Post Orgasmic Illness Syndrome (POIS)

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Offline martin88

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4300 on: 15/05/2009 14:50:06 »
This is interesting that testosterone regulates tyrosine hydroxylase activity.(TH is an enzyme necessary for the production of dopamine with the amino acid L-tyrosine)

http://www.ncbi.nlm.nih.gov/pubmed/1353856

http://www.ncbi.nlm.nih.gov/pubmed/6145495?ordinalpos=1&itool=EntrezSystem2.PEntrez.Pubmed.Pubmed_ResultsPanel.Pubmed_DiscoveryPanel.Pubmed_Discovery_RA&linkpos=2&log$=relatedarticles&logdbfrom=pubmed
« Last Edit: 17/05/2009 02:31:36 by demografx »

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Offline Guthrie

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4301 on: 15/05/2009 16:05:35 »
I did, though, have some leftover garlic. About 20 minutes after my NE I went and chopped two cloves of garlic and put it in the microwave (on high, I presume) for 11 seconds. I added some ketchup and crushed it with a spoon, mentally prepared and ate it. My brother and sister, who haven't been within 10 feet of me are complaining of the smell, so I'm going to jog up to a local convenience store, to work the garlic out of my system (good idea?) and buy some mints and gum.

I hope this works, and I also hope I can find a way to deal with the smell.

Dean93,

It might be that microwaving the garlic destroys some of its chemical properties.  In general, most people seem to recommend raw garlic.

Also, regarding the smell, this site had a suggestion: http://www.geocities.com/allergylifeline/008.html
Quote
Garlic and Bad Breath

The main objection to garlic is the lingering aroma on the breath. I am happy to be able to share with you a method of ingesting this aromatic herb which makes it unnoticeable to even your closest friends.

For many years, a Winnipeg radio station broadcast an afternoon phone-in program called "Problem Corner," hosted by the most beloved odd couple on the city's broadcast scene, journalist George McCloy and home economist Hedy Lewis. It was, without question, the most listened-to radio program in the history of Manitoba. There I learned how to take garlic without annoying my family members with the smell.

The trick is simple. The garlic should not come into contact with your teeth or tongue or any other part of the mouth for longer than is absolutely necessary.

      Chop or mash a clove of raw garlic. Place on a spoon and swallow with a whole glass of water. That's it.

Taken on an empty stomach, garlic may cause a burning sensation, but a couple of bites of protein solve the problem for me. Either cheese or chicken works fine.

GarlicI followed this method of taking garlic daily for a week without anyone in my family being aware of it. I finally got curious and asked. No, they had not noticed any unusual odor coming from my mouth. My son, like me, is blessed with an unusually keen sense of smell. If he did not notice anything, then the method is foolproof.

When garlic is ingested repeatedly over a short period of time, though, the odor will start emanating from the skin, not from the mouth.

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Offline Dean93

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4302 on: 15/05/2009 17:02:54 »
Thanks Guthrie, I'll stop microwaving it, it can't be good. Would swallowing the water and not chewing the garlic work? I read that chewing it released the allin, or allicin, in the garlic. If I only crush it with a spoon, and not chew it, do you think it will release the chemicals? Does it happen internally?

Any answers are appreciated.

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Offline John21

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4303 on: 15/05/2009 20:32:28 »
Dean93, think of a garlic clove as being hundreds of two-part epoxy containers, when the two chemicals are mixed together other chemicals are formed. You can crush it with whatever works, but I wouldn't do it with my teeth, that would only exacerbate it's intensity.  When I tried microwaving it (very lightly) I crushing it and let it sit for minuits beforehand, but indeed raw might be better. Do a Google search for "garlic" and "crush" and you'll find lots of additional info.

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Offline Pronobis

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4304 on: 15/05/2009 20:45:41 »
Hello,

I have just discovered your site. I am in France and my english might not be fluent. I am 25 yrs old boy. My life has become a catastrophe with all these after orgasme sufferings. I didn't know that it is relative to a sex. I have just noticed that. Doctors don't know anything in this subject and they invite me to abandon this belief. However my stuation is little different than yours. I have flu like symptomes too, but very little, when I ejaculate many times it is evident. Some other things bother me much - my skin irritates, itching and I have dandruff , I have backache and anus itching after every sex. More I do, more I have. I'd like to know if you have same problems. Hope to hear you very soon.

