Post Orgasmic Illness Syndrome (POIS)

  • 20068 Replies
  • 6527095 Views

0 Members and 2 Guests are viewing this topic.

*

Offline kurtosis

  • Sr. Member
  • ****
  • 360
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16650 on: 01/06/2012 08:28:12 »
Has anybody tried fish oil capsules on daily basis yet?
Yes. Fish oil and Krill oil. KO seems to have more of an effect but I've used 2 brands and the quality seems quite variable. What I mean by this is that one of the brands smells quite fishy (rancid?) and has little effect on POIS and the other has no smell and helps reduce symptoms. Given there's also large variability in price of KO (the less smelly brand is twice the price of the other one) I decided to look for alternatives.

*

Offline prister

  • First timers
  • *
  • 7
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16651 on: 01/06/2012 17:34:37 »
Has someone tried immune supression?

*

Offline Balourd

  • First timers
  • *
  • 2
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16652 on: 01/06/2012 22:48:51 »
Hello guys!

I am 23 years old. Generally i masturbated a lot 5> times per day.I had several and severe problems with headache , depersonalization, brain fog all related things.
That lead me to depression. What helped me was acupuncture. Today i am lot better than then but still not like i should be.

I had always trouble with social contact etc. Before some years i felt that masturbation might cause me that fatigue and all related stuff. When i quit it for a week and with meditation and reiki , i felt lot better ,amazingly better. I found a girlfriend after two years within that week and was lot more social and smarter.

However , although i had sex i masturbated too much. I have many of the symptoms after ejacuation.. My mind stops working , i have almost nothing to say , feel lazy and cant help it (even having a deadline for work). This week i decided to try to live again more normal life. After 1-2 days of absistence i was feeling lot better. But after having sex i felt like hit by a bus. It was a sudden return. Within this week i have ejacuated one time only because of sex. Before finding this i was looking at over masturbation sites..
I have noticed that Monster energy drink that has B vitamins helps but has caffeine which makes me nervous. I tried niacin and felt better.. I am going to try niacin before sex to see if anything changes.. Generally i feel that i need 1-2 days for recovery..
I dont know what i should do but this thing keeps me back.My plans is niacin before sex and serious work with my self (meditation etc) and start excersising again. Also i think that i should find a good naturopath and test my hormones.
What helps me is eating meat, and B vitamins and abstaining and meditation.. Maybe all i have is sexual exhaustion because i masturbated more than 5 times daily and worked 12-15 hours per day ..


*

Offline Habibou

  • Sr. Member
  • ****
  • 196
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16653 on: 02/06/2012 00:54:03 »
If you put together the donations made + the pledges , we now reach the huge amount of 28, 500 $ !!!

Congratulations everybody !! We still need 5,000$ and the target is reached...
We should be ready to turn our pledges into real donations  ;)


*

Offline demografx

  • Moderator
  • Neilep Level Member
  • *****
  • 8197
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16654 on: 02/06/2012 05:22:40 »
Balourd, welcome to the POIS thread of The Naked Science Forum!  We believe that 2012 is POIS' Breakthrough Year. We hope to launch serious POIS Medical Research. A great time to be here!
   


Please check your mail inbox for a complete list of POIS resources.
(click on "My Messages" at the top of this page)

Welcome aboard!
Daveman and Demografx
Your forum moderators




*

Offline thereishope

  • Jr. Member
  • **
  • 13
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16655 on: 02/06/2012 05:25:12 »
hey guys, quick question, is there anyone experience POIS symptoms located in Montreal, Canada? If so please contact me.

Hope to hear from you.
« Last Edit: 02/12/2013 01:57:58 by thereishope »

*

Offline thereishope

  • Jr. Member
  • **
  • 13
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16656 on: 02/06/2012 05:52:55 »
I am really sorry guys, I have a confession to make and I hope no one takes it seriously. I we have remind guys that post about how depressing their lives are and start focusing more on the facts we have, solutions, ideas, symptoms and what might make this better.
Please guys no more depressing sh1t, lets step it up a notch and get to the bottom of this. We need less of a passive voice and more of an actionable voice. Everyone should speak up, opinions and ideas matter. Last but not least, lets make focus groups. In other words, we should put together groups of POIS sufferers and meet on a regular basis and meet each other physically. I don't know how were going to do this but I know if there's a will there's a way. Goodluck to everyone, stay strong!

*

Offline B_Daniel

  • Sr. Member
  • ****
  • 288
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16657 on: 02/06/2012 10:47:55 »
Has anybody tried fish oil capsules on daily basis yet?

I've been taking 2-3 fish oil pills per day for about 3 years now.  I have dry eyes that this helps tremendously with.  Also, my fingers get very sore when I don't take the fish oil.  The fish oil reduces inflammation in the tendon sheaths in my hand (my rheumatologist confirmed this).  Fish oil must be taken for 2 months straight before full effects kick in.

Does fish oil help my pois- not in a significant way. 
2-5 days, 80% cognitive, tongue-tied, brain fog, lose track of thoughts mid conversation, anxiety, dry eyes, irritable, fatigue.  Believer of both auto-immune AND regeneration theories.  My sessions are much shorter when I've gone 2 wks without.

