Post Orgasmic Illness Syndrome (POIS)

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Offline GoingCrazy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4700 on: 25/06/2009 14:45:12 »
Anybody else notice an increase in blurry vision and "stuff" in your eyes the next morning after orgasm?  Maybe our bodies are trying to detoxify something through our eyes?  Yes I know it sounds crazy.

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Offline Pronobis

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4701 on: 25/06/2009 17:04:40 »
Anybody else notice an increase in blurry vision and "stuff" in your eyes the next morning after orgasm?  Maybe our bodies are trying to detoxify something through our eyes?  Yes I know it sounds crazy.

I have this kind of problem. But I don't feel it when I orgasme 1 time. It is more flagrant when I orgasme intensively.

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Offline GoingCrazy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4702 on: 26/06/2009 03:21:26 »
I just saw this post on http://ehealthforum.com/health/topic14040.html

"Well, your brain produces these things (I can't remember what the technical term for it is) and they're called endorphins. Endorphins essentially just make you happy. Sunlight is used by the brain to create endorphins but because it's winter, some people's brains can't produce enough endorphins to keep them happy. That's where medication comes in, or sometimes special lightbulbs (the mini sun).

Having educated you a bit on what endorphins are; the orgasm you have had is just a bunch of endorphins used simultaneously. Now, because you're using anti depressants, we may already assume that it's because your brain doesn't produce endorphins fast enough. This is likely why you feel so down after climaxing. You've just used a bunch of endorphins and you don't have enough left to keep you stable for a couple of days. I'd draw you a diagram, but I think you understand.
Anyway, hope I've helped!"

Could it be? not enough endorphins?  [:-\]

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4703 on: 26/06/2009 03:40:33 »
AACE

Wrote to 2 people at American Assn. of Clinical Endocrinologists to find out how to contact their President, Dr. Garber. No word yet, maybe I'll go through his endo practice back East, Boston I think.

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4704 on: 26/06/2009 04:19:22 »

I just saw this post on http://ehealthforum.com/health/topic14040.html


GC, I tried to post an invitation to people at that topic area of their forum to join us, but I have problems adjusting screen resolution.

If you have the time could you do that?

Give them this link to our forum: (take out the single spaces, it's the only way I could post it here below)

w w w . t i n y u r l . c o m / k v d h h z

Thanks!

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Offline CertainlyPOIS

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4705 on: 26/06/2009 05:51:05 »
I have noticed blurred vision but it happens occasionally it is not consistent.

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Offline GoingCrazy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4706 on: 26/06/2009 15:54:40 »
Well I always get this "stuff" coming out of my eyes after orgasm while i'm in POIS (worst in the morning).  Maybe I should get it tested to see what is is.

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Offline GoingCrazy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4707 on: 26/06/2009 15:54:55 »

I just saw this post on http://ehealthforum.com/health/topic14040.html


GC, I tried to post an invitation to people at that topic area of their forum to join us, but I have problems adjusting screen resolution.

If you have the time could you do that?

Give them this link to our forum: (take out the single spaces, it's the only way I could post it here below)

w w w . t i n y u r l . c o m / k v d h h z

Thanks!

yes I will try

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4708 on: 26/06/2009 20:27:33 »
Thanks again, GC

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4709 on: 26/06/2009 21:42:48 »
(AACE) AMERICAN ASSOCIATION OF CLINICAL ENDOCRINOLOGISTS AND (ACE) THE AMERICAN COLLEGE OF ENDOCRINOLOGY
http://www.aace.com/

After repeated and fruitless attempts with AACE/ACE staff to get contact info for their President, I was finally put through to his assistant and she was very friendly and cooperative. I then received his direct email after I followed up.

And now, let's keep our fingers crossed........
« Last Edit: 29/06/2009 20:13:34 by demografx »

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Offline GoingCrazy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4710 on: 27/06/2009 00:50:56 »
I was wondering if anybody has paranoia as a symptom of pois?

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Offline Coreman

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4711 on: 27/06/2009 02:46:51 »
Hi members,

Going back to flavonoids/resveratrol: after 1 month testing, I say it is useful (for me) 'cause sometimes I feel feverish
in a P.O.I.S day. It reduces my body heat to normal levels, and helps breathing. Elevates my mood, but not to the level I expected.

