Post Orgasmic Illness Syndrome (POIS)

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Offline Guthrie

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4000 on: 03/04/2009 08:28:02 »
I have a question for you guys... Are either of you sensative to carbs meaning that you lose mental concentration after a meal of pasta?

I'm extremely sensative as if I'm diabetic.

Limejuice, I definitely have a similar reaction after eating carbs.  I become spacey and unresponsive.  In fact, it has happened so frequently that it has become almost a routine for me to have to say to my girlfriend, "Sorry, I'm digesting" in order to apologize for my spacing out!

What do the rest of you think could be causing this sort of digestive response?

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Offline John21

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4001 on: 03/04/2009 11:33:14 »
Quote
Quote from: Limejuice on 02/04/2009 20:23:37
I have a question for you guys... Are either of you sensative to carbs meaning that you lose mental concentration after a meal of pasta?

I'm extremely sensative as if I'm diabetic.


Limejuice, I definitely have a similar reaction after eating carbs.  I become spacey and unresponsive.  In fact, it has happened so frequently that it has become almost a routine for me to have to say to my girlfriend, "Sorry, I'm digesting" in order to apologize for my spacing out!

What do the rest of you think could be causing this sort of digestive response?

I have this response as well after eating refined carbs such as a box of KD, it slows me down big time. My blood sugar has been tested and found to be normal. I also had a glucose tolerance test which was normal. I don't know why I have this reaction, I simply avoid this type of food entirely.

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Offline Ambient123

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4002 on: 03/04/2009 18:32:23 »
Limejuice, you make an interesting point.

My blood sugar levels and certainly my cognitive abilities are implicated in what we would call "Bad Carbs" such as white carbohydrates (Bread, Flour etc.)

I would say in my case that yes, i am affected. Again, this holds up my theory of Adrenal Exhaustion, i think.

P.S

I phoned the medical centre today.

My results are in, though the doctor hasnt been able to look at them yet, so i have to wait until monday now. So close! :D

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Offline rock27

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4003 on: 03/04/2009 19:08:16 »
Rock, Ambient - I have a question for you guys... Are either of you sensative to carbs meaning that you lose mental concentration after a meal of pasta? I'm extremely sensative as if I'm diabetic.

I recognise it, but it is not extreme to me. And sometimes I crave carbs. I did a test in-POIS for diabetes - it was negative.
POIS, fatigue, brain fog, can't find words, irritated, can't concentrate.

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Offline rock27

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4004 on: 03/04/2009 19:27:16 »
I took a blood test to measure testosterone and here are the results:

Test                                 Result              Reference Range
Testosterone, Serum           447 NG/DL         241 - 827
Free Testosterone (Direct)   10.6 PG/ML        9.3 - 26.5

What are your thoughts?

Your Free T looks pretty low to me (not an expert). Maybe after release your Free T drops even further, causing the symptoms. I would definitely like to see your in-pois values, so we can compare.
POIS, fatigue, brain fog, can't find words, irritated, can't concentrate.

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Offline rock27

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4005 on: 03/04/2009 19:32:40 »
Today is Day Zero. Testosterone patches alone - no Levitra - seem to be the main reason for my 90% cure. Never thought I'd see the day. So DON'T EVER GIVE UP! GET MAD AT POIS and do something!

This is breaking news! I have always hoped for a one-thing solution and we've seen several now on the forum. Awesome!
POIS, fatigue, brain fog, can't find words, irritated, can't concentrate.

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Offline GoingCrazy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4006 on: 03/04/2009 20:20:41 »
Today is Day Zero. Testosterone patches alone - no Levitra - seem to be the main reason for my 90% cure. Never thought I'd see the day. So DON'T EVER GIVE UP! GET MAD AT POIS and do something!

This is breaking news! I have always hoped for a one-thing solution and we've seen several now on the forum. Awesome!

Funny how this is all coming together.  I believe it is just all related to low testosterone.  With the testosterone patches giving you a "cure" and the relora a cure also, it is just all related to testosterone.  Because relora lowers cortisol which inversely affects the amount of testosterone in your body.  Low testosterone causes depression, mood changes, sleep difficulties, difficulty concentration... all of which I have.