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Offline rock27

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4305 on: 15/05/2009 22:59:26 »
my skin irritates, itching and I have dandruff , I have backache and anus itching after every sex.

Same here. Anus itching after orgasm, red color. 7 years ago a dermatologist researched it to be a candida, this year a dermatologist said it was psoriasis. Had a cortisone cure. it was gone in just a few days. Same on the head: itching and my dermatologist said it was psoriasis. Also gone in just a few days with a special shampoo.
Taking Relora after orgasm definitely helps greatly against these skin problems I just found out. I don't have backache, but stomach irritations.
POIS, fatigue, brain fog, can't find words, irritated, can't concentrate.

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Offline rock27

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4306 on: 15/05/2009 23:06:41 »
I can't speak for Rocky, but before T-treatment, my vitality was low out-of-POIS.

My vitality is definitely lower than people my age. Also libido lower. However I do get morning wood, even the same day as when I did the testing. Weightlifting does make me feel awesome.

PS: Demo, I can't believe I'm still registered as a Newbie. I registered almost a year ago!
« Last Edit: 15/05/2009 23:11:51 by rock27 »
POIS, fatigue, brain fog, can't find words, irritated, can't concentrate.

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Offline Pronobis

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4307 on: 16/05/2009 00:08:46 »
Same here. Anus itching after orgasm, red color. 7 years ago a dermatologist researched it to be a candida, this year a dermatologist said it was psoriasis. Had a cortisone cure. it was gone in just a few days. Same on the head: itching and my dermatologist said it was psoriasis. Also gone in just a few days with a special shampoo.
Taking Relora after orgasm definitely helps greatly against these skin problems I just found out. I don't have backache, but stomach irritations.

Yes, they are not eternal, they go if I avoid sex (they appear also after stress and fatigue). Ejaculation anew, and hop I have them again.
What is Relora?

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4308 on: 16/05/2009 06:37:17 »

Demo, I can't believe I'm still registered as a Newbie. I registered almost a year ago!


Rocky, don't take it seriously. It's just an arbitrary designation based on the number of times we post something, not how long we've been here. You are a highly valuable contributor!
« Last Edit: 16/05/2009 06:41:35 by demografx »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4309 on: 16/05/2009 07:03:33 »

Pronobis, welcome to the POIS thread of The Naked Science Forum!



The consensus at this forum to heal your POIS, is to start with hormonal bloodtesting, preferably with an endocrinologist.
 
Here are some POIS forum resources which may be helpful to you:

Please see "B_Jim"'s POIS Forum Summary of All Cases, here as well as others on the Web. This includes remedies that we have tested, and results.
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg149009#msg149009

"Girlwind" has created an excellent POIS Video:
http://www.youtube.com/watch?v=UWBxAUC9k1g

And filling out the POIS survey created by "Counterpoints" will enable you to share POIS information and details with others here. This will also enable us to work more easily with outside researchers by having more organized data available about us:
http://pois.olympe-network.com/

POIS Research Study

We have a copy of the first and only study on POIS by Dr. Marcel Waldinger,MD and Dr. David Schweitzer, MD.

If you want a copy (PDF), send "Pyropeach" a Private Message with your regular email address and he'll send you back the PDF.

To send a Private Message, click on "Messages" at the top of this page. At the Messages page, click on "New Message". From that point on, it works just like posting a message here, except that it only goes to the person(s) you designate.

Remember to put a quote around the recipient's name, e.g., "pyropeach".

New York Times article,

January 20, 2009
Mind
Sex and Depression: In the Brain, if Not the Mind
By RICHARD A. FRIEDMAN, M.D.
http://www.nytimes.com/2009/01/20/health/views/20mind.html?_r=1&scp=1&sq=friedman%20sexual%20January%2020&st=cse


In addition to serving our own informational interests, the resources listed above can be useful for you to show the medical world - which often shows little understanding and is sometimes skeptical of our condition - that POIS has scientific underpinnings and that POIS is not "just another psychological problem" related to sex - to be treated by the psychiatric/psychotherapist community.

