Post Orgasmic Illness Syndrome (POIS)

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Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1250 on: 14/09/2008 20:42:27 »
I wasted many years (on and off) chasing the Taoist Mantak Chia's 5,000 year old idea that releasing sperm = losing chi = POIS. His books seemed to me to describe POIS, and that "losing" sperm is the culprit and should be avoided at all costs. So I finally learned his technique of achieving orgasm without ejaculation. But my POIS still raged on its destructive path as badly as it ever did!

I didn't find Mantak Chia's work to be particularly helpful either, but I did get some relief from taking Chinese
tonic herbs for "the deficiency" they addressed. I still take some of them to this day. And acupuncture, to a
lesser degree, has been helpful for certain symptoms of the CFS.

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Offline John21

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1251 on: 14/09/2008 22:15:29 »
Counterpoints,
Quote
Is there anything else you are trying?

(Sorry I missed this)
Garlic has been the only addition to my diet. I eat a low fat diet with minimal hydrogenated fat (I hate how manufacturers are allowed to say there is zero trans fat when there is not zero trans fat!) and plenty of veggies. I am now making a point to include "goitrogenic" foods and kale, to test the thyroid angle... we'll see if I get some sleep.

http://en.wikipedia.org/wiki/Goitrogen

Hey I just read this on Wikipedia:
Quote
An association between thyroid disease and myasthenia gravis has been recognized. The thyroid disease, in this condition, is autoimmune in nature and approximately 5% of patients with myasthenia gravis also have hyperthyroidism. Myasthenia gravis rarely improves after thyroid treatment and the relationship between the two entities is not well understood

http://en.wikipedia.org/wiki/Hyperthyroidism

Although the tests did not come back positive, the diagnosis for my diplopia was "suspected myasthenia gravis".

"Autoimmune in nature", meaning some foreign invader is being attacked by the immune system, causing the havoc... something garlic might kill...

This is very interesting: 
Quote
Many alternative medicine practitioners believe that symptoms of hyperthyroidism or hypothyroidism may appear before test results are positive.[citation needed][verification needed] One doctor[unreliable source?] is quoted as stating, "Blood test results do not show the inactivity or over-activity of a thyroid until it is 60% or more dysfunctional."

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Offline hurray

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1252 on: 15/09/2008 01:53:07 »
At last!!!

Thank you all for this great thread, I have just spent the last 4 hours reading every post. I have plenty I'd like to add to this thread, but I don't want to write some huge rambling post :)

Some people have theorized that POIS is caused by the loss of fluids in ejaculation, but others have been quick to point out that male non-ejaculatory orgasms and female orgasms have also reliably caused POIS to occur.
But surely in these cases, fluids were still produced - women become wet (via the Bartholin's glands) and men produce pre-ejaculate (from the Cowper's glands).
From my own (male) experience, I can confirm that on several occasions pre-ejaculate alone has led to the onset of POIS.

Is it possible that the body is draining vital resources from the brain and other places to replenish the genitals? Perhaps when reproduction is on the cards, the brain says "to hell with being able to think clearly, work and socialise, we need to have those fluids ready NOW!"

Just making a quick addition, keep up the great work, I hope to post here some more :)

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1253 on: 15/09/2008 03:24:51 »
hurray, welcome to The POIS Forum! I like your theory of depletion/replenishment, it makes a lot of sense. Wouldn't it be great if we had unlimited funding to explore everything? Meanwhile, let's get cured! (And it does feel like we're getting there).

Don't forget to visit girlwind's POIS video at
http://www.youtube.com/watch?v=UWBxAUC9k1g

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1254 on: 15/09/2008 03:48:19 »
girlwind video

girlwind, I wonder if I made a mistake suggesting to add the word "sexual" to the tags? It seems that YouTube's "Related (to your POIS) Videos" show nearly-X-rated vids.

Whatever you think to do/not do is fine with me, I just wanted to bring that to your attention.

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Offline hurray

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1255 on: 15/09/2008 04:13:32 »
Thanks, glad to be here! I'm going to try a few of the ideas detailed on this forum on myself, and I will be more than happy to post the results!

Good video, sums up PIOS really well.