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4007 on: 03/04/2009 21:15:01 »
Yes, GC and the crazy thing for me is that around 2003 I was calling every expert on the planet, including a sex therapist in the Czech Republic who had no doubt in his mind that testosterone was the problem and cure for my POIS. It took me 7 years to finally see that he was right! The biggest impediment for me was that I relied on periodic injections which cause erratic results. When I finally saw my current endocrinologist he pointed that out to me and put me on T-patches which deliver a steady T flow, mimicking the body's natural delivery system. T-gels do the same. I use Androderm patches, 10 mg daily.

Also, I was slowed down by semi-accurate testing and semi-accurate interpretation. Testosterone testing can be tricky!
« Last Edit: 03/04/2009 21:57:39 by demografx »

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Offline Limejuice

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4008 on: 03/04/2009 21:21:04 »
The doctors opinion about the low free T was that "the other T tests seemed normal so I don't see anything wrong with your T".

Perhaps I'll seek a second opinion and test again in POIS (if I can force myself to).

My worst symptoms are still sensativity to carbs and terrible sleep.

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Offline GoingCrazy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4009 on: 03/04/2009 21:25:01 »
Yes, GC and the crazy thing for me is that around 2003 I was calling every expert on the planet, including a sex therapist in the Czech Republic who had no doubt in his mind that testosterone was the problem and cure for my POIS. It took me 7 years to finally see that he was right! The biggest impediment for me was that I relied on periodic injections which cause erratic results. When I finally saw my current endocrinologist he pointed that out to me and put me on T-patches which deliver a steady T flow, mimicking the body's natural delivery system.

Also, I was slowed down by semi-accurate testing and semi-accurate interpretation. Testosterone testing can be tricky!


Are you always going to have to rely on these patches?  Maybe after a while you should take them off and maybe your body would adjust somehow?

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4010 on: 03/04/2009 22:09:12 »
As the endo suggests, I'm not going to worry about that for now. I'm just going to enjoy laughing in Mr Pois' ugly face for now. Eventually, I will try to remove patches to see if the body can manufacture more T on it's own. Right now it's simply not manufacturing enough T.

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4011 on: 03/04/2009 22:11:30 »
LIMEJUICE, I got 2nd and 3rd opinion. First 2 docs were dead wrong.

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Offline John21

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4012 on: 03/04/2009 22:29:49 »
GC,
Quote
Funny how this is all coming together.  I believe it is just all related to low testosterone.  With the testosterone patches giving you a "cure" and the relora a cure also, it is just all related to testosterone.  Because relora lowers cortisol which inversely affects the amount of testosterone in your body.  Low testosterone causes depression, mood changes, sleep difficulties, difficulty concentration... all of which I have.

Yes, and there are claims that both fenugreek and garlic can increase testosterone.  Others on this forum have benefited from fenugreek (I tried it but couldn't tolerate it), and I have noticed a possible benefit from eating raw garlic. So maybe low T is it.

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4013 on: 03/04/2009 22:48:40 »
John, I think it is. But perhaps I could be somehow biased? [;D]

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4014 on: 03/04/2009 22:59:38 »
LIMEJUICE, I tested out-of-POIS out of the same fear as you, but it worked out well because it revealed my chronic deficiency.

I recommend to everyone to read up (google it) on testosterone testing. Also see what Harvard's health letter has to say.

Wishing and hoping we ALL heal. Sooner than later!

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4015 on: 04/04/2009 03:38:21 »

I took a blood test to measure testosterone and here are the results:

Test                                 Result              Reference Range
Testosterone, Serum           447 NG/DL         241 - 827
Free Testosterone (Direct)   10.6 PG/ML        9.3 - 26.5

What are your thoughts?


Limejuice, since my first bloodtest December '08 my T-patches raised my T-levels - similar to where yours are today - that is, to the low end of normal, as of March 2.

My endocrinologist said that my treatment should continue to increase my T-levels even moreso, by June, my next re-test. If my T doesn't go up further by June, he will switch me to a "pump gel" to increase the quantity of testosterone.

