Post Orgasmic Illness Syndrome (POIS)

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Offline Over it

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #18300 on: 08/06/2013 03:44:41 »
First i had symptoms like all you guys brain fog,fatigue etc which usuallly lasted on day,then i had jaundice, it remain for 4 months i could not eat anything and got sevely weak lost more than half of my weight.(it was in 2009)
After that the symptoms changed,brain fog was permanent after O my abdomen becomes so weak that i could barely walk and could not travel in car because abdomen becomes so weak it feels like it will break when i walk more than five minutes i cannot.these symptoms remains 4,5 days.
Any idea what causing this?

I have weak abdomen & weak posture in pois. I feel as if this particular problem is emminating from a singular point in my right hand side lower back. It is always a bit stiff but realy locks up in pois (after O, but not immediately after) and muscles around it don't work as they should. It also has a domino effect on all the other joints in my body. The degree of stiffness in my right hand side lower back is in direct correlation with the degree of brain fog, joint pain, headache & mood I experience. A smaller degree of stiffness & the other symptoms can be induced by high stress & strenuous physcial activity, but does not last 3-4 days as after O (maybe 1 or 2). Could this be nerve damage/impingment? Perhaps of the nerve that is involved in ejaculation/erection/orgasm. Even when out of pois I feel this problem remains, yet somewhat dormant, as I still get stiff/cracking joints and general postural discomfort. The best way I have found to relieve this is by sitting cross legged on a soft matress for a time. my neck, elbow soulders, pelvis all start cracking when I stand back up. This does not seem to offer much relief when deep in pois (possibly from too much inflammation). God I love pois.

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Offline LAPOISSE2

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #18301 on: 08/06/2013 12:14:58 »
I did the test Herman ask me to do :

Free T3 : 2,72    RV : 1,70-3,70
Free T4 : 14,20  RV : 4,10-18,5
TSH      : 0,740  RV : 0,350 - 4,94
Potassium : 4,3nmol/l  RV : 3,5-5,1
Sodium     : 138nmol/l RV : 136-145
Chlore       : 101nmol/l  RV : 98-107
iron serum : 101ug/de   RV 60-160
Ferritin    : 101,6ng/ml    RV : 21,8-274
Calcium   : 2,58nmol/l         RV : 2,10-2,55
Magnesium : 20mg/l        RV : 16-26

I'm waiting for ceruloplasmin that i'll get in a week.

From what I see, everything is pretty normal especially thyroid.

The only thing that could show something is Calcium, but not much high ; High calcium is apparently hyperparathyroidy in most of the case ; The symtoms of that perfectly match with POIS especially mentals one.I did suplement Vit D but not that much and not for long time so I dont' think high calcium come from that.
Any comments ?

I just got the result of the last test I did following Herman's requierement :

Ceruloplasmin at 9h48am : 0,16g/l   range is 0,15 to 0,30

Herman, i'm really curious to hear your conclusion about my case

Low ceruloplasmin points to underactive adrenals and/or copper deficiency/biounavailability (which some say to be related to each other).
This confirms the possibility of low adrenals, as lowish sodium indicated. Probably adrenals are weaker than thyroid.
I'll let Herman speak :-)

Urano, thanks for your explanations wich are always interesting to hear.
From what I understand, low ceruloplasmin/low total copper would be more mean copper toxicity due to to much free copper than the opposite.

Actually with this blood tests and my symtoms, it could be a suspicion of Wilson disease.

I dont think I have Wilson's(I need to check My 24h copper) but I could have a problem due too a bit two much of free copper in my system.

How do you see that adrenals are week ?..what is the link with ceruloplasmin ? Is there a way to monitor adrenal functions ? A way too improove it's functions ?Have you heard about hyperparathyroidy ?

Lapoisse,

I have already answered to some of your questions about your labs in #18821, you possibly overlooked it:

"About (very slightly) high calcium, have your PTH and Vit D3 tested to rule out hyperpara or D overdosing. It can be an idea to test ionized calcium too next time.
Sodium is a pinch low maybe, ideal is about 141. Check if you had aldosterone/renin in some recent labs, and they were OK. Do you have postural (orthostatic) hypotension?
Your TSH is a little on the low side, even though plain FT3/FT4 values don't fully suggest overactive thyroid. Check your temps and heart rate as I suggested in my previous post.

I've also written several posts recently on how to assess adrenal function with temperatures, blood pressure, salivar and blood tests, please check them.

I don't normally write much about recovering adrenal function because I'm in the process of finding the way out myself after trying so many different things.
Also, recovering from an adrenal crash can be a process lasting for months and even years, and demands a change of lifestyle in terms of stress management, diet, exercise, sleep habits, so it requires a lot of dedication and patience.

In a nutshell, depending on the adrenal status, you can use adaptogenics herbs, vitamins & minerals, glandulars and in more serious cases hormones replacement (pregnenolone, DHEA, HC or isocort...). I don't really recommend using hormones (which I did) if not strictly necessary, because they just replace from the external what should be balanced from the inside, and worst might lead to adrenal suppression if not used very carefully.

This is really something one has to find his own way. Some startup resources in http://www.stopthethyroidmadness.com/adrenal-info/ [nofollow]

About ceruloplasmin I am not very expert on this, so take my statements easy. And the copper topic is a tricky one morever.
Low ceruloplasmin depends either on the fact that you liver dosn't make enough of it, and one of the most likely causes is low adrenals.
Or that you do not have enough bioavailable copper around, either because you are copper deficient, or because you tend to accumulate it in tissues (Wilson is a rare and extreme cause of that). Copper imbalance typically affects iron metabolism as well.
As serum copper/zinc values do not seem to be very representative of what's stored in tissues or used by cells, they don't really shed much light in themselves.

Personally, I do have a cerulosplasmin on the low side the same as you do, and I've had a chance to see the same in few other POIS suffererers, so I tend to believe that copper metabolism might have an importance in our symptoms, at least for some of us.

Maybe someone knows more about this and can explain it better.

I hope this helps in the meantime.

Copper mecanism is not well understood, copper toxicity is mainly discussed in non conventional medecine and things are not very clear and scientificly established ; Dr Wilson and all the ARL laboratories provide informations about that :
http://www.drlwilson.com/ [nofollow]

Still, having to much unbound(free) copper is clearly established as toxic.Extreme case are Wilson.

To calculate the amount a free copper you can use this website ; I sourced other calculation method, results are pretty much the same :

http://www.wilsonsdisease.org/wilson-disease-patients/wilsondisease-calculator.php [nofollow]

My serum is copper is 79mcg/dl and ceruloplasmin is 16mg/dl ; it give a unbound copper of 31 ug/dl and it should be between 5 and 15 ; Wilson people have up to 60

http://www.clinchem.org/content/51/8/1558.full [nofollow]

Maybe the blood test are wrong..and I need to check at 24urine copper.

I would not be amazed if there is a link between O and copper/zinc release/consumption.