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Offline martin88

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1256 on: 15/09/2008 05:16:23 »
Hi to all !
I'm also interested in chinese medicine, i often read a lot about it on the web, simply because they believe in POIS while our occidental doctors laugh at us. However i have absolutely no experience with TCM except a few consultations(acupuncture).
Since some weeks now i wanted to post about this but i always put it for tomorrow (my energy and mood are extremely low these days because of pois and forced excessive work.)  Girlwind and Demografx you give me the opportunity to do it :

Please take the time to read these links (it's long but i hope good) :

- I like the fact that they seems to know exactly the causes (unfortunately in their own terms),and that they have a treatment with herbs :
http://www.acupuncture.com/conditions/noctemission.htm

- They say in the next link :  the essence (seminal fluid) or jing should be conserved, also it's written something about garlic which is influencing kidney yang (kidney is linked with adrenal but i can't see what is kidney yin or kidney yang).

I think the following is important for us: they say garlic (acrid spice) is good to nourrish and warm (?) the kidney qi and kidney yang BUT excess  acrid spices , prolonged use weakens kidney yang and kidney yin which we certainly want to avoid.
Page 217 here :
http://books.google.com/books?id=SWEwiMhSO-gC&pg=PA217&lpg=PA217&dq=garlic+kidney+yang&source=web&ots=1NHcgg1iea&sig=njGE_xIkp2zt5Ih-F3d5x3IqHkM&hl=en&sa=X&oi=book_result&resnum=1&ct=result#PPA217,M1


About garlic i don't think it's good to take something you can't swallow easily because it's too strong. But i have no doubt, if you have a relatively good nervous system, then it's easier to support. It's all how you feel with. When i was totally sexually abstinent i was eating raw garlic every day with good results  (it's written in books of dietetic to eat garlic, onions and parsley every day) . But now i can't take a raw clove/day, there is a good effect at the begining and then something bad for me (increased annoying mental symptoms, and desire to sleep if taken during the day). Perhaps it's effective only if you're chaste.

- Very interesting links about cures for pois :
http://www.tcmassistant.com/symptoms/dizziness-after-ejaculation.html

Spermatorrhea is a seminal loss (without erotic dreams or toughts and without orgasm) which cause weakness. They give a treatment for this and an other one for erotic dreams. However I hope it's efficient for seminal loss considered normal and physiological :
http://www.tcmassistant.com/symptoms/sexual-disorders.html

Maybe a treatment for those who have diarrhea and/or seminal loss, Lotus seeds :
http://tcm.health-info.org/Herbology.Materia.Medica/lianzi-properties.htm
(google is full of pages about this herb)

Now with all the bad i've heard about toxicity with chinese remedies i don't know where i can safely buy these herbs. There is a web site  full of practitionners in the following link. It looks good for me. Maybe one of them can help us to explain pois in our own words and give assistance on where we can buy herbs.

practitionners:
http://www.chineseherbacademy.org/herbalists/index.shtml

Interesting articles :
http://www.chineseherbacademy.org/articles/index.shtml


I Hope this will help.

Keep Fighting  !!!
trials, research, letters, form, new ideas, ...
« Last Edit: 15/09/2008 05:23:52 by martin88 »

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Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1257 on: 15/09/2008 05:38:18 »
girlwind video

girlwind, I wonder if I made a mistake suggesting to add the word "sexual" to the tags? It seems that YouTube's "Related (to your POIS) Videos" show nearly-X-rated vids.

Whatever you think to do/not do is fine with me, I just wanted to bring that to your attention.

Demografx: I removed the word "sexual" from the tags.  So far the video has gotten about 500 hits.
But no comments after the first week. We'll see what happens next.

« Last Edit: 15/09/2008 05:42:03 by girlwind »

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Offline pyropeach

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1258 on: 15/09/2008 05:43:19 »
Just want to put this out there: in Waldinger's research paper (which I was able to access through my school) there is a sentence suggesting oxytocin may inhibit cognition.  

I quote from his paper: "However, oxytocine has been suggested to negatively interfere with cognition (Geenen et al., 1988)."

Has anyone else investigated the references of his paper? They may lead to other related research that could reveal valuable pieces to this puzzle.  Also, does anyone know how to determine if other papers have cited Waldinger's paper?  Web of Knowledge does this, but I don't have access...


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Offline John21

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1259 on: 15/09/2008 10:56:33 »
Concerning supplements, I think I will add some Vit D after watching professor Michael Holick's video in the thread "Does sunscreen block vitamin D production?" Very interesting stuff!

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Offline post-chronic

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1260 on: 15/09/2008 11:22:57 »
I appreciate your compliments, girlwind and demografx. As for demografx's question about a scientific background; no, I've only had a long term laypersons interest in the relevant issues, so I've gradually picked up hints over the years. The argument about "psychological" vs "physical" depends not only on definitions but also individual philosophy. Also, it's obvious that both psychiatrists and naturopaths could be biased about what they are offering or selling, not just for financial reasons, but ideological too.