In other words, my endocrinologist is not happy with my being "just" at the low end of normal. Maybe that's where you need to be, too? (somewhere in the middle). But I'm not a medical pro, so please don't take this as medical advice. It's just my own personal POIS experience.
« Last Edit: 04/04/2009 03:53:24 by demografx »

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Offline Limejuice

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4016 on: 04/04/2009 05:53:42 »
I thinks theres lots of merit to testing multiple times, Demo - thanks.  Thats how my bummed thyriod was detected...it kept fluctuating with different tests.

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Offline Ambient123

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4017 on: 04/04/2009 12:41:51 »
One question i had for everyone:

Will my results for the cortisol test include any of my other hormone levels, or will cortisol indicate that all of the hormones in my adrenals are low without having to test them?

Thanks

Ambient

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Offline Counterpoints

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4018 on: 04/04/2009 19:54:31 »
Today is Day Zero. Testosterone patches alone - no Levitra - seem to be the main reason for my 90% cure. Never thought I'd see the day. So DON'T EVER GIVE UP! GET MAD AT POIS and do something!

This is breaking news! I have always hoped for a one-thing solution and we've seen several now on the forum. Awesome!

Funny how this is all coming together.  I believe it is just all related to low testosterone.  With the testosterone patches giving you a "cure" and the relora a cure also, it is just all related to testosterone.  Because relora lowers cortisol which inversely affects the amount of testosterone in your body.  Low testosterone causes depression, mood changes, sleep difficulties, difficulty concentration... all of which I have.

I strongly disagree.  First of all, Demo, weren't you going almost a year without any added testosterone, believing that Levitra was a 50-75% cure?

Secondly, I don't have low testosterone, free or total.  In fact, it's on the verge of high.  And my cortisol is high. (Which relora supposedly lowers).  Also, most of the other testosterone readings I see here are not extremely low.  Some of them are low-ish.  But if that were the (sole) cause of POIS, wouldn't about 5-10% of the planet complain of these symptoms?

I think it's WAY more complicated than "it is all related to testosterone".  It is possible, that in some cases, a testosterone deficiency is affecting some other abnormality (e.g. prolactin levels?) mostly unique to POIS sufferers. 

Also, I think these tests should be done when you are feeling your worst.  Then we don't have to hypothesize about what levels might be going to, when you are symptomatic.

We are definitely seeing some sex-hormone adrenal connections that might relate to POIS. And I think testosterone could be extremely important in a lot of cases. But let's not jump to conclusions or generalize. There's also the question of 'adrenal fatigue' vs 'adrenal hyperactivity'. We aren't all in the same boat.
« Last Edit: 04/04/2009 20:04:12 by Counterpoints »

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Offline Counterpoints

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4019 on: 04/04/2009 20:10:19 »
I have a question for you guys... Are either of you sensative to carbs meaning that you lose mental concentration after a meal of pasta?

I'm extremely sensative as if I'm diabetic.

Limejuice, I definitely have a similar reaction after eating carbs.  I become spacey and unresponsive.  In fact, it has happened so frequently that it has become almost a routine for me to have to say to my girlfriend, "Sorry, I'm digesting" in order to apologize for my spacing out!

What do the rest of you think could be causing this sort of digestive response?

Cortisol can affect sugar-handling.  I have noticed some strange sugar handling symptoms also.  I feel best when I eat meat, cheese, vegetables, etc.  Things like pancakes make me feel pretty unusual.  (Same with coffee and hot chocolate too).

I don't think this has always been the case though.  I remember, say, when I was 12, that diet did not significantly affect how I felt.

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4020 on: 04/04/2009 20:31:21 »

Demo, weren't you going almost a year without any added testosterone, believing that Levitra was a 50-75% cure?


CP, I think testosterone injections were always in the background, but I don't recall when I stopped. And even after stopping it was in my system. I assumed erroneously that the Levitra was the cure! I can't tell you exactly when, but I do know that I was POIS-miserable before re-starting T. And I was way below 50%, which I wrote in one of my posts. Whatever improvement it was could have been from previous testosterone injections that re-adjusted my system positively. Either that, or a prolonged placebo effect! Levitra was clearly (in retrospect) a downhill slide.

Regardless of the "mystery", I have tested myself without Levitra, and now have no doubt that testosterone is my cure. I will make the change on wikipedia.


But if that [testosterone] were the (sole) cause of POIS, wouldn't about 5-10% of the planet complain of these symptoms?