Right now, it's really theorical and frankly i'm not expecting a lot from this, but still, it's an interesting lead to explore(there is a lot of people that claim felling much better from symtoms like us after a kind of "copper detox protocol")

I'm curious to know if anyone explored already this lead

Cheers

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Offline LAPOISSE2

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #18302 on: 08/06/2013 12:20:26 »
By the way, copper is related to inflamation :

http://ajcp.ascpjournals.org/content/131/2/160.full [nofollow]

For me, there is no doubt that POIS is(or cause an) inflammation ; All the single technics/suplements/drugs you use as anti-inflamatory properties in common.

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Offline urano75

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #18303 on: 08/06/2013 19:49:40 »
By the way, copper is related to inflamation :

http://ajcp.ascpjournals.org/content/131/2/160.full

For me, there is no doubt that POIS is(or cause an) inflammation ; All the single technics/suplements/drugs you use as anti-inflamatory properties in common.

The most interesting bit in this article for me is that ceruloplasmin doesn't really correlate with free copper, making ceruloplasmin and total serum copper a questionable method to determine copper toxicity (assuming that toxicity depends on the amount of circulating free copper). Which makes the copper subject even more confusing to me.

That said, I agree and suspect that copper, zinc, manganese and iron balance can play a role in many ways, including inflammation, allergies and infections (immune system), adrenals and thyroid status (endocrine), as well as neurostrasmission (nervous system), and clearly all these layers are interconnected and relevant to our symptoms.

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Offline B_Daniel

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #18304 on: 08/06/2013 21:42:39 »
Out of the people that have tested their cerruloplasm that I know of, the vast majority had values within 1 or 2 points of the bottom of the normal range.  It's too common amongst us to be coincidental.  If you're getting new testing done and haven't had that value checked, I'd get it done.  The cerruloplasm link is something we should be thinking about. 
 
2-5 days, 80% cognitive, tongue-tied, brain fog, lose track of thoughts mid conversation, anxiety, dry eyes, irritable, fatigue.  Believer of both auto-immune AND regeneration theories.  My sessions are much shorter when I've gone 2 wks without.

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Offline urano75

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #18305 on: 09/06/2013 13:14:34 »
Out of the people that have tested their cerruloplasm that I know of, the vast majority had values within 1 or 2 points of the bottom of the normal range.  It's too common amongst us to be coincidental.  If you're getting new testing done and haven't had that value checked, I'd get it done.  The cerruloplasm link is something we should be thinking about.

Yes Daniel, add myself to the list

Ceruloplasmin   20   [17 - 65]

I tend to believe it is because of adrenal weakness, leading to some kind of copper imbalance.

This is also confirmed by my

DHEA-S      85,60    mcg/ml   [125-483]* for men of age 30-39

and there is a possible correlation between low DHEA and copper deficiency

http://www.ncbi.nlm.nih.gov/pubmed/11130850


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Offline LAPOISSE2

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #18306 on: 09/06/2013 15:16:23 »
Out of the people that have tested their cerruloplasm that I know of, the vast majority had values within 1 or 2 points of the bottom of the normal range.  It's too common amongst us to be coincidental.  If you're getting new testing done and haven't had that value checked, I'd get it done.  The cerruloplasm link is something we should be thinking about.

Yes Daniel, add myself to the list

Ceruloplasmin   20   [17 - 65]

I tend to believe it is because of adrenal weakness, leading to some kind of copper imbalance.

This is also confirmed by my

DHEA-S      85,60    mcg/ml   [125-483]* for men of age 30-39

and there is a possible correlation between low DHEA and copper deficiency

http://www.ncbi.nlm.nih.gov/pubmed/11130850 [nofollow]

Adrenals weakness doesn't sound like a cause of anything(apart secondary symtoms) ; not sure they get weak by themselves.Minerals, vitamins, amino acids, etc) are  the building blocks.Too much or too few, no transported correctly...All that sounds like a possible root cause to me.

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Offline urano75

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #18307 on: 09/06/2013 16:01:43 »
Out of the people that have tested their cerruloplasm that I know of, the vast majority had values within 1 or 2 points of the bottom of the normal range.  It's too common amongst us to be coincidental.  If you're getting new testing done and haven't had that value checked, I'd get it done.  The cerruloplasm link is something we should be thinking about.

Yes Daniel, add myself to the list

Ceruloplasmin   20   [17 - 65]

I tend to believe it is because of adrenal weakness, leading to some kind of copper imbalance.

This is also confirmed by my

DHEA-S      85,60    mcg/ml   [125-483]* for men of age 30-39

and there is a possible correlation between low DHEA and copper deficiency

http://www.ncbi.nlm.nih.gov/pubmed/11130850

Adrenals weakness doesn't sound like a cause of anything(apart secondary symtoms) ; not sure they get weak by themselves.Minerals, vitamins, amino acids, etc) are  the building blocks.Too much or too few, no transported correctly...All that sounds like a possible root cause to me.

While I agree there will always be a root cause (or multiple ones) of the cause to be found and worked on, and that these are mainly labels to identify patterns...
I suggest you try to check with people with an adrenal burnout/fatigue/whatever history it's called for years how "secondary" their symptoms are and what impact they've had on their lives, well beyond POIS.
Adrenal function gets weak by constitution, prolonged stress, infections (especially chronic low-grade), toxicity, pushing and excessive lifestyle, prolonged impaired thyroid function to name few. Excluding Addison's which is autoimmune and is an extreme case.

Whatever you call it and the level you want to work for it, the symptoms are clear and vast and can be identified in a pattern.

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Offline urano75

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #18308 on: 09/06/2013 16:05:26 »
This is an interesting quenstionnaire from a book I recommend reading:

http://www.adrenalfatigue.org/take-the-adrenal-fatigue-quiz

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Offline happy2

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #18309 on: 09/06/2013 16:49:37 »
Hi everybody, I'm new to the forum.  I have been dealing with POIS syndrome since I was in high school.  I'm now 32.  As of last year, September of 2012, I found this forum and it was only then I knew I had this disorder all these years.  I went to the urologist, he was in shock and kept saying as he typed on his laptop computer, "I have never heard of this, I have never heard of this."  Regardless of that fact he had me start taking an anti-histamine.  I read Claritin had helped some people on this site, so I started taking it everyday.  One month later, I woke up with a nocturnal emission in the middle of the night and immediately got out of bed, and took two Benadryls, another 10mg of Claritin, three Niacins (flush-free).  I went back to bed, and in the morning woke up to NO POIS.  It was awesome.  Actually, it was more like 10% as bad as it used to be on day 1, day 2 was down to 5% as bad, and day 3 and 4, the same.  It was a real miracle.  I suffered for years not knowing what was going on.  Sooo, for the last nine months I have been taking Claritin everyday, and two benadryls after every orgasm, immediately after orgasm.  The POIS symptoms have actually gone from 4 days of POIS then one day of crash to only 3 days of POIS total now.  That's 3 - 24 hour periods, and eight hours, and absolutely no crash.  Last year, untreated, the POIS would last for 7-8 days total with symptoms and crash.  Now it's down to only 3 total.  It's getting better, and it's really cool.  I would appreciate to hear from other people who have also been suffering with this very debilitating illness.