Do most people here experience a total absence of any symptoms once a POIS episode is over? Some people have mentioned being anxious or agitated even after recovering from an episode; however, since most healthy people seem to get agitated and frustrated without regular sexual release, and many people suffering POIS try to limit such release, this should be considered before answering. Thanks in advance.

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Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1261 on: 15/09/2008 17:29:14 »

Do most people here experience a total absence of any symptoms once a POIS episode is over? Some people have mentioned being anxious or agitated even after recovering from an episode; however, since most healthy people seem to get agitated and frustrated without regular sexual release, and many people suffering POIS try to limit such release, this should be considered before answering. Thanks in advance.


Because of the CFS, I experience symptoms regularly, to a greater or lesser degree. When I'm having more viral activity in my
system, I feel restless agitation and a sort of low level anxiety from that. My POIS symptoms are a bit more exaggerated than
the viral symptoms but don't last as long. Also I had some improvement of the POIS symptoms last week, after beginning a
seaweed supplement for thyroid.

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Offline Counterpoints

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1262 on: 15/09/2008 18:51:35 »
Thanks, glad to be here! I'm going to try a few of the ideas detailed on this forum on myself, and I will be more than happy to post the results!

Good video, sums up PIOS really well.

Hello hurray.
Also, please see: http://pois.olympe-network.com

Best

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1263 on: 15/09/2008 19:35:03 »
Just want to put this out there: in Waldinger's research paper (which I was able to access through my school) there is a sentence suggesting oxytocin may inhibit cognition.  

I quote from his paper: "However, oxytocine has been suggested to negatively interfere with cognition (Geenen et al., 1988)."

Has anyone else investigated the references of his paper? They may lead to other related research that could reveal valuable pieces to this puzzle.  Also, does anyone know how to determine if other papers have cited Waldinger's paper?  Web of Knowledge does this, but I don't have access...
pyropeach, this was a fascinating post. Sorry that I can't help. Maybe someone else here can access Web of Knowledge?

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1264 on: 15/09/2008 21:19:49 »
Demografx: I removed the word "sexual" from the tags.  So far the video has gotten about 500 hits.
But no comments after the first week. We'll see what happens next.
girlwind, that's terrific, thanks to your YouTube video, 500 more people have been exposed to the reality of POIS and to our POIS Forum
« Last Edit: 15/09/2008 21:34:42 by demografx »

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Offline martin88

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1265 on: 16/09/2008 00:25:56 »
I don't know if there is an interest in chinese medicine to treat pois. Maybe i am because about five years ago I saw a documentary film about a clinic located in Germany, supposedly classified as a german hospital, where tcm practitioners are working with german occidental doctors. I have just found the link of this clinic. Unfortunately i'm living in America, but this can be a link between pois (tcm believe in this) and occidental doctors.
http://www.tcm-klinik-koetzting.de/website_eng/frameset.html
http://www.tcm-klinik-koetzting.de/website_eng/kurzprofil_unten.html
http://www.tcm-klinik-koetzting.de/website_eng/mablauf_unten.html

I'll write them to know if i can buy herbs there and if they are interested to give us suggestions (probably i'll have to pay for this). Maybe one of you will be able to help me with english or if someone want to add content to the letter, tell me.

Girlwind: Just a note to give you a feedback about my trial with betaine HCL. Unfortunately it wasn't effective. I think i have enough stomach acid because only 325mg 2 times/day for 4 days with first and second meal gave me pain in the stomach (i know exactly where it's located now !) Sorry for this, maybe others will be more lucky. About iodine deficiency i can say iodine helps to recover from pois. The effects for me are : i'm most able to speak to people, i'm more active, orgasm is more intense, more energy, sleep is better if taken in the morning. But as usual with me the bad effects are: palpitations (cured with hawthorn), more exhaustion after orgasm (more fluid loss ?), iodine force me to have an orgasm (very aphrodisiac). 
« Last Edit: 16/09/2008 12:28:50 by martin88 »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1266 on: 16/09/2008 04:56:49 »
Just want to put this out there: in Waldinger's research paper (which I was able to access through my school) there is a sentence suggesting oxytocin may inhibit cognition.  

I quote from his paper: "However, oxytocine has been suggested to negatively interfere with cognition (Geenen et al., 1988)."

