Post Orgasmic Illness Syndrome (POIS)

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Offline GoingCrazy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16350 on: 08/05/2012 00:28:29 »
GoingCrazy, I think I once experienced the sort of pressure in the brain feeling during the second week I was on an antidepressant called Effexor. It was a constant feeling that I couldn't forget about and along with it there was a significant reduction in my intelligence. Thankfully it stopped a week or two after ceasing the drug.

That's good to hear that it went away after you stopped using the anti-depressant.  But my headache was constant and not caused by any medication I was using or anything, just my body itself.  That's actually probably a side effect for using antidepressants, as it messes with the serotonin in your brain, it's the same mechanism that causes headaches and migraines. (I believe)

Goingcrazy and Vincent, I too experience a constant headache. It's never really gone and seems to get worse in POIS. It feels like pressure more than a true "headache." It's almost as if my brain and/or sinuses are swollen, and it hurts when I apply pressure to my face/skull. Is that similar to what you are describing? I've seen neurologists about it and got a head CT scan a few years ago to rule out any serious conditions. Everything came back negative.

It does seem very similar to what I had.  Just a constant ache or pressure that wouldn't go away.  Mine would also move around but I no longer have it.  I think maybe once that went away, my POIS went away.  Still symptom free and not supplementing on anything.  I'm starting to think my POIS was a bacterial infection or virus that went away, explanation of constant POIS, but I am not sure.  I am still sleeping very good each night and don't supplement for sleep either.
« Last Edit: 08/05/2012 00:30:12 by GoingCrazy »

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Offline Raynman10

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16351 on: 08/05/2012 00:54:08 »
Demo
I am first time poster BUT I just gave $500. US to NORD. R U saying that the patch helped with symptoms? I am looking for anything to help alleviate the depression especially. I have looked at the board and was going to try the antihistamine Zyrtec. I am 63,married and MAYBE have sex 6 times a year and I still pay a big price.  Because of POIS the performance is pretty bad too. I think I made myself crazy. I have gone to Dr.'s for many many years with no diagnosis and finally stumbled onto this board . At least the Doc agrees that this is it. I have a very severe case as I am sure many of you also do. Any direction would be greatly appreciated.

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Offline Itsthatskater

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16352 on: 08/05/2012 01:32:51 »
I wish someone could still tell me how Me being only 16 years old and being a fully active and healthy teenager become so weak and fatigued for about 48 hours after ejaculation. :(

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Offline Vincent M

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16353 on: 08/05/2012 02:21:47 »
I didn't test to see if niacin had its usual physical strength/endurance improving effects for me, but I'm fairly certain that it didn't improve my POIS-caused exhaustion or cognitive impairment.

Daveman, thanks for the idea about taking the dose all at once instead of in intervals over ~15min as I did. Perhaps I'll try that next time. Also it's good that you also cautioned anyone planning to use niacin in the future that 300mg is a high dose to start off on. In my opinion 100mg is a safe starting dose.
« Last Edit: 08/05/2012 02:23:26 by Vincent M. »
Taking fenugreek+tea/garlic, saw palmetto, huperzine, niacin, boswellia, and nutmeg.

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Offline Vincent M

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16354 on: 08/05/2012 02:44:17 »
Raynman10, thanks for your donation!

A side note- I recently realized that fenugreek has been reliably improving my POIS symptoms for a little more than a year now.
Taking fenugreek+tea/garlic, saw palmetto, huperzine, niacin, boswellia, and nutmeg.

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Offline Raynman10

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16355 on: 08/05/2012 03:11:14 »
It's my pleasure Vincent
I hope to be able to do more. I know that I can share what I have been through and what drugs I was prescribed over the years. Some years ago I also had pre and post blood work done and my Testosterone levels were high pre & post so It wasn't that. I also get blotches sometimes during a POIS event on chin and mouth area of the skin. I remember my father got the same blotches so I guess it is hereditary. I am interested in the serotonin comments because although I am now a professional my early life was quite stormy. I was addicted to heroin until I was 33 which could explain the brain chemistry.Strange because I did not fit the mold of an addict so to speak. I have been in NA for almost 30 years. I did take some antihistamine this evening since Its been a while with the wife........ 

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16356 on: 08/05/2012 03:18:11 »
Raynman10, welcome to the POIS thread of The Naked Science Forum!  We believe that 2012 is POIS' Breakthrough Year. We hope to launch serious POIS Medical Research. A great time to be here.     


**(If you have any technical questions, please feel free to PM (private message) Daveman or me -- or another forum member - - go towards the end of this welcome message (after the 5 available research articles are described) for instuctions on how to send PM. We'll be happy to explain.)***


If you haven't already done so, but would like to like to join the new forum,  send "daveman" a PM here at the Naked Science Forum.


