Post Orgasmic Illness Syndrome (POIS)

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Offline GoingCrazy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16000 on: 12/04/2012 05:41:17 »
I still find it very strange how POIS can be a relatively new condition without the symptoms listed anywhere in any kind of old book or medical literature.  I don't think this is a disease because all of us are from different parts of the world, a disease or virus would be more localized.  It's also tough to explain for it to be an immune system reaction or genetics.  Where did the last few thousand years of humanity go?  How can there be no evidence of this syndrome in the past?  Did our genes just all decide during the same exact era to carry through with a reaction against semen?  Or our we the first ever humans on this planet to decide to talk about this problem?


P.S.  Good job observer (and others) on the tv show documentary

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Offline GoingCrazy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16001 on: 12/04/2012 05:43:37 »
To answer my own question, I guess other POIS'ers in the past were probably dismissed by their doctors as having some sort of psychological problem.  Without having the internet as we do today, it would be really tough finding others who share the same problem, thus maybe no entries in medical literature? 

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Offline acronym

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16002 on: 12/04/2012 11:29:03 »
To answer your question YES! I have experienced POIS without orgasm!
In addition to POIS, I have lost all semen before I lost ability to ejaculate any more. My wife an I avoid all sexual contact usually...  Twice in the last year we got amorous and I got really turned on.  On both occasions, I came down with brain fog, headache, body aches, pelvic pain, reduced urology flow and function for several days afterwards.
Since I have no semen, not even leakage, it can't be an allergy to semen.  I do leak Cowper's gland lubricant with long and intense excitation.  Never have been able to prove that retrograde ejaculation is occurring.

I take Lyrica, Cymbalta, Cardura, Finasteride, B-12 injections, allergy shots, low PSA, sjogren's syndrom

Hi micro41, wow sex just twice a year, you certainly have an understanding wife. I got given grief with my last girlfriend with limiting it to once a week. Anyway, that's not what prompted me to make a post. I see you take Finasteride. For some individuals this can really screw up their sex & personal lives. Did your loss of libido and loss of ejeculation & brain fog occur soon after you took Finasteride? If so do some research on the www, as there are some forums full of men in despair (like here) after having taken the drug. A few fully recover, but most only partially restore their health. There is some overlap with pois and long term finasteride side effects. The theory with Finasteride is that in some individuals it alters neurosteroids.


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Offline observercenter

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16003 on: 12/04/2012 13:02:47 »
Hello All!

I was able to download the show by Dr. Demasi -- go to:
http://www.abc.net.au/catalyst// [nofollow] -- then click on -- "The Trouble with Sex" 12/04/2012 -WMV or MP4

Observer -- and to the Australian man who appeared unidentified and in the shadows -- you were both Terrific!!!!!

And Observer -- not to embarrass you -- but you are VERY HANDSOME!!! :-) :-)

Kudos to both of you -- you've done a great service to the POIS cause!

I'll see if I can get this on to the NORD website.  If so, I'll advise you all,

Wow, i have just watched the show! I am glad of the result. Thank you for your compliment ^^ nordnurse.

Thank you too b_jim and GoingCrazy for your support !
« Last Edit: 12/04/2012 13:04:57 by observercenter »

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Offline l1_prior

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16004 on: 12/04/2012 17:00:14 »
Hi all

This is my first post. I found the thread a long time ago, and have checked back a few times a year for the latest developments. But I ought to be more proactive about solving this problem, so it's about time I joined.

I share many of the symptoms and life experiences of others on the forum. So I won't go into my own experiences, since that stuff has been said many times before - except to say that it's held me back in life for what ought to have been my best years. The new developments on this forum are encouraging - the reddit post and the new TV show are getting the word out, and best of all the research fund promises some real insight into this thing. I'll be donating to the latter shortly.

I don't know if this has already been discussed - 666 pages is a lot of stuff to go through - but it's the only thing I may offer that may be novel here. For me, the worst part of POIS is the brain fog. It means I can't get work done, and I can't function properly in social situations. I have found modafinil to be very effective at allowing me to get work done. For those not familiar with modafinil, it is prescribed for the treatment of narcolepsy, but is also considered a nootropic and is often used off-prescription as a study aid. Even when not in a POIS state, I find it gives me increased clarity and focus. But the effects are most pronounced when I have POIS: I would normally get nothing done at all, but modafinil cuts through the brain fog enough to allow me to work. It is not a full cure - I'm still aware of POIS symptoms - but it's usually enough to allow me to function in the world.

A few notes before anyone runs out to try this. Modafinil is a prescription drug; I buy it over the internet. Please be extremely careful and do your own research before deciding to try it. And if you do decide to try it, beware of the many scammers around, read reviews, and find a trusted source. Also, I've read other people's experiences of this drug, and some feel no effect, so YMMV.

I shall continue to incorporate modafinil into my coping strategy. But I shall also be looking into the promising methods mentioned by others, such as niacin and histamines. I'll also take a look at the research papers mentioned above: I'll send a PM to request them, if I may.


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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16005 on: 12/04/2012 17:19:31 »
Great, great video. Thanks a lot !



And clear english, easy to understand .

