Can anyone recommend any insomnia support groups?

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Offline Karen W.

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« Reply #850 on: 15/11/2007 05:52:00 »
He is the one who talked me into the sleep study and I brought it up at an appointment but as I did, she had already talked to a sleep lab about me and made arrangements seem she and Neil were on the same page...LOL... Check out CPAP MACHINE! Mine is a Bi Level Machine it has a vaporizor as well as an adjustable start up so it starts at low air and gradually builds up over 45 minutes giving me more time to sleep before it blasts me! LOL!

Read this web address info that I will pm you...about cpap machines etc.
« Last Edit: 19/11/2007 02:20:12 by Karen W. »

"Life is not measured by the number of Breaths we take, but by the moments that take our breath away."

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Offline Misty

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« Reply #851 on: 19/11/2007 13:51:48 »
Hi Guys
Just returned from vacation, which was great and yes, I managed to relax and even get some sleep!

Now what I used while away (partly coz we were travelling through time zones) was 6 gm Melatonin and 30c Coffea Cruda.  I managed about four hours sleep most nights, which was great, although felt exhausted the first few days as not used to sleeping. 

I do also take Zopiclone or Promethazine if I get desparate.

Welcome to the newcomers - sorry to hear you too experience insomnia, a common and much misunderstood problem.  The worse thing for me is you can't get time off work for being too tired through endless lack of sleep, even though one is  probably a menace on the road driving to work (can't possibly be functioning properly)and probably prone to making mistakes at work.

GPs are useless.  I was told that my insomnia was due to an underlying depression.  I was not depressed until I started not sleeping.  I'd always been a vibrant and outgoing sort of person.  Lack of sleep makes me hyper, after about two nights without sleep I begin to feel a "buzz", as if my body is wired and I become even more alert and "high".  I also get feelings of panic in the early hours, especially when I know I have to work the next day (I only work part time now because I don't feel I can cope with a full week's work and work related stress any more).  This panic feeling seems to give me a rush of adrenaline and then I am wide awake and I find my hearing becomes very acute too.  I too also find that the longer I don't get any sleep, the less sleepy I feel, don't yawn, etc.

On the whole I try not to worry about it, but I'd be lying if I said it doesn't bother me.  I am sure a whole range of minor ailments I now suffer from are due to lack of sleep (needless to say the GP says not).

On the weight issue - I have put on loads of weight over the past 10 years despite increasing exercise and eating healthily - again I mainly blame lack of sleep for this and I have read that this is often the cause of weight gain for people.

Hey ho, life goes on!

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Offline Karen W.

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« Reply #852 on: 19/11/2007 14:27:07 »
 i AM GLAD YOU HAD SOME SLEEP ON YOUR VACATION AM SORRY YOU HAD TO USE SO MUCH STUFF TO GET TO SLEEP. i HOPE YOU ARE RESTING NOW THAT YOU ARE HOME!

"Life is not measured by the number of Breaths we take, but by the moments that take our breath away."

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Offline Misty

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« Reply #853 on: 21/11/2007 10:08:39 »
Not sleeping since my return :0(
Seein homeopath this evening to see what he has to say.

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Offline neilep

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« Reply #854 on: 21/11/2007 14:01:22 »
Hi All,

Please forgive my recent lack of participation here. I have become extremely lethargic and also ....in recent times I've had a change of attitude (well the last few years actually)...in that I took a leap of faith and just have an air of total acceptance.

This in fact does help me cope a lot better. I don;t get as stressed as I used to , tired and exhausted etc etc yes...but...after so many years...and with so little support.....the only help I find is best to help yourself !

For the peeps here who's Insomnia is just transitory or just come and goes in phases then I would urge them to keep shouting at their doctors...in these cases there is usually always an underlying reason.........for those who know nothing else....then...well...it's up to you......I just accept my situation......It's my life.....I wouldn't know a good nights sleep if I actually had one !!....

for the most part....this acceptance has helped....I still of course have all the usual suspects that comes with deprivation of sleep.....but I find just a small change of attitude helps one to cope........cos if no one is really gonna help us...then..we have to find a way to help ourselves....
Men are the same as women, just inside out !

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Offline neilep

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« Reply #855 on: 23/11/2007 06:05:55 »
Hi Plaidlumberjack !!

Just gone 6am here !...oh well !!

Naa...even the biggest cities in the world have sod all when it comes to support networks......the only place I could think of going in the middle of the night is the 24hour supermarket !!...Oh joy !!.....

well...I suppose I could go running up and down my street ringing everybodys doorbells !!
Men are the same as women, just inside out !