Also, it can be helpful when dealing with medical professionals to point out the successful existence of our rapidly growing forum for over 2 years, which has attracted over 100 POIS sufferers worldwide who have posted here, plus more than 250,000 page visits. Not bad for a rare malady!

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4310 on: 16/05/2009 07:20:34 »

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Offline Coreman

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4311 on: 16/05/2009 17:13:48 »
Hi folks,

I've found another good stuff:


A supplement containing
Flavonoids and resveratrol
   - I've been using it after an "action", and well my friends, it really kicks in!

The supplement contains the ground skin of different seeds (of red grape and of different berries).

These improve my mood a LOT, help breathing a lot, and I also feel stronger.  Backed with Vitamin C, I found it even more effective.   

Wikipedia on resveratrol:

http://en.wikipedia.org/wiki/Resveratrol

Another lousy argument for the "immune theory". 






 

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Offline Pronobis

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4312 on: 16/05/2009 18:20:06 »
Thanx Demografx,

Finally a place where someone believes me and don't think that it's only in my mind.It is an important day for me. Imagine, i am looking for answer to my questions for about 5 years.  It is very sad to find them in such way and to know that some other people suffer of it. It is a trouble without any advantages  [V]
Here is my observations.
- I begun to have troubles about 5 years ago. Backache and itching in anus.
- Then I went to army and passed a year without sex and in pretty form - I had no trouble
- Just after the army I made sex (many times a week) and my backache was back in aggravated form
- Then I took a treatment against backache, itching, skin dryness - no result (fatigue etc I considered as a result of poor food)
- Last summer I begun seriously to have dandruff and blotch in my ears(after frequently sex). Then I saw that it is aggravating with other troubles. I said it to many doctors, they all definitely denied the link between the sex and these kind of problems.

Nowadays my problems remain without hindsight. I have a girlfriend, we do sex and I am always tired, itching, weak, eyes tired, backached etc.

There must be a solution. If we are numerous, we can do something. Why not to send a letter to World Health Organisation, that they finance some kind of research in this subject. May be there is some other thousand men in the world suffering of this.

Good luck for everybody.



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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4313 on: 17/05/2009 01:46:02 »

Hi folks,

I've found another good stuff:


A supplement containing
Flavonoids and resveratrol
   - I've been using it after an "action", and well my friends, it really kicks in!

The supplement contains the ground skin of different seeds (of red grape and of different berries).

These improve my mood a LOT, help breathing a lot, and I also feel stronger.  Backed with Vitamin C, I found it even more effective.   

Wikipedia on resveratrol:

http://en.wikipedia.org/wiki/Resveratrol

Another lousy argument for the "immune theory". 
 

Coreman, thanks for posting your experiment! Can you say which supplement you used?

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4314 on: 17/05/2009 03:37:25 »

Why not to send a letter to World Health Organisation [WHO], that they finance some kind of research in this subject. May be there is some other thousand men in the world suffering of this.


Good idea. But we need a medical facility that will conduct the research and submit to WHO (http://www.who.int/en/)or others for funding. I tried to develop a relationship with a local major university medical ressearch center that is treating me successfully for POIS, but they declined. I, Counterpoints and others here have also approached other facilities and medical specialists, such as Dr Waldinger, the "founder of POIS" - and so far, no luck. Funding to move us forward at a more rapid pace is, unfortunately, lacking.

One problem we have is that POIS is rare.  And it's just as expensive to research a rare disorder as it is one that affects many more people. Pharmaceutical companies, for example, will fund research, but for many millions of sufferers, not for the hundreds or thousands that we may represent. Also, the science of orgasm, its biochemistry, etc. is not yet well understood. It's very much in its infancy stage of development.

