Post Orgasmic Illness Syndrome (POIS)

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Offline GoingCrazy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15250 on: 05/01/2012 22:35:25 »
Question - Has anyone entered "Advanced POIS" (POIS that no longer goes away at day 4+) and gotten OUT of it?  How?!?  Constant pois is awful.

I have a new theory that my Advanced POIS is caused by miniature NE's every night.  I've never found evidence of a NE, but I feel by far the worst in the mornings, indicating that something might be going on while sleeping.  I'm going to try to wake up midway through the night and pop some Niacin. as Dave suggested.

Yes, my POIS used to last at least 7 days when I first discovered that orgasm was affecting me like this.  I think that through general abstinence I was able to get myself down to about a day, and sometimes I do not even get POIS.  The mini NE's you talk about might be your problem, but are you sure you ejaculate every night?? I don't do anything to prepare for my NE's.  I've only had 2 or 3 of them the past 3 years because i cannot hold it in for that long.

I think that the niacin is causing some kind of mini-POIS reaction inside my head from the blood pressure, but it has improved my condition greatly.  I had 3 O's last night and just feel a little tired right now.  That crazy POIS feeling hasn't appeared.  I didn't even take niacin yesterday, so I think the niacin is probably expanding vessels or something for the long term, which is allowing me to cope with POIS.
« Last Edit: 05/01/2012 22:41:01 by GoingCrazy »

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Offline GoingCrazy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15251 on: 05/01/2012 22:38:59 »
Hi everyone!

Yesterday I bought a bottle of Niacin 500 mg capsules. On the bottle it says NO FLUSH. I am wondering if this also works for you guys? Does the FLUSHING one works better than NO FLUSH one for you?

Please let me know.


Thank you!
Flush works best for me. Also discourages me from taking too much by giving me a nice obvious feedback within about 10 minutes of taking it.

Yes, I think that the flush kind is the best to take.  I did some research the other day on non-flushing niacin and it showed that it actually increases a persons risk for stroke.  I think that the niacin is all about the flush in order to help POIS.  I started with non-flushing niacin and than crossed over to flushing niacin.

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Offline CertainlyPOIS

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15252 on: 06/01/2012 06:24:55 »
Question - Has anyone entered "Advanced POIS" (POIS that no longer goes away at day 4+) and gotten OUT of it?  How?!?  Constant pois is awful.

I have a new theory that my Advanced POIS is caused by miniature NE's every night.  I've never found evidence of a NE, but I feel by far the worst in the mornings, indicating that something might be going on while sleeping.  I'm going to try to wake up midway through the night and pop some Niacin. as Dave suggested.

It seems your pois and mine are advancing in similar directions.
I never heal to only rarely. You called the problem mini nes i call them sexdreams. Any sexual dream extends my pois. And i know am not crazy because it has happend alot and it has put me back into pois so many times even after getting out of pois. Also when i get them, i get a really bad waking up fatigue. 
I hate them with all posibbly hate in existence, "true meaning of no control".  This previous three weeks when i healed i did not have any of the dreams and then just like clockwork, i had a sexual dream and was back in pois.

The only problem with niacin every night, is the damage it can cause to liver.

I was thinking a combination of high grade omega 3, sweet potato  and wobenzym(enzyme blend that reduce inflammation even in arthritis patients) before sleep and middle of night should help. After trying niacin for a short while.  Somebody use wobenzym and said it helped alot. 
http://poiscenter.com/forums/index.php?topic=73.0
« Last Edit: 06/01/2012 06:31:25 by CCconfucius »

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Offline mellivora

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15253 on: 06/01/2012 09:47:14 »
that is my biggest fear. I am almost constantly in pois to. When i heal, i still get a good amount of duh moments or i should have got that faster than that  and bad memory, but am funnier and able to hold conversation much better, enough to be the center of it. So i attribute that to the body needing time to fully heal from so long of pois, 16 years is freaking long for repeated damage.
i have couple of things that i read will help brain neurons am going to use to bring my brain to 100%when we finally figure this pois out.  and i am suspicious of food, because on days i heal i feel much better in the morning than towards the evening.

thanks for the response.  It's very helpful for me to know that you're going through the same thing.  What you say is exactly what I'm talking about - Out of pois I'm also funnier and even feel somewhat comfortable being the center of attention -  But my memory....It's still soooo bad!  Ccconfucius, can you send me that thing you read, or tell me about it?  I'm thinking about going to see a neurologist to get my brain mapped and analyzed for deficiencies.  I'm not even sure they do that but I view this as a very serious problem.

Per foods affecting you, I've found high fructose corn syrup as a repeat offender on me.  I have to make an effort to cut out all those non-natural sodas out of my diet.

