Post Orgasmic Illness Syndrome (POIS)

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1850 on: 04/11/2008 19:04:20 »
TESTING, SUPPLEMENTS, Rx, MD's vs. ALTERNATIVES

To Everyone: None of us are here as your medical practitioner or healthcare provider.

Some of us may have strong opinions, but it is your body, and your decision!

So please: follow your best knowledge and intuition, including which healthcare provider can best help validate or augment your decisions.

I only ask you for one thing: PLEASE don't hold back in sharing your experiences by posting them here, good and bad. THAT is how we will ultimately find the best POIS remedies!

And PLEASE don't be swayed from reporting your experiences here just because someone disagrees with your methods or remedies. I, for example, have found POIS relief with Levitra, a somewhat risky drug which may not please those who favor a more naturopathic route. But I still wish to learn from the alternative methods because I suspect there are more benign supplements that may do the trick, including fenugreek and relora! I, however, choose to wait to test my supplements because i don't know how they interact with my Rx meds (especially relora, which is not in my pharmacy's Rx-interaction system...but fenugreek is).

But others here, as they have indicated, have chosen to try fenugreek and relora and may not have those interaction concerns.

As to "required testing", there is no such thing here! Only if you wish to do so, or your healthcare provider suggests that.

I look forward to reading about your latest adventures! Soon!



 [:)]
« Last Edit: 04/11/2008 22:10:26 by demografx »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1851 on: 04/11/2008 19:59:53 »
My opinion on thyroid tests - listen to Girlwind, I have heard of too many cases where people continue to suffer for years after only having just basic TSH test or having to fight doc to try different drug treatment.

I assume a Comprehensive Male Profile such as ZRT Labs provides will include this thyroid test plus Free Testosterone?

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1852 on: 04/11/2008 22:37:56 »
B_Jim, I'm on Day Zero and I just went on The B_Jim Protein Plan! (Hope to avoid those nasty carbs!)

 [;D]

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Offline martin88

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1853 on: 05/11/2008 04:25:41 »
thank you very much for sharing your painful experience and shedding more light on the MD vs. naturopath debate.
No problem Demo. We have had a similar debate already in the forum with the same people involved. It's just a remake!

Alternative Medicine vs. MD testing
it doesn't exist or it must be depression. For most GPs or MDs (depending on where you live), that is the basket for POIS.

I finally had my free T tested and it came back abnormal.

I heard of someone who had hypopituitism who also had POIS
Nice post Acronym. Did you try to take antidepressants or testosterone ? If yes what were the results ? I'm wondering how you can arrive to a diagnostic of CFS. I heard you have to eliminate all other possible diseases before. Thanks for your answer if any.

I have never done a test for hypopituitarism in pois.
It could be interesting. However my FSH and LH were both normals 15 days after release while I wasn't symptomatic. At 23 my GH was normal, I was mild symptomatic during the test.
« Last Edit: 05/11/2008 04:27:54 by martin88 »

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Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1854 on: 05/11/2008 15:33:12 »
Like Girlwind and many other CFS suffers you lose faith in conventional doctors after a while. I am currently seeing a great doc
who is a laterall thinker and researches, but they are the exception. I agree with the comment most probably don't do much in
the way of furthering their knowledge past graduation. If it was not in their textbook then it doesn't exist or it must be depression.
For most GPs or MDs (depending on where you live), that is the basket for POIS.

My opinion on thyroid tests - listen to Girlwind, I have heard of too many cases where people continue to suffer for years after
only having just basic TSH test or having to fight doc to try different drug treatment.

I have made a post regarding POIS on a pituitary forum asking if its members can relate to POIS. I heard of someone who had
hypopituitism who also had POIS. I have been diagnosed with hypopituitism. On this pituitary forum there are also numerous
stories of people getting dicked around by incompetent/negligent/lazy medical specialists. I will monitor my post there and report
back what I get.

Thank you, Acronym, for your post. It is very validating to hear the experiences of another with both CFS and POIS.
What I wouldn't do for a great doc who is open to research....  I have been looking for this for 30 years!

And yes, regarding thyroid, I am one of those who has suffered for DECADES, without anyone even bothering to seriously
investigate my thyroid levels. THis is why I have been so strongly urging others to take initiative to do thyroid tests. It's
a simple action that could save you from many many years of worthless exhaustion.

As for the pituitary... PLEASE TELL ME WHAT TEST(S) YOU USED TO CHECK PITUITARY FUNCTION. I would like
to check this out on myself. 