I agree it's going overboard to assume POIS = testosterone for everybody, but I wouldn't be surprised if hypogonadism - which is my diagnosis "on the record" - and POIS are highly correlated. So yes, I wouldn't be surprised if 5 - 10% of the planet had a high incidence of POIS. Retrospectively, I was one of those people on the planet, but who could I complain to? It took me MANY years to get the courage to open my mouth to a physician. And you know what happened when I did! (Because it happened to most of us: Zero response or dismissive attitude!)


Also, I think these tests should be done when you are feeling your worst.  Then we don't have to hypothesize about what levels might be going to, when you are symptomatic.


I disagree. In my case, out-of-POIS revealed a chronic deficiency, justifying 24/7 treatment. It's reasonable to assume that my testosterone would only be worse in-POIS.


I think testosterone could be extremely important in a lot of cases. But let's not jump to conclusions or generalize. There's also the question of 'adrenal fatigue' vs 'adrenal hyperactivity'. We aren't all in the same boat.


I agree.
« Last Edit: 04/04/2009 20:43:41 by demografx »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4021 on: 04/04/2009 21:08:28 »

This is breaking news! I have always hoped for a one-thing solution and we've seen several now on the forum. Awesome!


Counterpoints, you quoted Rocky above as part of the testosterone-only discussion. I think what he meant by "a one-thing solution" was not just testosterone, but Relora, Fenugreek, Claritin, etc., i.e., a POIS treatment not requiring a complicated mix of ingredients. And different solutions for different people.
« Last Edit: 04/04/2009 21:09:59 by demografx »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4022 on: 04/04/2009 21:51:15 »
B_Jim, thanks for that. Would you mind repeating your current regimen/treatment for POIS? And is it about 65% effective?

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4023 on: 04/04/2009 22:18:40 »

TESTOSTERONE

Demo's experiment proves ejaculation affects testosterone levels. Dispite general studies (ejaculation don't affect steroids levels). It's another form of Pois or Pos. I read a lot of Pois testimonies. Each time i see case talking about "mood change after ejaculation" , "not motivated after orgasm", I think they are close to Demo's case.


I've wondered for a long time if testosterone could help even those POIS sufferers with normal testosterone levels?

To me, that is where in-POIS testing could possibly be useful. If there is a dramatic drop of T at ejaculation and that causes POIS in some people, then short-acting T, e.g., injection could prevent the POIS damage? Just a thought.

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Offline Counterpoints

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4024 on: 04/04/2009 22:52:21 »
Also, I think these tests should be done when you are feeling your worst.  Then we don't have to hypothesize about what levels might be going to, when you are symptomatic.

I disagree. In my case, out-of-POIS revealed a chronic deficiency, justifying 24/7 treatment. It's reasonable to assume that my testosterone would only be worse in-POIS.

If there is a chronic deficiency, it will likely be picked up during in-POIS testing or out-of-POIS testing.  If there is an acute problem that surfaces while symptomatic, it is more likely to be picked up during in-POIS testing, than during out-of-POIS testing.

Therefore in-POIS testing is more likely to reveal a problem.

Also, if a hormone is found to be somewhat low during out-of-POIS testing, I think it is much better to have it then tested in-POIS, than to speculate on what is happening with that hormone while symptomatic.  Then we know, with almost 100% certainty what is happening, and we don't have to speculate.

Ideally, it would be good to have in-POIS and out-of-POIS tests.  But in-POIS seems like a more reasonable starting point.  If you take the tests out-of-POIS, and you do have an acute problem, or a problem that gets much worse in POIS (and would be notable on an in-POIS test), there is a chance the test results will look somewhat normal, and neither you nor your physician will see any urgency for a re-test.
« Last Edit: 04/04/2009 22:53:55 by Counterpoints »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4025 on: 04/04/2009 23:12:33 »

If there is a chronic deficiency, it will likely be picked up during in-POIS testing or out-of-POIS testing.


I really don't see how a chronic deficiency can be picked up during in-POIS testing. If, for example, testosterone drops dramatically, but in-POIS only (only after orgasm), how would we know looking at the in-POIS results that this is just a momentary drop or a chronic one?

