Post Orgasmic Illness Syndrome (POIS)

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Offline POIS-SUFFERER

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15450 on: 25/01/2012 23:54:55 »
I find the Niacinamide works for me very well and this is comes without much of a flush, sometimes I feel a small one, but then again I take 1000mg... this almost gets rid of the brain fog and flu..... BUT!!!!! I need to find something to help with the DRIVE.... I have no drive, I just want to sit and do nothing, I have no enthusiasm at all.... I am self employed, I have a line up of paying contracts, I am totally out of money, so you would think you could work at these paying contracts..... nope, I can not find any motivation to do almost anything..... its very bad.....

I have been reading this forum and have not noted much about fixing this part of the problem.

PS.

Interesting, niacin, at least for me, also fixed the drive. I've got lots of it. I don't know if that might be a difference between niacinimide and niacin or not. Also look at boosting with vitamin C and iron! See if that helps.

BTW when do you take your niacinamide, one hour before as well? Did you start out with 1000mg or less, and did you try with niacin before, if so what was your dose with that (as a reference)?.

So I will add IRON  + C, any dosage ideas? brands?

and keep with my niacin-amide (no flush) I will see how that works, the niacin-amide on its own gets rid of most of the issues except the lack of drive and no emotions.... which I hope will be fixed with IRON + C

If this does not work I will go for full flush and of course decrease my dose from 1000mg to 100mg or less to start....

I could start a fire with 1000! :-)

PS.

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Offline POIS-SUFFERER

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15451 on: 26/01/2012 00:00:48 »
I was unable to modify my last message, tried twice!

I am also under much stress from work and family so this may also be the reason the motivation and emotions are really broken, I am not depressed I have hope......

PS.

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Offline mellivora

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15452 on: 26/01/2012 02:39:34 »
Lack of emotions and drive have long been two key symptoms of POIS for me and stress seems often to make cognitive POIS symptoms worse. I can definitely identify with your situation POIS-SUFFERER. I'm afraid I don't have concrete suggestions for you other than to try to limit the stress but I know that is easier said than done. Niacin hasn't worked for me so far but I'm glad you have had at least partial success. Good luck. Its good to read you have hope. With the progress we've made over the last year there's more reason for us all to have hope. Sorry I can't offer more but I hope the iron + C helps...
According to NHS site, the recommended daily allowance of iron is 8.7mg/day for men.
http://www.nhs.uk/Conditions/vitamins-minerals/Pages/Iron.aspx
Adults need 40mg vitamin C per day.
http://www.nhs.uk/Conditions/vitamins-minerals/Pages/Vitamin-C.aspx
As you may know, vitamin C isn't stored in the body so one can generally take more of this. A popular brand of multivitamin supplement here in the UK (called Centrum) has 5mg Iron and 100mg vitamin C. Vitamin C supplements with far higher doses (eg. 1000mg) are available.

« Last Edit: 26/01/2012 02:44:28 by mellivora »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15453 on: 26/01/2012 03:10:28 »





I am not depressed I have hope.



POIS-SUFFERER, thank you for the message of hope.

Your message may bring that same message of hope to other POIS sufferers who read this.




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Offline POIS-SUFFERER

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15454 on: 26/01/2012 03:40:14 »
I am not depressed I have hope.
POIS-SUFFERER, thank you for the message of hope.
Your message may bring that same message of hope to other POIS sufferers who read this.

Just like countless others on here, POIS has made a complete shambles of our lives, I have lost at least 10 years that I know of, and I mean lost!

I am still not better, but I am not as bad as I was at one time, and I have gone through depression, prior to POIS, and I know 100% what it means to say "I am hopeless", I am down, I am out, but I still think there are sunny days to come.

PS.

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Offline POIS-SUFFERER

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15455 on: 26/01/2012 03:43:02 »
Lack of emotions and drive have long been two key symptoms of POIS for me and stress seems often to make cognitive POIS symptoms worse. I can definitely identify with your situation POIS-SUFFERER. I'm afraid I don't have concrete suggestions for you other than to try to limit the stress but I know that is easier said than done. Niacin hasn't worked for me so far but I'm glad you have had at least partial success. Good luck. Its good to read you have hope. With the progress we've made over the last year there's more reason for us all to have hope. Sorry I can't offer more but I hope the iron + C helps...
According to NHS site, the recommended daily allowance of iron is 8.7mg/day for men.
http://www.nhs.uk/Conditions/vitamins-minerals/Pages/Iron.aspx
Adults need 40mg vitamin C per day.
http://www.nhs.uk/Conditions/vitamins-minerals/Pages/Vitamin-C.aspx
As you may know, vitamin C isn't stored in the body so one can generally take more of this. A popular brand of multivitamin supplement here in the UK (called Centrum) has 5mg Iron and 100mg vitamin C. Vitamin C supplements with far higher doses (eg. 1000mg) are available.

We have Centrum in Canada also.... UK/Canada a lot of similarities :-)

So all I need is a good multi then, I will check to make sure what I use has at least the daily recommened and go from there....

Would extra IRON be bad?

Also has the NIACIN+IRON+C mix also help with the joint and muscle pain, this too is bothersome, and is part of my POIS.

PS.

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Offline POIS-SUFFERER

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15456 on: 26/01/2012 03:52:56 »
Just another small note.

I also take 1mg ATIVAN (a benzo) every 24-48 hours when things get rough, these pills are magic, they are not a cure but a bandaid. BUT they make me feel like myself again, but I take them only when I feel really out of control and not on a regular basis as they are very addictive. They did for a long time help with the motivation but not so much anymore.

For anyone who is really on the edge of maybe feeling "crazy" over POIS, talk to your DR about these, they are a good way to get over the bump when used properly and again only on a as needed basis when you literally feel yourself falling apart.

They were first used during my first very large depression and hence anxiety attack ridden life around 14 years ago, when my first daughter died, without them I probably would not be here today, they allowed me to continue the fight.

POIS followed this, but I have never really been able to pin down exactly when it started.....

PS.

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Offline daveman

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15457 on: 26/01/2012 11:03:08 »
I was unable to modify my last message, tried twice!

I am also under much stress from work and family so this may also be the reason the motivation and emotions are really broken, I am not depressed I have hope......

PS.

Since the "upgrade" the quick edit (the small icon in the corner) doesn't work, but "modify" above next to quote does, or at least has worked.

We'll make a note to the mods if they're not already on it.

How does Murphey do it??

