Could I have a Sexual Illness Syndrome?

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Offline girlwind

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Could I have a Sexual Illness Syndrome?
« Reply #50 on: 22/02/2009 23:17:40 »

I see sexual energy like extra money in the bank. If you spend it unwisely, you're "screwed." AND you pay for it
later. I'm glad you have the discipline  to manage it like you do. Me too. I can't afford the loss it entails when I'm
wasted from an orgasm.


Girlwind,

To be perfectly frank, your capacity to manage your sexuality ( here defined as being sexual, but not orgasmic) is what attracted me to your "recovery" from POIS  above all the others I've communicated with online about this subject. Your willingness to let go of what was hurting you and yet stay faithful to your relationship is commendable and noteworthy...Hell, it's just plain, old fashioned courage.

Steve D.

Thank you for the compliment. It's really not hard to make efforts to steer clear of pain and exhaustion. My 30
years with CFS has been the MAJOR challenge. POIS, in contrast, is a piece of cake.  (pardon the sugar)  [:)]

I feel VERY VERY blessed to have a (male) partner, who is cooperative with both my low energy and my POIS.
There are not a lot of men who would be content to reframe their definition of "intimacy" in the way that my
partner has been willing to. Most people, especially men, want their sex "plain and simple," without all the fuss
and complications of a health issue attached.


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Offline SteveD

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« Reply #51 on: 23/02/2009 07:05:53 »

I feel VERY VERY blessed to have a (male) partner, who is cooperative with both my low energy and my POIS.
There are not a lot of men who would be content to reframe their definition of "intimacy" in the way that my
partner has been willing to. Most people, especially men, want their sex "plain and simple," without all the fuss
and complications of a health issue attached.


I, too, am grateful for my partner's willingness to negotiate and be flexible around this difficult sexual issue, pre and post orgasmic.


Steve D.

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Offline SteveD

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« Reply #52 on: 24/02/2009 06:57:14 »
Spoke tonight and it went very well. The rest days were fraught with difficult emotional challenges, but the fruit was that , after I spoke tonight, my daughter asked if she could come back again and considered joining this spiritual fellowship.I wept with gratitude...

I beat the pre orgasmic disease to death the last three days and got this gift of the possibility of my daughter's health as a result.

Cool...


Steve D.

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Offline SteveD

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« Reply #53 on: 24/02/2009 07:28:35 »
Girlwind,

Called my nurse practitioner today to see what the hold up is with my Endo appointment, but got no reply...You can't push a rope

Steve D.

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Offline girlwind

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« Reply #54 on: 24/02/2009 16:02:28 »
Hey Steve--Just an FYI for you. I heard that zinc deficiency can cause a loss of smell. Martin from the POIS forum told me
about this. I thought it might be helpful for you, after reading the wheat grass forum.

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Offline SteveD

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« Reply #55 on: 25/02/2009 06:43:49 »
Hey Steve--Just an FYI for you. I heard that zinc deficiency can cause a loss of smell. Martin from the POIS forum told me
about this. I thought it might be helpful for you, after reading the wheat grass forum.

Thanks Girlwind,

Emailed Martin. He seems like a kind and gentle man.

Steve D.

PS...My Endo apparently will not see me as he believes that POIS is 'not and endocronological problem'
What are ya gonna do?



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Offline girlwind

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« Reply #56 on: 25/02/2009 16:42:12 »
Hey Steve--Just an FYI for you. I heard that zinc deficiency can cause a loss of smell. Martin from the POIS forum told me
about this. I thought it might be helpful for you, after reading the wheat grass forum.

Thanks Girlwind,

Emailed Martin. He seems like a kind and gentle man.

Steve D.

PS...My Endo apparently will not see me as he believes that POIS is 'not and endocronological problem'
What are ya gonna do?

Martin can be very helpful. He's a good researcher.

Sorry about the endo. But it doesn't surprise me. They are known as the "accountants" of medicine. Not exactly open-minded
when it comes to a patient's symptoms and subjective experience, and more focused on DATA and numbers. You might have
to just do all the tests through a regular GP or go to MyMedLab.com and order your own tests. Once you have some documen-
tation, the endo MIGHT be more open to you. If not, a good naturopath can help, as they are allowed to prescribe bio-identical
hormones.

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Offline SteveD

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« Reply #57 on: 26/02/2009 06:02:14 »
Girlwind,

Let me ask you a question.

At first , on a feelings level, I felt  hurt and kind of shut down by the Endo's refusal and a little shamed by his claim that POIS is a sexological problem, not an endochronological problem.  But I've been meditating on that a bit...

I know you love and care for yourself an a heroic manner and I respect that greatly, because I do that for myself as well. What caught my attention about your shares/posts was that you had the raw guts to stop being orgasmically sexual, because it was hurting you and, at the time , there appeared to be no other sure solution to this disease...and I respect that, because that 's what I do. I've also heard you say that POIS is only one of your health challenges and, if I remember correctly, not the main one. I, too, have many ,many health challenges, this only being the latest. After reading your personal posts for over two months I am now fully convinced of the wisdom and value of all the testing that is available and I am doing everything I can to avail myself of those results, and will continue to do so.

All that being said. Suppose that this Endo is right and that the whole POIS forum is way off the trail here. Suppose this is like alcohol for alcoholics or sugar for food addicts and is simply something that should be refrained from...as you and I are actually doing. Suppose that the endo testing is wise, useful, self-loving and important for our health, but that for us POIS sufferers, if we are to be truly well, that we must simply let this behavior go.