Has anyone else investigated the references of his paper? They may lead to other related research that could reveal valuable pieces to this puzzle.  Also, does anyone know how to determine if other papers have cited Waldinger's paper?  Web of Knowledge does this, but I don't have access...
pyropeach, this is a terrific find! Is there any way that Waldinger's paper can be made available to all the listmembers here?
« Last Edit: 16/09/2008 05:03:00 by demografx »

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Offline pyropeach

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1267 on: 16/09/2008 08:45:36 »
pyropeach, this is a terrific find! Is there any way that Waldinger's paper can be made available to all the listmembers here?

There's a copyright warning that explicitly says not to post the paper on a listserv or email it to multiple sites.  I can email it to anyone here who wants it.  I think this paper would be crucial in backing up our claims when if one day we finally find people willing to research this illness.

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Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1268 on: 16/09/2008 15:39:22 »
I don't know if there is an interest in chinese medicine to treat pois. Maybe i am because about five years ago I saw a documentary film about a clinic located in Germany, supposedly classified as a german hospital, where tcm practitioners are working with german occidental doctors. I have just found the link of this clinic. Unfortunately i'm living in America, but this can be a link between pois (tcm believe in this) and occidental doctors.
http://www.tcm-klinik-koetzting.de/website_eng/frameset.html
http://www.tcm-klinik-koetzting.de/website_eng/kurzprofil_unten.html
http://www.tcm-klinik-koetzting.de/website_eng/mablauf_unten.html

I'll write them to know if i can buy herbs there and if they are interested to give us suggestions (probably i'll have to pay for this). Maybe one of you will be able to help me with english or if someone want to add content to the letter, tell me.

Girlwind: Just a note to give you a feedback about my trial with betaine HCL. Unfortunately it wasn't effective. I think i have enough stomach acid because only 325mg 2 times/day for 4 days with first and second meal gave me pain in the stomach (i know exactly where it's located now !) Sorry for this, maybe others will be more lucky. About iodine deficiency i can say iodine helps to recover from pois. The effects for me are : i'm most able to speak to people, i'm more active, orgasm is more intense, more energy, sleep is better if taken in the morning. But as usual with me the bad effects are: palpitations (cured with hawthorn), more exhaustion after orgasm (more fluid loss ?), iodine force me to have an orgasm (very aphrodisiac). 

Hello Martin 88--I would be willing to help you with your letter. I think it's great that there's a clinic where TCM and
Western medicine are working together. It's about time that happened!

I'm sorry that the Betaine HCL did not work for you and gave you stomach pain. I've been taking it daily for about 10
years and have experienced ONLY positive results. As you know, it dramatically changed my digestion and absorption for
the better. (Another example of how different we all are!) And the iodine, also (from a brown seaweed supplement called
Modifilan), has been giving me positive results. Within just 3 days after I began taking it, my energy had improved, and
this weird uncomfortable pressure in my throat began to disappear. I have not experienced it to be an aphrodisiac, just a
gentle energy support. The amount of iodine in it is very small--the dose I've been taking has only 200 mcg. of iodine.
But that has been enough for me to see changes quickly. Perhaps your dose is higher or you are more sensitive to the
iodine.

« Last Edit: 16/09/2008 15:44:41 by girlwind »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1269 on: 16/09/2008 16:32:38 »
pyropeach, this is a terrific find! Is there any way that Waldinger's paper can be made available to all the listmembers here?

There's a copyright warning that explicitly says not to post the paper on a listserv or email it to multiple sites.  I can email it to anyone here who wants it.  I think this paper would be crucial in backing up our claims when if one day we finally find people willing to research this illness.
pyropeach, that is most generous of you to email to people here at POIS Forum! TO ALL: if you want the POIS research paper, you can reach pyropeach by clicking on the icon below his name that reads "Personal Message" and send him your email address outside this Forum. Dr. Waldinger's paper is the very first written on POIS, based on POIS sufferers whom he encountered at his hospital.
« Last Edit: 16/09/2008 18:00:59 by demografx »

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Offline MattJ

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1270 on: 16/09/2008 19:46:20 »
Wow, so glad to of found this post.

I'm almost 19, and have been experiencing this problem deffinately since I could orgasm, I've gone to multiple doctors for hypoglycemia and low blood pressure and all of them kind of shrugged me off saying I should drink more caffeine. My second last year in high school, I spent mostly sleeping through classes because I was extremely tired all the time.

