Post Orgasmic Illness Syndrome (POIS)

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16050 on: 16/04/2012 00:15:08 »
Doesn't Dr. Goldmeir see that we have good reason to be anxious?  ???

Exactly right!

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Offline demografx

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« Last Edit: 16/04/2012 09:16:47 by demografx »

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Offline leo17

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16052 on: 16/04/2012 00:35:32 »
Hey all, I just want to add from my experiences that for me playing video games (usually exciting video games like fighters or anything else intense) for long time also brings on the same mental effects I get from POIS, just not as severe. IMO I think this brain fog (which is the worst part) I get in my head could be a dopamine crash of a sort or a chemical imbalance in the brain related to excessive dopamine levels.

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Offline Hoping

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16053 on: 16/04/2012 04:28:59 »
Just watched the newest video. Well done!! It gives me a lot of hope. (I was surprised to see NSF actually make a brief appearance.)

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Offline kurtosis

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16054 on: 16/04/2012 08:39:21 »

I wouldn't put too much credence on what Dr. Goldmeir and Dr. Kocsis say about Pois being a mental condition.


Excellent.

We need to FIGHT the "POIS = mental condition/origin" thinking wherever we can!!

This one stupid prejudice has hurt all of us enormously.

No one should ever accept a psychological/psychiatric diagnosis for POIS from anyone!
Totally agree, demo! We have suffered too much already when doctors treated us as "anxious" people, this lead us to nowhere. We don't need to put up with this anymore!

Victor
The 'anxious person' treatment is easy for lazy and arrogant doctors. You mention sex and cognitive symptoms to them and their eyes light up. It must be psychosomatic they think. The wonderful thing for a doctor's ego in diagnosing a psychosomatic illness is that they can't really cure you. Any failure on their part to make things better is based on your psychological defences, unwillingness to go through months/years of CBT etc. Any relapse is related to your psychological illnesses and treatment may encompass catch all anti-depressives or anti-anxiety drugs. Now, here's the funny thing. If POIS causes fluctuations of neuro-chemicals rather than physical trauma (which it didn't on my MRI) then some of these drugs might work, specifically Bupropion. But that's not a cure for POIS as it wouldn't' address how after an O, it feels like our brains are "switched off".

Also, diagnosing a condition (POIS) based on considering interviews with 1 or 2 people with that condition is medically irresponsible. Imagine if a pathologist stated in court that they hadn't actually examined the body but they're confident in a diagnosis of "heart failure". Very smug but utterly useless.

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16055 on: 16/04/2012 08:46:10 »

I wouldn't put too much credence on what Dr. Goldmeir and Dr. Kocsis say about Pois being a mental condition.


Excellent.

We need to FIGHT the "POIS = mental condition/origin" thinking wherever we can!!

This one stupid prejudice has hurt all of us enormously.

No one should ever accept a psychological/psychiatric diagnosis for POIS from anyone!
Totally agree, demo! We have suffered too much already when doctors treated us as "anxious" people, this lead us to nowhere. We don't need to put up with this anymore!

Victor

Thank you, Victor!

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16056 on: 16/04/2012 08:49:25 »

The 'anxious person' treatment is easy for lazy and arrogant doctors. You mention sex and cognitive symptoms to them and their eyes light up. It must be psychosomatic they think. The wonderful thing for a doctor's ego in diagnosing a psychosomatic illness is that they can't really cure you. Any failure on their part to make things better is based on your psychological defences, unwillingness to go through months/years of CBT etc. Any relapse is related to your psychological illnesses and treatment may encompass catch all anti-depressives or anti-anxiety drugs. Now, here's the funny thing. If POIS causes fluctuations of neuro-chemicals rather than physical trauma (which it didn't on my MRI) then some of these drugs might work, specifically Bupropion. But that's not a cure for POIS as it wouldn't' address how after an O, it feels like our brains are "switched off".

Also, diagnosing a condition (POIS) based on considering interviews with 1 or 2 people with that condition is medically irresponsible. Imagine if a pathologist stated in court that they hadn't actually examined the body but they're confident in a diagnosis of "heart failure". Very smug but utterly useless.


Excellent exposé !

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Offline nathan123

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16057 on: 16/04/2012 09:21:12 »
Hi,

Today I got my report of CT SCAN of BRAIN.  I undergone for CT SCAN of Brain test in 2nd day of POIS and as per the report everything is normal.  Further, I also got blood test and Nutrition level test which is also a normal. But POIS is still exist.  Now my doctor advising me to go to a psychologist and he is telling that it is a psychological problem rather than physical. 

Further, in our country, Niacin tablets is not available.  I find B.complex tablet which is of following composition.
Each Capsule contain:
Vitamin B1 10mg
Vitamin B2 10mg
Vitamin B6 3mg
Nicotinamide 50mg
Folic acid 1000mcg
calcium pantothenate 20mg
L-lysine mono hydrochloride 150 mg
Vitamin B12 5 mcg.

Whether this tablet is appropriate and does it contain Flushing effect? Please help...

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Offline napkynbass

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16058 on: 16/04/2012 09:36:06 »
Hi,

Anyone try propanolol, indometacin, diltaziem or ergotamine before the "O"?

POIS can be considered as a primary sexual headache?

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16059 on: 16/04/2012 09:58:07 »

After an O, it feels like our brains are "switched off".


Yes. I would often imagine my horrific POIS impact as if my brain had undergone a temporary lobotomy!!
« Last Edit: 16/04/2012 10:15:07 by demografx »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16060 on: 16/04/2012 10:03:25 »

POIS can be considered as a primary sexual headache?


Dr Selwyn Dexter wrote about a POIS patient treated for headache as a primary symptom.

I can email you the paper if you PM me your regular email address. Meanwhile, here's a short synopsis:
http://casereports.bmj.com/content/2010/bcr.10.2009.2359.short?rss=1

Personally, I did not have a good reaction to progesterone (I quit after 4 days), which is a treatment some of us here were very interested in exploring, in combination with testosterone ("T + P").
« Last Edit: 16/04/2012 10:08:11 by demografx »

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Offline mellivora

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16061 on: 16/04/2012 11:08:42 »
Hi everyone,

Sorry I've been a while posting on here due to work and family commitments.

Wow Wow WOW!. Great job in the documentary observercenter! You've done us all a great service. 'Michael' the Australian guy was also excellent. This really helps all of us. Thank you, thank you, thank you :) And thanks to Dr Demasi and all the production team too.

There's been understandably quite a lot of backlash here against the interviews with Dr Goldmeier and Dr Kocsis. On the face of it these interviews appear to be unhelpful to us and can be interpreted as supporting the much maligned "all in your head" camp. As a patient of Dr Goldmeier's I've been asked by email to  put my opinion forward and in any case I feel like just a little more balance is needed.

First of all, let me make it clear that  if I were to guess at the most likely root cause of my POIS I would opt for a  physical theory - ie autoimmune / hormonal.  I have also, like many of you, battled with doctors unhelpfully dismissing this as "just a phase" or 'all in the head'.