Friday, pr1ck-test/intradermis injection,niacin, and even our web sites... very nice to see and to show all that.

Very nice graphic, B_Jim! Can I steal it? : - )

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16006 on: 12/04/2012 20:42:18 »

Stefanie, you're right, you can download our new [Australian TV POIS Documentary]!  Go to this link
http://www.abc.net.au/catalyst/vodcast/default.htm

Download "The Trouble with Sex"
POIS show is about 1/2way into vid

« Last Edit: 12/04/2012 23:01:09 by demografx »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16007 on: 12/04/2012 20:46:34 »
Very nice graphic, B_Jim! Can I steal it? : - )

Yes. But have a look page 647 :)

Hahaha!!! I forgot I posted it!!! Lol!

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Offline observercenter

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16008 on: 12/04/2012 21:44:56 »
.
« Last Edit: 18/05/2012 10:58:16 by observercenter »

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Offline Stef

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16009 on: 12/04/2012 22:50:27 »
Is Dr. Goldmeier a psychiatrist??? He's referred to as a psychiatrist on the show.

(I was under the impression that he was either an allergist or a urologist.)

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16010 on: 12/04/2012 22:54:44 »

Stefanie, you're right, you can download our new [Australian TV POIS Documentary]!  Go to this link
http://www.abc.net.au/catalyst/vodcast/default.htm

Download "The Trouble with Sex"
POIS show is about 1/2way into vid



Extended version of the ABC Documentary at this link: http://www.abc.net.au/catalyst/orgasm/

Interviews with Dr.Waldinger, David Goldmeier and Agnes Kocsis.



« Last Edit: 12/04/2012 22:57:10 by demografx »

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Offline CertainlyPOIS

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16011 on: 13/04/2012 03:02:49 »
Extended version of the ABC Documentary at this link: http://www.abc.net.au/catalyst/orgasm/

Interviews with Dr.Waldinger, David Goldmeier and Agnes Kocsis.

nice for different perspective on anxiety nothing against dr goldmeier and kocsis they were sounding like it is all in your head theory

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Offline Stef

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16012 on: 13/04/2012 03:36:51 »
Extended version of the ABC Documentary at this link: http://www.abc.net.au/catalyst/orgasm/ [nofollow]

Interviews with Dr.Waldinger, David Goldmeier and Agnes Kocsis.

nice for different perspective on anxiety nothing against dr goldmeier and kocsis they were sounding like it is all in your head theory

I agree with you, Cc.

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16013 on: 13/04/2012 04:54:18 »
CC, nordnurse, that concerns me: I feel like running away fast whenever I hear anything remotely close to "POIS? Oh, sure: It's all in your head!".

That stupid and damaging POIS "appraisal" by too many medical professionals and laypersons alike needs to be destroyed.

By us.
« Last Edit: 13/04/2012 06:28:27 by demografx »

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Offline matsoda

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16014 on: 13/04/2012 06:17:40 »
I saw the documentary on ABC, absolutely awesome work! Kudos guys, I feel truely greatful for all the progress that has been made so far. I can't thank you guys enough.

I haven't visited the site for quite a while. Just wanted to say that my POIS symptoms continue to improve. They are now about 20-25% of the intensity they used to be 5-10 years ago. I still get many of the symptoms but they are now manageable and more transient. I've found a few things that definately help eleviate/mask the symptoms (like garlic, olive leaf extract, etc). I plan to trial Niacin and Fenugeek this week (many thanks to those who shared their success with those treatments).

Please note, I have had a great deal of success with my POIS over the years by treating the symptoms as related to 'toxic load'. I always felt like my body had been literally posioned after 'O'. So I proceeded down the path to combat oxidation and toxicity. Strong antioxidants (Grape Seed extract 200mg/day, Acai Berry Powder) and Superfoods (Wheat Grass Powder, Noni Juice, Spirulina, Chorela) have improved my base line health dramatically, and improved my ability to absorb most of my symptoms. I also recently tried a different kind of antioxidant that works at the cellular level called 'Protandim' and that did also make a noticeable difference.

I was originally diagnosed with CFS at the onset of my POIS symptoms, so those that are suffering the flu-like effects (i.e. toxic load) of POIS will likley be able to benefit greatly by using antioxidants and superfoods. I certainly worked for me but don't expect a fast fix, it was a ongoing improvement over many years.

Kudos!  :)

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16015 on: 13/04/2012 06:48:42 »
matsoda, many thanks for sharing your successful history!

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16016 on: 13/04/2012 06:50:48 »

I always felt like my body had been literally poisoned after 'O'.


Me, too.

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16017 on: 13/04/2012 07:13:43 »

Hi everyone,

10 days back, I decided to not to have orgasm for next one or one and half month and I wanted to see how I will be free in Non-POIS period.