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Offline B_Daniel

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #18310 on: 09/06/2013 20:09:40 »
Out of the people that have tested their cerruloplasm that I know of, the vast majority had values within 1 or 2 points of the bottom of the normal range.  It's too common amongst us to be coincidental.  If you're getting new testing done and haven't had that value checked, I'd get it done.  The cerruloplasm link is something we should be thinking about.

Yes Daniel, add myself to the list

Ceruloplasmin   20   [17 - 65]

I tend to believe it is because of adrenal weakness, leading to some kind of copper imbalance.

This is also confirmed by my

DHEA-S      85,60    mcg/ml   [125-483]* for men of age 30-39

and there is a possible correlation between low DHEA and copper deficiency

http://www.ncbi.nlm.nih.gov/pubmed/11130850

Adrenals weakness doesn't sound like a cause of anything(apart secondary symtoms) ; not sure they get weak by themselves.Minerals, vitamins, amino acids, etc) are  the building blocks.Too much or too few, no transported correctly...All that sounds like a possible root cause to me.

While I agree there will always be a root cause (or multiple ones) of the cause to be found and worked on, and that these are mainly labels to identify patterns...
I suggest you try to check with people with an adrenal burnout/fatigue/whatever history it's called for years how "secondary" their symptoms are and what impact they've had on their lives, well beyond POIS.
Adrenal function gets weak by constitution, prolonged stress, infections (especially chronic low-grade), toxicity, pushing and excessive lifestyle, prolonged impaired thyroid function to name few. Excluding Addison's which is autoimmune and is an extreme case.

Whatever you call it and the level you want to work for it, the symptoms are clear and vast and can be identified in a pattern.

I also agree that adrenal fatigue isn't the root cause of our problems, but I disagree LaPoisse in that I suspect that it's the root of most of our symptoms.  That and our thyroid functioning.  Even if we don't solve pois, if we can find a way to normalize our adrenal and thyroid functions, I think we could feel 100%.
2-5 days, 80% cognitive, tongue-tied, brain fog, lose track of thoughts mid conversation, anxiety, dry eyes, irritable, fatigue.  Believer of both auto-immune AND regeneration theories.  My sessions are much shorter when I've gone 2 wks without.

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Offline fornicationDENIED2

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #18311 on: 11/06/2013 11:52:04 »
I get a lesser degree POIS brain fog from sexual stimulation (thinking of sex). Is that possible if it is a semen allergy issue?

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Offline LAPOISSE2

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #18312 on: 11/06/2013 11:54:09 »
I get a lesser degree POIS brain fog from sexual stimulation (thinking of sex). Is that possible if it is a semen allergy issue?

I don't think so ; My guess is it's much more complicated than that.

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Offline jferr

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #18313 on: 12/06/2013 06:09:00 »
Hey guys. I have not been on here in a while but I am in a tough spot right now.

I'm not new to POIS. I've had it since I was 16, I'm now 26. Long story short, One day at the moment of climax when I was 16 it felt like an engine shut off my in my head. It wasn't the regular feeling I would always get after orgasm, Instead I felt dull and unenergized. From there, I was never the same. Since that day that 'engine' has never been turned back on. I remember wondering why I no longer felt the natural high of life or sense of well being I had felt before. I then developed a POIS on top of that, But not a regular POIS. My POIS includes a 3-5 day recovery period, but unlike many I have recovered less and less overtime. In other words my symptoms are constant, and if I do have an orgasm my body will not replenish my health the way it did even last time. Essentially I recover less each time. If I have 2 orgasms in a day my body cannot handle it, All my symptoms will take a big dip and my whole body chemistry will be changed. It has been debilitating. I've had to hold off for months at a time, And even in doing this my constant symptoms have not disappeared. 6 years ago I thought it couldn't get worse, 3 Years ago I thought the same, And today I am in fear because my symptoms have taken over my life.

Initially my symptoms were many and familiar to this forum .. Cognitive included trouble thinking, alertness issues, slowed reactions, difficulty feeling emotions. Physically my symptoms started with hot flashes, fatigue, muscle tremors, weakness, poor libido, groin and low abdominal pain following orgasms, and sensitive eyes among others.

I had to withdraw from school and work for a couple of years. I got all sorts of testing, tons of bloodworm, MRIs, Cat Scans. I've been to all sorts of doctors.... neurologists, endocrinologists, psychiatrists, urologists, cognitive therapists. Tons of visits to the top hospitals in Massachusetts. Standing up to many doctors as they told me its all in my head, and explained myself to many more as my testing came up normal. The frustration repeatedly finding nothing conclusive cannot be explained.

Eventually I found this forum I'd say around 2 years ago and I am very thankful for it. I initially found mild relief with fenugreek and garlic, but I still couldn't function. I then found niacin and felt about 40% better after orgasm. After 8 years into my issue, fellow member Kurtosis suggested a treatment regimen that I found great relief with. He told me to take spirulina, chlorella, fish oil, and vitamin C. So I was taking niacin before orgasm then all these supplements immediately after orgasm and also in the coming days. At first I felt strong, my weakness disappeared, I could think straight, and even my grain pains disappeared. I almost felt high in that I could work all day and I was very assertive. It was like things that seemed unbearable before became pleasurable and I couldn't find enough to accomplish. This went on for months. After a few months I started noticing myself dipping back down with each orgasm little by little.

I have since continued to dip and my symptoms are worse than ever. It is very difficult for me to open my eyes during the day, my cognitive symptoms are almost like that of a schizophrenic. I have trouble speaking and I slur my words, Trouble picking up social stimuli, I cannot always control my facial expression or voice, my sleeping is off, my emotions are very mild, periods of standing blankness, and I have trouble thinking. Physically all my symptoms have returned plus I have digestion issues, weakness, and others. These days even if I'm abstaining I still feel like I'm getting worse.

I've recently had trouble dealing with these as simple as the elements. Sun, wind, rain, etc. are harder now for my body to deal with. I feel that I'm mentally losing my sense of urgency as it took me days to write this. I sometimes wonder if taking all those supplements directly after orgasm hurt me more than helped me.

I certainly hope that the damage isn't permanent. Its one thing to not be thinning sharply or correctly, but it definitely worries me to think that I may have lost cognitive potential that I cannot recover.

All I can say is that I'm 26 and I do not have the energy to do more than 1 or 2 activities all day. I find myself taking half of the day to fully wake up and afterwards I find myself nodding off. I've tried everything. I am at the point where I am just struggling to live everyday. I feel like I'm in a bad spot guys. I see everything declining more and more. I don't know what to do. It seems that over time my energy is getting lower and lower and I really fear for what might happen to me. I am on a steady decline and I don't know what will happen to me if I get much worse. I would appreciate any input as I have a lot of respect for people in this forum.

Best,

Jon.