Is Dr. Goldmeier a psychiatrist??? He's referred to as a psychiatrist on the show.

(I was under the impression that he was either an allergist or a urologist.)

Nordnurse, it was a surprise to me to see Dr Goldmeier labelled as a psychiatrist.  As far as I am aware, this is incorrect but I'll check with him. Via google, I found that there is a Dr David Goldmeier in the States who IS a psychiatrist. It could be that this is where the confusion arose. As far as I am aware, Dr Goldmeier in the UK (the one in the interview) is a specialist in genito-urinary medicine and is the "Clinical Lead" at Jane Wadsworth Sexual Function Clinic at St Mary's Hospital in London.

Also, for clarification, Dr Kocsis is a colleague of Dr Goldmeier and I have seen them both. This post is not intended as a defence of either of them. It is just my thoughts on the matter.

Firstly, neither Dr Goldmeier or Dr Kocsis say that POIS is actually psychosomatic although this is one theory they are investigating or "exploring" as Dr Kocsis puts it. Dr Kocsis is a psychologist so it is natural for her to consider POIS from a psychological perspective. Dr Goldmeier has openly admitted to me and in the ABC interview that he doesn't know what POIS is.  He clearly is looking at the psychology of it with Dr Kocsis but has also consulted with immunologist colleagues about POIS and prescribed me both diclofenac to test (anti-inflammatory) and levocitirizine (antihistamine). Joe Burger on the poiscenter forum found that levocitirizine (also prescribed to him by Dr G.) helped him. I have some but am yet to test it as I want to wait for a non-POIS health issue that I currently have to clear up first. My impression from discussions with Dr G. is that he is not dismissive of Dr Waldinger's theories but equally has a few reservations about them owing to the lack of controls in his studies (something Dr W has acknowledged himself).

It is normal in science to have more than one hypothesis about something and to test the hypotheses until the correct one or a better one is found. As long as it is done from a scientifically rigorous perspective, I don't think we should be angry, especially at this early stage, if someone wants to examine POIS from a psychological perspective. Its something that hasn't been done in a scientific way before and in fact this could end up helping to permanently eliminate a psychological explanation if the medical literature ends up concluding that this is not psychological. Of course Dr Waldinger has already gone some way to publishing that POIS  is not psychosomatic and if his future studies are more widely accepted as being carried out in a rigorous way (eg. with better controls) then this could do the job for us. What IS potentially damaging is if people see interviews by Dr Goldmeier and Dr Kocsis and interpret them as concrete factual explanations rather than theoretical ones. That is where the danger lies for us. In that regard it is also not that helpful to us that after Dr Waldinger's 2011 papers the media appeared to report that the cause of POIS had definitely been found. I was conscious of this during our reddit campaign. I was afraid people might read the news reports on the internet and conclude that actually the solution to POIS has been found. As we know, that isn't definitely the case.

As has been said in the past, there may be more than one cause of POIS. We all have symptoms that are broadly similar but there is variation within that and at this early stage of research we should be open to there being more than one explanation of POIS. Cornelius on the poiscenter forum states that he is now POIS free and believes his symptoms were a result of clinical depression. So one could interpret that in his case perhaps the cause was psychosomatic. The remarkable and repeatable results that others have been having with niacin are an example of cases that would definitely appear NOT to be psychosomatic.

I think it most likely that my POIS is not psychosomatic. Also, when I look around at other people, I would say that I am not generally an anxious person. I have stated here that I am trying an 8 week course of mindfulness based cognitive therapy (MBCT) - ie a meditation course. I realise that this could come across as  a wishy-washy limp and pointless exercise akin to throwing a wet flannel at an angry Kraken. So I wanted to clarify my thinking on this.

The course was a suggestion to me by Dr Kocsis. She didn't say I should try it, just that she thought it was a good book after I told her about another I'd read. I'm trying it partly out of curiosity as I've never known what meditation is all about and wanted to experience it first hand. I'm also trying it because I have heard good things from scientific sources about the benefits meditation can have. I'm actually NOT trying it as a cure for POIS. I'm also not depressed and feel that generally I have a good perspective on life - to some extent I think POIS gives one a good perspective on life where smaller everyday obstacles are seen as relatively insignificant. The meditation is just something I fancied trying for a few reasons.  We all go through difficult times coping with POIS and some people here do indeed report that they are anxious and depressed.  Perhaps an MBCT course which has been proven to help both those things could be beneficial to these people. Certainly I've found in the past that stress seems to make my symptoms worse. I don't think MBCT is a POIS cure but it might help some people cope with POIS and life generally. Anyway I'm on my 5th week and will report back on it at some point.

This has turned into a long post. And all this emphasises the need for more research. The NORD grant is not forgotten!
« Last Edit: 16/04/2012 11:52:06 by mellivora »

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Offline mellivora

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16062 on: 16/04/2012 11:09:20 »
Caution: Depressing Post

I'm losing it. For some reason my POIS is getting worse. The worsening may be due to a number of things. Most likely Effexor and betaine hcl, but could perhaps be due to my two months use of Klonopin for anxiety. Either way I've waited weeks and the pain in my knees has not gone away. I estimate than in a few years time I will no longer be able to stand on my feet or walk because of POIS. My next step is to see if I can get my testicles surgically removed. I've read it can be done for $3,000 to $4,000 but I'm not sure if my mom has that much money. I need to talk to her about it. If that isn't possible I may resort to self castration. Even if I mess up the surgery and bleed to death or get an infection and die a slow death of gangrene it will still be better than slowly rotting away in this room that has become my world. The treatments I've mentioned previously still work to dull the pain of POIS, but the POIS has become too much even for those treatments to work. My face and eyes are too irritated to even read and participate on this forum much of the time now so this may be my last post here. Thanks to all of you for all the great work you've done together to fight this monster that is POIS.
Vincent Marcus,
Your situation sounds terrible. Please hang in there buddy. You've made some great posts on this forum and are a really valued forum member.  I mean that.

Try not to look too far into the future. It hasn't happened yet. None of us knows what the future holds for us. I had a recent health scare and it was easy to see it as the end of the line for me before a diagnosis was even made. I can understand things are feeling desperate for you right now but try hard not to make assumptions about the future.

By all means look into castration like Animus did but you are worth taking care over. Don't resort to doing it yourself, if you're going to do it, get it done professionally. Do talk to your mom. I know what its like for a room to become your world - I'm sure a lot of sufferers can relate to this although admittedly I haven't had quite the same symptoms of knee pain that you are experiencing now.

When was the last time you saw a doctor? I know they don't understand POIS but perhaps you should present your symptoms as they currently are. Its a long time to have knee pain and perhaps they might be able to pinpoint a physical reason for it this time. I presume you have tried the usual anti-inflammatories and painkillers a long time ago.

