Post Orgasmic Illness Syndrome (POIS)

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Offline kurtosis

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15350 on: 15/01/2012 20:28:33 »
Surveys often don't link the user to his vote, so this is a slight touch I'm going to give to ours. Of all the surveys that we will undertake, an important one will be a POIS profile per individual.

Later when we do other surveys, each individual will be linked to his answers so that we can always extract information relative to a certain profile.

The survey programs that are available (free) usually have a limited set of evaluation criteria and usually just say, "to this question 47.3% andswered 'yes' and 52.7% answered 'no', useful, but limited.

But once the database is available, we can use different programs to extract the same answers but related to a specific "user profile", "Individuals that suffer mostly physical symptoms don't respond to niacin, and those with cognitive problems do" for instance.

So it should be interesting.

That's a great point caveman. What format will the survey be published in? CSV file format works very well with most statistical analysis packages like minitab for example (or even the Excel stats stuff).
Would be interesting to do some hypothesis testing on the data.

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Offline Quasar

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15351 on: 15/01/2012 20:45:43 »
Not a problem, demografx. Thank you for the response. My bloodwork was as follows:
Name, Result, Reference.

Follicle Stimlating Hormone:  1.6mIU/mL, (1.3 - 19.3) Lower End


Jon, i remember my FSH hormone was also in the lower end!

Interesting, Quasar. Were you able to get the levels back to normal? And, If so, What did you to fix it?

I don't know yet. But i guess not. My Dr. didn't comment on it. I've found this:

"FSH is a key component in male fertility because it stimulates the growth of sperm. When a man has a high level of FSH, it means that the testicles are not producing enough of a hormone called inhibin, which keeps FSH levels in their normal range. This generally indicates that there has been a testicular failure, either a partial testicular failure or a full testicular failure. Treatment for elevated FSH levels in men, therefore, really requires treating the cause of the testicular failure, as opposed to actually treating the levels of FSH directly."

And this: http://www.livestrong.com/article/151903-reasons-for-a-low-fsh-in-males/
« Last Edit: 15/01/2012 20:51:07 by Quasar »

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Offline B_Daniel

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15352 on: 15/01/2012 22:02:46 »
that was very helpful, Kurtosis.  Thank you.  I agree that treatments sometimes work in combinations and have dependent factors and whatnot, but all I was getting at is imagine if we had that data you just provided, but for 50 members, compiled and presented in an easily digestible format.  It'd be amazing!  Sounds like the forum is headed in that direction, which is very, very exciting!  Thanks for your hard work Daveman. 
2-5 days, 80% cognitive, tongue-tied, brain fog, lose track of thoughts mid conversation, anxiety, dry eyes, irritable, fatigue.  Believer of both auto-immune AND regeneration theories.  My sessions are much shorter when I've gone 2 wks without.

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Offline mellivora

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15353 on: 15/01/2012 23:16:10 »
Surveys often don't link the user to his vote, so this is a slight touch I'm going to give to ours.
Sounds fantastic Daveman, thanks.

That's a great point caveman.
This has to be my favourite typo! I'm sure no offence was intended :-)

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15354 on: 16/01/2012 05:22:15 »

Offense??? I thought he WAS a caveman!

: - )

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Offline mellivora

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15355 on: 16/01/2012 11:53:10 »
The other point I want to repeat is frozen semen can't trigger the immune reaction. So for a scientist it may help to identify what is the element in semen causing the Pois which is active in fresh semen but inactive in frozen semen.
That would be an interesting approach to trying to find the culprit B_Jim, thanks. However, unless you have the evidence of a research study on this, I think we should be cautious making such a black and white statement about the inability of frozen semen to trigger the immune reaction. I have looked on poiscenter forum and seen that Habibou self-administered an injection of frozen semen and didn't get a reaction (this does seem significant as it was 1:1 - i.e. not diluted - I WOULD NOT RECOMMEND ANYONE TRIES THIS!). However he did get a reaction with a 1:40000 diluted dose of fresh semen administered by a doctor. Vandermolen has reported being told by his docs that fresh semen is better (though has also said treatment with frozen works but more slowly).

I think we can't say frozen definitely doesn't work yet, as we don't have enough data or adequately refined techniques and controls in place, just that fresh semen does work and frozen may not. The way things are frozen might be important - eg. how fast/slow is the freezing, do the contents separate out at all somehow during the process etc).

However, if you have more evidence do let me know, I have only read Habibou's case (which I admit is significant!) and just a few other forum posts on this..
« Last Edit: 16/01/2012 11:55:04 by mellivora »

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Offline daveman

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15356 on: 16/01/2012 11:56:38 »
Surveys often don't link the user to his vote, so this is a slight touch I'm going to give to ours. Of all the surveys that we will undertake, an important one will be a POIS profile per individual.

Later when we do other surveys, each individual will be linked to his answers so that we can always extract information relative to a certain profile.

The survey programs that are available (free) usually have a limited set of evaluation criteria and usually just say, "to this question 47.3% andswered 'yes' and 52.7% answered 'no', useful, but limited.

But once the database is available, we can use different programs to extract the same answers but related to a specific "user profile", "Individuals that suffer mostly physical symptoms don't respond to niacin, and those with cognitive problems do" for instance.

So it should be interesting.

That's a great point caveman. What format will the survey be published in? CSV file format works very well with most statistical analysis packages like minitab for example (or even the Excel stats stuff).
Would be interesting to do some hypothesis testing on the data.


That's Daveman by the way [:)]!

Yes it has CSV output, can be imported into excel etc. I usually don't do too much myself in that area, like to work directly on the database for WEB output.

But it's great if there are people like you available to run it through excel scripts or other analysis programs, all the more minds working on the possibilities.

The program has it's own WEB reporting tool, pretty basic, just says how the group responded. But I will be writing an interface to be able to do more extensive cross tabulation and extraction of more specific information (ej. treatment efficacy for instance referenced to specific POIS profiles ).


How does Murphey do it??

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Offline daveman

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15357 on: 16/01/2012 12:17:34 »
For the "auto-immune-sufferers" who have not result with supplemants like Niacin or with diet improvements, maybe they could try to wash and eliminate the semen just after orgasm. There is maybe a little chance to reduce symptoms.

The other point I want to repeat is frozen semen can't trigger the immune reaction. So for a scientist it may help to identify what is the element in semen causing the Pois which is active in fresh semen but inactive in frozen semen.