Here are some POIS resources which may be helpful to you:

Click here to see Mat780's excellent YouTube POIS Channel.   Mat's YouTube videos include (1) our great new April 12 POIS TV Documentary. A must-see. And (2) The Learning Channel documentary, featuring our forum member "Animus".

Click here to see The POIS reddit post.  Outsiders (non-POISers) spontaneously gifted NORD's POIS Research Grant $1,000+ from this reddit post. Thanks to "mellivora" and "CCconfucius"!

Our POIS chatroom (realtime chat). Invite or visit another member(s) there, ANY TIME. We can all get to know each other better:
Just click here first, and then look for "CHAT" button towards top of page, 4th button to your right!

Our alternate POIS Forum - architectural genius: "daveman" - for detailed subject-by-subject discussion.
http://www.POISCenter.com/forums/index.php
Our 5-year-old POIS thread here at Naked Science Forum will also always remain open for newcomers, for general unstructured discussion, and historical research of the 10,000+ postings here since 2007.

Our POIS Information Website, built by "mat780", is here:
http://sites.google.com/site/POISwebsite/

The POIS Information Website is home to the POIS Forum Compendium, written by "Pyropeach", and contains theories already discussed here and treatments that have both worked and failed.

Please see "B_Jim"'s POIS Summary of All Cases, here as well as others on the Web. This includes remedies that we have tested, and results.
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg149009#msg149009

"Girlwind" has created an excellent POIS Video:
http://www.youtube.com/watch?v=UWBxAUC9k1g


Post Orgasmic Illness Syndrome "POIS": Case report

Authors:
Abdalla M Attia*, Magda H Al-Ziny, Hossam A Yasien
*Corresponding author: Andrology Unit, Minoufiya University, Shibin El Kom, Eygpt

For more info, check out emi_b's  SMF POIS thread:
http://poiscenter.com/forums/index.php?topic=191.0;topicseen


POIS Research Studies available Upon Request:

1. and 2. POIS Research Studies, 2011

These 2 papers reveal Dr. Waldinger's POIS autoimmune hypothesis and suggest one possible avenue of treatment.

3. First POIS Research Study, 2002

We have a copy of the first formal medical investigation on POIS by Prof. dr. Marcel D. Waldinger,MD, Ph.D., and Dr. Dave Schweitzer, MD.

   
4. Recent POIS Research Study, 2010

CASE REPORT
Postorgasm Illness Syndrome - A Spectrum of Illnesses
Jane Ashby, MRCP, and David Goldmeier, MRCP
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg316781#msg316781


5. British Medical Journal Case Report, 2010

Case study by Dr. Selwyn Dexter of a patient with a headache-featured POIS symptom treated with progesterone/norethisterone.
http://casereports.bmj.com/content/2010/bcr.10.2009.2359.short?rss=1


How to get any or all of the above 5 studies: send me or "daveman" a Private Message (PM) with your regular email address (use "AT" instead of "@" ) and we'll send you back the PDF(s).

To send a Private Message, click on "My Messages" at the top of this page. Then click "Send Message". From that point on, it works just like posting a message here, except that it only goes to the person(s) you designate.


New York Times article,

January 20, 2009
Mind
Sex and Depression: In the Brain, if Not the Mind
By RICHARD A. FRIEDMAN, M.D.
http://www.nytimes.com/2009/01/20/health/views/20mind.html?_r=1&scp=1&sq=friedman%20sexual%20January%2020&st=cse

- - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -

In addition to serving our own informational interests, the resources listed above can be useful for you to show our credibility to the medical world - which often shows little understanding and is sometimes skeptical of our condition: POIS has scientific underpinnings and POIS is not "just another psychological problem" related to sex - to be treated by the psychiatric/psychotherapeutic community. All of this information can greatly help you to fight the immediate reaction of some doctors: so just tell them, "IT'S NOT 'ALL IN YOUR HEAD'! "





It can be very  helpful to you when dealing with medical professionals to point this out. Click to see

POIS' official listing, as recognized by the
National Institutes for Health (NIH), Office of Rare Diseases Research
:


And in Europe: Orphanet now lists POIS on their website. - Click here.

The Post Orgasmic Illness Syndrome (P.O.I.S.) Forum is listed in the organization database of the National Organization for Rare Disorders (NORD) -- http://poiscenter.com/forums/index.php.  The link for this, through their home page, is --
http://rarediseases.org/rare-disease-information/organizations/byID/3136/viewDetail.


POIS also appears in credible medical sources such as the Journal of Sexual Medicine (Dr. Waldinger's study), British Medical Journal (Dr. Selwyn Dexter's study), and wikipedia:
http://en.wikipedia.org/wiki/Postorgasmic_illness_syndrome

For over 5 years, our POIS forum has attracted over 200 POIS sufferers worldwide who have posted here, research on an additional 200 sufferers elsewhere on the internet, plus our pages have been read nearly 2,000,000 times. Not bad for a rare malady.