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Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1855 on: 05/11/2008 15:43:45 »
My opinion on thyroid tests - listen to Girlwind, I have heard of too many cases where people continue to suffer for years after only having just basic TSH test or having to fight doc to try different drug treatment.

I assume a Comprehensive Male Profile such as ZRT Labs provides will include this thyroid test plus Free Testosterone?

The ZRT tests in the Comprehensive Male Profile I are mostly saliva tests. Only the thyroid is tested via blood. There is
another panel that is mostly blood tests. If you want to know more, you should read about them, or call the lab and get
your questions answered directly through them.  http://www.zrtlab.com/Page.aspx?nid=12&action=view&category=3

ZRT LAB   (1-866-600-1636)




« Last Edit: 05/11/2008 15:45:42 by girlwind »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1856 on: 05/11/2008 16:31:18 »
The ZRT tests in the Comprehensive Male Profile I are mostly saliva tests. Only the thyroid is tested via blood. There is another panel that is mostly blood tests. If you want to know more, you should read about them, or call the lab and get
your questions answered directly through them.  http://www.zrtlab.com/Page.aspx?nid=12&action=view&category=3
ZRT LAB   (1-866-600-1636)

Thanks, girlwind, as you can tell I'm new at this. Ever since my less-than-ecstatic alternative therapy experiences I've avoided this route. But it seems like you know who "the good guys" are in this world, thru painful trial and error.

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Offline Limejuice

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1857 on: 05/11/2008 18:20:44 »

It is as if i become diabetic after orgasm.

Me too.  It's just weird...and quit unnecessary :)

Relora Results - after taking relora for a week I noticed a reduction in POIS symptoms and duration of period - approximately 50% for each.  I've decided to stop taking relora altogether because I didn't care for it's side effects - extreme relaxation, low motivation, and I would feel a weird content glaze affecting my personality.  I seem to be quit sensitive to it.

I'll now try fenugreek - just purchased a bottle of solgar at vitamin shoppe.

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1858 on: 05/11/2008 19:57:23 »
POIS DIARY

Just wanted to check in: I took Levitra yesterday and today is Day 1. 75% relief. It's continued to work well for over a year now, but I'd still prefer the naturopathic route.

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1859 on: 05/11/2008 19:59:56 »
Relora Results - after taking relora for a week I noticed a reduction in POIS symptoms and duration of period - approximately 50% for each.  I've decided to stop taking relora altogether because I didn't care for it's side effects - extreme relaxation, low motivation, and I would feel a weird content glaze affecting my personality.  I seem to be quit sensitive to it.

I'll now try fenugreek - just purchased a bottle of solgar at vitamin shoppe.

Limejuice, thank you for this!

As I mentioned earlier, "bad" experiences, such as side effects, are very important for all of us to know.

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1860 on: 05/11/2008 20:03:02 »
...THis is why I have been so strongly urging others to take initiative to do thyroid tests. It's
a simple action that could save you from many many years of worthless exhaustion.

Girlwind, sorry if this is repetitive, but have you found effective treatment for thyroid?

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Offline Chewbacca

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1861 on: 05/11/2008 20:27:49 »
RE: Limejuice

Relaxed, content, and low motivation….. That sounds like the perfect state of mind!!!!! Thought, I guess I can understand not liking the low motivation. I'm taking Theanine serene with Relora and its doing wonders. Still haven’t POIS tested it yet, but it's doing wonders for the rest of my life. I guess though for me I don't get hyper sedated because I'm taking an herbal mix that has ginseng in it. It's like I'm relaxed and have energy at the same time. The herbal mix is for what my Traditional Chinese Medical doctor calls kidney chi deficiency. Which in western terms I think means and imbalance in my hypothalamic pituitary adrenal axis. Anywho, after a couple weeks more of treatment I'll do some testing and see how my POIS reacts to what I've been doing. I figure this little regime I'm on is good because I'm boosting the ability of my H.P.A. axis to deal with stress(ginseng/ TCM herbs) and I'm lowering my stress response with the theanine serene with relora. We’ll see how it goes. Maybe when I test I’ll take some fenugreek the day of and day after if need be.

Oh…..about fenugreek and my concerns with breast development in men who take it. It appears the risk of gynecomastia (man boobs) is somewhat small. One article I read said fenugreek contains a compound called diosgenin. Diosgenin a compound sometimes used in the creation of synthetic estrogen. Estrogen is the primary sex hormone of female breast development. However the estrogen like effect of fenugreek is not the same thing as real estrogen. Fenugreek estrogen is a phytoestrogens (plant estrogen). These estrogen like compounds actually bind to estrogen receptor sites in the body and may actually decrease the effects of estrogen in the body because the real biological form of estrogen cannot bind to it’s receptor site. (so it might actually lower estrogen in the body)

Fenugreek definitely increases milk supply in nursing mothers which is one thing that would increase breast size. It also increases water retention…another thing that could contribute to its apparent breast growing effects.