Since you wrote your post about WHO, I checked another organization, National Organization for Rare Disorders (NORD)
http://www.rarediseases.org/. I just noticed that a deadline for submission to one of their programs is May 15, which was yesterday...too bad!

A biophysicist friend who pioneered HIV/AIDS research and is a Harvard lecturer also suggested that we look into a Government (NIH) division which investigates rare disorders,
http://rarediseases.info.nih.gov/

But we don't really have much in the way of research resources ourselves, or the partnerships necessary to do the work. So...we continue on our own! However, we have come a long way from just 2 years ago, when John21 posted his solo message on this site...and now we are the central repository of POIS information worldwide!
« Last Edit: 17/05/2009 22:16:33 by demografx »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4315 on: 17/05/2009 04:31:32 »
Pronobis, how long (hours, days) after sex do your symptoms remain?

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4316 on: 17/05/2009 04:35:32 »
Day Zero symptoms for me, although mild, curiously can last many hours. Sometimess fewer, sometimes more. Levitra (not needed as much now since testosterone treatment has improved ED as well as POIS!) - might have an effect. I will pay closer attention to this.
« Last Edit: 17/05/2009 22:18:30 by demografx »

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Offline Pronobis

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4317 on: 17/05/2009 15:21:01 »
Demografx,

Flu-like symptomes last one day. Others up to a week. It depends on the number of ejaculations - usually I don't have more than one (I am deadly tired after first). If I do more than one time it may last long.
The interesting is that I have approximately same troubles after some kind of stress and fatigue (like, when I don't sleep enough, after having drunk a lot, after a boring voyage, when I am not in regime etc.). Even my dermatologist says that my dandruff problems are relative to a stress.  What is the link between sex and stress, I don't know.

M

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Offline Pronobis

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4318 on: 17/05/2009 17:10:30 »
My blood tests show that I am absolutly healthy. I was allergic since my borth, but now I'm ok, only in the case of dust and heat I have an itching nose and eyes.

My friend, I'm sure that thousands of men with the same problem are looking for answer to their quetions. Your forum is in English and it's hard to understand for an ordinary citizen. So, may be many people ignore this site. For example, there is nothing about that neither in french, nor russian, nor turkish etc. websites that I have been searching for a long time. This forum is very good, it's evident that one can not read all af 185 pages of complicated english. There must be a solid systematic reference, I think. I don't want to say that you should do all this. You have already done a great thing.


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Offline Counterpoints

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4319 on: 17/05/2009 20:18:45 »
Research Funding

I think it's reasonable to expect serious POIS research.  Lots of rare conditions have been seriously researched -- and when I say rare, I mean with fewer than 100 reported cases in history.  We just need a researcher who is willing to step up and really do something. 

I think we're getting to the point where some physicians have realized this is real and serious; for instance, I've noticed the ISSM discussions about POIS are slowly moving away from psychological considerations, towards a majority consensus that this is "real" and significant.

However, no-one has yet been willing to risk a serious investigation.  I think it's a matter of finding a researcher who is secure enough to take some risks.  After that, others will quickly jump on board.  It's as though you have a bunch of friends at the beach, wearing bathing-suits, looking at the cold ocean.  No-one wants to dive in alone, but once one of them jumps in, the others will follow.

One way of making this "jump" a little easier, is to see whether POIS connects to conditions that are already the focus of rigorous investigations.  For example, my high cortisol levels, combined with the pituitary adenoma, (and the pituitary abnormalities found in others here), connects my case with cyclical Cushings.  Therefore Cushings researchers may be interested.

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Offline Counterpoints

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4320 on: 17/05/2009 20:20:29 »
My blood tests show that I am absolutly healthy. I was allergic since my borth, but now I'm ok, only in the case of dust and heat I have an itching nose and eyes.

But which blood tests did you have, and how were you feeling when you took them?

As far as organized information -- we have B_Jim's summaries, found on the first page of this discussion, and we also have the questionnaire (http://pois.olympe-network.com), and there is a wikipedia article (http://en.wikipedia.org/wiki/Post_Orgasmic_Illness_Syndrome).