Show some of this to your doctor - with pride. Chances are, you know far more about POIS than s/he does. Don't be intimidated by fancy diplomas. It's almost impossible for any one doctor to know much about POIS before you walk into his/her office. Unfortunately, it's up to you to educate them. And if you happen to find yourself with a disagreeable "student"-doctor (you're the teacher), find another doctor. Quickly!

SEARCH THE FORUM WITH GOOGLE

We have an overwhelming amount of data: more than 5 years' worth of posts (over  10,000 posts!) from 200+ Forum members, and an additional 200 POIS sufferers found elsewhere on the Internet by Member B_Jim.

In the Google search box, type
whatever-it-is-you're-interested-in-finding-out[space]POIS[space]site:http://thenakedscientists.com/

for example, I tried
nocturnal emission POIS site:http://thenakedscientists.com/

and 740 results came up for "nocturnal emission" within the Forum.

be careful with spaces (you can use them before the word "site") and no-spaces (everything after the word "site")

Google even provides you results with the Message# for each result. But Message #'s do change, so be patient and look for the approximate Message#.







« Last Edit: 08/05/2012 15:06:00 by demografx »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16357 on: 08/05/2012 03:28:05 »

R U saying that the patch helped with symptoms?


It basically cured my 30+ year intense bouts of POIS agony (4-day lobotomy sessions : - )


Click here to read some of my earlier posts.





« Last Edit: 08/05/2012 04:32:53 by demografx »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16358 on: 08/05/2012 04:38:51 »
Raynman10, thanks for your donation!

A side note- I recently realized that fenugreek has been reliably improving my POIS symptoms for a little more than a year now.

Fenugreek has been getting interesting remarks here since 2007!

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Offline CertainlyPOIS

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16359 on: 08/05/2012 07:04:57 »
http://www.youtube.com/watch?v=TcefXUe2q8g&feature=player_embedded#!

I hope we dont have to get to this to raise this money.

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Offline nathan123

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16360 on: 08/05/2012 12:58:30 »

Here is one interesting question for everyone:

Did you remember the details of the instance or day that POIS first started occuring?



Excellent question.

I do not remember and wish I could.

I usually say "my POIS began 30+ years ago".

Only because that is as far back as I can remember connecting-the-dots-between-sex-and-symptoms=POIS. It takes many members here years before they see the connection. Sometimes POIS is really only felt  _two_  days after sex.

Conceivably, POIS for me could have started as far back as 50 years ago.

alphaq, this might be a good question for our polling center:
http://poiscenter.com/forums/index.php?board=15.0

I don't know exactly when my POIS symptoms started. It seems it started from the very first orgasm.  I had an interesting case in my first orgasm.  The first orgasm I had when I was at 16 years of age when I was having bath.  Interesting thing  is I had an orgasm without any stimulation to penis/ masturbation and I not even saw any sexual movies at that time.  Semen released automatically and I had orgasm.  I never heard about the word orgasm and I astonished and surprised about the orgasm and also I shocked what was happening my body.  Later on the next day, I enquired with my friends and they told this was normal. 

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16361 on: 08/05/2012 14:56:03 »

http://www.youtube.com/watch?v=TcefXUe2q8g&feature=player_embedded#!

I hope we dont have to get to this to raise this money.



100 Naked Ladies For POIS ???

CC, you're ON to something!!!

Lol !!

YouTube user "noshinya" writes:

"I know it is hard to type with one hand now."

CC, you always have our HEART in your interesting links!!!

: - )



« Last Edit: 08/05/2012 15:57:21 by demografx »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16362 on: 08/05/2012 16:08:04 »
Daveman, will your software accommodate 100 Naked Ladies For POIS???

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Offline observercenter

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16363 on: 08/05/2012 18:55:28 »
I am going to participate very soon in a POIS article that is going to appear in the Spainīs newspaper "El Mundo"- and its web-page: http://www.elmundo.es/ (3 million visitors each day, 1 million readers). They have asked me for help and i accepted. I told the journalist that i wanted them to raise the NORD research fund in the article and our current initiatives- and more: I told them that it must be stated very clearly that more research is needed to fight against this condition, despite the fact that some of us have had significant relief- and they completely agree with this view and are well informed. I will bring more news about this in a few days.

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Offline Habibou

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16364 on: 08/05/2012 21:59:20 »
Fantasitic News Observer !! It is essential that we can bring up the NORD donation plan to raise more money... Very good job!! :)

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Offline ejactrouble

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16365 on: 08/05/2012 23:11:15 »
I am terribly sorry.  I tried using the search function, I really did.  My mental state isn't allowing me to comprehend anything I read at the moment.

