Post Orgasmic Illness Syndrome (POIS)

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Offline kurtosis

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16150 on: 20/04/2012 22:09:56 »
Good Night people,
At first I want to ask sorry for my bad english... I am brasilian.

Yesterday I discover this Forum. You couldn't Know my happiness after that. I'm suffering about POIS about five years. When start I stay a lot of time in the internet looking for what could be because all the doctors said that what I have doesn't exist. And now I have the certainty that I'm not alone in the world.

I read some post in the Forum about what can be used to improve our POIS but I don't know if you are in a best ou worst position than me. My POIS start five years ago, when I was 20 years. My two first years I couldn't live. I stay all the time in my home and I always feel terrible and with the sensation I couldn't control my acts. Because the doctors said that my disease doesn't exist, I didn't explain my problem to the doctors. In some times even I think my problem must be other. So I went in a lot of throat specialistm because I have always sore throat because of POIS. And then, after I use a lot of anti-allergics, I found one that change my life. My POIS didn't over, I cotinue with a lot of sore throat, but the medicinal improve a lot my POIS. I ejaculate at the night, I use the medician, I have the symptoms of POSI, but in the next morning, after I get up, I have almost no symptoms.

The name the medicinal in Brasil is Nasonex (I don't Know if in other countries have the same name). The active substance is Mometasona.

I don't know if my improve in symptons is bigger than yours with other medicinal, but I think you must try.

Other thing: I want try other things with nasonex, because I always have sore throat, what do you think is the best you tried? I like the ideia of patches of testorene because it seem to me two tottally differents ways of improve symtoms e may be adittionals... What do you think?

Other time: Sorry for my english...
Hi, Did you have chronic sinusitis? Have you had allergy testing?
I have  a lot of allergies and nasonex is just one of several sinus medications I've tried. None has brought about total relief but they do make a difference.

But your allergis has relations with POIS? I had a little cronic sinusis but I only have symptoms after ejaculate. And I had never noticed nothing before POIS. I think some noise allergy and cronic sinusis has relations with POIS .. Allergies I just have some little ones...
I think POIS relates to allergies rather than the other way around. I believe POIS is an allergic reaction and just one of many that I experience. One of which is chronic sinusitis. I'm not sure why I suffer from these. I have some theories.

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Offline GoingCrazy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16151 on: 21/04/2012 05:51:14 »
Hey guys, I don't want to sound like I found the cure for POIS (possibly), but I just wanted to let people know what has been helping me enormously the past couple of weeks.  I can say now that I have completely not suffered from POIS my past 3 sessions.  My last "session" :D  I O'd 7 times to see if I can feel the bad affects of POIS, but I have failed to feel any except peace, calmness and relaxation...  Something that I have not felt within the past 6 years.  This treatment has definitely been a breakthrough for me, I am not guaranteeing that it will work for anybody else, but I will still talk about it and am definitely not going to keep it in the dark.  I will explain what I have been doing the past couple of months to give you an overview of what I think has possibly cured my POIS.

About a few months ago I started taking claritin (just keep reading) 24 hour every day before I went to bed.  This has helped my POIS, but did not cure it, as I still definitely felt POIS, but to a tolerable degree.  It did help me sleep, about 50% better, but I obviously still didn't feel normal.  About a month into my treatment, I added vitamin C to the mix.  I started off taking 1500 milligrams each morning, but I later changed the dosage.  After taking Vitamin C (about 3 weeks into it), I noticed a strange headache that actually wasn't in my head, like it actually did not exist.  I used to always have a single ache or pressure in my head that would move around, day 1 of pois or day 9, it was always there.  One day while on this vitamin C treatment, about a month into the process, the pressure in my head suddenly vanished.  But this was not what I actually think cured my POIS  (I know, very very skeptical statement there as POIS is incurable right?)  My headache was gone, but I still had trouble sleeping, and the other psychological symptoms were still there.  I still had sort of a restless anxiety, or POIS anxiety due to nothing except this POIS disease.  Not a thought problem.  An "imbalance" problem.  I can say day by day my other symptoms of POIS have gotten a little bit better.  So I thought to myself, why is vitamin C working for you?  What does it do? Answering: boost the immune system.  So then I went on and on about how how I could possibly have some sort of disease or something in my brain...lol...that doesn't seem like a untruthful statement now.  After researching vitamin C and discovering that it has been known as a bactericide, fungicide, etc.  my rediculous self started researching about lyme disease because that is always in the back of my mind... thinking that I am infected with a disease that I don't even know.  So I decided to get rid of the claritin and keep the vitamin C, but add something to it.  That something is Sea salt.  My rediculous self decided to treat my rediculous self for "lyme disease" (POIS) with Vitamin C and Sea Salt...(The one-two punch for lyme = the one-two punch for POIS?)  I am not saying that I have lyme disease, I am saying that the same treatment people use for Lyme disease could possibly be the same thing to fight or even possibly cure my POIS.  Go to this webpage.

http://www.lymephotos.com/

It says to take about 3 grams of sea salt and 3,000 mg of vitamin C per dose, 4 doses every day.  I am having success 1/2 teaspoon of sea salt and 1,000 mg vitamin C per dose, twice a day.  The reason why I think that this has possibly cured my POIS is because all of my psychological symptoms are gone.  I felt this stuff get to work the 1st day I used it.  I also sleep sooo well without taking any sleeping pills or drugs or anything, literally the first day I used it I slept very well.  Like Leo said how he feels symptoms while playing video games, I used to have that but now that is totally gone.  I used to have a bad reaction to sugary foods, yesterday I had a whole BAG of starburst and felt literally great.  I also have not felt POIS after 7 O's (in one session), no psychological problems or anything.  I O'd those seven times yesterday night, stayed up until 2:30 am because I wanted to and today I had to work at 11:30 and felt completely normal and happy (Day 1 POIS, especially after O'ing 7 times used to be such a horrible experience)  Every single day I wake up feeling better and better.  I actually don't know about that statement because I don't think I can actually feel any better.

AGAIN, this is just what has been helping me and I am not saying it will work for anybody here on this forum.  I don't want to get anybody's hopes up about this and finding out it doesn't work for them.  I can tell you personally that I am known for speaking like this.  All of our bodies are different.  I am keeping my fingers cross and hoping that it holds up.  GoingCrazy out
« Last Edit: 21/04/2012 05:57:02 by GoingCrazy »

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Offline GoingCrazy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16152 on: 21/04/2012 08:03:00 »
I forgot to mention, if anybody does decide to do this, be sure to drink plenty of water.

P.S.  I just O'd again and no symptoms.  I did my 1/2 tsp sea salt with vitamin C protocol and didn't drink enough water.  I literally felt the salt in my saliva.  At least drink 3 glasses of water afterwards because it could really freak your body out.
« Last Edit: 21/04/2012 08:28:33 by GoingCrazy »

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Offline kurtosis

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16153 on: 21/04/2012 10:57:46 »
Hey guys, I don't want to sound like I found the cure for POIS (possibly), but I just wanted to let people know what has been helping me enormously the past couple of weeks.  I can say now that I have completely not suffered from POIS my past 3 sessions.  My last "session" :D  I O'd 7 times to see if I can feel the bad affects of POIS, but I have failed to feel any except peace, calmness and relaxation...  Something that I have not felt within the past 6 years.  This treatment has definitely been a breakthrough for me, I am not guaranteeing that it will work for anybody else, but I will still talk about it and am definitely not going to keep it in the dark.  I will explain what I have been doing the past couple of months to give you an overview of what I think has possibly cured my POIS.