I have nothing new to say. 150mg of niacin don't give me flush reaction. Low (20-40mg) or average (50-150mg) dose of niacin can't stop my flu-like symptoms. Maybe it helps my cognitive symptoms.
But once again, I can strongly confirm that when I avoid or reduce flu-like symptoms during Day-0, I have few or less cogntive symptoms the days after (Day-1, Day-2....).

I'm really interested in your case B_Jim, and cases like yours where niacin doesn't work. You took the 150mg niacin on an empty stomach? Let's say at least 3 to 5 hours after any food? This is very important. Also without flush, also very much less likely to have any effect.

I read that those who most need niacin, require more. You need to find a dose that gives the flush (using of course the type of niacin that GIVES flush, there are kinds that don't). And you must assure not having eaten for at least 3 hours, if it is difficult for  you to get a flush, you should probably wait 5 hrs.

Don't give up right yet, I think it's important to finish the tests, especially on someone who hasn't had success. IF you finally manage to get a flush and still have bad POIS afterwards, then we would need to investigate what's going on in your case (and those who aren't relieved by niacin).

For those for which niacin works, it usually is VERY effective. So it must point to something. And then if we can see why on some it does not work, I think we would be getting very close to a breakthrough answer.
How does Murphey do it??

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Offline Vincent M

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15358 on: 16/01/2012 16:06:39 »
About my social anxiety and reduced cognitive function stemming from POIS:

Against my better judgement I've been on Venlafaxine (Effexor), an SNRI, for Social Anxiety for a week and 3 days now and it's only made me feel tired, weak, and zoned out and gave me some heart pains which I've never ever experienced before. Since I've already tried Prozac(which also just made me tired) and after spending a lot of time reading up on drug studies and user reports of SSRIs and SNRIs I wouldn't recommend them to anyone. My next approach will be to use Klonopin (a benzo that actually reduces my anxiety and seems to work for the majority of other people) and hopefully I can get some Adderall since I've read a lot of good user reports on it's ability to enhance cognitive energy and function over a short period of time. I would take both only 2 times a week at most to avoid developing a tolerance since tolerance develops within days or weeks in most of the reports I've read.
Taking fenugreek+tea/garlic, saw palmetto, huperzine, niacin, boswellia, and nutmeg.

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Offline lauracostis

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15359 on: 16/01/2012 20:14:39 »
About my social anxiety and reduced cognitive function stemming from POIS:

Against my better judgement I've been on Venlafaxine (Effexor), an SNRI, for Social Anxiety for a week and 3 days now and it's only made me feel tired, weak, and zoned out and gave me some heart pains which I've never ever experienced before. Since I've already tried Prozac(which also just made me tired) and after spending a lot of time reading up on drug studies and user reports of SSRIs and SNRIs I wouldn't recommend them to anyone. My next approach will be to use Klonopin (a benzo that actually reduces my anxiety and seems to work for the majority of other people) and hopefully I can get some Adderall since I've read a lot of good user reports on it's ability to enhance cognitive energy and function over a short period of time. I would take both only 2 times a week at most to avoid developing a tolerance since tolerance develops within days or weeks in most of the reports I've read.
you should try a tricyclic antidepressant

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15360 on: 16/01/2012 22:45:45 »


After decades of testing tricyclics, SNRI's, SSRI's and the like, I find that ADHD stimulants now work best for me. I fought, resisted the suggestions, but when I complied I was very pleasantly surprised. Still am, about 6 years later!

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Offline CertainlyPOIS

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15361 on: 16/01/2012 23:28:00 »
The other point I want to repeat is frozen semen can't trigger the immune reaction. So for a scientist it may help to identify what is the element in semen causing the Pois which is active in fresh semen but inactive in frozen semen.

I think we can't say frozen definitely doesn't work yet, as we don't have enough data or adequately refined techniques and controls in place, just that fresh semen does work and frozen may not. The way things are frozen might be important - eg. how fast/slow is the freezing, do the contents separate out at all somehow during the process etc).

However, if you have more evidence do let me know, I have only read Habibou's case (which I admit is significant!) and just a few other forum posts on this..


Quote
If  you say skinprick, all in one word, it gets through.
Thanks, I understand my mistake  [;D]


 I received an intradermal test from Dr. Nguyen and Dr. Bewtra (so did CCconfucius). The semen was not diluted at all. I froze the sample about a week before the test and thawed it in the fridge a few hours before the test and kept it cool on the way to the doctor's office. I believe keeping the sample fresh is important. Anyway, for treatment, the doctor may need to dilute the sample, but for my testing (and for CCconfucius) it wasn't.

evidence frozen semen still causes reaction.


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Offline GoingCrazy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15362 on: 16/01/2012 23:38:59 »
Just had 3 O's after previously not having POIS the last time I had the O's.  This time it struck me like lightning.  I had them last night, and in my brain I swear I go temporarily psychotic during the night, I can't sleep and have really messed up dreams.  I did not take niacin yesterday, as I said that gives me some temporary pois type reaction.  It has been about 18 hours and it is about gone, at least the terrible mood part.

I also drank a lot a few days ago and had a really, really good night's sleep.  I think beer is actually beneficial to my POIS other than hard alcohol.  Does beer help anybody else?

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Offline CertainlyPOIS

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15363 on: 16/01/2012 23:43:00 »
I think this idea should support semen allergy more. 
I dont know if somebody brought it up or not.

If doctor waldinger is wrong and all men are allergic to semen and our problem is not semen allergy.  then when i get my injections i shouldnt get pois symptoms to, i should just get pure allergy symptoms like people with other allergies.

at 1;100 i got pois symptoms from shot.
hoping waited till he was out of pois to do allergy test, and allergy test gave him pois.

