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Hi Kurtosis, at least I'm 100% sure that vitamin C is causing some anxiety (very severe if I persist) in my case, so there is definitely a reason. I was also reporting I have not always been like that, it took months after starting the supplement in high doses. I'm ok (or borderline) with 180mg/day + multivit/min. I feel good with one or two glass of orange juice daily and even feel the need to drink more of it after orgasm.About the depletions I have read this before the internet, from a book written by a scientist from the CNRS (french national center for scientific research) but I know it can be wrong that's why I wrote "could deplete" (is it the conditionnal, not sure with my english). I agree with you, a lot of studies are biased.Empirically, magnesium is what was helping me the most with this side effect but taking it regularly was not enough so I had to reduce vitamin C. I don't believe it's easy to make a diagnosis since blood levels can be normal even with a deficiency. I never had any problem with GC (or you) reporting his success with vitamin C or with anything before. I'm glad he did it. I'm just reporting my own experience just in case it can help someone with the same issue.Not aware of this I would have been forced to take a medication.
Quote from: questforlife on 14/06/2012 23:08:22I want to keep on topic to pois, which the sexual excitement/release causes us to use up a reserve supply of chemicals and loose nutrients. When this interesting theory was discussed some POIS sufferers said they could have an orgasm without ejaculation followed by POIS. Then we supposed they could have retrograde ejaculation (ejaculation in the bladder). Retrograde ejaculation can be easily diagnosed by checking urine for sperm content with a microscope. Too bad I can't have a dry orgasm to test this. Here is a video showing an excellent view of swimming sperm through a low priced microscope (intended for fertility tests at home)://www.youtube.com/watch?v=f_ZgORkEVVg [nofollow]Quote from: questforlife on 14/06/2012 23:08:22Id love to try something like a meyer cocktail That's almost what desensitization with undiluted sperm is.About the allergy theory(Important: this injection should be done under medical supervision to prevent serious and potentially fatal side effect like anaphylactic shock) : Did someone tried to do an injection directly with a small amount of undiluted sperm, without trying with dilutions before? This should give you a full POIS episode if the theory is true.
I want to keep on topic to pois, which the sexual excitement/release causes us to use up a reserve supply of chemicals and loose nutrients.
Id love to try something like a meyer cocktail
Just a quick note on B12, I had an only partially succesful niacin treatment a few days ago, and I decided to go get some B12. I could only find sublingual methods, but I took a 5000 mcg tablet and nothing happened. After a couple hours I took another. This was not good, as I felt pretty crappy after taking the second one.
Quote from: Nightingale on 16/06/2012 00:04:17Just a quick note on B12, I had an only partially succesful niacin treatment a few days ago, and I decided to go get some B12. I could only find sublingual methods, but I took a 5000 mcg tablet and nothing happened. After a couple hours I took another. This was not good, as I felt pretty crappy after taking the second one. Nightingale - Thank you for sharing your experience with B12. It's incredibly helpful to know that that didn't work for you. We've got to start being more open about our successes AND failures.
GoingGrazy was taking C with salt (sodium chloride) giving it a sodium ion to bind to when excreted. It appears unlikely he's suffer from depletion of other trace minerals but without regular blood tests we wouldn't know. I don't think there's any studies showing that anxiety is caused by high dose vitamin C this but he doesn't seem to be suffering from anxiety symptoms. Actually, in my experience I feel it decreases anxiety. Like a mild SSRI.