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Offline Karen W.

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« Reply #856 on: 24/11/2007 12:40:55 »
LOL... Now com on tell the truth you have already done that! Thats why the neighbors wear ear plugs!!!! Tell the truth already! LOL LOL!

"Life is not measured by the number of Breaths we take, but by the moments that take our breath away."

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Offline Karen W.

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« Reply #857 on: 24/11/2007 12:49:55 »
Can't sleep. WOE IS ME.... achy all over tonight. shoulder hurts my back is aching low and on the sides having discomfort between my shoulder blades in the middle of my back..neck muscles are sore and I need a nice massage! Yikes.. my legs are acting up to boot! I might join you Neil.. I'll knock on my  5 neighbors doors!! Maybe they are doing something interesting...

well well well.... la da da da da.....oh poo!

"Life is not measured by the number of Breaths we take, but by the moments that take our breath away."

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Offline neilep

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« Reply #858 on: 25/11/2007 08:09:06 »
grrrrrrrrrrrrrrrrrrrrrrrrr !!!

none of this is me...







Men are the same as women, just inside out !

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Offline Karen W.

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« Reply #859 on: 25/11/2007 09:45:01 »
Oh I am sorry Sheepy! Wish sleep had found you! I tried to find some more that you could try... why not try any of these:











Or maybe wake up wifey and try lots of this:









I bet that would help! LOL LOL!
« Last Edit: 25/11/2007 09:56:37 by Karen W. »

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Offline Laura B

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« Reply #860 on: 26/11/2007 11:38:14 »
Hello

I hope you do not mind me adding to your forum, but I would be really interested in your views.  I am a Trainee Clinical Psychologist and currently doing my Doctorate on Chronic Insomnia at the University of Glasgow Sleep Laboratory.  This forum has been very useful for understanding the torment that many of you go through, and lack of appropriate treatment options.

Traditional treatments such as Cognitive Behaviour Therapy or medication, does not always appear to be beneficial for individuals with life long insomnia, yet clinicians currently manage people with insomnia in the same way, regardless of their presentation.

My current research is looking at alternative psychological treatments for insomnia.

I would be really interested in hearing from anyone to gather some more information. I hope that if you do contact me, you would find it beneficial to discuss your sleep related difficulties, and to receive feedback regarding the findings of my research.

Please e-mail me at the following address for further information:
sleepresearch@hotmail.co.uk

Thank you

Laura

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Offline Karen W.

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« Reply #861 on: 26/11/2007 12:02:18 »
Welcome Laura and thank you for picking this thread... You may find Neilep very interested also. As All of us will be in learning how your work progresses. Welcome again and I hope you can have a lot more success then the currant researchers.

"Life is not measured by the number of Breaths we take, but by the moments that take our breath away."

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Offline neilep

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« Reply #862 on: 26/11/2007 13:39:08 »
I have emailed Laura...hopefully she'll get in touch.
Men are the same as women, just inside out !

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Offline Karen W.

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« Reply #863 on: 26/11/2007 13:40:35 »
Good! YAYYYYYYYY! Maybe something she does will be a useful tool for you to sleep!

"Life is not measured by the number of Breaths we take, but by the moments that take our breath away."

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Offline Karen W.

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« Reply #864 on: 26/11/2007 15:00:50 »
I have been up all night. Am tired but have tried several times and no luck  this time.. I hope you all slept better then I did last night!

"Life is not measured by the number of Breaths we take, but by the moments that take our breath away."

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Offline neilep

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« Reply #865 on: 26/11/2007 15:13:57 »
I have been up all night. Am tired but have tried several times and no luck  this time.. I hope you all slept better then I did last night!


The sleep I had was forced with Nitrazepam sleep tab joy !!....and then I was awake at 6:30-7am...oh happy days !!


sorry you too are having a rough time.

I think I need a machine like yours.....except that my one repeatedly knocks me out with a hammer !!


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Offline Karen W.

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« Reply #866 on: 26/11/2007 15:39:54 »
Getting to sleep is the problem with the machine.. once asleep It helps I feel better even if all I got was three hours it feels like more. I think it keeps the breathing from waking you so much. Having your adenoids removed when you snore really badly helps my Johnny had a heck of a time with sleep because of the snoring.. they took his adenoids out when they did his ear and cut the bone back and put in the tubes. all in one step which was nice. He has been great since as far as sleeping. he sleeps very well now.. but it was horrid when he was little.

I bet a machine would help you.. once you got to sleep. I bet your snoring causes trouble!

I am glad you got some and I will get some too, thanks Neil.