I love the truth, no matter how terrible it my be...and I was just wondering what you thought about all this.


All that being said, The Waldinger testing that he refers to at the end of his treatise. Can you tell me what those tests were designed for?


Respectfully and lovingly yours,

Your friend,

Steve D.

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Offline girlwind

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« Reply #58 on: 26/02/2009 16:23:38 »
Hi Steve--

I appreciate your sincerity and openness about your experiences. I thank you for being supportive of mine as well.
As for the Endo's refusal... I understand your hurt feelings, but really this is a very predictable thing. I have been
on SEVERAL other forums over the past year, looking to find answers for my multi-health issues, and I can tell you
there are literally THOUSANDS OF PEOPLE out there COMPLAINING ABOUT POOR HEALTH CARE and INEPT DOCTORS!
I can't begin to stress this enough. It's actually quite frightening. Just yesterday on the POIS forum, Limejuice posted
his experience with an endo that he had to be VERY aggressive with in order to be heard. Fortunately, he actually
got what he wanted! Which is, UN-fortunately, not the usual case.

What I've learned along the way with searching for answers to my hormonal issues is that if you have ANY kind of
imbalance in that area (thyroid, adrenal, gonadal, etc), you'd better be very diligent at doing your OWN reading and
research about it, getting your own blood work done in whatever way you can, and knowing as much as you possibly
can about your condition before you go to a doctor. Those people who've been the most informed on their conditions
have definitely fared the best at both FINDING a doctor who will take them seriously and GETTING the HELP that they
need from that doctor.

When you consider the staggering number of people who aren't getting their thyroid addressed, it's truly frightening.
The statistics state AT LEAST 13 MILLION CASES IN THE US OF UNDIAGNOSED HYPOTHYROID. Which puts you at more
than two times higher risk for having a heart attack!  WHY is this happening? All because most doctors (including the
endos) do not give people the most definitive tests to uncover a thyroid problem--the Free T3 and Free T4. They are
so cemented into the TSH being the great holy grail of tests that they remain glued in to their agenda, even when it's
not working to help their patients.  You can read more about this from the sites I have posted below.

http://www.stopthethyroidmadness.com/
http://www.thyroid-info.com/articles/mercola.htm
http://www.thyroid-info.com/

For me personally this adventure into learning about my hormonal imbalances has been a real eye opener, as I am
one of that 13 MILLION statistic above. For all I know my hypothyroid could be one of the MAIN reasons for my 30
years worth of CFS. That's 30 years of 17 doctors MISSING the diagnosis because none of them bothered to do the
right tests! As I proceed through with my treatment of the thyroid it is certainly becoming very apparent what a big
role its dysfunction has played in my ongoing exhaustion. And that is only ONE of the hormones that showed a de-
ficiency in my blood work. I am also low in cortisol, testosterone, DHEA, estrogen. Though for now I am staying
focused on just on the thyroid and adrenals. I don't want to overwhelm my body with too many changes at once.

As for the endo's conclusion that this POIS thing is a "sexological"problem, I personally don't buy it. But that does
not mean I intend to push for orgasm at all costs. I intend to avoid it as much as I can UNTIL I have all my hormones
coming back to an optimal range.  Sometimes I have noctural orgasms, which I can't control, but that's when I have
the opportunity to see how my body fares after such an "event." And I will say that there is definite improvement on
the post orgasm exhaustion. Yay! After all that work, it's good to know the effort has SOME payoff.

My angle on this, Steve, is that POIS is just the tip of the hormone iceberg of problems that I have. I'm going to leave
absolutely NO STONE UNTURNED to find the balance my hormones need, and probably have needed for three very
long decades. It's going to be a long ride I know, but at this point I feel settled in for the journey.


« Last Edit: 26/02/2009 16:58:24 by girlwind »

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Offline SteveD

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« Reply #59 on: 26/02/2009 17:51:58 »
I appreciate your sincerity and openness about your experiences. I thank you for being supportive of mine as well.
As for the endo's conclusion that this POIS thing is a "sexological"problem, I personally don't buy it. But that does
not mean I intend to push for orgasm at all costs. I intend to avoid it as much as I can UNTIL I have all my hormones
coming back to an optimal range. 

Thanks Girlwind.

>>>>I intend to avoid it as much as I can UNTIL I have all my hormones
coming back to an optimal range. 

That's what I'm doing. I am treating it as though it is sexological, but, I am willing to being open to a hormonal solution if there is one. What I will not do, and I see you not doing as well, is engage in self destructive sexual behavior. For me, doing that is sexually addictive behavior and is not endochronological... but rather, clearly, sexalogical.

I am going to call my nurse practioner again today and request she send Waldinger's treatise to the Endo. In order that I be more prepared, can you tell me exactly what the tests below mean that Waldinger used on his two patients ?


Laboratory investigation was normal, apart from features of primary tes-
ticular insufficiency; total testosterone 8 nmo1/1 (ref. 8.334 nmo1/1) , free
testosterone 30 pmo1/1 (ref.: 45108 pmo1/1), dehydroxytestosterone 0.62
nmo1/1 (ref: 0.903.70 nmo1/1), LH 5.7 U/1 (ref: 1.512.0), FSH 25.8 U/1
(ref: 2.08.0), prolactine 210 mU/1 (ref: 75275 mU/1).


