Post Orgasmic Illness Syndrome (POIS)

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2050 on: 21/11/2008 17:28:11 »
...I have no doubt that Levitra is powerful and effective for you. But you say it's only a 50-75% cure.

Martin, if I took 20 mg (I take 10mg now) I suspect it would be a 100% POIS cure. It's risky but I might do it. Do you (or anyone else) have an opinion about that?

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2051 on: 21/11/2008 17:30:23 »
So it [Fenugreek] is still very successful for me!

Hurray, this is very exciting news! Congratulations!

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2052 on: 21/11/2008 17:42:49 »
http://www.sciencedaily.com/releases/1999/06/990617072302.htm
The track we are following with cortisol seems like a very plausible path because this articles supports high cortisol level for short period affects memory functions.

Fascinating, CC! Even without POIS (created after 30+ years of POIS?)I have the attention span of a hamster in heat. [;D]

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2053 on: 21/11/2008 17:46:51 »
I understand that you'll probably have to find the [university endocrinology] boss there to ask how to initiate a research! Obviously anything we can try to be able to start something will be very welcome.

I think winning over the endocrinologist I'm working with might be more beneficial. They all have stellar reputations and can "fight" for a particular project/grant, etc. I'm taking it a step at a time. First step is to see what they can do for me as a POIS patient!

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Offline Limejuice

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2054 on: 21/11/2008 18:10:45 »
...I have no doubt that Levitra is powerful and effective for you. But you say it's only a 50-75% cure.

Martin, if I took 20 mg (I take 10mg now) I suspect it would be a 100% POIS cure. It's risky but I might do it. Do you (or anyone else) have an opinion about that?

Demo you know the manufactured doses are 2.5 mg, 5 mg, 10 mg, and 20 mg of vardenafil.  Are you experiencing negative side-effects at 10mg?  How risky would trying 20 mg once, be?  The latter question might be best suited for a doctor but you've done the research I'm sure.  What are your thoughts?

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Offline Limejuice

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2055 on: 21/11/2008 18:23:43 »
Hi, haven't posted for a bit due to not having internet access.

The fenugreek supplements are still working very well - I am taking 3 capsules of Solgar fenugreek before and after orgasm, as well as having a protein-heavy meal shortly after. On a couple of occasions the POIS symptoms have hardly happened at all, on a couple more they have been very substantially reduced (70%). On one occasion when I left out the protein meal and did not take fenugreek after the event, the POIS effects were only partly alleviated.

So it is still very successful for me!

Fenugreek has still been successful for me too, and that's what I use (not relora).  The dose schedule is two pills before release and one after.  An approximate reduction in symptoms is around 90%.

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Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2056 on: 21/11/2008 18:53:20 »
I understand that you'll probably have to find the [university endocrinology] boss there to ask how to initiate a research! Obviously anything we can try to be able to start something will be very welcome.

I think winning over the endocrinologist I'm working with might be more beneficial. They all have stellar reputations and can "fight" for a particular project/grant, etc. I'm taking it a step at a time. First step is to see what they can do for me as a POIS patient!

"Winning over an endrocrinologist" is not going to be a piece of cake. The two main issues endocrinologists deal with
are diabetes and thyroid problems. Many of them focus almost exclusively on diabetes, because there are more medicines to
play with, so it attracts more interest, and of course more money. And as far as the thyroid issue goes, most endocrinologists
are VERY CONSERVATIVE and ENTRENCHED in strong opinions about thyroid tests and treatments.

"Endocrinologists are the accountants of medicine," writes Mary Shomon. "They love numbers and many are more
comfortable reading lab charts and numbers off blood test results than interacting with patients or engaging in creative
problem-solving.


So be fore-warned! AND definitely be prepared!
« Last Edit: 21/11/2008 18:56:38 by girlwind »

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Offline tarkington

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2057 on: 21/11/2008 21:25:17 »
I was reading when I remembered an interesting event.  I had noticed many months ago that when I was free of all POIS symptoms I would fall asleep or drift off often while reading a certain book.  But the three days after masturbation I noticed I could not fall asleep or even come close to drifting off while reading the same book.