*

Offline B_Daniel

  • Sr. Member
  • ****
  • 288
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16658 on: 02/06/2012 10:58:30 »
Finally by Gods grace, I found this Lady in florida, who worked on me and cleared over the phone for last six months ..

Nathan123, tatvamasi - thanks for sharing your experiences.  Positive or negative, questionable or not, I think it's helpful for us all to share experiences that we've tested more than a couple times.

I have recently had my own Alternative medicine experience I'd like to share.  I've been seeing a NAET acupuncture specialist for the last few weeks.  For those unfamiliar, NAET is a form of acupuncture which is supposed to cure/treat allergies.  NAET isn't based on any scientific reasoning, so I was skeptical from day 1.  That said, my insurance covered most of the visits, and I've tried so many other things, I thought I'd go for it.  I don't really have the energy to write up my whole experience seeing this lady, but today was the big day that I was tested for semen.  I went through the short procedure hoping it'd help.  Alas, I've still got exactly the same amount of POIS as I had going in there.  The only positive thing I can say about NAET is that I can cross another treatment option off my list, and that the sessions were super relaxing and the lady was very kind.  But NAET didn't help.

Also, I've seen a regular acupuncturist a few times as well.  He was of no help either.

« Last Edit: 02/06/2012 11:07:23 by B_Daniel »
2-5 days, 80% cognitive, tongue-tied, brain fog, lose track of thoughts mid conversation, anxiety, dry eyes, irritable, fatigue.  Believer of both auto-immune AND regeneration theories.  My sessions are much shorter when I've gone 2 wks without.

*

Offline strikef1

  • First timers
  • *
  • 2
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16659 on: 02/06/2012 11:57:18 »
Hi all,

it seems that I am one of the 45 people where the study was performed on and did the skin test (positive result). As there was not much found on the internet a couple of years ago, I gave up searching and was waiting for Dr. Waldinger's publications. After seeing a tv programme on TLC yesterday on POIS, it made me search the internet again and found several new sites on the POIS topic - including this one! Thanks for all you efforts!

It also motivated me to stop waiting and contacting Dr. Waldinger again.

I would like to share this with you - as you all have shared your life with me!
For me it also matters when I have an O. After sleep, I mostly am recovered.
  • In the morning: I get more and more fatigue / ill / concentration problems / hurting eyes / headache / diffulculty finding words and it influences my social life. And have to sleep early to recover - next day mostly recovered.
  • In the afternoon: same as above, but lighter.
  • Ideal moment around 6-7 pm: not too much problems, but I fall asleep at 11pm, no matter what.
  • After 9: all the symptoms as above but a more serious headache and even more tired the next day. Need to sleep to recover again.
  • After 0:00: not a good idea to have sex & O. (but that's when the wife likes it the most)[\li]
Problems are getting worse over the years - now 45 and suffering for 20 or more years. I furthermore have light hay fever / allergic to mosquito bites / allergic to sun (skin).

And I almost forgot: i am hyper sensitive.

I don't have any solutions or relief found yet - but I am going to try Xyzal as I have it also for my hay fever - and some of the symptoms are the same.

I really hope 2012 is our year!
« Last Edit: 02/06/2012 12:01:41 by strikef1 »

*

Offline Omen 30

  • Full Member
  • ***
  • 59
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16660 on: 02/06/2012 14:44:51 »
Yes,sleeping early helps me too...

*

Offline Habibou

  • Sr. Member
  • ****
  • 196
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16661 on: 02/06/2012 14:58:03 »
I also tried NAET without any success !

*

Offline demografx

  • Moderator
  • Neilep Level Member
  • *****
  • 8197
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16662 on: 02/06/2012 19:26:37 »
strikef1, welcome to the POIS thread of The Naked Science Forum!  We believe that 2012 is POIS' Breakthrough Year. We hope to launch serious POIS Medical Research. A great time to be here!
   


Please check your mail inbox for a complete list of POIS resources.
(click on "My Messages" at the top of this page)

Welcome aboard!
daveman and demografx
Your forum moderators




*

Offline demografx

  • Moderator
  • Neilep Level Member
  • *****
  • 8197
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16663 on: 02/06/2012 19:42:54 »

It also motivated me to stop waiting [to contact] Dr. Waldinger again.


This is a frequent problem.

But don't worry, anyone who needs a timely reply, including a copy of Waldinger's papers, please send a Private Message (PM) to me or to "daveman". (To send a message, just click on MY MESSAGES at the top of this page)

You are an important part of our search here for a POIS cure, since you participated in The Netherlands' studies!

Welcome again, strikef1!
« Last Edit: 04/06/2012 00:52:17 by demografx »

*

Offline demografx

  • Moderator
  • Neilep Level Member
  • *****
  • 8197
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16664 on: 02/06/2012 20:02:16 »
thereishope, welcome to the POIS thread of The Naked Science Forum!  We believe that 2012 is POIS' Breakthrough Year. We hope to launch serious POIS Medical Research. A great time to be here!
   


Please check your mail inbox for a complete list of POIS resources.
(click on "My Messages" at the top of this page)

Welcome aboard!
daveman and demografx
Your forum moderators



*

Offline Stef

  • Full Member
  • ***
  • 72
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16665 on: 02/06/2012 21:06:07 »
For those of you who are interested in learning more about alternative/complementary medicine, you may find some reliable information at the National Center for Complementary and Alternative Medicine (NCCAM).  This is one of the centers of the US National Institutes for Health (NIH).