In this forum, I read that Niacin will reduce the POIS symptoms.  In our area, Niacin tablets is not available.  Hence I decided to use B.Complex (which contain Niacin) tablets instead of Niacin.  11 days back i decided to have orgasm and I have taken B.complex tablets 4 hours before the orgasm.  After 4 hours of orgasm, I took another B.complex tablet.  Further I also used Garlic.    In the first day of orgasm, I noticed reduction in POIS symptoms and I recovered from POIS symptoms in just 3 and half days completely.  From fourth day onwards I am completely relived from POIS symptoms and I started enjoying the days (after long time in my life) and i got peace in my mind.  From the fourth day I started meeting with my old friends and spend a time with them.  During these days, I was very happy, my concentration level is very high with good memory power and I was enjoying the days. 
 Yesterday, it was my 10th day after "O" and I gone to movie with my friends in a very good mood and enjoyment.  In the beginning of the movie, my mind has calmness, good concentration level and happiness exist. 

In the middle of  movie there was a Romantic scene and Sexual scene for 5 minutes.   While watching the scene I was normal and I did't observed any thing at that time.  But after coming out from the theater I was experienced the first day of POIS symptoms.  I did't able to drive cleraly while going to home and my mind started to exhaust and my concentration level and memory power hit a worst and in the night (during sleep) i got many dreams (I usually got more dreams in POIS period, i don't know the reason why it is like this, I can say it is excessive dreaming that will happen in POIS period).   Today the symptoms reached worst.  The symptoms were same as second day after "O" and now it is confirmed for me that I experiencing POIS symptoms without had "O" and these symptoms triggered by just watching a 4 minutes romance and Sexual scene in a movie.   

Hi, does anyone has experienced this? and how POIS triggered by just watching a sexual scene in a movie.



I have experienced this on a couple of occasions and dont view really explicit adult content on purpose anymore.  If you believe in Dr. Waldingers theory this could be easily explained by pre-ejaculatory fluid priming the ducting in your urethra and other reproductive lumens.  It is not necessary to see pre-ejaculatory fluid leaking from the penis for it to be present internally all throughout the ejaculatory ducting. 


What happens actually in ejaculatory ducting? What is it?

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Offline B_Daniel

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16018 on: 13/04/2012 07:14:47 »
l1_prior -  I've always wanted to try Modafinil.    But part of me wonders if it doesn't just have the same effect as ritalin or adderall.  Those help clear my brain fog/ anxiety in a way that sounds akin to how Modafinil helps you.
2-5 days, 80% cognitive, tongue-tied, brain fog, lose track of thoughts mid conversation, anxiety, dry eyes, irritable, fatigue.  Believer of both auto-immune AND regeneration theories.  My sessions are much shorter when I've gone 2 wks without.

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16019 on: 13/04/2012 07:17:40 »
I'm looking for ways to reduce my caffeine and ritalin intake.

They help my POIS, but they both increase my nausea!

Seeing my gastroenterologist in the morning to see what I can do.

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Offline l1_prior

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16020 on: 13/04/2012 10:43:36 »
l1_prior -  I've always wanted to try Modafinil.    But part of me wonders if it doesn't just have the same effect as ritalin or adderall.  Those help clear my brain fog/ anxiety in a way that sounds akin to how Modafinil helps you.

I haven't tried ritalin or adderall, or done too much research into them. All are used as nootropics, and all seem to work by modifying dopamine levels. However, modafinil seems the most benign of the three in that the potential for abuse is low and there is no crash after use.

I'm looking for ways to reduce my caffeine and ritalin intake.

They help my POIS, but they both increase my nausea!

I've read that sulbutiamine has a similar effect to caffeine without the side effects. I have not yet tried it, but intend to do so.

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Offline edhawk10

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16021 on: 13/04/2012 20:37:19 »
Hey guys, i'd just like to thank all of you for keeping this place going and adding so much helpful info.

I've struggled with this for the past 2 years and just recently found out about POIS. Few weeks back i was at my doc and told him about my increased anxiety and he gave me meds but it makes my symptoms worse (brain fog, dizzy, memory problems, feeling extremely cold(sometimes too hot).


I can't go more than a week without having an orgasm which i guess explains why i only feel good for 1-2 day during any week(symptoms last 3-5 days usually)

I wanted to ask how well do you guys sleep and what do you take to get good sleep?..I've noticed that during times when i can't sleep well, my brain fog is that much worse(almost unbearable to do anything).











« Last Edit: 13/04/2012 20:52:07 by edhawk10 »

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Offline Guthrie

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16022 on: 14/04/2012 00:54:01 »
After watching the extended interviews with Dr. Goldmeier and Agnes Kocsis -- in my opinion, they gave VERY 'psychologized' assessments of what POIS is.  The picture that comes across from those interviews is: these are 'highly anxious' people who then have 'psychosomatic' symptoms and 'attribute' it to ejaculation.  The interviewer asks "So this is not something that would show up in a medical test?" and Dr. Goldmeier say that that's correct, it wouldn't show up in a medical test -- with the implication that this is because it is psychological.

I don't want to make an assessment of whether this is what they intended to convey, but that's sure what comes across pretty darn clearly!

CC, nordnurse, that concerns me: I feel like running away fast whenever I hear anything remotely close to "POIS? Oh, sure: It's all in your head!".

That stupid and damaging POIS "appraisal" by too many medical professionals and laypersons alike needs to be destroyed.

By us.

