Post Orgasmic Illness Syndrome (POIS)

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Offline lidridop

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #13050 on: 30/04/2011 10:09:15 »
Vincent, I don't necessarily believe that sex drive should ALWAYS mean - "I really need to masturbate or have sex." You can use that energy and desire - your sex drive, for "lust of life" pursuits instead. I'm not saying 100% abstinence, that's not wise either.

  I do have tips to reduce your need for masturbation. Do you mind if I private message you? I have a definite plan, you are NOT over the edge yet and a LOT can be done, trust me. 

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Offline MrMoonJr

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #13051 on: 30/04/2011 12:11:46 »
Hey! I have posted in here before but it was nothing too serious, just some kind words saying how much I appreciate this forum being here. I would just like to say that im starting my journey May 2nd. I went to my G.P a month ago and told her about POIS and that I believed I had it. At first she didnt believe it existed but I showed her Dr. Walldinger's information and she ended up referring me to a urologist... which I know isnt the most direct path and probably isnt the right path, But I believe it will start to lead me to where I need to go. In Canada our medical system is very flawed too, we have free healthcare, something im soo happy for but it takes a long time to get anywhere. Anyways, does anyone have any advice? any previous stories to share.. and instant message me if you want my email is : cunningham_daniel@hotmail.com :P im 18 years old so it can be scary at times for me... sexual hormones at this age can be deadly..

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #13052 on: 30/04/2011 21:54:12 »

You'd think everyone [here] would be arguing like a bunch of cantankerous geezers.


Oh, you've missed some real doozies here, trust me!  [;D]
« Last Edit: 02/05/2011 00:05:11 by demografx »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #13053 on: 30/04/2011 21:57:11 »

I think my masturbation frequency has somewhat decreased due to natural aging(maybe?) as I'm doing it closer to 3-4 times a day and rarely maybe once a week I'll do it more than that.


Really? How can you do it that often? I would probably collapse into a coma dude!!


At that frequency you'd find many of us in the ER or the morgue!

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #13054 on: 30/04/2011 22:20:28 »




dan-ireland, welcome to the POIS thread of The Naked Science Forum!




Here are some POIS resources which may be helpful to you:

The Learning Channel (TLC) upcoming feature TV presentation on POIS, featuring our member here at this forum, "Animus". They're planning to air it on May 22, 10pm Eastern Standard time. Animus will keep us informed of any changes.

Our POIS Information Website, built by "mat780", is here:
http://sites.google.com/site/POISwebsite/

The POIS Information Website is home to the famous POIS Forum Compendium, written by "Pyropeach", and contains theories already discussed here and treatments that have both worked and failed.

Please see "B_Jim"'s POIS Summary of All Cases, here as well as others on the Web. This includes remedies that we have tested, and results.
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg149009#msg149009

"Girlwind" has created an excellent POIS Video:
http://www.youtube.com/watch?v=UWBxAUC9k1g

Our new POIS chatroom (realtime chat). Invite or visit another member(s) there, ANY TIME. We can all get to know each other better:
http://forums.delphiforums.com/POIS/chat


* Most recent POIS Research Studies, 2011 *

If you will send Prof. dr. Waldinger an e-mail, stating that you have read his message on the Forum, at http://www.thenakedscientists.com/forum/index.php?topic=6576.msg340138#msg340138 and that you are willing to fill in a questionnaire, he will send you the copies of both 2011 research articles by return through email. At a later date, he will send you the questionnaire which, after having filled in, you should send him back by e-mail.
His email:
prof.dr.waldinger.pois@gmail.com

Prof. dr. Marcel D. Waldinger's website:
http://www.post-orgasmic-illness-syndrome.com/en/index.html


First POIS Research Study, 2002

We have a copy of the first formal medical investigation on POIS by Prof. dr. Marcel D. Waldinger,MD,PhD, and Dr. Dave Schweitzer, MD.

  
Recent POIS Research Study, 2010

CASE REPORT
Postorgasm Illness Syndrome - A Spectrum of Illnesses
Jane Ashby, MRCP, and David Goldmeier, MRCP
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg316781#msg316781


British Medical Journal Case Report, 2010

Case study by Dr. Selwyn Dexter of a patient with a headache-featured POIS symptom treated with progesterone/norethisterone.
http://casereports.bmj.com/content/2010/bcr.10.2009.2359.short?rss=1


There are a couple of ways to get any or all of the above 3 studies: (1) if you want a PDF copy, send me a Private Message (PM) with your regular email address (use "AT" instead of "@" ) and I'll send you back the PDF.

Or, if you prefer, (2) I can simply reply with a Private Message (no regular email needed) and provide you with a simple text version embedded in your PM.

To send a Private Message, click on "Messages" at the top of this page. At the Messages page, click on "New Message". From that point on, it works just like posting a message here, except that it only goes to the person(s) you designate.

Remember to put a quote around my name, i.e., "demografx".


New York Times article,

January 20, 2009
Mind
Sex and Depression: In the Brain, if Not the Mind
By RICHARD A. FRIEDMAN, M.D.
http://www.nytimes.com/2009/01/20/health/views/20mind.html?_r=1&scp=1&sq=friedman%20sexual%20January%2020&st=cse

- - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -

In addition to serving our own informational interests, the resources listed above can be useful for you to show our credibility to the medical world - which often shows little understanding and is sometimes skeptical of our condition: POIS has scientific underpinnings and POIS is not "just another psychological problem" related to sex - to be treated by the psychiatric/psychotherapeutic community. All of this information can greatly help you to fight the immediate reaction of some doctors: so just tell them, "IT'S NOT 'ALL IN OUR HEADS'! "

Also, it can be helpful when dealing with medical professionals to point out the successful existence of our rapidly growing forum, which has already been referenced in respectable sources such as the Journal of Sexual Medicine (Dr. Waldinger's study), British Medical Journal and wikipedia:
http://en.wikipedia.org/wiki/Postorgasmic_illness_syndrome

For over 4 years, our POIS forum has attracted over 200 POIS sufferers worldwide who have posted here, research on an additional 200 sufferers elsewhere on the internet, plus over 1,000,000 page visits. Not bad for a rare malady!