Ciao,

Coreman.









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Offline acronym

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4712 on: 27/06/2009 04:20:54 »
RE : pyropeach and ACTH levels.
Far as I know I have only had the one test. It was a couple of yrs ago and I had a high reading, but not extreme to worry the doc. I was taking an immunity herb at the time and I feel this could have impacted on the result.

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Offline acronym

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4713 on: 27/06/2009 04:25:04 »
RESPONSE to Counterpoints and head trauma

I first started to suffer from POIS around 16. I used to be straight A student and a bit of a cheeky smart arse type person, but I soon changed. I became more inhibited and become more anxious, and my grades went down as I found it harder to concentrate. Some people on this forum have wondered about excessive masturbation or guilt being the cause of their POIS. This was not the case for me. I was 3x a weeker.

Until this forum I always associated POIS as being symptoms of Chronic Fatigue Syndrome which I have had had on and off over the years. I now suspect that POIS was distinct and came before full blown CFS. 
I did not suffer any head trauma so I canít relate to your case. I do have diagnosis of pituitary disorder though + head scan showed up poor blood flow. Some leading CFS doctors believe brain fog in patients is a result of brain damage caused by virus/bacteria, and also heavy metals or chemical exposure.

Reading about or talking to other people with CFS over the years, there were some common events that seem to figure in our lives around the time we first became unwell. I will list my suspect incidents as it might be interesting to others.

* Big gash on leg from wire fence. No treatment but still get sore every now + then. (maybe picked up pathogen).
* Took up regular swimming in indoor heavily chlorinated pool.
* Recent dental work. (mercury?)
* Bitten by something. Suspect spider. Very painful and left red bullseye mark that was visible still for 15yrs. Something like what Lyme suffers get from infected tick.
* Parents renovated 2 houses in quick succession. Exposure to paint, glues, wallpaper, sanding, varnish, synthetic carpets, chip board, etc.
* Started taking tetracycline antibiotics on and off for acne. (I got candida overgrowth untreated for 5yrs)

Below is link about a CFS sufferer who made major recovery treating brain trauma from car accident that he believed was responsible for all his yrs of crummy health. I know its CFS and not POIS but you might be interested in BST.
patsullivan.com/blog/2009/05/index.html (with www in front)
It is not available in my state, but I have tried bioresonance treatment for my CFS which did involve some treatment on my head. I feel it did help take me to a higher level of health but it was no silver bullet.

I am no longer a typical CFS sufferer. I have made great strides in the past few yrs after relapse. Brain fatigue is a much bigger issue than physical fatigue. I could say that POIS pretty much can account for biggest collection of symptoms that stop me proclaiming 100% health. There are a couple of other symptoms that seem to be outside typical POIS though like..chemical sensitivity, food intolerances, loss of smell (except for offensive odours/chemicals), loss of artistic ability, inability to put weight back on. I am still hell bent on getting 100% and I am currently trying a treatment that involves pulsed low dose antibiotics (a treatment someone raved about on this forum a yr ago). Its a 12mth minimum therapy, but if I feel it alleviates POIS symptoms markedly I will definitely post details. So far just maybe minor improvement.

Also your post 260227 regarding difficulty to abstain, I can really relate to it. Also I can very much relate to Demografx's response, re testosterone + also circadian rhythm. Your shiver reaction to porn was funny, but I know its not meant to be. I have read a couple of articles regarding the chemical cascade that takes place in the brain when men view porn. With the massive access to porn these days compared to past decades and an increasing occurrence of people suffering sex/porn addiction or at least health/life consequences, I think POIS sufferers might find breakthroughs in our disorder from research that delves into this area rather from anything directly to deal with POIS.

Since I am posting I thought I'd mention another aspect to POIS I have noticed over the years. For me there has been 2 different types of horny. One which is a result of stress & tension and the other thats a result of lust. POIS is much worse from orgasm with the former scenario. The times I have been for want of a better word 'lustful' have been I have been really healthy and put on weight, and also a lot happier + relaxed. Goingcrazy just made a post about endorphins, and that could easily explain that difference.