Seriously dude, we care about you. Keep talking to us.
« Last Edit: 16/04/2012 11:28:17 by mellivora »

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Offline acronym

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16063 on: 16/04/2012 11:25:19 »
Hi,

Today I got my report of CT SCAN of BRAIN.  I undergone for CT SCAN of Brain test in 2nd day of POIS and as per the report everything is normal.  Further, I also got blood test and Nutrition level test which is also a normal. But POIS is still exist.  Now my doctor advising me to go to a psychologist and he is telling that it is a psychological problem rather than physical. 
A CT scan I assume would only reveal physical aberrations, and they would need to be of a reasonable magnitutude to stick out. I would be surprised if we all had obvious physical brain deformity. I think our problems are more micro level. Most people with epilepsy have normal CAT scans for instance. I believe functional brain imaging (SPECT/PET scans) would be more beneficial in our case. I had a PET scan done the day after an O and it showed obvious blood flow/brain glucose metabolism irregularities. (note I have also been diagnosed with CFS and many CFS patients show abnormal results on brain blood flow scans).

I SPEC scan just after an O + a baseline (2 wks since an O for instance) would assist us in proving this condition is definitely not psychosomatic, and maybe what regions of the brain are effected but I doubt it would likely reveal the cause of the condition.

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Offline Vincent M

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16064 on: 16/04/2012 12:01:58 »
I was thinking castration might be a possible way to minimize symptoms for me. Maybe try the chemical route first, anti-androgens.
« Last Edit: 27/06/2013 14:32:46 by Vincent M »
Taking fenugreek+tea/garlic, saw palmetto, huperzine, niacin, boswellia, and nutmeg.

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Offline Vincent M

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16065 on: 16/04/2012 12:04:17 »
Another thing I could try is testosterone, but I'm pretty sure my testosterone levels are high since I am constantly desiring sex and masturbate multiple times every day. Maybe that should be my next step. Then there's silodosin, but that's kind of a shot in the dark especially with my ejac frequency.
Taking fenugreek+tea/garlic, saw palmetto, huperzine, niacin, boswellia, and nutmeg.

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Offline Vincent M

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16066 on: 16/04/2012 12:08:50 »
I think it would be beneficial to me if I could lower my libido. Even if it doesn't help my POIS directly it will allow me some relief from the constant psychosis of this spiral of self destruction. Being addicted to the thing that is killing you and the addictive substance being as easily obtainable as just a few sexual thoughts or a slight unintended touch to the genitals. The stress of always having to resist is maddening.
« Last Edit: 27/06/2013 14:34:25 by Vincent M »
Taking fenugreek+tea/garlic, saw palmetto, huperzine, niacin, boswellia, and nutmeg.

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Offline Vincent M

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16067 on: 16/04/2012 12:37:11 »
Does anyone know where I could get hookworms for helminthic therapy to treat POIS? I live in USA.
Taking fenugreek+tea/garlic, saw palmetto, huperzine, niacin, boswellia, and nutmeg.

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Offline mellivora

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16068 on: 16/04/2012 12:39:56 »
Hi Vincent Marcus
Sorry about your mom's reaction. Have you showed her the forum, the reddit post or Dr Waldinger's papers. Maybe that would help convince her if she really doesn't believe POIS is real. You have people here who KNOW its real.

As far as I'm aware helminthic therapy hasn't been tried by any POIS sufferers. I need to read more about it (though did read an article in new scientist a while back). My impression is that this is one of those "latest things" that people are jumping on the bandwagon for without really understanding and I don't think its a good way to go for us, especially as we don't really know the underlying cause of POIS. I'm also wary of trying medications because of side effects, not least because my POIS started after I had radio-active iodine treatment for an overactive thyroid  - that may or may not be coincidence but I don't experiment with treatments without careful consideration now.

Perhaps seeing a different psychologist could be beneficial to you in terms of helping you cope with your situation. If you are feeling suicidal, perhaps call the Samaritans. All I can say is that when you feel you're in the deepest, darkest hole you've ever been in and are feeling helpless and out of all out of hope, its totally possible that something will change and help you out at some point. Although I've never contemplated suicide, in the early years of my POIS I went through some very dark times, the darkest of my life, and it definitely gave me an understanding as to how some people with POIS would feel suicidal. When things improved a bit for me I looked back and was amazed that I made it through that period the way I did. I know from your words that things are desperately hard just now.

Accept that things are really difficult for you right now. Its not what you want but its what's happening right now. Please believe that if you hang in things can improve and you'll be really glad you pulled through. Your efforts to help yourself and others on this forum speak volumes about the type of guy you are. We want you here!
« Last Edit: 16/04/2012 13:00:52 by mellivora »

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Offline mellivora

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16069 on: 16/04/2012 12:43:23 »
The way I see it is if achieve castration I will at the very least reduce my freakish sex drive so even if it doesn't help my POIS it will allow me some relief from the constant psychosis of this spiral of self destruction. Being addicted to the thing that is killing you and the addictive substance being as easily obtainable as just a few sexual thoughts or a slight unintended touch to the genitals. The stress of always having to resist is maddening. It's like being allergic to the very air I breathe.

No harm in getting your testosterone tested although it does sound as you say like yours is not low. Maybe you'll find it useful to PM Animus about castration. He probably knows more about it than any of us. I know he still monitors his PM's from time to time as I PM'd him when we were doing the reddit campaign.

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Offline mellivora

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16070 on: 16/04/2012 13:06:36 »

As far as I'm aware helminthic therapy hasn't been tried by any POIS sufferers. I need to read more about it (though did read an article in new scientist a while back). My impression is that this is one of those "latest things" that people are jumping on the bandwagon for without really understanding and I don't think its a good way to go for us, especially as we don't really know the underlying cause of POIS.
I may have made too hasty a statement here. It seems there are universities seriously looking at this for autoimmune conditions. Its early days though...

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Offline Vincent M

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16071 on: 16/04/2012 13:10:27 »
Thanks for your kind words, Mellivora. I've been reading up on helminthic therapy and like you just said there seems to be a lot of logic and science to back it up so there's a good chance I'll try it if I can obtain some hookworms. I have a lot of thinking to do. I will try to check in on the forum still, but it probably won't be as often since I'll most likely now be forced to drown my pain in various electronic entertainment.
Taking fenugreek+tea/garlic, saw palmetto, huperzine, niacin, boswellia, and nutmeg.

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Offline martin88

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16072 on: 16/04/2012 13:33:25 »
Thanks to the 2 POIS sufferers and doctors who participated in the show.
Good points Mellivora. I wrote that before reading your post:
About the "POIS psychological" debate, I don't understand all of Dr Goldmeier's interview (because of my english) but at 2.45' in the video he's asked if POIS is psychological, his answer is "we don't know". That's all I need to know!
I think POIS is physiologically causing anxiety by affecting the brain or something else. It's not only the situation, that's how I feel it.