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Offline GoingCrazy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15364 on: 16/01/2012 23:49:59 »
**Edited  (better picture a few posts below)

BTW, I'm just trying to get to a better understanding of how we relate to our pains in POIS, can some people just please take a look at this picture and explain where you mentally feel your pois.  I know some people feel it all throughout but mine follows a distinct pattern.  (#10 is the front of the brain)


For me, my usual POIS starts at between the numbers 37, 19, somewhere around there.  That is where I can say I feel the "imbalance" or whatever is taking place.  Not really familiar with the brain so this is probably not the best picture but I think if the cerebellum was there (below #37) than I would say it is between 37 and the cerebellum.
« Last Edit: 17/01/2012 02:27:43 by GoingCrazy »

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Offline observercenter

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15365 on: 17/01/2012 00:51:12 »
BTW, I'm just trying to get to a better understanding of how we relate to our pains in POIS, can some people just please take a look at this picture and explain where you mentally feel your pois.  I know some people feel it all throughout but mine follows a distinct pattern.  (#17 is the front of the brain)


For me, my usual POIS starts at between the numbers 38, 44 and 45, somewhere around there.  That is where I can say I feel the "imbalance" or whatever is taking place.

I think that the brain fog or the imbalance is felt at this area, just behind my eyes - i can feel it on that point : http://en.wikipedia.org/wiki/Brodmann_area_11 . Interesting what the wiki says: "Brodmann area 11 is one of Brodmann's cytologically defined regions of the brain. It is involved in planning, reasoning, and decision making."

Oh, and 38 suits better i think. Area 11-38. Brodmann's area 38
Associational cortical area in the anterior pole of the temporal lobe; this temporal area is related to networks in the amygdala and orbital prefrontal cortex that govern personal and social behavior, emotion, and decision making.

http://en.wikipedia.org/wiki/Brodmann_area_38
« Last Edit: 17/01/2012 00:56:20 by observercenter »

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Offline kurtosis

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15366 on: 17/01/2012 01:04:45 »
Surveys often don't link the user to his vote, so this is a slight touch I'm going to give to ours. Of all the surveys that we will undertake, an important one will be a POIS profile per individual.

Later when we do other surveys, each individual will be linked to his answers so that we can always extract information relative to a certain profile.

The survey programs that are available (free) usually have a limited set of evaluation criteria and usually just say, "to this question 47.3% andswered 'yes' and 52.7% answered 'no', useful, but limited.

But once the database is available, we can use different programs to extract the same answers but related to a specific "user profile", "Individuals that suffer mostly physical symptoms don't respond to niacin, and those with cognitive problems do" for instance.

So it should be interesting.

That's a great point caveman. What format will the survey be published in? CSV file format works very well with most statistical analysis packages like minitab for example (or even the Excel stats stuff).
Would be interesting to do some hypothesis testing on the data.


That's Daveman by the way [:)]!

Yes it has CSV output, can be imported into excel etc. I usually don't do too much myself in that area, like to work directly on the database for WEB output.

But it's great if there are people like you available to run it through excel scripts or other analysis programs, all the more minds working on the possibilities.

The program has it's own WEB reporting tool, pretty basic, just says how the group responded. But I will be writing an interface to be able to do more extensive cross tabulation and extraction of more specific information (ej. treatment efficacy for instance referenced to specific POIS profiles ).



The spelling correcter inserts "caveman" automatically if I type daveman in lower case. Sorry about that, I forgot I'd switched that feature on on my new laptop as I've been busy traveling around the globe on a holiday.
Exporting to csv would be fine.

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Offline observercenter

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15367 on: 17/01/2012 01:11:43 »
I think this idea should support semen allergy more. 
I dont know if somebody brought it up or not.

If doctor waldinger is wrong and all men are allergic to semen and our problem is not semen allergy.  then when i get my injections i shouldnt get pois symptoms to, i should just get pure allergy symptoms like people with other allergies.

at 1;100 i got pois symptoms from shot.
hoping waited till he was out of pois to do allergy test, and allergy test gave him pois.
Dr. Waldinger said when i visited him that non-POIS sufferers do not experiment any kind of reaction to an allergy test.

I felt when i have an orgasm - since the very first moments - like someone is injecting me the brain fog( I could not explain better, sorry) in an area of my brain behind my eyes. I could feel the beginning of this "injection" if i have taken niacin 1 hour before the orgasm - but the feeling stops there and i do not develop any brain fog. I felt exactly the same when the allergist of Dr.Waldinger injected me a dilluted concentration of my own semen - They in fact told me that i should get mild POIS from the injection - something that did not happen because i had taken the niacin!. I hope my experience serves.
« Last Edit: 17/01/2012 01:17:12 by observercenter »

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Offline CertainlyPOIS

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15368 on: 17/01/2012 01:21:12 »
Dr. Waldinger said when i visited him that non-POIS sufferers do not experiment any kind of reaction to an allergy tes

do you any way know why he did not put that in his paper

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Offline observercenter

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15369 on: 17/01/2012 01:28:51 »
do you any way know why he did not put that in his paper

I did not know that he did not put that in his paper. I think he will explain this better in the POIS documentary of ABC television, because the journalist asked one question about this.

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Offline GoingCrazy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15370 on: 17/01/2012 02:24:16 »
This is probably the better picture to put up.

Again as soon as I "O" I experience it in my cerebellum, I have almost no doubt.

Observercenter you say that as soon as you "O" you can feel it behind your eyes?
That area is sort of where mine "migrates" to from the cerebellum and than disappears.  It used to be located in that area heavily but is not really there any more.  I think it is some sort of neurotransmitter deficiency as when I take caffeine, it usually goes away.  I think the caffeine boosts some sort of neurotransmitter function in the area.
« Last Edit: 17/01/2012 02:30:17 by GoingCrazy »

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Offline Mutant Man

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15371 on: 17/01/2012 09:54:00 »
do you any way know why he did not put that in his paper

I did not know that he did not put that in his paper. I think he will explain this better in the POIS documentary of ABC television, because the journalist asked one question about this.

How do I find this documentary...

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Offline Mutant Man

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15372 on: 17/01/2012 10:05:08 »
The other point I want to repeat is frozen semen can't trigger the immune reaction. So for a scientist it may help to identify what is the element in semen causing the Pois which is active in fresh semen but inactive in frozen semen.

I think we can't say frozen definitely doesn't work yet, as we don't have enough data or adequately refined techniques and controls in place, just that fresh semen does work and frozen may not. The way things are frozen might be important - eg. how fast/slow is the freezing, do the contents separate out at all somehow during the process etc).

However, if you have more evidence do let me know, I have only read Habibou's case (which I admit is significant!) and just a few other forum posts on this..