I can relate to the statement "Out of pois I'm also funnier and even feel somewhat comfortable being the center of attention". Additionally, my brain is sharper when I have been say 2 weeks out of POIS than a day or few after I feel the symptoms have receded. Its almost like I feel the main POIS symptoms have gone but it takes a while longer to gather momentum and feel truly myself. Perhaps if you can manage this long out of POIS, you will feel this too. Thus I have hope that there is not permanent damage except that I don't exercise my brain / challenge it with new things nearly as much when I am in POIS.
When I first got POIS I remember there were only about 2 weeks across a whole year when I didn't feel symptoms. This sounds similar to what you describe as "advanced pois" in your later posts B_Daniel. For me I suppose you might say it was early POIS in that it occured during my first years of POIS and now the severity and longevity is shorter (though still one week). I remember one O would give me symptoms for a month. I think stimulation in sleep could possibly prolong symptoms. I can get symptoms without a full orgasm. Probably more importantly,  I definitely feel stress makes my symptoms worse, especially the brainfog. Of course POIS is often the reason for the stress so it can be a vicious circle.

My NE's became less of a problem when I stopped stressing about them so much. But it could also be that their frequency simply declined with age. I used to go to bed every night worried I might have an NE and trying to tell myself I wasn't going to have one, especially just before important work events. Somewhere along the line I decided I wasn't going to worry about them anymore and to stop trying to suppress sexual thoughts quite as much as I was doing. It seems counterintuitive but somehow this helped. This is interesting looking back as, recently, I read that trying  to suppress thoughts about something is a sure fire way to not being able to stop thinking about that thing. This phenomenon has apparently been demonstrated in some scientific studies.
« Last Edit: 06/01/2012 09:49:05 by mellivora »

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Offline FinalPanic

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15254 on: 06/01/2012 15:49:23 »
Hi folks - not been around for a while but found this on Niacin - it may be of interest - it UK sourced document. It is a PDF not webpage.

www.food.gov.uk/multimedia/pdfs/evm_niacin.pdf

My POIS is all over the place - but thanks to all the dedication on here I am going to start to follow up the Niacin angle - of particular interest to me was this point:

"Deficiency (Niacin)
The most common symptoms of niacin deficiency are changes in the skin, mucosa of the mouth,
stomach and intestinal tract and the nervous system. The changes in the skin are among the most
characteristic in human beings. They are called ‘pellagra’, which means ‘raw skin’ and are most
pronounced in the parts of skin exposed to sunlight. Other signs and symptoms include dizziness,
vomiting, constipation or diarrhoea, and inflammation of the tongue and gastric mucosa.
The neurological symptoms can include fatigue, sleeplessness, depression, memory loss and
visual impairment."


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Offline FinalPanic

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15256 on: 06/01/2012 16:03:34 »
Is anybody able to recommend a Niacin brand in the UK that is not 'flush free' - it seems to be a major selling point and it is proving tricky to find Niacin that will cause the flush. Any help greatly appreciated. Thank you.

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Offline mellivora

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15257 on: 06/01/2012 16:44:10 »
Is anybody able to recommend a Niacin brand in the UK that is not 'flush free' - it seems to be a major selling point and it is proving tricky to find Niacin that will cause the flush. Any help greatly appreciated. Thank you.

http://bigvits.co.uk/product.asp?pid=152&bid=1
I believe this is the same as Daveman is using successfully. I've not had much joy with Niacin myself as yet. I first tried Holland and Barrett 100mg Niacin which you can just buy off the shelf in H&B shops. Somehow it seemed more unpleasant/aggressive than the Nature's Way stuff. The H&B tablets gave me a flush in 5mins. Nature's Way capsules took more like 30mins (both on pretty empty stomachs). The H&B might still work for you though and a quick flush might be more convenient. Neitiher has done the trick for me so far though its possible Natures Way might have taken the edge off my POIS last time. I need to try again. I'd be inclined to try Nature's Way first because it seems to work well for Daveman and nordnurse has endorsed the brand. Good luck!
« Last Edit: 06/01/2012 16:47:19 by mellivora »

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Offline mellivora

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15258 on: 06/01/2012 16:58:33 »
About omega 3, I have eaten lot of salmon and seafruit during last days. And I had zero symptoms durin my last Pois episode.
Zero symptoms? How often have you experienced that B_Jim? I've been through phases of eating a lot of salmon/tuna/mackerel but I don't think I've noticed it affecting my POIS. However, I am a believer sometimes in listening to what your body asks for. I have noticed  in POIS I am more likely to want and I eat more of: the fish mentioned plus spinach and also 85% (ie v.dark/high cocoa) chocolate. In particular I noticed these 'cravings' (craving is actually too strong a word) for spinach/fish chocolate before I saw other people on the forum writing about spinach some time ago (so I don't think it is a subconcious reaction to reading about spinach on the forum). As I say I'm not sure it helps but I definitely go for these three things more in POIS.

(of course it might just be that the fish comes in a tin and when I am feeling lazy in POIS it is an easy meal wth a few vegetables - less cooking and washing up to be bothered with!)