No Hammers allowed!!!

"Life is not measured by the number of Breaths we take, but by the moments that take our breath away."

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Offline Laura B

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« Reply #867 on: 27/11/2007 16:19:10 »
Hello

Thank you for the warm welcome and for getting in touch.  I will be happy to post any significant findings on here.

Study will be running for the next six months if anyone else is interested in participating.  Please contact me, and I can provide you with additional information (see previous post).

sleepresearch@hotmail.co.uk

Laura

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Offline Karen W.

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« Reply #868 on: 27/11/2007 18:36:53 »
I would be interested but am not in the uk so I will wait for you to post some results as you go. Thanks  and glad you looked here I hope it helps some of these people!

"Life is not measured by the number of Breaths we take, but by the moments that take our breath away."

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Offline Misty

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« Reply #869 on: 28/11/2007 13:42:09 »
Hey Guys
Good news - for me at any rate.  Went to see Homeopath and was given some tablets - have been sleeping 4 - 5 hours a night since last Friday!  Don't even wake up with partner's snoring!

I am happy with this amount of sleep, although I felt sooooooo tired the first morning.  I hope it lasts................... :0)

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Offline Karen W.

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« Reply #870 on: 28/11/2007 19:12:26 »
Nice do you know what it is they gave you? I am glad it is working. Is it a hebal tablet or something you need to get with a prescription?
I hope it continues to help you and that there are no bad side effects!

"Life is not measured by the number of Breaths we take, but by the moments that take our breath away."

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Offline Misty

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« Reply #871 on: 12/12/2007 12:37:09 »
I've been given Coffea Cruda because it fits my symptoms (its not the same remedy for everyone).  It is natural - "like cures like" type of thing - in this case if you drink coffee it is likely to keep you awake, but taking a minute dose of Coffea Cruda induces sleep - that's my understanding of it.  I used to think it bunkum, but when you are desparate you will try anything and so far, this does seem to be working - even if it's psychological in reality!!  No side effects with homeopathy apparently, it either works or doesn't.

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Offline neilep

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« Reply #872 on: 12/12/2007 16:25:03 »
Crap Night...Crap Life !!
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Offline Karen W.

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« Reply #873 on: 12/12/2007 16:30:29 »
No sleeping yet..So sorry sheepy. Sending you all my sleepy zonked feelings!

"Life is not measured by the number of Breaths we take, but by the moments that take our breath away."

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Offline neilep

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« Reply #874 on: 12/12/2007 16:42:33 »
Thanks Karen,

But save them for yourself....nothing works for me and the whole friggin world don't care !!..(I mean the medical world)

*can ewe tell i'm in a baaaaaad mood ?*
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Offline neilep

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« Reply #875 on: 12/12/2007 16:43:25 »
Plus.....I have a crap cold !!...and my head hurts !!..I think it needs removing !!
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Offline Karen W.

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« Reply #876 on: 12/12/2007 16:46:52 »
Yes.. I am sorry I wish they would find something to help you!I care and am sorry you are feeling badly and not sleeping again. Wish you felt better. Sorry Neily.


OH what you doing trying to feel like me.. Wheres the chopping block! LOL Are your sinuses all blocked too?

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Offline Karen W.

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« Reply #877 on: 12/12/2007 16:52:52 »
Hey have you tried that new Zicam cold remedy, gel swab that you swab your nasel pasage with and it is supposed to really help put a kabosh on the cold and way shorten its life! My daughter said it works great!

Its  homeopathic..check it out!

"Life is not measured by the number of Breaths we take, but by the moments that take our breath away."

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Offline Karen W.

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« Reply #878 on: 12/12/2007 16:53:35 »
It won't help your cold, but have you had a flue shot yet!

"Life is not measured by the number of Breaths we take, but by the moments that take our breath away."

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Offline neilep

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« Reply #879 on: 12/12/2007 17:54:24 »
Hey have you tried that new Zicam cold remedy, gel swab that you swab your nasel pasage with and it is supposed to really help put a kabosh on the cold and way shorten its life! My daughter said it works great!

Its  homeopathic..check it out!

Zicam ?....it'll only work if a crate of it falls on my head !!

What's a kabosh ?....is it a wet shlippery kebab ?...or as ewe guys say kabob !!...lol...kabob !!

Men are the same as women, just inside out !

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Offline kdlynn

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« Reply #880 on: 12/12/2007 18:03:49 »
you guys have all different kinds of medicine there. it's basically just a mega shot of zinc. they have a spray, the nose gel stuff, a nose spray, some quick desolte tablets... look for something like that. may have a different name there.