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Offline acronym

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4714 on: 27/06/2009 04:26:11 »
Does anyone know a good quality and not overly expensive source of Phosphatidyl Serine powder? Its hard to get in my country except for just 100mg expensive tablets. I took some yrs ago and found it helped with brain fog. I want to take at least 300mg/day.

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Offline chipdouglas

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4715 on: 27/06/2009 18:32:35 »
Hi all,

I've just found  you through You Tube, and I'm glad I did. This is going to be a long post, so sorry in advance.

I'm a 37 year-old bloke, who's basically had no libido or very weak occasional sex drive over the last 10 years.

I'm sort of in health care, in that I'm doing a bacheor of science in nursing. Granted, we do not cover issues discussed here, but the topic of neuroendocrinology and immune cytokines has been of great interest to me for you guessed it, the last 10 years.

Two things preceded my sexual downfall :

1.  a diagnosis of EBV (Ebstein Bar Virus aka mononucleosis)this was one ~ one year before onset of symptoms.
2. a one-year long crisis when I started going steady with a new girlfriend--we've ben together for 13 years now--she's tough.

I've seen Dr. Eric Braverman in Manhattan ; he found me to have both ADHD and Dysthymia--he prescribed a kitchen sink full of supplements, DHEA, rHGH, Paxil, Klonopin. Stupid as it seems, I never went on his regimen, because ADHD and Dysthymia while they sound like Diagnoses, can also prove to be mere symptoms of an underlying dysregulation. While I respect Dr. Braverman for the medical knowledge that he has and that I don't, I didn't like the outcome of our meeting. I've seen an endocrinologist whom found nothing to be the matter with me, at least, so far as his specialty is concerned. I saw countless medical doctors. All of them hinted at either SSRIs or benzodiazepines, even after I told them what was the reason of my visit--It makes sense that it occured to them that I might have been depressed, but most of them acknowledged that I didn't look depressive.

Ok, no onto what I've come to believe may be key to most of my symptoms : chronic masturbation with orgasm.

Admittedly, for us North Americans, this so-called health problems doesn't make the headlines, and what's more, most people on the continent even refuse to consider blaming it for any harm that it might causing. Having experienced this issue for over ten years now, been looked into from all possible angles, I'm now on my knees and starting to consider the possibility that any excess in life, even jerkind off may have a detrimental outcome.

Now, given how busy I am and the sheer number of posting in this thread, pointing to how widespread this issue is, I cannot even entertain the notion of going through it all. I'm hoping for regular members to partially bring me up to date so far as pointing out MDs who've been willing to listen and look int othis issue.

However, I'm not sure we're sharing the very same issue. I should've made it clear from the get-go, but I was started on a different train of thought and it slipped me.

My primary symptom is : no horniness/libido/sex drive, whatever you wish to call it. Then, mental fog, poor concentration, and going to pieces under pressure, which obviously isn't the best thing to happen when in health care. I got eye floaters, although I'm far from being convinced they have anything to do with what I've had.

I've been aware of Newman K. Lin for quite some time now, but I'm not sure I can trust someone who's very quick at pointing to the order page of his site. It looks to me like a fast track to diagnosis, and this alone stirs suspicions.

Medically speaking, here's a list of what's been uncovered :

1. I have an early varicocele, and what seems to be epididymal cysts or calcifications. The medical doctor who felt them last week and sent me for yet another ultrasound said, there's no cause for concern. They're far too small at this point at least for any urologist to even take this seriously.

2. I have Gilbert's Syndrome aka Gilbert's disease, which is a benign liver condition evidenced by mildly elevated total bilirubin.

3. ADHD

4. Dysthymia

5. Supraventricular/ventricular ectopies aka as extrasystoles--these are benign ectopic heartbeats.

6. I also usually have late PM reactive hypoglycemia


The first link that I can see makes sense in my case is over-indulgence in spanking the monkey. This it seems causes increased PRL release and decreased Dopamine output in the mesolimbic brain region, which is the pleasure center. Bringing on PRL surges alone might wreak havoc in and of itself, especially over time.

Initially, I sought help with a TCM practitioner, and got satisfactory results, but then became aware of how it's risky to take such formulas as many TCM herbs have been found to contain heavy metals. So I stopped. Mind you, there are reputable companies out there whose batches are inspected prior to bottling.