Perhaps cortisol has an important function in sleep. As I mentioned before, I had insomnia the nights following orgasm.  And others have mentioned that Relora has actually caused insomnia.  So I definitely see a connection between sleep and cortisol and orgasm.

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Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2058 on: 21/11/2008 21:42:47 »
Perhaps cortisol has an important function in sleep. As I mentioned before, I had insomnia the nights following orgasm.  And others have
mentioned that Relora has actually caused insomnia.  So I definitely see a connection between sleep and cortisol and orgasm.

There is definitely a connection between adrenal health and insomnia. Check out the article below.

http://www.nutritionalmedicine.org.uk/phdi/p1.nsf/supppages/franklin?opendocument&part=6

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Offline Limejuice

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2059 on: 21/11/2008 23:19:31 »
I've ran several google searchs and couldn't find symptoms for low prolactin.  Does anyone know what these symptoms are?

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2060 on: 22/11/2008 01:43:14 »
Demo you know the [Levitra] manufactured doses are 2.5 mg, 5 mg, 10 mg, and 20 mg of vardenafil.  Are you experiencing negative side-effects at 10mg?  How risky would trying 20 mg once, be?  The latter question might be best suited for a doctor but you've done the research I'm sure.  What are your thoughts?

Thanks, Limejuice. Absolutely no side effects, but I wonder if the POIS-action is softening (no pun intended:-) Frankly, I'm scared. A TINY TINY minority have experienced temporary vision loss, and even fewer....but scary....permanent. Even if it's 0.0000000000001% it doesn't matter if that one is.....ME! So thanx again, I'll ask a few docs, and  maybe the upcoming university endocrinologist?

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2061 on: 22/11/2008 01:51:31 »
I've ran several google searchs and couldn't find symptoms for low prolactin.  Does anyone know what these symptoms are?

I Googled prolactin deficiency and came up with a few results. One (only one I selected at random) says, "Prolactin deficiency is rare and is the result of partial or generalized anterior pituitary failure. When present, the symptom is absence of milk production in women. There are no known symptoms for men.[emphasis mine] ADH [antidiuretic hormone] deficiency may produce symptoms of diabetes insipidus, such as excessive thirst and frequent urination."
from http://www.healthatoz.com/healthatoz/Atoz/common/standard/transform.jsp?requestURI=/healthatoz/Atoz/ency/hypopituitarism.jsp

Here are the Google results:
http://www.google.com/search?hl=en&q=prolactin+deficiency&aq=f&oq=
« Last Edit: 22/11/2008 02:30:49 by demografx »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2062 on: 22/11/2008 02:04:15 »
Perhaps cortisol has an important function in sleep. As I mentioned before, I had insomnia the nights following orgasm.  And others have
mentioned that Relora has actually caused insomnia.  So I definitely see a connection between sleep and cortisol and orgasm.

The Relora manufacturer states, "causes trouble sleeping" as a side effect.

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2063 on: 22/11/2008 02:20:31 »
Thanks for the welcome B_Jim and Demo, I feel fortunate to find so many posters who are attacking the problem with a logical and open minded approach.  I get a sense that there's no real panacea here but rather a good mix of remedies that need experimentation.  No need to worry though Demo, I have no intention of experimenting with any drug without proper medical supervision!
I haven't had time to read through the entire thread yet so I'm reluctant to ask any questions out of courtesy but I was wondering if testosterone levels had been abandoned as a possible cause and if so why?  I ask because I notice a proportional rise in libido to decline in my symptoms of POIS. Was I wrong to think of testosterone as the primary agent here?

Thanks again everyone.

Andreas, I went on a several month T-binge. It worked for POIS once, and that was it. Placebo effect probably. Libido revived, and then some. But now off it, I wonder if it hurt my natural T-production. Controversial stuff!

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2064 on: 22/11/2008 06:31:14 »
RE MY SEEING A UNIVERSITY ENDOCRINOLOGIST (December 2)

...The two main issues endocrinologists deal with are diabetes and thyroid problems. Many of them focus almost exclusively on diabetes, because there are more medicines to play with, so it attracts more interest, and of course more money. And as far as the thyroid issue goes, most endocrinologists are VERY CONSERVATIVE and ENTRENCHED in strong opinions about thyroid tests and treatments.