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Offline John21

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4321 on: 17/05/2009 20:57:00 »
Question: If Pronobis were to post a description of his condition in his native language would that make it easier for people of the same language to find us in their search queries?

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4322 on: 17/05/2009 22:02:51 »

Question: If Pronobis were to post a description of his condition in his native language would that make it easier for people of the same language to find us in their search queries?


Wow, John, terrific idea! Let's try it. I think the key to people finding us is also related to the volume and repetition of key concepts repeated in different words, so perhaps a lengthy description would work best, and one that includes many of the POIS sufferer's search terms we would anticipate, e.g., fatigue, "after sex", brain fog, exhaustion, orgasm, etc.

Allons!

 [:)]

« Last Edit: 17/05/2009 22:40:52 by demografx »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4323 on: 17/05/2009 22:25:36 »

My blood tests show that I am absolutly healthy.


I agree with Counterpoints' question as to which tests were done? Most of us believe that hormone tests are essential. Here are some previous forum posts, so that you can see what we tested:
http://www.google.com/search?hl=en&q=hormone+test+POIS+site%3Ahttp%3A%2F%2Fthenakedscientists.com

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4324 on: 17/05/2009 22:30:59 »

What is the link between sex and stress, I don't know.


"Underwater", a forum member, has written extensively about his experiences with stress and POIS:
http://www.google.com/search?hl=en&q=underwater+POIS+site%3Ahttp%3A%2F%2Fthenakedscientists.com

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Offline Counterpoints

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4325 on: 17/05/2009 23:23:50 »
Question: If Pronobis were to post a description of his condition in his native language would that make it easier for people of the same language to find us in their search queries?

Great idea John.  I think it certainly would.

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Offline Counterpoints

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4326 on: 17/05/2009 23:25:04 »

Question: If Pronobis were to post a description of his condition in his native language would that make it easier for people of the same language to find us in their search queries?


Wow, John, terrific idea! Let's try it. I think the key to people finding us is also related to the volume and repetition of key concepts repeated in different words, so perhaps a lengthy description would work best, and one that includes many of the POIS sufferer's search terms we would anticipate, e.g., fatigue, "after sex", brain fog, exhaustion, orgasm, etc.

Allons!

 [:)]



When I first experienced this, at about 14, I remember having trouble describing it.  I think I usually searched for "dizzy after orgasm".

This is a good discussion question, open to anyone: How did YOU find this forum (thread)?  What did you search for?
« Last Edit: 17/05/2009 23:26:50 by Counterpoints »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4327 on: 17/05/2009 23:50:33 »
Counterpoints, great question for us all!

I searched 2 years ago, right at the beginning when there was practically no information except John's post and maybe B_Jim's.

Since I knew of the Waldinger study, I searched POIS, Post Orgasmic Illness Syndrome. But from John's original post, the Naked Science moderators at the time called this "Post Orgasmic Mental Illness" (John mentioned symptoms akin to 'mental illness' in his post) - but I was able to correct it to Post Orgasmic Illness Syndrome.

Nevertheless, the match worked close enough! I'm sure glad of that.

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Offline Dean93

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4328 on: 18/05/2009 00:39:45 »
Although this doesn't seem to be the main topic of discussion at the moment, I thought I'd post before I forgot.

Recap: 23 days since my last NE, 8 days since my last orgasm, and after 6 days of being out of pois, I had a NE. Afterwards I ate 2 cloves of raw garlic.

I had my NE at 7 AM on Friday. Within the hour, I had two cloves of garlic and I felt fine until 5 o' clock on Saturday, where I got a little bit of brainfog, but not the enveloping debilitating type that I get when I'm totally in pois, just a slight disorientation. Today, Sunday, I feel a bit less alive than I do when I know I'm out of pois, and a little brainfog remains, but it's definitely better than it has been after orgasm without the garlic. Factors like lack of mental stimulation (long weekend, friends seem to be unavailable) and lack of sleep, perhaps, could be the partially or totally the cause.