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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #13055 on: 30/04/2011 22:22:43 »





dan-ireland, this post will help you find information about POIS that we have already discussed, by tailoring a Google search to this forum:


SEARCH THE FORUM WITH GOOGLE

We have an overwhelming amount of data: more than 4 years' worth of posts (over  10,000 posts!) from 200+ Forum members, and an additional 200 POIS sufferers found elsewhere on the Internet by Member B_Jim.

In the Google search box, type
whatever-it-is-you're-interested-in-finding-out[space]POIS[space]site:http://thenakedscientists.com/

for example, I tried
nocturnal emission POIS site:http://thenakedscientists.com/

and 740 results came up for "nocturnal emission" within the Forum.

be careful with spaces (you can use them before the word "site") and no-spaces (everything after the word "site")

Google even provides you results with the Message# for each result. But Message #'s do change, so be patient and look for the approximate Message#.







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Offline lidridop

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #13056 on: 30/04/2011 23:52:27 »
dan-ireland, this post will help you find information about POIS that we have already discussed, by tailoring a Google search to this forum:

Thanks very much Demo, and thanks for the welcome, hope I can make a difference :)

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Offline Animus

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #13057 on: 01/05/2011 00:00:05 »

I recently spoke with the TV producer, and she said she'll definitely send me a DVD of the show upon airing. She added that they usually don't post the shows online, however I have been able to view other episodes of that series on YouTube, or online somehow.  So I don't know if that will be available.

The name of the series is called "Strange Sex" on TLC. And they do have a few episodes online. To be honest, it's not the type of show I'd watch voluntarily. Kind of gross, fetishistic at times! But...

That said, once I receive the DVD, I will do everything I can to make it available by sending copies of it, or posting it somehow online myself, maybe with someone's help.

It is still on schedule to air on May 22nd on TLC at 10pm. Don't forget the popcorn!

I wonder if you or another one of us posted the episode on youtube if it would go against some kind of copyright rule. Perhaps that would be a good question to ask the producer? Maybe they would even give you a digital copy for you to post directly online.

I don't think it's much trouble to get past the time limit for a youtube clip. I've watched entire movies on youtube before, the trick is just to break the video up into shorter youtube clips so you'll have "strange sex: episode POIS Part 1", strange sex: episode POIS Part 2",...part 3, ...ect...

Good idea, Vincent. I'll find that out.

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Offline Vincent M

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #13058 on: 01/05/2011 04:53:02 »
Dan, PM me anytime. I just sent you a PM so you can just reply to that.
Taking fenugreek+tea/garlic, saw palmetto, huperzine, niacin, boswellia, and nutmeg.

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Offline Vincent M

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #13059 on: 01/05/2011 05:09:17 »

Of course, uploading commercial broadcasting onto an account may cause it to no longer have "good standing" - Youtube are fairly fast at taking things down, obviously they don't want people uploading Hollywood blockbusters etc.


Forgot about this. So maybe youtube would just take our video down anyway. Well I guess we could always upload the episode on another site and either link to that site from our current youtube video or link to it from the naked scientists site.
Taking fenugreek+tea/garlic, saw palmetto, huperzine, niacin, boswellia, and nutmeg.

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Offline horizon

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #13060 on: 01/05/2011 09:40:46 »
I'll have important test results very soon on the specific IgE antibodies to seminal plasma proteins, which is seen in women with seminal plasma hypersensitivity.

For the last 2.5 months I've worked with Dr. Bernstein and the University of Cincinnati Allergy Laboratory.


Does seminal plasma protiens mean "no sperm"? That would be a very cool test!

Nice one limejuice, I like your style, drop in once in a while, but you make sure to drop great bombs on us.

So those protein, is he testing every seminal protein or just does known to affect women.
It would be nice if he can also test sperm without seminal protein  that would answer alot of question.

The test is comprehensive of the human immune system and includes all mediators - IgE, IgM, IgG, and T-Cells.  It should truely determine if POIS is a reaction to seminal plasma or something else.  After all the test is $2,000.

I wonder if you are the first on the forum to have this test done?

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Offline horizon

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #13061 on: 01/05/2011 09:46:08 »
http://myhealth.hollandhospital.org/HealthTopics/allergies/dec07acMain.htm

Dr. Ronald Simon, an allergist at Scripps Clinic in San Diego , told HealthDay that he and his colleagues have treated patients with a mixture of contraceptive gel and an anti-allergy medication, cromolyn.

Thanks Horizon, I'll be contacting Dr. Ronald. 

dont forget to add the other clinic/doctors in san diego where you got the skinprick test done to the collaborators list.
« Last Edit: 01/05/2011 09:47:50 by horizon »

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Offline Guthrie

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #13062 on: 01/05/2011 13:05:54 »
http://myhealth.hollandhospital.org/HealthTopics/allergies/dec07acMain.htm

Dr. Ronald Simon, an allergist at Scripps Clinic in San Diego , told HealthDay that he and his colleagues have treated patients with a mixture of contraceptive gel and an anti-allergy medication, cromolyn.

Thanks Horizon, I'll be contacting Dr. Ronald. 

It mentions the potential for a prostatic protein (part of the semen one would imagine) being a guilty culprit as well as sperm.

Hmmm, it the 'guilty culprits' are said to include fluids beyond sperm itself, this could potentially account for why some men suffer POIS simply from arousal and pre-ejaculate fluid without ejaculation.