"Endocrinologists are the accountants of medicine," writes Mary Shomon. "They love numbers and many are more comfortable reading lab charts and numbers off blood test results than interacting with patients or engaging in creative
problem-solving.


So be fore-warned! AND definitely be prepared!

Girlwind, thanks for the warning. Your depiction reminds me of the non-creative "bean counters" in business. Hopefully, this top-ranked university I'm seeing will bring forth a creative endocrinologist, if I'm lucky. Or at the very least, one who is well above the average. You mention diabetes and thyroid. Yes, they are very much doing that, but they also work in the sexual arena, I was glad to find out.

Keep in mind that Dr. Dave Schweitzer is an endocrinologist and he was the co-author with Dr. Waldinger of the very first POIS study...EVER. As a "co-founder of POIS" that's pretty creative in my book, for a malady that usually garners blank stares or worse, as we all well know, from most medicos I and most others here have unfortunately encountered in the last 30 years.

I'm also going by a consensus that has been reached by a number of people here at this forum, that an endocrinologist sifting through all of our posts/data can only be beneficial. And from nearly two years ago when this forum was started off by John21, that's been the consistent first choice of medical professional to assist us all.

But I will heed your warning. I just hope that I meet with an anomaly. A good one!

I don't need to win over anyone at this stage. I am a bonafide patient. A POIS patient. If I am treated well and logically (I will share my experience with you all) I will try to get us to a next step of either hopping on to an existing clinical trial or some research study (Government, private, or pharmaceutical) as a "POIS subset" or seeing if we can somehow get some assistance in sifting through this huge mass of data known as The POIS Forum. I don't know about you, but my head is SPINNING with all the good POIS theories, individual forum members' experiences, forum members' drug/supplement trials, etc. that whiz by every day on our computer screens! B_Jim, Counterpoints and others have done superb distillation work, but we need some more synthesis, summarization, hypothesis/testing, etc. by a medical professional(s). Naturopathic or any other form of testing that can yield POIS relief is most welcome as well.

At this stage, I think we all need to keep it very simple. This is merely ONE more step that we are trying out amongst MANY attempts we have made to get professional outside help. And frankly, we're not exactly blazing any trails; we are a small group with a rare malady, not top-of-mind for the medical research community at large! And so far, what this particular discussion really boils down to is...that I have a doctor's appointment [:)]
« Last Edit: 22/11/2008 07:59:17 by demografx »

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Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2065 on: 22/11/2008 17:27:22 »
RE MY SEEING A UNIVERSITY ENDOCRINOLOGIST (December 2)

I'm also going by a consensus that has been reached by a number of people here at this forum, that an endocrinologist sifting
through all of our posts/data can only be beneficial. And from nearly two years ago when this forum was started off by John21,
that's been the consistent first choice of medical professional to assist us all.

But I will heed your warning. I just hope that I meet with an anomaly. A good one!

If I am treated well and logically (I will share my experience with you all) I will try to get us to a next step of either hopping on
to an existing clinical trial or some research study (Government, private, or pharmaceutical) as a "POIS subset" or seeing if we
can somehow get some assistance in sifting through this huge mass of data known as The POIS Forum. I don't know about you,
but my head is SPINNING with all the good POIS theories, individual forum members' experiences, forum members' drug/supple-
ment trials, etc. that whiz by every day on our computer screens! B_Jim, Counterpoints and others have done superb distillation
work, but we need some more synthesis, summarization, hypothesis/testing, etc. by a medical professional(s). Naturopathic or
any other form of testing that can yield POIS relief is most welcome as well.

