Post Orgasmic Illness Syndrome (POIS)

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Offline daveman

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #13100 on: 06/05/2011 14:24:05 »
Just a friendly reminder!:

The POIS episode on TLC (The Learning Channel in USA) is scheduled to air May 22nd- this month!!
10pm Eastern Standard. Set your calendars!

I haven't seen it yet, so I'll be seeing it for the first time too.


I've got Discovery, National Geographic and History Channel. I suppose it's not on any of those. I dont' think I've seen it on Discovery for instance. There's a program called Tabu where they have "Different Lifestyles and practices". And it seems I've seen a program of "different sex" too, but I'm not sure it's the same, and in any case, it only comes on every once in a while.

How does Murphey do it??

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Offline Willem

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #13101 on: 06/05/2011 18:08:30 »
Interesting. Another POIS Forum at eHealth Forums
http://ehealthforum.com/health/post-orgasmic-illness-syndrome-t177210.html
Yeah, I remember this epic battle...
When you see the stupidity and the sectarianism of mr W.  you are not surprised we had to wait until 2011 to understand Pois. And most of doctors i have met are like him...
"The Earth is flat until a Nobel Prize tells me that, no, it is round ..."
Too bad Wolf and CuredofPois haven't joined us over here to spice things up. :)  Way to go B_Jim for holding your own.  I myself just suffered in silence, but you fought the good fight.  For Mr. W, it's one thing not to know (like most Dr's I've visited), another to be strongly convicted in your ignorance. 

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #13102 on: 06/05/2011 19:43:52 »
Interesting. Another POIS Forum at eHealth Forums
http://ehealthforum.com/health/post-orgasmic-illness-syndrome-t177210.html
Yeah, I remember this epic battle...
When you see the stupidity and the sectarianism of mr W.  you are not surprised we had to wait until 2011 to understand Pois. And most of doctors i have met are like him...
"The Earth is flat until a Nobel Prize tells me that, no, it is round ..."

That idiot doctor you battled on that website epitomizes the double nightmare we all go through: (1) POIS itself, then (2) stupid doctors like this one!!!

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #13103 on: 06/05/2011 20:09:22 »
Just a friendly reminder!:

The POIS episode on TLC (The Learning Channel in USA) is scheduled to air May 22nd- this month!!
10pm Eastern Standard. Set your calendars!

I haven't seen it yet, so I'll be seeing it for the first time too.


I've got Discovery, National Geographic and History Channel. I suppose it's not on any of those. I dont' think I've seen it on Discovery for instance. There's a program called Tabu where they have "Different Lifestyles and practices". And it seems I've seen a program of "different sex" too, but I'm not sure it's the same, and in any case, it only comes on every once in a while.



Dave, Animus' show will only be available - down your way -  to qualified  curanderos. But, take heart,  there is still time for you to brush up on Chile's 'Modern Medical Witchcraft'  Final exams!

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Offline daveman

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #13104 on: 06/05/2011 20:37:54 »
Just a friendly reminder!:

The POIS episode on TLC (The Learning Channel in USA) is scheduled to air May 22nd- this month!!
10pm Eastern Standard. Set your calendars!

I haven't seen it yet, so I'll be seeing it for the first time too.


I've got Discovery, National Geographic and History Channel. I suppose it's not on any of those. I dont' think I've seen it on Discovery for instance. There's a program called Tabu where they have "Different Lifestyles and practices". And it seems I've seen a program of "different sex" too, but I'm not sure it's the same, and in any case, it only comes on every once in a while.



Dave, Animus' show will only be available - down your way -  to qualified  curanderos. But, take heart,  there is still time for you to brush up on Chile's 'Modern Medical Witchcraft'  Final exams!

Problem is, you gotta' write the exam after swallowing this sort of brown/green colored liquid they squeeze from tree bark. No wait, THAT's the exam... if you come through that, they give you the certificate. By that time though, the paper don't mean squat.......  the world has changed!
How does Murphey do it??

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #13105 on: 06/05/2011 22:11:45 »
  [;D] [;D] [;D]

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Offline horizon

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #13106 on: 06/05/2011 22:29:21 »
History of testicular immunology

460-377 BC Hippocrates described testicular inflammation associated with mumps

1785 Hunter and Michaelis performed transplant experiments in domestic chickens

1849 Berthold transplanted testes between roosters and showed maintenance of male sex characteristics only in birds with successfully grafted testes

1899-1900 Sperm recognized as immunogenic (will cause an autoimmune reaction if transplanted from the testis into a different area of the body) by Lansteiner (1899) and Metchinikoff, (1900)

1913-1914 Human testis transplants performed by Lespinasse (1913), and Lydson (1914) who performed a graft on himself!

1954 Discovery that sperm autoantibodies contribute to infertility,

1977 Billingham recognized that the testis is site of immune privilege



Immune privilege in the testis
Sperm are immunogenic - that is they will cause an autoimmune reaction if transplanted from the testis into a different part of the body. This has been demonstrated in experiments using rats by Lansteiner (1899) and Metchinikoff (1900) , mice and guinea pigs . The likely reason for this is that sperm first mature at puberty, after immune tolerance is established, therefore the body recognizes them as foreign and mounts an immune reaction against them. Since sperm do not die in the testis, mechanisms for their protection must exist in this organ. The blood-testis barrier is likely to contribute to the survival of sperm. However, it is believed in the field of testicular immunology that the blood-testis barrier cannot account for all immune suppression in the testis, due to (1) its incompleteness at a region called the rete testis and (2) the presence of immunogenic molecules outside the blood-testis barrier, on the surface of spermatogonia . Another mechanism which is likely to protect sperm is the suppression of immune responses in the testis . Both the suppression of immune responses and the increased survival of grafts in the testis have led to its recognition as an immunologically privileged site. Other immunologically privileged sites include the eye, brain and uterus.



please read all of this..
http://www.reference.com/browse/testicular+immunology

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Offline B_Daniel

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #13107 on: 07/05/2011 02:16:02 »
Hey Everyone!  This is my first post!  I'm 27 and have only this month found out that I've been suffering from POIS since puberty.  I'd never gone more than 2 days without masturbating so I never knew life could be lived without being tongue tied, awkward in social settings, and basically down in the dumps almost every day.  My life has completely changed this month as I've powered through the urge to P&M (porn and masturbate) and gotten to the other side- And I never want to go back. 