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16023 on: 14/04/2012 03:15:47 »





After watching the extended interviews with Dr. Goldmeier and Agnes Kocsis -- in my opinion, they gave VERY 'psychologized' assessments of what POIS is.  The picture that comes across from those interviews is: these are 'highly anxious' people who then have 'psychosomatic' symptoms and 'attribute' it to ejaculation.  The interviewer asks "So this is not something that would show up in a medical test?" and Dr. Goldmeier say that that's correct, it wouldn't show up in a medical test -- with the implication that this is because it is psychological.

I don't want to make an assessment of whether this is what they intended to convey, but that's sure what comes across pretty darn clearly!



CC, nordnurse, that concerns me: I feel like running away fast whenever I hear anything remotely close to "POIS? Oh, sure: It's all in your head!". That stupid and damaging POIS "appraisal" by too many medical professionals and laypersons alike needs to be destroyed. By us.


Guthrie, many thanks for pointing out some serious concerns about "psychologizing POIS"!
« Last Edit: 14/04/2012 04:22:50 by demografx »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16024 on: 14/04/2012 04:53:20 »




I've read that sulbutiamine has a similar effect to caffeine without the side effects. I have not yet tried it, but intend to do so.


Fascinating!

Thank you for that.

(It just might solve my decades-long dilemma with coffee!).


Click here for wikipedia's take on sulbutiamine.





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Offline POISon

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16025 on: 14/04/2012 05:50:20 »
I wouldn't put too much credence on what Dr. Goldmeir and Dr. Kocsis say about Pois being a mental condition. Sure they may be well educated and have many years experience treating patients but how long have they actually treated Pois patients?,The term POIS is a pretty new one,and the understanding of it is still pretty scarce with the obvious lack of studies and research done on this condition.These doctors are making their own hypothesis,and dare I say lack the courage to say  anything other than POIS is a psychological condition without more studies and research being conducted supporting its validity.I can understand that they don't want to look like a laughingstock amongst their peers without  a host of studies showing that Pois is a rare,though real condition,that has serious consequences on  individuals affected by it.

I know its real,because I have it and listing it as a result of anxiety does not make sense.For one,if that were true, a good portion of the world population would be suffering from this malady as anxiety is extremely common while this disease is quite rare. Why wouldn't I have this condition when I was 15 and first started having O's by the  hundreds per year without any consequence whatsoever until I was almost 21?

 I had significant bouts of anxiety and depression in high school because I was picked on and bullied,but never once during that time felt the wrath of POIS .I have heard before about illnesses(some very serious) where anxiety is a symptom, and patients have gone to 5 or more different doctors who told them to go on prozac or xanax until they finally had a doctor who gave them a test which validated their real condition which was causing the anxiety. That's why we need to stick to our goal of funding research,I missed the deadline since I haven't been on this site for a while,and I am very cash strapped ,but I will donate at least something to Nord as studies are the only possible way for most of us to reaching a solution to permanently ending this malady. Hopfully in the near future there will be a test or some kind of measure to prove to a doctor what have is not all in our head.

My personal belief is that Pois is a result of some event such as an illness,a major stressor or something of that nature causing the bodies endocrine or immune system to go haywire causing this condition to occur.I don't know why symptoms only happen after orgasm,however, I believe orgasm for some reason triggers the body to overreact into creating a temporary hormonal or immunological imbalance that was first set in motion by an illness,stressor,etc. That's my personal opinion though, and it will always stay as just an opinion until studies say otherwise. Interesting, in my case, is that  I started suffering from Pois  after I put my body through a lot of stress.Work and school were going great,but I was doing those full time,and decided I wanted to be buff like Arnold.INext thing you know after over-training by spending 2 to 3 hours in the gym a day 5 days a week like what was recommended in Arnold's bodybuilding book, I started developing symptoms of Pois after having an O about six months later. I was starting to feel the exhaustion  and fatigue from the overtraining before I developed Pois,but once I had Pois, the exhaustion became crippling,and I started to develop major brainfog, flu like symptoms after having an O. 

That's my story on how I developed POIS, and I wasn't feeling anxious,nervous or depressed before Pois set in.I started to feel very physically tired tired at times before Pois set in,but my self esteem couldn't be higher, as I was getting compliments left and right about how good I was looking after working out from fellow employees as well as customers at the job I was working at the time .To say there was any reason for anxiety at this time is preposterous as my well being and state of mind was very stable before this condition set in

The moral of my ramblings:I don't think we should  give up hope for this condition by paying too much attention to what certain doctors think about our illness.I just got paid today and I'm going to contribute to Nord,its going to have to be a fairly meagre payment unfortunately,but I'm not giving up on finding a way to end this hideous disease. I love this site,and until we have doctors who know how to reliably treat this condition we must be proactive and take steps into out hands.I enjoy reading about people on here who found supplements that helped reduce their symptoms , because it also gives the real possibility it will help others gain relief from POIS symptoms including myself!



« Last Edit: 14/04/2012 07:29:08 by POISon »

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Offline POISon

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16026 on: 14/04/2012 07:09:39 »
.Stress increases the symptoms of allergies. So, stress increases Pois.

.Stress increases the cortisol levels and so has a negative effect on   testosterone and other hormones levels.
 Not more.

I found Victor very cool in the video with an excellent self-control.