At this stage, I think we all need to keep it very simple. This is merely ONE more step that we are trying out amongst MANY
attempts we have made to get professional outside help. And frankly, we're not exactly blazing any trails; we are a small group with
a rare malady, not top-of-mind for the medical research community at large! And so far, what this particular discussion really boils
down to is...that I have a doctor's appointment [:)]

DEMOGRAFX:

Don't get me wrong, I think it's a great idea to see an endocrinologist. I'm just sharing with you what I have been told by some
other patients (with CFS and thyroid issues) and what I've read about this branch of medicine. I think it would DEFINITELY serve
you well to be VERY WELL PREPARED for that visit, with as much of your own personal medical data as possible, including
copies of any PAST BLOOD TEST RESULTS, a type-written CHRONOLOGICAL MEDICAL HISTORY, and a separate page
with your CURRENT MAIN SYMPTOMS, with brief explanations as to how each symptom affects your life and health, as well as
A LIST OF ALL MEDICATIONS AND SUPPLEMENTS YOU HAVE TRIED in the past for POIS (that did not work for you), as well
as a PARAGRAPH ABOUT WHAT HAS WORKED (Levitra) and to what extent it has.

I would also consider writing up a brief agenda for the doctor appointment, with a list of priorities you wish to cover and
questions you want to make sure to ask, and making two copies of it--one for you, one for doc. Since, this doctor will be working
FOR YOU, just like any other "contractor" would, it's good to let him know early on in the visit what your key concerns are. Some
doctors are so quick to make their OWN agenda during visits with them and they can completely dismiss the patient's needs in the
process. So I am a big advocate of the patient making clear his/her agenda early on. Also, it ensures that you won't forget all that
you want to cover with the doctor, including ALL THE DIAGNOSTIC TESTS YOU WOULD LIKE TO REQUEST.

Anyway, that's my 2 cents worth. I've seen a lot of doctors, and I've always done better when I came in to the appointment really
well-prepared, with my health concerns well documented.
« Last Edit: 22/11/2008 18:00:05 by girlwind »

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Offline Counterpoints

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2066 on: 23/11/2008 00:36:40 »
Demografx: Extreme physical exhaustion does not sound like a sign of high cortisol to me (though I could be wrong, and a better answer would not be so simple).  I am currently looking for some quality information to post about high and low cortisol levels, and the side effects, and the treatments.
« Last Edit: 23/11/2008 00:38:36 by Counterpoints »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2067 on: 23/11/2008 01:15:54 »
Don't get me wrong, I think it's a great idea to see an endocrinologist. I'm just sharing with you what I have been told by some other patients (with CFS and thyroid issues) and what I've read about this branch of medicine. I think it would DEFINITELY serve
you well to be VERY WELL PREPARED for that visit, with as much of your own personal medical data as possible...

Girlwind, this is excellent advice. Thank you! My agenda has often been derailed just as you described. The truth of the matter is that I need to muster the discipline to do this: as you know about me by now, I tend to be a "global chatter"...with an erratic fondness for detail[:)]
« Last Edit: 23/11/2008 01:27:08 by demografx »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2068 on: 23/11/2008 01:25:01 »
Demografx: Extreme physical exhaustion does not sound like a sign of high cortisol to me (though I could be wrong, and a better answer would not be so simple)...

Counterpoints, that's exactly my concern. I would recommend that the cortisol path be examined concomitantly with the fatigue path. I, for one, am typical of the fatigue-as-primary-symptom crowd. I think you're more in the cognitive-impairment-as-primary group.

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Offline Counterpoints

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2069 on: 23/11/2008 01:57:04 »
Good idea, demografx.  I think there are several mechanisms that cause these symptoms.  Some of us may only be affected by one or two of these, others may be affected by different ones, or all of them.  In this case, it's helpful to group symptoms, so that we can tackle each group separately, and efficiently come up with solutions.  It can be confusing, especially for physicians who are being introduced to this problem, to have lists of symptoms that are not processed in this way -- intuitively, they will be searching for something that explains everything, yet there could be a different explanation for each group of different symptoms.

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Offline Whoa

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2070 on: 23/11/2008 03:20:01 »
Perhaps cortisol has an important function in sleep. As I mentioned before, I had insomnia the nights following orgasm.  And others have
mentioned that Relora has actually caused insomnia.  So I definitely see a connection between sleep and cortisol and orgasm.

There is definitely a connection between adrenal health and insomnia. Check out the article below.

http://www.nutritionalmedicine.org.uk/phdi/p1.nsf/supppages/franklin?opendocument&part=6


A few things I want to put out there.

1. Personally, I've quite the opposite of insomnia while experiencing POIS symptoms. In fact, for several hours afterward, I can barely keep my eyes open.

