our websites and contribute, it's even more important that we can have relevant detailed discussions about POIS and share our findings with one another - the new website has really improved our ability to do that, and if it means that somewhere along the line we take a slight SEO hit, so be it. But my own opinion is that the TNS thread will remain very visible to search engines, while the new forum's visibility will grow organically over time.

20

New Theories / Post Orgasmic Illness Syndrome (POIS)

« on: 10/05/2011 14:39:30 »

Am just curious when the other forum gets bigger and starts becoming more of the focus of attention, it is going to result in NSF traffic reducing which will result in NSF loosing its ranking in search engines.  i was wondering if there is a plan for that in the future.
I know one way is to index the new site in google and also find ways to broadcast the site around the internet and also volume helps.

I remeber it took three years before NSF went up to number 1/ number 2, we cant afford that with the new forum, if it is becomes the main focus.

Hi CCconfucius,

Huge though our thread is, the POIS posts only account for a fraction of their overall traffic. TNS has an enormous PageRank of 7/10 - by comparison, the Yahoo directory has a PageRank of 8/10 (10/10 only goes to the likes of Google, Youtube and Facebook). There is so much POIS-related unique content on this forum that this thread will always rank highly for POIS and its accompanying symptoms.

No matter how big the new forum gets, it will always be a lot harder to find due to its relative obscurity (with regards to search engines). Not much we can do about that, but there will always be plenty of new posters coming from TNS.

Plus I don't really think the traffic on this thread will slow down too much, if at all. More and more people are discovering POIS, especially since the recent major news coverage. It was only a short time ago that we passed the 1,000,000 views milestone - we are already past 1,100,000

Since the new forum allows a variety of simultaneous discussions to take place, I find myself logging in and posting things that I would not post on the TNS thread - I don't want to clutter this thread up with too many posts, not an issue at the new forum. I suspect many TNS regulars feel the same way, and traffic will continue to grow at a healthy rate on both forums.

This thread keeps me up to date when I don't have time to go through the other forum - when time is plentiful, I can contribute over there also. A win/win situation for everybody.