I am looking for the cure.  After years of psychiatric drugs (over a dozen) and being diagnosed with several mental illnesses (bipolar, anxiety, depression, psychotic behavior, schitzophrenia) I have FINALLY put 2 and 2 together and found out that my problem is due to ejaculation, and not a sudden onset of mental illness (although I DO have mental illness symptoms for days after ejaculation).  This problem has cost me my life, my livelihood, my mental capacity, and my will to live.  I am barely hanging on...

Is it testosterone?  Serotonin?  I read the first few pages but couldn't manage anything more.  I wanted to ask what the possible problem is and if anything helps, before I go lay down for a few hours.  Today is Day 1 after ejaculation.

F*ck my life!
« Last Edit: 08/05/2012 23:12:57 by ejactrouble »

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Offline lauracostis

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16366 on: 08/05/2012 23:43:49 »
I am going to participate very soon in a POIS article that is going to appear in the Spainīs newspaper "El Mundo"- and its web-page: http://www.elmundo.es/ (3 million visitors each day, 1 million readers). They have asked me for help and i accepted. I told the journalist that i wanted them to raise the NORD research fund in the article and our current initiatives- and more: I told them that it must be stated very clearly that more research is needed to fight against this condition, despite the fact that some of us have had significant relief- and they completely agree with this view and are well informed. I will bring more news about this in a few days.
Thats awesome, I have lived in Spain twice and I know for a fact that the Spanish are much more open minded than Americans about things like this. 

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16367 on: 08/05/2012 23:57:49 »
I am going to participate very soon in a POIS article that is going to appear in the Spainīs newspaper "El Mundo"- and its web-page: http://www.elmundo.es/ (3 million visitors each day, 1 million readers). They have asked me for help and i accepted. I told the journalist that i wanted them to raise the NORD research fund in the article and our current initiatives- and more: I told them that it must be stated very clearly that more research is needed to fight against this condition, despite the fact that some of us have had significant relief- and they completely agree with this view and are well informed. I will bring more news about this in a few days.

THANK YOU, observercenter!!!!!

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16368 on: 09/05/2012 00:04:47 »

F*ck my life!


sent via PM+email
Dear ejactrouble,

Please don't give up.

We have ALL been exactly where you are!

But you have now finally found a group who understands and cares about you!

Send me a private message (or post it here if you wish)...if you'd like some telephone crisis/hotline contact info.

If things get real bad, please check into your nearest hospital emergency room.

Best wishes,
demo

« Last Edit: 09/05/2012 00:19:01 by demografx »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16369 on: 09/05/2012 00:06:28 »
ejactrouble, welcome to the POIS thread of The Naked Science Forum!  We believe that 2012 is POIS' Breakthrough Year. We hope to launch serious POIS Medical Research. A great time to be here.     


**(If you have any technical questions, please feel free to PM (private message) Daveman or me -- or another forum member - - go towards the end of this welcome message (after the 5 available research articles are described) for instuctions on how to send PM. We'll be happy to explain.)***


If you haven't already done so, but would like to like to join the new forum,  send "daveman" a PM here at the Naked Science Forum.


Here are some POIS resources which may be helpful to you:

Click here to see Mat780's excellent YouTube POIS Channel.   Mat's YouTube videos include (1) our great new April 12 POIS TV Documentary. A must-see. And (2) The Learning Channel documentary, featuring our forum member "Animus".

Click here to see The POIS reddit post.  Outsiders (non-POISers) spontaneously gifted NORD's POIS Research Grant $1,000+ from this reddit post. Thanks to "mellivora" and "CCconfucius"!

Our POIS chatroom (realtime chat). Invite or visit another member(s) there, ANY TIME. We can all get to know each other better:
Just click here first, and then look for "CHAT" button towards top of page, 4th button to your right!

Our alternate POIS Forum - architectural genius: "daveman" - for detailed subject-by-subject discussion.
http://www.POISCenter.com/forums/index.php
Our 5-year-old POIS thread here at Naked Science Forum will also always remain open for newcomers, for general unstructured discussion, and historical research of the 10,000+ postings here since 2007.

Our POIS Information Website, built by "mat780", is here:
http://sites.google.com/site/POISwebsite/

The POIS Information Website is home to the POIS Forum Compendium, written by "Pyropeach", and contains theories already discussed here and treatments that have both worked and failed.