About a few months ago I started taking claritin (just keep reading) 24 hour every day before I went to bed.  This has helped my POIS, but did not cure it, as I still definitely felt POIS, but to a tolerable degree.  It did help me sleep, about 50% better, but I obviously still didn't feel normal.  About a month into my treatment, I added vitamin C to the mix.  I started off taking 1500 milligrams each morning, but I later changed the dosage.  After taking Vitamin C (about 3 weeks into it), I noticed a strange headache that actually wasn't in my head, like it actually did not exist.  I used to always have a single ache or pressure in my head that would move around, day 1 of pois or day 9, it was always there.  One day while on this vitamin C treatment, about a month into the process, the pressure in my head suddenly vanished.  But this was not what I actually think cured my POIS  (I know, very very skeptical statement there as POIS is incurable right?)  My headache was gone, but I still had trouble sleeping, and the other psychological symptoms were still there.  I still had sort of a restless anxiety, or POIS anxiety due to nothing except this POIS disease.  Not a thought problem.  An "imbalance" problem.  I can say day by day my other symptoms of POIS have gotten a little bit better.  So I thought to myself, why is vitamin C working for you?  What does it do? Answering: boost the immune system.  So then I went on and on about how how I could possibly have some sort of disease or something in my brain...lol...that doesn't seem like a untruthful statement now.  After researching vitamin C and discovering that it has been known as a bactericide, fungicide, etc.  my rediculous self started researching about lyme disease because that is always in the back of my mind... thinking that I am infected with a disease that I don't even know.  So I decided to get rid of the claritin and keep the vitamin C, but add something to it.  That something is Sea salt.  My rediculous self decided to treat my rediculous self for "lyme disease" (POIS) with Vitamin C and Sea Salt...(The one-two punch for lyme = the one-two punch for POIS?)  I am not saying that I have lyme disease, I am saying that the same treatment people use for Lyme disease could possibly be the same thing to fight or even possibly cure my POIS.  Go to this webpage.

http://www.lymephotos.com/

It says to take about 3 grams of sea salt and 3,000 mg of vitamin C per dose, 4 doses every day.  I am having success 1/2 teaspoon of sea salt and 1,000 mg vitamin C per dose, twice a day.  The reason why I think that this has possibly cured my POIS is because all of my psychological symptoms are gone.  I felt this stuff get to work the 1st day I used it.  I also sleep sooo well without taking any sleeping pills or drugs or anything, literally the first day I used it I slept very well.  Like Leo said how he feels symptoms while playing video games, I used to have that but now that is totally gone.  I used to have a bad reaction to sugary foods, yesterday I had a whole BAG of starburst and felt literally great.  I also have not felt POIS after 7 O's (in one session), no psychological problems or anything.  I O'd those seven times yesterday night, stayed up until 2:30 am because I wanted to and today I had to work at 11:30 and felt completely normal and happy (Day 1 POIS, especially after O'ing 7 times used to be such a horrible experience)  Every single day I wake up feeling better and better.  I actually don't know about that statement because I don't think I can actually feel any better.

AGAIN, this is just what has been helping me and I am not saying it will work for anybody here on this forum.  I don't want to get anybody's hopes up about this and finding out it doesn't work for them.  I can tell you personally that I am known for speaking like this.  All of our bodies are different.  I am keeping my fingers cross and hoping that it holds up.  GoingCrazy out
I can well believe it. Zinc, b6, electrolytes & vitamin C have helped me get over much of my POIS symptoms. I think JFerr has also had some success with these supplements also. Oddly enough, I found that the "power c" vitamin water was a good stop-gap when I was on holidays.

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Offline observercenter

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16154 on: 21/04/2012 11:35:01 »
I forgot to mention, if anybody does decide to do this, be sure to drink plenty of water.

P.S.  I just O'd again and no symptoms.  I did my 1/2 tsp sea salt with vitamin C protocol and didn't drink enough water.  I literally felt the salt in my saliva.  At least drink 3 glasses of water afterwards because it could really freak your body out.

You say very interesting things, GoingCrazy. I agree with you on the effect of sugary foods, they literally crippled my mind when i was on POIS(And shockingly, they could did it even 8-9 days after an ejaculation when i was feeling without POIS!!). I think i was obsessed with sugar foods after i discovered this forum and began to realize the devastating effect they were having on my mind. But with niacin this does not matter anymore. It doesnīt matter if i eat tons of sugar after an O., my mind would be okay, so maybe your treatment with Vitamin C and Sea Salt is blocking the POIS from occur in a similar fashion.

On the other hand, Do you really think that you could have Lyme disease? - But if that were the case, would your treatment help to get rid of this condition once for all or are you going to continue to take it every day?

 I have taken a look on this condition, which create symptoms that are very similar to POIS and i have found this:

http://www.healingwell.com/community/default.aspx?f=30&m=1255322 [nofollow] - One guy suffering from Lyme disease strongly recommends the use of niacin.

My conclusion from what iīve read(take it with a grain of salt) is that these conditions are creating an auto-inmune response from the organism, and the crippling effects are very similar, so maybe they act in a similar way (POIS, lyme, candida and so on), though the etiology is completely different. Just food for thought ^^.

Edit: Links about sea salt being an anti-histamine :

http://www.health-benefit-of-water.com/sea-salt.html#axzz1sfyfSSd8 [nofollow]

Edit 2: Well, this link is very interesting, as it talks about garlic, blueberries, fruits, vegetables, sweet potatoes, vitamin C, sea salt, essential fatty acids like Omega-3 ...as a method to combat allergies(anti-inflammatory activity, anti-histamine reaction). Probably this has been talked about, but i find it interesting as all of those remedies are effective against POIS symptoms.

http://www.mcvitamins.com/allergies.htm [nofollow]
« Last Edit: 21/04/2012 15:57:16 by observercenter »

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Offline meteo74

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16155 on: 21/04/2012 15:45:16 »
Hi GoingCrazy

1500mg or 3000mg of vitamine C per dose,it is so big ratio,isn't it ?.
have you ask doctors if it is safe to take this amount of vitamine c?
in the web I found that the safe amount of daily v. c is 100mg!
and I wanted to know how long (year)did you suffer from pois?
can I add the sea solt to the juice?
thank you..

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Offline kurtosis

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16156 on: 21/04/2012 16:47:58 »
Hi GoingCrazy

1500mg or 3000mg of vitamine C per dose,it is so big ratio,isn't it ?.
have you ask doctors if it is safe to take this amount of vitamine c?
in the web I found that the safe amount of daily v. c is 100mg!
and I wanted to know how long (year)did you suffer from pois?
can I add the sea solt to the juice?
thank you..
That's an Recommend Daily Allowance. That does not mean that it's "safe" or that more than that is not "safe". Actually, all it really means is that if your intake is less than that over a prolonged period you will develop scurvy, in the opinion of a committee of doctor's, health professional (and lobbyists ;-)). That's not the same as setting a safe upper limit on the consumption of vitamin C. There's also the popular "kidney stones" myth. This hasn't been verified by large sample study, in women anyway. See http://jasn.asnjournals.org/content/10/4/840.abstract

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Offline Vasian1980

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16157 on: 21/04/2012 18:47:06 »
Someone has candida?

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Offline janiv

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16158 on: 21/04/2012 21:06:37 »
Very interesting, well done GoingCrazy ! Hope you've found your cure to your POIS.