Quote
If  you say skinprick, all in one word, it gets through.
Thanks, I understand my mistake  [;D]


 I received an intradermal test from Dr. Nguyen and Dr. Bewtra (so did CCconfucius). The semen was not diluted at all. I froze the sample about a week before the test and thawed it in the fridge a few hours before the test and kept it cool on the way to the doctor's office. I believe keeping the sample fresh is important. Anyway, for treatment, the doctor may need to dilute the sample, but for my testing (and for CCconfucius) it wasn't.

evidence frozen semen still causes reaction.



Correct me if I'm wrong but I believe thawed cells do tend to disintegrate as a consequence of the freezing process.

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Offline Mutant Man

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15373 on: 17/01/2012 10:21:44 »
Anyone got any potentially effective treatments I can try? So far, Niacin incoporated wellman doesn't work on me. Should I try independent niacin by itself? Loratadine does only as little help as my POIS is predominantly physical....

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Offline observercenter

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15374 on: 17/01/2012 11:04:08 »
How do I find this documentary...

You must wait 2,3 months because it is going to be broadcast on that date.

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Offline Mutant Man

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15375 on: 17/01/2012 11:44:39 »
How do I find this documentary...

You must wait 2,3 months because it is going to be broadcast on that date.

Wonderful. Do you know the precise date?

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Offline daveman

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15376 on: 17/01/2012 12:06:36 »
Anyone got any potentially effective treatments I can try? So far, Niacin incoporated wellman doesn't work on me. Should I try independent niacin by itself? Loratadine does only as little help as my POIS is predominantly physical....

I use Nature's Way 100mg capsules. Pure natural niacin, and in capsules you can open them and divide doses easily.

The rules are strict for it to work:
fast at least 3 to 5 hours before niacin
-niacin 1 hour before "O"
-take just enough to flush (the flush is the guide) slightly less also works but not as well, but if you don't flush you don't know if  you're close
 (I take 100mg to 150mg)
-Wait for the peak of the flush to pass before "O"

That's all, but anything else probably won't work.
« Last Edit: 17/01/2012 12:08:09 by daveman »
How does Murphey do it??

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Offline Quasar

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15377 on: 17/01/2012 17:50:13 »
Is there anyone besides Jferr and me who also has low or borderline low FSH hormone levels? Could someone make a poll? Thanks!

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Offline jferr

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15378 on: 17/01/2012 21:27:52 »
Thats a good idea, Quasar.

Also, Has anyone taken a testosterone supplement? If so, What amount and during what times of POIS is it taken? I am debating trying to get a prescription as I believe it may help. Thanks.

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Offline Vincent M

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15379 on: 17/01/2012 21:29:26 »
Anyone got any potentially effective treatments I can try? So far, Niacin incoporated wellman doesn't work on me. Should I try independent niacin by itself? Loratadine does only as little help as my POIS is predominantly physical....

Interesting. My symptoms are mostly physical as well and Loratadine eliminates the majority of those physical symptoms. I think taking the Loratadine an hour before "o" works the best. Taking it after "o" would probably do nothing for me.

Taking niacin by itself would be a good idea especially if you didn't get a flush from it. You should at least experience the flush before giving up on niacin in my opinion.
Taking fenugreek+tea/garlic, saw palmetto, huperzine, niacin, boswellia, and nutmeg.

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Offline questforlife

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15380 on: 17/01/2012 23:03:54 »
Thats a good idea, Quasar.

Also, Has anyone taken a testosterone supplement? If so, What amount and during what times of POIS is it taken? I am debating trying to get a prescription as I believe it may help. Thanks.

Hi, not that I would recommend an illegal substance.  However I once took dianabol (Methandrostenolone) for body building purposes.  The effects were very interesting in how I felt overall.  I took tiny amounts for approx 8 months (when I say tiny, im talking about half a tablet) 

I felt like a new me with no POIS effects.  I felt like the person i wanted to be if that makes any sense.  Now you must understand, I am not suggesting we take this, Dianabol has some serious effects on the liver not to mention other issues - hence why its banned.  I was having alot of sex durning that period, due to high testosterone levels and my disbelief that POIS appeared to have gone.

I have often looked into why Dianobol did this to me, because the amounts I was taking would not normally show any effect.

Now I have stopped it POIS has returned.


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Offline kurtosis

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15381 on: 18/01/2012 03:05:16 »
Following the discussions about astaxanthin in salmon I tried krill oil again with the rest of my current supplementation regime (niacin, multi-vit in the morning,  zma at night and at least 2.5g vit c during the day). Have had 2 0's during the 5 days I've tried it. I should be wrecked from POIS, jet lag and travel/work related stress but I actually feel even better than I did at the start of this supplementation. Krill oil is adding something else that wasn't there with my standard trigylceride fish oil.

I've had very little POIS symptoms. They might even be normal responses to an O. I can't quite figure it out as I've never known "normal" responses before. The turning point for me was when I discovered niacin. Things just started to improve and I take it almost every morning when I wake up. It feels odd to flush each morning but it's better to feel odd than depressed and scatter brained. But on days when I feel really good and don't intend to have an O, I skip the extra 100mg and just take the 50 with my multi-vit. So far so good.

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15382 on: 18/01/2012 06:21:19 »

 Has anyone taken a testosterone supplement? If so, What amount and during what times of POIS is it taken? I am debating trying to get a prescription as I believe it may help. Thanks.


I have been largely cured of POIS for over 2 years now with testosterone replacement therapy (TRT).

I apply 3 daily patches of Androderm @ 5mg = 15 mg daily 24/7/365.

After 30+ years of POIS agony, it still feels "miraculous". I got my life back.

I have been working with a POIS-empathetic endocrinologist who put me through a series of hormonal blood tests and brain MRI's (pituitary gland).

I'm sure it is not for everybody, although a handful of successes have been reported here.

Best wishes.

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Offline Quasar

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15383 on: 18/01/2012 10:51:55 »
Following the discussions about astaxanthin in salmon I tried krill oil again with the rest of my current supplementation regime (niacin, multi-vit in the morning,  zma at night and at least 2.5g vit c during the day). Have had 2 0's during the 5 days I've tried it. I should be wrecked from POIS, jet lag and travel/work related stress but I actually feel even better than I did at the start of this supplementation. Krill oil is adding something else that wasn't there with my standard trigylceride fish oil.