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Offline meteo74

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #18314 on: 12/06/2013 09:52:09 »
Hi jferr
stay calm and don't worry ,  O. must be with a female*, do it just befor you sleep,so p.o.i.s come and go while you are sleeping.thats what i do.

beleive me,

* don't do it your self(this is the reason of pois)
« Last Edit: 12/06/2013 09:54:20 by meteo74 »

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Offline urano75

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #18315 on: 12/06/2013 11:42:48 »
Jon,
in all of your investigations, have you done an accurate adrenals/thyroid function assessment? I've written posts recently here about it, I'll avoid redundancy.
Are you or have you been on anti-depressants? What's your current regimen, and is there anything right now lifting you a bit up?
As you say that you're getting worse even if you abstain, there are clearly imbalances to be addressed besides POIS.

Andrea.

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Offline desperate man

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #18316 on: 12/06/2013 14:20:19 »
I'm sure I'm not the only one here with the following: the longer I abstain and then ejcaulate, the worse my POIS is going to be.
I'm going to try benadryl soon, will be getting a prescription the upcoming days but there are things I don't understand...

The chemical reactions my body has to endure with an orgasm.
We have talked about blood sugar issues and I definetly have hypoglycemia but when I get a crash from not eating every 2 hours, then only that particular day gots ruined and I recover after 8 hours of sleep.

With POIS, I get the same symptoms as a blood sugar crash BUT I don't recover with sleep and infact I get worse the very next day and progressively get better and usually feel normal after 4-7 days depending on eating right and sleeping well.

After reading jferr's post I have can empathize as this came out of nowhere, been experiencing this before I took SSRI-s but after taking them my symptoms have fulfilled and exaggarated to the point of getting bedridden. Just masturbated yesterday after 7 days without O because I'm put under too much pressure right now and needed to feel that mental calmness.
Today I can barely walk. My legs,thighs hurt so much(for no reason) that I'm going to have to take a painkiller. When I stand up my legs are shaking and have all around muscle weakness over my body.

After reading jferr's post I was thinking he and I could be experiencing latent stage Lyme disease, as it came out of nowhere in the beginning or some other chronic viral infection. I wish there was a possible treatment to minimize the symptoms or recovery days, I'm taking the methylated forms of B complex and it doesn't help me. I should be studying for my exam but I can't even finish a simple math exam while abstaining a week makes me become a genius. If there was an 'end life' button in my room I would press it right now. Can't study, can't walk, can't think.  :-'(

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Offline jferr

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #18317 on: 13/06/2013 06:09:54 »
Mateo and Urano,

Thank you for your responses. Urano, I have gotten some adrenal and thyroid blood testing. As far as a full profile I'm not sure what it consists of. I have noticed some minor inconsistencies in things like TSH, Cortisol, testosterone, and IGF-1 among other but nothing that would cause symptoms of this severity. Are you speaking of blood testing?

I tried antidepressants a few years ago but it did nothing, And I have always known that this issue isn't mentally derived, but rather just mentally effected.

Right now there is nothing that is helping. I was taking spirulina, chlorella, vitamin c, and fish oil immediately after orgasm for a while but I feel like over a few months time it has overworked my brain. Now when I take it I feel more burnt out than anything, like my body cannot handle the proteins in the vulnerable time after orgasm. It feels overworked. Thats as best as I can explain it. I hope that I didn't do damage taking those supplements right after orgasm.

I honestly don't know what could have caused all this. Its not a normal POIS because I never fully recover but I still have the 4-6 day POIS period. I don't know how something could go so wrong immediately at orgasm like it did 10 years ago. It felt like something shut down then and from there I have only gotten worse. I feel that I may only continue to get worse and I don't know what it will lead to. What makes it extra frustrating is that I'm 26 years old.

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Offline jferr

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #18318 on: 13/06/2013 06:15:17 »
desperateman,

I can relate to some of the things you said. With me I feel the overall core energy in my body diminishing over time and I have all sorts of problems. I wish that I could abstain and be alright, but I don't recover like that. Mentally I cannot communicate with people.

I can somewhat relate to your restlessness if abstaining, its like a great deal of uptightness and restlessness if I wait too long. But I don't have a choice as an orgasm will shift how I feel mentally and physically, usually a great deal. I am declining over time and I don't know what will happen to me. I don't know what else to do.

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Offline urano75

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #18319 on: 13/06/2013 09:06:23 »
Mateo and Urano,

Thank you for your responses. Urano, I have gotten some adrenal and thyroid blood testing. As far as a full profile I'm not sure what it consists of. I have noticed some minor inconsistencies in things like TSH, Cortisol, testosterone, and IGF-1 among other but nothing that would cause symptoms of this severity. Are you speaking of blood testing?

I tried antidepressants a few years ago but it did nothing, And I have always known that this issue isn't mentally derived, but rather just mentally effected.

Right now there is nothing that is helping. I was taking spirulina, chlorella, vitamin c, and fish oil immediately after orgasm for a while but I feel like over a few months time it has overworked my brain. Now when I take it I feel more burnt out than anything, like my body cannot handle the proteins in the vulnerable time after orgasm. It feels overworked. Thats as best as I can explain it. I hope that I didn't do damage taking those supplements right after orgasm.

I honestly don't know what could have caused all this. Its not a normal POIS because I never fully recover but I still have the 4-6 day POIS period. I don't know how something could go so wrong immediately at orgasm like it did 10 years ago. It felt like something shut down then and from there I have only gotten worse. I feel that I may only continue to get worse and I don't know what it will lead to. What makes it extra frustrating is that I'm 26 years old.

Jferr,

first of all, a constant POIS is not just a POIS by definition, but an indication of some permanent imbalance (nutritional, neurological, hormonal, immune) which needs being addressed.

Taking those specific supplements right after sex couldn't have done any harm, but to rebalance yourself a constant regimen is needed with the right things you need (which doesn't mean to take huge amounts of everything as I've been doing at some stage).

I asked about antidepressants not because "it's all in our head", but as I see that most people here have used them, myself included (for 11 years). Which means that often neurotransmitters imbalances are associated with our symptoms. Even though I responded positively to SSRI for lifting my "depression", I couldn't find a way out of many issues while on them, because they just covered up imbalances which have eventually come out in other more destructive ways. That doesn't mean one might need them in emergency cases for short periods, but I wouldn't rely on them as a long term solution.

What is in our head instead is our attitude to research, experiment, draw our conclusions independently and measure our steps ahead. You've had a tough time as most of us here, and you've done a lot of reasearch too, but don't get tired of it and don't give up. We all need to be lead by someone at some stage, but in the end nobody will tell us what to do but ourselves if we listen to our bodies and feelings (no easy task but must be learnt). This group offers a lot of different ideas on what ways to try, so see what sounds better to you. I believe we often need both a change of supplementation regimen and of lifestyle/attitude most of the times.

I generally write of adrenals/thyroid function not because it's the root cause for everything and for everyone, but because they have provided a pattern and a key for me to do substantial progresses, along with some big mistakes. So, if you're interested on the specific subject, read my posts, as well as many other interesting ones.
I don't have recipes because I have changed my approach so many times at each step.