At the beginning he's saying there's 40 POIS cases (not sure if he added "officially"), I think we're around 400 cases reported in the forum. Is he informed of that?(for the next interview). Personally I think there are more POIS sufferers. At the beginning of my POIS for at least 6 years I was very tired without knowing why, and it was because I never went into sexual abstinence to feel the big difference. If you asked me if I was tired after orgasm I would have said no!
« Last Edit: 16/04/2012 13:36:07 by martin88 »

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Offline daveman

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16073 on: 16/04/2012 16:43:41 »
Hi,

Today I got my report of CT SCAN of BRAIN.  I undergone for CT SCAN of Brain test in 2nd day of POIS and as per the report everything is normal.  Further, I also got blood test and Nutrition level test which is also a normal. But POIS is still exist.  Now my doctor advising me to go to a psychologist and he is telling that it is a psychological problem rather than physical. 

Further, in our country, Niacin tablets is not available.  I find B.complex tablet which is of following composition.
Each Capsule contain:
Vitamin B1 10mg
Vitamin B2 10mg
Vitamin B6 3mg
Nicotinamide 50mg
Folic acid 1000mcg
calcium pantothenate 20mg
L-lysine mono hydrochloride 150 mg
Vitamin B12 5 mcg.

Whether this tablet is appropriate and does it contain Flushing effect? Please help...

I'm not really sure about doses, but a  bottle that I saw here had much more than your formula. Something like 200mg each of B6 and b12. So if someone could give us an idea of the B-Complex doses that work. I think the SMF forum had a recent post about a successful application of B-Complex.

Niacinimide can also help, but you need about 1000 mg, and also taken before the "O". Perhaps Guthrie can repost his experience, dosage and application of niacinimide. (which is sometimes available when niacin is not)

Niacin is tough to get in Chile too, but I have found B1 B3 Vit C combinations, which should work. $14 for 20 pills!!



Yeah, we can´t expect much from "regular doctors". Even among experts the diagnosis is often doubtful. We REALLY need research.

How does Murphey do it??

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Offline jferr

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16074 on: 16/04/2012 17:46:09 »
Hey guys. Hope you are all doing well in your endeavors.

Niacin has helped me a great de over the past few months. And with the additions or spirinula, vitamin c, vma and a few minerals I have been able to grt back to work. My POIs is constant and worst within the first few days, but eith these supplements I have been able to work even the day after orgasm. I need about 400 mg niacin to feel a flush without food, I take about 1000 mg of spirulina and 1000 mg of chlorella, and 1000 of vitamin c right after orgasm and the next day.I have been capable of working and working hard for the past few months. Recently, though, I feel as though the symptoms are coming back. The supplements seem to have become less and less effective over time even though I am hardly having an orgasm once a week. The fatigue, confusion, and hot flashes are coming back and I'm not sure what to do. I don't know hownpossible it is to have built a tolerance to these medications. Really having a difficult time. I would be willing to hear any suggestions you guys may have.

Thanks,

Jon.

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Offline jferr

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16075 on: 16/04/2012 17:49:22 »
P.S. I am not just looking to use te forum for free advice as I recently pledge to commit $1,000 dollars when I have the money. I will honor that commitment. I know everyone in this forum is struggling. We will not give up.

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Offline daveman

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16076 on: 16/04/2012 17:58:48 »
Caution: Depressing Post

I'm losing it. For some reason my POIS is getting worse. The worsening may be due to a number of things. Most likely Effexor and betaine hcl, but could perhaps be due to my two months use of Klonopin for anxiety. Either way I've waited weeks and the pain in my knees has not gone away. I estimate than in a few years time I will no longer be able to stand on my feet or walk because of POIS. My next step is to see if I can get my testicles surgically removed. I've read it can be done for $3,000 to $4,000 but I'm not sure if my mom has that much money. I need to talk to her about it. If that isn't possible I may resort to self castration. Even if I mess up the surgery and bleed to death or get an infection and die a slow death of gangrene it will still be better than slowly rotting away in this room that has become my world. The treatments I've mentioned previously still work to dull the pain of POIS, but the POIS has become too much even for those treatments to work. My face and eyes are too irritated to even read and participate on this forum much of the time now so this may be my last post here. Thanks to all of you for all the great work you've done together to fight this monster that is POIS.

This sounds very familiar to me, although the situation and individual problems are distinct.

POIS has a way of cycling, sometimes worse, sometimes better. You have always been a strong one here, finding solutions and helping others. But you are in a down cycle. And they seem like hell!

Try, if only for a few days to reduce your "orgasms" by 1/2. The worst of the cycle will pass and you will get your right mind back again. We need that every once in a while to remind ourselves that we are not nuts, and we just have POIS.

My guess too is that the anti-depressants could be making things worse for you, but as we know, it's not just a matter of stopping them cold turkey.

Get yourself out of this down cycle. Easier said than done, but I'm not saying it as someone who's never had to do it. I understand completely where you are at. But you need your real mind back.

Once you get a hold of some sanity, work your way out of the anti-depressants carefully. Maybe even try to get back to a clear space. Youare our experimenter, always working your way, with machette in hand through the possible cures, finding good ones and bad ones for us.

But maybe you need to get back to square one. Let your mind and body heal, perhaps a POIS without anti-depressants or saw-palmento or even garlic is better than what you are going through.

Find a neutral Vincent-Marcus. I did that once. stopped taking everything, got back to a neutral ground, and found that the POIS was almost cleaner than what I was doing to myself with all the supposed remedies.

At least you find a point from which to start again.

All this probably doesn't help. Just hope you make it through the "bump".

Hang in there.

How does Murphey do it??

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Offline Guthrie

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16077 on: 16/04/2012 18:09:36 »

Firstly, neither Dr Goldmeier or Dr Kocsis say that POIS is actually psychosomatic although this is one theory they are investigating or "exploring" as Dr Kocsis puts it. Dr Kocsis is a psychologist so it is natural for her to consider POIS from a psychological perspective. Dr Goldmeier has openly admitted to me and in the ABC interview that he doesn't know what POIS is.  He clearly is looking at the psychology of it with Dr Kocsis but has also consulted with immunologist colleagues about POIS and prescribed me both diclofenac to test (anti-inflammatory) and levocitirizine (antihistamine). Joe Burger on the poiscenter forum found that levocitirizine (also prescribed to him by Dr G.) helped him. I have some but am yet to test it as I want to wait for a non-POIS health issue that I currently have to clear up first. My impression from discussions with Dr G. is that he is not dismissive of Dr Waldinger's theories but equally has a few reservations about them owing to the lack of controls in his studies (something Dr W has acknowledged himself).

