Post Orgasmic Illness Syndrome (POIS)

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Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1450 on: 04/10/2008 04:11:50 »
And...sorry if I missed it: how did you test for your iodine deficiency? Do you think iodine could make a difference in POIS for men vs women?

I found the test for iodine deficiency in an interview Mary Shomon (author of a well-known thyroid
self help book) did with with Dr. Joseph Mercola. From what I've read so far, iodine deficiency affects both
sexes, but women seem to have more issues with the thyroid--15% of women according to some stats are
thyroid impaired.

"...for specific recommendations for hypothyroidism, I feel the best supplement that one could possibly take for
proactive thyroid health on a regular basis would be some form of organic iodine. A simple way to determine if
one requires this is to paint a patch of tincture of iodine on your skin the size of a half dollar. The iodine brown
coloration should last at least 24 hours. The faster it is absorbed the greater the body's iodine deficiency.

The best source of organically bound iodine that I know of is non-commercially harvested seaweeds. The dose
is about 5 grams a day or about one ounce per week. So a pound would last about two months. Radioactive
iodine is another factor that can damage the thyroid so one needs to flood the gland with healthy iodine from
organic sources like seaweed. As you know this is particularly important for pregnant women as if they have
untreated hypothyroidism, a New England Journal of Medicine study showed that their children may have
lower IQ scores.

The better seaweeds are hand picked and dried and not typically available in health food stores. They are the
absolute best forms of minerals that I am aware of. Unfortunately the people who produce this usually run
small operations, and do not make their products widely known. Kelp from the health food store may work,
but it really depends on how it was harvested and there is no way to know that reliably, so I rely on seaweed
harvesters who hand pick the seaweed and reliably dry them free from contaminants."

« Last Edit: 04/10/2008 04:36:54 by girlwind »

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Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1451 on: 04/10/2008 16:54:32 »
Can you give your TSH value ? Mine is 2.95 (between limits : 0.250 to 5.000) but a friend thinks it's too high.

My TSH was .8 which is in ZRT Laboratories reference range (.5-3.0). It's my T3 that was clearly out of range at 2.0.
(Their reference range is 2.5-6.5). According to Mercola, and others of like mind, your TSH of 2.95 could be too high.

Here is what Mercola says about the thyroid testing in his interview with Mary Shomon:

Q. You have said that you feel that it's a "big myth" that that an elevated TSH (thyroid stimulating hormone) level is always
required before a diagnosis of hypothyroidism can be made. First, can you explain why you feel this is a big myth? And second,
why do you feel that conventional medicine seems to cling pretty firmly to this myth as the sole means of diagnosing hypo-
thyroidism?

A: I would say over 90% of the patients that I diagnose with underactive thyroids have a completely normal TSH level.
Even with this relatively insensitive test, a study published earlier this year concluded that 13 million Americans have
undiagnosed thyroid disease. I suspect it may be as high as five times that number.
From my perspective, most
traditionally based physicians have long abandoned their physical examination and diagnosis skills and appear unwilling to
believe that patients who complain of all the classic hypothyroid symptoms are in fact truly hypothyroid if their TSH is normal.

They would rather believe a lab test than the patient sitting in front of them. I suspect this may be related to the trust
physicians place in the researchers who developed the original assay. I suspect that the same issues are involved in nearly all
traditional physician's incredible reluctance to use natural thyroid hormones for replacement and their insistence on using
synthetic hormones. This is remarkable in light of the New England Journal of Medicine article last year that quite clearly
showed that natural hormones are far superior, especially with respect to brain function and mood.

Q. You have said that if a TSH is above 1.5 there is a strong chance the thyroid gland is not working properly. Can you
explain why you feel that is the case?

A: I have carefully analyzed hundred's of patient's symptoms and had many of them take their basal body temperatures. There
appears to be a strong correlation between this threshold value of a TSH above 1.5 and the diagnosis of hypothyroidism. Most
patients who have TSH levels above 1.5 seem to respond quite well to natural therapies that either improve or replace thyroid
function.

Q. Why do you feel that Free T3 and Free T4 levels are the only accurate measures of the actual active thyroid hormone
levels in the blood?
Why do you feel these are more accurate than the TSH level, which is considered the standard by
the majority of conventional physicians?