I started out intending to do in-POIS testing, but my interest in moving more quickly is why I accidentally found the benefit of out-of-POIS testing. I'm glad I did.

If my results in-POIS came back on testosterone, I don't see how the next step, treatment recommendation, could be made reliably and accurately.

I think out-of-POIS testing is a more reasonable starting point. At least it worked out that way in my case.
« Last Edit: 04/04/2009 23:49:40 by demografx »

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Offline ajs

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4026 on: 05/04/2009 01:27:53 »
look at candida symptoms for link between histamine and carbs

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Offline Counterpoints

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4027 on: 05/04/2009 02:52:53 »

If there is a chronic deficiency, it will likely be picked up during in-POIS testing or out-of-POIS testing.


I really don't see how a chronic deficiency can be picked up during in-POIS testing. If, for example, testosterone drops dramatically, but in-POIS only (only after orgasm), how would we know looking at the in-POIS results that this is just a momentary drop or a chronic one?

I started out intending to do in-POIS testing, but my interest in moving more quickly is why I accidentally found the benefit of out-of-POIS testing. I'm glad I did.

If my results in-POIS came back on testosterone, I don't see how the next step, treatment recommendation, could be made reliably and accurately.

I think out-of-POIS testing is a more reasonable starting point. At least it worked out that way in my case.

If there's a problem, in-POIS testing is more likely to identify it than out of POIS testing.  You may not know whether the problem is chronic, or not, but you know it exists.  If there is a positive result, you follow up with repeat tests.  On the other hand, a normal out-of-POIS test may make it more difficult to proceed with further testing: you may no longer feel urgency to repeat tests, and your physician may not either.

Therefore, in this medical system, starting with an in-POIS test (with follow-up tests) appears more rational, in the balance of probabilities.  If an in-POIS test is normal, I would still consider an out-of-POIS test though.
« Last Edit: 05/04/2009 02:59:31 by Counterpoints »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4028 on: 05/04/2009 05:36:46 »

If there's a problem, in-POIS testing is more likely to identify it than out of POIS testing.  You may not know whether the problem is chronic, or not, but you know it exists.  If there is a positive result, you follow up with repeat tests.  On the other hand, a normal out-of-POIS test may make it more difficult to proceed with further testing: you may no longer feel urgency to repeat tests, and your physician may not either.

Therefore, in this medical system, starting with an in-POIS test (with follow-up tests) appears more rational, in the balance of probabilities.  If an in-POIS test is normal, I would still consider an out-of-POIS test though.

Good points, CP, but unfortunately follow-up testing, vs. immediate treatment seems to be the outcome of in-POIS testing. And I was very happy to minimize my number of required tests. Still, I had to repeat my out-of-POIS test to see if the treatment in fact increased testosterone.

Maybe I was lucky, because I was able to go right into treatment mode (after MRI ruled out tumors). And since testosterone is my POIS culprit (the treatment worked), I don't have to worry about finding any other POIS culprit with added in-POIS testing.

But you're right that generally, in-POIS testing does seem to be the better starting point, because others may not be so lucky with problem detection. And because of the likely reluctance to re-test after a normal out-of-POIS test, as you point out.

I wish there were a way to accommodate the best of both worlds without repeat testing!

I have a question: why would you recommend an out-of-POIS test if in-POIS testing results are normal?
« Last Edit: 05/04/2009 06:01:00 by demografx »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4029 on: 05/04/2009 05:58:04 »

look at candida symptoms for link between histamine and carbs


Hi ajs, are you a POIS sufferer?

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Offline ajs

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4030 on: 05/04/2009 13:24:39 »
YES! I am a 36 and a chic who developed pois after shingles which now i am not sure thats what i really had 3 years ago. Now my pois hell has turned into an everyday hell which is a 1000x aggrevated by orgasm. I have been watching site for 2 years and reading everything but i can't stand typing so i never chimed in until someone was kinda on the same path or theory i was...Histamine and candida only because my symptoms(which r the same as everyone's) has progressed to acid reflux,hives after everything i eat and excema.Started candida diet and started on diflucan for systemic fungus and have on off days but have not felt this good in years...i dont know if its the answer but it could?? be the underlying condition...hormones,neurotransmitters,immune system