True, stress does increase inflammation(allergies)and cortisol.It also makes Pois worse,but as I said in my opinion (or hypothesis) a stressor which could be from an illness, is the (possibly) initial trigger for the body to create a negative response after having an O. Something had to set things in motion in my case for me to experience POIS or I would have had Pois at the the age of 15 when I first had an O.That something, in my own personal experience,however had nothing to do with anxiety or in your head syndrome,  as these doctors in the extended interviews suggest. Neither You,I,or anyone on this forum can reasonably suggest anything as a universal affirmative for what causes POIS unless we have multiple,properly done studies that agree on a specific cause.Still,some people may have other reasons for why their bodies respond to an O than other,so there may be a variety of causes.

Also,yes great job Victor,I saw the video,you did a great job and you have a lot more courage than I to show yourself on camera and talk about a very embarrassing condition.You have my greatest respect!
« Last Edit: 14/04/2012 07:26:08 by POISon »

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Offline observercenter

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16027 on: 14/04/2012 15:24:18 »
After watching the extended interviews with Dr. Goldmeier and Agnes Kocsis -- in my opinion, they gave VERY 'psychologized' assessments of what POIS is.  The picture that comes across from those interviews is: these are 'highly anxious' people who then have 'psychosomatic' symptoms and 'attribute' it to ejaculation.  The interviewer asks "So this is not something that would show up in a medical test?" and Dr. Goldmeier say that that's correct, it wouldn't show up in a medical test -- with the implication that this is because it is psychological.

I don't want to make an assessment of whether this is what they intended to convey, but that's sure what comes across pretty darn clearly!

CC, nordnurse, that concerns me: I feel like running away fast whenever I hear anything remotely close to "POIS? Oh, sure: It's all in your head!".

That stupid and damaging POIS "appraisal" by too many medical professionals and laypersons alike needs to be destroyed.

By us.

I understand now why Maryanne asked me in the interview(she interviewed Dr.Goldmeier before me)what i would say to the people who thought that POIS could have a psychological factor.
I remember to tell her that then doctors should begin to prescribe a raw garlic clove to combat social anxiety, that i have never had any psychological problem except for those caused by POIS and that i have been a very happy boy until i got struck by POIS symptoms.

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Offline observercenter

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16028 on: 14/04/2012 15:34:06 »
Also,yes great job Victor,I saw the video,you did a great job and you have a lot more courage than I to show yourself on camera and talk about a very embarrassing condition.You have my greatest respect!

Sometimes, our greatest weakness turns out to be our strongest fortitude.

This would have been impossible for me to do - even to think about it- one  year ago. Thank you all for your support, for me the best part is when Dr Maryanne Demasi says:

"And I suppose that shedding light on these illnesses can only help, and it seems it already has. Michael, our POIS sufferer, decided to try niacin after hearing about Victor's success, and he says it's changed his life."

http://www.abc.net.au/catalyst/stories/3474801.htm [nofollow]
« Last Edit: 14/04/2012 15:49:20 by observercenter »

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Offline littledragon

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16029 on: 14/04/2012 16:03:38 »

True, stress does increase inflammation(allergies)and cortisol.It also makes Pois worse,but as I said in my opinion (or hypothesis) a stressor which could be from an illness, is the (possibly) initial trigger for the body to create a negative response after having an O.

Your point sounds very familiar to my experience.
I got my P.O.I.S. after having Pfeiffer's disease without knowing it for 3 years because of a wrong diagnosis by my doctor. She thought I was having a slight burnout and I would recover from it within a few months. So I was living those 3 years with so much stress and pressure, cause I did not know I had Pfeiffer's disease and everyone thought it was all inside my head.

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Offline kurtosis

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16030 on: 14/04/2012 17:29:53 »

True, stress does increase inflammation(allergies)and cortisol.It also makes Pois worse,but as I said in my opinion (or hypothesis) a stressor which could be from an illness, is the (possibly) initial trigger for the body to create a negative response after having an O.

Your point sounds very familiar to my experience.
I got my P.O.I.S. after having Pfeiffer's disease without knowing it for 3 years because of a wrong diagnosis by my doctor. She thought I was having a slight burnout and I would recover from it within a few months. So I was living those 3 years with so much stress and pressure, cause I did not know I had Pfeiffer's disease and everyone thought it was all inside my head.
There are a range of auto immune illnesses that are more likely to occur after a patient has had mono caused by Epstein Barr. I had mono too, just a few months after the e-coli poisoning as a kid. I must admit, It's difficult to remember clearly but I don't remember ever having POIS symptoms before that period. i.e. my first few O's didn't feel that bad.
I wonder have others on the forum had mono?

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Offline edhawk10

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16031 on: 14/04/2012 17:46:34 »
POISon, i'm with you on that whole part that it's something else happening to us and not just simply anxiety causing this. I can be fine for a day or two and talk to people, full of confidence, good memory  and other days after orgasm it's like i was hit by a train. I can get extremely anxious being around my own family, can't think properly and so on. No matter how hard you try to fight through it during those days, it doesn't work!