2. Sleep is one of the things that, for me, "heals" the symptoms.

3. On the occasions where I only get 1 or 2 hours of sleep, I feel physical/mental fatigue similar to POIS even if I did not orgasm beforehand (or beforecoital - ability to come up with bad puns isn't harmed).


Demografx: Extreme physical exhaustion does not sound like a sign of high cortisol to me (though I could be wrong, and a better answer would not be so simple)...

Counterpoints, that's exactly my concern. I would recommend that the cortisol path be examined concomitantly with the fatigue path. I, for one, am typical of the fatigue-as-primary-symptom crowd. I think you're more in the cognitive-impairment-as-primary group.

OK, I'm both then - severe physical and mental fatigue.
« Last Edit: 23/11/2008 03:22:06 by Whoa »

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Offline martin88

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2071 on: 23/11/2008 03:41:19 »
Please, is there someone who's able to help with this :
I know there is someone who was supposedly cured with zoloft. Do you know where I can find the original document about this ? I searched in the forum but maybe not enough.

Also there was an other person who was helped with Levitra, sorry I don't remember who. It would be helpful to have an answer (just to be sure) to the following: were you taking other meds with Levitra? (Demografx is taking SNRI along with Levitra.)
Psychiatrists like TCM practitionners are frequently using several drugs together to cure one disease.(for example, one can help with side effects of the other).

SSRI can help with pois by reducing orgasm frequency:
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg187324#msg187324

Also if someone has a good article concerning SSRI or SNRI and cortisol..
« Last Edit: 23/11/2008 04:09:40 by martin88 »

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Offline martin88

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2072 on: 23/11/2008 03:55:12 »
A few things I want to put out there.
1. Personally, I've quite the opposite of insomnia while experiencing POIS symptoms. In fact, for several hours afterward, I can barely keep my eyes open.
2. Sleep is one of the things that, for me, "heals" the symptoms.
3. On the occasions where I only get 1 or 2 hours of sleep, I feel physical/mental fatigue similar to POIS even if I did not orgasm beforehand (or beforecoital - ability to come up with bad puns isn't harmed).

OK, I'm both then - severe physical and mental fatigue.
Thank you Whoa for this information. If not done already this would have been something interesting to put in the form http://pois.olympe-network.com/ 
Also the more cases we'll have in this database, the more we'll be credible in front of researchers. It's written "more than 140 cases of pois" in the front of the forum but there is only a few filled forms for now.

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Offline CertainlyPOIS

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2073 on: 23/11/2008 05:04:05 »
Like Whoa when i use relora, i tend to get sleepy. When i started using it, all i did was sleep. But now i don't fall asleep as easily but when i go to sleep, it is scarily deep.  3 hrs of sleep feels like i have slept for days in terms of intense dreaming.

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Offline CertainlyPOIS

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2074 on: 23/11/2008 05:05:00 »
Limejuice where did you get that solgar fenugreek, I will be very interested if relora doesn't work out.

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Offline Limejuice

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2075 on: 23/11/2008 05:37:39 »
Vitamin Shoppe or where Solgar is sold.  The fenugreek works best if taken 45 minutes to an hour before (with two capsoles).
« Last Edit: 23/11/2008 07:48:12 by Limejuice »

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Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2076 on: 23/11/2008 14:58:26 »
SOME FACTS ABOUT THE HUMAN BRAIN AND ITS ENERGY USE.

"In the average adult human, the brain represents about 2% of the body weight. Remarkably, despite its relatively small size, the
brain accounts for about 20% of the oxygen and, hence, calories consumed by the body."

"This ongoing metabolic activity consists largely of the oxidation of glucose to carbon dioxide and water resulting in the production
of large amounts of energy in the form of ATP. This high metabolic activity is present when we are completely passive and resting
as well as when we are observably doing something."


It's good to remember when we are addressing the issue of fatigue that the brain is actually part of the body. So mental
fatigue in a certain respect is physical fatigue, just in a different location.

http://www.pnas.org/content/99/16/10237.full



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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2077 on: 23/11/2008 17:30:47 »
Also there was an other person who was helped with Levitra, sorry I don't remember who. It would be helpful to have an answer (just to be sure) to the following: were you taking other meds with Levitra?