From my experience with POIS, I remember that whenever I was going to the beach while I was in POIS state, that environment always helped me to feel better mentaly and physically.
I tried to figure why, and I thought it is because the salty water, the sea water that may have the positive affect on POIS.
I do not know... but there might be something with salt.

Anyways, your results are encouraging, as you mentioned - the affect is immidiate,  Therefore, soon we'll see if there are more people who find that treatment succesful.

Again,  to whom that is willing to try it, please be cautious !

Good Luck !

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Offline Vincent M

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16159 on: 21/04/2012 22:31:04 »
I've actually been feeling better the past couple days as I've added some other treatments to my regimen and perhaps the couple weeks I spent off my feet helped as well. Last night I took 300mg of niacin, had a flush, had a good night's sleep and today I was able to do some hard exercise even a bit of sprinting. The hard exercise always lessens my symptoms if I'm in good enough shape to do it and so does getting outside in the sun and breathing fresh air. It's starting to look like I may be able to stabilize my POIS with my current treatment regimen, but I did still have some very minor knee pain later on today after my body had cooled down so I'm not sure if I'm out of the woods yet. Otherwise I'm feeling stable as of this moment.

The other treatments I've added include vitamin D3, ground tumeric powder, home grown cayenne peppers, honey, and SLIT every night with fresh semen slightly diluted with water. Also when I masturbate I now do it to women I have an actual love interest in instead of watching porn so that at the time of orgasm I'm feeling as much love as possible, which I hope may somehow reduce any stress that may creep in just after ejaculation when my body is most vulnerable to it. In addition I've been snorting salt water to clear my sinuses before I exercise and it seems to help me breath easier and after exercising around 3pm today I took a one hour nap combined with meditation, which I intend to continue every day from now on. At bedtime to help myself fall asleep I allow my mind to enter a fantasy world of my creation instead of trying to clear my mind completely as I've attempted in the past. Entering this fantasy world works well to reach sleep quickly and as I've taken up writing I've now begun writing a story based on elements of my fantasy world. Working on this story helps me achieve some sense of accomplishment and is a better use of my time than playing videogames and watching tv.

It's too early to tell what new treatments are actually helping me, but certainly either some of them are helping or the time I spent off my feet helped and just the time I spent healing from the damage that I now believe was due to either the effexor, betain hcl, or klonopin.

Oh I forgot I also keep my body as warm as possible at all times especially at the time of orgasm, which involves wearing extra warm clothing. And also the summer weather seems to have helped me. So many variables...
« Last Edit: 21/04/2012 22:39:50 by Vincent Marcus »
Taking fenugreek+tea/garlic, saw palmetto, huperzine, niacin, boswellia, and nutmeg.

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16160 on: 22/04/2012 02:53:03 »

Please do not try any of the listed medications on yourself without consulting with your doctor first. Eglonil is a med with huge side effects, it is really dangerous to take it without doctor's prescription.


Thank you for the caveats, Victor!

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Offline jferr

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16161 on: 22/04/2012 04:43:29 »
Very interesting, GoingCrazy. When do you take the sea salt?

Guys, I often have a burning sensation in my head which seems to coincide with a sort of dizziness and weakness. Does anyone else have these symptoms?

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Offline doUhaveLupus

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16162 on: 22/04/2012 05:44:53 »
Hi all,

My interest in this topic is because I have been scheduling Friday night sex since my late 20's (mid 1980's) for reasons aptly descibed by POIS. However, I have been treating myself instead for mild Lupus, with some success.

Lupus in men is very rare - 1 in 10,000 or 0.01% of men have the condition. I want to raise the issue here because many men with Lupus do not know they have the condition, and some of the people posing on this forum topic seem to be showing Lupus like symptoms.

I actually started taking mild multivitamins during adolesence (early 1970s), and stronger ones in late teens for fatigue that I thought was normal.

At 19 I was seriously traumatised by a malicuos diagnisis of schizophrenia. When I refused treatment I was  unlawfully treated as an involuntary patient. This inflamed my undiagnosed (ie. at that time) Lupus condition. My Aunt, who had overcome severe arthritis  with daily celery juice and diet(she was told she would be permanently crippled by age 25 - never happened), as well as my own success fighting fatigue with multivitamins, inspired me to try Abram Hoffer's vitamin remedies. (NB: Hoffer has since been discredited over his theories regarding Pellegra and Polluria in the very book I was reading).

In 1983 I started experimenting with B1, B3, B6 @ 100mg - 500mg daily doses, and C @ 1-3g daily doses (NB: not all at the same time). I remember after one week on just B3's I felt distinclty "queer" (ie as in "gay" but not in a overtly sexual way) and like being high on some kind of fantastic wonderful drug. It certainly had a positive effect on my attitude and creativity. By day, I began acting out really strong self appreciating fantasies. By night, my dreams were in vivid bright technicolour, and I had some sensational orgasms, almost nightly. My point being that there I noticed a strong wierd connection between B3 and what I would call my psycho-sexual responses. However this artificial "gay" state was too strange for me and I discontinued when I started getting spontanious nosebleeds, but there were never any lingering side effects.

When the issue arose, the shrinks refused/disagreed with my taking B3. They were absolutely determined to treat me for a schizophrenic condition I did not have, and refuse my self treatment for a condition I did have. (30 years on and I still wonder what kind of psychopaths are these people to do that to a 19 year old?)

After that my undiagnosed Lupus and idiot psychiatrist torturers slowly tried to get the upper hand, in spite of continuing strong multivitamins. Finally, in 1990 (after losing the best 10 years of my life) I started a diet/vitamin treatment plan for Lupus suggested by Dr Chris Reading (Sydney, now retired), including up to 300mg B3 daily. (Chris Reading was at the time fighting deregistration by the AMA over his diet/vitamin treatments. Fortuanetly he won.)

After about 3 months I found I could reduce this treatment down to just one daily B-Complex containing at least 100mg B3, plus a full cover of the other B's (100mg), and have never really looked back, in spite of a few Lupus flares each year.

I've been on this simple treatment for over 20 years now, however sex still remains a scheduled weekly event because until recently I have accepted my POIS as untreatable.

I want to raise awareness of Lupus in Men here, not only because Lupus in Men is so rare, but also because Lupus is extremely hard to diagnose, and it seems POIS may be an extremely useful diagnostic indicator of Lupus in Men.

It would be great to hear from any men who believe they have both Lupus and POIS.

 :)
« Last Edit: 23/04/2012 22:37:39 by doUhaveLupus »

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Offline John21

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16163 on: 22/04/2012 11:34:23 »
GC, that is fascinating! Hopefully it keeps working. I had bought in to the "we have way too much salt in our diets" notion and have been on a relatively low salt diet. It is interesting that some people claim a high salt diet is not the problem, but rather a high table-salt (processed) diet. You make me want to try salt/C for a short stint, should be fairy obvious if it is doing something beneficial.

Personally, for the record I am no longer taking dandelion. I was having tiredness reaction which may have been due to elevated lithium levels. Apparently dandelion can reduce the body's ability to rid itself of excess lithium, that is why it is not advised to take dandelion when on lithium. I was consuming a very low level (much less than recommended), so I didn't expect problems, but if it is going to mess with my system I can't continue with it. For those who don't know I noticed an increase in mental clairity while consuming diuretics, such as dandelion. Some diuretics can deplete your potassium but dandelion is not supposed to do this.