Over the last 2 yrs I have been seeing a psychiatrist, believing that I just had depression.  So needless to say, I've gone through some Medications - none of which worked - But would like to offer up all this info as my own personal testimonial into "What Does NOT work".  here goes:

Nefazodone (SNRI)
Pristiq (SNRI)- note, i thought it worked for a month.  Positive effects gone after that.
EMSAM (MAO inhibitor - took through a transdermal patch)

I've also tried a bunch of Nooptropics (smart drugs)over the years as I thought I was a moron. 
Gamalate B6 60 x 250mg TABS
GH3-Pro (Gerovital, Procaine) 60 x 100mg TABS
L-Tryptophan 500 50 x 500mg CAPS
Vinpocetine 50 x 5mg TABS
Epanutin-25 28x25mg CAPS
Pregnenolone - 25 90 x 25mg CAPS
Hydergine Liquid 40ml 40mg LIQUID
Anacervix 30 x 420mg CAPS
Epanutin 100 100 x 100mg TABS
Olmifon 40 x 300mg TABS
Picamilone 60 x 50mg TABS
Jumex 50 x 5mg TABS

What a massive waste of money.  I don't even recall what half that stuff was "supposed" to do. 

I want to spend my time on these posts searching for a cure - not merely chatting, but as this is my first post I just first-off want to say that I love every one of you guys.  Every thought you've written - from feeling as if life was miserable and worthless OR feeling f'in pissed off to have lost so many yrs of your life OR wanting to smack ppl online that will categorically assert that masturbating is good for everybody - I've been there.  I can relate with you all on those issues.  Who knows where i'd be or what I'd be doing with my life right now if I had had more than a fogged up ball of play-dough for a brain the last ten years.  AGGHHHH!  Oh, and just to say it - I had 0 negative sexual encounters in my youth.  I know it's an oft debated subject on this site, and I just want to weigh in and say that I reallllly don't think that's our issue. 

B_Jim - You're one of my heroes for all your fantastic posts I've been reading the last few weeks.  My username is a tribute, if it's okay with you.

Now on to what i do know about the CURE for this condition (I discuss recreational drug use below and apologize in advance for offending anyone).

The only time in my life that I have completely dropped every symptom of POIS was when I tried the drug Ecstasy.  This may be simply because we've all found that stimulants can temporarily help.  I was thinking though that Ecstasy is one of the only ways to increase Oxytocin - so I wonder whether the answer could be linked to Oxytocin for us.  Oxytocin doesn't cross the blood/brain barrier so there aren't many ways to increase the body's supply.  Another effective way is through the drug GHB.  Studies of GHB are very positive http://www.biopsychiatry.com/ghb/authentic.html it's just illegal because it can be used the wrong way. Does anyone have any experience on it?  GHB is now produced as the prescription drug called Xyrem, used to treat narcolepsy. 

Thank you everyone.  I look forward to joining arms with ya'll on the battlefield against this Monster.
« Last Edit: 07/05/2011 06:12:22 by B_Daniel »
2-5 days, 80% cognitive, tongue-tied, brain fog, lose track of thoughts mid conversation, anxiety, dry eyes, irritable, fatigue.  Believer of both auto-immune AND regeneration theories.  My sessions are much shorter when I've gone 2 wks without.

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Offline B_Daniel

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #13108 on: 07/05/2011 02:17:21 »
sorry to interrupt your good post Horizon!
2-5 days, 80% cognitive, tongue-tied, brain fog, lose track of thoughts mid conversation, anxiety, dry eyes, irritable, fatigue.  Believer of both auto-immune AND regeneration theories.  My sessions are much shorter when I've gone 2 wks without.

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Offline daveman

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #13109 on: 07/05/2011 12:41:50 »
Man, I have to say, we are really very sophisticated...

It's obvious that the medical profession needs a case of POIS.....

Maybe with what we know, we can induce it in them temporarily.... perhaps then, they might understand.

How does Murphey do it??

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Offline daveman

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #13110 on: 07/05/2011 12:54:01 »
Horizon,

It absolutely blows me away that in the face of such knowledge about sperm being immunologic, that the doctors can't see that it's a perfect reason in support of our theories for what is happening to us.

Some even site the fact (that sperm is immunologic, and that it is in a protected area), as being the reason that is POIS impossible. Fu...n ignorant ba....ds!

Can't they see. We have to scream to them:
WE'VE GOT A RARE SYNDROME. IN OUR CASE, A RARE CASE WHERE [you pig-headed S.O.B] THE SPERM FOUND A WAY ACROSS THE BLOOD-BARRIER.

They have to admit that IF it crossed the barrier we'd suffer POIS. They'd HAVE to prove how that's so freaken impossible.....

Do I sound a little upset!!???

How does Murphey do it??

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Offline John21

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Post Orgasmic Illness Syndrome (POIS)
« Reply #13111 on: 07/05/2011 15:47:07 »
Quote
B_Jim - You're one of my heroes for all your fantastic posts I've been reading the last few weeks.  My username is a tribute, if it's okay with you.

Ditto!

B_Jim's efforts have been an inspiration to me in my own vain attempts to understand POIS.  I just read some of the commentary with WOLF last year, you are composed in the face of ignorance and insult. It is human nature to allow anger to enter in when faced with derisive responses, yet you do an honorable job in sticking to the facts, a true POIS apologist!

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Offline bruxe

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« Reply #13112 on: 07/05/2011 15:57:39 »
hi

longtime don't come here    "sorry for my broken English" [;D]


i was surprised when i discovered that my mother also has p.o.i.s syndrome

I thought that the p.o.i.s is related only to men...is it hereditary?

if women can also  get p.o.i.s ....can "THE broken BLOOD-BARRIER" explains the women's p.o.i.s?

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Offline John21

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« Reply #13113 on: 07/05/2011 16:06:13 »
I once again have the growing suspicion that the prostate is the seat of our troubles. Look at how similar our symptoms are to these.