Please see "B_Jim"'s POIS Summary of All Cases, here as well as others on the Web. This includes remedies that we have tested, and results.
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg149009#msg149009

"Girlwind" has created an excellent POIS Video:
http://www.youtube.com/watch?v=UWBxAUC9k1g


Post Orgasmic Illness Syndrome "POIS": Case report

Authors:
Abdalla M Attia*, Magda H Al-Ziny, Hossam A Yasien
*Corresponding author: Andrology Unit, Minoufiya University, Shibin El Kom, Eygpt

For more info, check out emi_b's  SMF POIS thread:
http://poiscenter.com/forums/index.php?topic=191.0;topicseen


POIS Research Studies available Upon Request:

1. and 2. POIS Research Studies, 2011

These 2 papers reveal Dr. Waldinger's POIS autoimmune hypothesis and suggest one possible avenue of treatment.

3. First POIS Research Study, 2002

We have a copy of the first formal medical investigation on POIS by Prof. dr. Marcel D. Waldinger,MD, Ph.D., and Dr. Dave Schweitzer, MD.

   
4. Recent POIS Research Study, 2010

CASE REPORT
Postorgasm Illness Syndrome - A Spectrum of Illnesses
Jane Ashby, MRCP, and David Goldmeier, MRCP
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg316781#msg316781


5. British Medical Journal Case Report, 2010

Case study by Dr. Selwyn Dexter of a patient with a headache-featured POIS symptom treated with progesterone/norethisterone.
http://casereports.bmj.com/content/2010/bcr.10.2009.2359.short?rss=1


How to get any or all of the above 5 studies: send me or "daveman" a Private Message (PM) with your regular email address (use "AT" instead of "@" ) and we'll send you back the PDF(s).

To send a Private Message, click on "My Messages" at the top of this page. Then click "Send Message". From that point on, it works just like posting a message here, except that it only goes to the person(s) you designate.


New York Times article,

January 20, 2009
Mind
Sex and Depression: In the Brain, if Not the Mind
By RICHARD A. FRIEDMAN, M.D.
http://www.nytimes.com/2009/01/20/health/views/20mind.html?_r=1&scp=1&sq=friedman%20sexual%20January%2020&st=cse

- - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -

In addition to serving our own informational interests, the resources listed above can be useful for you to show our credibility to the medical world - which often shows little understanding and is sometimes skeptical of our condition: POIS has scientific underpinnings and POIS is not "just another psychological problem" related to sex - to be treated by the psychiatric/psychotherapeutic community. All of this information can greatly help you to fight the immediate reaction of some doctors: so just tell them, "IT'S NOT 'ALL IN YOUR HEAD'! "





It can be very  helpful to you when dealing with medical professionals to point this out. Click to see

POIS' official listing, as recognized by the
National Institutes for Health (NIH), Office of Rare Diseases Research
:


And in Europe: Orphanet now lists POIS on their website. - Click here.

POIS also appears in credible medical sources such as the Journal of Sexual Medicine (Dr. Waldinger's study), British Medical Journal (Dr. Selwyn Dexter's study), and wikipedia:
http://en.wikipedia.org/wiki/Postorgasmic_illness_syndrome

For over 5 years, our POIS forum has attracted over 200 POIS sufferers worldwide who have posted here, research on an additional 200 sufferers elsewhere on the internet, plus our pages have been read nearly 2,000,000 times. Not bad for a rare malady.

Show some of this to your doctor - with pride. Chances are, you know far more about POIS than s/he does. Don't be intimidated by fancy diplomas. It's almost impossible for any one doctor to know much about POIS before you walk into his/her office. Unfortunately, it's up to you to educate them. And if you happen to find yourself with a disagreeable "student"-doctor (you're the teacher), find another doctor. Quickly!

SEARCH THE FORUM WITH GOOGLE

We have an overwhelming amount of data: more than 5 years' worth of posts (over  10,000 posts!) from 200+ Forum members, and an additional 200 POIS sufferers found elsewhere on the Internet by Member B_Jim.

In the Google search box, type
whatever-it-is-you're-interested-in-finding-out[space]POIS[space]site:http://thenakedscientists.com/

for example, I tried
nocturnal emission POIS site:http://thenakedscientists.com/

and 740 results came up for "nocturnal emission" within the Forum.

be careful with spaces (you can use them before the word "site") and no-spaces (everything after the word "site")

Google even provides you results with the Message# for each result. But Message #'s do change, so be patient and look for the approximate Message#.








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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16370 on: 09/05/2012 00:32:07 »

I am going to participate very soon in a POIS article that is going to appear in the Spainīs newspaper "El Mundo"- and its web-page: http://www.elmundo.es/ (3 million visitors each day, 1 million readers).



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Offline ejactrouble

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16371 on: 09/05/2012 00:50:15 »
Thank you for your quick reply demografx.

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16372 on: 09/05/2012 03:11:11 »

Thank you for your quick reply demografx.


My pleasure.