Martin ,FYI, I found this by "advanced googling":
Levitra site:http://www.thenakedscientists.com


Quote from: whoa
on 17/10/2008 08:32:56

...she prescribed me Levitra - which is why I felt obliged to register and post here today. On Levitra, I can confirm that the POIS symptoms were lessened dramatically post-orgasm. Even after an awesome load, I can still get up and do things. I don't feel paralyzed. However, I've never masturbated with Levitra and only used it for a short while until I was comfortable with my girlfriend - So my testing was limited.
« Last Edit: 23/11/2008 17:46:19 by demografx »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2078 on: 23/11/2008 17:49:41 »
It's good to remember when we are addressing the issue of fatigue that the brain is actually part of the body. So mental fatigue in a certain respect is physical fatigue, just in a different location.
http://www.pnas.org/content/99/16/10237.full

Maybe this explains why sometimes I can't tell the difference! (yes, I'm being serious for a change)

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2079 on: 23/11/2008 17:52:48 »
Can someone suggest a good, short definition of POIS that I can give to my endocrinologist?

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2080 on: 23/11/2008 17:58:10 »
Like Whoa when i use relora, i tend to get sleepy. When i started using it, all i did was sleep. But now i don't fall asleep as easily but when i go to sleep, it is scarily deep.  3 hrs of sleep feels like i have slept for days in terms of intense dreaming.

This is so strange! According to my pharmacology-lawyer friend, (I posted it) Relora (the brand name I believe is Relora), as per the manufacturer, "causes trouble sleeping".

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2081 on: 23/11/2008 18:03:36 »
It's written "more than 140 cases of pois" in the front of the forum but there is only a few filled forms for now.

Martin, sad to say, most of them have left the forum. I have written to a dozen or so, I don't know if they came back or not (unless a returnee posts it or emails me I have no way of knowing).

To those of you who stay and post: THANK YOU!

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Offline girlwind

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2082 on: 23/11/2008 18:14:14 »
Can someone suggest a good, short definition of POIS that I can give to my endocrinologist?

Why don't you just use the definition that's on my YouTube video. I put that together based on how people described and
defined POIS on this forum. The first few panels answer that question.

http://www.youtube.com/watch?v=UWBxAUC9k1g

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2083 on: 23/11/2008 18:39:17 »
Why don't you just use the [POIS] definition that's on my YouTube video...

You're psychic! I was just thinking of that...

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2084 on: 23/11/2008 18:47:39 »
Also if someone has a good article concerning SSRI or SNRI and cortisol..

I asked a psychiatrist friend. Awaiting reply.

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2085 on: 23/11/2008 19:02:38 »
I am a 24 year old healthy male with no health problems whatsoever.

Funny, I used to think I was healthy, too. But POIS is a MAJOR health problem, in my opinion! We just happen to be people with an illness that's mostly in remission! Of course, I also class cognitive impairment as unhealthy.
« Last Edit: 23/11/2008 19:27:25 by demografx »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2086 on: 23/11/2008 19:25:35 »
My mother died in a hospital because the epinephrine they gave in the ER wouldn't work because her doctor had upped the dose of high blood pressure medicine.

FINALLY, I'M SORRY THAT I MISSED THIS BEFORE. THAT IS ABSOLUTELY HORRIBLE! MY SINCEREST CONDOLENCES.

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Offline martin88

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2087 on: 23/11/2008 20:23:31 »
Also if someone has a good article concerning SSRI or SNRI and cortisol..

I asked a psychiatrist friend. Awaiting reply.
How many friends like that do you hide ! Thanks.

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Offline martin88

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2088 on: 23/11/2008 20:32:21 »
Martin ,FYI, I found this by "advanced googling":
Levitra site:http://www.thenakedscientists.com

A chance it was not too far.

Sorry Whoa, I have too much e-mails to read. It would be great to know if you took other meds with Levitra.
 
« Last Edit: 27/11/2008 13:19:38 by martin88 »

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Offline John21

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2089 on: 24/11/2008 00:38:34 »
I forget if I mentioned this before... I am wondering if prepubescent sex could have caused damage somehow to the developing system. I began before I could produce any semen, it wasn't until sometime later that I ejaculated after masturbation.  Girlwind has also told us how she began at a very young age. Was anyone else here sexual before puberty was complete?

