Can anyone recommend any insomnia support groups?

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Offline Karen W.

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« Reply #250 on: 30/01/2007 04:38:33 »
 Yep, they tried that for awhile years ago.. no lucky poo. other things tried made me feel like crud, and some I couldn't combine with my meds..at the time.. I am taking different meds these days so I don't know.. I hate tylonol let alone other medications.. I have a hard time taking them...

"Life is not measured by the number of Breaths we take, but by the moments that take our breath away."

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Offline Zwitterion

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« Reply #251 on: 31/01/2007 05:32:17 »
hi Karen...sorry to hear abt your sleeping again...i've had a bad week last week  but this week has been ok so far, fingers crossed!..i think i have found a solution to my sleeping which has worked the last 6-10 times ive tried it...we have this thing call shisha dont know if they have it i the US, its a middle eastern, asian thing where you smoke tobaccao through a water pipe...its done alot in middle eastern countries where its a social thing where mates just go out and have a relaxing evening by doin it....its not illegal by any means...as it seems a bit like it is....but every time ive been ive slept well that night...it makes u sorta light headed so u just want to put ur head down...maybe worth giving it a go....im hoping to get myself one to use at home....
this website might be useful if u want to know what im talking abt
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« Last Edit: 31/01/2007 06:10:42 by Karen W. »

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Offline moonfire

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« Reply #252 on: 31/01/2007 05:56:25 »
We have lounges for that...my son seems to like it...a bit costly though...
"Just Me, Lo" Loretta

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Offline Karen W.

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« Reply #253 on: 31/01/2007 06:13:32 »
Sorry about the zap on your link..
Feel free to send your link to
interested parties,
but no ads please..

"Life is not measured by the number of Breaths we take, but by the moments that take our breath away."

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Offline Karen W.

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« Reply #254 on: 31/01/2007 06:15:12 »
 I am glad you have rested and wish I could do the same, but I don't like that sort of thing..

"Life is not measured by the number of Breaths we take, but by the moments that take our breath away."

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Offline Zwitterion

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« Reply #255 on: 31/01/2007 07:01:48 »
hey sorry about that didnt realise....im not affiliated with that webiste in anyway just did a quick google search to let u guys know what i was talking about....oops

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Offline Karen W.

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« Reply #256 on: 31/01/2007 07:35:58 »
 No worries we all do it.. It's easy to forget and add a link like that!I knew there was nothing malicious or devious  by it, LOL 

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Offline Karen W.

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« Reply #257 on: 31/01/2007 16:52:55 »
5 hours sleep!!!! YAYYYYYYYYY!

"Life is not measured by the number of Breaths we take, but by the moments that take our breath away."

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Offline Karen W.

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« Reply #258 on: 05/02/2007 01:50:07 »
Wednesday the First A miracle happened I slept 5 hrs...Thursday a bigger one, happened, I slept from 10:00 pm until 7:00 AM. 9 hours... I cannot tell you how long it has been. And something odd to note .. LOL I forgot to pay my electric bill so neither night were the constant hums of power..The power came back up in the evening..right before I got home from work! The disappointment being I haven't slept since..

"Life is not measured by the number of Breaths we take, but by the moments that take our breath away."

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Offline neilep

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« Reply #259 on: 05/02/2007 03:23:55 »
5 hours !!...then 9 hours !!..incredible.....lets hope you can make it up tonight...amazing !!
Men are the same as women, just inside out !

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Offline Karen W.

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« Reply #260 on: 05/02/2007 03:40:52 »
That would be nice.. Have you been getting any sleep at all? Something else.. There is nobody here but me.. I wonder if that effects it?

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Offline moonfire

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« Reply #261 on: 05/02/2007 04:25:49 »
Zwitterion...what was the website...I want to take a look at it!
"Just Me, Lo" Loretta

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Offline Karen W.

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« Reply #262 on: 05/02/2007 05:41:17 »
OH dear I zapped it, maybe he will remember..

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Offline neilep

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« Reply #263 on: 05/02/2007 15:04:58 »
Hi Karen Mam,

LOL....there's no point in asking me if I have been getting any sleep at all !!...

This is my sleeping pattern (generalization)...3 x 1 hours , in other words I do not sleep longer than an hour before waking up , sometimes 15 minutes !...but I average about three hours....then every other night about 1 hour.......about 5 times a month I go without sleep completely....then 3 times a month this expands to about 72 hours give or take.....

day in day out since I was 6........that is it....it's the way it has been...the way it is...and there's no reason to think that it will ever change.....LOL
Men are the same as women, just inside out !