Our health conditions are typically like an onion: you peel one superficial layer (e.g. infections), then perhaps you see you'll have to adjust your diet (e.g. cut sugars), then maybe to work on new things (e.g. adrenals), then you'll see you must address some underlying nutritional deficiencies (e.g. minerals). It's a personal neverending journey, and it is rewarding when you see the progress and are able to keep some balance. It's also a work requiring a lot of commitment and dedication. Magic pills and potions don't exists, and when it seems they do, they eventually won't last. Temporary helps do exist and must be used until the next stage of well being.

This is based of my experience, it hopefully will resonate with someone's and be helpful to someone else.

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Offline jferr

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #18320 on: 14/06/2013 09:35:19 »
Urano, Thanks again for your reply.

You make some valid points and I'm sure they will help many people. When it comes to layers and research, I have been there and back. I've gotten every test done, And tried just about everything. I am not saying I have given up but I am thinking that my issue is one that cannot be fixed. I don' believe its like everyone else's in that there is a flaw linked to their sexual reproductive system. I believe something went very wrong 10 years ago, An 'engine' shut off. I have tried everything to jump start it, and I mean just about everything. I don't think its a permanent imbalance in one of the systems. It could be something between my brain and body that cannot be detected or tested. I have always been the type to stay positive and fight, and if I go down thats how I will go down. I just find myself getting worse and worse and especially lately. I know these things because a good deal of my life in the past decade has been towards trial and error, research, and doctors visits. There were some positives that came out of it but also no answers.

I am being very brief with the explaining of my issue as it is very deep because I don't want to flood the page with myself. It would take some explaining to fully get someone to understand where I am at.

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Offline gondal4

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #18321 on: 14/06/2013 17:11:11 »
someone else get blurred vision during pois like when we see far it gets blurry

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Offline Gbolduev

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #18322 on: 14/06/2013 20:34:13 »
Jferr,

I can try to solve your problem. You can  contact me  at  gbolduev@mail.ru.  We will get to the bottom of it.  Dont give up.   3-4 months and you would feel much better, I  promise.

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Offline B_Daniel

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #18323 on: 15/06/2013 11:14:59 »
WHY dont you solve my problem golbudev? yes there are not many tests availble in pakistan,but there must be some way

Gondal4 - I'm going to send you a PM that will address this and many of your other posts.
2-5 days, 80% cognitive, tongue-tied, brain fog, lose track of thoughts mid conversation, anxiety, dry eyes, irritable, fatigue.  Believer of both auto-immune AND regeneration theories.  My sessions are much shorter when I've gone 2 wks without.

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Offline B_Daniel

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #18324 on: 15/06/2013 12:10:52 »
I am being very brief with the explaining of my issue as it is very deep because I don't want to flood the page with myself. It would take some explaining to fully get someone to understand where I am at.

If you have the energy to type it, I'd be interested in reading your story.  We could all then collaborate and give you some things to think about.  It sounds like you're at a bit of a dead-end in terms of idea generation and perhaps we can help.  If you have a lot of testing that's already done (or are willing to order a hair test for ~$130 bucks), Herman would be a good person to start a dialogue with too. 

Just by the fact that Kurtosis' supplements helped you indicates that your issues are treatable.  In your heart I know you know that.  It's just all about finding the right balance, which is the most difficult thing you'll ever do.  I've got constant pois, same as you, so you're not alone in this.  Think about all the things you've learned about pois since you joined the forum a couple years back and realize you've just got to keep finding more pieces to the puzzle before it can be solved.  A former doctor of mine once told me "my experience is that people have an easy time taking pills but a hard time journaling and making time to learn and grow".  It's so easy to take the next herb and cross our fingers, but as Andrea pointed to, we need to stop trying random things and instead get in touch with understanding our symptoms.  That'll help light the path towards relief.  My heart goes out to you in this period of frustration and struggle.  Try to keep up the positive attitude.
2-5 days, 80% cognitive, tongue-tied, brain fog, lose track of thoughts mid conversation, anxiety, dry eyes, irritable, fatigue.  Believer of both auto-immune AND regeneration theories.  My sessions are much shorter when I've gone 2 wks without.

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Offline EDS

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #18325 on: 15/06/2013 14:39:33 »
someone else get blurred vision during pois like when we see far it gets blurry
Yes, I have blurred distance vision for a couple of days after "O".

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Offline B_Daniel

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #18326 on: 15/06/2013 16:45:19 »
Nathan - What's your status these days?
2-5 days, 80% cognitive, tongue-tied, brain fog, lose track of thoughts mid conversation, anxiety, dry eyes, irritable, fatigue.  Believer of both auto-immune AND regeneration theories.  My sessions are much shorter when I've gone 2 wks without.

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johanstefansson

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #18327 on: 16/06/2013 13:17:32 »
We should join forces and try to set up a chain of events to get healthy. Start with the most effecient relief and then try to decide whats nr 2 and 3 etc on the "get healthy" list is.

Suggestion:

1. Stop masturbating
2. Stop consuming porn
3. Do mild daily exercise
4. Limit sex to once a month for 6 months
5. Take clarityn and niacin before and after orgasm
6. ...

This could be set up scientifically for us to help each other.

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Offline happy2

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #18328 on: 16/06/2013 14:31:03 »
Welcome Happy2. Happy to read such a post :)
7-8 days is considered as a severe Pois form. Now it could be a good thing to see if both claritin and benadryl are effective (and niacine too) and to see if you can improve your symptoms by taking meds some hours before orgasm.

Thanks B_Jim,

7-8 days was the maximum amount I had last year.  I also had some 5-6 day symptoms also sometimes.  The Benadryl and Claritin have worked really well immediately following orgasm.  I don't know if I have the cohoneys to try to alter that system.  I will definitely try to take some of the above medications before orgasm however, and see if I can maximize the effect even greater.  Thanks for the post.

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Offline happy2

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #18329 on: 16/06/2013 14:39:00 »
We should join forces and try to set up a chain of events to get healthy. Start with the most effecient relief and then try to decide whats nr 2 and 3 etc on the "get healthy" list is.

Suggestion:

1. Stop masturbating
2. Stop consuming porn
3. Do mild daily exercise
4. Limit sex to once a month for 6 months
5. Take clarityn and niacin before and after orgasm
6. ...