I've had very little POIS symptoms. They might even be normal responses to an O. I can't quite figure it out as I've never known "normal" responses before. The turning point for me was when I discovered niacin. Things just started to improve and I take it almost every morning when I wake up. It feels odd to flush each morning but it's better to feel odd than depressed and scatter brained. But on days when I feel really good and don't intend to have an O, I skip the extra 100mg and just take the 50 with my multi-vit. So far so good.

But Kurtosis, you mention you take 100mg Niacin at mornings? Shouldn't it be taken 1h before an O. ? Does it work for you this way?

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15384 on: 18/01/2012 20:45:23 »



Not a problem, demografx. Thank you for the response. My bloodwork was as follows:
Name, Result, Reference.

Follicle Stimlating Hormone:  1.6mIU/mL, (1.3 - 19.3) Lower End


Jon, i remember my FSH hormone was also in the lower end!

Interesting, Quasar. Were you able to get the levels back to normal? And, If so, What did you to fix it?

I don't know yet. But i guess not. My Dr. didn't comment on it. I've found this:

"FSH is a key component in male fertility because it stimulates the growth of sperm. When a man has a high level of FSH, it means that the testicles are not producing enough of a hormone called inhibin, which keeps FSH levels in their normal range. This generally indicates that there has been a testicular failure, either a partial testicular failure or a full testicular failure. Treatment for elevated FSH levels in men, therefore, really requires treating the cause of the testicular failure, as opposed to actually treating the levels of FSH directly."

And this: http://www.livestrong.com/article/151903-reasons-for-a-low-fsh-in-males/


Very interesting. My endocrinologist put me through "the system" as a patient diagnosed with hypogonadism. Similarities to POIS are interesting to me, so the FSH connection in your article is. I had MRI's done of my pituitary after my prolactin was found to have been sky high while my FSH was normal!

Medical science is clueless when it comes to prolactin....in men.

So....with endo's blessing I went off and found my own cure for prolactin=1,000% higher than norm! (I had to go no further than to peek in to Wikipedia to find the cause, and again, with endo's blessing, I adopted my cure, which was to drop another Rx called Reglan. Thanks, Wikipedia!!! : - )

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Offline badgerstripe

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15385 on: 18/01/2012 22:28:20 »
Anyone got any potentially effective treatments I can try? So far, Niacin incoporated wellman doesn't work on me. Should I try independent niacin by itself? Loratadine does only as little help as my POIS is predominantly physical....

I use Nature's Way 100mg capsules. Pure natural niacin, and in capsules you can open them and divide doses easily.

The rules are strict for it to work:
fast at least 3 to 5 hours before niacin
-niacin 1 hour before "O"
-take just enough to flush (the flush is the guide) slightly less also works but not as well, but if you don't flush you don't know if  you're close
 (I take 100mg to 150mg)
-Wait for the peak of the flush to pass before "O"

That's all, but anything else probably won't work.


I am experimenting with Niacin and i am finding that is pretty much the guidelines that are seeming to work for me to at least reduce all my POIS symptoms.

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Offline badgerstripe

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15386 on: 18/01/2012 22:32:08 »
Following the discussions about astaxanthin in salmon I tried krill oil again with the rest of my current supplementation regime (niacin, multi-vit in the morning,  zma at night and at least 2.5g vit c during the day). Have had 2 0's during the 5 days I've tried it. I should be wrecked from POIS, jet lag and travel/work related stress but I actually feel even better than I did at the start of this supplementation. Krill oil is adding something else that wasn't there with my standard trigylceride fish oil.

I've had very little POIS symptoms. They might even be normal responses to an O. I can't quite figure it out as I've never known "normal" responses before. The turning point for me was when I discovered niacin. Things just started to improve and I take it almost every morning when I wake up. It feels odd to flush each morning but it's better to feel odd than depressed and scatter brained. But on days when I feel really good and don't intend to have an O, I skip the extra 100mg and just take the 50 with my multi-vit. So far so good.

But Kurtosis, you mention you take 100mg Niacin at mornings? Shouldn't it be taken 1h before an O. ? Does it work for you this way?

I'm curious about that too.

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Offline daveman

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15387 on: 18/01/2012 23:52:27 »
Speaking of Vitamin "D". I heard today that doctors are getting a little concerned with so MUCH sunblock, that the human, especially the young, aren't getting enough sun. You don't need a lot, but it seems we are getting less than we should.

The sun converts vitamin D in foods that get delivered to the skin to an effective form of vitamin D. If you don't get enough sun, it may not matter how much you actually consume, it doesn't get properly integrated into the system. (Sort of like plants and cloraphyl )

This could also be a factor in POIS. It almost seems like it's relatively new.

How does Murphey do it??

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Offline mrraba

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15388 on: 19/01/2012 01:59:36 »
Hi Mr. Raba here new to forum. 19 years of CFS and POIS.

Interestingly enough I was hit by both simultaneously.  I was taking 4 grams of slo niacin a day per my doc to reduce cholesterol.

Got real sick, yellow, severe chest pain in left side, etc.   Stopped niacin immediately.  Big drop of course.  Then CFS and POIS started.

When I take niacin I get the chest pain again. 

For  a long time I suspected that Niacin was somehow involved.  If you look at the side effects you will see that it says that in rare cases it causes chronic fatigue.  I speculate that the involvement could be too much slo-niacin (more toxic than non extended release) or too sudden of a withdrawl.  One or both of the extremes may be a autoantibody sensitizing catalyst.  Just speculating there.

I wonder if I developed an allergy to niacin itselt since I was taking  such high doses or if the withdrawl made me suceptible to develop antigens.  Also, the  night before I fell ill with the sudden onset I had taken 6 grams of slo niacind and  I had sex.  Even since that event POIS happens for 48 hours after any form of emission of semen.   NEVER fails.

You will find that CFS is almost the same thing that POIS.  Except that you do not recover completely after 48 hours or whatever is your recovery period.    It stays with you.  One becomes senstive to physical exterion and you crash similar to POIS for the 48 hours if you overdo it.  The list of symptoms of CFS and POIS is identical.  Duration is the only difference.

By looking at the POIS/CFS overlap I believe this fine forum might benefit from all CFS research.  What helps you here are the same thngs that help people with CFS, 5htp, niacin, multivitmin, etc.   

What I use to help CFS helps with POIS.