What I'd like to add is that I also experience A LOT of anxiety/paranoia/OCD type symptoms, but (I'm not 100% sure) I think that if I was to go orgasm free for a week I would definately feel a lot better. I have skimmed as much as I could in this thread but I feel better just asking, so far what have most of you done to counter this effect?

I have another problem, which is my girlfriend. We have sex once or maybe twice a week and I think the reason I overly masturbate is because I don't want to be so excited when I have sex, so I could last longer. But this is kind of counter intuitive. What I noticed once is that the longer I go from masturbating, the longer I lasted during sex. Can anyone else relate in this situation? Do others who suffer from POIS go the same way?

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Offline John21

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1271 on: 16/09/2008 22:03:48 »
I have bad news. I have fallen from my chastedom, and garlic is not saving me. It is not extreme, but I am definitely zoned out somewhat. I am so surprised, I thought I was out of the woods. Aaaaahhh! I'm not sure what to make of this....

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1272 on: 16/09/2008 22:15:05 »
I have bad news. I have fallen from my chastedom, and garlic is not saving me. It is not extreme, but I am definitely zoned out somewhat. I am so surprised, I thought I was out of the woods. Aaaaahhh! I'm not sure what to make of this....
John21, so sorry to hear. But didn't you have 4-5 solid experiences? Maybe this is just an erratic glitch?

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1273 on: 16/09/2008 22:18:22 »
CIALIS VS. LEVITRA

If anyone here can help find out what the difference is between the 2 ED drugs, maybe we'll learn something about what works for POIS. Although they both do the same thing (Cialis is longerlasting), only Levitra works on my POIS, and very well. Cialis doesn't help one tiny bit.
« Last Edit: 16/09/2008 22:28:22 by demografx »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1274 on: 16/09/2008 22:22:32 »
MattJ, welcome to The POIS Forum! Read through the posts and you'll find different relief startegies from different people. Pick someone's experience who comes closest to yours. Looking forward to your future contributions here.

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1275 on: 17/09/2008 01:01:25 »
POIS FIRST STUDY 2002: CAN WE GET HELP FROM THE CO-AUTHOR?

The first study of POIS, which is available through pyropeach, shows that Dr Waldinger's co-author is a DR DAVE H SCHWEITZER who may still be associated somehow with Leyenburg Hospital in The Netherlands, where the first POIS patients were studied.

Interestingly, when he co-wrote the POIS Study, Dr Schweitzer was shown to be with another health organization in the Department of Internal Medicine and ENDOCRINOLOGY.

I tried to find him through Google, didn't have much luck. Maybe someone else here knows a way to contact Dr Schweitzer? With a rare background as a pioneering POIS MD-researcher who works with endocrinologists, he may be helpful to us!

Several of us have tried contacting Dr Waldinger, the lead researcher, but he has become too difficult to reach and/or unresponsive.
« Last Edit: 17/09/2008 02:36:28 by demografx »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1276 on: 17/09/2008 01:08:48 »
Has anybody talked to Dr. Muhall.
I saw his name on that ISSM website.

Who is he? What does he do?

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Offline martin88

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1277 on: 17/09/2008 03:43:07 »
This is great Girlwind ! I'll contact you after i write something. This concept of clinic must be very rare and that's why reporters have made a 1h film on tv about it. I was taking a plant, "fucus vesiculosis" for iodine (each cap between 150 and 300mcg).They say on the box to take this only for a short period . It's normally to lose weight (i'm thin), i was taking it for energy. Yes i'm very sensitive to all..

Thank you Pyropeach. I want one if possible.(my email is not hidden)

John, it's some bad news.
Perhaps you can give more precisions. Are you saying that garlic was effective only for pois after nocturnal emission but wasn't after an orgasm? 

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Offline martin88

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1278 on: 17/09/2008 03:54:42 »
Demografx: It's a good idea, i hope we'll be able to contact Dr Schweitzer. We have to be more active to find researchers.

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1279 on: 17/09/2008 04:30:44 »
Demografx: It's a good idea, i hope we'll be able to contact Dr Schweitzer. We have to be more active to find researchers.
martin88, thanks a bunch. It's not easy for us to find outside researchers without our having a budget. But people like Dr Schweitzer - who understand/believe the POIS problem - are more likely prospects for now I think.

And perhaps we'll also find "friends of the POIS Forum list" - but we all need to be more proactive in that direction. People here would need to call your local research hospital or endocrinologist.