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Offline John21

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4329 on: 18/05/2009 01:17:32 »
CP,
I believe my search terms were along the lines of this "post sex mental change" or "after ejaculation mind" or "sex mental problem" . After trying this for years and years I didn't have high expectations, but whenever in the state I would go digging again. If my memory is correct I came across a summary of the paper by Dres. Waldinger and Schweitzer, which eventually, in a subsequent state, gave me the confidence to post in this forum.

Dean93, glad to hear that garlic may have helped you! Hopefully it will continue.
« Last Edit: 18/05/2009 01:19:53 by John21 »

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Offline CertainlyPOIS

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4330 on: 18/05/2009 05:50:22 »
I kept searching over ejaculation, oversex, mental illness and ejaculation.
I found herabllove, and like ten other websites. One of those web sites lead me to a issm and fromm issm to this forum. 
Those websites also lead to a french forum on this topic i believe. I acutually found french one first.

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Offline CertainlyPOIS

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4331 on: 18/05/2009 05:52:52 »
And for brain orgasm sleep on side works with loose pants.  I believe it works because the penis gets erects freely instead being sandwiched between bed and body.

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Offline Counterpoints

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4332 on: 18/05/2009 06:48:20 »
If you type fatigué après l'orgasme you'll find some hits.  There seem to be many French people complaining of this problem.  I actually remember an entire website (in French) talking about post orgasm symptoms, and neuro-transmitters.  It was titled something like "fatigué après l'orgasme".  It was posted on this forum a long time ago.  Maybe I'll see if I can find it later.


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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4333 on: 18/05/2009 07:09:01 »
I also recall reading about some French people complaining of a post-sexual condition called "le petit mort", the little death.

Dean93, congrats with the garlic, let's hope it continues!

John, how/why did you pick The Naked Scientists? (Good pick!)


« Last Edit: 18/05/2009 09:17:45 by demografx »

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Offline John21

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4334 on: 18/05/2009 11:42:36 »
Demo, I just stumbled upon it while surfing. I found the site interesting, I browsed the forums and listened to some podcasts. Later it dawned on me that it would be the perfect place to post about my condition anonymously.  Perhaps the fact that the site is based in distant England made it easier to go ahead with it, it seemed far removed.

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Offline martin88

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4335 on: 18/05/2009 14:06:33 »
Why not to send a letter to World Health Organisation [WHO], that they finance some kind of research in this subject. May be there is some other thousand men in the world suffering of this.
Good idea. But we need a medical facility that will conduct the research and submit to WHO (http://www.who.int/en/)or others for funding.
Perhaps Pronobis idea is good ? "Only a doc must submit to WHO " :Is that something that you have read on the WHO website ?

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Offline martin88

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4336 on: 18/05/2009 14:21:38 »
About the keywords, good idea John. So if some german people or from other countries want to make a traduction of the symptoms mentionned in the wikipedia article (for example) and post it here in the forum it will be great!

At least fatigue and ejaculation are the same word in english and in french. I think this is how I found this forum.

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Offline Counterpoints

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4337 on: 18/05/2009 20:05:50 »
I also recall reading about some French people complaining of a post-sexual condition called "le petit mort", the little death.

I used to think "la petite mort" = "orgasm" in French. ;).  Sometimes, apparently, it also refers to the refractory period, and other things: http://en.wikipedia.org/wiki/La_petite_mort

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Offline Counterpoints

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4338 on: 18/05/2009 20:08:20 »
About the keywords, good idea John. So if some german people or from other countries want to make a traduction of the symptoms mentionned in the wikipedia article (for example) and post it here in the forum it will be great!

At least fatigue and ejaculation are the same word in english and in french. I think this is how I found this forum.