I'm not sure what you mean by seafruit?? Do you just mean other food from the sea or is this actually a type of fruit?
« Last Edit: 06/01/2012 18:22:09 by mellivora »

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Offline mellivora

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15259 on: 06/01/2012 18:16:00 »
Thanks. Even so to have ZERO symptoms is amazing. Good luck and keep us posted. It sounds like you experienced this without taking Niacin before the O in this case?

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Offline kurtosis

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15260 on: 06/01/2012 18:48:58 »


Sorry, the correct word is seafood (eg : oyster, mussel, homarus..). But I suspect salmon to be the main "culprit".
This is the second or third time I experiment this. So, it proves anything. Placebo or not, i can't say.

I have already try omega3/fish oil supplements without success. 
B3 ? There is a lot of B3 in salmon compared to other food (15-25mg for 100g) but normal compared to a caps of B3 (20 to 500mg / caps ). Better assimilation?

B5 ? B6 ? B1 ? B12 ? D ?
Salmon is an excellent source for all these vitamines but once again supplements have stronger concentrations...

From all anti-inflammatory(or Anti-Pois at least ) food I've tried salmon is the best.
Some nutritionnists think Astaxanthin is a good anti-inflammatory. In fact, it is the pink pigment of salmon, shrimp...


It's found in Krill oil. I've found Krill oil quite beneficial in the past but I find that I need to combine niacin, a good multi-vitamin and high strength fish oil to get the best effects. Krill oil by itself wasn't enough. And then there's the zinc, mag, b6 stuff I take at night. Just 1 tablet and, again, nothing outside the "recommended dose" from the manufacturer.

The only thing I take a lot of is vitamin C. I take it a few times during the day. I'll take at least 1g after an O and I notice it having a beneficial effect within a few minutes. I had an O this morning to test this theory and the recovery was actually quite fast. About 2g has a similar effect on POIS to recovering from a cold. I sometimes take 4.5 g per day but mostly about 2.5g.

Re. Niacin brands, I just use solgar niacin. Nothing fancy and it's only 100mg. I'm down to an average of 120mg / day between that and the multi-vitamin and I don't think that's going to do too much damage to my liver from reading orthomolecular medicinal studies where people took tens of times that dose for years. To offset this I don't drink any alcohol, don't smoke and luckily live somewhere I get to walk in the fresh air without smog.

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Offline daveman

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15261 on: 06/01/2012 22:43:19 »
Quote
It sounds like you experienced this without taking Niacin before the O in this case?

I took 20mg I think, not significant. I have never took more than 150mg. But I don't think B3 can block what I call the step 1 of Pois (inflammation). Maybe it helps with step 2 (cognitive). But if step 1 is reduced or avoided, there is no step2. When I have no flu-like symptoms during day 0, I know my Pois is finished.
Anyway Mellirova's topic proves B3 is the best supplement according to the Pois community. This is the only one who deserves to be reported to dr Waldinger for the moment.


Thank you Kurotsis for details for krill oil tip. I will have a look on this. I have bought a lot of useless supplements but the effect of salmon is something to consider for me.

I can give you a tip for vitamin C. A strategy I have learn to maximize its effect is to take 200mg each 120 min instead of only 1 gr. The objective is to keep a good stable level in blood. The other point is to keep a low blood sugar (avoiding insuline spikes). Anyway I have to say vitamin C never helped my Pois.


In my case with 70 to 100mg, I have almost zero symptoms. If I'm a little light on the niacin, which can be 100mg if I've eaten anything closer than 2 hrs to the niacin, I still get great reduction of flue like and congnitive symptoms. So it hardly feels like POIS at all. On day two the muscle and j oint pains can come through if I don't take quite enough.

The least I've taken is 70mg, with success, but with fasting for 6 hrs before.

20 or 15 mg won't do anything.

Give it a try with 100mg after at least 4 hrs fasting. There's NOTHING like being POIS free, absolutely POIS free. My life has changed! I haven't had POIS for almost three months now and can have two "O's" per week if I want.


What we desperately need to do is find a common factor among those who are NOT helped by niacin. We could study that on the other forum.



How does Murphey do it??

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Offline GoingCrazy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15262 on: 06/01/2012 22:45:59 »
Just wanted to say that the niacin that is working for me is sold at GNC.  I take one 500 milligram tablet, twice a week.  Not really sure how I compare to others.

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Offline mellivora

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15263 on: 06/01/2012 23:58:31 »
Last night I took 4 benadryl, 1 Claritin, two 100mg pills of niacin( one of which i cut open and took as powder), and 4 keystone light beers.