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Offline Whoa

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2090 on: 24/11/2008 04:02:14 »
Martin ,FYI, I found this by "advanced googling":
Levitra site:http://www.thenakedscientists.com

A chance it was not too far.

Sorry Whoa, I have too much e-mails to treat, my memory is full. It would be great to know if you took other meds with Levitra.


No, nothing else with Levitra. Although, I can't help but think that perhaps it was a placebo effect. At the time, I was just starting to date my girlfriend and I couldn't wipe the smile off my face if you know what I mean. It may have negated the effects of POIS.

I've tried again, more recently, only I had about 3 orgasms in a three hour period. It did not prevent POIS.

All times, it was a 10MG dose, and all times I had dry sinuses as the main side effect.



I forget if I mentioned this before... I am wondering if prepubescent sex could have caused damage somehow to the developing system. I began before I could produce any semen, it wasn't until sometime later that I ejaculated after masturbation.  Girlwind has also told us how she began at a very young age. Was anyone else here sexual before puberty was complete?

Geez, well now that you mention it. Both my folks worked swing shifts, which left me at home alone at night with the Playboy channel, for several years - starting at age 9. I would watch for an hour or more every evening, and I recall frequently having wood, but not really knowing what to do with it. It wasn't until my 14th birthday(onset of puberty) that I had an actual orgasm.
« Last Edit: 24/11/2008 04:13:03 by Whoa »

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Offline Chewbacca

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2091 on: 24/11/2008 04:26:44 »
Has anyone here done the ZRT III complete male hormone profile test after orgasm. i know a few of you took the ZRT tests, but did you do it after sex/orgasm?

Think i might take one.....after sex. Though....god damn are they expensive. Are there any cheaper home hormone testing alternatives that are as reliable as ZRT? Anyone?

Anyone wanna join me. They are only a couple hundred bucks:( Though I'm willing to spend that kind of cash just for the opportuinity to see whats going on with my hormones. Unless someone knows of a cheaper alternative.

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2092 on: 24/11/2008 16:05:44 »
[Is there] a good article concerning SSRI or SNRI and cortisol[?]...

Martin, my psychiatrist-friend's reply:
Hi [demografx],
 
Not really.  There is a general association between depression and increased cortisol levels and PTSD and low cortisols.  If you Google cortisol and either SSRI or depression, there are many many hits.
 
[signed]

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Offline Limejuice

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2093 on: 24/11/2008 17:27:54 »
I forget if I mentioned this before... I am wondering if prepubescent sex could have caused damage somehow to the developing system. I began before I could produce any semen, it wasn't until sometime later that I ejaculated after masturbation.  Girlwind has also told us how she began at a very young age. Was anyone else here sexual before puberty was complete?

I began at a very young age too, around 11.  I would orgasm and not even ejaculate.

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2094 on: 24/11/2008 17:46:50 »
I forget if I mentioned this before... I am wondering if prepubescent sex could have caused damage somehow to the developing system. I began before I could produce any semen, it wasn't until sometime later that I ejaculated after masturbation.  Girlwind has also told us how she began at a very young age. Was anyone else here sexual before puberty was complete?

John, I've racked my brain over questions like this. But then I ask myself "to what avail"? Just speaking for myself, John, if I can either (1) increase the Levitra dose or (2) augment or replace Levitra with something [Relora? Fenugreek? Garlic?] and my POIS is gone...well, I won't care anymore "why". We have enough mental agony just coping with the symptoms!

Again, John, I'm just "talking out loud" - - for myself mainly.

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Offline Limejuice

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2095 on: 24/11/2008 19:08:51 »
Yeah, there appears to be three different levels of scope to look at our research

- Broad (society level)- finding the cause, a cure, and help preventing additional cases of POIS

- Intimidate (POIS community level) - find the cause and a cure or temporary relief for POIS

- Narrow (individual level) - finding temporary relief

From my observation, the forum people that have been around the longest are primarily looking at the intermediate level and touching on the broad level (by seeking professional medical advice).  Others have had tremendous success at the individual level with OTC supplements.  IMO we need both chiefs and Indians researching and pooling our information to give us the best chance for success at any level (which we seem to be doing).

