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Blood Test Results:An endocrine test revealed my blood work results:Testosterone - NormalProlactin - NormalTSH - Moderately high 5.9I showed her the POIS study and asked her for other possible ideas what is causing POIS. She only recommended me to another doctor, "you've exhusted endocrine, check with a urologist."
MY ENDOCRINOLOGIST'S LABWORK ORDERED FOR POISCounterpoints asked which blood tests were ordered after my POIS evaluation appointment, so they are listed below. I just now got the list, and was dismayed that CORTISOL was not listed. So I asked the endocrinologist if it could yet be included with today's creatinine blood test (kidney function). Creatinine test is required for pre-MRI injection so MRI results can be shown "with and without contrast".Out of reference range-PROLACTINExtremely high (reason for MRI of the pituitary gland this week)-TESTOSTERONE(Bioavailable Testosterone, Free Testosterone, Total Testosterone, Sex Hormone Globulin Binding)"Free T" is low; others I don't have reference range on summary.In reference range-DHEA-SULFATE-FSH (Follicle Stimulating Hormone)-LH (Luteinizing Hormone)-TSH (Thyroid-Stimulating Hormone)Well, let's see where this goes. I'm happy that this doctor is taking POIS seriously. This is what he decided after listening to my discussion about this forum, seeing Dr Waldinger's paper, and asking detailed questions about my medical history.I didn't want to push specific testing requests any further than this. I'm not the doctor.
Hi guys, its been a while. For some reason I don't know where to place POIS anymore :S I have seen numerous doctors, an erectile dysfunction doctor and have been taking prozac for 1 or 2 years now to reduce the frequency of nocturnal emissions. After the erectile dysfunction consultant was unable to help, he referred me to a neurologist and a sexual psychotherapist.. yet the appointment letter has been lying on my desk for weeks now :/ months ago I would have lept at the oppertunity, but now I can't shake the thought "is this all in my head?" What do you guys think?
I have found an endocrinologist who focuses on adrenal problems, and is an academic. Hopefully I will have some luck!
I can't shake the thought "is [POIS] all in my head?" What do you guys think?
It also wouldn't hurt to hear the sexual psychotherapist out. He or she might have some really good advice.
We cross the 200 pois cases limit. Intersting dark circles eyes symptom . I will look this tommorow.
For me (and I may be totally wrong), the extent of nervous system (adrenal?) debilitation seems to be connected to my POIS episode. The years of suffering must have taken their collective toll. Could this accumulated "stress" have contributed to this time frame expansion? What is baffling is that some of us appear to have symptoms that are on the opposite ends of the spectrum, if there is a spectrum. Some are just totally wiped out and seriously, cognitively impaired. I'm a bit amped up and depressed, and more irritable than cognitively impaired.
Quote from: B_Jim on 23/01/2009 21:44:49 We cross the 200 pois cases limit. Intersting dark circles eyes symptom . I will look this tommorow.Terrific! Counterpoints wrote recently that there are about 100 "unique" POIS cases. Why do we have so much duplication?
There is hope!My endocrinologist liked the article from The New York Times! 
B_Jim? Counterpoints? Others?Lately, I've been wondering (don't ask me why though): Is our mission as difficult as finding a cure for the common cold?
Could this accumulated "stress" have contributed to this time frame expansion? What is baffling is that some of us appear to have symptoms that are on the opposite ends of the spectrum, if there is a spectrum. Some are just totally wiped out and seriously, cognitively impaired. I'm a bit amped up and depressed, and more irritable than cognitively impaired. What is the history of your "recovery time frame"? Or is this even relevant in your case?
I said about 100 cases for this specific forum. I based that off of this: http://www.thenakedscientists.com/forum/index.php?topic=6576.msg149009#msg149009I think B_Jim is including other cases of POIS found on the internet, in the 200 figure. This accounts for the discrepancy.
Quote from: demografx on 23/01/2009 21:16:06There is hope!My endocrinologist liked the article from The New York Times! Demo---For me, I always have SSRI therapy in my back pocket as a last resort. This was my last suggestion to my psychiatrist six weeks ago. But I will avoid it at all costs. Recovery time frame (of POIS) is very important in my opinion. Preventing reuptake of Serotonin may help in fast recovery cases mentioned in the article. I'm not sure in protracted ones (2-4 days). I am much more cautious than the doctor when he states, "I would exploit the usually undesirable side effects of the SSRI for possible therapeutic effects." It would be great if SSRI's helped anyone, I would jump for joy. But I would also be very saddened if, after weeks of waiting for "steady state", it caused added misery.Having read hundreds of posts, I seem to recall that many contributors have tried SSRI's in the past (including me). But as I read them, many seem (including me) to have other conditions too. But yet as I write this, I'm not sure. POIS could be a multi-headed monster,the actual cause of other problems. Here's something I haven't stated: If I cure my GAD, I'm sure my POIS would diminish, no doubt. If I cured POIS, I'm sure my GAD would disappear. Yet I'm terrified to try an SSRI (again), for side effects scare the hell out of me.[I took Zoloft in 95', but it seemed to do nothing because I was taking it with a potent benzo,and I stopped the SSRI] But as I told my psychiatrist, it is a last resort, and I mean last. However I would feel like a complete moron if I try it down the road and it works! Maybe my GAD, OCD (obsessive compulsive disorder) and my POIS is just one, connected condition arising out of the physical fluke of orgasm, unrecognized and inconsequential as a teenager, but manifesting itself and growing to a disturbing disability during the course of a lifetime. Thanks for suggesting the article. I'll think good and hard about my SSRI option. What a problem! But we will be happy when it is weakened and ultimately rendered harmless. But SSRI's are powerful and require careful, medical management.