However, despite all this….it’s hard to ignore a centuries old claim that fenugreek increases breast size. But, if it is the case that fenugreek increases breast size then at least there is a remedy for that. According to some sources one effective treatment for gynomastia (man juggs) is to take turmeric. Apparently it reduces breast tissue and I believe abdominal fat as well. Many men have used it for more classic cases of gynomastia (man knockers) So…..whenever I take fenugreek, I take turmeric right alongside it just to be safe. Tumeric is also good for the liver.
Hope this helps some of ya’ll.


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Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1862 on: 05/11/2008 20:59:09 »
...THis is why I have been so strongly urging others to take initiative to do thyroid tests. It's
a simple action that could save you from many many years of worthless exhaustion.

Girlwind, sorry if this is repetitive, but have you found effective treatment for thyroid?

I'm working on it. See my post on this page--up above: MessageID: 203282

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Offline pyropeach

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1863 on: 05/11/2008 23:19:06 »

It is as if i become diabetic after orgasm.

Me too.  It's just weird...and quit unnecessary :)

Relora Results - after taking relora for a week I noticed a reduction in POIS symptoms and duration of period - approximately 50% for each.  I've decided to stop taking relora altogether because I didn't care for it's side effects - extreme relaxation, low motivation, and I would feel a weird content glaze affecting my personality.  I seem to be quit sensitive to it.

I'll now try fenugreek - just purchased a bottle of solgar at vitamin shoppe.

I just wanted to second this.  I've been taking Relora for 4 days now, three times a day.  It clearly has diminished my POIS symptoms (less brain fog, etc) to about 25%.  As for the duration of symptoms, I can't say at this point.  I have also noticed its relaxing effects as well as the lowering of motivation, but these effects aren't strong enough for me not to ignore.  So far, Relora is working better than anything I've tried before.  Of course I do still feel a little weird...for some reason my head feels kinda bloated.  I'll continue taking Relora and keep posting....


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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1864 on: 06/11/2008 02:21:56 »
...I've been taking Relora for 4 days now, three times a day.  It clearly has diminished my POIS symptoms (less brain fog, etc) to about 25%.  As for the duration of symptoms, I can't say at this point.  I have also noticed its relaxing effects as well as the lowering of motivation, but these effects aren't strong enough for me not to ignore.  So far, Relora is working better than anything I've tried before.  Of course I do still feel a little weird...for some reason my head feels kinda bloated.  I'll continue taking Relora and keep posting....

Pyro, thank you. Just be careful with relora with Rx meds, and non-prescription too, since there's nothing in the pharmacy computers to check it against other stuff.(Fenugreek is in though)

Great news!
« Last Edit: 06/11/2008 02:25:00 by demografx »

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Offline tarkington

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1865 on: 06/11/2008 02:23:50 »
I have been taking Relora for about two weeks now.  Three times a day.  I have had about eight orgasms.  I feel so normal that I now don't even worry about the my symptoms coming.  I do feel more relaxed because of Relora (or maybe its because of the orgasms).  But I don't mind that because I am normally very stressed.  However, I still have motivation, so I am not sure if that is a side effect of Relora or not.

I am amazed that I feel no more side effects.  Limejuice and others, I am not sure why I have an almost 100% reduction instead of just 50 or 25%.  Must be a biological difference.

I see no reason why I can't continue taking Relora indefinitely.  The ingredients are natural and I feel awesome, since I don't have to worry about POIS and the intense pressure to satisfy my desires (I used to battle with myself for hours because I had such intense sexual urges).  Now I have lots of time to make productive without the stress of intense sexual desire.

I can't tell you how great this forum truely is.  How many times have you heard about a large group of people coming together, most of whom have no medical background, and finding certain medicines and herbs that fix the chemicals of the body.  That is why humans are so incredible!

It's amazing how ajusting just a few chemicals like cortisol (a chemical?) can actually change a persons entire life.  It will change my life.  

Thanks everyone for all the posts.  If I never found this forum I would still be stuck with the same miserable state of sexuality.  

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1866 on: 06/11/2008 02:26:37 »
I have been taking Relora for about two weeks now.  Three times a day.  I have had about eight orgasms.  I feel so normal that I now don't even worry about the my symptoms coming.  I do feel more relaxed because of Relora (or maybe its because of the orgasms).  But I don't mind that because I am normally very stressed.  However, I still have motivation, so I am not sure if that is a side effect of Relora or not.