The link is http://nccam.nih.gov/

They don't push any agendas or attempt to convince people to do anything.  This is a serious, scientific research arm of NIH, and provides general information and reports of studies undertaken on the various types of alternative medicine.

Stef

*

Offline B_Daniel

  • Sr. Member
  • ****
  • 288
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16666 on: 02/06/2012 21:53:35 »
I just saw some info on a male oral contraceptive in China.  I know that sperm count is only a small part of our pois, but still found this interesting:

"Gossypol has been used as oral contraceptive for man in People's Republic of China. In this study we used tablet preparation of gossypol, which is actually used as oral contraceptive for male in People's Republic of China, on a volunteer. The administration of 20 mg/day gossypol tablets for 19 days resulted in a tendency of decreasing sperm density and total sperm count, but had no effect on serum LH, FSH, PRL or testosterone. Furthermore, the volunteer had no complaints of side effects and his general laboratory findings were normal. Ten days after the termination of gossypol administration, sperm density returned to its preadministrative level. Our study suggests gossypol may be effective as a male oral contraceptive with no acute side effect."
2-5 days, 80% cognitive, tongue-tied, brain fog, lose track of thoughts mid conversation, anxiety, dry eyes, irritable, fatigue.  Believer of both auto-immune AND regeneration theories.  My sessions are much shorter when I've gone 2 wks without.

*

Offline demografx

  • Moderator
  • Neilep Level Member
  • *****
  • 8197
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16667 on: 02/06/2012 23:03:32 »
Interesting, B_Daniel! Since my sperm count inexplicably dropped to zero, this has my attention.

*

Offline demografx

  • Moderator
  • Neilep Level Member
  • *****
  • 8197
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16668 on: 02/06/2012 23:05:57 »
For those of you who are interested in learning more about alternative/complementary medicine, you may find some reliable information at the National Center for Complementary and Alternative Medicine (NCCAM).  This is one of the centers of the US National Institutes for Health (NIH).

The link is http://nccam.nih.gov/

They don't push any agendas or attempt to convince people to do anything.  This is a serious, scientific research arm of NIH, and provides general information and reports of studies undertaken on the various types of alternative medicine.

Stef

Fascinating, Stef, thank you! I never thought I'd see a reputable source for alternate medicine except PDRonline, but yours is so much more in-depth.

*

Offline Omen 30

  • Full Member
  • ***
  • 59
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16669 on: 03/06/2012 05:45:15 »
After an abstinence of almost 2 months,today I had an O in the morning and the symtoms have started showing.Lack of confidence and unable to take decisions.I have even noticed a pain in my head on the front right side not continous,but like a spike just comes for a second and goes away.it happened 4-5 times in the last 1 hour.

*

Offline nathan123

  • Sr. Member
  • ****
  • 106
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16670 on: 03/06/2012 07:53:52 »
After an abstinence of almost 2 months,today I had an O in the morning and the symtoms have started showing.Lack of confidence and unable to take decisions.I have even noticed a pain in my head on the front right side not continous,but like a spike just comes for a second and goes away.it happened 4-5 times in the last 1 hour.

For me also samething.  Whenever POIS effect is there, I feel heaviness / pain / sensation / something imbalance in front right side of my head & in left side it is completely normal.  This pain is not continuos, it is fluctuating.  I don't know what this pain is?
« Last Edit: 03/06/2012 07:55:32 by nathan123 »

*

Offline efreywoo11

  • First timers
  • *
  • 1
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16671 on: 03/06/2012 09:06:00 »
Hello Folks my Name is Eric I'm 28 yrs old and I too have many of these symptoms.  immediately after ejaculation or intercourse I have a big list of symptoms and they list as such; 1) brain fog and confusion 2) weakness and fatigue, 3) back pain 4) and forget running legs are too sore. 5)  SWEATING ALOT 6) is the worst I have terrible problems with DIGESTIVE TRACK constipation for couple days then as my body starts to feel better I have common healthy stools but also have Diarrhea. All these symptoms occur as long as i ejaculate. If I hold back from ejaculation of any kind my energy and body are perfect. My mind is on key no confusion. I have had these problems since i discovered masturbation. I believe in pois and the people who have it I'm looking for help. if you or anyone could help me this would change my world. I have seen family docs but no luck he says the basic blood test look fine. Im not convinced and I know your not either so please lets keep in touch and guide ech other find help this has gone too on long. Thanks

*

Offline levianthan

  • First timers
  • *
  • 2
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16672 on: 03/06/2012 14:27:00 »
hi guys i am new to the forum..i am happy to have found such a huge topic about POIS.I have almost all of the POIS symptoms but the symptom that bothers me the most is that i get low FEVER after ejaculation..37 degrees celcius or 98 degrees fahrenheit..it lasts for about 10-12 hours..then after 12 hours i still feel tired for a about a day or more and then i return back to feeling normal...during that time i also get low back pain testicle mild pain and knee pain,feel tired,my eyes get a bit itchy and i might get some mild headache also..