Hi guys. Just found this discussion board and I am thrilled to finally find people that recognise what I've been experiencing for all of my adult life. I no longer feel quite so confused and alone. My partner is incredibly patient & understanding but I must admit, I have questioned myself constantly about what is going on and why. It took me a long time to realise this isn't 'normal' but like all of you have struggled to find any explanations. This lack of answers or aknowledgement has simply added to the feelings of frustration and sadness.I have no medical background and if I'm honest am struggling to understand most of the theories you guys have discussed, but I am in early correspondence with some institutions here in the UK who, I am pleased to say, have not dismissed me out of hand. Apparently, there was some relevant research carried out in the UK in the mid 80s. The papers were not, unfortunately, published or indexed, but they do still exist and further investigation by a credible University professor is under way. It may come to nothing, but I really do hope this might offer some answers and add some positive progress.
hey londonchap, im in the uk too!! im from bournemouth, but am at warwick university at the moment. I have decided to go see the neurologist/sexual psychotherapist. Knowing the uk tho the appointment probably got cancelled because I want quick enough xD will find out on monday.. guess what, going through POIS =D but only myself to blame would you guys class yourselves as very "sexual beings" ?
talk to be given at the SSTAR meeting on Post_orgasm fatigue in Men-A spectrum on Syndromes, by Jane Ashby, to be given on April 4.
I have found 2 things that may be of interest to you.There is an article on page D6 of Tuesday Jan 20, 2009 NY Times on "SEx and Depression: In the Brain if not the mind" that talks about people who feel achy and depressed after sex, and talk to be given at the SSTAR meeting on Post_orgasm fatigue in Men-A spectrum on Syndromes, by Jane Ashby, to be given on April 4.This is a message from reasearcher i sent email. The important thing is the SSTAR, does anyone live close to arlington virginia, that is where the meeting is. Hope this helps.
Quote from: CCconfucius on 24/01/2009 23:31:05talk to be given at the SSTAR meeting on Post_orgasm fatigue in Men-A spectrum on Syndromes, by Jane Ashby, to be given on April 4.Thanks for the info, CCconfucius! I googled SSTAR, and found a link to their schedule, which mentions that talk, here:http://www.sstarnet.org/download/2009040205Brochure.pdfHowever, I used google to try to find 'Jane Ashby MBBS MRCP', but I wasn't able to identify who that might be.Perhaps the SSTAR people might have a way to get in touch with her...
200 apples a day keep the Pois away.
Dear Ms. Ashby, Re: Your SSTAR PresentationI noticed with great interest your presentation at SSTAR. I am the moderator of a fast-growing forum for sufferers of Post Orgasmic Illness Syndrome (POIS):http://www.thenakedscientists.com/forum/index.php?topic=6576.new#new You are invited to visit and become more aware of our ability to help the 100+ sufferers who have posted here. We also have 200,000+ site views from people searching for support. Before 2007, nothing was available. I hope that you can help make this forum available to your audience of therapists, researchers and the sufferers of this agonizing malady. Some of our forum resources you may wish to look at: Forum member "B_Jim"'s POIS Forum Summary of All Cases, here as well as others on the Web:http://www.thenakedscientists.com/forum/index.php?topic=6576.msg149009#msg149009 Forum member "Girlwind" has created an excellent POIS Video: A first!http://www.youtube.com/watch?v=UWBxAUC9k1g And filling out the POIS survey created by Forum member "Counterpoints" enables sufferers to share POIS information and details with others here. This will also enable the forum to work more easily with outside researchers by having more organized data available about us:http://pois.olympe-network.com/POIS Research StudyWe have a copy of the first and only study on POIS by Dr. Marcel Waldinger, MD and Dr. David Schweitzer, MD.A copy (PDF) is attached. You might find this article in this week's NY Times of interest: "Sex and Depression: In the Brain, if Not the Mind"http://www.nytimes.com/2009/01/20/health/views/20mind.htmlBest regards, demografx - forum moderatorPost Orgasmic Illness Syndrome
Demografx - do you know anything or endocrologist said anything about the relationship between prolactin,dopamine and testosterone and estorgen. acording to wiki prolactin and dopamine counteract eachothers effect and also prolacting counter the effects of testosterone and estrogen.
Quote from: rapidgaming on 24/01/2009 22:22:24hey londonchap, im in the uk too!! im from bournemouth, but am at warwick university at the moment. I have decided to go see the neurologist/sexual psychotherapist. Knowing the uk tho the appointment probably got cancelled because I want quick enough xD will find out on monday.. guess what, going through POIS =D but only myself to blame would you guys class yourselves as very "sexual beings" ?Hi rapidgaming--I'm curious. I've had POIS over 20 yrs and am considerably older. I'm just wondering what a younger person suspects to be the cause. I wish I could go back in time and theorize. Do you have an inkling, or are you like most of us, totally perplexed ? Yes to your last question. I'd love to hear your thinking/intuition, even if you don't know.
For those saying that it's a physiological issue, I say that it most certainly is not.
Cutting out all caffeine and sugar has dramatically reduced the effects of POIS. I'd be interested to know how many people have caffeine on a regular basis (even if just a small amount). Staying away from caffeine isn't a solution. But it definitely has helped my cope with the side effects of POIS.