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Andrew K Fletcher:
Back in 1995, The theory predicted MS was likely to respond to Inclined Bed Therapy based on the feedback from a simple questionnaire asking about environmental factors, including where a person was living when first diagnosed. Low laying river valley areas and coastal areas, or places where mist hung over long after other areas where cleared revealed a surprising correlation with humidity.  Localised humidity was also included in the questionnaire to reveal if a problem with in house damp, mould were a problem for people with MS. Things like taking a hot shower could trigger a relapse. Drying washing indoors on clotheshorse or worse radiators was also surprisingly commonplace. Having a kitchen or bathroom upstairs for instance and sleeping accommodation downstairs where heavy water laden air could move down stairs to the bedroom was another worthy consideration and poor ventilation together with double glazing added to humidity. Hence a dehumidifier in such places was recommended together with an inclined bed. Pauline, the lady mentioned previously who regained her sight confirmed this connection with humidity by noting a dropped foot problem would be gone in the morning when a dehumidifier was used and back again on a morning when it was not used and the weather was damp or humid.

Alun, who has provided us with excellent pictures showing how his varicose veins have and are still improving using IBT may not seem relevant to people with multiple sclerosis, without reading carefully the study in the PDF file from my previous post.

Within that file you will see a correlation with a swollen twisted / kinked vein next to the spine shown clearly in the pictures provided in the file.

I still maintain that MS is a circulation problem and now we for the first time have evidence that corroborates this theory and more to the point shows why so many people with multiple sclerosis found huge benefits from sleeping on a slope rather than sleeping flat.

Copy and print both the pdf file and the following file and read carefully. Here you will see the true picture of why sleeping flat is not only causing varicose veins to swell and oedema to form but causing the veins inside the body to swell and twist. Change the pressures inside the veins and you have a good chance of substantial recovery from MS and many other neurological and non-neurological medical conditions.
I have been saying this for far too long now. It is about time something was done to make this available to people who need to regain a decent quality of life.

--- Quote from: Andrew K Fletcher on 19/01/2009 10:12:12 ---http://jnnp.bmj.com/cgi/rapidpdf/jnnp.2008.157164v1.pdf
Chronic cerebrospinal venous insufficiency in patients with multiple sclerosis
Paolo Zamboni 1*, Roberto Galeotti 1, Erica Menegatti 1, Anna M Malagoni 1, Giovanna Tacconi 1, Sergio Dall'ara 1, Ilaria Bartolomei 2 and Fabrizio Salvi 2

1 Vascular Diseases Center, University of Ferrara, Italy
2 Neurology, Bellaria Hospital, Bologna, Italy

Accepted 10 November 2008

*     Abstract

Background: The extracranial venous outflow routes in clinically defined multiple sclerosis (CDMS) have never been investigated.

Methods: Sixty-five patients affected by CDMS, and 235 controls composed, respectively, of healthy subjects, healthy subjects older than CDMS patients, patients affected by other neurological diseases, and older controls not affected by neurological diseases but scheduled for venography (HAV-C), blindly underwent a combined transcranial and extracranial Color-Doppler high-resolution examination (TCCS-ECD) aimed at detecting at least two of five parameters of anomalous venous outflow. According to the TCCS-ECD screening, patients and HAV-C further underwent selective venography of the azygous and jugular venous system with venous pressure measurement.

Results: CDMS and TCCS-ECD venous outflow anomalies were dramatically associated (OR 43, 95% CI 29-65, p<0.0001). Subsequently, venography demonstrated in CDMS, and not in controls, the presence of multiple severe extracranial stenosis, affecting the principal cerebrospinal venous segments; it configures a picture of chronic cerebrospinal venous insufficiency (CCSVI) with four different patterns of distribution of stenosis and substitute circle. Moreover, relapsing-remitting and secondary progressive courses were associated to CCSVI patterns significantly different from those of primary progressive (p<0.0001). Finally, the pressure gradient measured across the venous stenosies was slightly but significantly higher.

Conclusion: CDMS is strongly associated with CCSVI, a picture never been described so far, characterized by abnormal venous haemodynamics determined by extracranial multiple venous strictures of unknown origin. The location of venous obstructions plays a key role in determining the clinical course of the disease.