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Offline B_Daniel

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16373 on: 09/05/2012 06:56:28 »
Raynman, thank you so much for the donation!! That's amazing of you and welcome to the group/ team. I'm interested to hear about what's helped you over the years, if you wouldnt mind sharing. Also, out of curiousity, have you had pois since puberty, or did u develop it later on?
2-5 days, 80% cognitive, tongue-tied, brain fog, lose track of thoughts mid conversation, anxiety, dry eyes, irritable, fatigue.  Believer of both auto-immune AND regeneration theories.  My sessions are much shorter when I've gone 2 wks without.

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Offline ejactrouble

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16374 on: 09/05/2012 07:10:39 »
Anyone else here get blurry vision after ejaculation?  Vision is the least of my problems, but I can't even look at the computer because my vision is so blurry I can barely focus on anything (very annoying).  Trying to see if my blurriness is due to POIS or something else.

Thanks.

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Offline ejactrouble

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16375 on: 09/05/2012 07:45:31 »
Is it possible that POIS has something to do with blood pressure?

I'm asking because last week I had been a week without ejaculation (mentally clear) and went into a weight lifting session (mentally clear).  After doing some heavy deadlifts I immediately felt the typical symptoms I feel after ejaculation (extreme brain fog, blurry vision, physical and mental fatigue, etc.).  I was straining pretty hard on that set and could feel my mind 'snap' and alter itself so I felt completely different than just a moment before.

I don't know what else could have caused this in relation to the weights I was lifting.  What else is in play besides blood pressure?  Oxygen maybe?  Just trying to put 2 and 2 together on how I felt the same way after I did that set and how I normally feel after masturbation + ejaculation.  And if it was blood pressure related, why is blood pressure so high (low?) after ejaculation?  Does the body really put that much stress on itself to get rid of semen (or replace lost semen with bodily fluids)?
« Last Edit: 09/05/2012 07:47:43 by ejactrouble »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16376 on: 09/05/2012 07:51:04 »
Interesting. I've battled high blood pressure all my life.

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Offline Vasian1980

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16377 on: 09/05/2012 08:01:17 »
ejactrouble
Same thing with me! After heavy physical exertion comes confusion and a strong emotional tension is stronger than after sex.

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Offline kurtosis

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16378 on: 09/05/2012 08:39:10 »
ejactrouble
Same thing with me! After heavy physical exertion comes confusion and a strong emotional tension is stronger than after sex.

Depends what muscles I'm using. I'll sometimes get POIS like symptoms if I'm concentrating on leg muscles. I rarely get symptoms if I'm working my arms, unless I really over exert myself.

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Offline ejactrouble

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16379 on: 09/05/2012 09:42:49 »
ejactrouble
Same thing with me! After heavy physical exertion comes confusion and a strong emotional tension is stronger than after sex.

Depends what muscles I'm using. I'll sometimes get POIS like symptoms if I'm concentrating on leg muscles. I rarely get symptoms if I'm working my arms, unless I really over exert myself.


Funny you mention that, since I had just completed upper body with no problems (actually I was feeling great!), and the fuse blew in my brain right after my first set of Deadlifts.  So if it worsens with lower body I wonder what the relation is. 

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Offline ejactrouble

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16380 on: 09/05/2012 09:50:31 »
ejactrouble
Same thing with me! After heavy physical exertion comes confusion and a strong emotional tension is stronger than after sex.

What sucks is that I can't tell if I'm over-exerting myself until it's too late.  I never know where that line is.  They say no pain no gain, and to work your ass off in the gym, but it's a curse for us.

For what it's worth, I've always been very athletic prior to POIS and have very rarely had these symptoms.  It's only been the past couple of years that this whole POIS and brain fog thing has been going on.

I'm 24 by the way, and have been dealing with this for about 3 years now, which is just as long as I've been dealing with the whole psychiatric thing.  I don't know how old everyone is but does this affect men of all ages or just older men?

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Offline Vasian1980

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16381 on: 09/05/2012 10:17:20 »
I'm 25. 10 years bodybuilding, it is there, and came first POI, 2 years ago, in my confusion comes even  sex and hot water to wash my hair 100% immediately apparent effects, and if you cool water  POI does not occur. And I have constant anxiety and sweaty hands was not dependent  abstinence days.

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16382 on: 09/05/2012 13:40:27 »
I had severe POIS for 30+ years

Still started a business, raised a family.

Don't ask me how I did it!

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Offline Starsky

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16383 on: 09/05/2012 14:29:27 »
Talking about POIS in past simple must be a great feeling Demo!

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Offline ejactrouble

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16384 on: 09/05/2012 14:30:11 »
I had severe POIS for 30+ years

Still started a business, raised a family.

Don't ask me how I did it!

Incredible.  Congratulations demo, I don't know if I could have made it that long.  You sure are a fighter.  3 years is plenty for me!

