What is congenital fibre-type dispropportion? Any new research?

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Offline Kathleen

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My 15 year old daughter was born with this disease.  She has been on a ventilator, must use a computer to communicate, is tube fed.  Her muscles are sooo weak.  I wonder if there is any new researc lately about this disease.
« Last Edit: 23/06/2008 09:22:47 by BenV »