This paper is very exciting for myself and people with multiple sclerosis.

http://answers.google.com/answers/threadview/id/271074.html here is another doctor who is convinced that MS is caused or at least contributed to by fluctuations in venous pressure. Franz Alfons Schelling, MD

--- End quote ---

Andrew K Fletcher:
Dear Mr Fletcher, thank you so much for raising my bed. I was diagnosed with multiple sclerosis twenty six years ago and have been paralysed many times.

Before raising my bed (April 96)

1.   I had muscle spasm in my legs, especially in the morning and at night.
2.   I had problems walking with weakness in my right leg. I was shaky and needed a stick.
3.   I had a muscle weakness in my left eye.
4.   I had a painful lump on my calf muscle which was growing, an orthopaedic condition (osteochondrmatosis which results in oedema). I had difficulty with my ankle and on-going physiotherapy was essential.
5.   I was suffering weight loss.
6.   I had asthma and used inhalers.
7.   I had bad sinusitis and needed physiotherapy and inhalers.

Since raising my bed

1.   I no longer get muscle spasm in my legs.
2.   My walking is much improved. I do not use my stick anymore.
3.   The eye weakness is much improved. It only ‘wanders’ when I am very tired.
4.   The lump has shrunk to a small flat area; there is no pain, just a feeling of slight pressure. Physiotherapy is no longer required.
5.   My weight has increased by over half a stone
6.   The asthma is much improved-the inhaler was only needed a couple of times this summer for high pollen count level.
7.   My sinusitis is much improved and less painful. Physiotherapy is no longer needed and I only occasionally use an inhaler.

I do not have the exhaustion, I feel more energetic and less tired. My ms is more stable; one day is more like the next and not so erratic. Raising my bed has brought positive results and continues to do so. I feel stronger as the months go by.

Further letter:

I forgot to mention the following information in my letter, concerning my improvement since raising my bed.
   My balance has improved, I have had no relapses and my hair is in better condition and there is more of it!!.

My bladder control is much better, particularly at night. This is a real bonus!

Other people including nurses. Medics and friends, have remarked how much better I am.
They are amazed that my MS stayed stable when a painful operation without any anaesthetic (at my own request) to help keep my ms stable.
Everyone I amazed at the absence of my stick.

Best wishes  (name omitted)

Andrew K Fletcher:
Inclined Bed Therapy (IBT) works far better when the whole bed is tilted from head to toe. Pillows will help but to experience a real shot in the arm the five degree angle has produced phenomenal results with people who have both relapsing remitting ms and primary and secondary progressive ms, the latter obviously takes longer to begin to show signs of recovery.

As suggested I made contact with a lady with ms, who has been using IBT for 11 years now, she has remained virtually symptom free for all of this time and the only symptoms she has experienced over this time has been the odd bout of optic neuritis, which promptly clears 100% in days.

I also learned that for the last 2 years she has been experimenting with the angle of the bed and lowered it to 4 inches and has not had any relapses during sleeping at the lower angle which is very interesting and indicates that some curative repairs have helped to maintain her circulation. I will ask her if she come to the forum and share her experiences with all of us as I am sure we will all find what she has to say to be fascinating.  A month ago, I saw another lady with ms in a shop that had trouble walking when we first met and depended on her cane for support. She did not see my wife and I as I observed her walking without the stick up and down stairs.

I know this all sounds too simple to be of any use, heaven knows, I’ve heard it said enough over the years, yet the 2% of people who test the therapy for themselves have found vast improvements and stability over many years.

There will of course be the exceptional case, where neurological damage has been occurring over many years that may not respond fully, but everyone should to some degree gain significant relief from symptoms using IBT.

It has often been suggested that IBT is of little use because I have no medical qualifications, and indeed Sarah has asked this same question.

This research began when working on an irrigation project, trying to solve an age old problem of salt soil build up in arid areas, due to high evaporation. This salt crust on the surface of the soil led to a question as to what the trees were doing with these salts as wherever trees were present, the salt on the soil was not. That was the beginning over fifteen years ago, that led to not only solving how trees raise water to great heights by using gravity rather than struggling against it, but led to a big question about our own physiology and how we too use gravity to assist circulation rather than struggling against it as erroneously believed in the annals of medical literature.

IBT was born out of a curiosity as to what if anything would happen if we abandoned sleeping flat, a practice the whole human population does without question and without any scientifically controlled study to test it’s efficacy.