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Offline horizon

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #13063 on: 01/05/2011 18:58:40 »
Can someone tell me what the link or difference is between the existing Antisperm Antibodies test and what we talking about in relation to 'allergy to sperm'?
thanks

http://www.medichecks.com/tests/blood_tests/test.cfm?test=ASAB&name=Antisperm+Antibodies
http://www.nuh.nhs.uk/andrology/Antisperm_Antibodies.aspx
« Last Edit: 01/05/2011 19:00:58 by horizon »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #13064 on: 01/05/2011 20:59:21 »
My opinion of Yahoo Answers just changed (not for the better!)
From http://answers.yahoo.com/question/index?qid=20110430211745AAv7oKm

Resolved Question: Post Orgasm Illness Syndrome (POIS)?

Is it usual to feel really exhausted and even depressed weeks after sex? I read about something called POIS, and I'm just wondering if it's normal to experience this...

Asked by  Sun 16 hours ago Report Abuse

Best Answer:

Feeling really exhausted is supposed to be a good feeling that lasts for a few minutes after sex. If you feel exhausted and depressed for weeks after the sex, sex is not the problem! See a shrink for your mental health!

Answer by  NickP 16 hours ago Report Abuse
Asker's Rating:

Thanks

edit -  To NickP:

Nick, we here at the POIS Forums owe you a major debt of gratitude. How foolish of us and all the POIS medical researchers all these years to think that POIS could be caused by autoimmune, hormonal, spermatalogical, or other physiological  disorders!!!
[;D]
« Last Edit: 01/05/2011 21:44:46 by demografx »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #13065 on: 01/05/2011 21:49:37 »

dan-ireland, this post will help you find information about POIS that we have already discussed, by tailoring a Google search to this forum:


Thanks very much Demo, and thanks for the welcome, hope I can make a difference :)


You already have!  [:)]
« Last Edit: 02/05/2011 00:01:05 by demografx »

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Offline Vincent M

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #13066 on: 02/05/2011 01:32:04 »
demo, I was banned from yahoo answers from spreading too much information about POIS lol. I guess they thought I was a spammer. I'll try to get my account back eventually and I'll try to be more selective of who I try to spread awareness to in the future.
« Last Edit: 02/05/2011 01:56:03 by Vincent Marcus »
Taking fenugreek+tea/garlic, saw palmetto, huperzine, niacin, boswellia, and nutmeg.

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Offline Finally

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #13067 on: 02/05/2011 03:07:06 »
My opinion of Yahoo Answers just changed (not for the better!)
From http://answers.yahoo.com/question/index?qid=20110430211745AAv7oKm

Resolved Question: Post Orgasm Illness Syndrome (POIS)?

Is it usual to feel really exhausted and even depressed weeks after sex? I read about something called POIS, and I'm just wondering if it's normal to experience this...

Asked by  Sun 16 hours ago Report Abuse

Best Answer:

Feeling really exhausted is supposed to be a good feeling that lasts for a few minutes after sex. If you feel exhausted and depressed for weeks after the sex, sex is not the problem! See a shrink for your mental health!

Answer by  NickP 16 hours ago Report Abuse
Asker's Rating:

Thanks

edit -  To NickP:

[;D]

Thanks Nick. We're all crazy. We can close the forum now.
And yes I would like fries with that.

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Offline monkeyboy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #13068 on: 02/05/2011 05:31:24 »
Hey guys I've had an interesting development about two weeks ago I was in the gym at my college working out with some ex-marines. I train with these guys 2-3 hours a day and do gymnastic level excercises. Getting to the point one of them gives me two packets of pills. One is called rocket fuel and the other is called animal cuts. Both are herbal based adrenaline and caffine boosters for increased metabolic rate and pain tolerance basically it makes you invincible for 12 hours so you can do extreme training you couldn't otherwise handle. After taking that stuff my pois symptoms have reduced by a good 60-70% and have not returned back to as they were. Anyone want to take a guess as to why this has happend? Don't try this yourself if you aren't a good athlete it will put you in the hospital if you don't keep yourself hydrated properly and monitor your heart rate.

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #13069 on: 02/05/2011 07:07:56 »

demo, I was banned from yahoo answers from spreading too much information about POIS lol. I guess they thought I was a spammer. I'll try to get my account back eventually and I'll try to be more selective of who I try to spread awareness to in the future.


VM, thanks for doing that!

Yeah, we would do the same here if someone promoted another site. And I was banned like you too for trying to promote us elsewhere.

Next time, just be more cautious by being vague about "this place" - talk about "POIS-sufferer-communities", and be less direct about our group here. Let them PM you on their own initiative  instead - - so they can take the step themselves to  find out how you were able to accomplish your advanced understanding of POIS.

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Offline Animus

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #13070 on: 02/05/2011 07:17:28 »
Hey guys I've had an interesting development about two weeks ago I was in the gym at my college working out with some ex-marines. I train with these guys 2-3 hours a day and do gymnastic level excercises. Getting to the point one of them gives me two packets of pills. One is called rocket fuel and the other is called animal cuts. Both are herbal based adrenaline and caffine boosters for increased metabolic rate and pain tolerance basically it makes you invincible for 12 hours so you can do extreme training you couldn't otherwise handle. After taking that stuff my pois symptoms have reduced by a good 60-70% and have not returned back to as they were. Anyone want to take a guess as to why this has happend? Don't try this yourself if you aren't a good athlete it will put you in the hospital if you don't keep yourself hydrated properly and monitor your heart rate.

