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Thanks. I havent really shared yet =)
-i've been looking for information on this MY WHOLE LIFE.-what the op describes in his first post i've experienced my whole life as well. -okay so $20,000 of brain MRI and EKG found nothing. -I havent gone as far as an endo makeup, though I should in the near future. -I cannot function at WORK for a few days after a climax of any kind. -try telling your wife or girlfriend that no, you really dont like sex cause it !@#$!#@ your head up in an utterly frightening way. -You want to know what it's like? Here, let me shoot you up with some nice tranquilizer that lasts for days and see how much fun you have.-what gets hit?memory recallconcentration and focusvocal communication-I have been abstinent most of my life because of it. -it would be great to please a girlfriend al naturale without having to suffer like this.-Man I cant wait to read this entire thread. Im saving it and I'm shoving it in my doctor and neurologists face.
I am experimenting with Quercetin. I have had bad allergic reactions to all my herbal and amino acid supplements. It's very distressing.
I've created an account on wikipedia and am working on getting it "autoconfirmed" so I can edit locked pages like "orgasm" to include reference to POIS.I've also created a wikipedia entry for POIS here:http://en.wikipedia.org/wiki/Post_Orgasmic_Illness_SyndromeI copied almost verbatim the script from the Youtube video to start off with. It would be a great help for everyone who has done work on this to help contribute and really flush out the page with as much information and references as we can, such as creating ref links to ALL the articles that any of you may think are related to POIS or could have any information helpful to the cause. Better than a portfolio, a link to a complete wikipedia entry could be emailed around the globe with ease. I have a backup maintained at home of the page, and will make continual backups as people edit it.
Will PM some people on here to see if [independent POIS site] is a possibility.
Hey guys,I'm glad I found you. 32 years old. Been suffering with something like this for a couple of years now. I initially thought that this was triggered by a urinary tract infection that got up into my kidneys because I always have some pain/inflammation in my lower back during these episodes and it's most similar to what I felt when I had that infection. however, I've been to doctors and kidney function is normal.The only thing that works for me is sex without ejaculation. This is still troublesome because sometimes after sex, I'll be so aroused that I'll have a wet dream and ruin it.Anyway, even though I've found this forum and it feels better to know that there are other people out there who are experiencing this, it seems kind of ridiculous to be posting at the end of a single forum thread with 10,000 posts.I'm a web designer/programmer by trade and have built large scale community oriented sites. Is anyone interested in helping me to organize the information that's been presented so we can create a site? Maybe we can get something like POIS.org. It would be much better to have a threaded forum where people can interact on multiple topic threads/froums (ie. experiences, treatments, research,etc.)I'm thinking something like this:http://www.celiac.com/Anyway, will PM some people on here to see if it's a possibility.
Excellent, Defsync! Thank you!Since I need to get more familiar with the entrails of wiki, can you please ensure that we get the following sources mentioned:Waldinger's study: send me or "Pyropeach" a PM with your regular email and we'll send you the PDF.NY Times article: http://www.nytimes.com/2009/01/20/health/views/20mind.html?_r=2&scp=1&sq=friedman%20sexual%20January%2020&st=csewww.reuniting.info Marnia is a forum member here, and her site (co-published together with her husband) has excellent postorgasmic and general sexual/orgasmic info.
If you want to get people to fund research on POIS, imho, it needs a well thought out website to build up POIS community.
I like the idea of different threads where people can interact on multiple topics.
-a section for profiles, listing a person's physiological stats, POIS symptoms, general locale (state or province), and a contact email so researchers can contact them for individual questions or requests for study
-another section for all the remedies that have been tried
Is there a site that publicly hosts Waldinger's study? If not, we'd need permission to host it on Wikipedia.