A. The Free T3 and Free T4 levels represent the active hormones circulating in the blood. The typical thyroid tests:
Total T4, T3 Uptake (and Free Thyroxine Index (FTI) are virtually worthless and should have been abandoned
years ago.
I believe that the Free T3 and Free T4 are not superior to TSH, but should be used in conjunction
with TSH. My contention is that the reference range for TSH is inaccurate. TSH is quite a good screen and will
in fact assess most cases of hypothyroidism if the new ranges are utilized. The value of Free T3 and Free T4 comes into
play when one needs to diagnose secondary and tertiary hypothyroidism. These are cases of hypothyroidism due to
pituitary or hypothalamic dysfunction. These are far less common than primary hypothyroidism, but nevertheless they do
constitute a significant percentage of individuals.


Kent Holtorf (an MD endocrinologist based in LA)  goes into even greater detail about inadequacies of thyroid testing.    http://holtorfmed.reachlocal.net/article_info.php?articles_id=2
« Last Edit: 04/10/2008 17:08:17 by girlwind »

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Offline pyropeach

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1452 on: 04/10/2008 18:55:18 »
Can you give your TSH value ? Mine is 2.95 (between limits : 0.250 to 5.000) but a friend thinks it's too high.

My TSH was .8 which is in ZRT Laboratories reference range (.5-3.0). It's my T3 that was clearly out of range at 2.0.
(Their reference range is 2.5-6.5). According to Mercola, and others of like mind, your TSH of 2.95 could be too high.


What are the units? (I'd like to compare these numbers to my own, but need to know if the units are the same).

My TSH was 1.110 uIU/mL (range: 0.465-4.680 uIU/mL)  and Free T4 was 1.07 ng/dL (range:0.78-2.19 ng/dL)

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1453 on: 04/10/2008 19:00:23 »
Once again, i'm on Day3 today and my diet works. I feel tired only 24h or more after and not 3 or 4 days with huge improvement of symptoms (suppression of flulike state).

Congratulations, B_Jim!

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Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1454 on: 04/10/2008 19:04:34 »
Can you give your TSH value ? Mine is 2.95 (between limits : 0.250 to 5.000) but a friend thinks it's too high.

My TSH was .8 which is in ZRT Laboratories reference range (.5-3.0). It's my T3 that was clearly out of range at 2.0.
(Their reference range is 2.5-6.5). According to Mercola, and others of like mind, your TSH of 2.95 could be too high.


What are the units? (I'd like to compare these numbers to my own, but need to know if the units are the same).

My TSH was 1.110 uIU/mL (range: 0.465-4.680 uIU/mL)  and Free T4 was 1.07 ng/dL (range:0.78-2.19 ng/dL)

The units in the ref. range are: 0.5-3.0 uU/ml for TSH,  2.5-6.5 pg/ml for Free T3 and 0.7-2.5 ng/dL for Free T4.
This is for ZRT Labs. Other labs may or may not have the same ref. ranges.

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Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1455 on: 04/10/2008 20:19:14 »
For my lab i read : 2.95 mUI/l   limits : 0.250 to 5.000. I don't have T3 and T4 values :/
Thanks Girlwind for interview. My friend said too that i need T3 and T4, TSH alone is not enough.

Make sure it's the FREE T3 and FREE T4--which are the active hormones circulating in the blood.

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Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1456 on: 04/10/2008 20:32:08 »
I will test new forms of magnesium too because i think magnesium is the first natural beta-blockers. Imre1 results with beta-blockers is very intersting.

Yes, I use magnesium in this way. I went to a doctor a few years ago for PVC's, and she recommended beta blockers.
I didn't want to take those, so she said the second best thing was magnesium. I use both a magnesium citrate powder
that you mix with hot water, and transdermal magnesium. In addition I take Hawthorne Berry which is known to be
helpful for heart arrythmias.

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1457 on: 05/10/2008 03:50:15 »
B_Jim and girlwind, forgive me but I'm getting a little lost in some of the depth of discussion.

Can you both summarize - in simple form - what you now take for POIS alone? (e.g., iodine, protein [how do we get protein? health food supplement?] )

Many thanks. I and perhaps others here would really appreciate this simplification! And I'm not disparaging the detail, I just get derailed easily in the discussion.
« Last Edit: 05/10/2008 03:52:48 by demografx »

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Offline imre1

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1458 on: 05/10/2008 09:14:18 »
Interesting thoughts, B_Jim.

I have been trying Bisoprolol 5 mg/day for slightly over a month now.  I am noticing definite improvement.  Recovery time has gone from 12-40 hrs to
4-5 hrs.  This happened gradually -- I needed to take the medication for at least three weeks to notice much difference. (Assuming the difference has anything to do with Bisoprolol! This could be coincidental).

Also note, I tried Zoloft, starting at the beginning of August, and ending mid September.  It slightly decreased sexual urges, which was helpful, but I do not sense it had a profound effect on POIS. 