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Offline John21

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2096 on: 24/11/2008 22:05:53 »
Girlwind,

Quote
I agree with you Demografx. Whether it's regarding POIS or CFS, I don't feel it's helpful to look back at our childhood years with an attitude of blame for an adult onset medical condition. First of all, I don't thing there's anything wrong with children experimenting with their bodies sexually, as many, if not most, healthy curious children do. Child orgasms can begin as early as 5 months of age. (Read the Kinsey research from the 1950's, the report from Life Planning Education in Washington DC or Sigmund Freud's "Infant Pleasure Potentials.") Secondly, if childhood or teenage sexual activity doesn't become consistently excessive, then it's most likely a NON-issue as a contributor to POIS. Even if it is excessive... who knows IF that might be factor.

If the majority of us POIS sufferers were to fit into this category of prepubescent sexual activity I think this would be valuable data. It might give ourselves or researchers a cue to what mechanism might be causing our suffering, perhaps leading to a remedy.  For most of us this problem has been very destructive in our lives and it is understandable that we would hate the thought of personally having a hand in it (pun intended). Believe me, I have agonized about this possibility as well. Hopefully it is not true, but I don't think we should cover our eyes to keep from seeing something unpleasant. 
« Last Edit: 25/11/2008 00:15:51 by John21 »

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Offline Counterpoints

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2097 on: 24/11/2008 22:06:41 »
I forget if I mentioned this before... I am wondering if prepubescent sex could have caused damage somehow to the developing system. I began before I could produce any semen, it wasn't until sometime later that I ejaculated after masturbation.  Girlwind has also told us how she began at a very young age. Was anyone else here sexual before puberty was complete?

I began at a very young age too, around 11.  I would orgasm and not even ejaculate.

Make that four, sort of.  I didn't orgasm, but I was very sexually active between 11-13. I had my first orgasm at 13.5.  This probably doesn't mean anything, but it's definitely something I've thought about before -- in fact, I think I asked a question like this on the forum, a long time ago.

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2098 on: 24/11/2008 23:18:39 »
POIS DIARY

OK, guys and gals, two hours ago I took  [:o]20mg of Levitra (my pharmacology-lawyer friend said if I didn't go blind with 10mg I should be ok with 20!) - oh, man, what I risk in the name of science!

So far, as always, my fingertips are "dried up" (hard to describe) - but not as bad as usual.

For those of you who didn't read my last posts, I wanted to up the dose to 20mg to see if it would increase the cure %. Also, my previous 2 times were not great POIS-wise. One reason I wonder is if the recent expiration date had something to do with it. So..........fresh batch [:)] - which makes my POIS Dealer happy.

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #2099 on: 24/11/2008 23:32:40 »
Yeah, there appears to be three different levels of scope to look at our research
- Broad (society level)- finding the cause, a cure, and help preventing additional cases of POIS
- Intimidate (POIS community level) - find the cause and a cure or temporary relief for POIS
- Narrow (individual level) - finding temporary relief

From my observation, the forum people that have been around the longest are primarily looking at the intermediate level and touching on the broad level (by seeking professional medical advice).  Others have had tremendous success at the individual level with OTC supplements.  IMO we need both chiefs and Indians researching and pooling our information to give us the best chance for success at any level (which we seem to be doing).

Interesting, Limejuice. Along those lines, I'd like to recommend to all of us to put our heads together and see what we can do for broader outreach to POIS sufferers worldwide.

I, for one, know what it's like to be "out there in the wilderness" with POIS agony for 30+ years, no one to talk to, and worse, dismissal from the "helping" community of doctors, clergy, therapists, and other medical practitioners!

We can't afford to advertise on the Super Bowl, but the Internet is an incredible, free "advertising" vehicle if it's used creatively. We already attract a sizable audience just from Google searches.

But worldwide, not every POIS sufferer is sophisticated enough to find us.

ANY IDEAS?
« Last Edit: 24/11/2008 23:50:12 by demografx »