I am amazed that I feel no more side effects.  Limejuice and others, I am not sure why I have an almost 100% reduction instead of just 50 or 25%.  Must be a biological difference.

I see no reason why I can't continue taking Relora indefinitely.  The ingredients are natural and I feel awesome, since I don't have to worry about POIS and the intense pressure to satisfy my desires (I used to battle with myself for hours because I had such intense sexual urges).  Now I have lots of time to make productive without the stress of intense sexual desire.

I can't tell you how great this forum truely is.  How many times have you heard about a large group of people coming together, most of whom have no medical background, and finding certain medicines and herbs that fix the chemicals of the body.  That is why humans are so incredible!

It's amazing how ajusting just a few chemicals like cortisol (a chemical?) can actually change a persons entire life.  It will change my life.  

Thanks everyone for all the posts.  If I never found this forum I would still be stuck with the same miserable state of sexuality.  

Tarkington...incredible!! Congratulations!

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Offline martin88

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1867 on: 06/11/2008 04:25:12 »
Tarkington, I think 2 weeks is not enough to say if you're completely cured but it's really nice you're reporting this here about your first 2 weeks of relief. You're young, maybe it can be a good idea to save a bit of fluids for your future partner.. I talk for me, sperm is like gold !
Several people here were reporting a 3 months without pois with a kind of euphoria, which for a psychiatrist may sound like an episode of mania, but I'm not one of them, I can't be judge.
An other point, you took centrum, this could have been involved in your success, not only Relora. Good luck.
« Last Edit: 06/11/2008 04:50:22 by martin88 »

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Offline Counterpoints

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1868 on: 06/11/2008 08:16:16 »
To clarify: I am not suggesting anyone permanently discontinue any supplement.  I think POIS, for some of us, could be caused by an underlying adrenal gland problem.  In this case, it would be wise to get a cortisol blood test.  Relora could interfere with the results of this test.  So in the event that you do want to get tested, I suggest temporarily discontinuing use of this supplement, within a proximity of the test.

Great news tarkington! I sense we are all becoming more hopeful. :)
« Last Edit: 06/11/2008 08:29:00 by Counterpoints »

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Offline John21

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1869 on: 06/11/2008 11:16:54 »
Nice to see Relora is working for you Tarkington

>> POIS culprit = cortisol? <<

It is interesting to find claims that garlic can inhibit cortisol. Perhaps NO wasn't the mechanism by which garlic helped me.
http://findarticles.com/p/articles/mi_m0KFY/is_6_21/ai_105514494

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Offline martin88

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1870 on: 06/11/2008 14:12:43 »
Very good results with Relora. You should try a least 1 or 2 months to eliminate placebo effect.
Relora help to reduce cortisol and balance DHEA too.
I agree with you B_Jim, it can be a placebo effect. But I'd like to add that it's not because an effect stay only for one month, or one day, or even for ten minutes that it's necessarily a placebo effect.
A good example of this is when you treat a plant with a fertilizer. If the latter is not well balanced, the plant will grow very quickly, will make big flowers, and will ultimately die of exhaustion, all this happens very quickly. The fertilizer "burns" the plant.
The healthy effect is not a placebo and doesn't stay indefinitely.

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Offline msl

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1871 on: 06/11/2008 16:59:58 »
Sorry guys but im in a bit of a bad mood! have we supposed almost every single cause under the sun by now? Testosterone, endocrine stuff, intestinal stuff? candida, blood pressure, neurotransmitter depletion, dopamine all this sorta stuff. I went to my gp the other day, she referred me to an erectile dysfunction clinic (the waiting period is around 11 weeks). I dont know where thats gonna go but i dont feel very enthusiastic. Howeverm My counsellor said that she had heard of cases where orgasm had induced an epileptic attack or fit. READ THIS http://en.wikipedia.org/wiki/Postictal_state
Do the words written here jump out of the page to you, like they did me?

“poor attention and concentration, poor short term memory, decreased verbal and interactive skills, and a variety of cognitive defects specific to individuals.”

Sound familiar? Also notice it mentioned that you may not be aware you have had a seizure. On further research i am under the impression that epilepsy is a very complex condition and that you do not have to have a "fit" (as what would normally assosciate with epilepsy) to have a seizure. the Neurotransmitter depletion suggestion as the cause for a post ictal state makes perfect sense to me. What do you all think?