This post always makes me chuckle. What a combination! I'm not sure my doc would prescribe me Keystone light beer...Glad its working for ya!
« Last Edit: 07/01/2012 00:01:35 by mellivora »

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Offline mellivora

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15264 on: 07/01/2012 01:35:12 »
Didn't realise POIS has a facebook page. Thanks whoever did that. Not sure how many sufferers would be comfortable "liking" it on facebook though. 20 people have so far - don't know if they are sufferers or not
http://www.facebook.com/pages/Post-Orgasmic-Illness-Syndrome/129914263717751
« Last Edit: 07/01/2012 01:36:55 by mellivora »

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Offline B_Daniel

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15265 on: 07/01/2012 05:51:49 »
Question - Has anyone entered "Advanced POIS" (POIS that no longer goes away at day 4+) and gotten OUT of it?  How?!?  Constant pois is awful.

I have a new theory that my Advanced POIS is caused by miniature NE's every night.  I've never found evidence of a NE, but I feel by far the worst in the mornings, indicating that something might be going on while sleeping.  I'm going to try to wake up midway through the night and pop some Niacin. as Dave suggested.

It seems your pois and mine are advancing in similar directions.
I never heal to only rarely. You called the problem mini nes i call them sexdreams. Any sexual dream extends my pois. And i know am not crazy because it has happend alot and it has put me back into pois so many times even after getting out of pois. Also when i get them, i get a really bad waking up fatigue. 
I hate them with all posibbly hate in existence, "true meaning of no control".  This previous three weeks when i healed i did not have any of the dreams and then just like clockwork, i had a sexual dream and was back in pois.

The only problem with niacin every night, is the damage it can cause to liver.

I was thinking a combination of high grade omega 3, sweet potato  and wobenzym(enzyme blend that reduce inflammation even in arthritis patients) before sleep and middle of night should help. After trying niacin for a short while.  Somebody use wobenzym and said it helped alot. 
http://poiscenter.com/forums/index.php?topic=73.0

Jferr, goingcrazy, b_jim, mellivora, and ccconfucius- thank you for the responses. Ccconfucius- I agree with all you wrote- its prob not a NE that i struggle with- bc ive never seen any evidence of one- but rather sexual dreams. A few wks ago i snapped out of pois for the first time in 4 months. I thought it was from my SLIT treatments initially. Then when i began to feel bad again i began to believe the few days i felt good were from my testosterone treatments. Over the last 4 wks I have isolated and believe i have disproved both those theories (although i still retain faith that SLIT will help me in the future). My latest theory is that the thing that knocked me out of constant pois was a week long period of no sexual dreams. During that period I was stressed at work and school, sleeping 5 hrs per night, and my mind all day and likely all night was only on school and work. Thus, it is my new belief that these sexual night dreams contribute strongly to or are the main cause of my constant pois.
« Last Edit: 07/01/2012 06:04:18 by B_Daniel »
2-5 days, 80% cognitive, tongue-tied, brain fog, lose track of thoughts mid conversation, anxiety, dry eyes, irritable, fatigue.  Believer of both auto-immune AND regeneration theories.  My sessions are much shorter when I've gone 2 wks without.

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Offline mellivora

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15266 on: 07/01/2012 10:45:43 »
(although i still retain faith that SLIT will help me in the future). 

Good luck with SLIT. I wonder though, could it be that your new constant POIS is due to SLIT? Or did you have the constant POIS before you started SLIT? In any case I'm sure you are using extremely dilute semen for your therapy...Hope you are able to snap out of POIS again soon.

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Offline mellivora

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15267 on: 07/01/2012 11:13:07 »
Hi folks - not been around for a while but found this on Niacin - it may be of interest - it UK sourced document. It is a PDF not webpage.

www.food.gov.uk/multimedia/pdfs/evm_niacin.pdf

Thanks finalpanic, I've posted this in the reference section we have started on the other forum under NIACIN.
http://poiscenter.com/forums/index.php?board=18.0

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Offline kurtosis

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15268 on: 07/01/2012 17:16:52 »
Quote
It sounds like you experienced this without taking Niacin before the O in this case?


Thank you Kurotsis for details for krill oil tip. I will have a look on this. I have bought a lot of useless supplements but the effect of salmon is something to consider for me.

I can give you a tip for vitamin C. A strategy I have learn to maximize its effect is to take 200mg each 120 min instead of only 1 gr. The objective is to keep a good stable level in blood. The other point is to keep a low blood sugar (avoiding insuline spikes). Anyway I have to say vitamin C never helped my Pois.

I'm definitely reducing the variety of supplements I take, but the quantities have gone up :)
Re. vitamin C, I tend to put 500Mg in water every few hours instead of a cup of tea. So I'm consuming it throughout the day.  I'm nicely stocked up but sometimes I feel like a stronger hit of 2g.

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Offline B_Daniel

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15269 on: 07/01/2012 19:30:59 »
(although i still retain faith that SLIT will help me in the future). 

Good luck with SLIT. I wonder though, could it be that your new constant POIS is due to SLIT? Or did you have the constant POIS before you started SLIT? In any case I'm sure you are using extremely dilute semen for your therapy...Hope you are able to snap out of POIS again soon.