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Offline Karen W.

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« Reply #264 on: 05/02/2007 16:16:02 »
 I'm sorry , I just keep hoping that just maybe you will get some exra sleep.. I hope they find out some more.

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Offline Karen W.

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« Reply #265 on: 05/02/2007 16:43:22 »
Well I was able to procure 3 hours last night. I feel like a zombie, but will live..YAAAAAAYYYYYYYY

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Offline Karen W.

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« Reply #266 on: 07/02/2007 01:40:34 »
 Well I just had an interesting experience, I dozed off in the middle of my posting. I think I might have slept a bit over an hour! LOL, My neck is stiff and sore.. Teach me a lesson...LOL

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Offline Zwitterion

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« Reply #267 on: 07/02/2007 02:43:43 »
im having an all nighter tonite!! help!!

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Offline neilep

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« Reply #268 on: 07/02/2007 03:36:26 »
im having an all nighter tonite!! help!!


Bone Jour !!!....that's quality french right there !!
Men are the same as women, just inside out !

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Offline neilep

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« Reply #269 on: 07/02/2007 03:38:12 »
Well I just had an interesting experience, I dozed off in the middle of my posting. I think I might have slept a bit over an hour! LOL, My neck is stiff and sore.. Teach me a lesson...LOL

Some people talk in their sleep, some people walk in their sleep....ti's a good job ewe don't type in your sleep Mam !
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Offline Karen W.

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« Reply #270 on: 07/02/2007 04:00:22 »
NO kidding. I remember a post was bacck in one of the old threads, I fell asleep in the middle of a post and when I woke there were tons of one letter all the way down the post.. I believe I left it there to point out the evils of falling asleep while tying LOL.. I need a pillow. 

Zwitterion, Sorry about the all nighter.. Do you have something to do..?

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Offline neilep

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« Reply #271 on: 07/02/2007 04:27:05 »
LOl...it amazes me how ewe can fall asleep like that ...oh hang on.........ZZZZZZZZZZZZZZZZZZZZZ...oh my..I just slept for half a second !!..LOL
Men are the same as women, just inside out !

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Offline Karen W.

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« Reply #272 on: 07/02/2007 04:39:01 »
That looks like me old post.... LOL Amazing... but if i leave to go to bed it shoots my sleep out the window.. LOL

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Offline Carolyn

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« Reply #273 on: 07/02/2007 04:49:16 »
I'm not an insomniac, I just have to finish laundry. [;D]  But you all have my support! [^]
Carolyn

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Offline Karen W.

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« Reply #274 on: 07/02/2007 08:28:49 »
 LOL thanks Carolyn!

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Offline Zwitterion

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« Reply #275 on: 07/02/2007 18:01:37 »
finally got to bed after half 5 to wake up at 7am....well atleast ive made it thru the day!!....not just going to chill and watch the footy from my bed!!....aahhhh,....comeon england!

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Offline neilep

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« Reply #276 on: 07/02/2007 19:42:13 »
Come On E N G E R L A N D !!

we're bound to lose !!
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Offline neilep

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« Reply #277 on: 07/02/2007 23:36:00 »
I hate being right !!!...Spain 1, England 0

Lets face it...we're crap !!
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Offline Zwitterion

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« Reply #278 on: 08/02/2007 02:27:49 »
tell me about it!! and to make matters worse struggling to get any zzzzzzzzzzz'ss again tonight!!...

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Offline Karen W.

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« Reply #279 on: 08/02/2007 04:11:41 »
Sorry Boys.. Hope for you to sleep as always.. I think I will be awake to, as My head is so stuffed up! Even when I used to sleep, if my head was stuffy, sleep was out of the question.. Hugs you both.. I hope your rest brings sleep and dreams your way... Maybe in the form of tall Blonde nursies... LOL

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Offline moonfire

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« Reply #280 on: 08/02/2007 04:36:37 »
zzzzzzz, just kidding, I was not asleep...lol I hate insomina!
"Just Me, Lo" Loretta

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Offline Karen W.

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« Reply #281 on: 08/02/2007 04:57:44 »
ME TOO!

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Offline Zwitterion

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« Reply #282 on: 08/02/2007 11:47:04 »
Sorry Boys.. Hope for you to sleep as always.. I think I will be awake to, as My head is so stuffed up! Even when I used to sleep, if my head was stuffy, sleep was out of the question.. Hugs you both.. I hope your rest brings sleep and dreams your way... Maybe in the form of tall Blonde nursies... LOL

BOYS!! and Blonde nurses!!...well firstly im a gal and proud of it and secondly by blonde nurses i hope u meant nice men!!....although i prefer my dark haired men!!....