If someone here is from Europe's time zone(e.g., B_Jim?) maybe he can call Leyenburg Hospital (I think the Hospital merged and is now called HagaZiekenhuis) in the Netherlands to see how to locate Dr Schweitzer? Thank you whoever can initiate that! (I'm on West Coast time so it's difficult with the time zones)

Dept of Neuropsychology
(070) 2102072  telephone
The Hague
Netherlands
http://www.hagaziekenhuis.nl/nl/contact.php

ps - I just sent the Hospital an email hoping they will respond to our looking for Dr Schweitzer.
« Last Edit: 17/09/2008 18:14:32 by demografx »

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Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1280 on: 17/09/2008 05:39:41 »

I was taking a plant, "fucus vesiculosis" for iodine (each cap between 150 and 300mcg).They say on the box to take this only for a short period . It's normally to lose weight (i'm thin), i was taking it for energy. Yes i'm very sensitive to all..


Martin 88
You might want to check to see if you're iodine deficient. If you have a strong reaction like that, maybe you're
getting too high a dose. I found a simple test for that on the Mercola.com site.  Check out my post #195193.
Also, this supplement I'm currently taking is a much lower dose of iodine per capsule (approx. 16 mcg). Perhaps
that might be easier for you to handle. ??

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Offline John21

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1281 on: 17/09/2008 10:26:31 »
Martin88,
Quote
Perhaps you can give more precisions. Are you saying that garlic was effective only for pois after nocturnal emission but wasn't after an orgasm?


Yes that is indeed the case. The pois is not pronounced, but I noticed a mental shift. Whether garlic was a red herring or not I can't say at this time.

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1282 on: 17/09/2008 18:00:20 »
Martin88,
Quote
Perhaps you can give more precisions. Are you saying that garlic was effective only for pois after nocturnal emission but wasn't after an orgasm?


Yes that is indeed the case. The pois is not pronounced, but I noticed a mental shift. Whether garlic was a red herring or not I can't say at this time.
From my experience, I see no difference between NE and orgasm. My POIS was just as bad with either one. What do you think might be the difference?

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1283 on: 17/09/2008 18:09:14 »
I have his number and it works but am contemplating because it seems weird for me to just call him out of nowhere.
Just call, you have nothing to lose, and he has impressive credentials. I once called a top urologist "out of nowhere" who was on CNN and through his secretary's referral I found out about the POIS work by Dr Waldinger, which was a major relief to see that somewhere in this world someone understood my problem (POIS) and even had a name for it! You never know what will happen until you just take the action, put your concerns aside, and...just call! Good luck!
« Last Edit: 17/09/2008 18:11:14 by demografx »

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Offline John21

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1284 on: 17/09/2008 21:35:08 »
CCconfucius,
Quote
Have you tried doubling the amount of garlic and eating garlic before and after.

Actually yes this time I ate lots of it, three raw cloves that day, and a couple the next. I am somewhat mystified by my state of mind, it isn't full blown POIS with anxiety and memory problems, but something lighter.... I feel like my mind is not so quick.

Demografx, normally that is the case for me too, NE = orgasm. I am stumped as to what is going on here, sorry I have no answers, perhaps we will know in time.
« Last Edit: 17/09/2008 21:36:57 by John21 »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1285 on: 18/09/2008 02:14:39 »
CCconfucius,
Quote
Have you tried doubling the amount of garlic and eating garlic before and after.

Actually yes this time I ate lots of it, three raw cloves that day, and a couple the next. I am somewhat mystified by my state of mind, it isn't full blown POIS with anxiety and memory problems, but something lighter.... I feel like my mind is not so quick.

Demografx, normally that is the case for me too, NE = orgasm. I am stumped as to what is going on here, sorry I have no answers, perhaps we will know in time.
John21, I really admire your honesty and persistence. I'm confident that we will eventually find out what is going on. We're the first explorers on the Moon. Meanwhile, _something_ has worked for you and me and others. But I can certainly say that for the many, many previous years for all of us, there was absolutely no progress, no learning.

John, your very first post here 1 and 1/2 years ago, (which created the POIS Forum!) was a historical event. To me, it was like the astronaut Neil Armstrong's Moon landing: "that's one small step for man, one giant leap for mankind"
« Last Edit: 18/09/2008 02:21:09 by demografx »

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Offline hurray

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1286 on: 18/09/2008 03:27:05 »
POIS FIRST STUDY 2002: CAN WE GET HELP FROM THE CO-AUTHOR?

The first study of POIS, which is available through pyropeach, shows that Dr Waldinger's co-author is a DR DAVE H SCHWEITZER who may still be associated somehow with Leyenburg Hospital in The Netherlands, where the first POIS patients were studied.