Thanks. SLIT can induce mild pois, but I dont believe theres any connection btwn constant pois and SLIT. Constant pois started long before SLIT and continues despite my 4 wk SLIT hiatus
« Last Edit: 07/01/2012 19:33:05 by B_Daniel »
2-5 days, 80% cognitive, tongue-tied, brain fog, lose track of thoughts mid conversation, anxiety, dry eyes, irritable, fatigue.  Believer of both auto-immune AND regeneration theories.  My sessions are much shorter when I've gone 2 wks without.

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15270 on: 08/01/2012 00:09:30 »

I read about this herb called Tripterygium wilfordii that apparently has been found to relieve symptoms of rheumatoid arthritis by suppressing the immune system, but I looked for it on amazon and on vitacost and can't find it. Does anyone know a site that might have it in stock?


From China. I would use caution. There's been a lot of bad press about China's exports. Food and medicine.
http://m.alibaba.com/product-gs/280636455/Tripterygium_wilfordii_Extract_Q.html

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15271 on: 08/01/2012 00:14:27 »

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Offline Vincent M

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15272 on: 08/01/2012 01:21:52 »
Didn't realise POIS has a facebook page. Thanks whoever did that. Not sure how many sufferers would be comfortable "liking" it on facebook though. 20 people have so far - don't know if they are sufferers or not
http://www.facebook.com/pages/Post-Orgasmic-Illness-Syndrome/129914263717751

There are actually 2 POIS groups on facebook that I know of. Well one is just a page I guess, but this is the link to it: http://www.facebook.com/pages/Post-Orgasmic-Illness-Syndrome-POIS/175719769110249

I made an alternate facebook account to "like" and join the groups.
Taking fenugreek+tea/garlic, saw palmetto, huperzine, niacin, boswellia, and nutmeg.

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Offline Vincent M

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15273 on: 08/01/2012 01:27:45 »
VM:  Example of bad press on Chinese exports:
http://m.modernghana.com/mobile/138359/1/beware-of-fake-and-dangerous-imported-chinese-prod.html

good point, demo. Thanks for the words of caution.
Taking fenugreek+tea/garlic, saw palmetto, huperzine, niacin, boswellia, and nutmeg.

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Offline CertainlyPOIS

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15274 on: 08/01/2012 03:07:47 »
http://poiscenter.com/forums/index.php?topic=73.0
I have tried 2 enzymes supplements in 2007 (?) before the diet.
- Bromelain (200mg) + Papain (100mg)
- Multi-Enzyme (@Nuzyme)

Without success, but maybe I should try again. One is expired.

About omega 3, I have eaten lot of salmon and seafruit during last days. And I had zero symptoms durin my last Pois episode.


The person who used it said either wobenzym or zymnese should be  used not the other kind and they should be used on empty stomach. 
I  tried to compare the enzyme mix you bought to wobenzym but they have diff units which is confusing but it seems as if the one you bought is geared for overall digestion and wobenzym for inflammation.
wobenzym is suppose to reduce inflamation by breaking down proteins i dont understand how that will reduce inflammation.
« Last Edit: 08/01/2012 03:10:12 by CCconfucius »

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Offline jferr

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15275 on: 08/01/2012 05:43:19 »
Hey guys, Thanks to  fellow member Kurtosis i have experienced some relief and for the first time in a couple of years I have felt alive. Mind you my problem is constant, Mainly cognitive but the physical is there. Here's what I'm taking:


Before sex:
200mg Niacin

After sex:
1000 mg chlorella
1000mg Vitamin C

Every day:
1 multivitamin every morning
Fish oil throughout every day
Vitamin C - 1000mg every day
ZMA - Before bed

Once a week:
Chlorella - 1000 mg

I have only taken these products for a few days but I have felt alive for the first time in years. My ocgnitive functioning was so bad that psychiatrists thought I was a schizoprenic. Couldnt even go to the store without extreme confusion and paranoia. I have been able to start to get active in the past few days and it feels great.

I also ordered Lecithin, Folic Acid, Spirulina, Olive Leaf Extract, And Saw Palmetto in pill form but have yet to try them. If anybody has had positive effects from these and thinks that may be worth taking please let me know.

I am hoping that this is not just placebo and that this continues !

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Offline kurtosis

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15276 on: 08/01/2012 11:11:46 »
Hey guys, Thanks to  fellow member Kurtosis i have experienced some relief and for the first time in a couple of years I have felt alive. Mind you my problem is constant, Mainly cognitive but the physical is there. Here's what I'm taking:


Before sex:
200mg Niacin

After sex:
1000 mg chlorella
1000mg Vitamin C

Every day:
1 multivitamin every morning
Fish oil throughout every day
Vitamin C - 1000mg every day
ZMA - Before bed

Once a week:
Chlorella - 1000 mg

I have only taken these products for a few days but I have felt alive for the first time in years. My ocgnitive functioning was so bad that psychiatrists thought I was a schizoprenic. Couldnt even go to the store without extreme confusion and paranoia. I have been able to start to get active in the past few days and it feels great.
That's great to hear. As you know, the quantities are _slightly_ different for me (more vit c) and I've never tried Saw Palmetto.
For me, part of getting back on track involves exercise. I'm not talking about weight training but just plain old walking for at least 30 minutes every day to help release some serotonin and reduce cortisol levels.