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Offline msl

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1872 on: 06/11/2008 17:02:39 »
also notworth is:

"Dr. David Rabinowitz advised a full battery of investigations, and raised the possibility of a dissociative state, or a variant of Transient Global Amnesia. Dr. Ganesh Adaikan forwarded an article from the lancet where a woman with similar symptoms was cured with the antiepileptic, carbamazepine. Dr. Broderick also advised ruling out arrhythmias and blood pressure disorders by an ambulatory halter monitor and Blood Pressure cuff, then proceeding with considering dissociative states."

Taken from http://www.issm.info/prod/system/main/index.asp?page=/prod/data/issirlist/digest13.htm

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Offline msl

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1873 on: 06/11/2008 17:03:30 »
"I had come across the following article from Lancet long ago. It is somewhat inversely related to your case. Interestingly, the patient was cured with antiepileptic, carbamazepine 300mg."

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Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1874 on: 06/11/2008 17:10:35 »
I have taken Relora for two weeks, and had to stop because I began feeling a bit too ampted up and had
trouble sleeping. At first I thought it could be other things I'm taking in addition (more iodine in diet and
the Ashwaganda), but just stopping the Relora brought me back down enough to get my sleep back. This
is puzzling.  Why would something that lowers cortisol give me insomnia...?  Any idea on this.

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Offline tarkington

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1875 on: 06/11/2008 17:30:07 »
Interesting.  After all of my orgasms before taking Relora I hade insomina that night.

Also, I really don't want to stop taking Relora to get a blood test.  I know that sounds selfish, but I can't stand the symptoms.

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Offline Chewbacca

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1876 on: 06/11/2008 19:59:03 »
Putting Things In Perspective:

I am the wisest man alive, for I know one thing, and that is that I know nothing
                                                                                 - "Socrates"

A psychological reframe about POIS and epilepsy: POIS is a condition that has not really been all that researched. It has many symptoms that fit with many different theories. Some of these theories are, high cortisol, pituitary tumors that cause prolactin imbalance(always a good one), low dopamine, hypothyroidism, glucose imbalance, epilepsy, my personal favorite...kidney chi deficiency and probably many more.

Nobody know though! Nobody.

My point is that the dispair we sometimes might feel because we think our syndrome is caused by something serious might be overkill if we don't really know what is causing it. When we get down on ourselves because we think we are sure of the causes of our POIS, and I certainly do this all the time, we are saying that we know what causes POIS. Nobody...not you...not me...not nobody, has definitive evidence(conclusive research done over time) that says "X" is the causes of POIS. POIS could just as easily be caused by something relatively minor and insignificant as something major and ominous. I'm not saying this makes POIS any less shitty. But we just don't know what causes it. It might have many causes. Hell....even for some diseases that are wide spread and common we don't really know what causes them, just look at depression. It's all a big imbalance with serotonin right....that's just one theory. There is the serotonin hypothesis, there is also the norepinephrine hypothesis...then there is one million different nutritional imbalance theories. SSRI's didn't do sh1t for me. Hell maybe they are a cause of POIS, wouldn't surprise me. Also, just look at the symptoms of depression. Pretty common across the bored with some differences here and there, but there might be different causes. Who knows?

So it is with POIS. The only thing that really makes sense is to be a POIS agnostics (non-knower) until we get conclusive evidence about what POIS is caused by. I'm not saying stop our search...that would be dumb. I'm saying continue our search but apply certainty when it is warrented. Certainty comes with proof and lots of it.

There are some really good theories about POIS that seem to interlock with one another...specifically those theories having to to with the hypothalamic, pituitary, adrenal axis and things that effect it...remedies that effect it... like relora, fungreek and oxytocin synergists(levitra, loving thoughts and massage included:)

I think our hypothesizing is good and we should continue our experimentation with what we have found to work so far without becoming to attached to a theory until we have strong evidence. Relora, has worked for some, levitra has worked for some, fenugreek has worked for some. The operation of these compounds is most likely what will lead us to definitive theories...but in the spirit of this post, i don't really know that either. POIS could be just as easily caused by epilepsy. If that were the case I could accept it. But I will not accept such a premise without 1)Having proof that POIS can be caused by epilepsy and 2)Having proof that the POIS I experience is caused by epilepsy. These are two pretty big criteria to meet....for any prospective causes of POIS.