You mean, you don't get the total absence of any libido then? My sex-drive has been COMPLETELY ereducated. Even to a point of no longer being able to make the difference between hetero or homo.

The reason of the last statement being that the level of sexual arousal has a definite influence on POIS symptoms.

Anyway, i have the same reduction in time all symtoms are active.

The pain has definetely gone away with bisoprolol. But i seem now to be getting an increase of what i call "fever attacks". Intense heat feelings with extensive sweating. This i can live with, since it usualy lasts only a few minutes and only 1 or 2 times. I just have to make sure that i can sit down. And nobody else is bothering me in the mean time.

One more thing to notice here is that some woman drove my car total loss some two months ago. So I haven't been to the gym for two months now. Probably the sweating will reduce again after i get my new car and go to the gym again.
« Last Edit: 05/10/2008 11:04:27 by imre1 »

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Offline imre1

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1459 on: 05/10/2008 09:17:02 »
I have high blood pressure myself.

Could there be a link between high blood pressure and POIS?

At times over the last few years my blood pressure has been very good.

I think that blood pressure rises because of POIS symptoms. POIS induces symptoms and these make blood pressure rise?

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Offline imre1

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1460 on: 05/10/2008 09:23:32 »
Today I received an e-mail of an unknown person who wrote me that men are desperate and that one man even removed his testicles.

Has someone been talking behind my back, lol?

Anyway i have been looking at everything, leaving no subject taboo, including this.

I think nobody has actualy done this. Mostly because cyproteron-acetaat has the exact same effect.
« Last Edit: 05/10/2008 16:54:03 by imre1 »

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Offline imre1

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1461 on: 05/10/2008 09:26:11 »
elevated prolactin secretion can suppress the secretion of FSH and GnRH, leading to hypogonadism, and sometimes causing erectile dysfunction in men.

Well, one might safely assume that ED and POIS are mutualy exclusive.

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Offline imre1

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1462 on: 05/10/2008 10:11:50 »
Reading documentation on gender dysphasia seems to indicate that gender behaviour seems to be influenced largely by the amount of female hormones (for men).

Prolactin is a female hormone.

One rough indication of high prolactin and similar hormones might be female behaviour like:
- a large amount of time spent on literature
- a love for light colors, like purple and pink
- a love for romantic music over heavy metal
- a preference for cooking over fixing automobiles
- ...

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Offline tarkington

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1463 on: 05/10/2008 15:06:45 »
 a large amount of time spent on literature
- a love for light colors, like purple and pink
- a love for romantic music over heavy metal
- a preference for cooking over fixing automobiles

well.. i thought those things to be associated with personality (which I guess is actually controlled by hormones and genes).  But I do spend alot of time reading books and I like romantic stuff, and I can't say that I would prefer fixing automobiles.  I do like to fix electronics..lol.  But, seriously, I wonder if I do have elevated prolactin.  Is there any way to test to see if I do?

Also, has any one else tried to see if they have low iodine levels?  I tried the tincture application to my skin.  The brown color went away after about 20 or 22 hours.  Not sure if that is a defintie sign of low iodine levels.   

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Offline imre1

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1464 on: 05/10/2008 15:51:26 »
I like romantic stuff

Well, spending time in second life seems to indicate that the typical hetero male idea of romance is "hi, you are very beautiful, i want to **** you".

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Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1465 on: 05/10/2008 17:24:19 »
B_Jim and girlwind, forgive me but I'm getting a little lost in some of the depth of discussion.

Can you both summarize - in simple form - what you now take for POIS alone? (e.g., iodine, protein [how do we get protein? health food supplement?] )

Many thanks. I and perhaps others here would really appreciate this simplification! And I'm not disparaging the detail, I just get derailed easily in the discussion.

Hi Demografx--The list of supplements I take for the adrenals is posted on page 47, with the message ID#191121.
I am now taking kelp powder for thyroid--as it has IODINE, which was the the point of all the detail. Iodine (to help my
low thyroid) may be a big part of the puzzle for me--as explained in the many previous postings.

There are other things I take as well to benefit my overall health, to help the CFS, which helps the POIS. Like B_Jim, I eat an all
organic diet of mostly vegetables with lots of protein, and healthy fats (nuts, seeds, olive oil, avocado, coconut oil)--no sugar
or grain or processed food, and minimal fruit.