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Offline Sirius

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16032 on: 14/04/2012 22:42:05 »
I just joined here.  I don't know if I have this illness or not.  All I know is that after I ejaculate, the next day, I am irritable and feel sluggish and bleh.  Not physically sick, just mentally.  Lack of motivation, and don't really want to do anything.  Loss of energy pretty much.

I went 10 days without masturbating, then I had to, because I was afraid of having a wet dream.  I only had 1 wet dream in my life, and it was gross and it ruined my day when I had it.

Anyway.  I want to know if prostate stimulation to get the semen out will prevent the wet dream without causing the symptoms.

I want to get rid of semen without the orgasm so I don't feel the symptoms.  Will this work?  Has anyone tried this?

EDIT:  Mind you, I am 26 years old.  And the these symptoms last about 2 days or so.

EDIT AGAIN: Oh oh oh.  Question.  Would eating the semen cause the same effects?  Or even eating another's semen?  Is it semen all in general or just your own?
« Last Edit: 14/04/2012 22:46:09 by Sirius »

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Offline John21

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16033 on: 15/04/2012 00:31:40 »
Just watched the ABC Austrailian documentary, I thought it was great. I respect the way they treated the condition.  Victor did a great job as well and presented it well, showing how we're just ordinary people with an inexplicable malady. It's so bizarre to watch a program about something I was for so long so overwhelmed with and desperate to find ANY information on.
« Last Edit: 15/04/2012 00:33:48 by John21 »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16034 on: 15/04/2012 06:18:17 »
John, that's exactly how I feel.

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16035 on: 15/04/2012 06:22:16 »




Sirius, edhawk10, l1_prior, meteo74, micro41, GDRTW, and boobay, welcome to the POIS thread of The Naked Science Forum!  We believe that 2012 is POIS' Breakthrough Year! We hope to launch serious POIS Medical Research! A great time to be here!



**(If you have any technical questions, please feel free to PM (private message) Daveman or me -- or another forum member - - go towards the end of this welcome message (after the 5 available research articles are described) for instuctions on how to send PM. We'll be happy to explain!)***


If you haven't already done so, but would like to like to join the new forum,  send "daveman" a PM here at the Naked Science Forum.


Here are some POIS resources which may be helpful to you:

Click here to see the new April 12 POIS TV Documentary!

Click here to see The Now-Famous POIS reddit post!

Our new POIS chatroom (realtime chat). Invite or visit another member(s) there, ANY TIME. We can all get to know each other better:
Just click HERE first, and then look for "CHAT" button towards top of page, 4th button to your right!

Our new POIS Forum - architectural genius: "daveman" - for detailed subject-by-subject discussion!
http://www.POISCenter.com/forums/index.php
Our 5-year-old POIS thread here at Naked Science Forum will also always remain open for newcomers, for general unstructured discussion, and historical research of the 10,000+ postings here since 2007.

The Learning Channel's (TLC)  feature TV presentation on POIS, featuring our member here at this forum, "Animus". It was aired on May 22, 2011. Here is a link to the YouTube file for the POIS  TV documentary, "Desperate Measures":
http://www.youtube.com/watch?v=6sdaR18vw1s

Our POIS Information Website, built by "mat780", is here:
http://sites.google.com/site/POISwebsite/

The POIS Information Website is home to the famous POIS Forum Compendium, written by "Pyropeach", and contains theories already discussed here and treatments that have both worked and failed.

Please see "B_Jim"'s POIS Summary of All Cases, here as well as others on the Web. This includes remedies that we have tested, and results.
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg149009#msg149009

"Girlwind" has created an excellent POIS Video:
http://www.youtube.com/watch?v=UWBxAUC9k1g


Post Orgasmic Illness Syndrome "POIS": Case report

Authors:
Abdalla M Attia*, Magda H Al-Ziny, Hossam A Yasien
*Corresponding author: Andrology Unit, Minoufiya University, Shibin El Kom, Eygpt

For more info, check out emi_b's  SMF POIS thread:
http://poiscenter.com/forums/index.php?topic=191.0;topicseen


POIS Research Studies available Upon Request:

1. and 2. POIS Research Studies, 2011

These 2 papers reveal Dr. Waldinger's POIS autoimmune hypothesis and suggest one possible avenue of treatment.

3. First POIS Research Study, 2002

We have a copy of the first formal medical investigation on POIS by Prof. dr. Marcel D. Waldinger,MD,PhD, and Dr. Dave Schweitzer, MD.

   
4. Recent POIS Research Study, 2010

CASE REPORT
Postorgasm Illness Syndrome - A Spectrum of Illnesses
Jane Ashby, MRCP, and David Goldmeier, MRCP
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg316781#msg316781


5. British Medical Journal Case Report, 2010

Case study by Dr. Selwyn Dexter of a patient with a headache-featured POIS symptom treated with progesterone/norethisterone.
http://casereports.bmj.com/content/2010/bcr.10.2009.2359.short?rss=1


How to get any or all of the above 5 studies: send me or "daveman" a Private Message (PM) with your regular email address (use "AT" instead of "@" ) and we'll send you back the PDF(s).

To send a Private Message, click on "My Messages" at the top of this page. Then click "Send Message". From that point on, it works just like posting a message here, except that it only goes to the person(s) you designate.