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Offline Zwitterion

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« Reply #283 on: 08/02/2007 11:47:23 »
:o)

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Offline neilep

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« Reply #284 on: 08/02/2007 14:23:49 »
Sorry Boys.. Hope for you to sleep as always.. I think I will be awake to, as My head is so stuffed up! Even when I used to sleep, if my head was stuffy, sleep was out of the question.. Hugs you both.. I hope your rest brings sleep and dreams your way... Maybe in the form of tall Blonde nursies... LOL


When I succumbed to half an hour of zzzzzzzzzzz'sville ..I dreamed a was given a bed bath by a tall blonde Giraffe !!
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Offline Zwitterion

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« Reply #285 on: 08/02/2007 14:37:46 »
so Neil how do u cope with a life struggling to sleep?....im off work today feeling awful due to lack of sleep.....do u work?

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Offline Karen W.

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« Reply #286 on: 08/02/2007 17:01:57 »
Sorry Zweitterion, I never looked at your profile.. did not know you were a she, Apologies. Yes then Perhaps tall Dark hansome Nurse..LOL

A tall Blonde Giraffe eh?? LOL LOL You crack me up...hee hee!!



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Offline neilep

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« Reply #287 on: 08/02/2007 17:42:22 »
so Neil how do u cope with a life struggling to sleep?....im off work today feeling awful due to lack of sleep.....do u work?


Zwitterion. yes I do work... I am a jewellery designer....well..in that I mean..I assist couples to design their own rings and then we manufacture them for them. It's a really nice business, dealing with people who are celebrating !
We work in yellow gold, white gold, platinum and all manner of precious stones....

....as far as coping !!...well...I have HAD to cope !!..with me it is one of total acceptance and resignation to the fact that this is my life......In the early years through my teens and early twenty's it was not like this.....I would regularly 'lose the plot' lose my temper...break things...hurt myself....it screwed up my education..there was no support from the school...though they knew of my situation.......nowadays...circumstances like that are very very rare where I would lose it...............If I had not accepted my situation then I would probably not be here right now....it is just a matter of dealing with the tiredness as best as I can and knowing that I am to be like this.

It is NOT easy for people (perhaps like yourself) who may be going through a (hopeful) temporal phase of insomnia.....and so I can fully understand how awful it is for you.....I Know it to be awful and it does not take long for me to put myself in your position....it's all too easy in fact to let go and start getting manic !


How do you cope ?...are you seeing the doctor ?...do you have sleepy tabs ?..
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Offline Zwitterion

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« Reply #288 on: 08/02/2007 18:35:40 »
i really feel for you...

I really struggle to cope and at the moment seriously struggling, im in my 20's and have been suffering for 6 years now...no idea how i managed to get my degree and the fact that im still working and sane baffles me as its sooo difficult!!

people dont realise how hard it is...its so hard to get motivated, or care about anything when u dont sleep even if it is something that your normally passionate about, having to wake up in the morning and go to work is soo hard, im actually thinking whether i want to continue working coz doind 9-5pm is close to impossible for me...even tho my manager has been pretty good about it...but still feel awful about not being able to get to work on time.

I hate feeling stupid....i struggle to think , understand things, answer relatively easy questions at work, feels like evrythings working against you!!...the worse thing is everytime i plan things i end up having to cancel coz im too tired and just not in the mood....i try not to plan anything now rather than having to let ppl down all the time.

yes ive seen the docs number of times...just the gp....and they dont have a clue about insomnia , they just assume your depressed which im not...tried a number of tablets even tho i rarely use to take tablets...they referred me to a psych dept to have my case looked at but i didnt bother going thru with it as i feel this isnt my problem...had blood tests etc done a number of times and every time they come back perfect...which normally id be happy with but i desperately need a reason for why im screwed in the head!!

in terms of what ive tried...well it'd be easier to list what i havent, u name it ive tried it....currently taking amityp...tabs which do work but have a major hangover effect which is worse than the insomnia itself...i wanna see a sleep specialist but docs dont have a clue abt who or where i can go...

as for how i cope , very badly,,,completely understand when you talk about losing your temper, breaking things, wanting to hurt yourself...and having to fight all that is so hard!....its the time u have to kill every night which is also difficult...resort to the internet, tv...or a long drive at mad hours in the morning...foot down in your car helps!!

only positive i can think of is when i do sleep well im on a high all day....its an amazing feeling, your head feels clear, your mind feels fresh and u feel nothingin the world can bring you down...but those days are few and far between....i wanna get rid of this insommnia its the worse thing ive had to cope with......


sorry about the long post but its really getting to me at the mo hence the big whinge!!