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Offline Quasar

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15277 on: 08/01/2012 14:15:09 »
jferr

If you wish, you could also try with a high dose supplement of Quercetin. Quercetin is present in black tea. Sometimes i've noticed an improvement from taking high-concentrated black tea. And someone reported on this forum that taking Garlic helped him. Garlic contains Allicin, which is similar to Quercetin. Quercetin i also present in Onions...

I suggest this because Quercetin has anti-allergic and anti-inflammatory properties.

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Offline Defsync

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15278 on: 08/01/2012 15:34:28 »
Guanfacine

I saw a commercial for this. Wiki'ed it.

This med has some really uniqe properties. Im gonna ask my doc for this.

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Offline mellivora

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15279 on: 08/01/2012 17:14:34 »
Please add my name to the NORD pledge list for $500.

That's awesome! Thanks RemovePois!

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Offline daveman

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15280 on: 08/01/2012 17:43:42 »
It's difficult for me to understand how niacin can reduce the flu-like symptoms.
Maybe should I test another brand.

Nature's Way has worked very well for me. It's a capsule, so you can open it up and divide the dose as you see fit too.

But you need to take at least 70mg, or 100mg and on an empty stomach at least 30 to 40 minutes before "O".

I can't explain why it works either, but I don't care. I'm basically POIS free because of it!

How does Murphey do it??

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Offline daveman

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15281 on: 08/01/2012 18:02:55 »
Please add my name to the NORD pledge list for $500.

Request for all - Anyone who hasn't contributed/pledged yet, please do so as it is for our own benefit. The sooner we collect money, the sooner we can be POIS free. Yes, POIS freeeeeeeee!!!!!!   (If you can donate either $5000 or $100, it doesn't matter. What does matter is that we are slowly and slowly reaching our goal. Please pledge/donate as soon as you read this note. Don't wait, otherwise you'll be waiting to cure yourself!)

RP, Thank you very much!

We have $4205 donated and $16,100 pledged. (Commitment of $20,305) WE ARE MORE THAN HALF WAY.
http://poiscenter.com/forums/index.php?topic=168.15

THE GOAL IS IN SIGHT!

The Online Pledge Database Manager is just about ready.


« Last Edit: 08/01/2012 18:06:24 by daveman »
How does Murphey do it??

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Offline daveman

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15282 on: 08/01/2012 20:32:22 »
We are going to be starting a more or less clear summary of both forums over at SMF. For 1) it will be good to have something more or less organized and in one place that gives a quick rundown of ALL that we know about POIS. And 2) researchers are going to be reading the site to do their basic homework for our research grant. What better source of patient information is there?

Mellivora has started a place to put medical reference information that is pertinent to POIS HERE .

We have a personal POIS summaries and history area HERE which could be of great use to researchers AND even ourselves. Please help us to be sure that the research program starts off on the right foot. Go over there and put your general POIS data there.

We also will have an area where you can help to point out NSF references that contribute to a good overview of POIS. For just one person it is a horrendous task to go through and summarize 4.5 years of the forum, so if you can help out and pass along interesting and pertinent references over there, it will be greatly appreciated and go a long way to assuring that we will get the bang for our buck in the research program.

There will be volunteers and designees who will then compile all of your links into an organized summary thread. So as soon as the whole structure is thought out it will be implemented. It will likely involve a front page link so it's immediately available to everybody.

« Last Edit: 08/01/2012 20:38:33 by daveman »
How does Murphey do it??

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Offline mellivora

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15283 on: 08/01/2012 22:07:42 »
Anyone know what happened to the original POIS questionnaire database (I think initiated by Counterpoints) and all the info there-in? That was a pretty good summary of the POIS cases of everyone who'd filled it in. If we could resurrect it and add those people who didn't complete it, that would give us a headstart as far as individual case histories are concerned...
I tried the original link but the site doesn't come up anymore...

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Offline mellivora

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15284 on: 08/01/2012 22:20:22 »
I had a lot of scientific articles but my hard disk has crashed. All is lost  ::)
B_Jim - sorry to hear that. Actually its a familiar story. Nearly all my refs got lost during recent web browser updates :(   I'm hoping I may have a backup of some of them on an old external hard drive somewhere...

I've only started some categories and put just a few refs up so far. I hope everyone will contribute refs.