Quote
Men who suffer from prostatitis can also experience symptoms such as fatigue, discoloration in the semen, impaired memory, pain in the lymph nodes and susceptibility to colds.

This is always one of the first things I have often experienced: discomort in the neck lymph nodes and quickly catching a cold. Impaired memory is definately bang on as well. And while I have not experienced physical fatigue others here do.

I am now taking a saw palmetto based prostate herbal suppliment. I had tried it years ago with no apparent success, but I am wondering if I didn't take it for a long enough duration. Limited blood flow to the area seems to require a long treatment time. I am also doing the pelvic floor exercises daily. Nothing much, just a few simple streaches daily, but it doesn't take much to feel that the area has been exercised.

So how could the prostate fit with an immune reaction? If the prostate becomes inflammed for some reason perhaps this would be enough for blood/semen to mix? This would make POIS another form of chronic prostatis. Is this possible?

Has anyone here had any benefit from taking alpha blockers?
« Last Edit: 07/05/2011 17:17:41 by John21 »

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Offline John21

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« Reply #13114 on: 07/05/2011 16:11:59 »
hi

longtime don't come here    "sorry for my broken English" [;D]


i was surprised when i discovered that my mother also has p.o.i.s syndrome

I thought that the p.o.i.s is related only to men...is it hereditary?

if women can also  get p.o.i.s ....can "THE broken BLOOD-BARRIER" explains the women's p.o.i.s?

It would be interesting to know if she has a semen allergy. It is probably not an easy thing for a son to ask her if it only happens without contraceptives.

What ever happened to Girlwind? Haven't heard boo from her here since she made the Youtube video, hope she is ok.

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Offline janiv

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« Reply #13115 on: 07/05/2011 16:29:16 »
Hi Horizon,very interesting....I like that theory, Thanks !
What I understand from that is that every man is potentially to have POIS, meaning that if we'll perform the allergy test on anyone that doesn't have POIS - he should react because sperm is proved [on animals, according to the article and even also few people that participated on Dr Waldinger research] to be recognized as immunogenic.

They suggested some failure mechanism why the sperm might slip to the blood, I wonder if there's any way to Test that.

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Offline bruxe

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« Reply #13116 on: 07/05/2011 17:32:04 »
Quote
Quote
hi

longtime don't come here    "sorry for my broken English"


i was surprised when i discovered that my mother also has p.o.i.s syndrome

I thought that the p.o.i.s is related only to men...is it hereditary?

if women can also  get p.o.i.s ....can "THE broken BLOOD-BARRIER" explains the women's p.o.i.s?

It would be interesting to know if she has a semen allergy. It is probably not an easy thing for a son to ask her if it only happens without contraceptives.

semen allergy  ? ...is unlikely. She is not young. .. 60years old and single ...
.
.
.   
 this syndrome become more and more  enigmatic and mysterious puzzle  [::)]even Kaspadinger won't resolve it [:D]..................

Kaspadinger ="Kasparov+Waldinger"

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Offline daveman

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« Reply #13117 on: 07/05/2011 21:53:42 »
hi

longtime don't come here    "sorry for my broken English" [;D]


i was surprised when i discovered that my mother also has p.o.i.s syndrome

I thought that the p.o.i.s is related only to men...is it hereditary?

if women can also  get p.o.i.s ....can "THE broken BLOOD-BARRIER" explains the women's p.o.i.s?

It would be interesting to know if she has a semen allergy. It is probably not an easy thing for a son to ask her if it only happens without contraceptives.

What ever happened to Girlwind? Haven't heard boo from her here since she made the Youtube video, hope she is ok.

.. or to ask your Mom if she has it if she masturbates..... But if she;s willing to talk about POIS, she might open up.

The question really being, is she allergic to your Dad's sperm or to her own system....?
Important difference. And relevent.

How does Murphey do it??

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Offline horizon

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« Reply #13118 on: 07/05/2011 21:57:06 »
Those scientists in Utrecht come up with the goods again..


http://www.bbc.co.uk/news/health-13294022

Coffee, sex and blowing your nose could increase the risk of a type of stroke, say researchers in the Netherlands.
The study on 250 patients identified eight risk factors linked to bleeding on the brain.
They all increase blood pressure which could result in blood vessels bursting, according to research published in the journal Stroke.
The Stroke Association said more research was needed to see if the triggers caused the rupture.
More than 150,000 people in the UK have a stroke each year with nearly 29,000 due to bleeding on the brain.
Bleeding can happen when a weakened blood vessel, known as a brain aneurysm, bursts. This can result in brain damage or death.
The researchers at the University Medical Center in Utrecht looked at 250 patients for three years to identify what triggers ruptures.
Caffeine danger
They found that coffee was responsible for more than one in 10 burst brain aneurysms.
Continue reading the main story
Percentage of bursts due to:
Coffee 10.6%
Vigorous exercise 7.9%
Nose blowing 5.4%
Sex 4.3%
Straining to defecate 3.6%
Drinking cola 3.5%
Being startled 2.7%
Being angry 1.3%
While people drinking coffee had only a 1.7 times greater risk, it is more common than other risk factors.
Being startled increased the risk by more than 23 times, but was responsible for just 2.7% of cases.
Dr Monique Vlak, a neurologist and the study's lead author, said: "All of the triggers induce a sudden and short increase in blood pressure, which seems a possible common cause for aneurysmal rupture."
Lower risk
The authors said one in 50 people has a brain aneurysm, but only a few rupture.
Dr Vlak advised that: "Reducing caffeine consumption or treating constipated patients with unruptured intracranial (brain) aneurysms with laxatives may lower the risk of subarachnoid haemorrhage."
The study only looked at the triggers for the burst. High blood pressure weakens blood vessels in the first place and can be caused by being overweight, smoking and a lack of exercise.
Dr Sharlin Ahmed, Research Liaison Officer at The Stroke Association said: "A sudden surge in high blood pressure can increase the likelihood of an aneurysm rupturing. However, it's very difficult to determine whether the triggers identified in this study are definitely related to the onset of a stroke as they could simply be put down to coincidence.
"A lot more research needs to be carried out to assess whether each of the identified triggers could directly cause an aneurysm to rupture."
« Last Edit: 07/05/2011 21:58:37 by horizon »

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Offline daveman

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« Reply #13119 on: 07/05/2011 22:03:25 »
I once again have the growing suspicion that the prostate is the seat of our troubles. Look at how similar our symptoms are to these.