I don't think there is anything I take "for POIS alone." What helps my overall energy, my endocrine system, my digestive system,
my brain and nervous system helps POIS. Too bad POIS is not simple, otherwise it would be much easier to resolve.
« Last Edit: 05/10/2008 17:27:33 by girlwind »

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Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1466 on: 05/10/2008 17:32:03 »
Also, has any one else tried to see if they have low iodine levels?  I tried the tincture application to my skin.  The brown color went away after about 20 or 22 hours.  Not sure if that is a defintie sign of low iodine levels.  

According to what I've read about this test, the patch of tincture should last at least 24 hours.
So you may be just a little low.  In comparison, mine was gone in 2 1/2 hours!

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1467 on: 05/10/2008 18:33:14 »
Demografx : Do you eat a lot of sugar ? Considering your ED, you need to talk this to your doctor and test your SHBG. Remember study i posted p44. Too much sugar is not good for SHBG.
Yes, B_Jim, I have a difficult time with sugar. It's a struggle. So thank you for that.

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1468 on: 05/10/2008 18:41:08 »
girlwind, many thanks for the re-cap above. Well, correct me if I'm wrong, but it seems that the POIS malady is not so hopeless as we once thought. There are many things to try that we, as pioneers, have discovered to be effective!

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1469 on: 05/10/2008 18:48:14 »
Well, one might safely assume that ED and POIS are mutualy exclusive.
Not exactly sure what you mean, but I have ED and POIS and Levitra "cures" about 75% of my POIS.

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Offline imre1

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1470 on: 05/10/2008 19:14:20 »
Well, one might safely assume that ED and POIS are mutualy exclusive.
Not exactly sure what you mean, but I have ED and POIS and Levitra "cures" about 75% of my POIS.

I might have the wrong idea about ED, but it seems to me if you can't have an erection you can't have an orgasm and without orgasm you can't have post-orgasmic symptoms.

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1471 on: 05/10/2008 20:35:27 »
I might have the wrong idea about ED, but it seems to me if you can't have an erection you can't have an orgasm and without orgasm you can't have post-orgasmic symptoms.

(1) one can have an orgasm without erection.

(2) Levitra (and other ED drugs) facilitate a full erection (Levitra also cures 75% of my POIS symptoms).

(3) someone else here even reported POIS without orgasm; during the pre-ejaculate (from pre-ejaculatory fluid or Cowper's fluid) period of arousal.
« Last Edit: 05/10/2008 20:44:36 by demografx »

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Offline John21

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1472 on: 05/10/2008 20:50:36 »

Here is some interesting info on iodine, he claims the skin test is not valid.

http://thyroid.about.com/library/derry/bl2a.htm

Quote
The "test" of putting iodine on the skin to watch how fast it disappears is not an indicator of anything


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Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1473 on: 05/10/2008 21:02:29 »

Here is some interesting info on iodine, he claims the skin test is not valid.

http://thyroid.about.com/library/derry/bl2a.htm

Quote
The "test" of putting iodine on the skin to watch how fast it disappears is not an indicator of anything



I'm happy to have done the test. It worked for me, as it led me to explore my thyroid issue, discover that I have hypothyroidism,
and find something (supplementation with kelp) that has worked  for me.  What's not valid for one, is a victory for another.

If you want a more thorough and complicated test, here's one to try.
http://www.optimox.com/pics/Iodine/loadTest.htm
« Last Edit: 05/10/2008 21:10:18 by girlwind »

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Offline tarkington

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1474 on: 05/10/2008 22:30:46 »
ok thanks for the link. 

It has now been 28 hours and I still seen brown/yellow color.  Not sure what to believe.

My plan is as follows:  I am going to try Relora.  If that does not work then I will try the Kelp Powder.

Thanks girlwind

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Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1475 on: 06/10/2008 02:58:22 »
ok thanks for the link. 

It has now been 28 hours and I still seen brown/yellow color.  Not sure what to believe.

My plan is as follows:  I am going to try Relora.  If that does not work then I will try the Kelp Powder.

Thanks girlwind

Your welcome. It sounds like we are proving Dr. Derry wrong, as my iodine patch was gone very quickly.
(I did it twice to make sure.) And yours lasted a long time. You may not even need the kelp, as I did.

« Last Edit: 06/10/2008 03:02:33 by girlwind »

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Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1476 on: 06/10/2008 03:04:42 »
The whole point is that I'm trying to make people aware of their thyroid, to see if that might be one of
the problems in POIS. Because of that published study which concluded that "13 million Americans have
undiagnosed thyroid disease,"
  I just want people to consider this and investigate it, to see if they fit in
to that statistic. Iodine deficiency might be the first clue at finding the thyroid problem, and considering
how cheap and easy it is to do the patch test, I figure why not! What is there to lose?