Within 4 weeks 2 people who had varicose veins, my wife being the first and a nurse called Stephanie the second case both revealed that the pressure inside the veins had reduced causing the swollen veins to become normal veins. My wife had hers for 16 years following the birth of our eldest son. So a spontaneous recovery in 2 out of 2 cases looked highly unlikely. But I needed more and more cases in order to prove one way or another that gravity was indeed a beneficial influence on the circulation of all living organisms. So my mum eventually tilted her bed along with a few more people and at the time, I was focused on varicose veins only, but then several people with varicose veins who also had oedema (tissue fluid retention in lower limbs) began to report that the oedema was dramatically vanishing as the veins become less swollen. And this to me at least was a logical observation as the oedema was caused because the pressure inside the veins and the lymphatic system was greater than the pressure inside the skin and muscle tissue so migration of fluids should follow the path of least resistance, just like a stream follows the path to the ocean.

But when my mother called after 4 weeks of IBT to inform me that not only had her veins and oedema improved but that she, unbeknown to me had suffered for 10 years of being unable to move her toes and ankle and was saying she could now move them and was doing so while on the phone, left me intrigued as to why the nervous system should be responding along with the main circulation. A week or so later she called again to say that sensitivity on the same leg had returned.

Now, I needed to understand more about human and animal physiology so embarked on a huge absorption of information from books, nursing manuals, physiology books, medical history books to find a neurological condition that might respond to IBT based only on my mothers initial reporting. MS looked a likely candidate, so I asked friends in Paignton if they knew anyone who had MS. Again logical to me at least. The local cake shop told me of a man called Roger Kirk who has possibly the worst case of MS they knew of and could certainly use some help as he was in a bad way and had been in a wheelchair for many years. When I made an appointment to see Roger after explaining exactly what I’ve just shared with you here, he instantly understood that I was not some barmy escapee from the local asylum because like myself he had an engineering background. After our initial meeting Roger agreed to sleep on a slope to see what if anything would happen. Well, glad to say it did happen and Roger and I became great friends for many years and I visited him regularly to learn of more and more subtle improvements and some set backs that appeared to be humidity related.

Roger came with me to give a lecture at the local MS Society Chapter in Kingskerswell. The lecture was at a hall in Kingsteignton and formed a small part of their usual meeting. Nevertheless a very small group of people with ms did take notice, while the vast majority of people exercised their right to remain ignorant.

The small group of open minded people with ms no longer attended the meetings and gradually over the months kept feeding me reports of often unprecedented improvements, reflecting Roger’s  reports to perfection. I was so excited for everyone that I contacted two MS charities and arranged a meeting to inform them about what was happening to these people in Devon. I paid for myself and 2 others to travel to meet the MS Society, who said a doctor and researchers would be there to hear what we had to say. On arrival no one knew we were coming and the only person there who could hear us was a telephonist who had little knowledge of human physiology.

Off to the next charity in Essex. The Multiple Sclerosis Resource Centre to meet John Simkins and his associate. This proved more fruitful and we were told that they were not surprised that the MS Society had failed us. And to not worry as they would take on board these impressive findings and would help us in any way they could, eventually agreeing to provide an independent assessment of the small group of people with ms who had taken part in the pilot ms study.

This report was titled: Raised Bed Survey http://curezone.com/upload/Members/New02/Andrew_K_Fletcher/RAISED_BED_SURVEY.rtf

This eventually involving me being granted access to the Torbay Hospital Medical Research database, where I spent many hours researching looking for clues about ms and finding links to other medical conditions that might respond also to IBT. This was long before I knew there was an Internet back in 1995. Here I learned more about MS and Parkinson’s Disease.

Nothing much happened with the medical profession or the charities that had promised so much. In fact, I have been let down by so many people working in the health industry and charity world that I have lost count. So many promises broken I have little respect left for the majority of people that have the plaques on the wall and the white coats, whose get out clause was: “It could have happened anyway due to the unpredictability of multiple sclerosis”. But there are a few people who remain friends and who too struggle against the people who prefer the status quo, rather than rocking the boat to advance our understanding of science. I have won the support of professors, doctors, surgeons, nurses and scientists around the world and not because I have a degree but because I have discovered and specialised in something that is worth investigating for 15 years and never given up, continuing only because it is the right thing to do!

Andrew K Fletcher

Andrew K Fletcher:

If you have MS could you please answer a question on this forum? http://www.thisisms.com/ftopic-6755-0-days0-orderasc-.html

Is there anything that IBT doesn't work for?


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