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Offline neilep

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« Reply #289 on: 08/02/2007 19:14:52 »
i really feel for you...

I really struggle to cope and at the moment seriously struggling, im in my 20's and have been suffering for 6 years now...no idea how i managed to get my degree and the fact that im still working and sane baffles me as its sooo difficult!!

people dont realise how hard it is...its so hard to get motivated, or care about anything when u dont sleep even if it is something that your normally passionate about, having to wake up in the morning and go to work is soo hard, im actually thinking whether i want to continue working coz doind 9-5pm is close to impossible for me...even tho my manager has been pretty good about it...but still feel awful about not being able to get to work on time.

I hate feeling stupid....i struggle to think , understand things, answer relatively easy questions at work, feels like evrythings working against you!!...the worse thing is everytime i plan things i end up having to cancel coz im too tired and just not in the mood....i try not to plan anything now rather than having to let ppl down all the time.

yes ive seen the docs number of times...just the gp....and they dont have a clue about insomnia , they just assume your depressed which im not...tried a number of tablets even tho i rarely use to take tablets...they referred me to a psych dept to have my case looked at but i didnt bother going thru with it as i feel this isnt my problem...had blood tests etc done a number of times and every time they come back perfect...which normally id be happy with but i desperately need a reason for why im screwed in the head!!

in terms of what ive tried...well it'd be easier to list what i havent, u name it ive tried it....currently taking amityp...tabs which do work but have a major hangover effect which is worse than the insomnia itself...i wanna see a sleep specialist but docs dont have a clue abt who or where i can go...

as for how i cope , very badly,,,completely understand when you talk about losing your temper, breaking things, wanting to hurt yourself...and having to fight all that is so hard!....its the time u have to kill every night which is also difficult...resort to the internet, tv...or a long drive at mad hours in the morning...foot down in your car helps!!

only positive i can think of is when i do sleep well im on a high all day....its an amazing feeling, your head feels clear, your mind feels fresh and u feel nothingin the world can bring you down...but those days are few and far between....i wanna get rid of this insommnia its the worse thing ive had to cope with......


sorry about the long post but its really getting to me at the mo hence the big whinge!!



NO apology needed for the long post.

Like you..I will not even start to list the number of treatments I have had since I was 6....suffice it to say it's long....not just drugs..but diets, threapies, treatments...etc etc etc...

Where are you in the UK ?...There are two hospitals that I know  of (In London)that have sleeping disorders clinics !..I've been to both of course. My problem is that nothing works and most specialists are dumbfounded when it comes to such a chronic case as my own .

My drug of choice (when I need it) is Nitrazepam...it works for me if I need it....and that is only if I have an early start the following morning.

The good thing about my work is that I see people mostly in the evenings when they are both at home after work.

I am not surprised about your doctor virtually shrugging their shoulders !!..it's not their fault...Insomnia for some reason is not deemed worthy of the research and is just not treated seriously. Seems to me you are being treated for the symptoms and not the cause.

There was  a drug I remember reading in the paper years ago...I can't remember the exact name but I think it was Sonata.....it was heralded as a wonder drug as it worked quickly and leaves you with no hangover !!..Nitrazepam does by the way..it is strong...and not available in the US. So, armed with the paper clipping I went to my GP who prescribed it...unfortunately it sent my heart rate pacing ..so that was the end of that.


Most people seem to relate the start of their insomnia to an event...so..what happened to you six years ago ?...anything at all of note ?

Do NOT feel alone in your angst and suffering at night...I know it feels awful...I know you know that.


I am still surprised that your doctors do not know of anyone to refer you to....I would have thought a ' sleep study ' would have been done by now....especially after 6 years !!....unless of curse you live out in the sticks somewhere.

Keep on whinging....especially if it helps you vent some frustration....that's what THIS thread is for...........
« Last Edit: 08/02/2007 19:16:29 by neilep »
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Offline Zwitterion

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« Reply #290 on: 09/02/2007 00:04:55 »
hey thanks Neil...it helps to hear from other ppl out there who are going thru the same thing as you, just makes u feel a bit more normal...