Quote
Men who suffer from prostatitis can also experience symptoms such as fatigue, discoloration in the semen, impaired memory, pain in the lymph nodes and susceptibility to colds.

This is always one of the first things I have often experienced: discomort in the neck lymph nodes and quickly catching a cold. Impaired memory is definately bang on as well. And while I have not experienced physical fatigue others here do.

I am now taking a saw palmetto based prostate herbal suppliment. I had tried it years ago with no apparent success, but I am wondering if I didn't take it for a long enough duration. Limited blood flow to the area seems to require a long treatment time. I am also doing the pelvic floor exercises daily. Nothing much, just a few simple streaches daily, but it doesn't take much to feel that the area has been exercised.

So how could the prostate fit with an immune reaction? If the prostate becomes inflammed for some reason perhaps this would be enough for blood/semen to mix? This would make POIS another form of chronic prostatis. Is this possible?

Has anyone here had any benefit from taking alpha blockers?


I'm with you. I don't think we give the prostate enough attention. How or in what way it might be involved.. I wouldn't even want to say at this point. But we talk about it fairly infrequently.

I don't experience the symptoms as they are described here, although from time to time, and only sometimes I have swollen lymph nodes. My neck pain is in the bones, not the lymph nodes. and I WISH I was tired more often. But the prostate often gets swollen. Maybe 50% of the time.
So it's IN the equation.... although I'm THAT age. (POIS started before THAT age though)
How does Murphey do it??

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Offline John21

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« Reply #13120 on: 07/05/2011 23:39:21 »
I once again have the growing suspicion that the prostate is the seat of our troubles. Look at how similar our symptoms are to these.

Quote
Men who suffer from prostatitis can also experience symptoms such as fatigue, discoloration in the semen, impaired memory, pain in the lymph nodes and susceptibility to colds.

This is always one of the first things I have often experienced: discomort in the neck lymph nodes and quickly catching a cold. Impaired memory is definately bang on as well. And while I have not experienced physical fatigue others here do.

I am now taking a saw palmetto based prostate herbal suppliment. I had tried it years ago with no apparent success, but I am wondering if I didn't take it for a long enough duration. Limited blood flow to the area seems to require a long treatment time. I am also doing the pelvic floor exercises daily. Nothing much, just a few simple streaches daily, but it doesn't take much to feel that the area has been exercised.

So how could the prostate fit with an immune reaction? If the prostate becomes inflammed for some reason perhaps this would be enough for blood/semen to mix? This would make POIS another form of chronic prostatis. Is this possible?

Has anyone here had any benefit from taking alpha blockers?


I'm with you. I don't think we give the prostate enough attention. How or in what way it might be involved.. I wouldn't even want to say at this point. But we talk about it fairly infrequently.

I don't experience the symptoms as they are described here, although from time to time, and only sometimes I have swollen lymph nodes. My neck pain is in the bones, not the lymph nodes. and I WISH I was tired more often. But the prostate often gets swollen. Maybe 50% of the time.
So it's IN the equation.... although I'm THAT age. (POIS started before THAT age though)


It started for me at around age 11-12, not exactly what one would think as being a potential prostate problem. But maybe our expectations are wrong, and young people can have afflictions of the prostate.

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Offline John21

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« Reply #13121 on: 08/05/2011 10:55:50 »
I also would love to see the TLC program online somehow, I don't currently have cable.

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Offline Animus

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« Reply #13122 on: 09/05/2011 05:04:20 »
John21 and B_Jim, I will be getting a dvd copy of the show after it airs. Once I do, I'll see if I can try to get it to those of you who want to see it! Or somehow upload it.  Thanks!
« Last Edit: 09/05/2011 05:09:41 by Animus »

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Offline John21

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« Reply #13123 on: 09/05/2011 09:58:27 »
John21 and B_Jim, I will be getting a dvd copy of the show after it airs. Once I do, I'll see if I can try to get it to those of you who want to see it! Or somehow upload it.  Thanks!

That's fantastic, thank you!
« Last Edit: 09/05/2011 10:00:21 by John21 »

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Offline demografx

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« Reply #13124 on: 09/05/2011 20:19:52 »
Google Alert

Web   1 new result for Postorgasmic Illness Syndrome
http://www.tripdatabase.com/doc/1202217-Allergy--Postorgasmic-illness-syndrome--POIS----local-allergic-symptoms-and-transient-flu-like-illness

Allergy Postorgasmic illness syndromePOIS local allergic symptoms ...
Allergy Postorgasmic illness syndromePOIS local allergic symptoms and transient flulike illness in men httpgooglfbEWL2c. Allergyon Twitter 2011 ...
« Last Edit: 09/05/2011 20:22:07 by demografx »

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Offline demografx

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« Reply #13125 on: 09/05/2011 20:21:16 »
John21 and B_Jim, I will be getting a dvd copy of the show after it airs. Once I do, I'll see if I can try to get it to those of you who want to see it! Or somehow upload it.  Thanks!

That's fantastic, thank you!

Thank you again!

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Offline demografx

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« Reply #13126 on: 09/05/2011 21:18:19 »

I also would love to see the TLC program online somehow, I don't currently have cable.


You think that YOU have problems?? Daveman will be trying to play the DVD on his 45 rpm turntable, wondering why it doesn't make any sound!!

« Last Edit: 09/05/2011 21:25:44 by demografx »

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Offline demografx

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« Reply #13127 on: 09/05/2011 22:19:58 »
Demo,

I received this Google alert today for POIS --
http://allergynotes.blogspot.com/2011/05/postorgasmic-illness-syndrome-pois.html

The author (this is the important part!) is Dr. Ves Dimov -- http://www.uchicagokidshospital.org/physicians/ves-dimov.html.  He would definitely not put his reputation at stake by writing about some imaginary illness called POIS.  He apparently takes it very seriously.