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Offline daveman

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15458 on: 26/01/2012 11:13:45 »
Lack of emotions and drive have long been two key symptoms of POIS for me and stress seems often to make cognitive POIS symptoms worse. I can definitely identify with your situation POIS-SUFFERER. I'm afraid I don't have concrete suggestions for you other than to try to limit the stress but I know that is easier said than done. Niacin hasn't worked for me so far but I'm glad you have had at least partial success. Good luck. Its good to read you have hope. With the progress we've made over the last year there's more reason for us all to have hope. Sorry I can't offer more but I hope the iron + C helps...
According to NHS site, the recommended daily allowance of iron is 8.7mg/day for men.
http://www.nhs.uk/Conditions/vitamins-minerals/Pages/Iron.aspx
Adults need 40mg vitamin C per day.
http://www.nhs.uk/Conditions/vitamins-minerals/Pages/Vitamin-C.aspx
As you may know, vitamin C isn't stored in the body so one can generally take more of this. A popular brand of multivitamin supplement here in the UK (called Centrum) has 5mg Iron and 100mg vitamin C. Vitamin C supplements with far higher doses (eg. 1000mg) are available.

We have Centrum in Canada also.... UK/Canada a lot of similarities :-)

So all I need is a good multi then, I will check to make sure what I use has at least the daily recommened and go from there....

Would extra IRON be bad?

Also has the NIACIN+IRON+C mix also help with the joint and muscle pain, this too is bothersome, and is part of my POIS.

PS.

First, If I take a multi-vitamin with "the works", it makes me worse, often much worse. So limit the vitamins to just what is working. Look for a C+Iron combo, preferably with more like 500mg C. The 5mg iron sounds good. This will keep the "tests" focused in a specific area.

The "C plus Iron" is directed at better serotonin synthesis, so probably won't help the muscles and joints.

And Mel if the niacin isn't working for you, it would be a fantastic test if you could take the C+Iron as well with niacin to see if that makes a difference. I'd like to start isolating the situation for those where niacin doesn't work.

Maybe my levels of C and iron are normally good, so the effectivity of niacin is good, and in some others, their normal C+Iron are low? A couple of tests and we should know.

I imagine that the c+iron wiuld be taken daily, whereas the niacin just 1 hr before orgasm as always.

How does Murphey do it??

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Offline mellivora

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15459 on: 26/01/2012 12:51:52 »
And Mel if the niacin isn't working for you, it would be a fantastic test if you could take the C+Iron as well with niacin to see if that makes a difference. I'd like to start isolating the situation for those where niacin doesn't work.

Maybe my levels of C and iron are normally good, so the effectivity of niacin is good, and in some others, their normal C+Iron are low? A couple of tests and we should know.

I imagine that the c+iron wiuld be taken daily, whereas the niacin just 1 hr before orgasm as always.


Daveman, you are right that C+iron only instead of multivits would keep the tests more specific. I find your statement that multivits made you worse interesting. Perhaps you are getting too much of something in that case. But are you saying you tried niacin whilst on mulltivits and the niacin didn't work so well or that your symptoms used to be worse when you were on multivits (before you discovered niacin).

I have recently been taking multivits (not the case in my previous niacin tests) - I do this from time to time (probably just once or twice a year) when I know I haven't been eating as much fruit and veg as I normally do. And I plan to test niacin again in next couple of days. This time I plan to test in the morning because I haven't tested a good flush-O combination at this time of day and also it'll be empty stomach. It'll likely be my last test before I move on to levocetirizine dihydrochloride (antihistamine tested by Joe Burger). I suspect taking multivits could affect one's niacin flush threshold as they contain niacin.

We've also seen one or two cases where taking niacin regularly hasn't helped people much but when regular doses were stopped and and niacin was taken before O only, the niacin became more effective. So multivits containing a regular smallish dose of niacin might take the edge off the effectiveness of the pre-O dose in a similar way. Or it could just raise one's tolerance to Niacin meaning more is needed for a flush. (Or it could mean less is needed for a flush because the body is already quite well saturated with Niacin although we have read how one can build a tolerance to Niacin)

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Offline daveman

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15460 on: 26/01/2012 13:38:31 »
The list is ready for SMF surveys. For those who want to start, please PM me either here or on SMF for your user/pass to access the survey.
Thanks
How does Murphey do it??

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Offline daveman

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15461 on: 26/01/2012 13:45:39 »
And Mel if the niacin isn't working for you, it would be a fantastic test if you could take the C+Iron as well with niacin to see if that makes a difference. I'd like to start isolating the situation for those where niacin doesn't work.

Maybe my levels of C and iron are normally good, so the effectivity of niacin is good, and in some others, their normal C+Iron are low? A couple of tests and we should know.

I imagine that the c+iron wiuld be taken daily, whereas the niacin just 1 hr before orgasm as always.


Daveman, you are right that C+iron only instead of multivits would keep the tests more specific. I find your statement that multivits made you worse interesting. Perhaps you are getting too much of something in that case. But are you saying you tried niacin whilst on mulltivits and the niacin didn't work so well or that your symptoms used to be worse when you were on multivits (before you discovered niacin).

I have recently been taking multivits (not the case in my previous niacin tests) - I do this from time to time (probably just once or twice a year) when I know I haven't been eating as much fruit and veg as I normally do. And I plan to test niacin again in next couple of days. This time I plan to test in the morning because I haven't tested a good flush-O combination at this time of day and also it'll be empty stomach. It'll likely be my last test before I move on to levocetirizine dihydrochloride (antihistamine tested by Joe Burger). I suspect taking multivits could affect one's niacin flush threshold as they contain niacin.

We've also seen one or two cases where taking niacin regularly hasn't helped people much but when regular doses were stopped and and niacin was taken before O only, the niacin became more effective. So multivits containing a regular smallish dose of niacin might take the edge off the effectiveness of the pre-O dose in a similar way. Or it could just raise one's tolerance to Niacin meaning more is needed for a flush. (Or it could mean less is needed for a flush because the body is already quite well saturated with Niacin although we have read how one can build a tolerance to Niacin)

My bad reaction with multis was almost a year before even knowing about niacin. If I would take them, my POIS would be several time worse. I didn't seem to have any other effects from the vitamins otherwise.

Most multi-vits have only about 15mg of niacin, not enough I don't think, to effect the tolerance level. I don't know, but cerial probably has that amount!

On you next test with niacin in the morning, 100mg should give you a good flush. My flushes in the morning have been strong, but more tolerable for some reason. If you ca,n try to take the vitamin C+iron for a few days before to get the levels up and without the multis.

Happy "O"ing!
« Last Edit: 26/01/2012 13:47:15 by daveman »
How does Murphey do it??