do any of you guys get low fever as well??as i havent seen this symptom discussed much

i ve noticed also that these symptoms can come without ejaculating..so only by pre ejaculate secretions..do you guys get this as well?

i ve also done recently some blood test and came normal..

prolactin:<0.7 (normal:2.1-17.7ng/ml)

Total Testosterone:679 (normal:249-836ng/dl)

i will also get a test for cortisole soon
« Last Edit: 03/06/2012 14:45:33 by levianthan »

*

Offline Stef

  • Full Member
  • ***
  • 72
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16673 on: 03/06/2012 16:25:06 »
Hi all,

it seems that I am one of the 45 people where the study was performed on and did the skin test (positive result). As there was not much found on the internet a couple of years ago, I gave up searching and was waiting for Dr. Waldinger's publications. After seeing a tv programme on TLC yesterday on POIS, it made me search the internet again and found several new sites on the POIS topic - including this one! Thanks for all you efforts!

It also motivated me to stop waiting and contacting Dr. Waldinger again.

I would like to share this with you - as you all have shared your life with me!
For me it also matters when I have an O. After sleep, I mostly am recovered.
  • In the morning: I get more and more fatigue / ill / concentration problems / hurting eyes / headache / diffulculty finding words and it influences my social life. And have to sleep early to recover - next day mostly recovered.
  • In the afternoon: same as above, but lighter.
  • Ideal moment around 6-7 pm: not too much problems, but I fall asleep at 11pm, no matter what.
  • After 9: all the symptoms as above but a more serious headache and even more tired the next day. Need to sleep to recover again.
  • After 0:00: not a good idea to have sex & O. (but that's when the wife likes it the most)[\li]
Problems are getting worse over the years - now 45 and suffering for 20 or more years. I furthermore have light hay fever / allergic to mosquito bites / allergic to sun (skin).

And I almost forgot: i am hyper sensitive.

I don't have any solutions or relief found yet - but I am going to try Xyzal as I have it also for my hay fever - and some of the symptoms are the same.

I really hope 2012 is our year!

Wow!!

Hello, strikef1!

It's not my job to welcome people to this forum -- that's strictly Demografx's and Daveman's domain.

But -- WELCOME TO THE FORUM!!!!!

I've wondered where all of the 45 men who participated in Dr. Waldinger's study had gone. I think you are the one and only participant to grace this forum.

It sounds like you found your way here via the TLC channel's story about "Animus" (his user name), the first POIS forum member to go public, about 2-3 years ago.  He's the POIS PIONEER (my expression, nothing official!).  Animus was so brave to be the first to go public, and now others have followed (Observercenter and Hoping were just involved in a huge story for El Mundo, Spain's largest newspaper).

The ripple effect is alive and well! 2-3 years later, the TLC channel's story is still reaching out to people.

Your isolation because of POIS is now over. You've found your comrades. :-)

Stef

 


*

Offline demografx

  • Moderator
  • Neilep Level Member
  • *****
  • 8197
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16674 on: 03/06/2012 16:46:16 »
befreywoo11, and levianthan, welcome to the POIS thread of The Naked Science Forum!  We believe that 2012 is POIS' Breakthrough Year. We hope to launch serious POIS Medical Research. A great time to be here!
   


Please check your mail inbox for a complete list of POIS resources.
(click on "My Messages" at the top of this page)

Welcome aboard!
daveman and demografx
Your forum moderators



« Last Edit: 04/06/2012 00:39:08 by demografx »

*

Offline strikef1

  • First timers
  • *
  • 2
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16675 on: 03/06/2012 20:02:30 »
Wow!!

Hello, strikef1!

It's not my job to welcome people to this forum -- that's strictly Demografx's and Daveman's domain.

But -- WELCOME TO THE FORUM!!!!!

I've wondered where all of the 45 men who participated in Dr. Waldinger's study had gone. I think you are the one and only participant to grace this forum.

It sounds like you found your way here via the TLC channel's story about "Animus" (his user name), the first POIS forum member to go public, about 2-3 years ago.  He's the POIS PIONEER (my expression, nothing official!).  Animus was so brave to be the first to go public, and now others have followed (Observercenter and Hoping were just involved in a huge story for El Mundo, Spain's largest newspaper).

The ripple effect is alive and well! 2-3 years later, the TLC channel's story is still reaching out to people.

Your isolation because of POIS is now over. You've found your comrades. :-)

Stef

 
Hi Stef,

Yes, my isolation is over and that really feels good! When I went to Dr. Waldinger in 2003 or so and the years after, I searched the internet for POIS. Then I only found one website, indicating the research by Dr. Waldinger as 'remarkable and funny'.
Now it gives me strength to share my experiences with you and for discussion with other people.

I received the articles from Demo and will study them in detail in the coming days.

Rob

*

Offline demografx

  • Moderator
  • Neilep Level Member
  • *****
  • 8197
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16676 on: 03/06/2012 21:20:09 »
Welcome again, Rob!

*

Offline daveman

  • Neilep Level Member
  • ******
  • 1002
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16677 on: 03/06/2012 21:23:34 »
Wow!!

Hello, strikef1!

It's not my job to welcome people to this forum -- that's strictly Demografx's and Daveman's domain.

But -- WELCOME TO THE FORUM!!!!!