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Offline Counterpoints

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1477 on: 06/10/2008 06:15:41 »
To anyone:
If you're concerned about thyroid, I suggest getting a blood test. If you consult with your family physician he will order one.  It is one of the first things most general practitioners would test for when being consulted for POIS symptoms.  I would be surprised if a lot of the people posting here haven't already had thyroid tests that turned out to be normal.

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Offline John21

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1478 on: 06/10/2008 10:27:21 »
Years ago when I was in the stage of running from doctor to doctor I had my thyroid checked, and the tests were apparently normal. I did the iodine skin test last week and the patch was still there after 12 hrs, on two occasions.

I have switched to using an iodized sea salt without calcium silicate, the free running additive. This seems like a more natural way to consume salt while ensuring I get enough iodine.

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Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1479 on: 06/10/2008 17:14:24 »
Apparently, many doctors are NOT skilled at properly diagnosing thyroid disorders. Otherwise there would
not be "13 million Americans with undiagnosed thyroid disease," like me. I've probably gone a couple
decades without a proper diagnosis. And after the hell I've been through with 30 years of CFS and POIS, I feel
obligated to spare others of suffering through as much illness as I have.

So all I am saying is if you do go to a doctor to get your thyroid checked, please read the articles below. Find a
really good doctor, who knows how to PROPERLY diagnose thyroid, and ask to have a FREE T3, FREE T4 and TSH.
Then check the reference ranges to make sure you are not dismissed as "normal," if you really aren't. 

That's all I have to say about it. Now I know that there is a crystal  CLEAR connection between my POIS symptoms
and my low thyroid. Time will tell if healing my thyroid will heal my POIS. I will keep you posted.

http://holtorfmed.reachlocal.net/article_info.php?articles_id=2
http://www.thyroid-info.com/articles/brownstein-hormones.htm
http://www.thyroid-info.com/articles/mercola.htm

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Offline hurray

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1480 on: 06/10/2008 18:15:29 »
Quote
B_Jim
I simply eat a lot of proteins during 24 hours after orgasm (and when i can the meal just before orgasm). No supplements.
Meat, fish, vegetables, milk and cheese, almond/nuts/hazelnuts, eggs.
Absolutely no sugar, candy, cake or soda. Few cereals (corn, rice but maybe oats is the best for low IG). I add some fats (coconut oil).
 

That's very interesting B_Jim, your protein approach is what has been most effective helping me to recover from POIS too!
Lamb kebab meat seems to be the thing that works best for me, not sure if the chilli sauce also contributes to the positive effect.

There is no science behind it, but I feel like my body is trying desperately to regain the fluids that have been lost, and in the process it is stealing nutrients from my brain, leading to the POIS symptoms. By giving my body the building blocks for what it wants, the symptoms seem reduced.
 

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Offline Counterpoints

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1481 on: 06/10/2008 18:52:08 »
Quote
B_Jim
I simply eat a lot of proteins during 24 hours after orgasm (and when i can the meal just before orgasm). No supplements.
Meat, fish, vegetables, milk and cheese, almond/nuts/hazelnuts, eggs.
Absolutely no sugar, candy, cake or soda. Few cereals (corn, rice but maybe oats is the best for low IG). I add some fats (coconut oil).
 

That's very interesting B_Jim, your protein approach is what has been most effective helping me to recover from POIS too!
Lamb kebab meat seems to be the thing that works best for me, not sure if the chilli sauce also contributes to the positive effect.

There is no science behind it, but I feel like my body is trying desperately to regain the fluids that have been lost, and in the process it is stealing nutrients from my brain, leading to the POIS symptoms. By giving my body the building blocks for what it wants, the symptoms seem reduced.
 


Hurray, I feel somewhat like that.  "Withdrawal" is the best to way to describe it.  My body feels like it needs a chemical "fix".  And this leads to distress, difficulty concentrating, etc.

IMPORTANT QUESTION (open to all): Before or around the time you developed POIS symptoms, had you used tetracycline, minocycline, or any other antibiotics?
« Last Edit: 06/10/2008 23:20:31 by Counterpoints »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1482 on: 07/10/2008 03:51:14 »
POIS and carbohydrates

The protein discussion seems just a little foreign to me. When I'm in POIS I have a craving for the exact opposite, carbohydrates. Pasta helps my POIS, but not greatly.

I'd like to know how much of what we're testing lately helps on repeat POIS episodes. Protein, iodine, etc.

Please keep posting results!

« Last Edit: 07/10/2008 03:57:29 by demografx »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1483 on: 07/10/2008 03:56:14 »
Counterpoints, my memory of POIS stops at 30 years ago. I have no idea when I first developed symptoms.