Namely:  Whey Protein - IMuplus.  Start low and increase slowly as tolerated.  I do not recommend other brands since they may include more potent immune system activators that may potentiate the autoimmune response.  Include multivitamin.  Also Simple Meditation is excellent for this.  It acts on the CNS.

If you do a search on CFS and rituximab you will find that recently there has been an indication that CFS maybe an auto immune response!   Sounds familiar?  People have gone from bed bound to climibing mountains with no symptoms whatsoever. Would it work on POIS?  That is a very promising question.  I met several men with CFS/POIS combo on the net.

As an aside.  How about creating a POIS forum in yahoo groups where it is easier to follow threads?  There is no POIS forum there that I could find.

19 Years and getting slowly better from CFS and POIS . 

Mr. Raba


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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15389 on: 19/01/2012 04:14:21 »



You will find that CFS is almost the same thing that POIS.

.

We are open to ideas, but I think that consensually, this forum has ruled out CFS and POIS' interrelatedness:

Click Here for nearly 300 CFS-POIS Google discussion results at our forum:


« Last Edit: 19/01/2012 04:29:36 by demografx »

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Offline kurtosis

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15390 on: 19/01/2012 10:22:24 »
Following the discussions about astaxanthin in salmon I tried krill oil again with the rest of my current supplementation regime (niacin, multi-vit in the morning,  zma at night and at least 2.5g vit c during the day). Have had 2 0's during the 5 days I've tried it. I should be wrecked from POIS, jet lag and travel/work related stress but I actually feel even better than I did at the start of this supplementation. Krill oil is adding something else that wasn't there with my standard trigylceride fish oil.

I've had very little POIS symptoms. They might even be normal responses to an O. I can't quite figure it out as I've never known "normal" responses before. The turning point for me was when I discovered niacin. Things just started to improve and I take it almost every morning when I wake up. It feels odd to flush each morning but it's better to feel odd than depressed and scatter brained. But on days when I feel really good and don't intend to have an O, I skip the extra 100mg and just take the 50 with my multi-vit. So far so good.

But Kurtosis, you mention you take 100mg Niacin at mornings? Shouldn't it be taken 1h before an O. ? Does it work for you this way?
I take 50mg in the multi-vitamin and another 100mg by itself every morning before I eat anything. This guarantees a flush for me at any rate. It doesn't seem to matter much so long as I flushed earlier that day. If I have an O during the day then I don't feel bad symptoms and if I have an O that night the ZMA seems to have a beneficial effect. I drift off to sleep quickly and wake up feeling pretty good. I don't seem to need to get a flush 1-2 hours before an O, I've got a longer window within which an O has minimal effect.  Perhaps this is just a quirk that applies to me. Pre-niacin supplementation I was getting nowhere.
Also, if I have an O and start to notice bad effects, then getting a lot of vitamin c shortly after it tends to fix me. I notice that I'm effectively dependent on this supplementation. If I don't get it then I start to feel lethargic and unfocussed.

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Offline daveman

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15391 on: 19/01/2012 11:48:09 »



You will find that CFS is almost the same thing that POIS.

.

We are open to ideas, but I think that consensually, this forum has ruled out CFS and POIS' interrelatedness:

Click Here for nearly 300 CFS-POIS Google discussion results at our forum:




If I might try to clarify Demo. We have had a lot of people who think that CFS and POIS are the same thing, as we have had a lot of people who try to compare POIS to or even discount it as being some other thing.

It's a very complicated entanglement. In many cases, pursuing cures for other things that have similar symptoms only leads to dead end streets.

We have one case (that we're sure of here) where a member went to a renowned doctor and was diagnosed with CFS induced by POIS, so we DO know there can be a connection.

However they ARE two different ailments, with a high degree of similarity, and may even have an overlapping etiology. Certainly in cases where this happens you have to be open to the common factors and try yo use them to understand the mechanisms.

Very interestingly, there has been heated debate here about porn addiction as the CAUSE of POIS, or more outright, misnomer for POIS. However this probably comes from a similar overlap of etiology. But you can't cure POIS in the same way you cure porn addiction. They are two completely different problems.

You have to get down to the nitty-gritty and find out what causes the anomalies in whichever system is failing. CFS in our member above is likely caused by the extra load of POIS on the effected system. Perhaps POIS could be looked at from the point of view of sex-addiction, thinking that rather than us over-exercising our sexuality, something in us reacts in a similar way with a very low load. One would have to study the details.

But we have to be very careful in outright applying the fix for one to cure the other.

Your post to me is very exciting though. More and more I am seeing that POIS seems to be related to the whole neurotransmitter factory in us related to histamines, serotonin and dopamine etc. (therefore niacin is a big player)

BTW, you may have seen in the welcome message that we have a threaded forum at POIS Center. If you want to join up, go over and sign up, then send me a PM here, so that I can pick you out from the 50 SPAM applications that we get per day.
How does Murphey do it??

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Offline daveman

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15392 on: 19/01/2012 12:41:08 »
I wanted to give a special thanks to Victor.Kons for helping out with the new chat over at SMF.

Go on over and try it out. All kinds of bells and whistles, and a great way to get to know some of our members on a more personal level.

Thanks again Victor, and GREAT WORK!


How does Murphey do it??

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Offline martin88

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15393 on: 19/01/2012 13:31:10 »
I have already try omega3/fish oil supplements without success. 
From all anti-inflammatory(or Anti-Pois at least ) food I've tried salmon is the best.
Some nutritionnists think Astaxanthin is a good anti-inflammatory. In fact, it is the pink pigment of salmon, shrimp...
Just before a nocturnal emission I don't have POIS.
Also I have a NE after taking salmon (+sexual abstinence) but not from fish oil.
It would be good to know why salmon has this effect. Very interesting for astaxanthin (powerful antioxydant).