Endocrine investigation revealed eugonadism: total testosterone 14.8 nmo1/
1 (ref 8.334.0 nmo1/1), SHBG 20 nmo1/1 (ref 2055 nmo1/1), LH 3.2 U/1
(ref: 1.512.0), FSH 4.6 U/1 (ref: 2.08.0), PSA 0.4 μg/1 (ref < 4.0 μg/1).


Thanks in advance,

Steve D.



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Offline girlwind

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« Reply #60 on: 26/02/2009 19:36:57 »

I am going to call my nurse practioner again today and request she send Waldinger's treatise to the Endo. In order that I be
more prepared, can you tell me exactly what the tests below mean that Waldinger used on his two patients ?

Laboratory investigation was normal, apart from features of primary testicular insufficiency;
total testosterone 8 nmo1/1 (ref: 8.334 nmo1/1),
free testosterone 30 pmo1/1 (ref: 45108 pmo1/1),
dehydroxytestosterone 0.62 nmo1/1 (ref: 0.903.70 nmo1/1),
LH 5.7 U/1 (ref: 1.512.0),
FSH 25.8 U/1 (ref: 2.08.0),
prolactine 210 mU/1 (ref: 75275 mU/1).

Endocrine investigation revealed eugonadism:
total testosterone 14.8 nmo1/ 1 (ref 8.334.0 nmo1/1),
SHBG 20 nmo1/1 (ref 2055 nmo1/1),
LH 3.2 U/1 (ref: 1.512.0),
FSH 4.6 U/1 (ref: 2.08.0),
PSA 0.4 μg/1 (ref < 4.0 μg/1).

Hi Steve--I think you will be much better off in the long run if you learn how to read the lab results yourself.
It's really pretty simple. The way it's listed here is in the order of: 1) Name of Test  2) Result 3) Reference Range.
I put it in columns to make it easier for you, and I will describe it for you below so you can get the gist of it.

These results mean that the first person was: a little low in total testosterone, very low in free testosterone
and dehydroxytestosterone, high in FSH, and more or less in THAT LAB'S NORMAL RANGE on the other tests.
Hence the conclusion was "primary testicular insufficiency."

The second person was on the low end in SHBG (Sex Hormone Binding Globulin), and in THAT LAB'S NORMAL
RANGE on other tests. That's probably why W. describes that case as "eugonadism."

Personally, I'm not that inspired by Waldinger. I think he had only a small limited number of patients that he
investigated. And he didn't show much interest in helping us at the POIS forum. Also, his test list doesn't in-
clude ANY thyroid tests (or ferritin, which is so important in thyroid functioning), or DHEA, or even cortisol.
WHY?  All the hormones work together and it seems that a thorough work-up would include more lab data.

Because my health problems are much more serious than POIS, I've moved on to studying the WHOLE PICTURE
of my entire hormone profile, and what that means to me in real life terms. The tests I've listed on this forum's
first page are very comprehensive and covered most of what I needed to know. I hope they'll be of help to you too.
« Last Edit: 26/02/2009 21:47:49 by girlwind »

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Offline SteveD

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« Reply #61 on: 27/02/2009 01:02:22 »
Because my health problems are much more serious than POIS, I've moved on to studying the WHOLE PICTURE
of my entire hormone profile, and what that means to me in real life terms. The tests I've listed on this forum's
first page are very comprehensive and covered most of what I needed to know. I hope they'll be of help to you too.

 Girlwind,

I needed to have some rationale for requesting these tests. Waldinger apparently did not think this was a sexological problem or he wouldn't have ordered the endocronological tests. I don't think that this Endo will address this problem. He'll only look at the vitamin D, B-12 and iron deficiencies...but I'll query him.

Thanks,

Steve D.



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Offline girlwind

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« Reply #62 on: 27/02/2009 14:19:33 »
Girlwind,

I needed to have some rationale for requesting these tests. Waldinger apparently did not think this was a sexological problem or he wouldn't
have ordered the endocronological tests. I don't think that this Endo will address this problem. He'll only look at the vitamin D, B-12 and iron deficiencies...but I'll query him.

Thanks,
Steve D.

I understand. However, you should know that you DO NOT NEED AN M.D. to order blood tests. Any acupuncturist,
or even a chiropractor, can do that for you. And now you can even order them yourself ay MyMedLab.com  Once you
have the RESULTS in your hands, with PROOF of any imbalances, then it's easier to get a doctor (maybe even an endo)
to pay attention to your issue. I know it's backasswards, but that is the unfortunate reality of the medical world.

"Faith is an island in the setting sun, but PROOF is the bottom line for everyone." (Paul Simon)   [:)]
« Last Edit: 27/02/2009 14:23:44 by girlwind »

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Offline SteveD

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« Reply #63 on: 27/02/2009 14:46:23 »
Check in, 2/26/09:

My partner and I have been intentionally abstemious for five days from arousal behaviors. Last night, we engaged in arousal behaviors, but no genital contact. I felt kind of blurry early in the day, but that may be attributable to a strong antibiotic and cough medicine I took last night. The pre-orgasmic effects of sex are still very real for me.
  However , having dialed down the genital contact to zero has made me extremely present the last six days and I have been on fire in my life as a consequence. My teaching has improved, my emotional availability for my daughter is dramatically increased and my musical practicing has increased. I've done two public speaking engagements , my food is dramatically better (this may be the biggest change). I cleaned out a closet and several cabinets, been more powerfully available for spiritual mentorship, gardened more, took my first swim lesson in 45 years and even spent some time watching Youtube...just for fun.

 I am grateful and committed to my partner for her unselfish willingness to participate in this experiment to heal pre orgasmic sexual illness.