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Offline martin88

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15462 on: 26/01/2012 13:52:32 »
Re. the fish oil, I'm not convinced that it's just about getting large amounts of EPA and DHA in our diets. Salmon is undoubtedly effective but some expensive fish oils with very high amounts of epa and dha per capsule have less effect for me than cheaper cod liver oil and krill oil, which is expensive but contains less EPA / DHA. There's something else at play here which seems to effect how easily and quickly the omega 3 can be used by our brains. This is not obvious from the cursory chemical analysis details shown on most supplements.
Kurtosis, thank you for bringing your experience with supplements. Did you try a fish oil with approximately 2gr DHA and 400mg EPA (same as in one serving of salmon)? DHA and EPA compete with each other so it's sometimes better to take them separately. It's explained here: http://www.digitalnaturopath.com/treat/T408369.html
In the same page they reported a study saying 1.8g/day of DHA increases insulin sensitivity.
Fenugreek and garlic act on insulin sensitivity as well.
Of course salmon contains a lot of other nutrients acting alone or together, it's not necessarily DHA the effective ingredient.
« Last Edit: 26/01/2012 13:56:22 by martin88 »

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Offline jivetalk

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15463 on: 26/01/2012 14:40:50 »
First, If I take a multi-vitamin with "the works", it makes me worse, often much worse.

Daveman, I found the exact Same thing years ago when I was just randomly taking vitamins for POIS (which I didn't know was POIS at the time). I ended up feeling absolutely terrible.

Re: Haven't posted in awhile so wanted to give a quick update on my Niacin. I am continually taking Niacin before O (300mg) and am finding it still beneficial, usually roughly in the order of 70-80% plus or minus 20% - Meaning sometimes it can be less, and sometimes can be close to 100% effective.

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Offline daveman

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15464 on: 26/01/2012 15:26:48 »
First, If I take a multi-vitamin with "the works", it makes me worse, often much worse.

Daveman, I found the exact Same thing years ago when I was just randomly taking vitamins for POIS (which I didn't know was POIS at the time). I ended up feeling absolutely terrible.

Re: Haven't posted in awhile so wanted to give a quick update on my Niacin. I am continually taking Niacin before O (300mg) and am finding it still beneficial, usually roughly in the order of 70-80% plus or minus 20% - Meaning sometimes it can be less, and sometimes can be close to 100% effective.


Has 300 mg been pretty normal for you. And that gives you a moderate flush?

Each one seems to have their levels, and the flush is sort of the guideline. 300 would have me pretty fried!  :P

How does Murphey do it??

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15465 on: 26/01/2012 15:27:06 »
Boring as it seems, I wanted to share my continuing good luck with forced-nap/sleep-with-2-Benadryl. Yesterday lasted several hours and "cured" my current POIS. (Testosterone is still 80% of my own personal and successful treatment for POIS).
« Last Edit: 26/01/2012 21:19:44 by demografx »

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Offline POISon

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15466 on: 27/01/2012 06:04:08 »
I see a lot of people on here mentioning how niacin has helped them.I had both positive and negative effects with it,but I eventually had to quit do t the negative side effects.I used to take 5 hour energy drinks all the time,and noticed that  niacin was listed as an ingredient. I felt those drinks were very helpful in giving me energy after an O as well helping clear the brain fog. 5 hour energy was great for a while until I noticed after a year of taking it I was getting dots which looked like acne,but only smaller all around my face. It was so bad it was leading to scarring.Figured out the repeated niacin flushes were causing these bumps Guess it has to do with to Rosacea. Anyways(except for permanent scarring) that stopped as soon as I stopped taking them. So warning to people with sensitivity to rosacea when taking niacin. I've read that niacin is more dangerous to the liver than other vitamins so that's also something to be cautious about.

I haven't read yet of anyone taking Acetyl-L-Carnitine,but I have been very pleased after taking it.I was taking it lieu of creatine which was giving me bad side effects for more energetic workouts and was surprised to find  it is helping me tremendously with brain fog and my attention disorders which are made far worse after having an O. My memory is horrible for my age and this supplement is also helping me with that better than any supplement I have taken and I've probably taken hundreds. I'm hoping the effects last since I have only been on this supplement for about 2 months,but so far life and my ability to handle an O have been much easier. I take it with Alpha Lipoic Acid and Biotin which seem to form some sort of synergy in helping Acetyl-L- Carnitine perform its magic better.

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Offline prister

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15467 on: 27/01/2012 09:19:25 »
So, is the cure for POIS found?
What is the best medication for it till now?

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Offline kurtosis

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15468 on: 27/01/2012 10:20:44 »
Re. the fish oil, I'm not convinced that it's just about getting large amounts of EPA and DHA in our diets. Salmon is undoubtedly effective but some expensive fish oils with very high amounts of epa and dha per capsule have less effect for me than cheaper cod liver oil and krill oil, which is expensive but contains less EPA / DHA. There's something else at play here which seems to effect how easily and quickly the omega 3 can be used by our brains. This is not obvious from the cursory chemical analysis details shown on most supplements.
Kurtosis, thank you for bringing your experience with supplements. Did you try a fish oil with approximately 2gr DHA and 400mg EPA (same as in one serving of salmon)? DHA and EPA compete with each other so it's sometimes better to take them separately. It's explained here: http://www.digitalnaturopath.com/treat/T408369.html
In the same page they reported a study saying 1.8g/day of DHA increases insulin sensitivity.
Fenugreek and garlic act on insulin sensitivity as well.
Of course salmon contains a lot of other nutrients acting alone or together, it's not necessarily DHA the effective ingredient.
I've tried high strength fish oils with approximately a 3:1 ratio of DHA to EPA and I took about 35 ml / day giving about 1.6g of Omega 3 / day. They had a benefit but the Krill oil seems to be working better. I'm now down to taking

- 50mg niacin every day with an extra 100 every 2nd day,
- my Quest multi-vit and
- 1.5g of krill oil / day
- On top of that I take about 3g of Vitamin C and my ZMA every second night.

If I have an O I also take some chlorella & spirulina (one powder supplement).

I have minimal POIS symptoms anymore. I actually feel happy as I've been getting incrementally better since I started taking niacin and then figured out vit c would improve its effectiveness.

Prior to that I'd been going downhill for almost a decade, the lost years :(

I've stopped taking the other fish oil and lecithin as the krill oil which has less Omega 3 (about 20% of what I previously took) seems to be more effective and works best by itself. So it's not just volume of EPA & DHA. I can even start to believe that those claiming krill oil has an noticeable effect on Adult ADHD as  it's in phospholipid form and hence better absorbed into cells as required. There has to be some reason why much smaller quantities appear more effective (for me anyway). And then there's astaxanthin of course.

However, a key component for me is vitamin c. When I feel fatigued during the day I dissolve 1/2 gram of effervescent tablet in a small glass of water and it gives me a lift.