Not shabby -- at all!

POIS has now officially gone mainstream, as far as I'm concerned. :-)  The University of Chicago is a GREAT medical/research hospital--we have awarded several research grants there because of the quality of their research.

Do you men know about him already??

I'll be happy to write to him about potential testing for POIS, etc -- but would you prefer to write??

Stefanie



Sincerely,
 
Stefanie Putkowski, RN, BSN
Clinical Information Specialist
Research Program Administrator
National Organization for Rare Disorders
55 Kenosia Avenue
PO Box 1968
Danbury, CT 06813-1968
Phone: 203.744.0100
Fax: 203.798.2291
email: rn@rarediseases.org
http://www.rarediseases.org
 
Join our online community
http://nord.clinicahealth.com/
 
NORD Subscription Service
http://www.rarediseases.org/programs/subscriptions

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Offline daveman

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« Reply #13128 on: 10/05/2011 01:39:07 »

I also would love to see the TLC program online somehow, I don't currently have cable.


You think that YOU have problems?? Daveman will be trying to play the DVD on his 45 rpm turntable, wondering why it doesn't make any sound!!



What's a DVD?
How does Murphey do it??

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Offline demografx

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« Reply #13129 on: 10/05/2011 01:51:44 »
 [;D] [;D] [;D]

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Offline hurray

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« Reply #13130 on: 10/05/2011 14:39:30 »
Am just curious when the other forum gets bigger and starts becoming more of the focus of attention, it is going to result in NSF traffic reducing which will result in NSF loosing its ranking in search engines.  i was wondering if there is a plan for that in the future.
I know one way is to index the new site in google and also find ways to broadcast the site around the internet and also volume helps.

I remeber it took three years before NSF went up to number 1/ number 2, we cant afford that with the new forum, if it is becomes the main focus.

Hi CCconfucius,

Huge though our thread is, the POIS posts only account for a fraction of their overall traffic. TNS has an enormous PageRank of 7/10 - by comparison, the Yahoo directory has a PageRank of 8/10 (10/10 only goes to the likes of Google, Youtube and Facebook). There is so much POIS-related unique content on this forum that this thread will always rank highly for POIS and its accompanying symptoms.

No matter how big the new forum gets, it will always be a lot harder to find due to its relative obscurity (with regards to search engines). Not much we can do about that, but there will always be plenty of new posters coming from TNS.

Plus I don't really think the traffic on this thread will slow down too much, if at all. More and more people are discovering POIS, especially since the recent major news coverage. It was only a short time ago that we passed the 1,000,000 views milestone - we are already past 1,100,000

Since the new forum allows a variety of simultaneous discussions to take place, I find myself logging in and posting things that I would not post on the TNS thread - I don't want to clutter this thread up with too many posts, not an issue at the new forum. I suspect many TNS regulars feel the same way, and traffic will continue to grow at a healthy rate on both forums.

This thread keeps me up to date when I don't have time to go through the other forum - when time is plentiful, I can contribute over there also. A win/win situation for everybody.

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« Reply #13131 on: 10/05/2011 16:03:58 »
Some good points hurray. Particularly what you say about both forums being quite active.

One of the MOST important factors to consider in the creation of the new forum, was the potent pull that NSF has.

The desire was to provide a new forum where a focus in activity could be achieved through the ability to separate topics. We didn't want two NSFs, nor to take away from what NSF had. The new forum has a completely diferent style, and initial reactions to this new style and interactions desired by the users tended to stay tied to a NSF way. But now that the forum is up and running, a natural feel and usage style is setting in for each forum, just as you indicate; you go to one for one thing and another for another.

What we want to do, to further facilitate access and a more seamless interactivity is join everything together with a well designed POIS Center.

We are in the process of preparing conditions and implementing an integrated Search Engine Optimization Scheme. Part of this plan in a second stage involves dedicated sponsors which will initially help pay for Google Ad exposure.

Google Ad exposure is very efficient for our application. Whereas it may have a 1% efficiency per click at best for normal sales applications, it has an efficiency closer to 80% per click for POIS sufferers looking for a "home".

So although in this moment it seems like forums here and forums there, and databases in other place and compendiums etc. we are going to unite into one entity. And new resources are and will be attracted, like NORD and other rare disease facilities, where you tend to find community in the understanding of little understood suffering.

I feel that we are JUST getting started, and with OUR group, it's going to be really exciting!

How does Murphey do it??

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Offline demografx

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« Reply #13132 on: 10/05/2011 20:40:23 »

Am just curious when the other forum gets bigger and starts becoming more of the focus of attention, it is going to result in NSF traffic reducing which will result in NSF loosing its ranking in search engines.  i was wondering if there is a plan for that in the future.
I know one way is to index the new site in google and also find ways to broadcast the site around the internet and also volume helps.

I remeber it took three years before NSF went up to number 1/ number 2, we cant afford that with the new forum, if it is becomes the main focus.

Hi CCconfucius,

Huge though our thread is, the POIS posts only account for a fraction of their overall traffic. TNS has an enormous PageRank of 7/10 - by comparison, the Yahoo directory has a PageRank of 8/10 (10/10 only goes to the likes of Google, Youtube and Facebook). There is so much POIS-related unique content on this forum that this thread will always rank highly for POIS and its accompanying symptoms.

No matter how big the new forum gets, it will always be a lot harder to find due to its relative obscurity (with regards to search engines). Not much we can do about that, but there will always be plenty of new posters coming from TNS.

Plus I don't really think the traffic on this thread will slow down too much, if at all. More and more people are discovering POIS, especially since the recent major news coverage. It was only a short time ago that we passed the 1,000,000 views milestone - we are already past 1,100,000

Since the new forum allows a variety of simultaneous discussions to take place, I find myself logging in and posting things that I would not post on the TNS thread - I don't want to clutter this thread up with too many posts, not an issue at the new forum. I suspect many TNS regulars feel the same way, and traffic will continue to grow at a healthy rate on both forums.