Im a northern gal up in yorkshire...but to be honest even though ive suffered for 6 years ive never been one to go to doctors...and i guess i felt a bit stupid to a certain extent going to the docs about not being able to sleep for the best part of 4 years....but now its just taking the piss...

as for something happening 6 years ago....nothing really...im surprisingly quite a chilled out person altho thats hard to notice these days i dont usually let alot of things get to me...most things just past me by...thing with having so much time to think is that any issues u do have,....u end up going thru them in ur head like a million times so before u know it it becomes a major problem...

do u know of any sleep clinics up north?...only ones i know of is the one in London and edinburgh which is too far too travel but im getting desperate so if i could convince my doc to get referred then id be willing to make a trip..

i believe my problem is probably due to an actual sleep disorder rather than a psychological thing although with it going on for so long i think its going to become a psychological issue....as its really driving me maad!!

its so frustrating when your mind, personality, relationships, physical state suffer and u have no control...it just controls ur life and u cant do anything about it...

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Offline Zwitterion

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« Reply #291 on: 09/02/2007 02:12:12 »
quarter past 2 and counting..................

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Offline neilep

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« Reply #292 on: 09/02/2007 02:44:44 »
Hi Zwitty,

I'm afraid I do not know of any sleep clinics up North...I'm a London lad so all my treatments have been down here.

One thing I will say to you is this.

If you don't do anything about it then you'll only stagnate !!....and don't you dare think you are stupid about going to the doctors !!..you are suffering right ?...you are feeling down, miserable, depressed, friggin fed up !!!......You have a genuine bona-fide reason right there to go to your GP and insist that you get referred to see someone.

What about meditation ?..hypnotherapy ?..homeopathic treatments ?.....Listen..if you don't treat it seriously then how do you expect the doctors to ?...and when you go...do NOT play it down !!..big it up !!...really really say how awful you are feeling !!...Insist upon some help !!...that's why we pay this national Insurance !!...and if you don't get anywhere then get a second opinion from another doctor at the practice !!

Hey !!.London isn't all that far....I drive up to Durham every six months...and it takes about 5-6 hours !..you can train it in 3-4  !......please don't give up and DO insist that your doctor refers you....bu he will only take you seriously if you convince him/her.

You just indicated how bad it is for you in your last sentence......I want you tomorrow to make an appointment at your GP...just do it !!...and when you go...you go with the premise that you're gonna get a result !!

2:45am and counting !!
Men are the same as women, just inside out !

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Offline Karen W.

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« Reply #293 on: 09/02/2007 04:38:18 »
I am really sorry for the discomfort and misery. I know how you feel.. Most of my days anymore feel like that.. I have decided I am just not going to think about it anymore as it drives me crazy.. Hope tomorrow is a bright one!

"Life is not measured by the number of Breaths we take, but by the moments that take our breath away."

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Offline Zwitterion

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« Reply #294 on: 09/02/2007 05:12:57 »
thanks for ur response once again...ok Neil i'll book an appointment tomorrow.....

05.15 and counting....gotta start work at 8:00am  :o(

hope everyone had a good day!

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Offline Zwitterion

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« Reply #295 on: 09/02/2007 05:15:27 »
btw a while back i read about modafinil...used for narcolepsy treatment....helps ppl stay up and feel alive...anyone thought of taking (harder) stimulants such as these to get thru the day after a crap night...

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Offline neilep

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« Reply #296 on: 09/02/2007 05:22:59 »
Good Girl Zwitty,

I've never thought about an alternative drug in years. I would certainly be willing to give modafinil a try.....perhaps a stimulant through the day is what is needed to get you asleep at night.

I just wonder if it's like treating the symptoms rather than the cause....if you know what I mean.

I don't expect it would be prescribed without detailed investigation though.

05:22....*le sigh*
Men are the same as women, just inside out !

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Offline Zwitterion

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« Reply #297 on: 09/02/2007 05:33:32 »
yeah your right....it is treating the symptom but atleast u feel alive rather than half dead!!...

i usually live on diet pepsi, red-bull and pro-plus tabs to get me thru the day....but not enough stimulant to be honest....

so when do u reckon you will get to sleep today?


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Offline Karen W.

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« Reply #298 on: 09/02/2007 05:36:50 »
I am amazed we are all still up... Its early for me..

"Life is not measured by the number of Breaths we take, but by the moments that take our breath away."

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Offline Zwitterion

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« Reply #299 on: 09/02/2007 05:37:45 »
what time is it where you are Karen