Hi Monkey-boy, Thanks for sharing your input. I feel I should add that Herbal- based "enhancement" pills can be VERY dangerous. They aren't regulated or tested, and can have devastating effects on the body especially if taken over time. I developed a very Severe case of POIS after taking Herbal Male Enhancement pills for 2 months which were designed to enlarge the sex organs. I suffered for many years because of that bad decision. The enlargement pills wreaked havoc on me!

I realize you're talking about a different Herbal product, but I would be extremely careful about recommending this. As you yourself have done. Please be careful with this stuff.
« Last Edit: 02/05/2011 07:26:12 by Animus »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #13071 on: 02/05/2011 07:23:46 »
Hey guys I've had an interesting development about two weeks ago I was in the gym at my college working out with some ex-marines. I train with these guys 2-3 hours a day and do gymnastic level excercises. Getting to the point one of them gives me two packets of pills. One is called rocket fuel and the other is called animal cuts. Both are herbal based adrenaline and caffine boosters for increased metabolic rate and pain tolerance basically it makes you invincible for 12 hours so you can do extreme training you couldn't otherwise handle. After taking that stuff my pois symptoms have reduced by a good 60-70% and have not returned back to as they were. Anyone want to take a guess as to why this has happend? Don't try this yourself if you aren't a good athlete it will put you in the hospital if you don't keep yourself hydrated properly and monitor your heart rate.

Thanks for the caveats.

A few bodybuilders at our forum tend to be a nuisance (not you!  -  I refer to "the preachers" who come here to 'show us stupid people how it's done'). Some have  claimed to "cure POIS" by inhaling the entire contents of a health food/nutrition store (exaggerated for highlighting my point).

They tend to take dangerous, supraphysiologic doses of steroids, including testosterone.

High dose stimulants like you describe can work at first, but eventually will drain your energy and POIS will be even worse. Uncontrolled tolerance will require ever larger doses to achieve the same effect you had initially.

I am on endocrinologically and medically  monitored doses of testosterone and LOW-DOSE stimulants and they work great now for over 2 years for me. But I've done that with a great deal of careful medical supervision and repeated bloodtesting of hormones and many other body functions, including brain scans - to make sure that the cure won't kill me!

For those with dopamine-deficiency-related POIS, cocaine might also work short term, according to my psychiatrist friend.

But we all know where THAT drug usage eventually winds up. Hint: there are very, very few - if any - longterm cocaine users with smooth sailing in terms of their mental, physical, and emotional health.

Best wishes to you going forward!! Thanks much for sharing your experience!
« Last Edit: 02/05/2011 07:41:49 by demografx »

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Offline lauracostis

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #13072 on: 02/05/2011 07:40:18 »
Hey guys I've had an interesting development about two weeks ago I was in the gym at my college working out with some ex-marines. I train with these guys 2-3 hours a day and do gymnastic level excercises. Getting to the point one of them gives me two packets of pills. One is called rocket fuel and the other is called animal cuts. Both are herbal based adrenaline and caffine boosters for increased metabolic rate and pain tolerance basically it makes you invincible for 12 hours so you can do extreme training you couldn't otherwise handle. After taking that stuff my pois symptoms have reduced by a good 60-70% and have not returned back to as they were. Anyone want to take a guess as to why this has happend? Don't try this yourself if you aren't a good athlete it will put you in the hospital if you don't keep yourself hydrated properly and monitor your heart rate.
The "Rocket Fuel" sounds tempting, but taking"Animal Cuts", I would really have to think about that for a long while

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Offline lauracostis

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #13073 on: 02/05/2011 07:52:06 »
I had something important to say, but I forgot; If I was a bodybuilder, I actually do not think I could resist buying a package on the shelf that was labeled "Animal Cuts". I advise any individual not to feed there children "Animal Cuts", not before noon at least.

post script: sorry to the original poster(monkeyboy), I had to talk about "Animal Cuts"
« Last Edit: 02/05/2011 07:55:30 by lauracostis »

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Offline monkeyboy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #13074 on: 02/05/2011 08:27:58 »
lol thats all good guys :) taking the combo of rocket fuel and animal cuts at the same time was increadibly stupid on my part the marine who takes them is 200 some odd pounds 13% body fat I'm 125lbs 4% body fat so it was about twice as powerful on me as on him so I ended up wired as hell all the way into the next morning doing pushups situps and whatever I could possibly do to try to make myself tired but it wasnt working. The hangover was brutal I about couldn't walk after so many hours of training it lol. I was fortunate a stupid decision worked out for the best it had some kind of positive effect either on my thyroid or adrenal glands that some how made me a lot better it's not just phychosomatic I can tell that there has been a dramatic change in my pois condition. I wouldn't recommend trying this if you didn't have someone with you who has athletic/nursing/medical knowlege with you for your own safety. Granted everyone is different so it's hard to say if you would have the same result but I'm grateful as hell to have over 60% of my pois symptom reduced.

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Offline Finally

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #13075 on: 02/05/2011 17:29:01 »
Hey guys I've had an interesting development about two weeks ago I was in the gym at my college working out with some ex-marines. I train with these guys 2-3 hours a day and do gymnastic level excercises. Getting to the point one of them gives me two packets of pills. One is called rocket fuel and the other is called animal cuts. Both are herbal based adrenaline and caffeine boosters for increased metabolic rate and pain tolerance basically it makes you invincible for 12 hours so you can do extreme training you couldn't otherwise handle. After taking that stuff my pois symptoms have reduced by a good 60-70% and have not returned back to as they were. Anyone want to take a guess as to why this has happend? Don't try this yourself if you aren't a good athlete it will put you in the hospital if you don't keep yourself hydrated properly and monitor your heart rate.