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16385 on: 09/05/2012 14:36:21 »
Talking about POIS in past simple must be a great feeling Demo!

Want the truth? I cried when I read that, Starsky

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Offline Stef

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16386 on: 09/05/2012 17:22:50 »

I am going to participate very soon in a POIS article that is going to appear in the Spainīs newspaper "El Mundo"- and its web-page: http://www.elmundo.es/ (3 million visitors each day, 1 million readers).




That's terrific, Observer!!!!!

You are doing so much to raise awareness about POIS!

Looking forward to reading that article (in English!).

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Offline daveman

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16387 on: 09/05/2012 17:35:39 »
I've updated SMF total donations to $9270

$9270, incredible. We'll soon be in the 5 figures!!

Thanks Demo for your wonderful example. Just your effort alone is worth the world, and on top of it you donate BIG TIME.

You are Mr POIS!

Whether that's a good thing or not......?? Heh, heh

How does Murphey do it??

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Offline Green

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16388 on: 09/05/2012 18:14:05 »
I had severe POIS for 30+ years

Still started a business, raised a family.

Don't ask me how I did it!

Inspirational!

I was doing OK/well and then BAM severe depression hit me, only just returning back to what's normal for me.

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Offline gabin

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16389 on: 09/05/2012 18:29:22 »
Hey guys, has anyone tried anticonvulsants?
I'm about to try one of these as my POIS now resembles more neck and occipital nerve neurolgia with constant headache and neck spasm.

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Offline Starsky

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16390 on: 09/05/2012 20:00:14 »
I was given trileptal for mood swings and I had an O yesterday and no POIS symptoms.  I thought I should get the word out.  Of course I can't find the bottle but I'm sure it is a minimal dose.  Hope someone else can confirm my results

Yes, Robtabasco51 tried a anticonvulsant Oxcarbazepine before ejaculation and he says it worked for him.
« Last Edit: 09/05/2012 21:19:21 by Starsky »

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Offline edhawk10

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16391 on: 10/05/2012 01:57:53 »
I wish i was as strong as demo. Feel like i'm just crazy or something. Being on the computer and reading makes me feel even worse(feel a sudden rush sometimes)...but where else can i go? I feel unstable all the time. If i'm sitting down to eat or something i still feel the same. The strange thing is that if i completely lie down on the bed and kind of relax i can feel a lot better...I wish i had 30K or whatever was needed(even if it's all the money i have)..I'd gladly give it all for this research. This is no life.



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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16392 on: 10/05/2012 04:48:25 »
I had severe POIS for 30+ years

Still started a business, raised a family.

Don't ask me how I did it!

Incredible.  Congratulations demo, I don't know if I could have made it that long.  You sure are a fighter.  3 years is plenty for me!

Thank you very much for that, ejactrouble!

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16393 on: 10/05/2012 04:49:42 »
I had severe POIS for 30+ years

Still started a business, raised a family.

Don't ask me how I did it!

Inspirational!

I was doing OK/well and then BAM severe depression hit me, only just returning back to what's normal for me.

Many Thanks, Green!

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16394 on: 10/05/2012 04:53:19 »

I wish i was as strong as demo.


No way! If you're alive today, then you're just "as strong as demo"....and probably even stronger.

« Last Edit: 10/05/2012 11:43:39 by demografx »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16395 on: 10/05/2012 04:58:17 »
I've updated SMF total donations to $9270

$9270, incredible. We'll soon be in the 5 figures!!

Thanks Demo for your wonderful example. Just your effort alone is worth the world, and on top of it you donate BIG TIME.

You are Mr POIS!

Whether that's a good thing or not......?? Heh, heh



Haha. The feeling's mutual, Professor Daveman!
« Last Edit: 10/05/2012 05:26:14 by demografx »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16396 on: 10/05/2012 05:36:31 »

I am going to participate very soon in a POIS article that is going to appear in the Spainīs newspaper "El Mundo"- and its web-page: http://www.elmundo.es/ (3 million visitors each day, 1 million readers).




That's terrific, Observer!!!!!

You are doing so much to raise awareness about POIS!

Looking forward to reading that article (in English!).

A dream come true!

In the early forum (the wilderness) years, I couldn't even get a Farm Journal to write us up ( I lied and said POISers were all horses : - )
« Last Edit: 12/05/2012 18:54:02 by demografx »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16397 on: 11/05/2012 01:08:16 »
Begin forwarded message:

From: Google Alerts <googlealerts-noreply@google.com>
Date: May 10, 2012 4:44:49 PM PDT
To: demografx
Subject: Google Alert - Post Orgasmic Illness Syndrome POIS

Web   1 new result for Post Orgasmic Illness Syndrome POIS
 
Post Orgasmic Illness Syndrome (POIS)
I am going to participate very soon in a POIS article that is going to appear in the Spainīs newspaper "El Mundo"- and its web-page: http://www.elmundo.es/ (3 ...
www.thenakedscientists.com/forum/index.php?topic=6576...