I've wondered where all of the 45 men who participated in Dr. Waldinger's study had gone. I think you are the one and only participant to grace this forum.

It sounds like you found your way here via the TLC channel's story about "Animus" (his user name), the first POIS forum member to go public, about 2-3 years ago.  He's the POIS PIONEER (my expression, nothing official!).  Animus was so brave to be the first to go public, and now others have followed (Observercenter and Hoping were just involved in a huge story for El Mundo, Spain's largest newspaper).

The ripple effect is alive and well! 2-3 years later, the TLC channel's story is still reaching out to people.

Your isolation because of POIS is now over. You've found your comrades. :-)

Stef

 
Hi Stef,

Yes, my isolation is over and that really feels good! When I went to Dr. Waldinger in 2003 or so and the years after, I searched the internet for POIS. Then I only found one website, indicating the research by Dr. Waldinger as 'remarkable and funny'.
Now it gives me strength to share my experiences with you and for discussion with other people.

I received the articles from Demo and will study them in detail in the coming days.

Rob

Hi strikef1,

Many of us here have had success with niacin in reducing (practically eliminating in some) POIS symptoms. You may not have read this yet, so you might want to consider it.

I have heard members call it a miracle. It can be an emotional experience to be POIS free! (The results in some have been THAT good). Not all report positive results with it, in part this may be due to the procedure for taking it, which is VERY specific. If not followed to the letter, there are NO positive results. If followed correctly, the results are over-whelming.

There is information here http://poiscenter.com/forums/index.php?topic=174.0 and here http://poiscenter.com/forums/index.php?topic=319.0 . This is also one of our forums, many of the same members with 4400 posts and 207 members.
How does Murphey do it??

*

Offline demografx

  • Moderator
  • Neilep Level Member
  • *****
  • 8197
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16678 on: 03/06/2012 21:36:26 »

Total Testosterone:679 (normal:249-836ng/dl)


levianthan, please do not take this as a recommendation. I will only share my personal situation.

I felt some POIS relief when I took testosterone enough to put me in the "average" range. I'm older, so I experimentally asked my endocrinologist if I could up the dose 50% more than I really "need". But these averages in my opinion do not reflect POISers' testosterone averages.

It cured my POIS.

HOWEVER, this successful POIS high-testosterone-daily-patches strategy (for me) might have also killed off my sperm count. I will never know. But this doesn't matter to me because I have 2 wonderful grown sons!

AND...testosterone does NOT work for everyone.

_IF_  this approach appeals to you (niacin and some other treatments are definitely also worth considering!), then go see a POIS-compassionate endocrinologist (you can MAKE him compassionate-show him the POIS research). Especially point out that all Dutch POIS studies (2002 and 2011), have been carried out by a co-author who is an ENDOCRINOLOGIST, Dr. Dave Schweitzer.
http://sites.google.com/site/poiswebsite/pois-research-study/dr-david-schweitzer

Best wishes, levianthan!

« Last Edit: 04/06/2012 00:47:20 by demografx »

*

Offline observercenter

  • Full Member
  • ***
  • 87
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16679 on: 03/06/2012 23:26:42 »

Hi strikef1,

Many of us here have had success with niacin in reducing (practically eliminating in some) POIS symptoms. You may not have read this yet, so you might want to consider it.

I have heard members call it a miracle. It can be an emotional experience to be POIS free! (The results in some have been THAT good). Not all report positive results with it, in part this may be due to the procedure for taking it, which is VERY specific. If not followed to the letter, there are NO positive results. If followed correctly, the results are over-whelming.


Yes, i can assure what daveman is saying. I could announce that 2 more POIS sufferers (Both of them had been writing on this forum long time ago, so maybe they could announce it here in the coming days) who i have been in touch with have got excellent relief with niacin. I contacted with one of them via FB (because there is a FB group about POIS  :0 :0), and told him to try niacin... he reported me later that he was very happy with the result :)
« Last Edit: 03/06/2012 23:29:26 by observercenter »

*

Offline levianthan

  • First timers
  • *
  • 2
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16680 on: 04/06/2012 08:07:18 »

Total Testosterone:679 (normal:249-836ng/dl)


levianthan, please do not take this as a recommendation. I will only share my personal situation.

I felt some POIS relief when I took testosterone enough to put me in the "average" range. I'm older, so I experimentally asked my endocrinologist if I could up the dose 50% more than I really "need". But these averages in my opinion do not reflect POISers' testosterone averages.

It cured my POIS.

HOWEVER, this successful POIS high-testosterone-daily-patches strategy (for me) might have also killed off my sperm count. I will never know. But this doesn't matter to me because I have 2 wonderful grown sons!

AND...testosterone does NOT work for everyone.

_IF_  this approach appeals to you (niacin and some other treatments are definitely also worth considering!), then go see a POIS-compassionate endocrinologist (you can MAKE him compassionate-show him the POIS research). Especially point out that all Dutch POIS studies (2002 and 2011), have been carried out by a co-author who is an ENDOCRINOLOGIST, Dr. Dave Schweitzer.
http://sites.google.com/site/poiswebsite/pois-research-study/dr-david-schweitzer

Best wishes, levianthan!

thank you for providing this info..i wonder if you or others have tried the self pricking test with your own semen..did it come positive?

and also have you tested your cortisol levels??low cortisol could make the immune system overreactive

i am willing to try also the niacin treatment..what dose would you recommend?