I have been taking supplements(vitamins, herbal etc) for 30 years from legitimate suppliers including health food stores for health problems including the mysterious condition for several years which  I now know as POIS.  I bought from legitimate scources which have access to extensive research.  Even so I took some risks against the potential rewards and always began with minimal doses at first and built up gradually and have discarded many of them when I had negative side effects.   
I go into stores like GNC and pass by the products marketed for people who want to look like Arnold Shwartzeneger in a week or Be sex God and my inbox filters out about 300 e-mails a day selling these "magic pills from  a computer in their mother's basement. 
I nearly died from drugs(Vioxx) prescribed by some "highly respected' doctors.       
I would have to be "insane' to take something handed to me by some guys in a gym whose goal in life seems to be to win some competition and then die.    Especially with names like "Rocket Fuel" or "Animal cuts".
Caffeine can be Ok for most  people having a cup of coffee in the morning but concentrated scources such as Ephedra to lose weight or is very dangerous for the heart.  A bottle of something at the local convernience store counter is not a  sustitute for sufficient sleep and rest.     

Getting POIS is like getting the Flu.  The healthier you are the better your body can deal with it.  There aren't any magical quick fix pills or we wouldn't be here.

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Offline monkeyboy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #13076 on: 03/05/2011 07:19:24 »
well I totally apprecite that opinion. I was just sharing my experience and I'm not cured but I am a lot better. I hope you guys find something that gives you relief like I found. I have a feeling that whatever happend to me was a freak thing of parameters and conditions that you won't be able to repeat even if you took the same stuff I did. I still don't get why it made me better I could understand if it made me better for a few days but its been weeks and it hasnt changed at all.

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Offline dbfd588

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #13077 on: 03/05/2011 15:37:14 »
well I totally apprecite that opinion. I was just sharing my experience and I'm not cured but I am a lot better. I hope you guys find something that gives you relief like I found. I have a feeling that whatever happend to me was a freak thing of parameters and conditions that you won't be able to repeat even if you took the same stuff I did. I still don't get why it made me better I could understand if it made me better for a few days but its been weeks and it hasnt changed at all.

I remeber someone posting who had a similar experience with 5 hour Energy I believe it was. They said they had a very severe headache and had a chalky urine discharge and it made them feel alot better. Im like you, Im not sure what happened but it would be nice to know.

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #13078 on: 03/05/2011 17:17:40 »

I could understand if it made me better for a few days but its been weeks and it hasnt changed at all.


I was once very excited and thought I found a POIS cure with Levitra, but several months later it stopped working.

Over the last 4 years here at this forum, I have seen the same old drama playing out, almost like TV reruns.

I'm not trying to be a party pooper,  but I do suggest to give any POIS remedy a serious length of time trial.

Otherwise, you could set yourself up for crushing disappointment if and when it doesn't last.
« Last Edit: 03/05/2011 17:21:08 by demografx »

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Offline daveman

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #13079 on: 03/05/2011 19:04:59 »
The body has its natural hereditary limits. When I was younger I worked my way up to a 5 day split, worked 3 to 4 hrs per day 5 days a week, avoiding any one muscle group two days in a row.

I was happy with that and the results, although they weren't Mr. America results. But what I want to say is, as monkeyboy suggests, not just everybody can do these things, and even for me it took me 3 or 4 yrs to get to the 5 day split. And you know, I felt that it was all in control.

However, now, at 60+, I'm still suffering for some of the damage I did. And especially now that I have POIS those same injuries are exagerated. I didn't feel it at the time, but as I get older, some of the old stress points are very susceptible to damage.

So you have to be more than careful. Perhaps if you're NOT a regular body builder you're safer, because you're less likely to go overboard.

Just sayin'. If you need a boost, it's your body trying to tell you somthing.

These two cases of going beyond a limit and coming out the other side better........ don't match that well with anything I know about POIS.

Like you say, it would be interesting to know what's going on, and as both of you have histories of body/building (dbfd588 too right?), there must be something particular with that association too.
How does Murphey do it??

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #13080 on: 04/05/2011 04:37:09 »
Posted at topix.com
http://m.topix.com/forum/health/allergy/T5DQV9OQBC6DBAUUG

poisperson | 6 hrs ago | Reply
Hi
Im in my early 30s and for over the last 10+ years have I been suffering bouts of fatigue, depression and muscular aches.
These bouts are triggered by an orgasm (which is somewhat embarrassing to admit).
It takes me about 5-7 days to recover from one, during which I feel tired or achy and miserable. The second and third day after an orgasm is the worst, where often I can feel ill or sometimes get a migraine. A week or two after one I feel good again.
Ive tried many different medications.
Abstinence is still the only preventative for me.
My symptoms seem identical to what is called ‘Post Orgasmic Illness Syndrome’
POIS was first described in 2002 by Dr.Marcel Waldinger a professor of sexual psychopharmacology at Utrecht University in Holland. 
Finally at start of 2011, Dr.Waldinger’s long-awaited study into POIS was published.It pointed to a semen allergy being the cause.
From press reports of the study:
For these studies, Waldinger and colleagues analyzed 45 Dutch men who were diagnosed with the illness.
33 of them agreed to undergo a standard skin-***** allergy test using a diluted form of their own semen. Of those, 29, or 88 percent, had a positive skin reaction indicating an auto-immune response, or allergic reaction.
In a second study in the same journal, Waldinger’s team decided to try treating two of the volunteers with hyposensitization therapy—a well-known technique for treating allergies, also called allergen immunotherapy, which repeatedly exposes the body to small but gradually increasing amounts of the allergen over several years. the men were given skin injections containing their own semen, at first in an extremely dilute form, and then in gradually less diluted forms. The study’s results showed that after one and three years respectively, the men showed a significant reduction in their POIS symptoms.
some of the POIS sufferers on the POIS forum have already tested positive to the Skin ***** test.
Women, of course, who are allergic to their partner’s semen, have been treated with immunotherapy for years this way.
One of the leading doctors on semen allergies, Dr. Jonathan Bernstein University of Cincinnati College of Medicine, has taken interest in this study and condition. He agrees men can be allergic to their own semen as semen is a foreign substance that can cause an immune system response in either the man's or woman's body.
He is not sure about the reliability of the skinprick test, he instead does a bloodtest to find which specific proteins his patients are allergic to, and produces a serum based on the specific protein. For women, he has had 90% success with a one-day desensitization treatment of 30 injections.
With his first male POIS patient, they are currently waiting results of a comprehensive test of the patient's human immune system including all mediators - IgE, IgM, IgG, and T-Cells
to see if theres a semen link, with the plans to have the one-day injection treatment done on the patient. 
I am looking to find an open, willing allergist to discuss my options, (but theres no semen allergy experts in UK that I am aware of.)
I
1) Simply, do you know how much a "comprehensive test of the patient's human immune system including all mediators - IgE, IgM, IgG, and T-Cells" costs in UK? It costs $2000 in america appararently
2) Is it possible to simply get this "comprehensive test" done and then getting going Sublingual Immunotherapy for ALL the proteins/allergens you prove to be allergic to? i.e can you get "SLIT" for multi-allergens?
This was an idea I had, sounds good to me, a UK doctor might not be able tell which is related to semen and which isnt, so surely dealing with them all is the best idea, assuming I am allergic to multi proteins. Even if Im not allergic to my semen then surely doing this would still boost my immune system, prehaps enough so the POIS will fade?
Sublingual therapy would be alot cheaper and practical for me 
3) any ideas/thoughts what avenue i should go..
many thanks