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Offline Vasian1980

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16164 on: 22/04/2012 15:45:03 »
After receiving the vitamin C and sea salt, I felt a wave at a particular drowsiness and tachycardia!

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16165 on: 22/04/2012 21:01:12 »

AGAIN, this is just what has been helping me and I am not saying it will work for anybody here on this forum.  I don't want to get anybody's hopes up about this and finding out it doesn't work for them.  I can tell you personally that I am known for speaking like this.  All of our bodies are different.  I am keeping my fingers cross and hoping that it holds up.  GoingCrazy out


GoingCrazy, thank you very much for reporting CAUTION and warnings when describing experiments and cures and treatments.

One man's cure can be another man's nightmare.

We're all different; let's respect those differences. Thank you for doing that, GoingCrazy.


« Last Edit: 22/04/2012 21:11:04 by demografx »

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Offline GoingCrazy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16166 on: 23/04/2012 00:26:54 »


On the other hand, Do you really think that you could have Lyme disease? - But if that were the case, would your treatment help to get rid of this condition once for all or are you going to continue to take it every day?


I am almost certain that I don't have lyme disease, I've tested negative twice.  I am just saying that the "natural" treatment for lyme can at least help with this disease.  I am going to continue to take the vitamin C with sea salt twice per day, 1000 mg vitamin C combined with 1/2 teaspoon of salt--- that dosage twice per day, one in the morning and one at night.  I am not saying that I even need to take any more of it right now, but why stop?  I feel great and yet it is probably too early to figure out if this is the cure or not.  I want to continue this stuff for at least another month or two before I get off of it and have a couple orgasms.  But right now I feel great, a definite increase in mental clarity, feeling more "in" the moment and just great all-around.
Hi GoingCrazy

1500mg or 3000mg of vitamine C per dose,it is so big ratio,isn't it ?.
have you ask doctors if it is safe to take this amount of vitamine c?
in the web I found that the safe amount of daily v. c is 100mg!
and I wanted to know how long (year)did you suffer from pois?
can I add the sea solt to the juice?
thank you..

Both sea salt and vitamin C are water soluble so you can take high amounts without it causing a bad affect on your body, as long as you drink enough water.  The trick might actually be to not drink too much water and than as you feel a little "altered" than go ahead and drink more water.  That is what I was doing the first week.  I literally felt the salt in my saliva like I said before.  I've been suffering from POIS the past 5-6 years.  The way I take the sea salt and vitamin C is use 1/4 of a teaspoon of sea salt and just put all of that on your tongue and than swig it down with a couple of gulps of water, than use another 1/4 teaspoon of sea salt and swig that down with a couple gulps, than the 1,000 mg vitamin C.


Anyways, your results are encouraging, as you mentioned - the affect is immidiate,  Therefore, soon we'll see if there are more people who find that treatment succesful.

Good Luck !

Just so you remember, yes the affect was immediate (you can feel it 15-30 minutes afterwards) but before that I was taking 1500 milligrams of vitamin C per day for about two months (also the claritin but than stopped) and than added the sea salt.  So I am not sure if it will take more time for anybody else here because I was taking the vitamin C for 2 months prior.  But yes, when I added the sea salt I noticed an instant relief.  It feels great to actually sleep at night and feel tired!
Very interesting, GoingCrazy. When do you take the sea salt?



I take it once when I wake up and once when I go to bed.  But you can probably take it more often than that as you'd like, this is just what I did.


----------------------------------------------------------------------------------------------

I've also received a couple of PM's so I've decided to answer them here.

Strangely, I feel a lot more motivated and happy even in day 1 of pois which used to be the worst struggle for me, especially if I have to work on day 1.  Yesterday, day 1, after previously O'ing 3 times  (I should probably stop I know haha), I had the motivation to get up and clean my whole backyard of twigs and giant branches from a storm that happened some time ago.  I actually felt happy, calm and with energy while doing it.  I seriously feel that something in the salt and vit. C is giving me energy and relief.

I've had 4 or 5 sessions since taking vit c and sea salt without POIS.

And I did feel a little "strange" but a good strange after taking the sea salt.  You can tell that your body is not used to it so it reacts. 

Again, I was taking vitamin C for about 3 months, 1500 milligrams per day, once in the morning.  So if somebody just starts vitamin C and sea salt, just remember I was on the C for months prior.  That might have had something to do with it.  (I am repeating myself I know sorry).

I also worked today off of 6 hours of sleep last night, usually I would be mentally down and depressed because of the pois, but it's like all of my fears went away, I can sleep, and I actually felt just a bit "tired" this morning which is a totally normal feeling, the tiredness went away as the day went on and I had none of the pois agony whatsoever. 

Edit:  The kind of Sea Salt I am using isn't your typical table salt.  It is coarse crystals without iodine from spain and I got it at Wal-Mart, the brand is Morton and is says coarse sea salt, "this salt does not supply iodide a necessary nutrient"  Ideal for rubs, roasting and finishing... Sea salt from spain.  Here I can probably find it:

http://morton.elsstore.com/view/product/?id=21219

I am looking forward to here from others results from this treatment if they have decided to do so.
« Last Edit: 23/04/2012 01:10:37 by GoingCrazy »

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Offline GoingCrazy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16167 on: 23/04/2012 00:33:53 »

AGAIN, this is just what has been helping me and I am not saying it will work for anybody here on this forum.  I don't want to get anybody's hopes up about this and finding out it doesn't work for them.  I can tell you personally that I am known for speaking like this.  All of our bodies are different.  I am keeping my fingers cross and hoping that it holds up.  GoingCrazy out


GoingCrazy, thank you very much for reporting CAUTION and warnings when describing experiments and cures and treatments.

One man's cure can be another man's nightmare.

We're all different; let's respect those differences. Thank you for doing that, GoingCrazy.




You're welcome :D

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16168 on: 23/04/2012 03:11:59 »
I had horrible POIS for 30+ years.

"Working" this forum cured me.

You can do the same.

Get involved. Study the resources here. Hard. Experiment safely with the very best medical team you can afford. Most important: Don't just make appointments with your doctor: TAKE CHARGE!
« Last Edit: 23/04/2012 15:09:26 by demografx »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16169 on: 23/04/2012 04:48:06 »
If you post here, you're involved. If you're a silent reader, enjoy the resources!

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Offline kurtosis

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16170 on: 23/04/2012 09:19:30 »
Someone has candida?
Well, we all have candida but perhaps it's a problem for some/all POIS sufferers. Garlic brings relief for both, right?

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Offline John21

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16171 on: 23/04/2012 10:45:05 »
I tried 1/2 Tsp of sea salt / 1500mg C twice yesterday and I didn't feel any different, it did not improve my insomnia, so maybe it's not for me. But it does make sence to me to use sea salt over regular table salt, it's hard not to after reading this:

http://www.celticseasaltblog.com/articles/salt-articles/salt-your-way-to-health/:

EDIT: Maybe I will try this for a duration. It did not help my sleep but I did feel good and was thinking clearly the next day. I think I'll try 1/4tsp with 1000mgC twice daily, this is half of what GC is taking.
« Last Edit: 23/04/2012 21:44:08 by John21 »

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Offline Stef

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16172 on: 23/04/2012 13:55:49 »
Hi All,

I read this post today on another forum that focuses on an entirely different disorder (not POIS). The author is a biochemist (from a major medical institution) who had recently retired with his wife to the Ozarks (a lifelong dream!!) They wanted to retire to a very rural area, get away from all the hub-bub of a large city, have a farm and raise "critters.  "We have cattle, pigs and horse's, goats, as well as the usual collection of dogs and cats, and chickens and ducks."