Some other facts:
-The ratio DHA/EPA is very elevated in salmon (can be 1.4g DHA / 0.3g EPA - source: http://www.ars.usda.gov/SP2UserFiles/Place/12354500/Articles/EB07_Salmon.pdf)

-DHA is important for sperm formation.
http://www.livescience.com/17878-dha-vital-sperm-health.html
http://www.jlr.org/content/51/2/360.full.pdf

-Salmon contains 0.8g phospholipids /100g (phosphatidylcholine 60%, phosphatidyl ethanolamine 30%)
According to this study Omega 3 work together with phospholipids:
http://www.ncbi.nlm.nih.gov/pubmed/18072818
Quote
Omega-3 phospholipid supplements that combine DHA/EPA and phospholipids into the same molecule have shown marked promise in early clinical trials....Krill omega-3 phospholipids, containing mostly phosphatidylcholine (PC) with DHA/EPA attached, markedly outperformed conventional fish oil DHA/EPA triglycerides in double-blind trials for premenstrual syndrome/dysmenorrhea and for normalizing blood lipid profiles....Phosphatidylserine with DHA/EPA attached (Omega-3 PS) has been shown to alleviate AD/HD symptoms.... Krill omega-3 phospholipids demonstrated anti-inflammatory activity, lowering C-reactive protein (CRP) levels in a double-blind trial. Utilizing DHA and EPA together with phospholipids and membrane antioxidants to achieve a triple cell membrane synergy may further diversify their currently wide range of clinical applications
« Last Edit: 19/01/2012 13:40:42 by martin88 »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15394 on: 19/01/2012 16:54:24 »



You will find that CFS is almost the same thing that POIS.

.

We are open to ideas, but I think that consensually, this forum has ruled out CFS and POIS' interrelatedness:

Click Here for nearly 300 CFS-POIS Google discussion results at our forum:




If I might try to clarify Demo. We have had a lot of people who think that CFS and POIS are the same thing, as we have had a lot of people who try to compare POIS to or even discount it as being some other thing.

It's a very complicated entanglement. In many cases, pursuing cures for other things that have similar symptoms only leads to dead end streets.

We have one case (that we're sure of here) where a member went to a renowned doctor and was diagnosed with CFS induced by POIS, so we DO know there can be a connection.

However they ARE two different ailments, with a high degree of similarity, and may even have an overlapping etiology. Certainly in cases where this happens you have to be open to the common factors and try yo use them to understand the mechanisms.

Very interestingly, there has been heated debate here about porn addiction as the CAUSE of POIS, or more outright, misnomer for POIS. However this probably comes from a similar overlap of etiology. But you can't cure POIS in the same way you cure porn addiction. They are two completely different problems.

You have to get down to the nitty-gritty and find out what causes the anomalies in whichever system is failing. CFS in our member above is likely caused by the extra load of POIS on the effected system. Perhaps POIS could be looked at from the point of view of sex-addiction, thinking that rather than us over-exercising our sexuality, something in us reacts in a similar way with a very low load. One would have to study the details.

But we have to be very careful in outright applying the fix for one to cure the other.

Your post to me is very exciting though. More and more I am seeing that POIS seems to be related to the whole neurotransmitter factory in us related to histamines, serotonin and dopamine etc. (therefore niacin is a big player)

BTW, you may have seen in the welcome message that we have a threaded forum at POIS Center. If you want to join up, go over and sign up, then send me a PM here, so that I can pick you out from the 50 SPAM applications that we get per day.


Daveman, thanks for clarifying!


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Offline littledragon

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15395 on: 19/01/2012 17:57:04 »
hi there,
since I'm new here I would like to share you my experience with POIS which started 10 years ago after being caught by the Glandular fever (kissing disease) from which I have nearly recovered (still have weak legs when I'm low on energy due to stress or POIS)
I started to recover slowly by doing sports and part-time working
I don't smoke or drink and with this in mind I was convinced my symptoms would soon go away
unfortunately I kept the POIS-symptoms and since my doctor never heard of it, I thought I would have to deal with it for the rest of my life
fortunately the searching on the net brought me to this forum

after reading some of your experiences and noticing the niacine effect I recently got hold of some tablets with the flush effect
yesterday 3 hours after breakfast I took 100 mg niacine (crushed to powder) and had only a slight flush
then after 1,5 hours had an 'O' and only had a slight fatigue
so my first reaction was a cautious optimism
unfortunately after 3 hours or so my POIS symptoms came back worse!

that same day after having dinner, my POIS slightly fell back and by morning (today) I felt good (only a slight fatigue)
now this part may sound crazy or maybe I'm wrong but today after doing a little dance to JB my POIS came back again
I really dont understand what is going on in my body

fortunately I'm having no trouble typing this post now which I normally have when having POIS symptoms
my main symptoms are a very stiff neck, weak legs and this unexplained burning/cramp feeling
I will wait for tomorrow how I feel, but for now I'm a bit anxious about continuing taking the niacine

finally I would like to thank all here for sharing their experiences :)

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Offline kurtosis

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15396 on: 19/01/2012 20:18:35 »
Thanks Martin. Omega3 caps (sardines and maquerels oil ? )didn't help me. I want to try astaxanthin but it's expansive.

Welcome Littledragon !

Thanks for our 2 great programmers.    :)
Chat works perfectly.

--

The role of the liver against allergy process is very important . Hmm, I don't remember why we started to talk about the liver.

I've found krill oil costs wildly different prices in different countries and I think that rarity and shipping costs seem to play a big part. In the UK and Ireland it's available at prices between 21 and 30 Euro for 60 1/day soft gels. There are also special offers and it's increasing in popularity.  In some of the nordic countries it's a bit cheaper. In HK it's about 25-35 Euro. This is pricey but relatively affordable for "middle class" consumers in these countries. In NZ and Australia the prices are huge. I've seen brands at 60 and greater dollars and its regarded as a premium supplement. The lady working in the shop nearly took my hand off when I said I was interested in buying some but It's becoming unaffordable at that price given NZ salaries So I guess it depends where you live whether you can afford to regularly buy expensive fish oil supplements.
This wasn't some kind of planned survey btw. I was just shopping for stuff in my travels and thinking about buying some krill oil. By the time I pulled the trigger I ended up spending >60% more than I bought my original KO for and I got 750mg caps instead of 1000mg. But it's definitely doing something that standard fish oil supps aren't.

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15397 on: 19/01/2012 20:46:30 »
littledragon, and mrraba, welcome to the POIS thread of The Naked Science Forum!  We believe that 2012 is POIS' Breakthrough Year! We hope to launch serious POIS Medical Research! A great time to be here, littledragon and mrraba!




**(If you have any technical questions, please feel free to PM (private message) Daveman or me -- go towards the end of this welcome message (after the 5 available research articles are described) for instuctions on how to send PM. We'll be happy to explain!)***


If you haven't already done so, but would like to like to join the new forum,  send "daveman" a PM here at the Naked Science Forum -- "daveman".  He'll reply to you.