This thread keeps me up to date when I don't have time to go through the other forum - when time is plentiful, I can contribute over there also. A win/win situation for everybody.


Hurray, thank you so much for your perspective on the new major developments and changes in POIS' Internet-web presence!

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Offline demografx

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« Reply #13133 on: 10/05/2011 20:59:21 »

I feel that we are JUST getting started, and with OUR group, it's going to be really exciting!


I disagree. I think it's exciting already! [:)]
« Last Edit: 11/05/2011 00:26:46 by demografx »

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Offline CertainlyPOIS

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« Reply #13134 on: 11/05/2011 02:59:49 »
Am just curious when the other forum gets bigger and starts becoming more of the focus of attention, it is going to result in NSF traffic reducing which will result in NSF loosing its ranking in search engines.  i was wondering if there is a plan for that in the future.
I know one way is to index the new site in google and also find ways to broadcast the site around the internet and also volume helps.

I remeber it took three years before NSF went up to number 1/ number 2, we cant afford that with the new forum, if it is becomes the main focus.

Hi CCconfucius,

Huge though our thread is, the POIS posts only account for a fraction of their overall traffic. TNS has an enormous PageRank of 7/10 - by comparison, the Yahoo directory has a PageRank of 8/10 (10/10 only goes to the likes of Google, Youtube and Facebook). There is so much POIS-related unique content on this forum that this thread will always rank highly for POIS and its accompanying symptoms.

No matter how big the new forum gets, it will always be a lot harder to find due to its relative obscurity (with regards to search engines). Not much we can do about that, but there will always be plenty of new posters coming from TNS.

Plus I don't really think the traffic on this thread will slow down too much, if at all. More and more people are discovering POIS, especially since the recent major news coverage. It was only a short time ago that we passed the 1,000,000 views milestone - we are already past 1,100,000

Since the new forum allows a variety of simultaneous discussions to take place, I find myself logging in and posting things that I would not post on the TNS thread - I don't want to clutter this thread up with too many posts, not an issue at the new forum. I suspect many TNS regulars feel the same way, and traffic will continue to grow at a healthy rate on both forums.

This thread keeps me up to date when I don't have time to go through the other forum - when time is plentiful, I can contribute over there also. A win/win situation for everybody.

i agree with your all your points, but i believed the goal was to eventually make the move to the other website so things can be more organize. I was not sure about how quickly that transition was going to happen that is why i was curious why we are not trying to create visibility as early as possible and using all the tools available.
As long as we are taking it slowly, nsf is definately taking care of the exposure we need, evident by the current flow of new people.
When it is time to get a domain i believe there is a ways we can share the cost one person shouldnt just do it. 

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« Reply #13135 on: 11/05/2011 03:04:28 »
i tried to become a patient of dr david khan at UTexas southwestern, he denied me. I dont know why he denied me eventhough he has treated semen allergy before( i believe in women) and he is only 4 hrs away from me.
i dont know if you want me to put him in the database or not.

I also talked to dr chadwick i believe. in newyork about 2 months ago, he also treats semen allergy in women but also said he cant treat POIS. ( i dont know if i have mentioned him in the forum yet or not.)
« Last Edit: 11/05/2011 03:06:29 by CCconfucius »

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Offline demografx

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« Reply #13136 on: 11/05/2011 03:05:53 »
Am just curious when the other forum gets bigger and starts becoming more of the focus of attention, it is going to result in NSF traffic reducing which will result in NSF loosing its ranking in search engines.  i was wondering if there is a plan for that in the future.
I know one way is to index the new site in google and also find ways to broadcast the site around the internet and also volume helps.

I remeber it took three years before NSF went up to number 1/ number 2, we cant afford that with the new forum, if it is becomes the main focus.

Hi CCconfucius,

Huge though our thread is, the POIS posts only account for a fraction of their overall traffic. TNS has an enormous PageRank of 7/10 - by comparison, the Yahoo directory has a PageRank of 8/10 (10/10 only goes to the likes of Google, Youtube and Facebook). There is so much POIS-related unique content on this forum that this thread will always rank highly for POIS and its accompanying symptoms.

No matter how big the new forum gets, it will always be a lot harder to find due to its relative obscurity (with regards to search engines). Not much we can do about that, but there will always be plenty of new posters coming from TNS.

Plus I don't really think the traffic on this thread will slow down too much, if at all. More and more people are discovering POIS, especially since the recent major news coverage. It was only a short time ago that we passed the 1,000,000 views milestone - we are already past 1,100,000

Since the new forum allows a variety of simultaneous discussions to take place, I find myself logging in and posting things that I would not post on the TNS thread - I don't want to clutter this thread up with too many posts, not an issue at the new forum. I suspect many TNS regulars feel the same way, and traffic will continue to grow at a healthy rate on both forums.

This thread keeps me up to date when I don't have time to go through the other forum - when time is plentiful, I can contribute over there also. A win/win situation for everybody.


i agree with your all your points, but i believed the goal was to eventually make the move to the other website so things can be more organize. I was not sure about how quickly that transition was going to happen that is why i was curious why we are not trying to create visibility as early as possible and using all the tools available.
As long as we are taking it slowly, nsf is definately taking care of the exposure we need, evident by the current flow of new people.
When it is time to get a domain i believe there is a ways we can share the cost one person shouldnt just do it. 



CC, thanks for your Great Support. As always!!!  [:)]
« Last Edit: 11/05/2011 03:10:48 by demografx »

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Offline demografx

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« Reply #13137 on: 11/05/2011 03:08:36 »
i tried to become a patient of dr david khan at UTexas southwestern, he denied me. I dont know why he denied me eventhough he has treated semen allergy before( i believe in women) and he is only 4 hrs away from me.
i dont know if you want me to put him in the database or not.

I also talked to dr chadwick i believe. in newyork about 2 months ago, he also treats semen allergy in women but also said he cant treat POIS. ( i dont know if i have mentioned him in the forum yet or not.)

CC, YOUR judgement about potential Collaborators is most important!

If YOU  think someone is a dork, I don't think he belongs in the database.

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« Reply #13138 on: 11/05/2011 03:14:22 »
Demografx just trying to do my best for the forum, Thank you.