Its here: http://poiscenter.com/forums/index.php?board=18.0
(thread categories are in capital letters)

To keep everything clear and accessible to potential researchers as well as ourselves it would be good to keep a fairly standard layout I think. I wrote some guidelines/suggestions on adding references here:

http://poiscenter.com/forums/index.php?topic=294.0

« Last Edit: 08/01/2012 22:22:08 by mellivora »

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Offline kurtosis

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15285 on: 08/01/2012 23:18:46 »
I always take my B3 with food. I will try on empty stomach.

I haven't see Mellirova's job. Thanks a lot ! I had a lot of scientific articles but my hard disk has crashed. All is lost  ::)

Nice job on Astaxanthin. This is the point I'm looking for now.
Can't seem to get much of a flush when I take niacin with food. & If I don't get a flush then there's more suffering with the O. Whatever is happening the flush (prostaglandin & serotonin release with some histamine ??) it's important.
Must do more research! BTW I copy most articles I read to dropbox so I have a backup. Painful experience. It's a free service if you're interested.

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Offline Mer

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15286 on: 08/01/2012 23:23:07 »
Hi all!


I bought the Non-FLUSH Niacin from Walmart. I could not find the one with FLUSH. Does anyone know where in Canada I can find the Niacin capsules that gives FLUSH?

Thank you!

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Offline B_Daniel

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15287 on: 09/01/2012 00:04:27 »
I  bought the Non-FLUSH Niacin from Walmart. I could not find the one with FLUSH. Does anyone know where in Canada I can find the Niacin capsules that gives FLUSH?

Thank you!

Im quite sure you can order it off Amazon.
2-5 days, 80% cognitive, tongue-tied, brain fog, lose track of thoughts mid conversation, anxiety, dry eyes, irritable, fatigue.  Believer of both auto-immune AND regeneration theories.  My sessions are much shorter when I've gone 2 wks without.

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Offline mellivora

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15288 on: 09/01/2012 01:04:51 »
Hi all!


I bought the Non-FLUSH Niacin from Walmart. I could not find the one with FLUSH. Does anyone know where in Canada I can find the Niacin capsules that gives FLUSH?

Thank you!
Hmm, that's odd. Can't sleep at the mo so I thought I'd have a look on amazon.ca (assuming that's what you have in Canada). I could only see non-flush there (which isn't the case for amazon.co.uk or .com).

However I then googled: niacin 100mg canada
that seems to throw up some options for you
« Last Edit: 09/01/2012 01:13:22 by mellivora »

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Offline jferr

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15289 on: 09/01/2012 03:57:56 »
Quasar, Thank you for the suggestion of Quercetin. I will definitely look into it. It's interesting that it is in black tea.

The treatment regimen that I listed has improved my symptoms significantly over the past week or so. I still have an unexplained uneasiness, Almost like I don't have the chemicals to deal with everyday things and especially people. I'm leaning towards taking the norepinephrine approach. I also have digestion problem where food gets stuck halfway down and it hurts, sometimes have to throw it up. Acid reflex sometimes also.

If anybody has any knowledge about vitamind or anythign I can do to help myself rid these symptoms it would be greatly appreciated.

Also, if anyone has any questions about my treatment supplements or anything I am happy to answer them.

I will soon be testing more supplements and such so I will keep everyone posted. I will also be donating so we can strive to make a permanant recover.

Best,

Jon.

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Offline mellivora

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15290 on: 09/01/2012 08:50:32 »
Thought I'd post some wise words from physicist Prof Stephen Hawking who recently turned 70 and has lived with his unfair share of health problems (motor neurone disease).

"Remember to look up at the stars and not down at your feet. Try to make sense of what you see and wonder about what makes the universe exist.

"Be curious. And however difficult life may seem, there is always something you can do and succeed at. It matters that you don't just give up."

http://www.telegraph.co.uk/science/stephen-hawking/9001187/Prof-Stephen-Hawking-too-unwell-to-deliver-own-70th-birthday-speech.html

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Offline Stef

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15291 on: 09/01/2012 12:55:41 »
Thank you so much for posting Hawking's words, Mellivora.   
Wise words indeed, from someone who really knows the meaning of not giving up!
Happy Birthday, Professor Hawking!

Thought I'd post some wise words from physicist Prof Stephen Hawking who recently turned 70 and has lived with his unfair share of health problems (motor neurone disease).

"Remember to look up at the stars and not down at your feet. Try to make sense of what you see and wonder about what makes the universe exist.

"Be curious. And however difficult life may seem, there is always something you can do and succeed at. It matters that you don't just give up."

http://www.telegraph.co.uk/science/stephen-hawking/9001187/Prof-Stephen-Hawking-too-unwell-to-deliver-own-70th-birthday-speech.html

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Offline kurtosis

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15292 on: 09/01/2012 18:35:07 »
Thought I'd post some wise words from physicist Prof Stephen Hawking who recently turned 70 and has lived with his unfair share of health problems (motor neurone disease).