This could be set up scientifically for us to help each other.

johanstefansson,

I agree with you 100%.  I think we would figure more out and solve this problem faster if we joined together.  All of your 1-5 points are valid.  We could even add benadryl to the list for number 6, immediately following orgasm.  I know it's saved me.  I had pois terrible for many years, then last September, I discovered this site and Claritin, benadryl, and niacin (flush free).  Now it's only mild symptoms for 3 days and 8 hours maximum every time.  Day 1 is the worst because of the benadryl hangover, but it's nothing compared to full blown pois.  Thanks for the post.

happy2

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Offline gabin

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #18330 on: 16/06/2013 20:49:26 »

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Offline curedone2013

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #18331 on: 17/06/2013 01:18:59 »
Hi guys, I am new to this forum. I really think I am on to something here. It is very different from what I have believed before regarding my symptoms.
I wanted to share my struggle and recent success with fighting POIS. From my experience with it, I believe that POIS is a form of a lipid disorder that leads to the other downstream effects we all have experienced.
I have been struggling with the effects of this syndrome for about 7 years until the last few weeks. Previously after ejaculation, within 1/2 hour I would start feeling brain fog, really tired, sore eyes, complete lack of focus/retention of anything new, general sickness, complete lack of sex drive, muscle weakness, and soreness in my joints which increased for about 2 days and then would begin to subside and I would feel normal again after about 6 days.
These symptoms began during my undergraduate years and I'm now in my doctorate to become a health care professional. These symptoms have basically ruined my life especially when it come to trying to treat patients on days where I can't even remember how to do basic things I have learned because of the disorder.
I recently started drinking olive oil, increased the amount of fat in my diet, and take fenugreek and I noticed that I would feel a LOT better. Then it made me start thinking about why that may be. I know that one thing that I changed around the time I began feeling POIS symptoms 7 years ago was that, I completely eliminate most fats from my diet. I would not eat anything fried or heavy/ etc. After sometime, I realized that when I would eat something fatty, I would get headaches and it would exacerbate my symptoms if I had recently ejaculated. Therefore as a result, I would continue to completely avoid fats/ oily food. So as to propose a mechanism of action for the disorder, I know a lot about physiological science but this explanation to me doesn't make sure sense for now but its what I believe from what I have experienced. I believe that after ejaculation, something is happening with our lipids. Perhaps they are being used as an energy source for the ejaculation and if the lipid levels are too low, our bodies are getting the energy sources from somewhere else that it is not suppose to be. Maybe proteins and as a result your body is breaking down specific proteins for energy that it shouldn't be so our bodies ellicit an antibody mediate response against our own proteins which leads to the symptoms that seem like an autoimmune disease. I find that when I increased the amount of oils/ lipids in my body via eating a higher fat diet, drinking olive oil, and fenugreek my symptoms seem like they are going to come on but then are COMPLETELY GONE WITHIN A FEW HOURS!!! Within the last 2-3 weeks, I haven't felt more than 10% of the original POIS symtoms at any time. I have had sex probably 20 times during that time period because it has been almost a decade since I could enjoy sex and not feel my impending doom afterwards. I never in my life to say this after all the doctors I have seen who didn't know what to tell me. In addition, I have been taking a test booster (Kiazen PM) but I don't know if that has anything to do with the results, I was just taking that for my loss of libido/ low test symptoms from the POIS. Guys, I really hope this is something that will help everyone. If you guys could try this and let me know, that will be great. I am almost in tears while writing this post because POIS has ruined a large period of time in my life that I will never get back. Now, I have been having sex and feeling great for almost 3 weeks now. I will provide an update on how I feel in a couple weeks and let you know if anything has changed. I hope this can be a new beginning for everyone.

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Offline Prancer

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #18332 on: 17/06/2013 02:19:14 »
Hey welcome curedone2013, and thanks so much for sharing that information with us. :)

As a POISer myself, what you said seems totally plausible and I'm going to give it a try and see what happens. That the body might be struggling with replenishing something lost and using an energy source it's not supposed to might even explain why people like animus that have stopped all semen production have been cured. I'm glad you're finally feeling better after those 7 years of agony. I look forward to trying this out and also seeing if it helps any other people.

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Offline Limejuice

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #18333 on: 17/06/2013 02:51:06 »
Hi 'Curedone2013',

It's exciting to hear from people who've suffered from POIS and have found a cure.  Congrats to you feeling better and sharing your cure with us to help others.

I can relate to your previous eating lifestyle - eating very low fat foods. I too was raised on a strict low fat diet because of the perceived benefits of a diet without fats.  This was during the 80's when popular anti-fat dieting programs were hyped.  I adopted these negative beliefs about fats and rarely ate lipids of any type until 20 years later (after learning about their nutritional value)

Now I take fish oil regularly in the morning before food and that's when I physically and mentally feel best.

Your cure/regime seems intriguing but coming from background where fats were unhealthy the quantity of olive oil you appear to consume is almost standoff-ish.  Could you share approximately how much oil you drink?

Here's a link to the nutritional benefits and side effects of olive oil as well as recommended dosages for certain ailments:

http://www.webmd.com/vitamins-supplements/ingredientmono-233-olive.aspx?activeIngredientId=233&activeIngredientName=olive

Excerpt from WebMD - 'Olive oil can be used safely as 14% of total daily calories. This is about 2 tablespoons (28 grams) daily.'

Edit - there are several POIS sufferers that have benefited from increasing testosterone levels (Demographics is proponent of T).  It seems plausible that the Kiazen PM you take could be reason for your feeling better too.
« Last Edit: 17/06/2013 03:12:08 by Limejuice »

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Offline littledragon

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #18334 on: 17/06/2013 12:43:43 »
an update of my present situation
since last year I felt stabbing in the bladder/prostate area half an hour after arousal without an 'O'
this happens only 3 times max
it's like if the prostate wants to get rid of the pre-fluid because there was no 'O'
last week I decided to take olive oil extract and I seem to got rid of the stabbing
unfortunately the next day when I was on my way to work, I had pre-fluid followed by mild P.O.I.S. symptoms just by looking at someone attractive
I never had any symptoms before when only having pre-fluid, so I became very anxious
I stopped taking olive leave extract because I thought this might be the cause (strange thoughts)
3 days later I got very nervous by seeing someone attractive and P.O.I.S. symptoms suddenly appeared and ruined my day
now I'm avoiding attractive women when walking outside, because I'm scared it might happen again, crazy isn't it?
so I decided to take a test for a bladder infection but all was ok
I also feel my bladder bloated after this incident, but no pain in any form

does anyone have had a similar experience, did I harm my bladder/prostate or is it a muscle nerve problem?

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Offline urano75

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #18335 on: 17/06/2013 14:19:57 »
About fats and olive oil.
I live in Italy and have always consumed lots of olive oil. Though my total cholesterol was constantly low, typically about 150.
To increase it to more healthy values (about 200), I had to raise saturated fats consumption (butter, fat dairy, coconut oil), besides using olive oil.
As pointed out, cholesterol makes the raw material of all steroids (adrenal and sex hormones), besides the building block of nervous cells, membranes, vit D etc.
Based on this, I've learned a diet low in good fats (not hydrogenated, processed, omega 6, heated PUFAs etc) is not a good idea for our hormonal balance.
Moreover, fats will hardly make you fat, excess or wrong carbs will probably do.

That said, I've found that alone wasn't enough to make me feel better, because it's not only (and not mainly) how many sex-steroid hormones are produced, but how they are balanced with each other. And I'm having some direct experience that this balance is strongly determined by mineral status, plus adequate vitamins intake.


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Offline acronym

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #18337 on: 18/06/2013 11:34:48 »
Hi,

I have  chronic Lyme disease and I think that cause my POIS.  Nature's Antibiotic (example Carlic,  Olive Leaf
Extract ) usually will help with POIS symptoms. Is there anyone tested mycoplasma fermentans what is one co-infection with Lyme. POIS-people are borne with   low immune system and after ejaculation your body is under attack by different bacterias and viruses.  When you get older then all is getting worse.