His rare disease is called "stiff person syndrome" and has NOTHING to do with POIS (don't want to scare anyone!). The disease basically is what the name implies -- it's even worse than that.

Here's his post --

"Invisible Diseases can rob you of your 'self', your ability to cope, your very existence. You feel as though nobody cares or believes you -- you are so desperately trying to get them to understand what is "truly" happening to you. You are 'NOT' just lazy, or lying to them because you just don't 'want to clean your house, or cook, or mow the lawn, or you're just looking for attention."

"It's just the opposite. You can't, not in your wildest dreams make some of these things up. It is just a damn crime -- your body turning against you the way it has! So I am saying this to you all -- you should "NOT" have to be going through this alone, and we need to keep the research going!

I'm asking "all" of you going through these trying times, whether you are living alone, or you just 'feel' like you are, because your 'Significant Other" or family just doesn't "GET IT"-- please contribute! We all are in this together, and TOGETHER WE WILL ALL GET THROUGH THIS."

Cured?... Maybe it WILL happen!!! But feeling just a little better-- for a day, a moment, or before you lay your head down for the night, that is what this is all about ..." So share your strength, hope, despair...everything.  And contribute your money -- every donation for research is a step out of the misery!!"


This group -- not a formal organization but an international forum similar to the SMF and NSF forums -- have already launched their first research grant through NORD. 

***They are severely disabled by this monster called "stiff person syndrome". No one on that forum is gainfully employed to my knowledge.  I don't think they've even had fund raisers -- they just kicked in what they could.

Go for it -- try to get some close friends and loved ones on board!  Sell stuff on Ebay. (My husband is still selling those obscure electrical devices -- six have been posted and six have sold. He's got four more to sell.)  Someone else -- take up the crowd-sourcing theme (like Cc and Mel did with reddit) -- you're all in this together.

Just keep your eyes on the prize -- get the initial research started -- the rest will follow!

 

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16173 on: 23/04/2012 14:48:11 »

Someone has candida?


Well, we all have candida but perhaps it's a problem for some/all POIS sufferers. Garlic brings relief for both, right?


(1) From Quack Watch:
http://www.quackwatch.com/

"Candida

Candida ("Candidiasis hypersensitivity") is another bogus diagnosis whose symptoms are said to be multiple and include fatigue, depression, inability to concentrate, hyperactivity, headaches, skin problems (including hives), abdominal pain and bloating, constipation, diarrhea, respiratory symptoms, and problems of the urinary and reproductive organs. The main promoter of "candidiasis hypersensitivity" has been William G. Crook, M.D., of Jackson, Tennessee, who wrote and published The Yeast Connection. According to Crook, "If a careful checkup doesn't reveal the cause for your symptoms, and your medical history [as described in his book] is typical, it's possible or even probable that your health problems are yeast-connected." To correct these alleged problems, he recommends allergenic extracts, antifungal drugs, vitamin and mineral supplements, and diets that avoid refined carbohydrates, processed foods, and (initially) fruits and milk.

The American Academy of Allergy, Asthma and Immunology regards the concept of candidiasis hypersensitivity as "speculative and unproven" and notes that everyone has some of its supposed symptoms from time to time. The academy has warned that some patients who take the inappropriately prescribed antifungal drugs will suffer side effects and that overuse of these drugs could lead to the development of resistant germs that endanger everyone."
From http://www.quackwatch.org/01QuackeryRelatedTopics/fad.html

(2)"Bogus "Candida" products are prescribed by nonmedical practitioners (e.g., chiropractors, naturopaths, "nutritionists") and maverick medical doctors who may call themselves "clinical ecologists." The latter claim that candidiasis is an underlying cause of "environmental illness" -- an unrecognized medical condition that they postulate to exist."
From National Council Against Health Fraud
http://www.ncahf.org/articles/c-d/candida.html


(3) Candida has been discredited here at our POIS Forum. Click here.

« Last Edit: 23/04/2012 15:53:27 by demografx »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16174 on: 23/04/2012 15:16:53 »

Just keep your eyes on the prize -- get the initial [POIS Medical] research started -- the rest will follow!


THANK YOU, STEF!

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16175 on: 23/04/2012 15:35:32 »
Stef's "...the rest will follow" means that once we have RESPECTABLE AND PROFESSIONAL research conducted on POIS, the rest of the (medical and research) world will sit up and take notice!
« Last Edit: 23/04/2012 16:04:47 by demografx »

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Offline GoingCrazy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16176 on: 23/04/2012 21:30:56 »
I tried 1/2 Tsp of sea salt / 1500mg C twice yesterday and I didn't feel any different, it did not improve my insomnia, so maybe it's not for me. But it does make sence to me to use sea salt over regular table salt, it's hard not to after reading this:

http://www.celticseasaltblog.com/articles/salt-articles/salt-your-way-to-health/:

Maybe you need to give it more time, or maybe the amount for you isn't right.  One day taking it is not really a fair chance.  I weigh 150lbs so just think so maybe 1/8 teaspoon of sea salt per 37.5 lbs you weigh might workFeel free to do what you want but I don't think it would be an "instant" cure for POIS, like I gave vitamin C 2 months prior to introducing sea salt.  Or maybe the treatment might not work for you, I simply don't know and we all might have different things in us that cause pois.  I am kind of dissappointed that it didn't work for you because I feel great.  I stayed up until 5 in the morning and had to work at 11, and I still feel great.  I hope that this helps some people.

P.S.  you mentioned that you didn't feel any different after taking the sea salt and C, but you should feel different just after taking it due to your bodies reaction to it.  Maybe its that reaction that helps.

John this is from that link that you provided. 

"For the great majority of people a low-salt diet does not work. Patients do not feel well when sodium levels are lowered. Their energy level drops and they develop hormonal and immune system imbalances."

Again it was not just sea salt and C that I was taking, maybe it was the claritin vit. C combo that did something too, I simply do not know.

Edit:  I posted this before john21's edit
« Last Edit: 23/04/2012 21:59:06 by GoingCrazy »

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Offline doUhaveLupus

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16177 on: 23/04/2012 21:59:15 »
I tried 1/2 Tsp of sea salt / 1500mg C twice yesterday and I didn't feel any different, it did not improve my insomnia, so maybe it's not for me. But it does make sence to me to use sea salt over regular table salt, it's hard not to after reading this:

newbielink:http://www.celticseasaltblog.com/articles/salt-articles/salt-your-way-to-health/ [nonactive]:

I dont want to belittle the poster, as we all get sucked in by novel treatments until we learn the importance of checking everything fully, however...

1. High salt intake is the fastest way to high blood pressure and ultimately kidney failure. High salt intake cannot possibly improve your health. Salt intake should be reduced, as processed foods in 1st world countries are all full of salt, as well as sugar and vinegar - the big 3 - simply because any food that includes copious amounts of one or more of these will sell like potatoe chips (which contain all three). Hence the American obesity epidemic.

2. High Vit C intake is the fastest way to hardening of the arteries, which can lead to deep vein thrombosis, stroke, as well as high blood pressure and ultimately kidney failure.

I've been investigating dietry based treatments for nearly 30 years, and while some things do work, many, many, many other things do not. Follow the scientific model and do your research properly. Never trust advice from any source, especially a vendor sponsored one, that only talks about benefits or downplays/disregards the risks. Check out the potential dangers and make sure you fully understand them before you embark on any self help treatment. Failure to do so will cost you more than your health, it could kill you both slowly and painfully.