Martin88, I received an intradermal test of undiluted semen from Dr. Betwra and Dr. Nguyen at Creighton University in March 2011. I has hit hard by POIS symptoms after the test. As I stated in my post describing the test experience, "...I received the p-r-i-c-k test as well as the intradermal injection tests since I wasn't entirely clear on which to ask for (Waldinger's study refers to "intracaneous injections" but calls it a p-r-i-c-k test.) Dr. Nguyen did not dilute the semen as Waldinger specified. The p-r-i-c-k tests showed a slight reaction (about 3x3mm wheal and erythema and a 5x5mm wheal and erythema). The intradermal reactions were huge. It was 25x30mm wheal and erythema and 15x30mm wheal and erythema. Waldinger says in his study that wheal and erythema less than 5mm is negative. (For those who don't know, the "wheal" is the red bump that appears and the "erythema" is the flaring out rash that surrounds the wheal. Measuring these two components gets the numbers I mentioned above). It's interesting to note that after the testing, I was hit by a bout of POIS fatigue and brain fog very quickly. Normally my POIS lingers for around 10 days. This time the symptoms hit me quick and hard. I fell into a deep sleep for an hour which helped symptoms. They didn't linger too badly."
There's been a lot of success with Niacin. Is there anyone with Constant POIS that has found success with Niacin?Has anyone with Constant POIS found ANY good treatment for the "constant" part of the POIS?
Hi, today I got my vitamin D level blood test. My V D level is 2 whereas normal range is 30 to 70. I am in severe deficient of Vit D. does Vit D has any link with auto immune diseases?
Quote from: kurtosis on 17/06/2012 12:28:18GoingGrazy was taking C with salt (sodium chloride) giving it a sodium ion to bind to when excreted. It appears unlikely he's suffer from depletion of other trace minerals but without regular blood tests we wouldn't know. I don't think there's any studies showing that anxiety is caused by high dose vitamin C this but he doesn't seem to be suffering from anxiety symptoms. Actually, in my experience I feel it decreases anxiety. Like a mild SSRI.Just to let members know that yes I did take that vitamin C/Sea salt regimen for a little more than 3 weeks and have since taken the salt out of the regimen, and now I am just continuing on the vitamin C, 500 mg daily. Not sure if I even need to take it but I feel like it may have a benefit. Just posting this to make sure others know that I am no longer on the sea salt.
Quote from: nathan123 on 17/06/2012 15:22:23Hi, today I got my vitamin D level blood test. My V D level is 2 whereas normal range is 30 to 70. I am in severe deficient of Vit D. does Vit D has any link with auto immune diseases?Nathan 123,Your Vit D level is severely low!!Do you know what specific Vit D test was performed? Was it the 25(OH)D test? This is the most accurate test for Vit D deficiency, so please ask your doctor which test was done.What does your doctor think is causing this serious deficiency, and what do you need to do to correct it?Stef
I can hardly contain myself: this allergist I saw almost a year ago just contacted me this morning after "reading an article in a magazine (I don't know which one yet) that described exactly what you were complaining about." She contacted someone at the University of Virginia, just two hours away, and found out there was someone "very interested" in seeing me! I know for sure that they talked about performing a pin ***** test, as that is what I was trying to do at my allergists but they did not have the equipment to perform it like Dr. Waldinger does for diagnosis.I'm waiting to hear back on an appointment time at the university, and I'll try to find out what "magazine" this was that made it to my allergist's hands!Keep up the hope
My theory:I have suffered a physical trauma to my right testicle through which immune cells gained access to the testicular microenvironment. Thus, the immune privilege might be broken and immune responses no longer suppressed. I came up with the suggestion to test this by pharmacological suppressing my immune system, just as it is for example done with transplant patients to prevent foreign tissue from being rejected. I dug up this seemingly unrelated info (...sorry, you cannot view external links. To see them, please