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Offline Quasar

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15469 on: 27/01/2012 11:57:13 »
I think i just had an involuntary positive skin p-r-i-c-k test. Yesterday i shaved my lower abdomen area. Then, some hours later (3-4h.) i had an O., and left the semen for 5 minutes, and that area became full of red rashes...And some rashes lasted 24h.

Usually, the skin is more sensitive after shaving it, so i don't know if it's a normal reaction or not. I mean, if you apply irritating products on a recently shaved area, it will also cause rashes...But this time the rashes looked to me too much bumpy to be a normal reaction...

I'd like to know if people with no-Pois also get this kind of rashes with semen, but that's difficult to know...

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Offline jivetalk

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15470 on: 27/01/2012 14:22:07 »
First, If I take a multi-vitamin with "the works", it makes me worse, often much worse.

Daveman, I found the exact Same thing years ago when I was just randomly taking vitamins for POIS (which I didn't know was POIS at the time). I ended up feeling absolutely terrible.

Re: Haven't posted in awhile so wanted to give a quick update on my Niacin. I am continually taking Niacin before O (300mg) and am finding it still beneficial, usually roughly in the order of 70-80% plus or minus 20% - Meaning sometimes it can be less, and sometimes can be close to 100% effective.


Has 300 mg been pretty normal for you. And that gives you a moderate flush?

Each one seems to have their levels, and the flush is sort of the guideline. 300 would have me pretty fried!  :P


Hey Daveman, funny you should mention this. I have been taking 300mg for this whole bottle. Then just yesterday I opened a new bottle, same brand.......300mg had me fired like a lobster. So...I'm guessing the initial batch I got wasn't great.....not sure of the reason......Going to try to cut the dosage down to 100mg or 200mg and see how I go.

I am very wary though....I O'ed without Niacin a few weeks back and........It took me a good 2-3 weeks to recover from that completely.

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Offline Quasar

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15471 on: 27/01/2012 16:23:38 »
Quote
Usually, the skin is more sensitive after shaving it, so i don't know if it's a normal reaction or not.

I wondered if we can simulate a prique-test by using a shaver and removing epidermis on a short area of the skin, and then put semen.

I suppose we could do a homemade p-r-i-c-k test with a shaver, or the tip of a needle...But then, we should compare the reaction with Histamine i think, and also i think the semen concentration should be different.

Anyway, we should contact an allergist...better one that specializes in autoimmune disorders or investigation of new disorders. I'm quite shy, so i won't go to my family allergist and ask for that...and then some different nurse...

But yeah, i think it's an important step to know if we are positive or negative to the skin p-r-i-c-k test. I hope i'm positive.
« Last Edit: 27/01/2012 16:25:12 by Quasar »

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Offline POISon

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15472 on: 27/01/2012 16:43:38 »
Interesting that people mentioned krill oil. Vitacost brand was by far the most effective for me,though ironically lowest amount of Epa and Dha compared to the others. The other brands just made me feel very drowsy while I felt more more mentally alert and focused while on the Vitacost brand as well as being in a far better mood. Interesting fact is that my libido seemed to skyrocket initially while on it and then it just tanked. I had no feeling for women whatsoever which is good in a sense in that I had no desire to "choke the chicken" so to speak.Unfortunately the downside of this is that it will obviously screw up your relationships with women. I don't want to be lonely the rest of my life.

I've gone off Krill oil since I found Acetyl -L- Carnitine an antioxidant,which actually help increase fatty acid metabolism in the brain without destroying libido. In fact I relate far better with women on it(and people in general) and my mild social anxiety is also pretty nonexistant since it has a calming effect while also helping me with verbal skills. The only side effect I've experienced is sometimes it makes me feel a little too confident,like I can conquer the world which happens I think if I take too much.I've never been good with taking required supplement doses,because if I'm feeling really good I want too take more and feel great,which as a result will often cause the reverse of what I was hoping for.This supplement has definitely helped me,hoping it helps someone else so I look forward to seeing a post where someone benefited from it.Its not a cure,but it does lessen the effects of an O,and the day after an O symptoms are markedly reduced.By the third day(sometimes second) after O all my symptoms are gone,whereas before I could feel negative effects for about a week and a half after an O

Cheers,
Matt
« Last Edit: 27/01/2012 17:00:52 by POISon »

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Offline daveman

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15473 on: 27/01/2012 17:14:57 »
I have bought niacin 300mg (inositol hexanicotinate) and astaxanthin 4mg. I hope it will work.

I looked up  inositol hexanicotinate and it is a flush free type of niacin but it is not niacinimide either which we have also shown to work. Search Wiki with  inositol hexanicotinate.

I guess you could try it, but since you personally haven't had success with niacin, it would be best to test first with something we are familiar with.

Or better said, if you don't have success with this, don't give up on niacin until you've done the prescribed tests with "real niacin"
« Last Edit: 27/01/2012 17:32:23 by daveman »
How does Murphey do it??

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Offline mellivora

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15474 on: 27/01/2012 17:39:15 »
I have bought niacin 300mg (inositol hexanicotinate) and astaxanthin 4mg. I hope it will work.
Good luck b_jim! Its good to know someone is trying astaxanthin. Thanks for the update and for testing!

Some interesting posts lately - I feel I must be getting enough vit C but I might try it on this POIS cycle.


I've gone off Krill oil since I found Acetyl -L- Carnitine
Acetyl-L-Carnitine: POIson does this work with all your cognitive symptoms? Does it help fatigue at all?

interesting here that Acetyl-L-Carnitine is said to reduce HPA axis hyperactivity although this isn't the most scientific looking website. We've had a few discussions about HPA-axis in the past I think
http://www.articledestination.com/Article/Why-we-use-Acetyl-Carnitine-/4050


Other websites on A-L-C that I haven't read through fully:
http://www.umm.edu/altmed/articles/carnitine-l-000291.htm

http://www.google.co.uk/url?sa=t&rct=j&q=acetyl%20l%20carnitine&source=web&cd=14&ved=0COUBEBYwDQ&url=http%3A%2F%2Fntp.niehs.nih.gov%2Fntp%2Fhtdocs%2Fchem_background%2Fexsumpdf%2Fcarnliposupp.pdf&ei=dd8iT66eONGXhQeWo6zUBA&usg=AFQjCNHqK0YamI3JepLwKWTLKRIa4yLtHg&cad=rja
« Last Edit: 27/01/2012 17:42:00 by mellivora »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15475 on: 27/01/2012 17:43:56 »

So, is the cure for POIS found?


No.


What is the best medication for it till now?


Nothing universally applicable.