It is normal in science to have more than one hypothesis about something and to test the hypotheses until the correct one or a better one is found. As long as it is done from a scientifically rigorous perspective, I don't think we should be angry, especially at this early stage, if someone wants to examine POIS from a psychological perspective. Its something that hasn't been done in a scientific way before and in fact this could end up helping to permanently eliminate a psychological explanation if the medical literature ends up concluding that this is not psychological. Of course Dr Waldinger has already gone some way to publishing that POIS  is not psychosomatic and if his future studies are more widely accepted as being carried out in a rigorous way (eg. with better controls) then this could do the job for us. What IS potentially damaging is if people see interviews by Dr Goldmeier and Dr Kocsis and interpret them as concrete factual explanations rather than theoretical ones. That is where the danger lies for us. In that regard it is also not that helpful to us that after Dr Waldinger's 2011 papers the media appeared to report that the cause of POIS had definitely been found. I was conscious of this during our reddit campaign. I was afraid people might read the news reports on the internet and conclude that actually the solution to POIS has been found. As we know, that isn't definitely the case.

Mellirova, this is a very thoughtful post, and what you're saying makes sense. 

And, we should certainly open to looking into all possibilities -- it's just difficult to hear statements that can come across as 'fact', rather than 'possibility', especially when we're already having to overcome the general prejudice of "Oh, it MUST be psychological".   I.e. since many people hearing about it would already be inclined to view it as psychological, it can be more misleading even to be seeming to put that view forth in an interview.   In contrast, if in an interview someone gives an impression that it is physiological, not psychological, then this would go against, rather than confirming, people's prejudice.  In this latter case, they might then ask for more data -- which is fine and proper.  But, if they hear an interview that gives the impression that it is psychological, they'd just say 'yes, that makes sense', rather than seeking data to confirm or disprove *that* view.  That is, it is not a symmetrical situation that we're facing in seeking to overcome prejudices!
« Last Edit: 16/04/2012 18:13:10 by Guthrie »

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Offline daveman

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16078 on: 16/04/2012 19:23:55 »
Yes, Mellivora, it's killing us not knowing what POIS really is.

All I know, is when you're clear you know what it isn't.

In my case, doesn't matter if it's niacin or whatever, when you are "back" in a healthy state, you can see clearly what it's not.

I've gone through my stages of POIS induced depression. They're short, 2 or 3 days, but they are hell. You are sure that you are going crazy, or even if it's just brain fog, you imagine what-ever cause. Anything but what it really is.

When you are clear you KNOW that the temporary depression was caused by some physical/chemical unbalance. You see what POIS was doing to you, where it was hurting you, where it was inflamed, and you see how you, the human machine and human mind, are NOT that. You see that the poison is gone.

The second time I took niacin, I didn't believe it could work two times in a row. I should have had more stress or psychosomatic upset. As a matter of fact I was quite worried that it wouldn't work. I was convinced that it wouldn't work again.

But it did, just like the first time and every time thereafter.

I've even had times where I felt I didn't take enough because the flush was weak. I should have had a terrible session if it were psychosomatic. But I don't. It keeps on working.

That's me and a few others. But because of niacin and a drive to find some common ground between that and other things that have worked like testosterone (for some) I feel that a common ground is emerging, even if it IS only among us.

I guess, what makes it difficult, is that it's a loosing battle. There are too many that take the simple route and call it psychosomatic (or imply such). And maybe it's not even being implied as far as they are concerned, but that is how it is heard.

When one goes public and leaves that door open, millions will walk in. Doesn't help at all.




How does Murphey do it??

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Offline daveman

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16079 on: 16/04/2012 19:32:59 »
Mellivora,

That's great about the meditation. Where it probably has the best potential as far as POIS goes is in allowing you to really tune into your body (and mind) to get to the root of things, find the right treatments etc. Better than the WAG (Wild A.. Guess).

It's amazing what you can see.

But it's usually about an 18 month training process to get that far. But well worth the effort.

And it is tough to "stay there" too, it's very similar to physical exercise in that respect. You have to keep it up.

How does Murphey do it??

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Offline napkynbass

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16080 on: 16/04/2012 19:38:33 »
Hi again,

I wanna now if somebody has the same feelings that i have after the "O".

The first two days is like a "hell"!! I wanna sleep, put the head in my pillow and don't talk to anyone!! Feel like a crap!

But after that, i continue with this symptoms:

 - concentration difficulties;
 - bad bad memory;
 - eyestrain, and the eyes look like take a punch;
 - dizzy and desorientation;
 - weakness;
 - talking difficulties;
 - difficulties in the conception of ideas (...)

Anyone feel the same?
Anyone who takes Niacin resolved problems like that?

I hope you can help me.

Thanks

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Offline mellivora

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16081 on: 16/04/2012 20:55:55 »
But, if they hear an interview that gives the impression that it is psychological, they'd just say 'yes, that makes sense', rather than seeking data to confirm or disprove *that* view.  That is, it is not a symmetrical situation that we're facing in seeking to overcome prejudices!
Hi Guthrie,
The asymmetry you mention is an astute observation. The weird thing is that if someone came to me describing POIS symptoms it would not be my automatic reaction to think it must be psychosomatic. I would think it definitely sounds like a reaction to a hormone or something else. That was my first reaction when I realised I was getting ill after orgasm. Perhaps I am too close to it or know too well what the symptoms feel like but I would think MOST laypeople hearing about POIS would NOT think of a psychological explanation first. Unfortunately it seems that when faced with POIS symptoms they can't explain, many doctors do seem to jump on the psychosomatic wagon. I don't mind if they suspect a psychosomatic explanation but feel they need to check other avenues. What I do mind is when they decide its psychosomatic and leave it at that without further investigation which seems to have happened to some of us. I do think there is some link between mental frame of mind and the severity of POIS symptoms. I believe my symtoms have been  worst when I've been stressed for example. The mind and body are not disconnected entities after all. That's definitely not the same as saying the cause is psychological.


Yes, Mellivora, it's killing us not knowing what POIS really is.

All I know, is when you're clear you know what it isn't.

In my case, doesn't matter if it's niacin or whatever, when you are "back" in a healthy state, you can see clearly what it's not.

Daveman you are absolutely on the money in pointing out the transient nature of POIS symptoms and the change in clarity and perspective one gets when out of POIS compared to in POIS. When I go long enough without an orgasm, I totally feel myself again.

Mellivora,

That's great about the meditation. Where it probably has the best potential as far as POIS goes is in allowing you to really tune into your body (and mind) to get to the root of things, find the right treatments etc. Better than the WAG (Wild A.. Guess).

It's amazing what you can see.

But it's usually about an 18 month training process to get that far. But well worth the effort.

And it is tough to "stay there" too, it's very similar to physical exercise in that respect. You have to keep it up.


Have you done much meditation? You are right that its tough to stay in there. Toward the end of my 4th week things were starting to get a bit tedious and repetitive (and I'm an open-minded, patient chap!). But I'm sticking with it for now.
« Last Edit: 16/04/2012 21:04:56 by mellivora »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16082 on: 16/04/2012 21:08:43 »

According to the dailymail.co.uk, the Who recognizes adrenal fatigue as a real condition. But I don't find nothing on the Who site.