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Offline pyropeach

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1877 on: 06/11/2008 20:03:29 »
Sorry guys but im in a bit of a bad mood! have we supposed almost every single cause under the sun by now? Testosterone, endocrine stuff, intestinal stuff? candida, blood pressure, neurotransmitter depletion, dopamine all this sorta stuff. I went to my gp the other day, she referred me to an erectile dysfunction clinic (the waiting period is around 11 weeks). I dont know where thats gonna go but i dont feel very enthusiastic. Howeverm My counsellor said that she had heard of cases where orgasm had induced an epileptic attack or fit. READ THIS http://en.wikipedia.org/wiki/Postictal_state
Do the words written here jump out of the page to you, like they did me?

“poor attention and concentration, poor short term memory, decreased verbal and interactive skills, and a variety of cognitive defects specific to individuals.”

Sound familiar? Also notice it mentioned that you may not be aware you have had a seizure. On further research i am under the impression that epilepsy is a very complex condition and that you do not have to have a "fit" (as what would normally assosciate with epilepsy) to have a seizure. the Neurotransmitter depletion suggestion as the cause for a post ictal state makes perfect sense to me. What do you all think?

Very interesting.  This is what my first neurologist tested for - epilepsy.  But all he did was run two EEG tests; one when i was symptomatic and the other when I was normal.  He found nothing wrong.  I think epilepsy is a more believable cause for POIS, but we need more data as Chewbaca points out.  What tests can we take to see if we have some rare form of epilepsy?

Relora is still working great btw, thought its not a 100% fix, I can at least get through the day :)

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Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1878 on: 06/11/2008 20:47:34 »

Relora, has worked for some, levitra has worked for some, fenugreek has worked for some.


To add to the list: a low carb, high protein diet with garlic has worked for some, and adrenal
boosting supplements with Aswaganda and iodine supplementation has helped one of us too.

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Offline Limejuice

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1879 on: 06/11/2008 21:56:19 »
I've caught the attention of an endocrine specialist that is willing to run additional test on me.  My next lab appt is January 5th.

Members, in the name of identifying cause of POIS, what tests do you suggest I undergo?

All thyroid tests have been negative (free t3, free t4, TSH).

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1880 on: 06/11/2008 22:10:25 »
Putting Things In Perspective:

I am the wisest man alive, for I know one thing, and that is that I know nothing
                                                                                 - "Socrates"

A psychological reframe about POIS and epilepsy: POIS is a condition that has not really been all that researched...

Chewbacca, great summary of State-Of-The-POIS!. It Reminds me of Bill Maher's movie "Religulous" where he says "I belong to the I-don't-know team". It's so easy to claim to "know" the truth about POIS, yet fact is, we know diddly at this stage. Yet, for me, the mere existence of this forum and some positive results is light years ahead of where I was just 2 years ago! (2 years ago: hopeless resignation)
« Last Edit: 06/11/2008 23:20:15 by demografx »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1881 on: 06/11/2008 22:15:58 »
...I really don't want to stop taking Relora to get a blood test.  I know that sounds selfish, but I can't stand the symptoms.

Tarkington, you're not selfish! You've paid heavily with past POIS symptoms, you deserve a break! As long as you're medically careful with it (tell your doc, interactions aren't well known).

You're doing a lot for this Forum - and POISkind[;D] - just by reporting!

Enjoy your life. Take your time.
« Last Edit: 06/11/2008 22:23:32 by demografx »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1882 on: 06/11/2008 22:35:56 »
HIV/AIDS Scientist/pioneer: status

I'll be speaking with him again tomorrow. So far, he is leaning toward IL-6 (stimulates prolactin among other things) as contributing to POIS. I will keep you all posted.

Prolactin: Sex and Immune Activation
http://www.lef.org/dsnews/ds_letter_2004_jul.htm#2
« Last Edit: 06/11/2008 23:06:56 by demografx »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1883 on: 06/11/2008 22:42:15 »
I've caught the attention of an endocrine specialist that is willing to run additional test on me.  My next lab appt is January 5th.

Members, in the name of identifying cause of POIS, what tests do you suggest I undergo?

All thyroid tests have been negative (free t3, free t4, TSH).

Limejuice, I think it's up to you to choose from Counterpoints' or Girlwind's suggestions. Or perhaps some combination?

Look for Counterpoints' Message #203135 and Girlwind's Message #203140 (they're right next to each other)
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg203232
« Last Edit: 06/11/2008 23:00:33 by demografx »

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Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1884 on: 06/11/2008 22:54:02 »
I've caught the attention of an endocrine specialist that is willing to run additional test on me.  My next lab appt is January 5th.

Members, in the name of identifying cause of POIS, what tests do you suggest I undergo?

All thyroid tests have been negative (free t3, free t4, TSH).