REGISTER or LOGINMost of the pages will not be relevant to you but have a look at diseases_1.jpg. The table is an excerpt from a 1993 paper of Rose/Bona, modifying something called "Witebsky's postulates". I did not get access to the 1993 paper (30USD) but the Witebsky criteria have to be met for a diseases to be classified as an autoimmune disease. I am not sure about the generally accepted status of POIS, is it actually classified as an autoimmune disease?! If so, on what basis? The evidence that has to be met according to the table is rather difficult to gather and it might not happen during our lifetime... BUT Level 3.6: RESPONSIVENESS TO IMMUNOSUPPRESSION !!! There it is again, and to me it is perfectly logical and just makes sense. I believe my symptoms to be autoimmune related, if this is indeed the case, symptoms should be diminished / vanish if the immune system is somehow suppressed.Still I was not allowed an appointment with an immunologist before seeing a specialist for psychosomatic medicine / sexual therapy. The Prof completely ignored any facts I presented, alluded to my anxiety (very surprising after two years of continued POIS suffering) and proposed the usual psych therapy including SSRI's etc. I left after the second session. Being finally granted an appointment with the immunologist after five months, he also was very reluctant to pursue the immunosuppression route. I had to listen to numerous arguments why not to do it, how dangerous it is, sideffects etc (not that millions of transplant patients worldwide are living under immunosuppression, immunosuppression being indicated for several autoimmune diseases), that we would not gain anything from this exercise since I cant live my whole life with my immune system being knocked out (Knowledge gained?! Understanding of the POIS mechanism?), and the best one, that he could give me only 1/100th of the dose that would be indicated for eg the special eye case since I dont have anything SERIOUS!!! In order to get rid of me, to postpone decisions, and not to take any risks on his side, he sent me to urology again to take a biopsy of my right testicle to look for the infiltration of any inflammatory cells, which would support my theory. Four weeks later I had the appointment, the evening before I had some ejaculations to be sure to be in worst POIS state when the procedure was performed. The doc (he did not see me before) arrived 15min late, that was the time it took him to read up on my file. You can be sure that he never heard of POIS before, did not read a single paper on the topic and my file was the first time he was confronted with any of this... still the first thing he could tell me for sure when he entered was that POIS does not exist. Usual procedure of ignoring my arguments, using my POIS state against me by telling me what a clear case for a psychologist I am ("dont worry, in the US everybody has a shrink!") and that I should just IGNORE my symptoms! He refused to do the biopsy (probably for the better, its quite an invasive procedure that I rather go without) and sent me home with a prescription for Voltaren ... what a joke, never met anybody as prejudiced and arrogant as this guy.So here I am... tomorrow I have a call with the immunologist again, I will try to make an appointment to start a diagnostic immunosuppression but the answer I will get is pretty clear, he will refuse to do it...My problem is I cant go on living like this, I am almost unable to work, the way I feel EVERY morning you would normally not even get out of bed and just call in sick... I would like confirmation or rejection of my autoimmune theory based on facts so I can make an informed decision on how to continue... but most likely I will even be denied my diagnostic proposal. Most likely I will be denied any further help in this developed medical system and might be forced to seek help outside... like animus did.Any suggestions, feedback, options?
I think difficulties faced after an Orgasm or a NE are just a signal and the real culprit is something else...maybe some deficiency or maybe obesity or stress etc...
Great news Nightingale! Be sure to request an intradermal test in addition to (or instead of) the p-rick test. Waldinger describes "intracaneous injections" (AKA intradermal test) but refers to them as p-rick test in his paper. A p-rick test is just that -- a small skin p-rick with the allergen. In an intradermal test, the allergen is physically injected with a syringe just below the skin.
Just a quick follow-up, forgot to mention that there actually is something called 'autoimmune orchitis' which is an autoimmune inflammation of a testicle:http://www.ncbi.nlm.nih.gov/pubmed/21842235 [nofollow]http://autoimmune.pathology.jhmi.edu/diseases.cfm?systemID=3&DiseaseID=20 [nofollow]http://www.preservearticles.com/2012032028162/what-is-autoimmune-orchitis.html [nofollow]Not directly relevant to you but I believe that this is the cause of / related to my POIS...Interestingly one of the articles mentions 'testicular atrophy', a shrinking of the testicle. The urologist told me that mine are 'smaller than usual' but that doesnt mean anything... certainly not in connection with my autoimmune hypothesis *sarcasm off* ... Autoimmune orchitis was never mentioned during the talk with the urologist, however he seemed to have a lot of knowledge in the psychological field *some more sarcasm* ...