And I cannot find POIS on the WHO site :)

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Offline kurtosis

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16083 on: 16/04/2012 21:09:36 »
Hi,

Today I got my report of CT SCAN of BRAIN.  I undergone for CT SCAN of Brain test in 2nd day of POIS and as per the report everything is normal.  Further, I also got blood test and Nutrition level test which is also a normal. But POIS is still exist.  Now my doctor advising me to go to a psychologist and he is telling that it is a psychological problem rather than physical. 

Further, in our country, Niacin tablets is not available.  I find B.complex tablet which is of following composition.
Each Capsule contain:
Vitamin B1 10mg
Vitamin B2 10mg
Vitamin B6 3mg
Nicotinamide 50mg
Folic acid 1000mcg
calcium pantothenate 20mg
L-lysine mono hydrochloride 150 mg
Vitamin B12 5 mcg.

Whether this tablet is appropriate and does it contain Flushing effect? Please help...
That tablet is not going to make you flush as it contains Nicotinamide. I wouldn't worry about your doctor's comments that it isn't physical. The idea that every illness which produces cognitive impairment would have results that show up in a CT scan is ridiculous. It's not like your doctor can compare your brain development with/without POIS so he can only look for tissue damage such as lesions and signs of degeneration. Severe inflammation would show up but I don't think anybody has had those results. There are a few people on here who have had MRI's (me included) and as far as I know nobody has found physical damage.
You might need a new doctor :)

Somebody else mentioned porn addiction. Doesn't affect me. I've little interest in it. I just don't buy any of this psychosomatic rubbish. Bearing in mind that almost all of us who have seen our GP's about POIS have been told it's anxiety/psychomatic it's surprising that not one person claims to have gotten better with the drugs or treatment normally prescribed for that. The simple fact is that having an O is not supposed to make you stupid for a few days. If it's an immunological problem / allergic reaction then a GP or psychiatrist will be worse than useless in treating this. They'll take your money and make you feel like an even bigger idiot because it's "all in your head".

I take some P5P every night with zinc and magnesium. I find this works better than either niacin or ordinary b6. I've wondered if this means that, for whatever reason, I don't produce sufficient amounts of  pyridoxal kinase to convert b6 into its active form (p5p) which is required to create both dopamine and GABA. Or that POIS leads to fluctuations in these neuro-chemicals such that I need to help replenish them. 
I also get a lot of spirulina (high in tyrosine), chlorella and fish oils.

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Offline John21

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16084 on: 16/04/2012 22:06:08 »
Vincent Marcus, have you tried niacin? garlic? fenureek? Just curious. I will also mention that I am proof that complete chastity (outside of NEs) is possible to achive, even though it can seem otherwise. PM me or just ask here if you want tips on how to achive chastity. 

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Offline Stef

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16085 on: 16/04/2012 23:23:19 »
Hello All (and a Special Hello to Vincent Marcus),

I’m going out on on a limb here by weighing in on the psychiatric diagnoses made by so many doctors whom many of you have encountered – the ones who have told you that POIS is a psychiatric condition, that it's psychiatric in origin.

I think that this statement by any physician regarding POIS should ALWAYS serve as a “red flag”.  High-tail it out of there and don’t look back!


POIS obviously can cause major depression and anxiety, as can any on-going, life-altering condition, rare or not. POIS may also cause other psychiatric symptoms –  OCD-type symptoms, maybe even delusions.

But emotional/psychiatric issues do not cause POIS. They also don’t cause severe and obvious eye inflammation, incapacitating knee pain, burning skin, etc.

I think you all need to firmly agree (if you don't, already) – hands down, no exceptions – that whether it’s a “top POIS expert” (there are none, FYI) or a loving, well-meaning but very worried parent –  POIS IS NOT A PSYCHIATRIC ILLNESS -- despite the horrendous psychiatric symptoms that it can cause.

It is a SAD BUT TRUE FACT that with an unusual disorder that has not been researched  -- when the “experts” can’t make a diagnosis -- the person is inevitably advised that it’s a psychiatric problem.   Psych meds frequently are prescribed, and the person frequently feels even worse from those meds! I'm basing this on what I hear from people who contact NORD, day after day.

(Psych meds can save lives – I don’t want to sound anti-psychiatric medication!)

I have an absolutely favorite story to share with you about one patient who contacted NORD around three years ago -- Robin Akbar.

(Her story has appeared on NORD's website, on television for the Mystery Diagnosis show that we referred her to, and in a few magazine articles also. So I am not breaching patient confidentiality with a story that has already gone very public.)
 
Just like Demografx contacting NORD, this wonderful woman, Robin Akbar, was PERSISTENT!  SHE WOULD NOT TAKE "NO"FOR AN ANSWER. (You can probably google her if any of you wants to read her story.)

I've become quite close with Robin through NORD – honestly, I wish she lived nearby, as this is someone who I'd really like to get together with!  She is as strong and as persistent as one can be, and is a lot of fun also!

Robin developed severe pulmonary problems – out of the blue.  She went from doctor to doctor over a six-year period (she worked in hospital administration -- so she heard about all the TOP DOCS in her city -- a large metropolitan city with big teaching hospitals). The TOP DOC OF PULMONARY DOCS in her city decided she had chronic bronchitis and asthma, and treated her over and over for this --for six years! 

Robin's symptoms became so debilitating and unmanageable that she had to give custody of her young son to her ex-husband because she was too sick to care for him. She lost her job and home due to her “asthma”, was taken in-- out of kindness -- to the home of a church member, and felt – literally -- like she was dying.

Robin was dying.

The night before Christmas, her TOP DOC told her there was nothing more he could do for her, it was obviously an emotionally-induced problem, and that she should see a psychiatrist.  He wouldn't even re-fill the meds that were barely keeping her alive!

Long story short, her church friends took up a major collection and sent her to the best pulmonary hospital in the US (she is from the USA).  In this case the hospital was Jewish National Hospital in Denver, Colorado – an internationally known pulmonary research hospital.

Her friends also found a terrific, local “average” internist who examined her, knew immediately that this was not all in her head, re-filled those prescriptions, and sent some of her own medical notes on to Jewish National Hospital.

Ten days at Jewish National led to her true diagnosis.  She had a rare and very serious autoimmune disorder called Churge-Strauss syndrome – which causes severe inflammation of the blood vessels (vasculitis) in the lungs.  It is a vascular disorder, not a lung disorder. It is also not psychiatric, nor would asthma or bronchitis meds help in the slightest.

They told Robin that in another three months she would have been dead. The pressure in her pulmonary artery was so high that it would have been irreversible and rapidly fatal.

I'm happy -- very happy!!! -- to report that Robin survived her six-year odyssey of physician ignorance and egotism. She is doing wonderfully on the right medications!!! :-) 

In fact, Robin has since re-married and has her son back. He is determined to go to medical school (entering college in about one year) and is planning to go into the field of medical research -- because of the nightmare that his mom went through!!