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Offline ajs

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4031 on: 05/04/2009 14:15:01 »
.....check out candidafree.net and absoluteastronomy.com/topics/histamine.....caution! I am a big dumb animal when it comes to computers :) so i dont know how to put links on here

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Offline GoingCrazy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4032 on: 05/04/2009 22:02:00 »
hey guys

this is my second day on relora and already I am starting to feel like as I did a few years ago....... normal.  last night I went to bed at 6 am and woke up this morning at 1030... and I feel like I had a full nights rest, a lot better than I did while sleeping about 12 hours a night.  I just feel a lot normal, relaxed, and everything is just right.  My focus has gone up 10 fold and I feel friggin awesome.   [8D]  I haven't orgasmed yet but I intend on not doing it because I just love the way I am feeling right now a bit too much.  Although I believe orgasm will just make me more relaxed now.  Relora is the cure, at least for me    [O8)]

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4033 on: 05/04/2009 23:01:58 »
GC, great to hear about your Relora experience. I hope it sustains!

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Offline Counterpoints

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4034 on: 05/04/2009 23:16:30 »

If there's a problem, in-POIS testing is more likely to identify it than out of POIS testing.  You may not know whether the problem is chronic, or not, but you know it exists.  If there is a positive result, you follow up with repeat tests.  On the other hand, a normal out-of-POIS test may make it more difficult to proceed with further testing: you may no longer feel urgency to repeat tests, and your physician may not either.

Therefore, in this medical system, starting with an in-POIS test (with follow-up tests) appears more rational, in the balance of probabilities.  If an in-POIS test is normal, I would still consider an out-of-POIS test though.

Good points, CP, but unfortunately follow-up testing, vs. immediate treatment seems to be the outcome of in-POIS testing. And I was very happy to minimize my number of required tests. Still, I had to repeat my out-of-POIS test to see if the treatment in fact increased testosterone.

Maybe I was lucky, because I was able to go right into treatment mode (after MRI ruled out tumors). And since testosterone is my POIS culprit (the treatment worked), I don't have to worry about finding any other POIS culprit with added in-POIS testing.

But you're right that generally, in-POIS testing does seem to be the better starting point, because others may not be so lucky with problem detection. And because of the likely reluctance to re-test after a normal out-of-POIS test, as you point out.

I wish there were a way to accommodate the best of both worlds without repeat testing!

I have a question: why would you recommend an out-of-POIS test if in-POIS testing results are normal?

Because it is nice to have a "reference point" from abnormal symptoms.  e.g. an in-POIS test might seem normal, but it could be revealing to see how things change out of POIS.

On another note, it's nice to hear that you continue to do well!

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4035 on: 05/04/2009 23:24:48 »

ajs, welcome to the POIS thread of The Naked Science Forum!



The consensus at this forum to heal your POIS, is to start with hormonal bloodtesting, preferably with an endocrinologist.

Here are some POIS forum resources which may be helpful to you:

Please see "B_Jim"'s POIS Forum Summary of All Cases, here as well as others on the Web. This includes remedies that we have tested, and results.
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg149009#msg149009

"Girlwind" has created an excellent POIS Video:
http://www.youtube.com/watch?v=UWBxAUC9k1g

And filling out the POIS survey created by "Counterpoints" will enable you to share POIS information and details with others here. This will also enable us to work more easily with outside researchers by having more organized data available about us:
http://pois.olympe-network.com/

POIS Research Study

We have a copy of the first and only study on POIS by Dr. Marcel Waldinger,MD and Dr. David Schweitzer, MD.

If you want a copy (PDF), send "Pyropeach" a Private Message with your regular email address and he'll send you back the PDF.

To send a Private Message, click on "Messages" at the top of this page. At the Messages page, click on "New Message". From that point on, it works just like posting a message here, except that it only goes to the person(s) you designate.

Remember to put a quote around the recipient's name, e.g., "pyropeach".

New York Times article,

January 20, 2009
Mind
Sex and Depression: In the Brain, if Not the Mind
By RICHARD A. FRIEDMAN, M.D.
http://www.nytimes.com/2009/01/20/health/views/20mind.html?_r=1&scp=1&sq=friedman%20sexual%20January%2020&st=cse


In addition to serving our own informational interests, the resources listed above can be useful for you to show the medical world - which often shows little understanding and is sometimes skeptical of our condition - that POIS has scientific underpinnings and that POIS is not "just another psychological problem" related to sex - to be treated by the psychiatric/psychotherapist community.