This email above to me means that observercenter's work on EL MUNDO has been picked up by Google "spiders", and is now the beginning of our publicity for the POIS Forums' large potential Spanish-speaking audience.

Worldwide.

Thanks again, Observer.
« Last Edit: 12/05/2012 18:30:21 by demografx »

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Offline ejactrouble

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16398 on: 11/05/2012 03:40:08 »
Hey guys, has anyone tried anticonvulsants?
I'm about to try one of these as my POIS now resembles more neck and occipital nerve neurolgia with constant headache and neck spasm.

I think this is needed, since I have tried several psychiatric medications prior to knowing I had POIS (thinking it was mental illness).

AEDs (Anti Epileptic Drugs):
Depakote and Lamictal):
I have tried both Depakote and Lamictal, both of which are anti-convulsants.  Neither worked.  When taking these medications the psych would take my blood every so often (2 weeks) to get an appropriate blood level of the medication in my system.  These medications take time to build up in your system and cannot be taken for high doses without first slowly increasing the dose over a long period of time.  If you were to try and shock your system with either Depakote or Lamictal by taking a high dose in hope of eliminating POIS symptoms, you are under MAJOR RISK OF SERIOUS SIDE EFFECTS, such as seizures, skin rashes, and so on.  Therefore, taking a high dosage of an anti-convulsant immediately before ejaculation would not matter since the only way to take these medications is slowly (Lamictal takes 6 weeks+ to build up in the system and Depakote 3 weeks+), and the risk of doing significant damage to your body by trying otherwise is not a good idea.
------------------
Mood stabilizers (Lithium)
Lithium:
A mood stabilizer.  This actually has helped my mood somewhat but does nothing to help with POIS symptoms.  NOT EFFECTIVE FOR POIS.

---------------------------
Antipsychotics: (Abilify, Seroquel, Risperdal)
Abilify:  On it for a a month.  Had to keep increasing the dose due to continuous suicidal attempts.  Did not work and was taken off rather quickly.  NOT EFFECTIVE FOR POIS. 

Seroquel:
Terrible drug, made me sleepy all the time.  NOT EFFECTIVE FOR POIS.

Risperdal:
Taking this for the first time tonight.  The psych thinks I'm psychotic (which I am when suffering from POIS symptoms!).  I'll keep you all updated on this medication.  No data available for POIS treatment at this time.
-----------------

Anti-depressants:
Zoloft:
The bright side is that this drug completely stopped my premature ejaculation.  I could continuously thrust for 10 minutes and still not be ready to ejac.  It was also cool because I could control when I wanted to let it out.  The downside is that: 1) it takes a minimum of 3 days to 1 week to get the sexual thing down, meaning you have to continuously take it every day, 2) your sensitivity, enjoyment of sex, and libido plummet (we're talking near-zero), so while you may be able to last forever you keep looking at your watch because you're tired of it, and 3) it did help a little for POIS symptoms.  I'm not sure if it helped because I wasn't having sex/masturbation as much (no desire) or because of the serotonin alteration in the brain.  Be careful with this drug because I went from 25mg to 150mg within 6 months and it was HELL to come off of (yet I hear it's the easiest of the SSRI drugs to stop taking).  It also messes with your natural serotonin production if you take it long term (years).  It did not help depression at all. MINOR IMPROVEMENT OF POIS SYMPTOMS (maybe 20% reduction? nothing worthwhile).

Wellbutrin:
Currently on this medication right now.  I've taken 300mg twice a day, all at once, 150mg morning, night, etc.  I've varied the times and dosages of this medication (like all medications I've taken) quite considerably within the effective dose range.  Has done NOTHING for POIS or depression at all.  NOT EFFECTIVE FOR POIS.
----------------

I'm sure there's more I missed.  Tired, haven't slept, will update tomorrow when I have more time.  On the plus side I'm starting Day 3 of recovering from my last ejac. and will be clear headed in a matter of days.  Then it's celibacy for me!

« Last Edit: 11/05/2012 03:46:13 by ejactrouble »

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Offline jferr

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16399 on: 11/05/2012 07:51:32 »
Guys,

Sometimes I really wonder if taking all these medications before and after orgasm (in my case niacin before orgasm and a multitude of supplements within a minute after orgasm) will have bad long term effects for us if we ever choose to stop supplementing ourselves. Even if we don't stop with the supplementation, I wonder if it could be a negative thing for us to put all this 'ammo' in our bodys and brains to deal with sexual activity. Sometimes I feel like it could be messing with our cognitive state as a whole and maybe even our body's ability to recover.

Thoughts?