Interestingly, when he co-wrote the POIS Study, Dr Schweitzer was shown to be with another health organization in the Department of Internal Medicine and ENDOCRINOLOGY.

I tried to find him through Google, didn't have much luck. Maybe someone else here knows a way to contact Dr Schweitzer? With a rare background as a pioneering POIS MD-researcher who works with endocrinologists, he may be helpful to us!

Several of us have tried contacting Dr Waldinger, the lead researcher, but he has become too difficult to reach and/or unresponsive.

A bit of googling revealed that Dr Dave Schweitzer works at a Dutch hospital in Delft.
The hospital's name is "Reinier de Graaf", if you google this the first search is the hospital website. Click "translate this page", go to the right and click "departments", then "internal medicine", then "overview all specialists". Near the bottom of the list is "Dr DH Schweitzer, endocrinologist internal medicine".

No email address sadly, but the Dutch speak excellent English if you want to give the hospital switchboard a try. Alternatively, I'm sure a letter addressed to Dr Dave Schweitzer at the hospital address would get to him.

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Offline tacabrighe

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1287 on: 18/09/2008 07:44:13 »
Hello everybody,

Iím new here. Iíve been having POIS for at least 15 years and I experience most of the symptoms you described.

I am 39 now and Iíd like to join the group (I live in Italy).

In my experience, as happens to Coreman, only at least 30 to 40 minutes of running just after the release can control and mitigate the symptoms framework. Evening sex should be followed by an early morning running session. It really helps me recover enough power to restart a new day.

See you soon, Iíll keep in touch with the group.

Best wishes,

Tacabrighe

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Offline John21

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1288 on: 18/09/2008 11:01:27 »
Deomgrafx,
Quote
John21, I really admire your honesty and persistence. I'm confident that we will eventually find out what is going on. We're the first explorers on the Moon. Meanwhile, _something_ has worked for you and me and others. But I can certainly say that for the many, many previous years for all of us, there was absolutely no progress, no learning.

John, your very first post here 1 and 1/2 years ago, (which created the POIS Forum!) was a historical event. To me, it was like the astronaut Neil Armstrong's Moon landing: "that's one small step for man, one giant leap for mankind"

I really appreciate the support, thanks.


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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1289 on: 18/09/2008 16:19:38 »
A bit of googling revealed that Dr Dave Schweitzer works at a Dutch hospital in Delft.
The hospital's name is "Reinier de Graaf", if you google this the first search is the hospital website. Click "translate this page", go to the right and click "departments", then "internal medicine", then "overview all specialists". Near the bottom of the list is "Dr DH Schweitzer, endocrinologist internal medicine".
HURRAY, very helpful! Thank you! His 2002 paper showed Reinier de Graaf so I thought he might have moved on. Terrific.

ps - update: I just spoke with Dr Schweitzer! He promised to discuss our Forum with Dr Waldinger(!) and _possibly_ (1)join the POIS Forum and 2) help us find a cure! First step is I will email him, he will read it tomorrow and perhaps telephone me over the weekend.
« Last Edit: 18/09/2008 17:03:40 by demografx »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1290 on: 18/09/2008 16:29:21 »

Tacabrighe, welcome to The POIS Forum! 15 years is a long time. Mine is over 30, and I can't even remember how far back this lifetime of misery started for me [;D]

You can catch girlwind's POIS video at
http://www.youtube.com/watch?v=UWBxAUC9k1g
« Last Edit: 18/09/2008 16:31:20 by demografx »

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Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1291 on: 18/09/2008 17:11:09 »

ps - update: I just spoke with Dr Schweitzer! He promised to discuss our Forum with Dr Waldinger(!) and _possibly_ (1)join the POIS Forum and 2) help us find a cure! First step is I will email him, he will read it tomorrow and perhaps telephone me over the weekend.


AMAZING!  WOW! How cool is that! Thanks Demografx for taking the initative on this.

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1292 on: 18/09/2008 17:17:45 »

ps - update: I just spoke with Dr Schweitzer! He promised to discuss our Forum with Dr Waldinger(!) and _possibly_ (1)join the POIS Forum and 2) help us find a cure! First step is I will email him, he will read it tomorrow and perhaps telephone me over the weekend.


AMAZING!  WOW! How cool is that! Thanks Demografx for taking the initative on this.

Many thanks, girlwind. This is most exciting!