Some have had success with niacin, testosterone, desensitization. Check the other forum for these:
http://www.poiscenter.com/forums/index.php

Our research fund is focused on obtaining better answers. Donate if you can.
http://www.rarediseases.org/about/support/donate/fg_base_view_p3

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Offline daveman

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15476 on: 27/01/2012 20:18:24 »
Yes, it's a flush free form. It's hard for me to believe the niacin flush is the cause of Pois improvement, but all is possible. Anyway I have chose this one because it was more easy for me to buy with astaxanthin. The other advantage is that this form seems safer for liver. This form seems effective against Raynaud's syndrome.(In the severe form, the fingers become fully white or blue, the pictures are impressive) I don't know how this can be linkef to fingertips symptoms or vasodilation theories.
This time I will take it on an empty stomach.
For astaxanthin, I have some hopes.

Personally I don't think the flush has much to do with anything, other than "indicate" that the right quantity has been taken. The modifications chemically in the non-flush type greatly reduce its effectivity, at least for  the original purposes of niacin (reduction of colesterol etc) and they say that this type is harder on the liver than regular niacin. Perhaps because more has to be taken to have a similar effect.

If you want to know if niacin is going to work for you for sure, you should take the flush type and seek the flush one hour before orgasm. If it doesn't work under those conditions, it´s not going to work at all.

On the other hand, if you take the non-flush type and you don't find relief you still don't know if niacin will work or not. That's all I'm saying, don't discount niacin if this type doesn't work.

How does Murphey do it??

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Offline POISon

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15477 on: 27/01/2012 21:23:35 »
Quote
POIson does this work with all your cognitive symptoms? Does it help fatigue at all?

interesting here that Acetyl-L-Carnitine is said to reduce HPA axis hyperactivity although this isn't the most scientific looking website. We've had a few discussions about HPA-axis in the past I think

Yes, Acety-L-Carnitine is definitely helping my cognition and energy. I can remember things much better as well as get things done because I have the energy and focus to do so. I don't think I have taken anything which has made me more motivated to finish things.You may be onto something about the HPA Axis I have read quite a bit about it and at one time even dropped a couple of grand for treatments at a clinic that treated chronic fatigue patients,thinking I had chronic fatigue syndrome. The doctor there said my fatigue had to do with a bacteria attacking my HPA Axis.Never felt worse in my life than going there  as the antibiotic treatments caused all sorts of health issues such as mild seizures that occasionally exist today.

Its highly likely a virus or a stressful experience caused havoc on my HPA axis or immune symptoms making me overreact to having an O which my body somehow takes as a threat . The other strange thing is I can't tolerate hot showers or baths. If I take a very hot shower its like POIS(similar symptoms) 2x or more for at least a week. Originally though i might have MS,but not all the symptoms match,and that's pretty much a dead end anyway as far as treatment goes,so I'm hoping if I just stay away from hot baths, and take supplements such as Acetyl-L Carnitine to help Pois I can at least live a tolerable life, if not an entirely enjoyable one.

Also,thanks for providing those links,very interesting.I've seen quite a few controlled studies on the net where it has been proven over placebo,that Acetyl-L-Carnitine causes significant increases in cognition,energy,and mood.I saw one that states that it appears that it creates neurogenesis which is creation of new brain cells,so if true that is very intriguing also.
« Last Edit: 27/01/2012 21:44:25 by POISon »

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Offline POIS-SUFFERER

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15478 on: 28/01/2012 00:14:40 »
Quote
POIson does this work with all your cognitive symptoms? Does it help fatigue at all?

interesting here that Acetyl-L-Carnitine is said to reduce HPA axis hyperactivity although this isn't the most scientific looking website. We've had a few discussions about HPA-axis in the past I think

Yes, Acety-L-Carnitine is definitely helping my cognition and energy. I can remember things much better as well as get things done because I have the energy and focus to do so. I don't think I have taken anything which has made me more motivated to finish things.You may be onto something about the HPA Axis I have read quite a bit about it and at one time even dropped a couple of grand for treatments at a clinic that treated chronic fatigue patients,thinking I had chronic fatigue syndrome. The doctor there said my fatigue had to do with a bacteria attacking my HPA Axis.Never felt worse in my life than going there  as the antibiotic treatments caused all sorts of health issues such as mild seizures that occasionally exist today.

Its highly likely a virus or a stressful experience caused havoc on my HPA axis or immune symptoms making me overreact to having an O which my body somehow takes as a threat . The other strange thing is I can't tolerate hot showers or baths. If I take a very hot shower its like POIS(similar symptoms) 2x or more for at least a week. Originally though i might have MS,but not all the symptoms match,and that's pretty much a dead end anyway as far as treatment goes,so I'm hoping if I just stay away from hot baths, and take supplements such as Acetyl-L Carnitine to help Pois I can at least live a tolerable life, if not an entirely enjoyable one.

Also,thanks for providing those links,very interesting.I've seen quite a few controlled studies on the net where it has been proven over placebo,that Acetyl-L-Carnitine causes significant increases in cognition,energy,and mood.I saw one that states that it appears that it creates neurogenesis which is creation of new brain cells,so if true that is very intriguing also.


Interesting just read that Acetyl-L-Carnitine is part of your sperm make-up..... hmmm..... if I don't have enough and I lose even more of it.... but you would think that the instant lose and instant POIS symptoms are a bit odd.....

Anyway just another point to make.

PS.

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Offline GoingCrazy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15479 on: 28/01/2012 02:13:33 »
Just wanted to note that I have been feeling a lot better by drinking chamomile tea at night.  I sleep all throughout the night and this has been going on for about 5 days straight.  I don't remember sleeping throughout the night before in POIS.  I feel so much better overall.  I'm not sure if you are supposed to take it every night, but hey, it has been working.  I feel so much more calmer and relaxed, yet still have motivation during the day.  But I love feeling tired at night now.  It also works as an antihistamine.  I know Z_one also has tried this concoction with good results back on pg.250 something.

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Offline badgerstripe

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15480 on: 28/01/2012 09:52:22 »
Quote
Usually, the skin is more sensitive after shaving it, so i don't know if it's a normal reaction or not.

I wondered if we can simulate a prique-test by using a shaver and removing epidermis on a short area of the skin, and then put semen.

I suppose we could do a homemade p-r-i-c-k test with a shaver, or the tip of a needle...But then, we should compare the reaction with Histamine i think, and also i think the semen concentration should be different.

Anyway, we should contact an allergist...better one that specializes in autoimmune disorders or investigation of new disorders. I'm quite shy, so i won't go to my family allergist and ask for that...and then some different nurse...

But yeah, i think it's an important step to know if we are positive or negative to the skin p-r-i-c-k test. I hope i'm positive.