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Offline SteveD

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« Reply #64 on: 27/02/2009 15:07:30 »
I think you will be much better off in the long run if you learn how to read the lab results yourself.  However, you should know that you DO NOT NEED AN M.D. to order blood tests.  I know it's backasswards, but that is the unfortunate reality of the medical world.

Girlwind,

I am currently scheduled for:
CBC,
Comprehensive Metabolic Panel,
Iron Panel,
Lipid Panel,
Vitamin B-12
T4, Free,
TSH Ultrasensitive,
T3 Total,
Testosterone, Free and Total
Vitamin D level

Part of loving myself comes in the form of taking care of myself physically , including good medical care. Another part of loving myself is taking care of myself financially. The above tests are all free for me. I'll spend some time researching what other tests mean and what might be helpful. The MyMedLab.com sight was very enlightening.

Thanks,

Steve D.

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Offline girlwind

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« Reply #65 on: 27/02/2009 15:36:35 »
I am currently scheduled for:
CBC,
Comprehensive Metabolic Panel,
Iron Panel,
Lipid Panel,
Vitamin B-12
T4, Free,
TSH Ultrasensitive,
T3 Total,
Testosterone, Free and Total
Vitamin D level

Part of loving myself comes in the form of taking care of myself physically , including good medical care. Another part of loving myself is taking care of myself financially. The above tests are all free for me. I'll spend some time researching what other tests mean and what might be helpful. The MyMedLab.com sight was very enlightening.

Most of those tests will be pretty helpful to determine: any basic nutritional deficiencies, issues with iron absorption, fat
metabolism/cholesterol, and glaring immunity issues. The CMP will also reveal some things about basic liver and kidney
functioning.

Regarding the thyroid tests: If you can replace the T3 Total with a Free T3 that is the MUCH MORE DEFINITIVE test. It
actually tells you how much thyroid hormone is actively circulating in the blood. As I recall, your previous tests indicated a
low in one of the thyroid hormones, so if it was me I would want an update on that. Also, a TPO (for thyroid antibodies)
would be helpful. And the Reverse T3 is very revealing for those of us with adrenal issues (mine was WAY OFF.)

The Free T3 was THE DEFINITIVE TEST IN MY CASE. Had I not done it, I would have NOT KNOWN that I have a problem
with my thyroid. If only someone had done that test 30 years ago, it could have spared me many years in hell.

You can read more about the importance of getting the most useful thyroid tests in these articles.

http://www.mercola.com/article/hypothyroid/diagnosis_comp.htm
http://www.thyroid-info.com/articles/mercola.htm
« Last Edit: 27/02/2009 15:52:53 by girlwind »

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Offline girlwind

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« Reply #66 on: 27/02/2009 16:47:40 »
Steve--

I just remembered that you had some issues with low iron...? Is that correct.  If so, you want to be sure to have
FERRITIN test. Hopefully that is included in your iron panel.

With TOO LOW FERRITIN your body cannot utilize the T3 (thyroid hormone). It would not have enough red
blood cells to carry thyroid hormone to the tissues.

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Offline SteveD

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« Reply #67 on: 27/02/2009 20:25:43 »
Girlwind

Did you learn anything personally  from your LSH and FSH?

Steve

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Offline girlwind

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« Reply #68 on: 27/02/2009 21:44:19 »
Girlwind

Did you learn anything personally  from your LSH and FSH?

Unfortunately I did those tests at the WRONG time of month, so they were inconclusive. (It would have been a good
idea if the doctor had specified this to me BEFORE I wasted my money on them!)


HERE'S WHAT I READ ABOUT THE LH and FSH TEST online:

"When is the LH TEST ordered?
In women and men, LH (along with FSH) is ordered as part of the workup of infertility and pituitary or gonadal disorders.

The test may be ordered along with an FSH test if a women is having irregular menstrual periods to help determine if she has reached
menopause. LH and FSH may be ordered when a boy or girl does not appear to be entering puberty at an appropriate age (either too
late or too soon). Signs of puberty may include: breast enlargement in females, growth of pubic hair, genitalia growth in males begin-
ning of menstruation in females.

If any or some of these signs appear at a younger than average age or are delayed beyond the expected age range for puberty, it may
be an indication of a more serious problem involving the hypothalamus, pituitary, gonads (ovaries or testes), or other systems. The
measurement of LH and FSH may differentiate between benign symptoms and true disease. Once it is established that symptoms are a
result of true disease, further testing can be done to discern the underlying cause."

"How is FSH TEST used?
FSH is often used in conjunction with other tests (LH, testosterone, estradiol, and progesterone) in the workup of infertility in both
men and women. FSH levels are used to help determine the reason a man has a low sperm count. FSH levels are also useful in the
investigation of menstrual irregularities and to aid in the diagnosis of pituitary disorders or diseases involving the ovaries or testes.
In children, FSH and LH are used to diagnose delayed or precocious (early) puberty."


« Last Edit: 27/02/2009 21:53:03 by girlwind »

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Offline SteveD

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« Reply #69 on: 28/02/2009 03:25:43 »
Girlwind
Did you learn anything personally  from your LSH and FSH?
Unfortunately I did those tests at the WRONG time of month, so they were inconclusive. (It would have been a good
idea if the doctor had specified this to me BEFORE I wasted my money on them!)