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« Reply #13139 on: 11/05/2011 13:06:46 »
i tried to become a patient of dr david khan at UTexas southwestern, he denied me. I dont know why he denied me eventhough he has treated semen allergy before( i believe in women) and he is only 4 hrs away from me.
i dont know if you want me to put him in the database or not.

I also talked to dr chadwick i believe. in newyork about 2 months ago, he also treats semen allergy in women but also said he cant treat POIS. ( i dont know if i have mentioned him in the forum yet or not.)

Both of those might be better suited to the "Labs and facilities" database.

BTW when the databases and forum change to the new domain, I'll be trying to leave an automatic redirect from the present addresses so as to facilitate your accesses, but it is recommended of course to use the new reference (once that is revealed). Until then, you can still use the present facilities, as nothing will be lost in the transition.

« Last Edit: 11/05/2011 14:20:24 by daveman »
How does Murphey do it??

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Offline demografx

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« Reply #13140 on: 11/05/2011 21:26:23 »

Demografx just trying to do my best for the forum, Thank you.


I know you are, CC, and I can't thank you enough!

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« Reply #13141 on: 12/05/2011 08:20:16 »
Tsup John21,
What I've been dealing with is something quite a bit in reverse. Of course after sexual activity comes a time I regret I do live, which is I think quite normal for human males, but there comes a time after that that I am into only thinking. Takes some few hours for such a shake. It's just that I think it is hard for You to manage without sexual activity and I do not want to make fake hope to You, but did You try to specificate Your type of a sexual partner? Maybe it's not biological, but stays in the psyche?
For example. I am sanguine (personality, character, temperament - wiki and other sites for search) and I hate being interested in other sanguines. But I love to be interested in phlegmatics, who seem to be more attractive for me. Quite frankly the worst kind of commitment is between a sanguine and a sanguine... so I believe, that where there's problem, there's got to be a sollurion, a simple, obvious and unique sollution.
Try to experiment with that and maybe You'll have something out of it. In worst case, You'll have a hangover for more than a few hours.
p.s.
if something seems to be impossible, it's probably as possible, as problematic.
Here's the table to discuss (if You wish to)
Let's say
melancholic and sanguine are strong personalities
phlegmatics are strong character
cholerics are strong temperament
FITS
-----T----P----C----
  T  1    0   -1 
  P  0   -1    1
  C -1    1    0
--------------------
-1 = worst fit
 0 = avarage fit
 1 = the best fit

The "examples" of people with different personality, character and temperament who present their sexual activity, are on my blog
http://eternityemperor.blogspot.com/
NOTE that most of the people are sanguine
« Last Edit: 12/05/2011 09:35:25 by aspagnito »

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« Reply #13142 on: 12/05/2011 10:12:55 »
I didn't finish to translate the 2nd study of dr. Waldinger but it seems there is a new very important and new concept here :

http://www.nature.com/nrurol/journal/v8/n3/full/nrurol.2011.17.html

Quote
Sexual dysfunction: Postorgasmic illness syndrome

Suzanne J. Farley
Abstract

New evidence supports the hypothesis that postorgasmic illness syndrome (POIS) in men involves a hyper-reactive immune response of the mucosal epithelium that lines the urinary tract to seminal fluid.The term 'POIS' was coined 9 years ago by the Netherlands-based duo Marcel Waldinger and Dave Schweitzer.

The whole article is not free.




I just bought this article, but it is just a summary of the dr Waldinger research. There isn't any news in it.
« Last Edit: 12/05/2011 10:16:51 by rock27 »
POIS, fatigue, brain fog, can't find words, irritated, can't concentrate.

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« Reply #13143 on: 12/05/2011 10:30:23 »
Tsup John21,
What I've been dealing with is something quite a bit in reverse. Of course after sexual activity comes a time I regret I do live, which is I think quite normal for human males, but there comes a time after that that I am into only thinking. Takes some few hours for such a shake. It's just that I think it is hard for You to manage without sexual activity and I do not want to make fake hope to You, but did You try to specificate Your type of a sexual partner? Maybe it's not biological, but stays in the psyche?
For example. I am sanguine (personality, character, temperament - wiki and other sites for search) and I hate being interested in other sanguines. But I love to be interested in phlegmatics, who seem to be more attractive for me. Quite frankly the worst kind of commitment is between a sanguine and a sanguine... so I believe, that where there's problem, there's got to be a sollurion, a simple, obvious and unique sollution.
Try to experiment with that and maybe You'll have something out of it. In worst case, You'll have a hangover for more than a few hours.
p.s.
if something seems to be impossible, it's probably as possible, as problematic.
Here's the table to discuss (if You wish to)
Let's say
melancholic and sanguine are strong personalities
phlegmatics are strong character
cholerics are strong temperament
FITS
-----T----P----C----
  T  1    0   -1 
  P  0   -1    1
  C -1    1    0
--------------------
-1 = worst fit
 0 = avarage fit
 1 = the best fit

The "examples" of people with different personality, character and temperament who present their sexual activity, are on my blog
http://eternityemperor.blogspot.com/
NOTE that most of the people are sanguine

I don't think you understand what POIS is.
« Last Edit: 12/05/2011 10:38:47 by John21 »

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« Reply #13144 on: 12/05/2011 10:59:05 »
I have schizoaffective disorder. That maybe explains a lot. All I wanted was to share, but if You find my message interrupting, please ignore it.
There is no way to diagnose a dead one, but Einstein probably (according to some specialists) had an Asperger syndrome.
http://en.wikipedia.org/wiki/Asperger_syndrome
« Last Edit: 12/05/2011 11:10:08 by aspagnito »

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« Reply #13145 on: 12/05/2011 14:28:27 »
Today I had another injection for the desensitization. Normally the dilution of the semen is 1/10.000. But this time I had 1/1.000. Normally 1/1.000 is reached after 5 months. The doctor said that the chance of chance of complications is the biggest in the first months. But they had a good research and that's why it was possible for me to go to 1/1.000. After 3 years the dilution is 1/20.