Hi and Welcome IceFloe.
I quote your post some months later because it make me thing to the new study of the 3 egyptian doctors.
Indeed this is a different view of comprehension of Pois.
Pois might be an hypersensitivity an exacerbation of a secondary health problem which might be different from a case to another or simply an atopic syndrome. Lyme in your case.

I agree with your thoughts on this as well Jim. I got diagnosed with Lyme disease earlier this year. My POIS has improved recently, though I am on crap load of drugs/supps. Hard to be certain if its the lyme protocol taking a load off my immune system or another med I am on. In my case I am reluctant to blame lyme for POIS though. I have been unwell for quite a number of years, but I don't think I had lyme back in puberty when I first got POIS, though something happened to my health back then (got diagnosed with CFS). When I think I came down with lyme, I can't say my POIS came screaming back, but it did get worse.

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Offline acronym

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #18338 on: 18/06/2013 12:05:38 »
Curedone2013 - Its wonderful to read a post from someone who thinks they have finally come back to life from the shrouded life of POIS. Its a huge deal, like someone who has had serious depression for years and has suddenly waked up happy and the misery is gone, and they are jumping in the air when they walk, even if its cloudy & rainy and they have no money in their pocket. Please come back on here in a months time to let us know if it is still going good for you.

Interesting protocol. For me I don't care understanding the exact science behind any cure (well sort of), I just want to get back to living life. I have had a bit of an olive oil kick before and cant say I noticed a significant improvement. I never drank it, but just got heavy handed with it on my meals. How much are you taking when you say 'drink'?  I have been taking Wild Salmon Oil capsules for a number of years, as well as sardine/borage oil (not in high doses though).
 have been on evening primrose oil caps before a few times and never noticed anything. I have recently started taking flaxseed oil to get my omega 6s (needed for pyroluria treatment which I have been diagnosed with), and have seen an improvement in my pois but as I posted before I am taking a lot of stuff and flaxseed may have no impact. I just remembered I have also been taking ghee this year (slap it on toast)
I have taken coconut oil before but actually felt worse on it. I also tried olive leaf extract a few times because it gets raved about but did not notice any benefit (it was oily but its not quite the same as the oil from the fruit).
« Last Edit: 18/06/2013 12:12:51 by acronym »

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Offline Vincent M

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #18339 on: 19/06/2013 04:27:14 »
Hi everybody, I'm new to the forum.  I have been dealing with POIS syndrome since I was in high school.  I'm now 32.  As of last year, September of 2012, I found this forum and it was only then I knew I had this disorder all these years.

Great post, happy2. I love reading about which supplements/treatments members have found to be of benefit. Definitely try the claritin at least an hour before orgasm; benadryl should work a little faster. It seems to me that a lot of the benefit I gained from those two antihistamines was due to better quality and longer sleep. I have a question for you. What exactly are your POIS symptoms? For instance I have burning eyes and joint pain after orgasm, which not many of us experience.

Also you said that you take flush free niacin; just want to make sure you're aware that most members have required the flush in order to experience the full effect of niacin.
Taking fenugreek+tea/garlic, saw palmetto, huperzine, niacin, boswellia, and nutmeg.

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Offline Vincent M

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #18340 on: 19/06/2013 04:45:50 »
I'm going to try benadryl soon, will be getting a prescription the upcoming days

After reading jferr's post I have can empathize as this came out of nowhere, been experiencing this before I took SSRI-s but after taking them my symptoms have fulfilled and exaggarated to the point of getting bedridden. Just masturbated yesterday after 7 days without O because I'm put under too much pressure right now and needed to feel that mental calmness.
Today I can barely walk. My legs,thighs hurt so much(for no reason) that I'm going to have to take a painkiller. When I stand up my legs are shaking and have all around muscle weakness over my body.

I'm taking the methylated forms of B complex and it doesn't help me. I should be studying for my exam but I can't even finish a simple math exam while abstaining a week makes me become a genius. If there was an 'end life' button in my room I would press it right now. Can't study, can't walk, can't think.  :-'(

Have you tried loratadine(Claritin) yet? More members have had better improvement with it than with benadryl. Also if you live in the states you don't need a prescription for benadryl. I bought of bottle of like 400 tablets online for only about $16.

Your symptoms really hit home with me as I've had to deal with a lot of disabling physical pain due to POIS over the years as well. However in my case the pain is more in my joints and my eyes, but I can't walk very far if I've had an orgasm earlier the same day due to the knee pain. Also SSRIs have increased the severity of my POIS symptoms to a great level in the past. Effexor actually permanently worsened my knee pain.

How long have you been taking the methylated b complex for?
Taking fenugreek+tea/garlic, saw palmetto, huperzine, niacin, boswellia, and nutmeg.

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Offline Vincent M

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #18341 on: 19/06/2013 05:01:20 »
since last year I felt stabbing in the bladder/prostate area half an hour after arousal without an 'O'
this happens only 3 times max

does anyone have had a similar experience, did I harm my bladder/prostate or is it a muscle nerve problem?

I've never had pain or POIS symptoms from sexual activity that doesn't end in orgasm.

Rarely if I have two orgasms quickly in a row within only a few minutes I get an intense, unbearable, burning pain that I suspect is originating from my prostate. The pain is so strong that I'll need to drink 3-5 beers in order to make it disappear and it usually lasts for about an hour or maybe 2. I've noticed that this pain is also more likely to occur if I have an ejaculation soon after drinking alcohol. It has only been happening the last 2-3 years so it started 3-4 years after my POIS developed.
« Last Edit: 19/06/2013 05:08:05 by Vincent M »
Taking fenugreek+tea/garlic, saw palmetto, huperzine, niacin, boswellia, and nutmeg.

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Offline Vincent M

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #18342 on: 19/06/2013 05:28:12 »
someone else get blurred vision during pois like when we see far it gets blurry

My vision always seems fine besides the burning sensation in my eyes and maybe a slight loss of peripheral vision.

Chris18 posted this at poiscenter: "I can feel that my IQ and my intelligence and generally my brain sharpness has been reduced a lot due to long PC usage..I have terrible headaches and blurry eyes.."
http://poiscenter.com/forums/index.php?topic=1078.msg9795#msg9795

When I searched this thread here at the Naked Science Forum for "blurry" I found more members who've reported blurry vision. You can search this thread by typing this into google. The spacing is important I think:

blurry(or whatever you want to search) pois site:http://www.thenakedscientists.com/

Here are only the first two results from this search. I saw more results, but don't have the time to post them all here.

ejactrouble: "Vision is the least of my problems, but I can't even look at the computer because my vision is so blurry I can barely focus on anything (very annoying).  Trying to see if my blurriness is due to POIS or something else."
"I'm asking because last week I had been a week without ejaculation (mentally clear) and went into a weight lifting session (mentally clear).  After doing some heavy deadlifts I immediately felt the typical symptoms I feel after ejaculation (extreme brain fog, blurry vision, physical and mental fatigue, etc.)."
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg388052#msg388052

Dean93: "To everyone who talks about blurry vision and "stuff" in your eyes, is there any physical substance that you can touch, or does it feel like it's actually in your eyes. For me, I can't touch it or anything, but when I rub my eyes, I can see everything a little bit clearer, and then it sets back in..."
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg271212#msg271212
« Last Edit: 19/06/2013 06:33:43 by Vincent M »
Taking fenugreek+tea/garlic, saw palmetto, huperzine, niacin, boswellia, and nutmeg.