I'm happy your thyroid checked out in range. I would also check cortisol levels, as well testosterone,
estrogen, and DHEA-S.
You can do this with either blood spot tests or saliva through ZRT. Acronym
also mentioned something about pituitary testing, but he hasn't yet told us which tests he used.


http://www.zrtlab.com/Page.aspx?hid=410

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Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1885 on: 06/11/2008 22:57:25 »

I am the wisest man alive, for I know one thing, and that is that I know nothing
                                                                                 - "Socrates"

Bill Maher's movie "Religulous" where he says "I belong to the I-don't-know team".

I vote YES on I don't know!

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1886 on: 06/11/2008 23:02:55 »

I am the wisest man alive, for I know one thing, and that is that I know nothing
                                                                                 - "Socrates"

Bill Maher's movie "Religulous" where he says "I belong to the I-don't-know team".

I vote YES on I don't know!

Girlwind, that's 2 votes this week! [;D]

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1887 on: 06/11/2008 23:14:01 »
...You can do this with either blood spot tests or saliva....

Girlwind, do you know when urine testing is used?

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Offline martin88

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1888 on: 06/11/2008 23:52:15 »
I'm taking an herbal mix that has ginseng in it.
It takes at least 5 years to obtain a mature root of ginseng. Because of this ginseng is very frequently contaminated with pesticides, otherwise it's difficult to keep it alive for such a long time.

In a recent study, ConsumerLab tested 22 brands of ginseng supplements sold in the U.S. and found that only nine passed its review.
http://www.thebody.com/content/art30220.html

From a Swiss TV, they have also tested some ginseng (test made in 2000):
http://74.125.93.104/translate_c?hl=en&sl=fr&u=http://www.tsr.ch/emissions/abe/archive/00/000222b.html&prev=/search%3Fq%3Dhttp://www.tsr.ch/emissions/abe/archive/00/000222.html%26hl%3Den%26sa%3DG&usg=ALkJrhiCi0oinfF3Eu2fp9QukmAh0N0rdA

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Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1889 on: 06/11/2008 23:59:22 »
...You can do this with either blood spot tests or saliva....

Girlwind, do you know when urine testing is used?

I don't.

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Offline Chewbacca

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1890 on: 07/11/2008 01:35:59 »
RE:Martin88

My herbs are from shen chang pharmaceuticals, a Taiwanese based pharmaceutical company. They are GMP(good manufacturing Practices) compliant. They don't use contaminated herb and they test their product for contamination and quality control.

Don't ever use non organic, non GMP herbs. Also, it's always a good idea to see a TCM doctor if your going to start dabbling in herbs for specific conditions...like kidney chi deficiency.

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1891 on: 07/11/2008 01:36:45 »
POIS exhaustion/fatigue

I always thought this was a hallmark symptom of POIS until someone here said that theirs was not.

If exhaustion/fatigue is NOT your prime symptom, is brain fog?
« Last Edit: 07/11/2008 16:02:55 by demografx »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1892 on: 07/11/2008 03:57:08 »




Beware instant POIS cures!
« Last Edit: 07/11/2008 04:04:18 by demografx »

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Offline martin88

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1893 on: 07/11/2008 12:50:24 »
RE:Martin88

My herbs are from shen chang pharmaceuticals, a Taiwanese based pharmaceutical company. They are GMP(good manufacturing Practices) compliant. They don't use contaminated herb and they test their product for contamination and quality control.

Don't ever use non organic, non GMP herbs. Also, it's always a good idea to see a TCM doctor if your going to start dabbling in herbs for specific conditions...like kidney chi deficiency.
In 1996 I took myself one of the contaminated ginseng mentionned in the swiss report. I bought this at the pharmacy so I thought it was safe.. Hopefully I didn't take a lot of pills because of pois. (I don't know if the ginseng was organic and GMP, should it be "and" or "or" ?). I don't know the company you're mentionning. Even if you seem to know what you're doing I hope it was helpful for other people here.

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Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1894 on: 07/11/2008 14:35:51 »
To Martin88 and Chewbacca:

The best Chinese herbs I've ever taken (the cleanest in terms of being free of toxins) are the Sun Ten powders,
that are distributed by Brion.
There are only a few practitioners I know that use them, because they are more expensive.
But if you want the cleanest, safest, best quality herbs, these are IT. (I am very chemically sensitive and I have NEVER had
any toxic reaction from the Sun Ten herbs and I used them for 15 years straight.) This company is the ONLY one that
succeeded in winning a Prop. 65 lawsuit against them. (Check out the blurb below, or read all about it at this link:
http://www.brionherbs.com/index.html

"Of the numerous herbal companies sued to date, Sun Ten and Brion Herbs are the only companies who have successfully
fought the Proposition 65 suite by proving that their products were not in violation of the California law.