Girlwind,

Sorry that happened to you...LH and FSH, along with total testosterone, are the only tests common to Waldinger's two original patients. My NP has already ordered Testosterone, Free and Total. I thought, using this document, I might  be able to persuade them to do LH and FSH. However , I got a call from her today and she says that Waldinger's paper is a 'case study, not a recognized syndrome' and that it is 'old, 6 years old', and that the Endo will not see me for that purpose, although I am free to ask him about it when I see him...and I will.

Steve D.

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Offline girlwind

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« Reply #70 on: 28/02/2009 17:43:31 »
Girlwind,

Sorry that happened to you...LH and FSH, along with total testosterone, are the only tests common to Waldinger's two original patients. My NP
has already ordered Testosterone, Free and Total. I thought, using this document, I might  be able to persuade them to do LH and FSH. However,
I got a call from her today and she says that Waldinger's paper is a 'case study, not a recognized syndrome' and that it is 'old, 6 years old', and
that the Endo will not see me for that purpose, although I am free to ask him about it when I see him...and I will.

Steve D.

Endo Schmendo, no comprendo.   [:)] [:)] [:)]   Doctors can be so predicatable.



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Offline SteveD

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« Reply #71 on: 01/03/2009 10:18:02 »
Girlwind,

Called my NP and requested the LH and FSH testing... We'll see.

My partner and I just finished eight days of no genital contact with five of those being without any arousal behaviors...It was challenging for me because I am strongly attracted to her, but it was galvanizing and powerfully productive for me in every other way. I'm not naturally inclined to strive for balance, but periods of chastity interspersed with periods of active, non-orgasmic sexuality is a moderate compromise which, for me, reduces the negative effects of Pre-orgasmic illness syndrome. Thank goodness the post orgasmic stuff is now a dead issue, for me.

Hope you are well and prospering.

Steve D.

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Offline girlwind

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« Reply #72 on: 01/03/2009 19:28:16 »
Hi Steve--

Thanks for posting your progress report, your exercise in self-discipline and self-care. I'm happy for the
success that your efforts have gleaned you.

I just finished my first month of HC treatments, and am having some slow and steady results with perking up my
adrenals. At this point I am much more focused on CFS (my primary health issue) than I am on POIS or the sexual
illness syndrome, so I probably won't be posting much more. I have found some other forums that seem to suit
my needs a little better, and provide me with the support I was looking for as I proceed forward with my current
adrenal and thyroid treatment regimens. I'll check in on occasion to see how you are doing here.  My best to you. 

~~Girlwind

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Offline SteveD

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« Reply #73 on: 01/03/2009 20:52:26 »
I'll check in on occasion to see how you are doing here.  My best to you. 
~~Girlwind

Be well my friend,

Steve D.

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Offline girlwind

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« Reply #74 on: 09/03/2009 17:59:25 »
For the past couple months I have been doing extensive reading on adrenal and thyroid related health issues.
I am in the process of treating my own adrenal and thyroid deficiencies and have been given a lot of good info
from people on other forums, which concurs with what I learned from Michael8028.  Here are  some of the more
informed articles I've read. I hope you find some of them as useful as I did. I will post this info on the POIS forum
as well.


ABOUT ADRENAL FATIGUE
http://www.adrenalfatigue.org/whatis.php

ADRENAL SUPPORT (Copied from THE GREAT THYROID SCANDAL and HOW TO SURVIVE IT
by Dr. Barry Durrant-Peatfield)
http://featherstone.bravehost.com/thyroid/peatfieldadrenal.html

METABOLIC THERAPY: Adrenal Thyroid Correction
http://www.drrind.com/metabolic.asp

Pathways of adrenal steroid biosynthesis in adrenal cortex
http://www.umanitoba.ca/dnalab/med/adr3.htm

UNDERSTANDING ADRENAL FUNCTION
http://articles.mercola.com/sites/articles/archive/2000/08/27/adrenals.aspx

TESTS FOR ADRENALS
http://www.stopthethyroidmadness.com/adrenal-info/

The Adrenal Stress Index Test
http://www.chronicfatigue.org/ASI.html

ADRENAL INSUFFICIENCY UNDERDIAGNOSED INTHE CRITICALLY ILL
http://www.pulmonaryreviews.com/jan03/pr_jan03_adrenal.html

Pathways of adrenal steroid biosynthesis in adrenal cortex
http://www.umanitoba.ca/dnalab/med/adr3.htm


David Derry, MD, Ph.D on RETHINKING THE TSH TEST
http://www.thyroid-info.com/articles/david-derry.htm

Stop the Thyroid Madness.com
http://www.stopthethyroidmadness.com/

Thyroid hormones as neurotransmitters.
http://www.ncbi.nlm.nih.gov/pubmed/9001201

Molecule Derived from Thyroid Hormone May Be New Neurotransmitter
http://pub.ucsf.edu/today/news.php?news_id=200405175

Thyroid hormones, serotonin and mood: of synergy and significance in the adult brain
http://www.nature.com/mp/journal/v7/n2/abs/4000963a.html

The Depression Thyroid Disease Connection Explored
http://www.thyroid-info.com/articles/cohendepression.htm