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Offline MrMoonJr

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #13081 on: 04/05/2011 13:23:30 »
I went to my local urologist as part of my first step towards getting an anwser to my P.O.I.S and after sitting with him and discussing my problems, he told me he had come across it in the past and had studied some aspects of it and told me about Immune Privileges. Essentially there are some parts of the body that are protected by a barrier so the immune system can not create an auto immune reaction can not harm them. He told me, he believes in the case of POIS the testicles are lacking this barrier. http://en.wikipedia.org/wiki/Immune_privilege#Testes  There is a website with more information. Check the "testes" portion of the website and please tell me your thoughts and ideas

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Offline daveman

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #13082 on: 04/05/2011 13:46:34 »
I went to my local urologist as part of my first step towards getting an anwser to my P.O.I.S and after sitting with him and discussing my problems, he told me he had come across it in the past and had studied some aspects of it and told me about Immune Privileges. Essentially there are some parts of the body that are protected by a barrier so the immune system can not create an auto immune reaction can not harm them. He told me, he believes in the case of POIS the testicles are lacking this barrier. http://en.wikipedia.org/wiki/Immune_privilege#Testes  There is a website with more information. Check the "testes" portion of the website and please tell me your thoughts and ideas

This is a very encouraging post. It´s so good to see open medical professionals who are willing to learn and really help their patientes.

Thanks.

Tell your doctor there are hundreds of sufferers on this forum alone. We have front page exposure on Google with ove a million page views. If there is any way we can help HIM, that he let us know, bringing him clients, or providing more information or just giving him some publicity!

How does Murphey do it??

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Offline CertainlyPOIS

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #13083 on: 04/05/2011 15:28:56 »
I went to my local urologist as part of my first step towards getting an anwser to my P.O.I.S and after sitting with him and discussing my problems, he told me he had come across it in the past and had studied some aspects of it and told me about Immune Privileges. Essentially there are some parts of the body that are protected by a barrier so the immune system can not create an auto immune reaction can not harm them. He told me, he believes in the case of POIS the testicles are lacking this barrier. http://en.wikipedia.org/wiki/Immune_privilege#Testes  There is a website with more information. Check the "testes" portion of the website and please tell me your thoughts and ideas

Intersting that you found a doctor that has heard of pois and somewhat agrees with dr waldinger

so have you guys decided on  a plan to help you.

I dont think it is the barrier messed up because pois dosnt start for most untill ejaculation. Ejaculation is when it leaves the barrier. in wikipedia it says that they believe the body uses more than just the barrier to keep sperm from creating immune reactions.
may be one of those mechanisim is also suppose to stop it when it leaves testicles and touch urethra, that mechanism might be what is broken.

Is he going to check if there something wrong with your barrier is that even possible
it will be cool check if the immune complex of the 'area' is in intact. 

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #13084 on: 04/05/2011 16:10:29 »
Anyone who wants Stefanie's attachment, PM me with your email. Daveman, many thanks for having placed this in our Collaborators' Database!

Hi, Demo:

I don't know if the group already knows about the following researcher:

Mitchell Ho, Ph.D
Head, Antibody Therapy Unit
Laboratory of Molecular Biology
National Cancer Institute (Don't let that frighten you--POIS not cancer. This is about his immunotherapy background.)
Building 37, Room 5002C
37 Convent Drive, MSC 4264
Bethesda, MD 20892-4264
Phone: 301-451-8727
Email: homi@mail.nih.gov

I've attached a post from him that was on a website called, "Mad Scientists," (sound a little familiar?).  I yellow-highlighted the parts that I found significant. He's responding to a question that was posed (not POISED!) about auto-immunity to semen. He states that there is a potential to develop semen autoimmunity after vasectomies--that the "plumbing" (my word) should be a closed system so that semen does not mix with the blood -- but that some men who have had vasectomies have developed autoimmune disorders (because the system apparently left an excape hatch for semen).  I believe he was referring specifically to the development of MS symptoms here, and possibly diabetes (both autoimmune disorders).

I know that the POIS group is already aware of the potential for a semen autoimmune response after a vasectomy has been performed.  However, do you know specifically about Dr. Ho?  He might be helpful in tracking down a semen autoimmunity researcher who is open-minded enough to consider POIS.