Also, it can be helpful when dealing with medical professionals to point out the successful existence of our rapidly growing forum for over 2 years, which has attracted over 100 POIS sufferers worldwide who have posted here, plus more than 250,000 page visits. Not bad for a rare malady!

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4036 on: 06/04/2009 04:54:32 »
SOME TESTOSTERONE TESTING

Someone here asked me privately for my "free testosterone" testing results (much more was tested), so I thought I'd post it in case anyone else is interested:


Before POIS treatment:
(December 2, '08)
                                    reference range

%FREE T            1.47 %           1.5 - 2.2
FREE T             24.4 pg/mL        35 - 155


After POIS treatment:
(March 2, '09 after about 6 weeks of wearing T-patches)


%FREE T             1.45 %             1.5 - 2.2
FREE T              37.0 pg/mL          35 - 155


Free T jumped 50%, from 24.4 to 37.0. Effect: 90% POIS cure.

Endocrinologist expects the numbers to keep increasing through June. If they don't, he'll switch me from Androderm T-patches 10mg daily to a pump gel to increase my testosterone.
« Last Edit: 06/04/2009 05:08:04 by demografx »

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Offline Ambient123

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4037 on: 06/04/2009 12:11:44 »
Hey guys, my results came through, and it would appear that my cortisol is normal...so i'm quite frustrated today. lol

One question i had about this for you Demografx, or anyone else who can answer it:

Does cortisol levels indicate Testosterone Levels, or will only T testing indicate T levels?

I am asking this because my T theory still holds up, and as someone said earlier, all POIS seems to be related to T in some way. Certainly seems to be in my case.

Thanks

Ambient


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Offline Counterpoints

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4038 on: 06/04/2009 18:18:12 »
Interesting ideas B_Jim.  I also think, in my case, there is an "addiction" component.  Sometimes it takes me several orgasms to get "free" of POIS -- but this freedom is temporary.  A day or two later, I often end up with severe symptoms, which include intense "cravings for release". 

Here is an interesting article about the male neurological response to orgasm: http://www.jneurosci.org/cgi/reprint/23/27/9185
It is one of the most detailed studies I have seen.  Now we have studies on the neuro-endocrine and neurological response.  (Probably good to add to the database).  There is a connection in how heroin and orgasm both affect the ventral tegmental area (VTA).


Other useful links:
1) Interview with Dr. Gert Holstege: http://www.abc.net.au/rn/science/mind/stories/s1407052.htm

2) Central nervous system control of ejaculation.
Author: Holstege G.
Publisher: World Journal of Urolology. 2005 May 4;
http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=pubmed&dopt=Abstract&list_uids=15875196&query_hl=1

3) The Emotional Brain: Neural Correlates Of Cat Sexual Behavior And Human Male Ejaculation
Author: Holstege, G., Georgiadis, J.R.
Publisher: Progress In Brain Research, vol. 143, 39-45, 2004.
http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=pubmed&dopt=Abstract&list_uids=14653149&query_hl=3
« Last Edit: 06/04/2009 22:40:53 by Counterpoints »

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Offline Counterpoints

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4039 on: 06/04/2009 18:18:58 »
Ambient,

A cortisol test is not adequate to infer testosterone levels.  Get a free and total testosterone test.


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Offline POIS-SUFFERER

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4040 on: 06/04/2009 20:12:31 »
I have read that people are getting results with RELORA, so I have bought some and will try it myself... I think I am also suffering from POIS for around 2 years now....

How much RELORA are people taking?
How long before poeple are seeing results?

I have read a lot of this HUGE group and have not really seen these numbers.

Thanks!

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4041 on: 06/04/2009 22:23:16 »
Fascinating articles, Counterpoints!

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4042 on: 06/04/2009 22:27:52 »
B_Jim, terrific expose on Histamine!

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4043 on: 06/04/2009 22:33:19 »
POIS DIARY

Last night needed over 12 hours sleep. Today is Day One. I feel pretty good now. I wonder if 8x activity since 3/19 finally caught up with me. Prior to POIS treatment that amount of activity would've certainly landed me in the hospital or morgue!