The problem with me is I'm quite science minded, and most of the time refuse to acknowledge anything without first seeing the scientific evidence. While this shows I'm not gullible, it can also under some circumstances prove harmful, in that, the very topic discussed throughout this thread hasn't been (at least to my knowledge)looked into by the scientific community. As a result of this, it's been made fun of for as long as I can recall, because to North Americans having sex is said to be healthy, and I'm sure it is, but just like anything, too much is just like not enough I guess. Sex sure can be addictive though, because it's fun and pleasurable.

Though, I've tried a heck of a lot of herbs and or supplements around 10 years ago, I haven't used many since, because I first wanted to know what I'd be medicating, instead of trying every known supplements known to mankind.


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Offline chipdouglas

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4716 on: 27/06/2009 18:36:43 »
The following has been sent to me by a retired researcher in endocrinology whom I've known for a good while now--a very kind and hepful man I must admit. This is the latest he sent me about my case. Hope this will be of benefit to some of us.



There are no easy answers to the questions about what to do about your health problems - as far as the basic question of - are there any workable methods to lessen or cure symptoms like yours - the short answer is yes - but with a BIG caveat - that caveat being cure is possible but not very common - only a small percentage of individuals actually recover - a larger percentage get reduction of symptoms to greater or lesser extents - a certain percentage spontaneously remit - the problem is that even in those who do recover a large percentage often have a set back the first time one faces a major stress challange. There are many techniques that have been devised in the past and in the present for resolving the Amygdala overfunctioning - all of those methods are complicated and take a lot of focus and committment. All of the methods that I know of can not be done by people with severe cases becuase these methods take energy, committment, and focus - all of these are qualaties that most people with stress disorder do not have. I can not go into the multi-demensional aspects of this problem and it's solutions because of time problems - below is a link to a web site of a Dr. Gupta who has devised a sysem for retraining the Amygdala - he describes the mechinism of the malfunctioning of the HPA axis and the over stimulation of the Anygdala. He is refering to CFS but the mechanism is the same in all stress induced diseases. There is a very direct link between your diseases and CFS - the possible difference is the state of the disease and the reasonns for why one may have contracted stress inadequacy - it is generally belived (which by the way I do not agree with these ideas) that CFS is triggered by a Viral infection - but viral infections are only one component in the potential breakdown of the stress mechanisms - in your case it is not clear if a viral infection triggered or contributed to your disease pathology - you did mention that you have EBV antibodies didn't you? There are many infectious states that can set one up for a breakdown of the stress responses - but whether this is a factor in your case is not clear but neither is it essential to know this to understand what has happened to you. The triggers can be many but the results are similar in all cases and all have the characteristic of the stress response being over expressed - with the result being that the Amygdala  is stuck at the on postion and keeps sending signals of alarm which keeps on releasing catecholomines and we never calm or relax suffeciently to heal - rest, calm and  composure are the natural ways in which the stress system recovers. But when the Amygdala is steuck on alarm mode there is no recovery.

Read Dr Guptas essay repalcing the term CFS with stress disorder and tthen the mechanism of how this theory applys to you will be clear. Try to understand the charts he has made as those charts are a short hand manner for understanding the pathways of the stress response. I know this article is long and has a lot of new ideas for you to digest but if you can understand what he4 is saying you will understand your own case. I doubt that  dr Guptas retraing program would be helpful for you - it is very rigirous and few can do it - but the important thing is not that but that he has eazily and simply explained the basic problems in the breakdown of the stress response system.

http://www.cfsrecovery.com/html/medicalPaper.asp

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4717 on: 27/06/2009 19:09:24 »
POIS RESEARCH STUDY

I'd like a show of hands, please. Would you kindly just post here:

"in study"

if you are willing to participate in a study of POIS by outside researchers who can help us.

As I speak to outside researchers, I'd like to give them an idea how many of us are available for this type of medical research.

A research study wouldn't necessarily involve your physical presence. At this time I'd like to just know how many are in our total pool of possibly available participants.

Thanks much, everyone!
« Last Edit: 27/06/2009 19:27:31 by demografx »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4718 on: 27/06/2009 19:57:45 »

I was wondering if anybody has paranoia as a symptom of pois?