Here are some POIS resources which may be helpful to you:

Our new POIS chatroom (realtime chat). Invite or visit another member(s) there, ANY TIME. We can all get to know each other better:
Just click HERE first, and then look for "CHAT" button towards top of page, 6th button to your right!


Our new POIS Forum - architectural genius: "daveman" - for detailed subject-by-subject discussion!
http://www.POISCenter.com/forums/index.php
Our 4-year-old POIS thread here at Naked Science Forum will also always remain open for newcomers, for general unstructured discussion, and historical research of the 10,000+ postings here since 2007.

The Learning Channel's (TLC)  feature TV presentation on POIS, featuring our member here at this forum, "Animus". It was aired on May 22, 2011. Here is a link to the YouTube file for the POIS  TV documentary, "Desperate Measures":
http://www.youtube.com/watch?v=6sdaR18vw1s

Our POIS Information Website, built by "mat780", is here:
http://sites.google.com/site/POISwebsite/

The POIS Information Website is home to the famous POIS Forum Compendium, written by "Pyropeach", and contains theories already discussed here and treatments that have both worked and failed.

Please see "B_Jim"'s POIS Summary of All Cases, here as well as others on the Web. This includes remedies that we have tested, and results.
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg149009#msg149009

"Girlwind" has created an excellent POIS Video:
http://www.youtube.com/watch?v=UWBxAUC9k1g


Post Orgasmic Illness Syndrome "POIS": Case report

Authors:
Abdalla M Attia*, Magda H Al-Ziny, Hossam A Yasien
*Corresponding author: Andrology Unit, Minoufiya University, Shibin El Kom, Eygpt

For more info, check out emi_b's  SMF POIS thread:
http://poiscenter.com/forums/index.php?topic=191.0;topicseen


Available Upon Request:

1. and 2. POIS Research Studies, 2011

These 2 papers reveal Dr. Waldinger's POIS autoimmune hypothesis and suggest one possible avenue of treatment.

3. First POIS Research Study, 2002

We have a copy of the first formal medical investigation on POIS by Prof. dr. Marcel D. Waldinger,MD,PhD, and Dr. Dave Schweitzer, MD.

   
4. Recent POIS Research Study, 2010

CASE REPORT
Postorgasm Illness Syndrome - A Spectrum of Illnesses
Jane Ashby, MRCP, and David Goldmeier, MRCP
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg316781#msg316781


5. British Medical Journal Case Report, 2010

Case study by Dr. Selwyn Dexter of a patient with a headache-featured POIS symptom treated with progesterone/norethisterone.
http://casereports.bmj.com/content/2010/bcr.10.2009.2359.short?rss=1


How to get any or all of the above 5 studies: send me or "daveman" a Private Message (PM) with your regular email address (use "AT" instead of "@" ) and we'll send you back the PDF(s).

To send a Private Message, click on "Messages" at the top of this page. At the Messages page, click on "New Message". From that point on, it works just like posting a message here, except that it only goes to the person(s) you designate.


New York Times article,

January 20, 2009
Mind
Sex and Depression: In the Brain, if Not the Mind
By RICHARD A. FRIEDMAN, M.D.
http://www.nytimes.com/2009/01/20/health/views/20mind.html?_r=1&scp=1&sq=friedman%20sexual%20January%2020&st=cse

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In addition to serving our own informational interests, the resources listed above can be useful for you to show our credibility to the medical world - which often shows little understanding and is sometimes skeptical of our condition: POIS has scientific underpinnings and POIS is not "just another psychological problem" related to sex - to be treated by the psychiatric/psychotherapeutic community. All of this information can greatly help you to fight the immediate reaction of some doctors: so just tell them, "IT'S NOT 'ALL IN OUR HEADS'! "

It can be very  helpful to you when dealing with medical professionals to point out the POIS' official listing, as recognized by the
National Institutes for Health (NIH), Office of Rare Diseases Research
:
http://rarediseases.info.nih.gov/RareDiseaseList.aspx?StartsWith=P, then scroll down until you reach Postorgasmic illness syndrome. 

POIS also appears in credible medical sources such as the Journal of Sexual Medicine (Dr. Waldinger's study), British Medical Journal and wikipedia:
http://en.wikipedia.org/wiki/Postorgasmic_illness_syndrome

For over 4 years, our POIS forum has attracted over 200 POIS sufferers worldwide who have posted here, research on an additional 200 sufferers elsewhere on the internet, plus nearly 1,500,000 page visits. Not bad for a rare malady!



SEARCH THE FORUM WITH GOOGLE

We have an overwhelming amount of data: more than 4 years' worth of posts (over  10,000 posts!) from 200+ Forum members, and an additional 200 POIS sufferers found elsewhere on the Internet by Member B_Jim.

In the Google search box, type
whatever-it-is-you're-interested-in-finding-out[space]POIS[space]site:http://thenakedscientists.com/

for example, I tried
nocturnal emission POIS site:http://thenakedscientists.com/

and 740 results came up for "nocturnal emission" within the Forum.

be careful with spaces (you can use them before the word "site") and no-spaces (everything after the word "site")

Google even provides you results with the Message# for each result. But Message #'s do change, so be patient and look for the approximate Message#.




« Last Edit: 19/01/2012 21:25:11 by demografx »

*

Offline daveman

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15398 on: 19/01/2012 21:09:09 »
Littledragon,

Niacin does seem to have it's best effects against the cognitive effects.

For me, it also wipes out that POIS yuck feeling the first day or so.

But I still tend to have neck and joint pains, but somehow, they don't seem as bad, nor do they last as long.

But the worst symptoms, mental confusion, brain fog, lack of drive, the yuck feeling, depressive tendencies, OUT THE WINDOW.

Victor.kons has said that even after 2 yrs. he still gets the same relief, so it seems as though it's not a short term solution.
How does Murphey do it??

*

Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15399 on: 19/01/2012 23:02:25 »

I wanted to give a special thanks to Victor.Kons for helping out with the new chat over at SMF.

Go on over and try it out. All kinds of bells and whistles, and a great way to get to know some of our members on a more personal level.



Thanks again Victor, and GREAT WORK!





Adding to daveman:

Thank you, VICTOR!

demo
« Last Edit: 19/01/2012 23:06:18 by demografx »