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Offline underwater

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« Reply #75 on: 11/03/2009 03:34:12 »
Steve---
Glad to see you are doing well. As Girlwind has mentioned, POIS is also just "The Tip of the Iceberg" for me also. My major concern is an anxiety condition that has not lifted in 22 months now. Sometimes I get quite depressed and dizzy. Orgasmic sexuality is my LEAST concern. Today I had a fabulous day as I was able to meditate far out on a jetty in the ocean for 2 hours. A squirrel was sunbathing next to me.
I have taken a break from swimming, as I need to rest my Trapezius muscles that may be causing some of my anxiety. My major goal is simple: Peace of Mind
As you noticed, I have not commented on the effects of arousal with respects to orgasmic sexuality. But I do know that for me, arousal is the cause of considerable inflammation and discomfort, even without ejaculation. This is because my nervous system does not specifically differentiate between certain sexual stimulation. Simply put, high levels of stimulation cause intense, disabling responses, and low levels cause low levels of uncomfortable responses. I'm trying to stay away from all stimulation now and just get back to a more tranquil existence. HELLO GIRLWIND IF YOU READ THIS

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Offline SteveD

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« Reply #76 on: 11/03/2009 05:33:09 »
Steve---
Glad to see you are doing well.  Orgasmic sexuality is my LEAST concern. As you noticed, I have not commented on the effects of arousal with respects to orgasmic sexuality. But I do know that for me, arousal is the cause of considerable inflammation and discomfort, even without ejaculation. This is because my nervous system does not specifically differentiate between certain sexual stimulation.  My major goal is simple: Peace of Mind

Underwater,

So glad to hear from you. Orgasmic sexuality  does not concern me in the least,either . It will be 22 months on Thursday since I was orgasmically sexual. However, my nervous system can distinguish between different phases of sexuality in increasing levels of intensity, very subtly and very clearly. The more intense the sexual activity, the more dopamine is produced in my brain, the more hungover I feel...Very, very simple. As for my major goal. It is as yours is...peace of mind. For me, I find it one way only...surrendering sexuality, one day at a time.

Currently, my partner and I have genital contact, without orgasm, of course, for two days and then have a 'rest day' That is our pattern. So, I have peace typically every third day.Today is anomalous for us in that it is the fourth rest day in a row, by choice.

Once again, So glad to hear from you.

Steve D.
 

PS>>>I have taken a break from swimming.
I've actually just started taking swimming lessons for the first time in 45 years and am enjoying it!

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Offline SteveD

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« Reply #77 on: 11/03/2009 05:39:24 »
Girlwind,

Thank you for the links. I am grateful and am reading through them all, one at a time.

Hope you are healthy and thriving. I am able to leave some of the health issues behind, a little bit at a time, and just begin to do more 'normal' things like work on my career and make money. I couldn't do that, wisely, without dealing first with POIS, anemia and food ...but, I am reasonably happy with all those issues now. Whew!

Thanks for being a part of that, for me.

Your friend,

Steve D.

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Offline SteveD

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« Reply #78 on: 13/03/2009 14:10:39 »
Six days of rest days in a row!

It's been challenging and very productive for me...

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Offline girlwind

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« Reply #79 on: 14/03/2009 03:27:58 »
Girlwind,

Thank you for the links. I am grateful and am reading through them all, one at a time.

Hope you are healthy and thriving. I am able to leave some of the health issues behind, a little bit at a time, and just begin to do more 'normal' things like work on my career and make money. I couldn't do that, wisely, without dealing first with POIS, anemia and food ...but, I am reasonably happy with all those issues now. Whew!

Thanks for being a part of that, for me.

Your friend,

Steve D.

Hi Steve--

I have been very involved in learning the art of balancing hormones, particularly cortisol. It's a LOT more complex
than I thought and requires a serious commitment to daily monitoring. I take my temperature 3 times a day and
graph it. I take my blood pressure at least once a day--sitting, then standing. I have to pay very close attention
to what I'm eating--high protein, low carbs, and plenty of Emergen-C, to keep potassium and sodium at optimal
levels, and to keep my blood sugar stable. I have to be very careful about how much I exercise, as my adrenals heal.

I have gotten a lot of good info on the topic of adrenals and thyroid, much of which I've passed along to you here.

I have not yet even begun to treat my thyroid yet, but am ever so s-l-o-w-l-y working up to that point. As I have
learned from other thyroid patients on other forums, the adrenals need to be at an optimal level BEFORE you begin
thyroid hormone, or it will not be tolerated. With that there is a risk of side  effects like palpitations and anxiety,
which I prefer to pass on!

The POIS is very secondary to me now. The big issue is my long term CFS, which along with POIS, are just symptoms
of the hormones being in various states of deficiency. I'm so glad to be on the right track--finally. It only took 31
years.

Good luck with all your "normal" things. I will check in some other time to see what's up. 

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Offline girlwind

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« Reply #80 on: 15/03/2009 16:07:28 »
Steve---
Glad to see you are doing well. As Girlwind has mentioned, POIS is also just "The Tip of the Iceberg" for me also. My major concern is an anxiety condition that has not lifted in 22 months now. Sometimes I get quite depressed and dizzy. Orgasmic sexuality is my LEAST concern. Today I had a fabulous day as I was able to meditate far out on a jetty in the ocean for 2 hours. A squirrel was sunbathing next to me.

HELLO GIRLWIND IF YOU READ THIS

Hello Underwater-- Some of your symptoms remind me of mine. You might want to read up on the
adrenals and get your cortisol levels tested. I posted a lot of good articles here and on the POIS site.
Good luck whatever you do.  ~GW

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Offline SteveD

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« Reply #81 on: 15/03/2009 22:37:39 »
Eight days of perfect chastity...and all the power, clarity, intuition, resilience and vision that accompanies it.

Ended it last night. Fun, but costly. No orgasm, of course.

It's all 'bout choices... 