Sometimes, but as a result of depression and fatigue. I think that if we're in a weakened state, "sensitivity" is heightened.

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4719 on: 27/06/2009 19:59:16 »

Hi members,

Going back to flavonoids/resveratrol: after 1 month testing, I say it is useful (for me) 'cause sometimes I feel feverish
in a P.O.I.S day. It reduces my body heat to normal levels, and helps breathing. Elevates my mood, but not to the level I expected.

Ciao,

Coreman.


Very helpful, Coreman! Thanks much for reporting that.

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Offline chipdouglas

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4720 on: 27/06/2009 21:02:51 »
Do most of you posters experience low/absent libido/sex drive ? It's possible that we're not discussing the same issue here.

Thanks

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Offline Dean93

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4721 on: 27/06/2009 21:20:33 »
in study?

I'm willing to participate, if I can.

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4722 on: 27/06/2009 21:27:26 »
Dean,

Many thanks for coming forth so quickly!

Demo

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4723 on: 27/06/2009 21:37:23 »

Do most of you posters experience low/absent libido/sex drive ? It's possible that we're not discussing the same issue here.

Thanks


chipdouglas, welcome to the POIS thread of The Naked Science Forum!




chipdouglas, thank you very much for your detailed and most informative posts. Low libido has been with me for years, but others here I'm sure are different. Since I started testosterone therapy, my libido is back in shape.

Our main focus here is postejaculatory problems. After orgasm, debilitating symptoms set in, typically for days.


Here are some POIS forum resources which may be helpful to you:

Please see "B_Jim"'s POIS Forum Summary of All Cases, here as well as others on the Web. This includes remedies that we have tested, and results.
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg149009#msg149009

"Girlwind" has created an excellent POIS Video:
http://www.youtube.com/watch?v=UWBxAUC9k1g

And filling out the POIS survey created by "Counterpoints" will enable you to share POIS information and details with others here. This will also enable us to work more easily with outside researchers by having more organized data available about us:
http://pois.olympe-network.com/

POIS Research Study

We have a copy of the first and only study on POIS by Dr. Marcel Waldinger,MD and Dr. David Schweitzer, MD.

If you want a copy (PDF), send me a Private Message with your regular email address and I'll send you back the PDF.

To send a Private Message, click on "Messages" at the top of this page. At the Messages page, click on "New Message". From that point on, it works just like posting a message here, except that it only goes to the person(s) you designate.

Remember to put a quote around my name, i.e., "demografx".


New York Times article,

January 20, 2009
Mind
Sex and Depression: In the Brain, if Not the Mind
By RICHARD A. FRIEDMAN, M.D.
http://www.nytimes.com/2009/01/20/health/views/20mind.html?_r=1&scp=1&sq=friedman%20sexual%20January%2020&st=cse

- - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - - -

In addition to serving our own informational interests, the resources listed above can be useful for you to show the medical world - which often shows little understanding and is sometimes skeptical of our condition - that POIS has scientific underpinnings and that POIS is not "just another psychological problem" related to sex - to be treated by the psychiatric/psychotherapist community. This can help fight the immediate reaction of some: IT'S NOT "ALL IN OUR HEADS"!

Also, it can be helpful when dealing with medical professionals to point out the successful existence of our rapidly growing forum for over 2 years, which has attracted over 100 POIS sufferers worldwide who have posted here, plus more than 300,000 page visits. Not bad for a rare malady!

« Last Edit: 28/06/2009 00:30:34 by demografx »

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Offline Dean93

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4724 on: 27/06/2009 21:41:24 »
No problem Demo, I suppose I'll have to wait for more information

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4725 on: 27/06/2009 21:46:52 »

No problem Demo, I suppose I'll have to wait for more information


Yes, Dean, thanks! I simply want us to be able to know what to tell researchers, truthfully, about how many people are available. We might have "300" POIS posts - here and elsewhere from B_Jim's research - but that doesn't indicate the number of participants we can muster...today.

Thanks again, Dean.

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Offline John21

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4726 on: 27/06/2009 22:30:47 »
I don't believe I have ever experienced low libido.
« Last Edit: 29/06/2009 22:57:38 by John21 »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4727 on: 28/06/2009 00:11:44 »
Thanks, John.

