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NORD-POIS International OptionThe research fund online donation site can now accept international donations. NORD received two today (not POIS) -- one from London, the other from Australia.Go to: http://rarediseases.org/about/support/research-donationsWrite street address, city, and country in "Address 1"Click the drop down for State, and the word International comes up -- click that.The rest is self-explanatory.THANK YOU, STEFANIE!
This probably seems a little bit too obvious and I'm sure it's been tried by a member at some point. But a good friend of mine takes an ANTIHISTAMINE daily for relief from a whole load of symptoms and allergies including : wheat, dairy, chocolate, yeast, hay-fever etc. If POIS (arguably) is a reaction to semen, am I naive enough to hope that an antihistamine or something similar will have a positive effect on the level of symptoms felt? 
demo- your new avatar...
Quote from: dan-ireland on 11/06/2011 08:43:48This probably seems a little bit too obvious and I'm sure it's been tried by a member at some point. But a good friend of mine takes an ANTIHISTAMINE daily for relief from a whole load of symptoms and allergies including : wheat, dairy, chocolate, yeast, hay-fever etc. If POIS (arguably) is a reaction to semen, am I naive enough to hope that an antihistamine or something similar will have a positive effect on the level of symptoms felt? A lot of members tried it, but no result.
It's great to see everyone contributing what they can to research. Before contributing I would like to know more about where the money goes, and who decides what to do with it. I searched around on the NORD site but I didn't see this information. Could someone like Waldinger have access to it? Is that determined by NORD?
Many of your NORD-POIS questions can be answered here:http://poiscenter.com/forums/index.php?PHPSESSID=bdb9f2cf9372f713b754b1a70c9e59fb&topic=125.0Whatever has not been already answered, I'm sure Stefanie will address here.You can also write to her at:firstname.lastname@example.org
it's unclear whether "post-orgasmic illness syndrome" is the best name for this syndrome, since apparently an ejaculation is not always necessary to go under the spell of POIS. "autologous semen illness," or "autoimmune seminal fluid syndrome," may be a more succint term. Just a thought that I wanted to share.
The main consideration in the future: what is the BEST name to attract maximum $$$$ for researching our condition?
I created a topic called "Blood tests results" on the new forum = General Alternatives Causes and Treatment.I suggest this part to be the one where we can post all our blood tests results since we have POIS. We could check the fail common standards, compare and investigate more clearly.As it is expensive, we can see which standards are the most important.Thank you! Mod Edit: Edited in the URL
I will send over some money before my holiday.
I went to my GP yesterday and he for the first time actually knew about POIS and had lots of info on it. He had read the Waldinger study....
Today I made my first donation to NORD, which was a VERY exciting moment for me! The remainder of my contribution will be given in increments as we raise more money together. What's clear to me is that there's only a small group of us, and it really is up to every single one of us to make this dream a reality; so thank you to everyone who has given what you can. Individually we're weak, but together via this forum and together via research through NORD and just together in general, we are very strong indeed!
can somebody tell me how long does the effects of pois stay after an O?
i wish i am born again without this horrible disease...i have suffered so much in my life..i wish i can undo all that i have done in the past...when i am totally out of it i am very good at whatever i do...but whats the use..out of 365 days in a year i think i am suffering for almost 250 days and the rest of the days are only good if am staying away from that f_&*&_g O which empties my mind of all the wisdom and i am left with crap...
Quote from: bitu8489 on 13/06/2011 10:37:52can somebody tell me how long does the effects of pois stay after an O?That's for everybody different. For me normally it takes 4 days. But if I have an O. when I am in POIS it could take more then a week. So since 2 years I have this plan not to have an O. in POIS. This means that you can have 2 O.'s in a week. It's difficult sometimes, but you want a normal life you have to.
He said, in anyways, the psychiatric might help me with getting less of wet dreams and or coping with the symptoms. I have not visited the psychiatric yet. Please let me know what you think about going to the psychiatric and any comments or suggestions.Thank you.
when you have only one O at a time then the recovery time is fast....thank you vandemolen3 for clearing my doubt
Quote from: bitu8489 on 13/06/2011 14:05:16when you have only one O at a time then the recovery time is fast....thank you vandemolen3 for clearing my doubtThere's also a longer term tendency for it to be cummulative.Some of my sessions only last 4 days, so I can sometimes do it after that. But I find that one or two sessions can be shorter, usually the first the shortest. But if I "O" as soon as I'm better, the third is quite bad and lasts 2 wks or more. But if I stretch out to about 9 days, that my symptoms only last on the average about a 5 to 7 days. And each session is more or less the same, without some shorter and then a doozie.As Van says, we are all different. Perhaps one can do it onece every 4 days consistently, and another only every 9 days. But if we try to squeeze in more, it will come back to bit us.So if you find that you can do it twicw per week, but on about the third week you have a real heavy one, perhaps it's better to back off to one every 5 days. This is good because it can give you a couple of days of sanity between sessions, and you don't get a bad session jumpingin there to wreak havoc.
sometimes I don`t even notice that I had one <wet dream> but I get the symptoms and then I confirm that I had one.
this time i think i have overdone it cause its the 9th day today and still its not totally recovered....and this time my i have a new symptom..my right flickers all the time... and i fell so stressed..am planning to go for a single O tonight..i think it will solve the problem..and i will recover fully in the normal time that is around 4-5days...
As soon as the international way of donation is efficient, I want to start with a 100$ donation and then see how the 33 500 $ are reached to put more money in the bank
Quote from: bitu8489 on 13/06/2011 16:44:24this time i think i have overdone it cause its the 9th day today and still its not totally recovered....and this time my i have a new symptom..my right flickers all the time... and i fell so stressed..am planning to go for a single O tonight..i think it will solve the problem..and i will recover fully in the normal time that is around 4-5days...Eyes that flicker could be caused by stress. If I were you: no O. First you have to recover. A few days ago I showed a picture what sperm can do to a POIS-patient. You can see a red rash and nodules. Can you imagine what happens inside the body with all that sperm? And because your body thinks it's something bad your immune system works and you get very tired. And about not wanting to talk to anybody: there are more people who have this. Maybe on day 1 it's better not to have a lot of contact, but on day 2 you have to socialize.