I'm considering contacting him to find out if he knows anyone in the US (or in the world--other than Dr. Waldinger) who is researching semen autoimmunity in general, and may be willing to test for it.

In fact, I will definitely contact him--and let you know if he responds-- negatively or positively--or not at all. 

There may be a physical "escape mechanism"--congenital perhaps--that allows semen to get into the bloodstream and wreak the havoc known as POIS.  I know that many of the men on this forum did not have vasectomies, yet have POIS, so this post is not  geared to only those of you who have had vasectomies.

FYI, Dr. Ho is described as a "PhD" student in the attachment at the time he wrote that post. (I think the year was 2000).  He is definitely not a student now, and is literally a lead scientist and a highly evolved researcher at the National Cancer Institute.  His focus at NCI is the immunology behind certain cancers and the potential for immunotherapy as a treatment.

Just to repeat--POIS has nothing to do with cancer.  It's Dr. Ho's immunology expertise, combined with the potential of immunotherapy as a treatment for POIS--and the fact that he actually believes (or, at least, believed) that autoimmunity to semen (not just sperm--semen!) does exist--that makes him a "person of interest." 

And he's in the US, making it much easier for some of us to contact him!

The only way to find out is to ask!


Sincerely,
 
Stefanie Putkowski, RN, BSN
Clinical Information Specialist
Research Program Administrator
National Organization for Rare Disorders
55 Kenosia Avenue
PO Box 1968
Danbury, CT 06813-1968

Phone: 203.744.0100
Toll Free: 1-800-999-6673
Fax: 203.798.2291
email: rn@rarediseases.org
http://www.rarediseases.org


Join our online community
http://nord.clinicahealth.com/
 
NORD Subscription Service
http://www.rarediseases.org/programs/subscriptions
 
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« Last Edit: 04/05/2011 16:12:26 by demografx »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #13085 on: 04/05/2011 17:32:50 »
Prof. dr. Waldinger status

Some of the forum members/readers here have had difficulty in communicating with Dr. Waldinger, such as not getting a reply with his 2011 papers.

I spoke to him, and while he is very committed to POIS, he has many obligations that keep him extremely busy, such as teaching PhD's, medical responsibilities with hospital patients, writing/publishing papers in other areas of sexual medicine, conference presentations, and much more.

Keep in mind that his POIS funding is like ours: bootstrap. Which is another way of saying self-funded.

He will proceed with the POIS surveys, but that might take several months to get going

If you write to him asking for the 2011 research study papers and get no reply, PM me with your email and I will send it ASAP.

« Last Edit: 04/05/2011 17:35:32 by demografx »

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Offline CertainlyPOIS

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #13086 on: 04/05/2011 18:57:38 »
Am just curious when the other forum gets bigger and starts becoming more of the focus of attention, it is going to result in NSF traffic reducing which will result in NSF loosing its ranking in search engines.  i was wondering if there is a plan for that in the future.
I know one way is to index the new site in google and also find ways to broadcast the site around the internet and also volume helps.

I remeber it took three years before NSF went up to number 1/ number 2, we cant afford that with the new forum, if it is becomes the main focus.

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Offline daveman

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #13087 on: 04/05/2011 20:17:05 »
Am just curious when the other forum gets bigger and starts becoming more of the focus of attention, it is going to result in NSF traffic reducing which will result in NSF loosing its ranking in search engines.  i was wondering if there is a plan for that in the future.
I know one way is to index the new site in google and also find ways to broadcast the site around the internet and also volume helps.

I remeber it took three years before NSF went up to number 1/ number 2, we cant afford that with the new forum, if it is becomes the main focus.

Yes, there has been a lot of attention given to this.

The new forum has it's own code, so it's possible to apply most if not all of the Search Engine Optimizations. This will allow a much faster penetration than NSF had. The NSF situation, although NSF itself has high traffic, was a difficult Search Engine (SE) exposure project for POIS. There was no way to highlight our input and we basically had to build the numbers and transactions, almost as though we were a normal page. Being able to apply SE Optimization (SEO) permits a 4:1 advantage +/-.

Cross referencing will also be important. We expect first of all, that NSF will be around for some time, although that may involve an accompaying change in focus for each.

Also our position took time to build, it also takes time to decay. Google statistics are managed as a fairly wide sliding window. This means even if it were to stop dead now, it would have a history for some time, although clearly diminishing. In the transition we would ideally send newbies found through Google to the new site.

And thirdly as you mention, we would require a mini-marketing campaign to get the new site up on as many boards and media outlets as possible. There must be a marketing expert around here somewhere. [;D]

My estimate is that a transition should ideally take about a year. It could be shorter, but it would be better to aim for the year. With the SE enhancement, and in the event of poor results, paid advertising (really not too expensvie for our requirements), we can have the same or better exposure than we have now.

One other aspect is quite importatnt. We NEED a WWW domain and hosting. These two things will be necesary to implement coordinated union of existing resources and provide a consistent and more stable entity identification.

One year of hosting with domain name has a cost of about $190. We need a volunteer!! I just can't right now. I hope to be able to take the cost over in the next year.

Thanks for asking!



« Last Edit: 04/05/2011 20:20:10 by daveman »
How does Murphey do it??

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #13088 on: 04/05/2011 20:58:44 »

Am just curious when the other forum gets bigger and starts becoming more of the focus of attention, it is going to result in NSF traffic reducing which will result in NSF loosing its ranking in search engines.  i was wondering if there is a plan for that in the future.
I know one way is to index the new site in google and also find ways to broadcast the site around the internet and also volume helps.

I remeber it took three years before NSF went up to number 1/ number 2, we cant afford that with the new forum, if it is becomes the main focus.