I rubbed my own semen onto my skin on one occasion and within ten minutes there was a very angry red rash, the colour of blood blisters. no pinprick necessary.

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Offline kurtosis

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15481 on: 28/01/2012 11:41:37 »
Quote
POIson does this work with all your cognitive symptoms? Does it help fatigue at all?

interesting here that Acetyl-L-Carnitine is said to reduce HPA axis hyperactivity although this isn't the most scientific looking website. We've had a few discussions about HPA-axis in the past I think

Yes, Acety-L-Carnitine is definitely helping my cognition and energy. I can remember things much better as well as get things done because I have the energy and focus to do so. I don't think I have taken anything which has made me more motivated to finish things.You may be onto something about the HPA Axis I have read quite a bit about it and at one time even dropped a couple of grand for treatments at a clinic that treated chronic fatigue patients,thinking I had chronic fatigue syndrome. The doctor there said my fatigue had to do with a bacteria attacking my HPA Axis.Never felt worse in my life than going there  as the antibiotic treatments caused all sorts of health issues such as mild seizures that occasionally exist today.

Its highly likely a virus or a stressful experience caused havoc on my HPA axis or immune symptoms making me overreact to having an O which my body somehow takes as a threat . The other strange thing is I can't tolerate hot showers or baths. If I take a very hot shower its like POIS(similar symptoms) 2x or more for at least a week. Originally though i might have MS,but not all the symptoms match,and that's pretty much a dead end anyway as far as treatment goes,so I'm hoping if I just stay away from hot baths, and take supplements such as Acetyl-L Carnitine to help Pois I can at least live a tolerable life, if not an entirely enjoyable one.

Also,thanks for providing those links,very interesting.I've seen quite a few controlled studies on the net where it has been proven over placebo,that Acetyl-L-Carnitine causes significant increases in cognition,energy,and mood.I saw one that states that it appears that it creates neurogenesis which is creation of new brain cells,so if true that is very intriguing also.

I think the body produces ALCAR from the amino acid L-carnitine during strenuous exercise. L-Carnitine is in one of my gym supplements in large quantities so I can't dismiss the effects but they should have revealed themselves with greater force before now :) However, I'm still positive that Krill oil is beneficial and works better than fish oils in triglyceride form, at least for me.

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Offline jivetalk

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15482 on: 28/01/2012 12:14:27 »
I find the Niacinamide works for me very well and this is comes without much of a flush, sometimes I feel a small one, but then again I take 1000mg... this almost gets rid of the brain fog and flu..... BUT!!!!! I need to find something to help with the DRIVE.... I have no drive, I just want to sit and do nothing, I have no enthusiasm at all.... I am self employed, I have a line up of paying contracts, I am totally out of money, so you would think you could work at these paying contracts..... nope, I can not find any motivation to do almost anything..... its very bad.....

I have been reading this forum and have not noted much about fixing this part of the problem.

PS.

Interesting, niacin, at least for me, also fixed the drive. I've got lots of it. I don't know if that might be a difference between niacinimide and niacin or not. Also look at boosting with vitamin C and iron! See if that helps.

BTW when do you take your niacinamide, one hour before as well? Did you start out with 1000mg or less, and did you try with niacin before, if so what was your dose with that (as a reference)?.


Hey Guys, Just wanted to add, Niacin for me seems to work mainly for my brainfog. I don't feel anywhere near as cloudy in the head. I remember when I hadn't found out about Niacin, after O  I could lie there and literally wait and feel the 'cloudiness' enter my brain.

Drive on the other hand, and energy for that matter is a completely different story. Niacin certainly helps, because my mind is clearer (though not 100%) and can 'push through' a task if absolutely necessary but it is hard going.  I also still get the lower back pain with Niacin....

POIS-SUFFERER - Please let us know how the Vitamin C and Iron goes for you....I might try that as well...........

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Offline martin88

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15483 on: 28/01/2012 13:53:25 »
I've tried high strength fish oils with approximately a 3:1 ratio of DHA to EPA and I took about 35 ml / day giving about 1.6g of Omega 3 / day. They had a benefit but the Krill oil seems to be working better. I'm now down to taking
Thanks Kurtosis. So you took approx 1.2g/day DHA + 400mg EPA which is not so far from 1.8g, without enough benefit to take it again I guess. I'll now have less placebo effect when I'll try it myself! I'll report, if it's effective. I'm at day 7 of taking a supplement containing (daily dose:300mg DHA + 2mg vit E + 1.5mg asthaxanthin, no EPA). I felt something positive before orgasm but not enough. No effect after orgasm, I still have POIS.

For the krill oil eventually it's not the Omega3 causing the good effect. Be sure to take a brand without hcb pesticides. You mentionned cod liver oil, it contains iodine and D.

I have minimal POIS symptoms anymore. I actually feel happy as I've been getting incrementally better since I started taking niacin and then figured out vit c would improve its effectiveness.
However, a key component for me is vitamin c. When I feel fatigued during the day I dissolve 1/2 gram of effervescent tablet in a small glass of water and it gives me a lift.
Vit C gives me more energy too, but also anxiety so I can't take high doses. Nobody can tell me why, except a few articles of chinese medicine saying vitamin C is putting "cold in the kidneys", not very helpful. When I don't take vitamin C at all for 2-3 days, even from food, everything seems to go slowly, I feel very calm and libido is going up.

About iron, there are multi-vit without iron. Some studies noticed iron is linked with cancer but maybe it's ok taking low doses.
« Last Edit: 28/01/2012 13:59:10 by martin88 »

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Offline Porke

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15484 on: 28/01/2012 16:43:06 »
Its highly likely a virus or a stressful experience caused havoc on my HPA axis or immune symptoms making me overreact to having an O which my body somehow takes as a threat . The other strange thing is I can't tolerate hot showers or baths. If I take a very hot shower its like POIS(similar symptoms) 2x or more for at least a week. Originally though i might have MS,but not all the symptoms match,and that's pretty much a dead end anyway as far as treatment goes,so I'm hoping if I just stay away from hot baths, and take supplements such as Acetyl-L Carnitine to help Pois I can at least live a tolerable life, if not an entirely enjoyable one.

Same issue here! I also cannot tolerate very hot showers. They normally make me feel very foggy / lethargic the entire day.

I suffer from ME / CFS in addition to POIS. I have been battling it for the last 8 years, and my POIS set in during the same period. Are the two related? I believe they are probably the same disease for me. With my CFS, I have often severe episodes of difficult recovery / low energy after a workout or physical exertion. Sometimes it takes me 2-3 days to feel normal again.