« Last Edit: 23/04/2012 22:11:10 by doUhaveLupus »

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Offline GoingCrazy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16178 on: 23/04/2012 22:07:53 »
I tried 1/2 Tsp of sea salt / 1500mg C twice yesterday and I didn't feel any different, it did not improve my insomnia, so maybe it's not for me. But it does make sence to me to use sea salt over regular table salt, it's hard not to after reading this:

http://www.celticseasaltblog.com/articles/salt-articles/salt-your-way-to-health/:

I dont want to belittle the poster, as we all get sucked in by novel treatments until we learn the importance of checking everything fully, however...

1. High salt intake is the fastest way to high blood pressure and ultimately kidney failure. High salt intake cannot possibly improve your health. Salt intake should be reduced, as processed foods in 1st world countries are all full of salt, as well as sugar and vinegar - the big 3 - simply because any food that includes copious amounts of one or more of these will sell like potatoe chips (which contain all three). Hence the American obesity epidemic.

2. High Vit C intake is the fastest way to hardening of the arteries, which can lead to deep vein thrombosis, stroke, as well as high blood pressure and ultimately kidney failure.

I've been investigating dietry based treatments for nearly 30 years, and while some things do work, many, many, many other things do not. Follow the scientific model and do your research properly. Check out the benefites as well as the potential dangers and make sure you fully understand the latter before you embark on any self help treatment. Failure to do so will cost you more than your health, it could kill you both slowly and painfully.



The rewards may beat the risk on this one.  I believe these studies are over a period of time.  I don't think we should be worried about taking vit.C and Salt for the amount of time we are trying to take it, say possibly, if less than a month.  But I will definitely take this risk if it means less, or even a cure for, my POIS. 

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Offline doUhaveLupus

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16179 on: 23/04/2012 22:15:06 »
Why would you up your salt intake if you are already getting way too much each day from the processed foods you buy in the supermarket ? Its like me saying hey, I've discovered that taking a half a cup of raw sugar gives me relief.

Its simply patently wrong to say that any kind of sugar increase can benefit you if you already have more than enough. High sugar leads to diabeties, tooth decay (etc). High salt is even worse for you.

If you promote things like that to the public without explaining the known dangers, then people like me will come along and explain them for you, and I can assure you they wont be nearly as diplomatic about it as I am.

« Last Edit: 23/04/2012 22:26:47 by doUhaveLupus »

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Offline Stef

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16180 on: 23/04/2012 22:21:34 »
Hi All,

I feel compelled to comment about the website link that Going Crazy provided the -- http://www.lymephotos.com/ [nofollow].

That is exactly the kind of website that sets up every red flag possible! 

Nothing is substantiated in it.  Those photos of microfilarial worms and spirochetes are not the slightest bit impressive -- there is no REAL documentation of their source -- they say that the photos are copyrighted -- but who knows?  I can easily insert a copyright mark right here -- Đnordnurse 2012.

(Fake copyright on my part -- don't take it seriously!!!!!)

There is no way of knowing who is actually publishing the site.  There here are no scientific references, nor is there any real contact information (other than an email: webmaster@lymephotos.com).  There is no mailing address -- A VERY BIG RED FLAG!

You owe it to yourselves to be extremely cautious of this type of anonymous website.

Last but not least, the amount of sodium suggested is extreme.  Many people cannot tolerate that amount -- it can raise blood pressure and/or affect the kidneys -- serious issues.

That amount of Vitamin C can also cause diarrhea.

This regimen may be helping Going Crazy -- I hope it is, GC!!  I mean that sincerely. Even if it's a temporary improvement -- it's great to hear that you're feeling so much better.

Everyone --just please use caution, especially with websites like that one. 

To paraphrase demografx, "One man's food is another man's poison."

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Offline GoingCrazy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16181 on: 23/04/2012 22:24:24 »
Because it seems to deminish my Pois 100%.  This is just a temporary treatment "try out" that I'm doing.  I decided to try it after reading this.  http://www.lymephotos.com/   Just to see if it did do anything to me as I've always thought I was sick with some disease, possibly lyme, but it seems to be working.  I do agree with you though, I'm not trying to take this stuff the rest of my life.  And yes, high salt probably is bad for you, even after reading John21's post link, I am only doing it because of this condition.  Any normal person obviously wouldn't be taking that much amount of salt.  But the possibility it could be killing some kind of bacteria or something is just a possibility and the health gain.  It may be and probably is putting strain on your body but again I'm willing to take that risk. 


Nordnurse, yes the site is not validated from anything, but just looking up the idea of sea salt and vitamin C seem to be working for some people.  The good news about the website is that they are not trying to sell anything, I think that would be an even bigger red flag.  And I agree with the photos, it does look like someone randomly just didn't have the time and just set up the web site, but who knows, sea salt and vit. C might be able to do something, or it might not work.  For me it is working this very moment, but only time will tell.
« Last Edit: 23/04/2012 22:35:12 by GoingCrazy »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16182 on: 23/04/2012 23:20:39 »

Hi All,

I feel compelled to comment about the website link that Going Crazy provided the -- http://www.lymephotos.com/.

That is exactly the kind of website that sets up every red flag possible! 

Nothing is substantiated in it.  Those photos of microfilarial worms and spirochetes are not the slightest bit impressive -- there is no REAL documentation of their source -- they say that the photos are copyrighted -- but who knows?  I can easily insert a copyright mark right here -- Đnordnurse 2012.

(Fake copyright on my part -- don't take it seriously!!!!!)

There is no way of knowing who is actually publishing the site.  There here are no scientific references, nor is there any real contact information (other than an email: webmaster@lymephotos.com).  There is no mailing address -- A VERY BIG RED FLAG!

You owe it to yourselves to be extremely cautious of this type of anonymous website.

Last but not least, the amount of sodium suggested is extreme.  Many people cannot tolerate that amount -- it can raise blood pressure and/or affect the kidneys -- serious issues.

That amount of Vitamin C can also cause diarrhea.

This regimen may be helping Going Crazy -- I hope it is, GC!!  I mean that sincerely. Even if it's a temporary improvement -- it's great to hear that you're feeling so much better.

Everyone --just please use caution, especially with websites like that one. 

To paraphrase demografx, "One man's food is another man's poison."



Thank you, Stef!!
« Last Edit: 23/04/2012 23:26:44 by demografx »

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Offline kurtosis

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16183 on: 23/04/2012 23:23:51 »

Someone has candida?


Well, we all have candida but perhaps it's a problem for some/all POIS sufferers. Garlic brings relief for both, right?


(1) From Quack Watch:
http://www.quackwatch.com/

"Candida

Candida ("Candidiasis hypersensitivity") is another bogus diagnosis whose symptoms are said to be multiple and include fatigue, depression, inability to concentrate, hyperactivity, headaches, skin problems (including hives), abdominal pain and bloating, constipation, diarrhea, respiratory symptoms, and problems of the urinary and reproductive organs. The main promoter of "candidiasis hypersensitivity" has been William G. Crook, M.D., of Jackson, Tennessee, who wrote and published The Yeast Connection. According to Crook, "If a careful checkup doesn't reveal the cause for your symptoms, and your medical history [as described in his book] is typical, it's possible or even probable that your health problems are yeast-connected." To correct these alleged problems, he recommends allergenic extracts, antifungal drugs, vitamin and mineral supplements, and diets that avoid refined carbohydrates, processed foods, and (initially) fruits and milk.