A Google search of this POIS thread reveals 1,100 results for "tired fatigue exhausted". I doubt there is a close 2nd. But you're absolutely right, John, we do have vastly different symptoms represented throughout the sufferer base. I'm just referring, globally, to a statistical mode.
« Last Edit: 28/06/2009 01:43:30 by demografx »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4728 on: 28/06/2009 00:43:44 »


Now, given how busy I am and the sheer number of posting in this thread, pointing to how widespread this issue is, I cannot even entertain the notion of going through it all.


chipdouglas, two things can help in addition to the welcoming post:

1) Pyropeach is compiling a compendium summary of theories, remedies, etc. in this forum from Day One.

2) You can tailor a Google search of this forum to find most of what you're looking for:
Please click to see Message #201634
http://www.thenakedscientists.com/forum/index.php?topic=6576.msg201634#msg201634
 

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Offline pyropeach

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4729 on: 28/06/2009 00:53:40 »
POIS RESEARCH STUDY

I'd like a show of hands, please. Would you kindly just post here:

"in study"

if you are willing to participate in a study of POIS by outside researchers who can help us.

As I speak to outside researchers, I'd like to give them an idea how many of us are available for this type of medical research.

A research study wouldn't necessarily involve your physical presence. At this time I'd like to just know how many are in our total pool of possibly available participants.

Thanks much, everyone!

Count me "in study"


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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4730 on: 28/06/2009 01:16:59 »
Thanks, Pyro!

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Offline Pronobis

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4731 on: 28/06/2009 05:13:30 »
POIS RESEARCH STUDY

I'd like a show of hands, please. Would you kindly just post here:

"in study"

if you are willing to participate in a study of POIS by outside researchers who can help us.

As I speak to outside researchers, I'd like to give them an idea how many of us are available for this type of medical research.

A research study wouldn't necessarily involve your physical presence. At this time I'd like to just know how many are in our total pool of possibly available participants.

Thanks much, everyone!

How can I help you???

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Offline chipdouglas

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4732 on: 28/06/2009 05:59:51 »
Demografx : thanks heaps for bringing me up to date above, I'll cover those links for sure.

I've faced a very puzzling situation, which may or may not be what most have experienced. My real issue is I have no sex drive or no horniness if you prefer. This is beyond crippling to me.

I've had countless blood works but nothing in them stands out.

I'll keep searching as I've done over the last 10 years, it's the only way, as docs haven't been of any help.

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Offline pyropeach

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4733 on: 28/06/2009 10:55:45 »
Welcome Chipdouglas.

About fatigue/exhaustion :

It's a recurrent debate we have here. Please keep in mind all Pois sufferers don't have the same symptoms and that's why it's so difficult to find some consensus. There are different "forms" of Pois.
Fatigue is of course a very common symptoms here but in the same time it's not acurate... Is this a physical fatigue (muscular...) ? Mental fatigue (cognition...) ? Both ? Keep in mind this : each case is different.


A very good point that it is crucial to clearly articulate what we mean when we say "fatigue" and "exhaustion".  In the compendium draft, I point out the two main groups where one primarily has "mental fatigue" and the other primarily has "physical fatigue".  At least that's what I've gathered from just keeping track of the forum, but I could be wrong.

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Offline John21

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4734 on: 28/06/2009 10:59:05 »
Chipdouglas,
Quote
I've faced a very puzzling situation, which may or may not be what most have experienced. My real issue is I have no sex drive or no horniness if you prefer. This is beyond crippling to me.

Some of us have been trying Relora recently. Demo reported an aphrodisiac effect when he tried it, and I noticed the same effect. Until taking this I thought that any aphrodisiac effect of a substance could only be psychological, but with Relora this is certainly not the case. Actually I am surprised it isn't marketed for this purpose. Of course if you are on medication consult your doctor before trying it. And even if you are not on medication use caution as it is a natural tranquilizer.
« Last Edit: 28/06/2009 16:27:07 by John21 »

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Offline Counterpoints

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4735 on: 28/06/2009 17:23:48 »
Welcome Chipdouglas.