Unfortunately, it is the same with sex. The internal biological systems are so interconnected, one affects the other. In the case of CFS, adrenals, HTPA-axis, brain chemicals and digestion are often thrown into disarray, and so POIS and CFS for me is the classic chicken and egg scenario. I believe (in my own case), that if I can ever beat chronic fatigue syndrome, that my POIS will dissapear along with it. I have been battling it for years with little progress, but I keep researching and trying different diets and supplement regimes.

If anyone is in the same boat as me, checkout Dr MyHill's website. She also has a fantastic free e-book on CFS and possible treatment options. There are blood tests that she and her team can do (but this is only really for people living in europe, so im outta luck)

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Offline Habibou

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15485 on: 28/01/2012 17:27:24 »
Thank you Porke ! Yes, I found out her website Dr Sarah MyHill and I got a very interesting PDF file (if you want it also, PM me!).
Many websites talks about " L’acétyl-L-carnitine and l’acide alpha-lipoïque " and the avantages on the cognitive function by reparing mitochondrions, It seemed really amazing both for POIS and CFS (I have the 2 also) !

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Offline kurtosis

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15486 on: 28/01/2012 18:05:13 »
I've tried high strength fish oils with approximately a 3:1 ratio of DHA to EPA and I took about 35 ml / day giving about 1.6g of Omega 3 / day. They had a benefit but the Krill oil seems to be working better. I'm now down to taking
Thanks Kurtosis. So you took approx 1.2g/day DHA + 400mg EPA which is not so far from 1.8g, without enough benefit to take it again I guess. I'll now have less placebo effect when I'll try it myself! I'll report, if it's effective. I'm at day 7 of taking a supplement containing (daily dose:300mg DHA + 2mg vit E + 1.5mg asthaxanthin, no EPA). I felt something positive before orgasm but not enough. No effect after orgasm, I still have POIS.

For the krill oil eventually it's not the Omega3 causing the good effect. Be sure to take a brand without hcb pesticides. You mentionned cod liver oil, it contains iodine and D.

I have minimal POIS symptoms anymore. I actually feel happy as I've been getting incrementally better since I started taking niacin and then figured out vit c would improve its effectiveness.
However, a key component for me is vitamin c. When I feel fatigued during the day I dissolve 1/2 gram of effervescent tablet in a small glass of water and it gives me a lift.
Vit C gives me more energy too, but also anxiety so I can't take high doses. Nobody can tell me why, except a few articles of chinese medicine saying vitamin C is putting "cold in the kidneys", not very helpful. When I don't take vitamin C at all for 2-3 days, even from food, everything seems to go slowly, I feel very calm and libido is going up.

About iron, there are multi-vit without iron. Some studies noticed iron is linked with cancer but maybe it's ok taking low doses.
I never said I didn't notice a good effect from the fish oils I was taking. I sure did. I took that dose for about a month and it was beneficial. However, my observation is that I get an even better boost by taking 1.5 g of Krill oil which is a bit more expensive. This was a very surprising result as, up until then, KO was something I believed was similar to my previous supplement but would cost me more money. I was wrong. This is not just explained by Omega 3 as I was getting larger amounts with the previous fish oils but I doubt that the omega 3 component can be entirely written off. I'm not assuming the same would apply to everybody but I think anyone suffering from POIS should give KO a go, with niacin and Vit-c of course.  God knows, most of us have tried everything else.

Vitamin C doesn't make me anxious at all but, then again, I get a lot of exercise now and that helps dissipate anxious feelings. I've never been exactly "easy going" so I guess it's what you're used to :)

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15487 on: 28/01/2012 19:26:02 »




•Shine the light on our experience!

•Show them what we know!

•We are the biggest union of POIS sufferers IN THE WORLD

•Let’s get what we know about medicine effectiveness

•And symptoms and nutrition into an organized database.
 
Surveys are HERE!

 
www.poiscenter.com/surveys.htm
 
Click on “POIS Profiles by Username”
 
Get your password via PM to Demografx or Daveman.

 
 
« Last Edit: 29/01/2012 04:52:43 by demografx »

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Offline POISon

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15488 on: 28/01/2012 19:39:45 »
@ Porke,
I usually get a horrible sore throat,severe fatigue,chest pains,brainfog, dizziness,heat flashes, extreme calm followed by anxiety, and muscle spasms,especially in the upper arm area after a hot shower. I think in our cases they are related. My theory is that heat and POIs trigger an immune response which triggers an over/under reaction of the HPA axis.People on this site may have different reasons,however for the way they act after having an O,since every bodies system is different. I'll have to take a look at that Myhill site,looks pretty interesting.

@ Habibou and people wishing to try Acetyl-L-Carnitine(Alcar)

I bought Swanson's premium brand 500 milligram Acetyl-l-carnitine and their Alpha Lipoic acid in the 600 mg.I would probably have gone with the 300 though since the 600 seems to strong. I'm not a rep nor do I own stock in Swansons,though I probably should since I buy so much from them,but they are usually the cheapest and also the best quality. Believe it or not,buying the right brand can mean  the difference between not noticing any effect, having side effects,or actually producing the positive effects you're looking for.

Once you start feeling a difference with the Alpa Lipoc and Acety-l-Carnitine combo you may find yourself wanting to drastically lower the dose of the Alpha  Lipoic acid or drop it completely and stick with just the Alcar. Thats what I'm doing right now and its working better for me since the Alpha Lipoic acid over time was adding agitation.I think once the body has accumulated enough Alcar in the bloodstream increasing its effect too much by continuing with the Alpha Lipoic acid will start to cause side effects such as moderate agitation.Again, that's my experience and everyone's body is different.

« Last Edit: 28/01/2012 19:48:49 by POISon »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15489 on: 28/01/2012 19:49:07 »

The other strange thing is I can't tolerate hot showers or baths.


Same issue here! I also cannot tolerate very hot showers. They normally make me feel very foggy / lethargic the entire day.


Same here!!

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Offline POISon

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15490 on: 28/01/2012 20:29:47 »
Quote from: Porke
Same issue here! I also cannot tolerate very hot showers. They normally make me feel very foggy / lethargic the entire day.

Quote from: demografx

Same here!!


We may be on to something.I thought about mentioning my intolerance for hot showers when I first went on this site over a year ago,but I thought it may be just me on here that had this problem and it may not be related to POIS for most people here since I couldn't find anyone else mentioning the same problem. Glad to know I'm not alone! Whats odd is that being out on a very hot day for hours doesn't seem to be much a problem for me,but taking a 10 minute hot shower can make me miserable for days after. I'd be curious to know how many people on this forum have Pois and sensitivity to Hot showers/bath.If the majority do, this information might be of great value once we get the funds for Nord to do research.

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Offline daveman

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15491 on: 28/01/2012 20:53:03 »
POISon,

That's exactly what the surveys are going to be all about!
How does Murphey do it??