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Offline pyropeach

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1484 on: 07/10/2008 06:30:31 »
Quote
B_Jim
I simply eat a lot of proteins during 24 hours after orgasm (and when i can the meal just before orgasm). No supplements.
Meat, fish, vegetables, milk and cheese, almond/nuts/hazelnuts, eggs.
Absolutely no sugar, candy, cake or soda. Few cereals (corn, rice but maybe oats is the best for low IG). I add some fats (coconut oil).
 

That's very interesting B_Jim, your protein approach is what has been most effective helping me to recover from POIS too!
Lamb kebab meat seems to be the thing that works best for me, not sure if the chilli sauce also contributes to the positive effect.

There is no science behind it, but I feel like my body is trying desperately to regain the fluids that have been lost, and in the process it is stealing nutrients from my brain, leading to the POIS symptoms. By giving my body the building blocks for what it wants, the symptoms seem reduced.
 


Interesting since I've noticed my symptoms are dulled by a protein shake after an orgasm, but I think its just the protein giving me an energy boost which only masks the symptoms.

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Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1485 on: 07/10/2008 16:37:05 »
ratio between carbohydrates and proteins is the main factor. If you take a lot of proteins and a lot of carbs,
the anti-POIS effect doestn't work.

What ratio do you find most effective?

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Offline Counterpoints

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1486 on: 08/10/2008 23:05:55 »
Imre1,

I forgot to answer one of your questions.  Bisoprolol hasn't substantially decreased my sex drive.  It may have decreased it to some extent, but it certainly hasn't completely eliminated sexual desire.  (Unfortunately!).  I'm on my first week of 10 mg/day.  I've been taking 5 mg/day for the past month.  We'll see how things change.  So far I've noticed increased fatigue, but not much else.

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Offline acronym

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1487 on: 09/10/2008 13:34:31 »
RE: Counterpoints and antibiotics question.
Funny you should mention that, I was on tetracycline (mysteclin) around the time I got POIS. Antibiotics also figured in phases where POIS disappeared for me. Clindamycin + Clarithromycin where the 2 drugs concerned.
I was very interested in Dr.Matt's (pharma matt was more appropriate) post a couple of months back on the marshall protocol. I was waiting for him to explain exactly why he was so convinced as to the connection for this treatment which was originally developed for sarcoidosis but which is now starting to be used for other conditions that have TH1 immune dysfunction.
My thoughts at the time were, nice theory but not exactly practical. Its hard enough to explain POIS to a doctor let alone ask for prescriptions for benicar, minocycline, ciprofloxacin, Bactrim, etc, plus also wear dark glasses all the time for up to 2 yrs to undertake the marshall protocol.

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Offline Finally

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1488 on: 09/10/2008 17:23:17 »
Quote from: hurray link=topic=6576.msg198780#msg198780 date=1223313329

IMPORTANT QUESTION (open to all): Before or around the time you developed POIS symptoms, had you used [b
tetracycline[/b], minocycline, or any other antibiotics?

I had not used any antibiotics.  However now that I think about it, the  really seemed to start when I started in college.  Around that time I remember having to get some shots to be allowed in?  I don't remember exactly what they were for but I remember feeling ill and feverish right after.

I have used probiotics after stumbling on an infomercial describing the effects of a deficiency of necessary intstinal bacteria.  Initially I ot on a very high dose and the results of that(I was also taking a lot of enzymes)  was a dramatic reduction in symptoms.  When I tapered to a maintenance dose the results were not as effective though.
Antibiotics kill these bacteria and they need to be replacd after.

Pois seems to be an immune system problem so maybe innoculations can cause our immune systems to malfunction producing an autoimmune reaction to the chemical changes in our own body during orgasm attacking our systems as if a foreign invasion was present.  This is beyond my scope of knowledge so I am making only a general supposition on this.  I don't know if there is any real connection?

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Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1489 on: 09/10/2008 18:39:36 »
Hello again from THYROID WOMAN (I should change my user name.)  [:)]

So... for the past week I have been devouring as much info as I can regarding balancing the endocrine glands.
I've been in touch with a former POIS forum member, who is helping me sort through my test results from the ZRT
Lab, (he had recommend this lab a while back), and has been giving me feedback on how to read my results, as
well as filling me in on what HIS experiences were in the process of healing his own endocrine deficiencies. He
has at this point recovered from POIS
(yes he claims to have recovered), and has provided me with some
good pieces of info. regarding what this process of recovery entailed for him. Bringing all the endocrine glands
up to a healthy level, according to him, is what did the trick.