*

Offline Starsky

  • Full Member
  • ***
  • 99
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16681 on: 04/06/2012 12:13:59 »
From 100 to 250 mg.

*

Offline badgerstripe

  • Jr. Member
  • **
  • 49
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16682 on: 04/06/2012 21:18:03 »

I have just got my blood test results back from Dr Goldmeier (the clinic lost the first lot which caused a delay of a few weeks)

All the below were normal:
Thyroid, testosterone,prolactin, glucose, liver, kidney, blood screen ( anaemia etc), calcium.

He said my Phospate level was a bit low and will redo that next time he sees me.

Low phosphate levels can have a number of causes, for example high calcium levels can put phosphate levels down, but i obviously dont definitely know why this might be. Poor absorption of nutrients can lead to it and i believe i have suffered from that in the past due to food allergies and intolerances so i could hazard a guess at that. Low phosphate levels can cause confusion, changes in mental state, irritable behavior and pain in muscles, also some of my POIS symptoms.

Another of Dr Goldmeier's suggestions was that POIS was caused by my using sexual behaviour to ease anxiety ( i know i do this) and the consequent drop in certain stimulating and "feel good" hormones after orgasm can be part of POIS. I find this to be a reasonable explanation but don't think this means "it's all in the mind", rather that body and brain chemistry effects thinking and mood  as a contributory factor in the depressed feeling of POIS. This doesnt completely explain my physical symptoms however.

If anybody has thoughts about any of the above - blood test results, phosphates or POIS's relationship to anxiety I would be glad to hear them.

*

Offline Habibou

  • Sr. Member
  • ****
  • 196
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16683 on: 04/06/2012 23:45:13 »
http://poiscenter.com/forums/index.php?topic=98.0

This is where you can post your blood test results ! Everybody should post it if we want to understand some medical disorders :)

*

Offline badgerstripe

  • Jr. Member
  • **
  • 49
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16684 on: 05/06/2012 00:10:20 »
thanks Habibou, have posted there.

*

Offline demografx

  • Moderator
  • Neilep Level Member
  • *****
  • 8197
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16685 on: 05/06/2012 01:19:25 »

http://poiscenter.com/forums/index.php?topic=98.0

This is where you can post your blood test results ! Everybody should post it if we want to understand some medical disorders :)



Thank you, Habibou.
« Last Edit: 05/06/2012 01:21:10 by demografx »

*

Offline kurtosis

  • Sr. Member
  • ****
  • 360
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16686 on: 05/06/2012 08:40:27 »

I have just got my blood test results back from Dr Goldmeier (the clinic lost the first lot which caused a delay of a few weeks)

All the below were normal:
Thyroid, testosterone,prolactin, glucose, liver, kidney, blood screen ( anaemia etc), calcium.

He said my Phospate level was a bit low and will redo that next time he sees me.

Low phosphate levels can have a number of causes, for example high calcium levels can put phosphate levels down, but i obviously dont definitely know why this might be. Poor absorption of nutrients can lead to it and i believe i have suffered from that in the past due to food allergies and intolerances so i could hazard a guess at that. Low phosphate levels can cause confusion, changes in mental state, irritable behavior and pain in muscles, also some of my POIS symptoms.

Another of Dr Goldmeier's suggestions was that POIS was caused by my using sexual behaviour to ease anxiety ( i know i do this) and the consequent drop in certain stimulating and "feel good" hormones after orgasm can be part of POIS. I find this to be a reasonable explanation but don't think this means "it's all in the mind", rather that body and brain chemistry effects thinking and mood  as a contributory factor in the depressed feeling of POIS. This doesnt completely explain my physical symptoms however.

If anybody has thoughts about any of the above - blood test results, phosphates or POIS's relationship to anxiety I would be glad to hear them.

Hi Badgerstrip. Did you get any allergy tests done?

*

Offline kurtosis

  • Sr. Member
  • ****
  • 360
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16687 on: 05/06/2012 08:41:11 »

I have just got my blood test results back from Dr Goldmeier (the clinic lost the first lot which caused a delay of a few weeks)

All the below were normal:
Thyroid, testosterone,prolactin, glucose, liver, kidney, blood screen ( anaemia etc), calcium.

He said my Phospate level was a bit low and will redo that next time he sees me.

Low phosphate levels can have a number of causes, for example high calcium levels can put phosphate levels down, but i obviously dont definitely know why this might be. Poor absorption of nutrients can lead to it and i believe i have suffered from that in the past due to food allergies and intolerances so i could hazard a guess at that. Low phosphate levels can cause confusion, changes in mental state, irritable behavior and pain in muscles, also some of my POIS symptoms.

Another of Dr Goldmeier's suggestions was that POIS was caused by my using sexual behaviour to ease anxiety ( i know i do this) and the consequent drop in certain stimulating and "feel good" hormones after orgasm can be part of POIS. I find this to be a reasonable explanation but don't think this means "it's all in the mind", rather that body and brain chemistry effects thinking and mood  as a contributory factor in the depressed feeling of POIS. This doesnt completely explain my physical symptoms however.