If you were to ask Robin how she survived her horrific ordeal and what kept her moving forward – she would tell you --

"YOU KNOW WHEN SOMETHING IS WRONG."
 
She would tell all of you –
"DON'T ACCEPT DIAGNOSES THAT DON'T RING TRUE."
 
More than anything (this was a direct quote in our website article) – Robin would TELL YOU --

“Be READY TO DISAGREE WITH THE EXPERTS – AND NEVER ACCEPT “I ”DON'T KNOW" or “IT'S ALL IN YOUR HEAD” as an answer!”

Vincent Marcus – you’re going to have to fight this demon like Robin Akbar fought hers.  I’m going to PM you in a short while, but for now – do nothing  drastic and forget about trying to make plans! The depression won't allow you to think logically.

Don't stop the Klonopin on your own -- absolutely don't go cold turkey.  You need medical guidance from your doc about that -- if you want to stop the Klonopin.

This awful depression is temporary, and – I think I’ve written this here before – a wild libido is NORMAL in a young man!!!  The human species wouldn’t survive without it! 

The "problem" with your libido is that you have to constantly fight it because of POIS.

You men need to get the research started – the real, basic, scientific research!  It’s up to you.

I don’t want to get your hopes up. But – there is a chance – a very, very small -- but possible chance – that NORD will be doing a second grant cycle around July or August.  We do this only when there are a few other funds that have reached the minimum goal.

Keep that in mind – and keep your eyes on the prize! Even if NORD doesn't issue a second grant cycle in July/August -- act as if it's a done deal anyway!

POIS is still a complete mystery. There are no POIS experts. There is no major research that I'm aware of.  Like all other groups with rare disorders -- YOU are going to have to make the research happen. 

Money (aka funding) is needed.  Sell your stuff on Ebay, do another reddit-type campaign, donate $10/month automatically (or more!). 

All of you are responsible and you can do it!

Stef 

 





 

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Offline Vincent M

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16086 on: 17/04/2012 00:23:33 »
Thank you for the kind words everyone. I had only taken the klonopin for two months since I needed it to go to work. I didn't notice any negative effects from klonopin, in fact, I only noticed positive effects, but I now believe the pain-killing effect of the drug enabled me to work past my body's limits thus potentially contributing to my now damaged knees. I stopped taking the effexor after I noticed all the damage it was causing to my body and the same with betaine hcl. I now realize that POIS has weakened my body in a way that makes me abnormally susceptible to the side effects most synthetic drugs, however I do just fine with herbals and antihistamines. The pain in my knees is what scares me the most and is the thing that is driving my current despair and desperation. I don't think I could lose my ability to walk and still stay sane.

In any case the knee pain hasn't been getting worse so I believe I still have months, maybe years to decide what my decision will be.

John21. Niacin, garlic, and fenugreek are all very effective for me and I still take fenugreek every day, but this new knee pain doesn't respond enough to them. I've put a great deal of effort into attempting chastity previously and still failed so I doubt there's anything new you could tell me, but I'll welcome any tips you may have for me. I achieved 5 months without masturbating years ago, but I only was able to do it with a vegan diet, a very cold house with bad heating, driving to college classes most days, and this sheer will power consisting of the need to survive. I not only avoided all sexual images, but also television, videogames and all other electronic entertainment. However my strength has decreased a lot since then and along with the loss of my energy and cognitive function I have also lost my will power.
« Last Edit: 17/04/2012 00:41:49 by Vincent Marcus »
Taking fenugreek+tea/garlic, saw palmetto, huperzine, niacin, boswellia, and nutmeg.

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16087 on: 17/04/2012 01:46:19 »
BEAUTIFUL post, nordnurse!

Thank you very much.

demo

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16088 on: 17/04/2012 01:46:50 »
VINCENT MARCUS, best wishes!!!!!!!!!!!!!!!!!!!!!!!

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Offline Stef

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16089 on: 17/04/2012 01:50:38 »
Thank you for the kind words everyone. I had only taken the klonopin for two months since I needed it to go to work. I didn't notice any negative effects from klonopin, in fact, I only noticed positive effects, but I now believe the pain-killing effect of the drug enabled me to work past my body's limits thus potentially contributing to my now damaged knees. I stopped taking the effexor after I noticed all the damage it was causing to my body and the same with betaine hcl. I now realize that POIS has weakened my body in a way that makes me abnormally susceptible to the side effects most synthetic drugs, however I do just fine with herbals and antihistamines. The pain in my knees is what scares me the most and is the thing that is driving my current despair and desperation. I don't think I could lose my ability to walk and still stay sane.

In any case the knee pain hasn't been getting worse so I believe I still have months, maybe years to decide what my decision will be.

John21. Niacin, garlic, and fenugreek are all very effective for me and I still take fenugreek every day, but this new knee pain doesn't respond enough to them. I've put a great deal of effort into attempting chastity previously and still failed so I doubt there's anything new you could tell me, but I'll welcome any tips you may have for me. I achieved 5 months without masturbating years ago, but I only was able to do it with a vegan diet, a very cold house with bad heating, driving to college classes most days, and this sheer will power consisting of the need to survive. I not only avoided all sexual images, but also television, videogames and all other electronic entertainment. However my strength has decreased a lot since then and along with the loss of my energy and cognitive function I have also lost my will power.

Vincent Marcus (and everyone else) --

I keep meaning to say this as a general statement, and have finally remembered to do so --

Try not to assume that every symptom is related to POIS.

The knee pain may be independent of POIS, and needs to be fully evaluated by a good physician (orthopedic or rheumatologist). You don't need a "POIS expert" for severe knee pain (or even mild knee pain).

Your doc needs to come up either with a solution to this knee pain -- or a referral to knee specialist (NOT A REFERRAL TO A PSYCHIATRIST!!!!!).



Stef

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Offline POISon

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16090 on: 17/04/2012 02:45:49 »
Hey Vincent Marcus I usually don't recommend people to get off of anti-depressants even though they have done nothing good for me. I have been on Effexor and that is the only antidepressant(tried 7 to see if they'd actually do anything) besides Paxil's  anhedonia effect that I felt anything and it was a horrible experience!. I felt initially a little more energetic and outgoing,but then I started experiencing horrible side effects.I experienced intense agitation and rage,something I had never experienced before. That drug made me highly impulsive and overreact to everything.Trust me I know . I put two loaded 22 rifles and a shotgun to my head while on that drug and came very close to pulling the triggers of these firearms with the safeties off and killing myself.I've never felt mania before until I was on  Effexor and I've never taken any steps even close to killing myself before this drug or since I've been off it over 10 years ago,and I've experienced a lot worse that what I was experiencing at the time.I would talk to your psychiatrist about other options if you start feeling like you need to take drastic measures(ie castrating yourself).Effexor from what I have read has been known to create strong bipolar symptoms in certain people who never even manifested  biploar symptoms before.It also from at least my experience brutally hard o get off of because of the discontinuation syndrome.I had the worst(negligent) psychiatrist as he kept upping the dose when I told him I was experience horrible  symptoms which were related to Effexor, and that's when I nearly killed myself.Hopefully you have a competent psychiatrist who can adjust your dose or help you get off Effexor altogether.