What about testosterone treatment, if nothing really works you could go for the Animus solution.
We wanted to let you know that the management has asked us that thereshould be no promotion of NORD fundraising nor our other forum here.DavemanDemografx
Hi everyone!!I read some days ago a very sad story about an old woman - bus monitor - who was bullied by some "stupid"(i am restraining myself) kids on the bus in New York. They made the woman cry, and the despicable event was recorded. The event went viral and the media is airing this episode all over the world: ...sorry, you cannot view external links. To see them, please
REGISTER or LOGIN -> The campaign of this noble woman. Maybe we could start a campaign for our NORD cause. Though it is impossible to replicate the success of this woman, every little contribution would add up and we could be near of our objective. What do you think? I encourage you to do some brain-storm here, to try to present our cause in a simple, and at the same time, profound way that would need to appeal directly to the people´s compassion- without forgetting to back it with scientific sources and the material we have collected till now.So if you want to collaborate, post your thoughts and ideas here or send me a PM. We would need a team like in our reddit experience to comment in this site. We could talk over it. Cheers!
The following post...sorry, you cannot view external links. To see them, please
REGISTER or LOGIN) that liver was used to treat pernicious anaemia in the days before b12 injections and is also high in arachidonic acid.
dear member, sorry if I use your post for other goal. for a whole weekend i try effortless to do what everybody wants to do here when first arrived at 'pois hospital'. to post a post. It drives me mad to see only reply buttons, but no 'post your own post 'button.please gide me to post my first post to the members. A desperate Dutchman. I have been accustomed at many forums but this one seems to be for only the more intelligent pois sufferers. ( nomen =omen..scientists forum) But the dummies like me whithout scientific education need pois relieve and contacts too. please help me to add my own post with all biographical data of my treatment and pois hystory. Thanks in advance , Tantalus
Quote from: Nightingale on 19/06/2012 17:13:15I can hardly contain myself: this allergist I saw almost a year ago just contacted me this morning after "reading an article in a magazine (I don't know which one yet) that described exactly what you were complaining about." She contacted someone at the University of Virginia, just two hours away, and found out there was someone "very interested" in seeing me! I know for sure that they talked about performing a pin ***** test, as that is what I was trying to do at my allergists but they did not have the equipment to perform it like Dr. Waldinger does for diagnosis.I'm waiting to hear back on an appointment time at the university, and I'll try to find out what "magazine" this was that made it to my allergist's hands!Keep up the hope Great news Nightingale! Be sure to request an intradermal test in addition to (or instead of) the p-rick test. Waldinger describes "intracaneous injections" (AKA intradermal test) but refers to them as p-rick test in his paper. A p-rick test is just that -- a small skin p-rick with the allergen. In an intradermal test, the allergen is physically injected with a syringe just below the skin.
Does P.O.I.S. affect Female surely no, so that support that O. decreases some thing in the body and what is it??please let me knowwwwww.!!!!
Hi tantalus,"Pois and isolation even in the own group". Just curious: Who promised you (and the other guys) in 2004 to be united?Thanks in advance!
Quote from: Druid Getafix on 26/06/2012 09:47:27Hi tantalus,"Pois and isolation even in the own group". Just curious: Who promised you (and the other guys) in 2004 to be united?Thanks in advance!sorry, but I dont want to tell this. I just wanted to explain my urge to meet my palls, and my dissapointment. But i learned something by your question, could better not have mentioned it. was not really functional. thanks for the lesson.On the other hand... I can in a way understand the own legitimate reasons to not bring us together. But extreme sad i was and be until now. Yes. If the person who recognises himself in this reads this to, its i hope enough stimulus to promise this never again.not any more questions?....I am disappointed;>) Or did I do the rest of my letter so well?
p.s. the point is .....when you would get an injection with sperm as a first test( to see IF you react at all) you would get a much to strong alarm effect. Thats why I had e problems with the word combination >intradermal test<I hope my Flintstone english is understandable for you both.