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Offline neilep

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« Reply #881 on: 12/12/2007 18:10:23 »
Thanks Kadie.....

I reckon it's all the same just under different names....

..thanks for your help muchly wuchly !!

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Offline Karen W.

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« Reply #882 on: 12/12/2007 18:32:06 »
Hey have you tried that new Zicam cold remedy, gel swab that you swab your nasel pasage with and it is supposed to really help put a kabosh on the cold and way shorten its life! My daughter said it works great!

Its  homeopathic..check it out!

Zicam ?....it'll only work if a crate of it falls on my head !!

What's a kabosh ?....is it a wet shlippery kebab ?...or as ewe guys say kabob !!...lol...kabob !!



"Put the kabosh on it" means to, "stop it in its tracks"

Google the Zicam!

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Offline Karen W.

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« Reply #883 on: 13/12/2007 08:41:05 »
Plus.....I have a crap cold !!...and my head hurts !!..I think it needs removing !!

You Know I am experienced in removing heads.. So if you step forward and

tell weather you prefer having your neck rung or just the quick easy comfort

of the chopping block, then I would be glad to take care of business if only

you promise not to run around like a chicken with his head cut off.. and

most of all stay out of my little red wagon [;)] [;D]...LOL LOL! [:D] [:D]

 [;)]

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Offline neilep

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« Reply #884 on: 14/12/2007 05:42:48 »
crud !!....another night with NO sleep !!...I mean....what's the point in even trying ??
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Offline Karen W.

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« Reply #885 on: 14/12/2007 05:59:57 »
Sorry you are not sleeping! Wish you were. Me neither but it is early for me,  unlike you!

"Life is not measured by the number of Breaths we take, but by the moments that take our breath away."

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Offline Karen W.

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« Reply #886 on: 14/12/2007 06:00:37 »
Did you take your sleepy tabs?

"Life is not measured by the number of Breaths we take, but by the moments that take our breath away."

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Offline neilep

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« Reply #887 on: 14/12/2007 06:08:21 »
nope....i took sleepy tabs last night and don't like to take them when i don't need them...ie: when i don't have an early appointment or something !..............so...this will be another crud day in the bucket of my life !!

Men are the same as women, just inside out !

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Offline Karen W.

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« Reply #888 on: 14/12/2007 06:11:35 »
Well How can you make it a day full of smiles instead? Turn that frown upside down...

I do understand.. well maybe something really special will happen and make your day bright and happy!Maybe special sand fairies will come visit very soon!

"Life is not measured by the number of Breaths we take, but by the moments that take our breath away."

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Offline Carolyn

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« Reply #889 on: 18/12/2007 05:32:20 »
Ho Hum.......12:30, not even close to being able to sleep and don't think I will.  These leg cramps are driving me crazy!!!
Carolyn

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Offline Karen W.

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« Reply #890 on: 18/12/2007 10:54:56 »
I am sorry you are not sleeping . I hope you are now. Leg cramps? Is your potassium low or is it a med your taking they can cause some severe cramps.. Lipitor was killing me like that. As soon as he took me off from them, the leg cramps, stomach muscle cramps, back, etc, etc, even cramping across the front of my shins ceased and they have been gone since!


I crashed around 7:30 this evening and figured I better take it where I could, but now I am up and wide awake!

"Life is not measured by the number of Breaths we take, but by the moments that take our breath away."

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Offline Misty

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« Reply #891 on: 18/12/2007 12:53:03 »
Oh Guys
I do feel for you all.  Me too - back to not sleeping.  So much for homeopathy, maybe my original thoughts that is was bunkum are justified.  I even took sleeping tablets last night and apart from feeling calm and pleasantly lazy, sleep eluded me....... AGAIN!! GP has said he thinks it has gotten psychological - he maybe right, dunno, how do you  know?  Even if it is, whaddya do about it?

I totally empathise with you allxxxx

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Offline Karen W.

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« Reply #892 on: 18/12/2007 13:00:02 »
And we with you Misty. I am sorry you are not sleeping. I was hoping that something was going to work for you. I actually did sleep last night but had to go to sleep really early then was awake by 2:00 am..

I hope tomorrow is better for you.

"Life is not measured by the number of Breaths we take, but by the moments that take our breath away."

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Offline neilep

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« Reply #893 on: 18/12/2007 14:05:14 »
The last two years for me has seen a dramatic down turn in the level of sleep I get..(which had been an average of 2-3 hours a night anyway)........and it's bad quality sleep too.