The American Academy of Allergy, Asthma and Immunology regards the concept of candidiasis hypersensitivity as "speculative and unproven" and notes that everyone has some of its supposed symptoms from time to time. The academy has warned that some patients who take the inappropriately prescribed antifungal drugs will suffer side effects and that overuse of these drugs could lead to the development of resistant germs that endanger everyone."
From http://www.quackwatch.org/01QuackeryRelatedTopics/fad.html

(2)"Bogus "Candida" products are prescribed by nonmedical practitioners (e.g., chiropractors, naturopaths, "nutritionists") and maverick medical doctors who may call themselves "clinical ecologists." The latter claim that candidiasis is an underlying cause of "environmental illness" -- an unrecognized medical condition that they postulate to exist."
From National Council Against Health Fraud
http://www.ncahf.org/articles/c-d/candida.html


(3) Candida has been discredited here at our POIS Forum. Click here.

Quackwatch is a bit smug. The whole reason for a site like quackwatch to "debunk" a diagnosis like candidiasis is that there are many many people who feel sick but whose doctors haven't a clue what's wrong with them. Please don't interpret this as a support for naturopaths or other practitioners of alternative medicine with a very flaky grasp of science and medicine. However I don't think the orthodox medical establishment needs my sympathy either. They're doing OK and, when they're not, they can always write a diagnosis of psychosomatic illness. Orthodox medicine's bogus pseudo-scientific catch all diagnosis that's been given to many people here.

Everybody has candida. Indeed it's required and nobody would want to "eliminate candida". It is possible to have a candida overgrowth and an infection of the bloodstream and organs. Wouldn't be a problem in a "healthy individual" (whatever that is :)) without a compromised immune system. I don't think that applies to all POIS sufferers.
It would be good to keep track of any gastrointestinal issues that POIS sufferers have experienced. I had a colonoscopy and found flattened vili. I remember that some other posters have had problems with stomach bacteria and ulcers.

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16184 on: 23/04/2012 23:28:12 »
For digestive issues, a good reputable gastroenterologist is all that is needed, IMHO.

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16185 on: 23/04/2012 23:38:40 »
Candida

This is a terminology issue with kurtosis.

I am using a term that has been largely discredited by most reputable medical professionals.

The discreditation has been referenced here EXHAUSTIVELY. You have the tools to search it.

The WORD candida does have some other meaning, so kurtosis, I'm sorry if there is disagreement.

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Offline kurtosis

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16186 on: 24/04/2012 00:23:40 »
For digestive issues, a good reputable gastroenterologist is all that is needed, IMHO.
Hi Demo,
I'm sorry if I was tetchy.
 
Perhaps it is a terminology issue but I'm a bit annoyed at the reaction to GC's potential cure. If he's getting relief then well and good. POIS is bad enough and I'm not going to talk him out of it. Whatever about the health risks of consuming lots of salt, now vitamin c is the "fastest way to harden arteries". This is simply not true. It is not backed up by consistent medical studies and indeed the American Heart Association's journal published the exact opposite result in a 1995 study that hasn't been dismissed or discredited.

Regarding a reputable gastroenterologist, even the cause of something as widespread as irritable bowel syndrome is subject to different theories and treatments. An auto-immune syndrome, floral overgrowth, psychological or a combination of all or some of the above.

I don't think we can dismiss any cause of POIS (or even the possibility that POIS is a manifestation of something else) until we learn more. That doesn't mean we should be reckless but I reckon most GP's would be shocked at the dosages of niacin that are being taken by some forum members. In the pre salt+c days (under a week ago, nostalgia :)) we seemed to accept there were some risks. We all know why we're doing it. POIS is devastating. On a personal level I'd sacrifice a lot to never have to worry about it again.

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Offline Stef

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16187 on: 24/04/2012 01:07:34 »
Because it seems to deminish my Pois 100%.  This is just a temporary treatment "try out" that I'm doing.  I decided to try it after reading this.  http://www.lymephotos.com/ [nofollow]   Just to see if it did do anything to me as I've always thought I was sick with some disease, possibly lyme, but it seems to be working.  I do agree with you though, I'm not trying to take this stuff the rest of my life.  And yes, high salt probably is bad for you, even after reading John21's post link, I am only doing it because of this condition.  Any normal person obviously wouldn't be taking that much amount of salt.  But the possibility it could be killing some kind of bacteria or something is just a possibility and the health gain.  It may be and probably is putting strain on your body but again I'm willing to take that risk. 


Nordnurse, yes the site is not validated from anything, but just looking up the idea of sea salt and vitamin C seem to be working for some people.  The good news about the website is that they are not trying to sell anything, I think that would be an even bigger red flag.  And I agree with the photos, it does look like someone randomly just didn't have the time and just set up the web site, but who knows, sea salt and vit. C might be able to do something, or it might not work.  For me it is working this very moment, but only time will tell.

[/quote]

The rewards may beat the risk on this one.  I believe these studies are over a period of time.  I don't think we should be worried about taking vit.C and Salt for the amount of time we are trying to take it, say possibly, if less than a month.  But I will definitely take this risk if it means less, or even a cure for, my POIS. 
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Hi GC,

You're right! They aren't selling anything -- that's a very important point!

From what I've read on these posts -- the absolute misery of POIS may trump some of the risks.  No one has a clue as to what POIS really is. (I don't say that casually!) Maybe for some, extra sodium would be helpful.

For some it could be deadly -- so be very careful, everyone!

My main point was really the website itself -- it's lacking important data, causing it to stand out like a sore thumb from my point of view. 

Who knows -- perhaps the salt and Vit C can be helpful for some with POIS -- if used very cautiously.

(If any of you has a home blood pressure cuff -- and you're considering doing this salt/Vit C combination -- now would be the time to drag out the blood pressure cuff.)

Just monitor your symptoms, GC -- if you're retaining fluid (you'll know it!), take a break.  Keep us posted!

Most of all, good luck to you!!

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Offline observercenter

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16188 on: 24/04/2012 01:44:11 »

I don't think we can dismiss any cause of POIS (or even the possibility that POIS is a manifestation of something else) until we learn more. That doesn't mean we should be reckless but I reckon most GP's would be shocked at the dosages of niacin that are being taken by some forum members. In the pre salt+c days (under a week ago, nostalgia :)) we seemed to accept there were some risks. We all know why we're doing it. POIS is devastating. On a personal level I'd sacrifice a lot to never have to worry about it again.

Kurtosis is raising a very important topic here. I agree with him when he says that we seem to accept some risks, but there is an important life-problem with this.

From my own vital experience, POIS is not a problem in my life anymore. It seems a nightmare from the past. I have not experienced full-blown POIS state since months(however i have had very minor POIS when something has gone wrong with the niacin, nothing important), but i know that i am not cured and that i am following a treatment(Niacin) that will go with me, at least on the short-term. 150-200mg Niacin some days is a small dose, the worrying point here is that it could turn into a chronic treatment(all of our lives?). Here is the problem: How could this affect us on the long term? It is sure that we are taking some risks? These questions stand the same for GoingCrazy new treatment. The treatment strikes me as an aggressive one, and like demografx has said, i am not sure it would be as good as we could think for all of us; but i am not going to be the one to cast a stone at him. I only will suggest him(and everyone) to ask qualified doctors and check their advice.