Hi Martin,

A wikipedia user has changed the article. Here is the original list of symptoms:

Of the known cases:

    * Over 97% are men
    * A majority report only cognitive symptoms, although physical symptoms (esp. flu-like) are commonly reported
    * Symptoms are independent of how orgasm is achieved
    * Symptoms are usually present within minutes of orgasm
    * On average, symptoms last 1-3 days
    * Symptoms commonly affect sufferers between 20-70% of the time during a given month, depending on a number of variables

Most commonly reported symptoms:

    * anxiety
    * cravings for the relief that follows orgasm
    * difficulty communicating (possibly a temporary aphasia)
    * fatigue or exhaustion
    * inability to focus (attention deficit)
    * inability to relax
    * irritability
    * lack of spontaneity or creativity
    * overall cognitive impairment (brain fog)
    * short term memory problems
    * slow to process information
    * social phobia
    * word-finding difficulty

Many POIS sufferers report nearly all of the above symptoms, regardless of whether they have some of the additional symptoms listed below. Fatigue or exhaustion is an exception. A large number of POIS sufferers report this symptom, but there are several cases where the above symptoms have been reported without fatigue, and where fatigue has been reported, without many of the above symptoms.

Other reported symptoms:

    * palpitations
    * insomnia
    * derealisation
    * appetite affected
    * cold/heat aversion
    * pallor
    * skin conditions
    * visual disturbances
    * hypoglycemia
    * diarrhea
    * depression
    * headache
    * lower back pain
    * muscle tremors
    * muscle spasms
    * elevated blood pressure
    * fear of light
    * flu like symptoms
    * dull head pain
    * dilated pupils
    * burning fingertips
    * aphthous ulcers
    * swollen neck glands

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4339 on: 18/05/2009 23:57:39 »
Why not to send a letter to World Health Organisation [WHO], that they finance some kind of research in this subject. May be there is some other thousand men in the world suffering of this.
Good idea. But we need a medical facility that will conduct the research and submit to WHO (http://www.who.int/en/)or others for funding.
Perhaps Pronobis idea is good ? "Only a doc must submit to WHO " :Is that something that you have read on the WHO website ?


No, I just assumed that because they seem to be involved mainly in large scale projects, e.g., AIDS. But maybe I'm wrong!

Martin, can you make a first draft of a letter to WHO?
« Last Edit: 19/05/2009 00:01:57 by demografx »

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Offline Pronobis

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4340 on: 19/05/2009 00:10:02 »
Hi

Sorry for the late response. In french one should search "la fatigue après le sexe", or "je suis toujours fatigué(e)après le rapport sexuel, j'ai des symptômes grippaux pendant une semaine, j'ai des démangeaisons".
Besides, in russian it will be like "усталый после секса, симптомы гриппа, в течении недели" ;
in turkish " seksten sonra yorgunluk, bir hafta boyunca grip simptomları"

One should search by ordinary words, so I put ordinary search query. I can develop it if you desire.

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Offline Pronobis

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4341 on: 19/05/2009 00:21:50 »
My blood tests show that I am absolutly healthy. I was allergic since my borth, but now I'm ok, only in the case of dust and heat I have an itching nose and eyes.

But which blood tests did you have, and how were you feeling when you took them?

As far as organized information -- we have B_Jim's summaries, found on the first page of this discussion, and we also have the questionnaire (http://pois.olympe-network.com), and there is a wikipedia article (http://en.wikipedia.org/wiki/Post_Orgasmic_Illness_Syndrome).


Indeed, I don't know which test was this, I told to my medicine that I am always tired etc, he adviced me to make a test after which he prescribed me magnesium (it doesn't chage anything). That was a large test with all my blood informations. Sorry, I am law student and I don't know anything in medecine.

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Offline Dean93

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4342 on: 19/05/2009 00:29:30 »
Today is Monday, four days after my NE on Thursday. I was doing well until after school today. I'm starting to slip into POIS, experiencing fatigue and social reluctance.

The good news, perhaps is that I now have the fenugreek I ordered. Can anyone give me a quick rundown on how I should take it?

I'm talking to my mom about going to the doctor.

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Offline Pronobis

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4343 on: 19/05/2009 00:33:13 »
I also recall reading about some French people complaining of a post-sexual condition called "le petit mort", the little death.

I used to think "la petite mort" = "orgasm" in French. ;).  Sometimes, apparently, it also refers to the refractory period, and other things: http://en.wikipedia.org/wiki/La_petite_mort

It is not very usual in daily language, even the word orgasme is reserved to women, so it would be "éjaculation". Please note that to masturbate is "se branler" in daily language.  