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1293 on: 18/09/2008 17:49:02 »
TODAY'S EMAILED LETTER TO DR. SCHWEITZER

Dear Dr. Schweitzer,

It was indeed an honor and a privilege to speak with you today!

I am the Moderator (my username is "demografx") of an internet POIS Forum, whose objective is to build on the fine work that you and Dr Marcel Waldinger have pioneered:
http://www.thenakedscientists.com/forum/index.php?topic=6576.new#new

We also have a video created by "girlwind", one of our active Members
http://www.youtube.com/watch?v=UWBxAUC9k1g

"Counterpoints", another active Member, has created a website to capture many Forum members' POIS details in survey form:
http://pois.olympe-network.com

As I mentioned on the telephone, the Forum has had over 100 people posting about their experience with POIS, with 116,000 viewers from all over the world. Almost everyone posting has expressed gratitude to find us, and as you know from working with POIS patients, most people here have met with unbelievable frustration with medical/healthcare professionals who do not understand the malady/illness at all.

Our prime objective is to find a cure! We have had some moderate success so far, by no means perfect or comprehensive and this has not been arrived at scientifically, with endocrinology studies, research, etc. This is where we hope that you and Dr Waldinger can help us.

I'm sorry that I interrupted your busy Hospital schedule today, but as you suggested, I look forward to our talking this weekend when it is less hectic. My home telephone and private cell phone is listed below.

My very best regards,




« Last Edit: 18/09/2008 18:28:11 by demografx »

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Offline pyropeach

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1294 on: 18/09/2008 18:24:18 »
A bit of googling revealed that Dr Dave Schweitzer works at a Dutch hospital in Delft.
The hospital's name is "Reinier de Graaf", if you google this the first search is the hospital website. Click "translate this page", go to the right and click "departments", then "internal medicine", then "overview all specialists". Near the bottom of the list is "Dr DH Schweitzer, endocrinologist internal medicine".
HURRAY, very helpful! Thank you! His 2002 paper showed Reinier de Graaf so I thought he might have moved on. Terrific.

ps - update: I just spoke with Dr Schweitzer! He promised to discuss our Forum with Dr Waldinger(!) and _possibly_ (1)join the POIS Forum and 2) help us find a cure! First step is I will email him, he will read it tomorrow and perhaps telephone me over the weekend.

Dude....NICE, VERY NICE.  Maybe there is hope after all :)  Thank you demografx!

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1295 on: 18/09/2008 18:36:11 »
ps - update: I just spoke with Dr Schweitzer! He promised to discuss our Forum with Dr Waldinger(!) and _possibly_ (1)join the POIS Forum and 2) help us find a cure! First step is I will email him, he will read it tomorrow and perhaps telephone me over the weekend.

Dude....NICE, VERY NICE.  Maybe there is hope after all :)  Thank you demografx!

Thank you, pyropeach, and thank you for making the Waldinger-Schweitzer paper available. Reminder to all: send a Private Message to pyropeach with your email address and he will send you the paper!

pyropeach, every time I wanted to give up ("no hope") I forced myself to take the next step. Even if it was stupid. We just need to " keep on truckin' " as the old expression goes.
« Last Edit: 18/09/2008 19:10:21 by demografx »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1296 on: 18/09/2008 22:07:00 »
Fantastic job demografx :)
Thank you, B_Jim! You have always been a terrific asset to POIS Forum!  [:)]
« Last Edit: 18/09/2008 22:08:55 by demografx »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1297 on: 18/09/2008 22:44:26 »
I deleted "Joe Anthony"'s post since it was advertising.
« Last Edit: 18/09/2008 23:23:21 by demografx »

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Offline hurray

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1298 on: 19/09/2008 01:46:17 »
Good work in contacting Dr Schweitzer demografx!

It would certainly be very exciting to have Dr Schweitzer looking further into POIS. A great number of people could benefit from potential POIS treatments!

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Offline Counterpoints

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1299 on: 19/09/2008 02:24:47 »
Thanks so much Demografx.  In fact, I have been in contact with Dr. Waldinger.  He said a couple months ago that he would have another paper in 6 months (according to him there is hope and that we have to remain patient); I didn't explicitly mention his name because I didn't want to unfairly raise hopes.  He knows about this thread; a second outside reminder would probably be a good thing though!  There is also another MD PhD who "definitely" wants to study our case. He also said he would be willing to take on a graduate student for this, if anyone is interested. I intend on showing them our survey results.

Great work everyone.
« Last Edit: 19/09/2008 02:32:33 by Counterpoints »