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Offline SteveD

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« Reply #82 on: 19/03/2009 08:57:51 »
My partner and I have agreed on a 10 day sexual abstinence period starting yesterday, Wednesday March 18.
I have some career opportunites coming up that I want to be present for and I don't want SIS (sexual illness syndrome) to interfere with my being at the very most optimum I can be.
I am grateful to my partner for her graciousness, unselfishness and willingness.

Steve D.

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Offline gement

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« Reply #83 on: 15/08/2009 19:08:06 »

I have had POIS for at least 20 years. My psychiatrist told me that these symptoms although rare, has been found among patients who suffer with major depressive disorder (neuro transmitter imbalance). The anti-depressant medications have never helped relieve these specific symptoms, and Ive been on all of them. Since some of these symptom are similar to those of an allergic reaction, I have experimented, by treating the POIS with antihistamine. There is one that helps relieve the intensity of the symtoms by at least 85%, it is called Loratadine. It is an over the counter antihistamine allergy medication(CVS store brand, less expensive) that will last for 24 hours. Note: Should be Loratadine 10mg. I will take 1 hour before or short time after orgasm. Since my symptoms last about 3 days, I will take a 2nd dose after 21 hours, then a 3rd dose after another 21 hours. I will feel 85% symptom free during those 3 days and until next orgasm. I hope that sharing this information can be helpful.

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Offline SteveD

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« Reply #84 on: 25/06/2010 06:40:56 »
I have not posted for 18 months. 9 months ago I completely stopped being sexual with my partner and all signs of Pre-orgasmic illness (25% of the problem) and Post Orgasmic Illness (75% of the problem) disappeared. There has been no pitiful and incomprehensible demoralization, no depression, no fatigue, no confusion...nothing, absolutely no signs. This tells me that this problem is, for this particular class of individual (Me), only solved with complete sexual abstinence...exactly like that of an alcoholic.

What baffled me so, 18 months ago, on the POIS board was the complete unwillingness to consider chronic masturbation as as addiction, an illness that requires specific 12 step treatment. I've seen what sex addicts in their disease are like with their white rage and control and want no part of that type of abuse I experienced 18 months ago.

But, the truth remains the truth, regardless of control, rage and abuse.

I have not masturbated for 20 years this Saturday June 26th 2010...and that helped me greatly. It taught me that if I could not stop doing something that was hurting me I needed to get help, and I had the humility to do that, 20 years ago.

It did not solve the problem completely. Three years ago I gave up being orgasmic and like the POIS BOYS, it helped enormously.

Still the problem was not solved. When I stopped being sexual completely the problem disappeared.

All the pills, powders, vitamins, teas, patches, shots and therapies avoid the only important question: If you're doing something that hurts you, why don't you stop?

There are four sexual addiction programs in the world that can help you. If you have an individual, who you are letting control you, which stops you from getting the help you need, you may need to go to CODA first, to get away from him.

Live free...it's your right

Steve D.
 

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Offline demografx

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« Reply #85 on: 25/06/2010 18:13:14 »

What baffled me so, 18 months ago, on the POIS board was the complete unwillingness to consider chronic masturbation as as addiction
 

You have absolutely no evidence of POIS as a chronic masturbation phenomenon.

Many sufferers are loving and happily married men and even for procreation purposes still suffer the agonizing and devastating aftereffects of POIS.

Please check your facts more carefully. Thank you.

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Offline demografx

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« Reply #86 on: 25/06/2010 18:29:57 »

Three years ago I gave up being orgasmic and like the POIS BOYS, it helped enormously.

Still the problem was not solved. When I stopped being sexual completely the problem disappeared.

All the pills, powders, vitamins, teas, patches, shots and therapies avoid the only important question: If you're doing something that hurts you, why don't you stop?
 

The "POIS BOYS" have also discovered that being a eunuch doesn't solve the problem either.

We are sexual beings, given nature's gift of orgasm.

Several of us have found wonderful solutions with "patches, pills, etc.", and on the verge of finding even better ones.

Not to hide a problem, but to SOLVE a neurochemical/physiological problem, i.e., hormal imbalance, neurotransmitter deficiency and the like.

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Offline pois

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« Reply #87 on: 01/12/2011 06:44:39 »
I have this...

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Offline badgerstripe

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Re: Could I have a Sexual Illness Syndrome?
« Reply #88 on: 19/01/2012 14:44:44 »

Three years ago I gave up being orgasmic and like the POIS BOYS, it helped enormously.

Still the problem was not solved. When I stopped being sexual completely the problem disappeared.

All the pills, powders, vitamins, teas, patches, shots and therapies avoid the only important question: If you're doing something that hurts you, why don't you stop?
 

The "POIS BOYS" have also discovered that being a eunuch doesn't solve the problem either.

We are sexual beings, given nature's gift of orgasm.

Several of us have found wonderful solutions with "patches, pills, etc.", and on the verge of finding even better ones.

Not to hide a problem, but to SOLVE a neurochemical/physiological problem, i.e., hormal imbalance, neurotransmitter deficiency and the like.


I believe sexuality and orgasm to be nature's (god's?) gift and don't intend to give up sex. POIS and other issues has slowed down the regularity of sex for me.
I have successfully been down the sexual addiction recovery route too and it has helped in some ways but not with POIS. The aim there was to have an emotionally healthy sexual life which i believe i have. I have wondered if it is related to my POIS at times, perhaps from overindulging in 'O' frequency in my teens and early twenties (O's once a day on average). The condition may have been pre-existing and completely un-related to this however. The etiology seems complex and may be different for different people.

Sex addiction, like CFS, may be related to POIS for some people, maybe not.