In addition I have read two books: on thyroid and on iodine, and have travelled the web to about 6 different forums
including: a high dose iodine users forum, an adrenal/thyroid forum, an international endocrine forum etc.....
THERE IS A LOT I didn't know!  And a lot that I am learning. One thing for sure: most patients who are dealing with
endocrine (thyroid, adrenal, gonadal) hormonal problems have vehement NEGATIVe complaints about doctors,
whose ignorance and incompetence in diagnosing and treating hormonal imbalances has been an enormous cause
of grief and frustration. Many thyroid patients were initially put on guess what....anti-depressants! until they finally
found out what was wrong with them. The same is true for people with low cortisol (burnt adrenals),which most
medical doctors seem to COMPLETELY ignore (unless someone goes into a coma due to adrenal shock!) So if we're
looking for the "usual kind" of standard MD endocrinologist to help us on this forum, I think we are barking up the
wrong tree. Most of the "healed" endocrine patients I've read about and contacted had to find unusually brilliant
out-of-the-norm holistic type of MD's, or else they had to resort to helping themselves by reading and helping
each other with alternative methods-- (herbal and vitamin supplements and ovc hormones like DHEA).

The people who have healed their endocrine system have given this feedback: healing adrenals (raising their
cortisol level) and then thyroid (raising both T3 and T4 to HEALTHY levels and lowering TSH below 1.0) has been a
huge part of regaining their overall health and their libido. Taking care of the testosterone, DHEA, and estrogen
levels has been a big part of the picture, too.


Next week I have my first appointment with a holistic MD who is, according to locals, "a rock star" when it comes
to bio-identical hormones. Wish me luck!



« Last Edit: 10/10/2008 00:33:00 by girlwind »

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Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1490 on: 09/10/2008 20:55:36 »
Good luck and thanks for this post.
I'm just a little disappointed that when someone manage to heal he leave  without helping others (not in this particular forum).
I remember i have tried a iodine supplement 2 years ago without effect. But maybe the supplmeent wasn't good enough (it was a multi-vitamin + minerals and iodine.

Hi B_Jim
I think when people feel better, they just want to live their lives and move away from thinking about their old problems.
I'm not like that, and will share what I learn that helps me, in the hopes that it will help someone else.  I will also request
that this ex-POIS forum member post his experiences of recovery in his own words. Hopefully he will do that.

Also, I should tell you that one of the side effects for me, still, of taking kelp (or kombu) is that it acts as a chelator for heavy
metals. Even the "clean" certified organic one has done that for me. So I have to be real careful about how much I ingest. I've
had an assortment of heavy metals appear repeatedly in my hair analysis, and since I do NOT like the symptoms of detoxing
too fast, I'm going very easy on it. (Just be aware of that when you eat seaweed.)
« Last Edit: 09/10/2008 21:13:58 by girlwind »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1491 on: 10/10/2008 00:54:46 »
Acronym, welcome to the POIS Forum! You may wish to see Forum member girlwind's POIS video at http://www.youtube.com/watch?v=UWBxAUC9k1g
« Last Edit: 10/10/2008 01:39:24 by demografx »

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1492 on: 10/10/2008 00:59:42 »
girlwind aka THYROID WOMAN, I share much of your enthusiasm, but I think it's important to differentiate between what is good for "overall health and libido" and POIS. The two don't necessarily go hand in hand. Thanks, and please don't take this negatively.

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1493 on: 10/10/2008 01:11:57 »
I'm just a little disappointed that when someone manage to heal [POIS] he leave  without helping others.

B_Jim, I agree with you, it's disappointing. When I found - last year - that Levitra cured 75% of my POIS symptoms, I could have easily left, too, I was very happy. Or I could have just stayed and logged on every now and then just to read how I could make the other 25% go away.

But I have been suffering with POIS for more than 30 years and I still empathize with other POIS sufferers. I'm not a saint, part of my continuing involvement comes from so much of my life having been dominated, devastated and overwhelmed by POIS that it's now become a very strong interest of mine. And my POIS is so bad that I dread even the 25%. Going from 10 mg to 20 mg might do the trick, but I'm afraid to try it. So keep up the great work everybody, with testing iodine, beta blockers, protein and the rest. The key to great POIS success will be to see something work (1) repeatedly, not just a placebo effect, as I experienced with testosterone and (2) for more than 1-2 people.

ps - as always, PLEASE consult a physician before attempting Levitra.
« Last Edit: 10/10/2008 01:32:55 by demografx »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1494 on: 10/10/2008 01:25:27 »
I'm not like that, and will share what I learn that helps me, in the hopes that it will help someone else.