"Remember to look up at the stars and not down at your feet. Try to make sense of what you see and wonder about what makes the universe exist.

"Be curious. And however difficult life may seem, there is always something you can do and succeed at. It matters that you don't just give up."

http://www.telegraph.co.uk/science/stephen-hawking/9001187/Prof-Stephen-Hawking-too-unwell-to-deliver-own-70th-birthday-speech.html
Great quotation. Thanks for posting that.

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Offline jferr

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15293 on: 09/01/2012 21:00:18 »
Guys I'm wondering what the precursors are of these vital chemicals such as vitamin c and the zma products. I personally feel that deep precursors are off in our bodies that are depriving the body of its ammunition to build its par levels, if you will. I think taking these supplements are great because they are helping but we are indirectly treating the problem. I do feel, however, that we are getting closer.

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Offline B_Daniel

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15294 on: 10/01/2012 06:37:29 »
Please add my name to the NORD pledge list for $500.

Request for all - Anyone who hasn't contributed/pledged yet, please do so as it is for our own benefit. The sooner we collect money, the sooner we can be POIS free. Yes, POIS freeeeeeeee!!!!!!   (If you can donate either $5000 or $100, it doesn't matter. What does matter is that we are slowly and slowly reaching our goal. Please pledge/donate as soon as you read this note. Don't wait, otherwise you'll be waiting to cure yourself!)

We're actually getting close!!!
2-5 days, 80% cognitive, tongue-tied, brain fog, lose track of thoughts mid conversation, anxiety, dry eyes, irritable, fatigue.  Believer of both auto-immune AND regeneration theories.  My sessions are much shorter when I've gone 2 wks without.

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Offline mellivora

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15295 on: 10/01/2012 15:05:22 »
Hi all,

As I posted on a poiscenter.com thread a few months ago, encouraged by nordnurse I wrote to Orphanet, the European database of rare diseases in an effort to get POIS included in their database. I've made several follow-ups since then and today we finally have some good news!!

Orphanet now list POIS on their website!!! Daveman and Demo got us listed in the National Institutes for Health Office of Rare Diseases Research database in the U.S. and now we have similar recognition in Europe through Orphanet. Hopefully this will prove a great step in getting POIS to be more acknowledged and recognised by medical professionals and helps give us more credibility than ever.

The listing at this stage is not a huge amount more than the name of our condition. In time, a summary and more details of our condition should appear on the database. Here is a quote from the email I received from Orphanet:

"The summary addition is a complicated process due to the many accuracy controls and it will take time, however, the addition of POIS on Orphanet is the most important part."

The Orphanet listing can be seen here:
http://www.orpha.net/consor/cgi-bin/Disease_Search.php?lng=EN&data_id=20421&Disease_Disease_Search_diseaseGroup=pois&Disease_Disease_Search_diseaseType=Pat&Disease%28s%29/group%20of%20diseases=Postorgasmic-illness-syndrome--POIS-&title=Postorgasmic-illness-syndrome--POIS-&search=Disease_Search_Simple

I'd like to emphasise that this would not have happened were it not for the advice and encouragement I received from nordnurse. It probably wouldn't have come about if Daveman and Demo hadn't taken the initiative and got us listed in the U.S. either as its that that set me thinking about European databases. And of course it wouldn't have happened without our forums! Our listing on Orphanet is further proof that everyone here can make a difference.
« Last Edit: 10/01/2012 15:33:21 by mellivora »

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Offline daveman

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15296 on: 10/01/2012 16:28:36 »
Thank you very much Mellivora. With people like you going out of your way and doing real and tremendous work in benefit of POIS we ARE going to get somewhere.

Like both NORDs and HIHs database entry, it takes time to build up on additional information and references. As you say they have to check them out well. And that's why these sources are so respected.

I had a look at the three expert sources listed, and didn't see any direct mention of POIS. But they are in related fields. Let's see if there are people there that actually will work directly with POIS.

We hope to generate events this year that will be worthy of special mention in all of these referential databases.

How does Murphey do it??

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Offline Stef

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15297 on: 10/01/2012 17:14:06 »
(This is a copy and paste of what I've just happily posted on the SMF forum.)

Mellivora,

WONDERFUL, OUTSTANDING NEWS!!!!!!

YOU are such a terrific asset to your group!!

ORPHANET is the big leagues database for rare disorders in Europe and the UK.  We rely upon this database frequently.

Congratulations on a job terrifically done!



Stefanie
aka "nordnurse"
« Last Edit: 10/01/2012 17:42:18 by demografx »

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Offline daveman

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15298 on: 10/01/2012 18:39:10 »
We have a new TOY!

SMF now has a chat! You have to be signed on to use it, that way it's protected against SPAMMING.

Just click the CHAT button and you're away.

Thanks.
How does Murphey do it??

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Offline Habibou

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15299 on: 10/01/2012 23:06:30 »
Congratulations !!! :D