The physical reasons for this really need researching and I have just contacted Dr Goldmeier in London (local to me) asking him for an appointment.

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Offline mrraba

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« Reply #89 on: 20/01/2012 03:09:32 »

Three years ago I gave up being orgasmic and like the POIS BOYS, it helped enormously.

Still the problem was not solved. When I stopped being sexual completely the problem disappeared.

All the pills, powders, vitamins, teas, patches, shots and therapies avoid the only important question: If you're doing something that hurts you, why don't you stop?
 

The "POIS BOYS" have also discovered that being a eunuch doesn't solve the problem either.

We are sexual beings, given nature's gift of orgasm.

Several of us have found wonderful solutions with "patches, pills, etc.", and on the verge of finding even better ones.

Not to hide a problem, but to SOLVE a neurochemical/physiological problem, i.e., hormal imbalance, neurotransmitter deficiency and the like.


I believe sexuality and orgasm to be nature's (god's?) gift and don't intend to give up sex. POIS and other issues has slowed down the regularity of sex for me.
I have successfully been down the sexual addiction recovery route too and it has helped in some ways but not with POIS. The aim there was to have an emotionally healthy sexual life which i believe i have. I have wondered if it is related to my POIS at times, perhaps from overindulging in 'O' frequency in my teens and early twenties (O's once a day on average). The condition may have been pre-existing and completely un-related to this however. The etiology seems complex and may be different for different people.

Sex addiction, like CFS, may be related to POIS for some people, maybe not.

The physical reasons for this really need researching and I have just contacted Dr Goldmeier in London (local to me) asking him for an appointment.

Sex can be a very beatiful and spiritually uplifting thing.   I respect the fact you found a way to deal with the situation.  Part of the acceptance philosophy is to accept that something has worked for others.

Abstenance does not work for me.  I get the nightly emission if I abstain for long, period.  So why pay for not eating the beautiful fruit just if one had? 

Also histamines are at play here.  With longer abstenance ysex drive increases, specially with enviornmental allergens such as spring, mold, etc.   Then it becomes a inflamation issue of great proportions.  If I do not clear my system I feel progressively weaker.  So different things work for different people.

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Offline pois

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Re: Could I have a Sexual Illness Syndrome?
« Reply #90 on: 02/09/2012 11:12:03 »

Three years ago I gave up being orgasmic and like the POIS BOYS, it helped enormously.

Still the problem was not solved. When I stopped being sexual completely the problem disappeared.

All the pills, powders, vitamins, teas, patches, shots and therapies avoid the only important question: If you're doing something that hurts you, why don't you stop?
 

The "POIS BOYS" have also discovered that being a eunuch doesn't solve the problem either.

We are sexual beings, given nature's gift of orgasm.

Several of us have found wonderful solutions with "patches, pills, etc.", and on the verge of finding even better ones.

Not to hide a problem, but to SOLVE a neurochemical/physiological problem, i.e., hormal imbalance, neurotransmitter deficiency and the like.


I believe sexuality and orgasm to be nature's (god's?) gift and don't intend to give up sex. POIS and other issues has slowed down the regularity of sex for me.
I have successfully been down the sexual addiction recovery route too and it has helped in some ways but not with POIS. The aim there was to have an emotionally healthy sexual life which i believe i have. I have wondered if it is related to my POIS at times, perhaps from overindulging in 'O' frequency in my teens and early twenties (O's once a day on average). The condition may have been pre-existing and completely un-related to this however. The etiology seems complex and may be different for different people.

Sex addiction, like CFS, may be related to POIS for some people, maybe not.

The physical reasons for this really need researching and I have just contacted Dr Goldmeier in London (local to me) asking him for an appointment.

Sex can be a very beatiful and spiritually uplifting thing.   I respect the fact you found a way to deal with the situation.  Part of the acceptance philosophy is to accept that something has worked for others.

Abstenance does not work for me.  I get the nightly emission if I abstain for long, period.  So why pay for not eating the beautiful fruit just if one had? 

Also histamines are at play here.  With longer abstenance ysex drive increases, specially with enviornmental allergens such as spring, mold, etc.   Then it becomes a inflamation issue of great proportions.  If I do not clear my system I feel progressively weaker.  So different things work for different people.

http://www.thenakedscientists.com/forum/Smileys/default/smiley.gif
http://www.thenakedscientists.com/forum/Smileys/default/cool.gif






Sex is a beautiful thing. Agreed...God was having a fine day at the office when he/she invented sex...LOL!!!

Wine is a beautiful thing , too...for most people. Some people are alcoholics though and wine is very bad for them.
Sugar is very fun and sweet, but some people are food addicts and they are allergic to it. They feel 'pitifully and incomprehensibly demoralized" whenever they eat sugar.

  The addiction model, is infinitely more successful, for me, than the medication model that the POIS boys use.
  I am grateful to them for their interest in Waldinger's discoveries, but no one is successful at treatment over there. I care about successfully solving this problem. I do NOT care if it is the way that I want it to be solved. That is simply selfish, stupid and immature.
  What I do know is that complete abstinence solves the problem, so the question, for me, is how to accept this solution and learn to live happily and contentedly. I have learned to do that the last three years...and I have not had one trace of the phenomenally devastating effects of POIS that ruined my life for four decades.
   ;)Once again, my hat is off to the courage and strength of the POIS boys stick-to-it-ive-ness.
Be careful with them though. Despite their claim to scientific objectivity, they become enraged when you don't agree with them...