New York Times article,

January 20, 2009
Mind
Sex and Depression: In the Brain, if Not the Mind
By RICHARD A. FRIEDMAN, M.D.
http://www.nytimes.com/2009/01/20/health/views/20mind.html?_r=1&scp=1&sq=friedman%20sexual%20January%2020&st=cse

- - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -

In addition to serving our own informational interests, the resources listed above can be useful for you to show our credibility to the medical world - which often shows little understanding and is sometimes skeptical of our condition: POIS has scientific underpinnings and POIS is not "just another psychological problem" related to sex - to be treated by the psychiatric/psychotherapeutic community. All of this information can greatly help you to fight the immediate reaction of some doctors: so just tell them, "IT'S NOT 'ALL IN YOUR HEAD'! "


It can be very  helpful to you when dealing with medical professionals to point out the
POIS' official listing, as recognized by the
National Institutes for Health (NIH), Office of Rare Diseases Research
:


And in Europe: Orphanet now lists POIS on their website! - Click here!

POIS also appears in credible medical sources such as the Journal of Sexual Medicine (Dr. Waldinger's study), British Medical Journal and wikipedia:
http://en.wikipedia.org/wiki/Postorgasmic_illness_syndrome

For over 5 years, our POIS forum has attracted over 200 POIS sufferers worldwide who have posted here, research on an additional 200 sufferers elsewhere on the internet, plus our pages have been read nearly 2,000,000 times! Not bad for a rare malady!

Show some of this to your doctor - with pride! - chances are, YOU know FAR more about POIS than s/he does! Don't be intimidated by fancy diplomas. It's almost impossible for ANY one doctor to know much about POIS before you walk into his/her office. Unfortunately, it's up to YOU to educate THEM!

SEARCH THE FORUM WITH GOOGLE

We have an overwhelming amount of data: more than 5 years' worth of posts (over  10,000 posts!) from 200+ Forum members, and an additional 200 POIS sufferers found elsewhere on the Internet by Member B_Jim.

In the Google search box, type
whatever-it-is-you're-interested-in-finding-out[space]POIS[space]site:http://thenakedscientists.com/

for example, I tried
nocturnal emission POIS site:http://thenakedscientists.com/

and 740 results came up for "nocturnal emission" within the Forum.

be careful with spaces (you can use them before the word "site") and no-spaces (everything after the word "site")

Google even provides you results with the Message# for each result. But Message #'s do change, so be patient and look for the approximate Message#.


« Last Edit: 15/04/2012 06:34:52 by demografx »

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Offline Limejuice

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16036 on: 15/04/2012 09:04:44 »
Nice job on the show guys!
« Last Edit: 15/04/2012 09:06:44 by Limejuice »

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Offline meteo74

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16037 on: 15/04/2012 10:45:47 »
Hi All

I wish to get a medicine that treat the syndromes,some thing occurs after mast. and causes the blood pressure in the head and raise the temperature of the head scalp.
try to put your hand over the skin of the head after O. you will see it becoms warmer.
this is the main problem.

any one who agree with me ??
« Last Edit: 15/04/2012 11:11:32 by meteo74 »

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Offline daveman

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16038 on: 15/04/2012 13:01:28 »
After watching the extended interviews with Dr. Goldmeier and Agnes Kocsis -- in my opinion, they gave VERY 'psychologized' assessments of what POIS is.  The picture that comes across from those interviews is: these are 'highly anxious' people who then have 'psychosomatic' symptoms and 'attribute' it to ejaculation.  The interviewer asks "So this is not something that would show up in a medical test?" and Dr. Goldmeier say that that's correct, it wouldn't show up in a medical test -- with the implication that this is because it is psychological.

I don't want to make an assessment of whether this is what they intended to convey, but that's sure what comes across pretty darn clearly!

CC, nordnurse, that concerns me: I feel like running away fast whenever I hear anything remotely close to "POIS? Oh, sure: It's all in your head!".

That stupid and damaging POIS "appraisal" by too many medical professionals and laypersons alike needs to be destroyed.

By us.

Guthrie, Demo,

Yes, I personally have been surprised by these types of statements from "professionals".

Perhaps we haven't arrived at a point where we KNOW what POIS is. Only the research will clarify this. We can describe POIS, say whatt it does to us, but can't define the mechanism.

Then someone comes along who works in psycho-sexual areas, and where I'm sure there are many, many situations that apply to nuero-psychological treatments, but they automatically apply their "practice" and philosophies to our problem because we have a rare disorder that doesn't have an explainable etiology (YET).

But thanks to Niacin, I can call myself cured. I can see clearly what POIS ISN'T. And it ISN'T psychosomatic. AnNy simple studies on an individual like myself (and there are many) would show that it is NOT psychosomatic or even "in our heads" as a result of stresses etc. etc. Yes, there are stresses, but a professional should know that one has to evaluate whether those stresses are "cause or effect". I insist that we find a POIS inducing drug to inject into these "all too anxious to apply their "specialty" to our problem" doctors so they have a REAL feel for what it is that we have. Let some other psycho-analyst tell him that he is stressed and THAT's why he has POIS.