If anybody has thoughts about any of the above - blood test results, phosphates or POIS's relationship to anxiety I would be glad to hear them.

Hi Badgerstrip. Did you get any allergy tests done?
That should have been badgerstripe. Almost as funny as my last mistype :)

*

Offline badgerstripe

  • Jr. Member
  • **
  • 49
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16688 on: 05/06/2012 09:57:16 »
No allergy tests yet but i am seeing allergy specialist in relation to POIS at end of month.
Badgerstrip (!)

*

Offline daveman

  • Neilep Level Member
  • ******
  • 1002
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16689 on: 05/06/2012 14:53:06 »

I have just got my blood test results back from Dr Goldmeier (the clinic lost the first lot which caused a delay of a few weeks)

All the below were normal:
Thyroid, testosterone,prolactin, glucose, liver, kidney, blood screen ( anaemia etc), calcium.

He said my Phospate level was a bit low and will redo that next time he sees me.

Low phosphate levels can have a number of causes, for example high calcium levels can put phosphate levels down, but i obviously dont definitely know why this might be. Poor absorption of nutrients can lead to it and i believe i have suffered from that in the past due to food allergies and intolerances so i could hazard a guess at that. Low phosphate levels can cause confusion, changes in mental state, irritable behavior and pain in muscles, also some of my POIS symptoms.

Another of Dr Goldmeier's suggestions was that POIS was caused by my using sexual behaviour to ease anxiety ( i know i do this) and the consequent drop in certain stimulating and "feel good" hormones after orgasm can be part of POIS. I find this to be a reasonable explanation but don't think this means "it's all in the mind", rather that body and brain chemistry effects thinking and mood  as a contributory factor in the depressed feeling of POIS. This doesnt completely explain my physical symptoms however.

If anybody has thoughts about any of the above - blood test results, phosphates or POIS's relationship to anxiety I would be glad to hear them.


Im sorry, all I can say is HOGWASH!

Doesn't fit at ALL. He needs a good dose of POIS to know what we go through. There's a lot more to it than what he is suggesting.

If there is a consequent drop in certain stimulating and "feel good" hormones after orgasm, this is not normal, even if you do tend to rely on sex to relieve anxiety. A normal person, can be "horny" and relieve himself at least once or twice a day and not suffer these kinds of consequences. MAYBE he might come to feel a little weak or "burnt" out. This is NOT AT ALL like POIS.

This man has no idea of what POIS is in my honest opinion. And Yes, what about the physical symptoms?!!


Sorry!!

How does Murphey do it??

*

Offline demografx

  • Moderator
  • Neilep Level Member
  • *****
  • 8197
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16690 on: 05/06/2012 15:41:00 »
That was my reaction, too, when I read badgerstripe's post.

I was dismayed with that plus the video. Originally I was very hopeful of his enlightened work in accepting POIS patients, but now?

Sorry with Daveman!!!
« Last Edit: 05/06/2012 20:31:59 by demografx »

*

Offline Stef

  • Full Member
  • ***
  • 72
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16691 on: 05/06/2012 17:26:15 »
Badgerstripe,

The blood tests that Dr. Goldmeier ordered are very basic tests.  So, it isn't surprising that nothing showed up that could potentially point to an immunological problem, a hormonal imbalance, or an inflammatory condition (these are just some examples).

He may be a wonderful psychiatrist -- I have no idea if he is or isn't -- and may even have some worthwhile techniques to offer that could help lower a bit of the stress that POIS induces. But his work-up from a medical standpoint sounds far from complete, especially in a condition as complicated (and, to date, mysterious) as POIS.

Is Dr. Goldmeier a psychiatrist? Does he have any other specialty?

I ask because I'm trying to understand his involvement with POIS and why is he referenced so frequently on this forum.  I've found him on the databases that we use, but could not determine why he's considered by some of the forum members as a POIS expert.  This is not to cast any aspersions -- I really don't know his background.  Input would be appreciated!

(The fact that his office lost your first set of blood tests is not a good sign, just FYI.)

I wish you the best of luck with the allergist that you'll be seeing.  However, keep in mind that POIS might not be an allergy (it might be, but nobody knows yet!).

It's all very frustrating, and I can only imagine what it's like to try to go through a POIS workup without any basic, scientific research having been undertaken.

Best wishes to you!

Stef   








*

Offline demografx

  • Moderator
  • Neilep Level Member
  • *****
  • 8197
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16692 on: 05/06/2012 18:30:36 »
Thank you, Stef! I'm partly to blame for tagging him as a POIS expert. I was impressed with him because he is very rare as a "POIS physician" in that 1) he wrote a POIS paper (only a handful of POIS papers written anywhere) and 2) he showed enthusiasm for seeing POIS patients in London.

I simply was  not aware of his POIS-is-psychosomatic leanings.

Sad to say, Goldmeier is now on my "Doubtful" list : - (

« Last Edit: 05/06/2012 18:39:26 by demografx »

*

Offline makrofag

  • Jr. Member
  • **
  • 22
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16693 on: 05/06/2012 19:34:38 »
!!! Feeling good or feeling bad about having and orgasm or using it for anxiety relief has nothing to do with POIS. If the silly Goldmeier theory was true then there would be hundreds of thousands of POIS already documented throughout the human history because of many obvious reasons. Nothing to really do with the psychological aspect of the whole damn thing.