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4044 on: 06/04/2009 22:40:43 »
Counterpoints, I read that LH test may be important to properly read T results for AMBIENT. And how about bioavailable T, FSH?

My understanding of Free T is that it can be tricky to determine the "true" level of Free T vs. binding T.

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Offline POIS-SUFFERER

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4045 on: 06/04/2009 22:53:57 »
demo,

I understand you on a testosterone patch? are these OTC or perscribed?

guess my next step is to have my T checked, looks like we are not 100% clear yet on what to have checked... which on the many T numbers.....

I am trying RELOARA right now... just waiting for it to "kick" in... not sure what to expect yet.

Thanks!

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4046 on: 07/04/2009 00:49:39 »

POIS-SUFFERER, welcome to the POIS thread of The Naked Science Forum!



The consensus at this forum to heal your POIS, is to start with hormonal bloodtesting, preferably with an endocrinologist.

Here are some POIS forum resources which may be helpful to you:

Please see "B_Jim"'s POIS Forum Summary of All Cases, here as well as others on the Web. This includes remedies that we have tested, and results.
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg149009#msg149009

"Girlwind" has created an excellent POIS Video:
http://www.youtube.com/watch?v=UWBxAUC9k1g

And filling out the POIS survey created by "Counterpoints" will enable you to share POIS information and details with others here. This will also enable us to work more easily with outside researchers by having more organized data available about us:
http://pois.olympe-network.com/

POIS Research Study

We have a copy of the first and only study on POIS by Dr. Marcel Waldinger,MD and Dr. David Schweitzer, MD.

If you want a copy (PDF), send "Pyropeach" a Private Message with your regular email address and he'll send you back the PDF.

To send a Private Message, click on "Messages" at the top of this page. At the Messages page, click on "New Message". From that point on, it works just like posting a message here, except that it only goes to the person(s) you designate.

Remember to put a quote around the recipient's name, e.g., "pyropeach".

New York Times article,

January 20, 2009
Mind
Sex and Depression: In the Brain, if Not the Mind
By RICHARD A. FRIEDMAN, M.D.
http://www.nytimes.com/2009/01/20/health/views/20mind.html?_r=1&scp=1&sq=friedman%20sexual%20January%2020&st=cse


In addition to serving our own informational interests, the resources listed above can be useful for you to show the medical world - which often shows little understanding and is sometimes skeptical of our condition - that POIS has scientific underpinnings and that POIS is not "just another psychological problem" related to sex - to be treated by the psychiatric/psychotherapist community.

Also, it can be helpful when dealing with medical professionals to point out the successful existence of our rapidly growing forum for over 2 years, which has attracted over 100 POIS sufferers worldwide who have posted here, plus more than 250,000 page visits. Not bad for a rare malady!

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4047 on: 07/04/2009 00:58:47 »
For POIS-SUFFERER and others: there are some variations of opinion about what to test, here at the forum, so you may wish to ask others as well.

MY ENDOCRINOLOGIST'S LABWORK ORDERED FOR POIS

-PROLACTIN

-TESTOSTERONE(Bioavailable Testosterone, Free Testosterone, Total Testosterone, [SHGB] Sex Hormone Globulin Binding)

-DHEA-SULFATE

-FSH (Follicle Stimulating Hormone)

-LH (Luteinizing Hormone)

-TSH (Thyroid-Stimulating Hormone)

-CORTISOL AM

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4048 on: 07/04/2009 01:03:26 »

demo, I understand you on a testosterone patch? are these OTC or prescribed?


Prescribed. By my endocrinologist. Only after bloodtesting of the hormones in my just-previous post, and then an MRI of the pituitary to rule out tumors.

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4049 on: 07/04/2009 01:08:19 »

How much RELORA are people taking?
How long before poeple are seeing results?


P-S, here are some previous forum discussions about Relora:
http://www.google.com/search?hl=en&q=relora+POIS+site%3Ahttp%3A%2F%2Fthenakedscientists.com

After clicking the above link, you then click on a link of a discussion that is of interest to you, and use Ctrl+F and type keyword(s) to zero in on the specific post you're looking for.