We have seen too many doctors that don't go all the way in validating their theory before leading hords of sufferers down a dead end street.

Sorry if I come across as excessive, but I'm MAD. And we should all be MAD.

And I'm not mentioning any names, actually there are too many. FAR TOO MANY. We desperately need PROFESSIONAL RESEARCH, before there is more damage than good done by public exposure of NONSENSE.

Grrr..Grrrr. RRrrrrrrrrr.
How does Murphey do it??

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Offline apostate801

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16039 on: 15/04/2012 15:13:09 »
Maybe POIS isn't that rare and maybe it's caused/strengthened by when we started watching high speed porn.  The younger we started the more our brain developed stronger connections associated with porn addiction.   

newbielink:http://www.youtube.com/watch?v=zif0_60b3WU [nonactive]

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Offline victor.kons

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16040 on: 15/04/2012 19:03:52 »
Just watched ABC show. Wow, my respect to you Victor and to Dr Maryanne Demasi! Thanks to you the POIS is showed as a not all in our head thing, but a real disease and this is huge step forward for us! This is so important for us to get medical community to take us seriously. I think you have got the maximum out of this show and bring very important result for us, that we will be able to use as a base for our future steps. It is so nice that our first appearance on the public was in so positive light, thank you so much Victor! Thank you Dr Maryanne!

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Offline napkynbass

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16041 on: 15/04/2012 19:13:34 »
Hi guys!

This is for Davemen,

Since when you feel totally cured? I live with POIS since 2003 :/:/!!

Any secondary effect? can you see sex related scenes and not feel a little dizzy?

Thanks!

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16042 on: 15/04/2012 19:37:53 »



I wouldn't put too much credence on what Dr. Goldmeir and Dr. Kocsis say about Pois being a mental condition.


Excellent.

We need to FIGHT the "POIS = mental condition/origin" thinking wherever we can!!

This one stupid prejudice has hurt all of us enormously.

No one should ever accept a psychological/psychiatric diagnosis for POIS from anyone!

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Offline victor.kons

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16043 on: 15/04/2012 19:49:17 »

I wouldn't put too much credence on what Dr. Goldmeir and Dr. Kocsis say about Pois being a mental condition.


Excellent.

We need to FIGHT the "POIS = mental condition/origin" thinking wherever we can!!

This one stupid prejudice has hurt all of us enormously.

No one should ever accept a psychological/psychiatric diagnosis for POIS from anyone!
Totally agree, demo! We have suffered too much already when doctors treated us as "anxious" people, this lead us to nowhere. We don't need to put up with this anymore!

Victor

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Offline daveman

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16044 on: 15/04/2012 20:53:57 »
Hi guys!

This is for Davemen,

Since when you feel totally cured? I live with POIS since 2003 :/:/!!

Any secondary effect? can you see sex related scenes and not feel a little dizzy?

Thanks!

I've been taking niacin before orgasm now for about 6 months, and for the most part, I have only about 10% symptoms that come through a couple of times in the first two days and then nothing more.

I never had symptoms with sexual arousal without orgasm, some do. My POIS went from 5 to 10 days with 2 or 3 days of more intense brain fog. To just parts of the first two days and extremely light.

The biggest problem with this "cure" is the strictness of the remedy. Having to fast, which means you have to plan each sexual encounter. Sometimes if you don't take quite enough niacin or ar too horny to wait for the flush to subside, the POIS can be heavier too.

But compared to what it was I consider myself "cured".

How does Murphey do it??

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Offline mat780

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16045 on: 15/04/2012 21:01:55 »
Hello everybody!

For the ones who still haven't seen the excellent ABC Documentary, I've just uploaded the POIS part to our YouTube POIS Channel.

Follow the link:
newbielink:http://www.youtube.com/user/POISchannel/videos [nonactive]


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Offline John21

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16046 on: 15/04/2012 21:32:29 »
Doesn't Dr. Goldmeir see that we have good reason to be anxious?  ???

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Offline daveman

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16047 on: 15/04/2012 21:40:09 »
ObserverCenter,

Great job. Just saw the show! They treated the niacin solution wonderfully. Actually brought tears to my eyes, to see, that we are and will be helping POIS sufferers get through this.

Thanks for this too Victor K. who brought it to us through your forum.

The brief exposure of the forum(s) is SO great. Builds a hope brings pride to know that we are among the fore-front in the solution for POIS.

And MAN that restless genital syndrome is terrible too. Wish there was something we could do.

How does Murphey do it??

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Offline napkynbass

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16048 on: 15/04/2012 22:02:26 »
I ordered niacin and I'll try, but still did not realize what constitutes "flush", someone can explain me?

thank you

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Offline daveman

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16049 on: 15/04/2012 22:57:52 »
I ordered niacin and I'll try, but still did not realize what constitutes "flush", someone can explain me?

thank you

Over at our other forum there are several threads on niacin

The first talks about a sort of "super niacin", but in the end, only regular niacin is required.

also do a search on that same forum, there's lots on niacin.
http://poiscenter.com/forums/index.php?topic=174.msg4403#new

This second link probably has more direct instructions on how to take niacin.
http://poiscenter.com/forums/index.php?topic=319.0
How does Murphey do it??