0 Members and 4 Guests are viewing this topic.
Caution: Depressing PostI'm losing it. For some reason my POIS is getting worse. The worsening may be due to a number of things. Most likely Effexor and betaine hcl, but could perhaps be due to my two months use of Klonopin for anxiety. Either way I've waited weeks and the pain in my knees has not gone away. I estimate than in a few years time I will no longer be able to stand on my feet or walk because of POIS. My next step is to see if I can get my testicles surgically removed. I've read it can be done for $3,000 to $4,000 but I'm not sure if my mom has that much money. I need to talk to her about it. If that isn't possible I may resort to self castration. Even if I mess up the surgery and bleed to death or get an infection and die a slow death of gangrene it will still be better than slowly rotting away in this room that has become my world. The treatments I've mentioned previously still work to dull the pain of POIS, but the POIS has become too much even for those treatments to work. My face and eyes are too irritated to even read and participate on this forum much of the time now so this may be my last post here. Thanks to all of you for all the great work you've done together to fight this monster that is POIS.
Hi,Today I got my report of CT SCAN of BRAIN. I undergone for CT SCAN of Brain test in 2nd day of POIS and as per the report everything is normal. Further, I also got blood test and Nutrition level test which is also a normal. But POIS is still exist. Now my doctor advising me to go to a psychologist and he is telling that it is a psychological problem rather than physical.
The way I see it is if achieve castration I will at the very least reduce my freakish sex drive so even if it doesn't help my POIS it will allow me some relief from the constant psychosis of this spiral of self destruction. Being addicted to the thing that is killing you and the addictive substance being as easily obtainable as just a few sexual thoughts or a slight unintended touch to the genitals. The stress of always having to resist is maddening. It's like being allergic to the very air I breathe.
As far as I'm aware helminthic therapy hasn't been tried by any POIS sufferers. I need to read more about it (though did read an article in new scientist a while back). My impression is that this is one of those "latest things" that people are jumping on the bandwagon for without really understanding and I don't think its a good way to go for us, especially as we don't really know the underlying cause of POIS.
Hi,Today I got my report of CT SCAN of BRAIN. I undergone for CT SCAN of Brain test in 2nd day of POIS and as per the report everything is normal. Further, I also got blood test and Nutrition level test which is also a normal. But POIS is still exist. Now my doctor advising me to go to a psychologist and he is telling that it is a psychological problem rather than physical. Further, in our country, Niacin tablets is not available. I find B.complex tablet which is of following composition. Each Capsule contain:Vitamin B1 10mgVitamin B2 10mgVitamin B6 3mgNicotinamide 50mgFolic acid 1000mcgcalcium pantothenate 20mgL-lysine mono hydrochloride 150 mgVitamin B12 5 mcg.Whether this tablet is appropriate and does it contain Flushing effect? Please help...
Firstly, neither Dr Goldmeier or Dr Kocsis say that POIS is actually psychosomatic although this is one theory they are investigating or "exploring" as Dr Kocsis puts it. Dr Kocsis is a psychologist so it is natural for her to consider POIS from a psychological perspective. Dr Goldmeier has openly admitted to me and in the ABC interview that he doesn't know what POIS is. He clearly is looking at the psychology of it with Dr Kocsis but has also consulted with immunologist colleagues about POIS and prescribed me both diclofenac to test (anti-inflammatory) and levocitirizine (antihistamine). Joe Burger on the poiscenter forum found that levocitirizine (also prescribed to him by Dr G.) helped him. I have some but am yet to test it as I want to wait for a non-POIS health issue that I currently have to clear up first. My impression from discussions with Dr G. is that he is not dismissive of Dr Waldinger's theories but equally has a few reservations about them owing to the lack of controls in his studies (something Dr W has acknowledged himself).It is normal in science to have more than one hypothesis about something and to test the hypotheses until the correct one or a better one is found. As long as it is done from a scientifically rigorous perspective, I don't think we should be angry, especially at this early stage, if someone wants to examine POIS from a psychological perspective. Its something that hasn't been done in a scientific way before and in fact this could end up helping to permanently eliminate a psychological explanation if the medical literature ends up concluding that this is not psychological. Of course Dr Waldinger has already gone some way to publishing that POIS is not psychosomatic and if his future studies are more widely accepted as being carried out in a rigorous way (eg. with better controls) then this could do the job for us. What IS potentially damaging is if people see interviews by Dr Goldmeier and Dr Kocsis and interpret them as concrete factual explanations rather than theoretical ones. That is where the danger lies for us. In that regard it is also not that helpful to us that after Dr Waldinger's 2011 papers the media appeared to report that the cause of POIS had definitely been found. I was conscious of this during our reddit campaign. I was afraid people might read the news reports on the internet and conclude that actually the solution to POIS has been found. As we know, that isn't definitely the case.
But, if they hear an interview that gives the impression that it is psychological, they'd just say 'yes, that makes sense', rather than seeking data to confirm or disprove *that* view. That is, it is not a symmetrical situation that we're facing in seeking to overcome prejudices!
Yes, Mellivora, it's killing us not knowing what POIS really is.All I know, is when you're clear you know what it isn't.In my case, doesn't matter if it's niacin or whatever, when you are "back" in a healthy state, you can see clearly what it's not.
Mellivora,That's great about the meditation. Where it probably has the best potential as far as POIS goes is in allowing you to really tune into your body (and mind) to get to the root of things, find the right treatments etc. Better than the WAG (Wild A.. Guess).It's amazing what you can see. But it's usually about an 18 month training process to get that far. But well worth the effort.And it is tough to "stay there" too, it's very similar to physical exercise in that respect. You have to keep it up.