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Offline gondal4

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #18343 on: 19/06/2013 08:12:51 »
I'm going to try benadryl soon, will be getting a prescription the upcoming days

After reading jferr's post I have can empathize as this came out of nowhere, been experiencing this before I took SSRI-s but after taking them my symptoms have fulfilled and exaggarated to the point of getting bedridden. Just masturbated yesterday after 7 days without O because I'm put under too much pressure right now and needed to feel that mental calmness.
Today I can barely walk. My legs,thighs hurt so much(for no reason) that I'm going to have to take a painkiller. When I stand up my legs are shaking and have all around muscle weakness over my body.

I'm taking the methylated forms of B complex and it doesn't help me. I should be studying for my exam but I can't even finish a simple math exam while abstaining a week makes me become a genius. If there was an 'end life' button in my room I would press it right now. Can't study, can't walk, can't think.  :-'(

Have you tried loratadine(Claritin) yet? More members have had better improvement with it than with benadryl. Also if you live in the states you don't need a prescription for benadryl. I bought of bottle of like 400 tablets online for only about $16.

Your symptoms really hit home with me as I've had to deal with a lot of disabling physical pain due to POIS over the years as well. However in my case the pain is more in my joints and my eyes, but I can't walk very far if I've had an orgasm earlier the same day due to the knee pain. Also SSRIs have increased the severity of my POIS symptoms to a great level in the past. Effexor actually permanently worsened my knee pain.

How long have you been taking the methylated b complex for?
that exactly was my symtoms before 2009 fir first three years and it lasted only 1 dat and second day t was far better
but now my symptoms changed completly and i dont expiereince knee pain what so ever like it was never existed.knee pain replaced by abdomen pain

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johanstefansson

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #18344 on: 19/06/2013 17:56:37 »
I can relate to your previous eating lifestyle - eating very low fat foods. I too was raised on a strict low fat diet because of the perceived benefits of a diet without fats.  This was during the 80's when popular anti-fat dieting programs were hyped.  I adopted these negative beliefs about fats and rarely ate lipids of any type until 20 years later (after learning about their nutritional value)

My mother only purchased food that was low fat, hmm not good.
Cant say she was the best cook.

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Offline GDRTW

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Eye Pain
« Reply #18345 on: 19/06/2013 18:48:13 »
I have mentioned before that for me the burning sensation is the most debilitating for me. I would call it more just a very sensitive retina. As if it had been bruised. Always hard to explain these sensations of pain sometimes. Anyway here are a few things (legal) I have noticed help me. Again, what works for one will not help the other necessarily .

Huperzine A
Feenugreek with a good dose of green tea before and after O.
Liquid B-12
Monster Khaos Energy Drink (the best of the energy drinks I have tried. Strong doses of B2, B3, B6, B12 and taurine with a good dose of caffeine in as well. This one fixed a lot of my brain fog as well)
Zinc + Magnesium
Coffee (slightly)
Sleep (the best cure)
B3 Niacin (not sure how helpful this is)

If there is anything anyone else can advise me with. The brainfog and other symptoms do not compare with the discomfort of the eye pain. I also get severe eye pain from my Electronic magnetic sensitivity (EMS) issue. I think it contributed with my POIS. Both started close enough to each other to raise an eyebrow or two. 
I am a daily reader and I am loving the honest and compelling insight into it all :)


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Offline Vincent M

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #18346 on: 19/06/2013 18:51:44 »
my symptoms changed completly and i dont expiereince knee pain what so ever like it was never existed.knee pain replaced by abdomen pain

Do you know of any reason why your knee pain might have disappeared?
Taking fenugreek+tea/garlic, saw palmetto, huperzine, niacin, boswellia, and nutmeg.

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Offline Vincent M

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #18347 on: 19/06/2013 19:32:41 »
I have mentioned before that for me the burning sensation is the most debilitating for me. I would call it more just a very sensitive retina. As if it had been bruised.

Glad to read that fenugreek+tea has been working for you. I remember you saying you were going to try it, but this is your first report on it. How long has it been helping you?

Omega 3 fish oil capsules help my burning eyes slightly. While I don't have much light sensitivity a slight breeze of wind will force me to shut my eyes due to the pain and even if I roll my eyes around in my head with my eyelids shut I can feel the pain as if the muscles surrounding my eyeballs are also inflamed. I'm incapable of looking anyone in the eyes because the pain will flare up immediately and my eyes will start to water.

Also I'm curious about your EMS. Do you immediately feel worse around any electronic device or when near power lines or the like and then do you immediately feel better if you go out into a secluded area in nature like a forest? Personally I've never noticed a difference even when hiking on mountains.
Taking fenugreek+tea/garlic, saw palmetto, huperzine, niacin, boswellia, and nutmeg.

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Offline RD

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #18348 on: 19/06/2013 22:25:10 »
so-called EMS ,  aka Electromagnetic hypersensitivity, is either symptoms of an organic-disease wrongly attributed to exposure to electrical devices , or a somatoform disorder ...

Quote
The majority of provocation trials to date have found that self-described sufferers of electromagnetic hypersensitivity are unable to distinguish between exposure to real and fake electromagnetic fields, and it is not recognized as a medical condition by the medical or scientific communities.
https://en.wikipedia.org/wiki/Electromagnetic_hypersensitivity
« Last Edit: 19/06/2013 22:50:57 by RD »

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Offline Prancer

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #18349 on: 20/06/2013 23:49:44 »
I don't often eat foods high in fat either. I tried the olive oil, and it definitely helps in the short term, but the effect will wear off. Still, it's way better than not taking it. I don't wanna go too crazy with the fat content, so that I don't experience any problems long in the future. Olive oil's a very good food though and I really like it!

I think it's a good idea to have a healthy diet anyway, POIS or not. Starting a few years ago, my girlfriend really got me into eating healthier, and since then the only type of food we will buy is the unrefined or unprocessed kind  (we shop at whole foods nearly all the time). Of course, my diet's not perfect, and I still enjoy various sweets, desserts and soft drinks once in a while. I don't drink alcohol, but in the very rare occasions that I have, it didn't really help my symptoms. I also keep active by running/walking with friends and biking once in a while.

Other than POIS, I am really healthy (like many of us), which is what confuses me the most! And as a last thought,  this month the only times my POIS has had quick "relief" was when I was injured (once severely twisting my left ankle from falling off a segway and the other time from falling off a bike and getting scraped). Pain = relief. Bad way to get relief! Hopefully our cure comes sooner than later.