But still... there could be something wrong with the brain - not physically (as people already had brain scans and no anomalies were seen) but maybe something on the more "autonomous" side of things with an interaction with some kind of an unknown and new factor (let's say 1950 - present) that was not present in the past. God knows :P

*

Offline kurtosis

  • Sr. Member
  • ****
  • 360
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16694 on: 05/06/2012 20:40:32 »

Another of Dr Goldmeier's suggestions was that POIS was caused by my using sexual behaviour to ease anxiety ( i know i do this) and the consequent drop in certain stimulating and "feel good" hormones after orgasm can be part of POIS.

Everybody does this. I talked to my psychologist friend about this and he said it's common that guys have O's to relieve stress or tension. In itself, this doesn't appear to be a problem. If it's chronic anxiety and you're having O's every day to relieve it then that's possibly different.

*

Offline kurtosis

  • Sr. Member
  • ****
  • 360
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16695 on: 05/06/2012 20:42:23 »

Another of Dr Goldmeier's suggestions was that POIS was caused by my using sexual behaviour to ease anxiety ( i know i do this) and the consequent drop in certain stimulating and "feel good" hormones after orgasm can be part of POIS.

Everybody does this. I talked to my psychologist friend about this and he said it's common that guys have O's to relieve stress or tension. In itself, this doesn't appear to be a problem. If it's chronic anxiety and you're having O's every day to relieve it then that's possibly different.
What I mean is that I do this also and that's why I ended up talking about it. There's nothing to be worried or ashamed of here. And, in any event, the POIS symptoms would cause anxiety even if there was no other reason to be anxious!

*

Offline lauracostis

  • Sr. Member
  • ****
  • 257
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16696 on: 05/06/2012 22:51:43 »
!!! Feeling good or feeling bad about having and orgasm or using it for anxiety relief has nothing to do with POIS. If the silly Goldmeier theory was true then there would be hundreds of thousands of POIS already documented throughout the human history because of many obvious reasons. Nothing to really do with the psychological aspect of the whole damn thing.

But still... there could be something wrong with the brain - not physically (as people already had brain scans and no anomalies were seen) but maybe something on the more "autonomous" side of things with an interaction with some kind of an unknown and new factor (let's say 1950 - present) that was not present in the past. God knows :P
The absence of previously documented cases in our case does not suggest that POIS is a new phenomenon.  You may be correct that new external factors in our environment have precipitated this disease, but I think it has more to do with the rarity of the disease and the stigma surrounding it.  I believe the only reason it was first described by doctor Waldinger had to do with the fact that he "luckily had two patients" with the phenomenon and then decided to search for others.  I think if a physician were to encounter just one patient with pois during their career, but could not find another doctor or documentation of the disease listed anywhere, that they would dismiss it as psychosomatic.  Furthermore, doctors who looked into the symptoms may have come to the conclusion that their patient was suffering from Daht syndrome.  Documenting the case as Daht syndrome would there for never arise suspicions of a new disease.  The lack of "visible signs" and "objective data pieces", such as positive lab value and scans makes it real hard for a physician to believe that he is encountering a "real" and "new" disease.

As we know with organizations like NORD, that there are always new rare diseases being discovered.  Having objective abnormal data is the only thing that can solidify these as new diseases.  Knowing the etiology of the disease is not necessary, however what is necessary is showing scientist something concrete that they can all see and agree upon.  Without Waldingers study showing that a majority of POIS patients had positive allergy tests to their own semen, we would not have any objective data.  Whether, these positive semen allergies are relevant or not I don't know, but I do know that NORD would have not considered us as a new disease without them.
« Last Edit: 05/06/2012 23:10:55 by lauracostis »

*

Offline Habibou

  • Sr. Member
  • ****
  • 196
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16697 on: 05/06/2012 23:40:26 »
We need a brain Functional MRI  before, while exciting with an O, and during POIS to understand what is wrong with the brain functions.

The past stuctural brain MRI only could show " the pituitary adenoma" some POIS patients got, but nothing more.

When Dr Goldmeier told me I should practice meditation last august, I thought it was a joke...But he made me done the Own semen allergic tests and it was positive (2 cm).
Since, I started a desensibilization but it is hard to know if it helps because I am in Chronical Fatigue state!

*

Offline Vincent M

  • Sr. Member
  • ****
  • 285
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16698 on: 06/06/2012 01:47:23 »
Has someone tried immune supression?

Yes, I know of one member who has tried an immunosuppressant with no effect on POIS.
Taking fenugreek+tea/garlic, saw palmetto, huperzine, niacin, boswellia, and nutmeg.

*

Offline Hoping

  • Full Member
  • ***
  • 57
    • View Profile
Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #16699 on: 06/06/2012 05:26:31 »
Has someone tried immune supression?
Yes, I know of one member who has tried an immunosuppressant with no effect on POIS.
Correct. After testing positive for a semen allergy, I experimented with 30-45mg of prednisone (an immune system suppressant). I tried taking the medication several hours before O. I also experimented with taking it directly after an O. It didn't help me. Still, I would encourage others to consult their doctors if they're interested in prednisone or a similar drug. It never hurts to have more 'test subjects'