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« Reply #13146 on: 12/05/2011 14:37:14 »
I think it's great to get an acceptance. Doesn't matter that much what problems we're dealing with, but when it goes to the fruit we're giving, some people may give a lot more than it seems.

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Offline demografx

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« Reply #13147 on: 12/05/2011 16:02:23 »





aspagnito, welcome to the POIS thread of The Naked Science Forum!




Here are some POIS resources which may be helpful to you:

The Learning Channel (TLC) upcoming feature TV presentation on POIS, featuring our member here at this forum, "Animus". They're planning to air it on May 22, 10pm Eastern Standard time. Animus will keep us informed of any changes.

Our POIS Information Website, built by "mat780", is here:
http://sites.google.com/site/POISwebsite/

The POIS Information Website is home to the famous POIS Forum Compendium, written by "Pyropeach", and contains theories already discussed here and treatments that have both worked and failed.

Please see "B_Jim"'s POIS Summary of All Cases, here as well as others on the Web. This includes remedies that we have tested, and results.
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg149009#msg149009

"Girlwind" has created an excellent POIS Video:
http://www.youtube.com/watch?v=UWBxAUC9k1g

Our new POIS chatroom (realtime chat). Invite or visit another member(s) there, ANY TIME. We can all get to know each other better:
http://forums.delphiforums.com/POIS/chat


* Most recent POIS Research Studies, 2011 *

If you will send Prof. dr. Waldinger an e-mail, stating that you have read his message on the Forum, at http://www.thenakedscientists.com/forum/index.php?topic=6576.msg340138#msg340138 and that you are willing to fill in a questionnaire, he will send you the copies of both 2011 research articles by return through email. At a later date, he will send you the questionnaire which, after having filled in, you should send him back by e-mail.
His email:
prof.dr.waldinger.pois@gmail.com

Prof. dr. Marcel D. Waldinger's website:
http://www.post-orgasmic-illness-syndrome.com/en/index.html


First POIS Research Study, 2002

We have a copy of the first formal medical investigation on POIS by Prof. dr. Marcel D. Waldinger,MD,PhD, and Dr. Dave Schweitzer, MD.

  
Recent POIS Research Study, 2010

CASE REPORT
Postorgasm Illness Syndrome - A Spectrum of Illnesses
Jane Ashby, MRCP, and David Goldmeier, MRCP
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg316781#msg316781


British Medical Journal Case Report, 2010

Case study by Dr. Selwyn Dexter of a patient with a headache-featured POIS symptom treated with progesterone/norethisterone.
http://casereports.bmj.com/content/2010/bcr.10.2009.2359.short?rss=1


There are a couple of ways to get any or all of the above 3 studies: (1) if you want a PDF copy, send me a Private Message (PM) with your regular email address (use "AT" instead of "@" ) and I'll send you back the PDF.

Or, if you prefer, (2) I can simply reply with a Private Message (no regular email needed) and provide you with a simple text version embedded in your PM.

To send a Private Message, click on "Messages" at the top of this page. At the Messages page, click on "New Message". From that point on, it works just like posting a message here, except that it only goes to the person(s) you designate.

Remember to put a quote around my name, i.e., "demografx".


New York Times article,

January 20, 2009
Mind
Sex and Depression: In the Brain, if Not the Mind
By RICHARD A. FRIEDMAN, M.D.
http://www.nytimes.com/2009/01/20/health/views/20mind.html?_r=1&scp=1&sq=friedman%20sexual%20January%2020&st=cse

- - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -

In addition to serving our own informational interests, the resources listed above can be useful for you to show our credibility to the medical world - which often shows little understanding and is sometimes skeptical of our condition: POIS has scientific underpinnings and POIS is not "just another psychological problem" related to sex - to be treated by the psychiatric/psychotherapeutic community. All of this information can greatly help you to fight the immediate reaction of some doctors: so just tell them, "IT'S NOT 'ALL IN OUR HEADS'! "

Also, it can be helpful when dealing with medical professionals to point out the successful existence of our rapidly growing forum, which has already been referenced in respectable sources such as the Journal of Sexual Medicine (Dr. Waldinger's study), British Medical Journal and wikipedia:
http://en.wikipedia.org/wiki/Postorgasmic_illness_syndrome

For over 4 years, our POIS forum has attracted over 200 POIS sufferers worldwide who have posted here, research on an additional 200 sufferers elsewhere on the internet, plus over 1,000,000 page visits. Not bad for a rare malady!

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Offline demografx

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Post Orgasmic Illness Syndrome (POIS)
« Reply #13148 on: 12/05/2011 16:07:35 »






aspagnito, this post will help you find information about POIS that we have already discussed, by tailoring a Google search to this forum:


SEARCH THE FORUM WITH GOOGLE

We have an overwhelming amount of data: more than 4 years' worth of posts (over  10,000 posts!) from 200+ Forum members, and an additional 200 POIS sufferers found elsewhere on the Internet by Member B_Jim.

In the Google search box, type
whatever-it-is-you're-interested-in-finding-out[space]POIS[space]site:http://thenakedscientists.com/

for example, I tried
nocturnal emission POIS site:http://thenakedscientists.com/

and 740 results came up for "nocturnal emission" within the Forum.

be careful with spaces (you can use them before the word "site") and no-spaces (everything after the word "site")

Google even provides you results with the Message# for each result. But Message #'s do change, so be patient and look for the approximate Message#.







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Offline John21

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Post Orgasmic Illness Syndrome (POIS)
« Reply #13149 on: 12/05/2011 16:41:40 »
I think it's great to get an acceptance. Doesn't matter that much what problems we're dealing with, but when it goes to the fruit we're giving, some people may give a lot more than it seems.

Aspagnito, sorry to hear that you are suffering with something as well. You are correct, we should all be supportive as our ailments all fall under the umbrella of mental health. Sorry if I sounded rude, perhaps even people without POIS can have sex affect their cognition to a degree. I have not heard of this personality type concept before, as it might affect mental health. I assure you that my POIS did not differentiate, it was like a switch. I say "was" because I am chaste and it only affects me occasionally from NEs (nocturnal emissions).
« Last Edit: 12/05/2011 16:46:00 by John21 »