Hang in there buddy we are all going through this together. Your'e still young with you're whole life ahead of you, and at least you have this forum with supportive people who understand what your going through with Pois since we all are going through it together.I wish I had this forum when I was younger it would have made things a lot easier knowing I wasn't going through this alone and there are supplements I can take to reduce my symptoms.
« Last Edit: 17/04/2012 02:52:38 by POISon »

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Offline Vincent M

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16091 on: 17/04/2012 06:16:10 »
Thanks for the advice. I'll keep it in mind.
Taking fenugreek+tea/garlic, saw palmetto, huperzine, niacin, boswellia, and nutmeg.

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16092 on: 17/04/2012 06:40:50 »
But not sex!

(hee hee)

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16093 on: 17/04/2012 06:44:08 »

Try not to assume that every symptom is related to POIS.


Excellent point, Stef. Thanks!

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16094 on: 17/04/2012 06:45:41 »

Try not to assume that every symptom is related to POIS.


Excellent point, Stef. Thanks!

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16095 on: 17/04/2012 06:48:02 »
Or to have sex without ejaculation, for those men who can do it (heroes for me). :)

I really wonder if they can, B_Jim?

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Offline nathan123

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16096 on: 17/04/2012 08:06:05 »
Hi finally i got xantinol nicotinate tablet in my area. One tablet is 150mg. How many tablets i require to take. At what time . And in empty stomach or with food. Please help. Further yesterday i told that i was refered  by my physician to a psychologist. I met him yesterday. After reading the case reports of pois and this forum he advised me to purchase and listen dialy an hypnosis mp3 called "allergy free". He shown me many cases where auto immune disease, allergy to pollen/sea foods resolved after listening to this hyponsis mp3 for 15 to 20 days daily once. Further he mentioned that if pois is because of semen allergy, auto immune disease it will be cured in this mp3. I want to share this mp3 here. So that everyone can try it. As per  purchase agreement with the online vendor, i can download max of 5times within 5 days from their website and ishould not share download link elsewhere or upload mp3 in any website/forum and if did it wil lead to violation of copyright. So i wil send the download link to any one of you (may be moderator or senior member) in private message and they can download and share the mp3 directly in this forum. Further 5 years back i was suffer from asthama. At that time  i used hypnosis tracks designed for asthama and is also cured 100% in just one month
« Last Edit: 17/04/2012 08:18:12 by nathan123 »

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Offline Vincent M

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16097 on: 17/04/2012 13:46:45 »
I know that the knee pain is caused by POIS, because one time I performed an experiment in which I thought exercising immediately after I ejaculated would somehow ease my symptoms, but instead what happened is I developed a very gruesome feeling of pain in both areas of my knees that felt as if whatever tendons or ligaments in that area or I guess connective tissues were beginning to tear. It terrified me so much that ever since then I made sure I got at least 1 to 2 hrs bed rest after every ejaculation. Within a few days my knees were back to normal. This is the same feeling I get in my knees now all the time, but to a somewhat lesser degree.

Before and after that experiment, which was during a time I had no treatments available, every time I ejaculated and for some reason had to walk perhaps to do some chore I remember my knees would always hurt, but not quite as badly as they do now. When I found the treatments from this forum my knee pain went away completely.

Now not only has my knee pain returned despite continuing the same treatement regimen, but all of my POIS symptoms have gotten worse as well. It's possible that the effexor, the betaine hcl, and the klonopin had something to do with this worsening of my symptoms or it's possible that my POIS is getting worse by itself over time.

I will mention the knee pain to my doctor, but I'm sure he won't find anything even if he orders an MRI, because I have the same kind of pain in my back from POIS and it is still there despite going to doctors about it and getting an MRI and X-Ray that showed nothing. I'm pretty sure the damage to my knees is connective tissue damage like in my back, which doesn't show up on tests. I know my back pain is from POIS too, because when I was at college and accidently had an ejaculation before I had a class the pain in my upper back from sitting in a chair was excruciating. It felt like whichever muscles or ligaments that were attached to my spine were being torn away from my spine just by sitting in a chair. If I managed to go a week without an ejaculation I would have no back pain at all.

I do agree that it is a good thing to do to think carefully about whether a symptom is caused by POIS or not so as to treat it properly.
« Last Edit: 17/04/2012 14:08:47 by Vincent Marcus »
Taking fenugreek+tea/garlic, saw palmetto, huperzine, niacin, boswellia, and nutmeg.

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Offline nathan123

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16098 on: 17/04/2012 17:14:48 »
Hi, 

As per my doctor suggestion, (one of the experiment for POIS by My doctor ) Today, I listen for the first time "Hypnosis MP3 for allergy cure".  I wanted to listen this under worst POIS condition and wanted to know how my body reacts to it.  So, before 8 hours, I had  "O" for two times in hour and after 8 hours of "O", my POIS condition was worst and all the nerves in my head are blasting.  At this time, I listen the hypnotic track for allergy cure.  This session is about 1 hour and require to either lay down on the bed or sitting in chair with comfortable and our eyes should be closed through out the session.  After end of the session, when I opened my eyes, my head was calm and I can say 50 to 60% of POIS symptoms (both physical and Mental) are relieved in just one hour.  Now I am feeling like I am in 4 th or 5th day of POIS. Today, I am not used any other remedies like Garlic, Fenugreek, B.complex tablet, Niacin. Today I bought Niacin tablet after searching from long days in my area and I require your help about the dosage and schedule of taking it.  Now, One thing is sured for me know that this Hypnosis track can be used for recover from POIS symptoms quickly.  Further, the main benefit as per given in the website where I have purchased this  is it will remove Allergy, auto Immune diseases, Over Sensitivity of the body in just 20 to 30 days.  We require to listen this daily once preferably when we going to bed at night.  Presently, I am confident that if POIS is because of Allergic to Semen / Oversensitivity of the body / Auto immune disease there will be a solution in this.

From my purchase account, the Mp3 track can be downloaded still 2 to 3 times.  I just send the link to Daveman in private message.  After downloading from website, it is left to him how to share the mp3 track to all our forum members.  It is my request to all of you try this.  Earlier I have tried many treatments, but none of them worked for me (other than garlic, B.complex tablet).  But, after experienced for the first time, i have the good faith in it for solving the problem if POIS is a Allergy / Oversensitivity / related to auto immune disease. 

Thanking you,

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Offline Vasian1980

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16099 on: 17/04/2012 18:27:42 »
I am sorry, for my PROMT. At me symptoms are shown for the morning even after strong to excitement without the ending.
And everything began 2 years ago after quinsy which developed within 1 hour, after treatment Asthenic conditions started to appear, there was a confusion of thought and to it to everything fears and panic attacks increased.