I will also request that this ex-POIS forum member post his experiences of recovery in his own words. Hopefully he will do that.

Great to see your committment, girlwind, newbies as well as more experienced members will benefit enormously from your perspective.

And I do hope that the ex-POIS member will post his recovery experience!
« Last Edit: 10/10/2008 01:29:39 by demografx »

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Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1495 on: 10/10/2008 01:35:07 »
girlwind aka THYROID WOMAN, I share much of your enthusiasm, but I think it's important to differentiate between what is good for "overall health and libido" and POIS. The two don't necessarily go hand in hand. Thanks, and please don't take this negatively.

Okay, okay Demografx--When I say "libido" I mean both healthy available sexual energy AND post-orgasmic
recuperative abilities...  Capish? Sometimes it just takes too much time to SPELL OUT ALL the details when you're in
hurry to write-up a posting. Also, I think what is good for overall ENDOCRINE health will most likely be good for POIS.
That's my story, and I'm sticking to it!   [:)]

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1496 on: 10/10/2008 03:08:04 »
Okay, okay Demografx--When I say "libido" I mean both healthy available sexual energy AND post-orgasmic recuperative abilities...  Capish? Sometimes it just takes too much time to SPELL OUT ALL the details when you're in hurry to write-up a posting. Also, I think what is good for overall ENDOCRINE health will most likely be good for POIS. That's my story, and I'm sticking to it!   [:)]
Okay, okay girlwind. I disagree (re endocrine - not proven, but Okay). [:)]
« Last Edit: 10/10/2008 03:19:45 by demografx »

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1497 on: 10/10/2008 03:13:03 »
girlwind (or anyone else, please jump in), I have a question for you. Do you have any theory or knowledge if some of the components in Levitra (PDE5 inhibitors), which works extremely well for my POIS, has any similarity to some of the things we're exploring? (iodine, garlic, protein, etc.)? My guess is that it would probably take a chemist's background to know.

I still think there is something significant to be learned from what I found with Levitra working, and Cialis being a complete dud!

My questioning endocrine health as the silver bullet comes from the dramatic results I have personally seen from Levitra. But maybe there is a connection between the two, which is what prompted me to write this post.

Anyway, I'm absolutely for the truth, wherever it takes us.
« Last Edit: 10/10/2008 03:29:15 by demografx »

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Offline Counterpoints

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1498 on: 10/10/2008 03:22:47 »
Acronym:  Please fill out the form found at pois.olympe-network.com
Your feedback will be much appreciated.  We would also like to be in touch when research investigations begin.

TO EVERYONE: If you haven't filled out the form yet, I encourage you to do so as soon as you find the time.  On October 23rd I am meeting with a research neurologist (different person than the MD PhD I previously mentioned), and I would like to bring that information to his attention.  In my opinion this form is the most effective way for us to start receiving help.  I encourage others to raise awareness about its existence.

ALSO -- I will soon be able to respond to the request for phone consultations with the MD PhD I mentioned.  In any case, he is planning a full fledged research investigation, which I think will probably start within the next two months.

RE: Counterpoints and antibiotics question.
Funny you should mention that, I was on tetracycline (mysteclin) around the time I got POIS. Antibiotics also figured in phases where POIS disappeared for me. Clindamycin + Clarithromycin where the 2 drugs concerned.
I was very interested in Dr.Matt's (pharma matt was more appropriate) post a couple of months back on the marshall protocol. I was waiting for him to explain exactly why he was so convinced as to the connection for this treatment which was originally developed for sarcoidosis but which is now starting to be used for other conditions that have TH1 immune dysfunction.
My thoughts at the time were, nice theory but not exactly practical. Its hard enough to explain POIS to a doctor let alone ask for prescriptions for benicar, minocycline, ciprofloxacin, Bactrim, etc, plus also wear dark glasses all the time for up to 2 yrs to undertake the marshall protocol.

« Last Edit: 10/10/2008 03:31:54 by Counterpoints »

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Offline Counterpoints

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1499 on: 10/10/2008 03:29:06 »
NOTICE:

I imagine many POIS sufferers read this forum without making any comments.  I hope you will find the information here useful, and I encourage you to contribute.  Most importantly, if you find something that helps you, or you are feeling better, PLEASE DO NOT JUST ABANDON THIS COMMUNITY WITHOUT SHARING THIS INFORMATION.  This is very self-centered, meaningless and heartless behavior.  It won't help you, and it could unnecessarily cost us decades of severe agony.
« Last Edit: 10/10/2008 03:40:21 by Counterpoints »