So, the main question is: Are we willing to sacrifice our health on the long term for short-term or medium-term relief? I seriously believe this question could become unsubstantial when we get the most answers on this issue, because we wouldnīt need to sacrifice our health again. And right now we have a lot of questions, and very few answers. Dr. Waldinger is only one man;  are we going to wait only for one medical team to resolve this issue and to explore new treatments? Then, it could take an eternity and beyond. As he said during the interview, more research is needed. We need to get the medical community behind us and raise the awareness of this ugly condition. The N.O.R.D. research grant seems to be a very good opportunity to make this happen. Writing e-mails about POIS to different and prominent doctors all over the world is another one.  Letīs put all our strenght into this.

For my part, I am not the one to take my health lightly. I am going to perform blood tests periodically(I did two some time after beginning the niacin treatment). I donīt want to turn into a hypochondriac individual, but i am not going to play with my life. I want to live it at its fullest(like i am doing now) without worrying about my future on this particular issue(which has been the most important on my past).

Finally, i want to show my enormous gratitude to each and every one of you for helping me to change my life and for your words of support about the interview i did. Your success will always be my success. 
« Last Edit: 24/04/2012 01:49:19 by observercenter »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16189 on: 24/04/2012 02:26:12 »
observercenter, we ALL owe you a debt of gratitude for your phenomenal work and involvement on the POIS TV Documentary of April 12 on ABC Australia TV.

THANK YOU AGAIN!

Everyone, Click here to see the POIS TV Documentary, if you haven't already!

« Last Edit: 24/04/2012 02:48:37 by demografx »

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Offline demografx

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« Last Edit: 24/04/2012 04:00:45 by demografx »

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Offline B_Daniel

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16191 on: 24/04/2012 07:34:40 »
I would like to make a request on this forum: If you advertise that something cures you and then realize that your improvement was unrelated to your 'cure' and that you didnt 'cure' anything, please admit to the group that you were wrong.  This is a scientific forum, and your successes and failures should be equally documented.
2-5 days, 80% cognitive, tongue-tied, brain fog, lose track of thoughts mid conversation, anxiety, dry eyes, irritable, fatigue.  Believer of both auto-immune AND regeneration theories.  My sessions are much shorter when I've gone 2 wks without.

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Offline B_Daniel

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16192 on: 24/04/2012 07:39:44 »
Why would you up your salt intake if you are already getting way too much each day from the processed foods you buy in the supermarket ? Its like me saying hey, I've discovered that taking a half a cup of raw sugar gives me relief.
Agreed.
2-5 days, 80% cognitive, tongue-tied, brain fog, lose track of thoughts mid conversation, anxiety, dry eyes, irritable, fatigue.  Believer of both auto-immune AND regeneration theories.  My sessions are much shorter when I've gone 2 wks without.

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Offline kurtosis

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16193 on: 24/04/2012 08:43:34 »
There are more and more sites, blogs and forums talking about Pois. ;)
Great news.

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Offline John21

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16194 on: 24/04/2012 11:02:11 »
doUhaveLupus, thank you for your opinion on this. I know that this is the widespread view, and was exactly my belief, but the article sounds believable to me. I am aware of how there is alot of grayness in our understanding of what exactly is healthy and that at times even the scientific community has it's group think moments. In that light I am open to this perspective of Dr. David Brownstein, M.D. Perhaps his ideas are not the full story but it sounds well researched. Can you point me to a source that debunks what he is saying? Again here is his link:

http://www.celticseasaltblog.com/articles/salt-articles/salt-your-way-to-health/


« Last Edit: 24/04/2012 11:39:22 by John21 »

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Offline Habibou

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16195 on: 24/04/2012 14:45:49 »
Great Job for the TV Documentary !!!

DO NOT HESITATE TO SHARE YOUR BLOOD TEST RESULTS ON THE OTHER FORUM : http://poiscenter.com/forums/index.php?topic=98.0

It could help us to see some common disfunction... we could even split into sections (hormonal, immunology, vitamin and others) like a real database.
Of course, the most important stays the NORD fund !
Thank you !

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Offline fidalgo

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16196 on: 24/04/2012 15:54:15 »
Hi people...

I read this interest question about the GoingCrazy treatment. I start it yesterday and Iīm with hope that will work. I realize some improve in my POIS today and Iīm going try especially because he describe it like a cure, he doesnīt have symptom of POIS after masturbation anymore.

First of all somepeople said here that salt is bad for blood presure. This is not true. Salt is not recommended for people who have high pressure. If you donīt have high pressure, salt wouldnīt make you seek. And, the quantity of salt he used is not more than the salt have in a Coca-cola glass. So, this treatment with salt doesnīt have risks for normal people, only for people who have high blood presure. And, like someone speak here, we already eat too much salt, this isnīt increase our saul diet a lot. About the C vitamin Iīdon t know. But itīs only the double of the normal dose but it not seem tha make too bad. Today I have diarrea like the website said.Indeed, I donīt believe in C vitamin...

I start to take salt last night and I see some improve. What make the improvement is not the sault in our blood because of that a high salt diet not improve ourselves. What make the improve is the sault in my mouth and tong. It's like the sault taste confronting pois. You have to let the salt in yout tong and wait. Just drinking the sault doesnīt have effects. C vitamin I canīt say if it helps. Indeed, I donīt believe in C vitamin but Iīm trying to do the samething that GC to see if works.

I will try this treatment and after I will tell for you if works. But itīs too strange you think a threatment with salt is more dangerous than niacin.

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Offline doUhaveLupus

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16197 on: 24/04/2012 16:28:09 »
... In that light I am open to this perspective of Dr. David Brownstein, M.D. Perhaps his ideas are not the full story but it sounds well researched. Can you point me to a source that debunks what he is saying? Again here is his link:

newbielink:http://www.celticseasaltblog.com/articles/salt-articles/salt-your-way-to-health/ [nonactive]

Why dont you just read the first paragraph of his Home page ? He states quite clearly that "Government agencies, the American Medical Association, and many dietary groups all recommend a low-salt diet."

This guy is clearly $elling a product, not a health service, and on the internet no less. And you want to trust him more than "Government agencies, the American Medical Association, and many dietary groups" ????

 ???

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Offline doUhaveLupus

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16198 on: 24/04/2012 16:42:03 »
First of all somepeople said here that salt is bad for blood presure. This is not true. Salt is not recommended for people who have high pressure. If you donīt have high pressure, salt wouldnīt make you seek. And, the quantity of salt he used is not more than the salt have in a Coca-cola glass.

If you're only taking as much salt as in junk food drink, why would you need this treatment if you alrready had 3 or four serves of junk food.

Sorry, but this salt theory can only appeal to people who have rejected accepted, tried and tested scientific and/or rational thinking, and with that said, I have nothing further to add to this.

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Offline John21

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16199 on: 24/04/2012 17:15:39 »
... In that light I am open to this perspective of Dr. David Brownstein, M.D. Perhaps his ideas are not the full story but it sounds well researched. Can you point me to a source that debunks what he is saying? Again here is his link:

http://www.celticseasaltblog.com/articles/salt-articles/salt-your-way-to-health/

Why dont you just read the first paragraph of his Home page ? He states quite clearly that "Government agencies, the American Medical Association, and many dietary groups all recommend a low-salt diet."

This guy is clearly $elling a product, not a health service, and on the internet no less. And you want to trust him more than "Government agencies, the American Medical Association, and many dietary groups" ????

 ???

Perhaps you are right, I will have to look further into this. Thank you for your caution!