CC, many thanks for bringing this up. It is a major area of interest as Daveman points out.

Daveman, thank you for assuring that in the transition we will not lose our ranking at Google.

Google is the lifeline for any newcomer. I'm certain that's how most of us got here.

« Last Edit: 04/05/2011 21:08:19 by demografx »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #13089 on: 04/05/2011 21:04:45 »

[You have POIS?]See a shrink for your mental health!

Answer by  NickP


Thanks Nick. We're all crazy. We can close the forum now.
And yes I would like fries with that.



 [;D] [;D] [;D]

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Offline Willem

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #13090 on: 05/05/2011 01:19:54 »
Horizon asked me to post the location where I got my test done:

The test was done at the San Diego location of the Allergy and Asthma clinic:

http://www.allergyandasthma.com/

Test was performed by Dr. Greiner.  Super cool guy, but just not familiar with this condition.  I wish I'd been on this forum longer as I would have been better prepared. 

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Offline daveman

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #13091 on: 05/05/2011 13:05:41 »
Horizon asked me to post the location where I got my test done:

The test was done at the San Diego location of the Allergy and Asthma clinic:

http://www.allergyandasthma.com/

Test was performed by Dr. Greiner.  Super cool guy, but just not familiar with this condition.  I wish I'd been on this forum longer as I would have been better prepared. 

Willem,
We also have a database here where we can find (and/or insert) medical collaborators in our area
How does Murphey do it??

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Offline martin88

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #13092 on: 05/05/2011 14:05:11 »
As it was recently mentionned some people were not sure to have sperm... I think it's possible to see sperm with a microscope with a 40x objective and 400x magnification according to this link: http://www.fertilityformen.com/products_microscopes.php
Also there's a 80$ microscope kit to do several home sperm count and motility test:
http://www.fertilityformen.com/products_micra.php

After taking that stuff my pois symptoms have reduced by a good 60-70% and have not returned back to as they were. Anyone want to take a guess as to why this has happend?
It would be good to try some of the ingredients separately. 70% relief is great, hope it will continue.


Am just curious when the other forum gets bigger and starts becoming more of the focus of attention, it is going to result in NSF traffic reducing which will result in NSF loosing its ranking in search engines.  i was wondering if there is a plan for that in the future.
I know one way is to index the new site in google and also find ways to broadcast the site around the internet and also volume helps.
I remeber it took three years before NSF went up to number 1/ number 2, we cant afford that with the new forum, if it is becomes the main focus.
I think you bring up a very important point CC, there are already several new keywords present at the new forum, and not at NSF.
Because the new forum is not in Google, someone who will search for one of those keywords in Google won't find us!
For now it's not possible to advertise the new forum because there's no domain name,  the actual IP address can change if the host must be replaced.
After submitting the forum to Google it will take at least 6 months to one year  (or more) to appear in the top, if possible.

A domain name is 9$/year and can be linked to any IP address including the actual host. A good host with unlimited traffic and mysql database is 25$/year.
But still remains the problem with the categories not accepted by the majority!

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Offline Nightingale

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #13093 on: 05/05/2011 16:30:23 »
Quote
Anyone who wants Stefanie's attachment, PM me with your email. Daveman, many thanks for having placed this in our Collaborators' Database!

Stephanie Putkowski

Stephanie is a great supporter of our cause, I am working with her on getting more contacts/testers/researchers interested.  This guy sounds cool, especially since Bethesda is not far from where I live.  The National Institutes of Health is there too.

I nor Mrs. Putkowski have found someone who can test for semen allergy in my area yet.  She is working on it!

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Offline Nightingale

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #13094 on: 05/05/2011 16:33:01 »
Horizon asked me to post the location where I got my test done:

The test was done at the San Diego location of the Allergy and Asthma clinic:

http://www.allergyandasthma.com/

Test was performed by Dr. Greiner.  Super cool guy, but just not familiar with this condition.  I wish I'd been on this forum longer as I would have been better prepared. 

Was this done as to Waldinger's specs?  What was the result?

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #13095 on: 05/05/2011 17:38:09 »

I think it's possible to see sperm with a microscope with a 40x objective and 400x magnification


No wonder I couldn't see them with my magnifying glass!

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Offline Vincent M

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #13096 on: 05/05/2011 18:41:01 »
Just took my first 250 mg pill of Relora. I plan on taking one pill 3 times a day. I'll document any progress in a more detailed fashion at the other forum.
Taking fenugreek+tea/garlic, saw palmetto, huperzine, niacin, boswellia, and nutmeg.

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Offline daveman

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #13097 on: 05/05/2011 19:08:53 »

I think it's possible to see sperm with a microscope with a 40x objective and 400x magnification


No wonder I couldn't see them with my magnifying glass!

Really good idea Martin. A telescope like that  is cheap!

A sperm count is usually done by counting the number of sperm in a graduated area of the "slide", and multiplying it by a factor.

With a cheapy microsccope, I don't think it's possible to see the graduated area (is it?) and how would such a graduated area be created? Maybe with a carefully made tranparency put on top of the specimen. Then one would have to calculate the volume in the space below the "transpancy" and multiply by a factor to get count per/ml or whatever units they use.

But If we just want to know yes or no... obviously much easier.

Still would be fun to experiment, as long as it didn't mean POIS every time!
How does Murphey do it??

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #13098 on: 06/05/2011 03:40:42 »

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Offline Animus

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #13099 on: 06/05/2011 04:58:44 »
Just a friendly reminder!:

The POIS episode on TLC (The Learning Channel in USA) is scheduled to air May 22nd- this month!!
10pm Eastern Standard. Set your calendars!

I haven't seen it yet, so I'll be seeing it for the first time too.
« Last Edit: 06/05/2011 07:04:35 by Animus »