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4344 on: 19/05/2009 01:45:52 »

I also recall reading about some French people complaining of a post-sexual condition called "le petit mort", the little death.


I used to think "la petite mort" = "orgasm" in French. ;).  Sometimes, apparently, it also refers to the refractory period, and other things: http://en.wikipedia.org/wiki/La_petite_mort


Thanks for Wikipedia reference, it says it's the orgasmic-refractory period, so I wasn't too far off with "post-sexual".

To me, "la petite mort" seems to describe "POIS Light"
« Last Edit: 19/05/2009 02:01:55 by demografx »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4345 on: 19/05/2009 02:07:32 »

to masturbate is "se branler" in daily language.  


"To shake"???    [:D]  

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4346 on: 19/05/2009 02:09:23 »

I'm talking to my mom about going to the doctor.


Great!!

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4347 on: 19/05/2009 02:43:23 »
Pronobis, shown below are the hormones I had tested, with an endocrinologist, similar to what others here have tested. Ideally, you should have your hormones tested when you are experiencing POIS (in-POIS)...and then another test when you are out-of-POIS.

My bloodtests revealed that my testosterone was low and my prolactin was high. As a result, I am now on testosterone therapy and my POIS has dramatically improved. Most times I feel healed 90%. This is after 30+ years of consistently agonizing POIS episodes.

I was stubborn and didn't want to go for a long time. But now I see that this is apparently the correct starting point for most of us here.

Hormones that I tested:
-PROLACTIN

-TESTOSTERONE(Bioavailable Testosterone, Free Testosterone, Total Testosterone, Sex Hormone Globulin Binding [SHGB] )

-DHEA-SULFATE

-FSH (Follicle Stimulating Hormone)

-LH (Luteinizing Hormone)

-TSH (Thyroid-Stimulating Hormone)

-CORTISOL
« Last Edit: 19/05/2009 03:10:25 by demografx »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4348 on: 19/05/2009 03:06:17 »

If you type fatigué après l'orgasme you'll find some hits...


And now we have the proof that John's idea will work!

I typed into Google those 3 words in French and lo! the 2nd Google result was Counterpoints' post above!

So Pronobis, if you wish, please type a post here in French any time that is good for you.
« Last Edit: 19/05/2009 03:16:37 by demografx »

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Offline martin88

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4349 on: 19/05/2009 06:13:02 »
Demografx,
I have read the WHO web site and there is a special page where we can eventually post this letter.
Here is their email under "General queries" :
http://www.who.int/reproductive-health/contacts.en.html
(I'm not sure it's the right place, I'll continue to search)

I can try to do a draft next week-end, if you agree Pronobis, it's your idea :)
Then I hope you'll arrange this in correct english Demo.
I think it's not necessary to do a long letter. Perhaps we should initially ask if they can give us the name of a person in charge so we'll have more chance to get a response.

I think we must insist on the constantly growing number of cases and the severity of this disease and its consequences. Am I right when I say "severity"? In fact I don't really know if pois is very severe for everyone. I can only talk for me.

Also in the letter we should report an alarming condition, not complain about ourselves. With letters like this I'm concerned about the fact that they'll think we are a group of people who only want to have more sex just for more pleasure/quality of life, so they'll tend to ignore us, when in fact our entire life is very affected and even if we stop sex the disease is still there because of the NEs!

(Except if your method works Confucius, I didn't try.. I don't have NE, I'm trying to release just before.)


From the WHO web site in their FAQ :
Does WHO offer scholarships or grants to carry out research?
WHO does not have a scholarship or grant programme as such, however certain special WHO programmes and departments do fund research. Visit the grant opportunities page in the TDR (Tropical Disease Research) web site or the capacity strengthening page in the RHR (Reproductive Health and Research) web site. Also, you may wish to consult the web site of the WHO Regional Office where your country is a Member State. The regional offices have some fellowship and scholarship programmes which are carried out in cooperation with the ministries of health in countries.

« Last Edit: 19/05/2009 06:34:09 by martin88 »