I can be up for 48 hours.....take three sleeping tablets....take three hours to get to sleep and then only sleep for twenty minutes !!....my body then thinks it's had enough sleep as it then takes forever to get to sleep again.

I've had enough...!!..I have made  an appointment with my GP next Monday and I am going to kick up a fuss !!...cos it's killing me !!
Men are the same as women, just inside out !

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Offline Karen W.

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« Reply #894 on: 18/12/2007 14:22:20 »
I am so glad you are going to give them and ear full Kind sir! YAYYYYYYYY! Stick to it and make them fix it! Surely theres something. Are you still doing accupunture or is that done? I take it it has not helped at all!

"Life is not measured by the number of Breaths we take, but by the moments that take our breath away."

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Offline Carolyn

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« Reply #895 on: 18/12/2007 14:54:07 »
I am sorry you are not sleeping . I hope you are now. Leg cramps? Is your potassium low or is it a med your taking they can cause some severe cramps.. Lipitor was killing me like that. As soon as he took me off from them, the leg cramps, stomach muscle cramps, back, etc, etc, even cramping across the front of my shins ceased and they have been gone since!


I crashed around 7:30 this evening and figured I better take it where I could, but now I am up and wide awake!

Thanks Karen.  I finally made it to sleep around 3:30 am and had to be up at 6:30 to get the brat off to school.  Went back to sleep at 8 and just woke up.  I've had this pattern going on for about a week now.  I hate it cos when I do wake up it takes me a long time to function cos I'm all jittery and shaky.

Yes, I do have low potassium, and the cramping is getting worse.  Now I'm getting them in my inner thighs and they go all the way through and up to my lower back.  I've never had cramps like that.. They're horrible.
Carolyn

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Offline Carolyn

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« Reply #896 on: 18/12/2007 14:56:07 »
The last two years for me has seen a dramatic down turn in the level of sleep I get..(which had been an average of 2-3 hours a night anyway)........and it's bad quality sleep too.

I can be up for 48 hours.....take three sleeping tablets....take three hours to get to sleep and then only sleep for twenty minutes !!....my body then thinks it's had enough sleep as it then takes forever to get to sleep again.

I've had enough...!!..I have made  an appointment with my GP next Monday and I am going to kick up a fuss !!...cos it's killing me !!

I'm praying the your GP can do something to give you some relief.  I'm getting worried about my sheepy friend.
Carolyn

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Offline Karen W.

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« Reply #897 on: 18/12/2007 15:16:22 »
I am sorry you are not sleeping . I hope you are now. Leg cramps? Is your potassium low or is it a med your taking they can cause some severe cramps.. Lipitor was killing me like that. As soon as he took me off from them, the leg cramps, stomach muscle cramps, back, etc, etc, even cramping across the front of my shins ceased and they have been gone since!


I crashed around 7:30 this evening and figured I better take it where I could, but now I am up and wide awake!

Thanks Karen.  I finally made it to sleep around 3:30 am and had to be up at 6:30 to get the brat off to school.  Went back to sleep at 8 and just woke up.  I've had this pattern going on for about a week now.  I hate it cos when I do wake up it takes me a long time to function cos I'm all jittery and shaky.

Yes, I do have low potassium, and the cramping is getting worse.  Now I'm getting them in my inner thighs and they go all the way through and up to my lower back.  I've never had cramps like that.. They're horrible.

That is awful cramping it was happing for a couple months for me it was horrible I could not move any part of me without setting off a cramp.. walking was horrible.. the ones that start at your toes and go from there all the way into your shoulders and across your back all at once are totally disabling.. I spent hours crying.. It was awful.. I am so sorry its happening to you .. I was so relieved when they found the problem and stopped it because the meds were not helping!

"Life is not measured by the number of Breaths we take, but by the moments that take our breath away."

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« Reply #898 on: 18/12/2007 18:19:03 »
Thank Ewe Both (Karen & Carolyn)


Yes, the acupuncture is all done with....they think It would need at least 6 months (in my case) to see a result. Unfortunately, I just cannnot commit to this kind of schedule and (with my doubts)...I have decided to leave things be.

I believe I am existing on adrenalin alone at the moment...and I can't imagine it lasting so long....

.....I would never normally be so upset , as I have been living with an air of acceptance which has really helped me cope ........but......it gets to a point when ewe can just take so much.......
Men are the same as women, just inside out !

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Offline Karen W.

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« Reply #899 on: 19/12/2007 02:56:05 »
Your welcome...sorry theres nothing we can do..but listen. I wish the doctors would do something soon. Hugs....

"Life is not measured by the number of Breaths we take, but by the moments that take our breath away."