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Offline POIS-SUFFERER

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15492 on: 28/01/2012 21:58:46 »
Quote from: Porke
Same issue here! I also cannot tolerate very hot showers. They normally make me feel very foggy / lethargic the entire day.
Quote from: demografx
Same here!!
We may be on to something.I thought about mentioning my intolerance for hot showers when I first went on this site over a year ago,but I thought it may be just me on here that had this problem and it may not be related to POIS for most people here since I couldn't find anyone else mentioning the same problem. Glad to know I'm not alone! Whats odd is that being out on a very hot day for hours doesn't seem to be much a problem for me,but taking a 10 minute hot shower can make me miserable for days after. I'd be curious to know how many people on this forum have Pois and sensitivity to Hot showers/bath.If the majority do, this information might be of great value once we get the funds for Nord to do research.

Yes I have the same reaction to hot showers, and also hot humid summer days..... like someone zapped me with a de-energy gun!

PS.

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15493 on: 28/01/2012 22:47:22 »
Wow! Are we on to something??

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Offline badgerstripe

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15494 on: 28/01/2012 23:12:24 »
Quote from: Porke
Same issue here! I also cannot tolerate very hot showers. They normally make me feel very foggy / lethargic the entire day.
Quote from: demografx
Same here!!
We may be on to something.I thought about mentioning my intolerance for hot showers when I first went on this site over a year ago,but I thought it may be just me on here that had this problem and it may not be related to POIS for most people here since I couldn't find anyone else mentioning the same problem. Glad to know I'm not alone! Whats odd is that being out on a very hot day for hours doesn't seem to be much a problem for me,but taking a 10 minute hot shower can make me miserable for days after. I'd be curious to know how many people on this forum have Pois and sensitivity to Hot showers/bath.If the majority do, this information might be of great value once we get the funds for Nord to do research.

Yes I have the same reaction to hot showers, and also hot humid summer days..... like someone zapped me with a de-energy gun!

PS.

I don't seem to have that reaction. I enjoy the hot shower or bath, it loosens my stiff muscles and wakes me up on POIS or non-POIS days. A cooler shower or swimming pool seems to help my POIS however, gemerally making me feel more alert and clearing my head a little form the fog.

There is a condition called polythycemia rubra vera which is overproduction of red blood cells which makes peoples skin very sensitive to warm baths and they go very red, it can also make peole quite sluggish generally. It is in my family but i dont know if i have it, it tends to manifest in mostly men in their 50s and 60s. I will ask Dr Goldmeier about it when i see him. I wonder if it may be a factor in POIS?

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15495 on: 28/01/2012 23:17:22 »
POISon,

That's exactly what the surveys are going to be all about!


Daveman, thank you so much for the stupendous effort you've put into launching our survey efforts. POIS research is really growing up!


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Offline kurtosis

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15496 on: 28/01/2012 23:28:38 »
Quote from: Porke
Same issue here! I also cannot tolerate very hot showers. They normally make me feel very foggy / lethargic the entire day.
Quote from: demografx
Same here!!
We may be on to something.I thought about mentioning my intolerance for hot showers when I first went on this site over a year ago,but I thought it may be just me on here that had this problem and it may not be related to POIS for most people here since I couldn't find anyone else mentioning the same problem. Glad to know I'm not alone! Whats odd is that being out on a very hot day for hours doesn't seem to be much a problem for me,but taking a 10 minute hot shower can make me miserable for days after. I'd be curious to know how many people on this forum have Pois and sensitivity to Hot showers/bath.If the majority do, this information might be of great value once we get the funds for Nord to do research.

Yes I have the same reaction to hot showers, and also hot humid summer days..... like someone zapped me with a de-energy gun!

PS.

I don't seem to have that reaction. I enjoy the hot shower or bath, it loosens my stiff muscles and wakes me up on POIS or non-POIS days. A cooler shower or swimming pool seems to help my POIS however, gemerally making me feel more alert and clearing my head a little form the fog.

There is a condition called polythycemia rubra vera which is overproduction of red blood cells which makes peoples skin very sensitive to warm baths and they go very red, it can also make peole quite sluggish generally. It is in my family but i dont know if i have it, it tends to manifest in mostly men in their 50s and 60s. I will ask Dr Goldmeier about it when i see him. I wonder if it may be a factor in POIS?
That's fascinating but I don't have the problem with hot showers or baths either. Guess this another one for the survey & statistical analysis. I generally have cold hands and feet (except with a bit of niacin on board) so I really enjoy a hot shower or bath to warm me up.

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Offline John21

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15497 on: 29/01/2012 14:46:21 »
Hot showers/baths do not bother me at all, I love them!

I want to report that I am still taking diuretics and continue to feel great on them. Specifically I am taking dandelion tincture, about 11-12 drops daily (consumed in baked cookies). I still am at a loss to explain what is happening, but there has been a dramatic difference in my mental sharpness since I started back in December. The difference has been noted by co-workers. I have had one NE in this period and for one day I thought I mignt was was on the borderline of having symptoms, so this development may not be applicable to POIS, time will tell. I have also been trying niacin (flush type) to help with my insomnia. It does definitely help to put me back to sleep when I wake at night. It's great that many of you are being helped by this vitamin. I see that it is a precurser to sex hormones, makes me wonder....

http://www.nutros.net/nsr-0201c.html

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Offline Vincent M

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15498 on: 29/01/2012 17:08:37 »
I enjoy hot showers and have noticed no affect on my POIS from them. If you only use shampoo when you take hot showers then perhaps it could be the shampoo.
Taking fenugreek+tea/garlic, saw palmetto, huperzine, niacin, boswellia, and nutmeg.

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Offline mellivora

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #15499 on: 29/01/2012 18:26:41 »
Hot showers - this has popped up on the forum before. Personally I haven't noticed any connection between POIS symptoms and hot showers, baths or air temperature.

A hot shower/bath will probably cause vasodilation and cause a decrease in blood pressure. I have also read that experiencing an increase in temperature via a hot bath simulates the body's inflammation response and can prime the immune system for action - not sure how true that is but it kind of makes sense. Certainly its recently been shown that fever (high body temperature) can temporarily enhance the effectiveness of aspects of the immune system but I don't know whether this would apply to an auto-immune/allergic response as POIS might be...
http://www.huffingtonpost.com/2011/11/03/fever-immune-system-cells_n_1074445.html

If hot showers are bringing on pois symptoms in people at times when they are otherwise POIS-free. I would be inclined to look at vasodilatory effects as I can't see that there would be any semen to react to in these cases...

How long do these POIS symptoms last after a hot shower/bath?