The allegations stated that all of the Sun Ten and Brion Herbs' formulations and single herbs were violation of Proposition 65.
Over a period of three years, Sun Ten Labs and Brion Herbs Corporation engaged in a process of costly research and methods
of verification of manufacturing processes, using an international team of esteemed soil experts, herbal experts, pre-eminent
academic experts, and scientists in realated fields to document that all their herbal products, manufacturing practices, sources
of herbs and the soils in which they were grown do not add any metal pollutants, and that heavy metals that occur naturally in
soils were reduced to the lowest levels possible. In this process they were able to demonstrate that all their products met the
requirements of Proposition 65.

The winning of this case establishes that Sun Ten and Brion Herbs Products are compliant with Proposition 65 require-
ments for heavy metals and that their manufacturing process supports the healthy results for which the products are
intended."




« Last Edit: 07/11/2008 15:29:21 by girlwind »

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Offline Limejuice

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1895 on: 07/11/2008 16:46:46 »
Interesting.  After all of my orgasms before taking Relora I hade insomina that night.

Also, I really don't want to stop taking Relora to get a blood test.  I know that sounds selfish, but I can't stand the symptoms.


Tarkington - What brand of Relora do you take?

I've been taking vitamin shoppe custom brand with only partical success.  Maybe the brand makes all the difference.

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1896 on: 07/11/2008 18:55:32 »
Tarkington - What brand of Relora do you take?

Limejuice, I saw your post so I thought I'd try out my new POIS Google-search method to find your answer.

I bought the Relora from Swanson Health for 7 dollars. 

Here is the link http://www.swansonvitamins.com/SWU148/ItemDetail?n=4294967189

As long as I'm using my POIS-Google search toy, I thought I'd find this disclaimer for you too.

IMPORTANT: ...RELORA - PLEASE READ!

From my pharmacology-lawyer friend:

RELORA

"Relora is a plant extract. Because the actual active ingredients are not discernible, there's no way to know what the interactions with other drugs might be. Therefore, I would recommend not taking it with Rx drugs,or with OTC drugs either.

This is what the manufacturer says: [Note the elevation in BP]

'side effects also include dizziness, trouble sleeping, and higher blood pressure.'  "

Limejuice (and others) - always a good idea to check out Relora - and other meds/supplements - with your healthcare professional advisor.
« Last Edit: 07/11/2008 19:09:41 by demografx »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1897 on: 07/11/2008 19:26:42 »
I have taken Relora for two weeks, and had to stop because I began feeling a bit too ampted up and had
trouble sleeping. At first I thought it could be other things I'm taking in addition (more iodine in diet and
the Ashwaganda), but just stopping the Relora brought me back down enough to get my sleep back. This
is puzzling.  Why would something that lowers cortisol give me insomnia...?  Any idea on this.

Girlwind, as my pharmacology-lawyer friend is quoted above, in my post to Limejuice, "relora side effects...include dizziness, trouble sleeping, and higher blood pressure." (But still puzzling considering the cortisol-lowering).
« Last Edit: 07/11/2008 19:31:44 by demografx »

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Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1898 on: 07/11/2008 20:24:06 »

Girlwind, as my pharmacology-lawyer friend is quoted above, in my post to Limejuice, "relora side effects...include dizziness, trouble sleeping, and higher blood pressure." (But still puzzling considering the cortisol-lowering).

I have REALLY low blood pressure, which apparently goes with adrenal fatigue. My high reading
for blood pressure is 100/60, my low can be as low as 87/50. So it still doesn't make sense why
it could amp me up....?

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Offline Counterpoints

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #1899 on: 08/11/2008 00:56:24 »
Tarkington:

Aside from the Relora, have you been or are you taking any other medications/supplements?  Have you made any changes in your life or diet since you have noticed improvement? 

I believe you that the Relora is helping, but perhaps there are also other things at work.

Congratulations on your great success!  Thanks for sharing your story.  It will undoubtedly help many people.

Also: It is your choice whether or not to temporarily discontinue Relora.  For the most part, I am not suggesting anyone take a blood test for my benefit, but rather, for their own.  If you are being helped (by Relora) because you have an underlying adrenal gland problem, then it is likely in your best interests to find that out.  It may also be that Relora is helping you for some entirely different reason (other than cortisol).
« Last Edit: 08/11/2008 01:14:24 by Counterpoints »