About fatigue/exhaustion :

It's a recurrent debate we have here. Please keep in mind all Pois sufferers don't have the same symptoms and that's why it's so difficult to find some consensus. There are different "forms" of Pois.
Fatigue is of course a very common symptoms here but in the same time it's not acurate... Is this a physical fatigue (muscular...) ? Mental fatigue (cognition...) ? Both ? Keep in mind this : each case is different.


A very good point that it is crucial to clearly articulate what we mean when we say "fatigue" and "exhaustion". 

Good point.  "anxiety" might be another symptom that is difficult to clearly articulate.  I think the general impression people have is that "anxiety" is something consciously generated, or can be controlled through medication.  However, the anxiety I experience with POIS isn't anything like "normal" anxiety that I might get over an exam, etc.  It's long lasting, reasonably constant in duration, and largely unresponsive to medication or any conscious effort to control it.  One of the key differences is that "normal" anxiety is a result of thinking about something in particular, whereas this is present regardless of that.  I thought this might be similar to the "distress" experienced by people with sugar handling problems (or very high cortisol levels).  There's also a definite social anxiety that comes with (my) POIS, which isn't normally present when I am symptom free.  This is certainly just part of the larger "anxiety" issue, and may give some clues about its origin.  I think it's associated with POIS "bringing my defenses down".  I discussed the anxiety symptom with a neuroscientist who has done research on orgasm using functional imaging, and he suggested that the amygdala is de-activated, and my anxiety was generated by a "lack of alertness".  This is the opposite of what one might expect -- that the amygdala is over-activated.
« Last Edit: 28/06/2009 17:32:26 by Counterpoints »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4736 on: 28/06/2009 18:31:16 »
POIS RESEARCH STUDY

I'd like a show of hands, please. Would you kindly just post here:

"in study"

if you are willing to participate in a study of POIS by outside researchers who can help us.

As I speak to outside researchers, I'd like to give them an idea how many of us are available for this type of medical research.

A research study wouldn't necessarily involve your physical presence. At this time I'd like to just know how many are in our total pool of possibly available participants.

Thanks much, everyone!

How can I help you???

You already did! Just by saying that you've indicated your willingness to participate. Thanx!

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Offline neilep

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4737 on: 28/06/2009 18:36:51 »
Hi All,

Just wanted to pop my head in as I do occasionally to say how amazed I am at the way you all support one another here. I don't think anyone imagined that this thread would survive past it's infancy and grow to the outstanding thread it is today.

Demografx and all the other members contribute tremendously here.


It's easy I suppose when you are dealing with such a condition that it must be very hard to define eh ?

I gather it's accepted that POIS must be a generic term for a whole bunch of symptoms that are all related in one way or another but primarily are symptomatic specifically of Post Orgasm. What form the syndrome takes is wide and varied...as individual as..well..the individuals who are suffering from it eh ?
                                             
I am not surprised to see that disagreements may take flight. Especially, when , considering the condition. One never knows how really the other people in the thread are feeling at the moment.

I always think that sometimes it's prudent to realize that words said here may be written when people are suffering and so I figure a big dose of tolerance must be exercised.

Well done to you all and Demografx for his excellent moderation of what must be quite a difficult thread.




« Last Edit: 29/06/2009 22:01:57 by neilep »
Men are the same as women, just inside out !

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4738 on: 28/06/2009 19:00:48 »
Neil,

Thank you so much for that!

I think people are here above and beyond selfish needs...in a commitment to fighting this agonizing malady. The proof of that is that MOST PEOPLE LEAVE...the committed altruists stay and contribute.

Forgive me if I'm emotional, but this forum has become a mission for me, more than many things in my life. Maybe because 30+ years of POIS has been a central, defining element of my existence.

Best wishes to all! Thank you.
« Last Edit: 29/06/2009 21:04:03 by demografx »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4739 on: 28/06/2009 19:53:48 »

Demografx : thanks heaps for bringing me up to date above, I'll cover those links for sure.

I've faced a very puzzling situation, which may or may not be what most have experienced. My real issue is I have no sex drive or no horniness if you prefer. This is beyond crippling to me.

I've had countless blood works but nothing in them stands out.

I'll keep searching as I've done over the last 10 years, it's the only way, as docs haven't been of any help.


chipdouglas, I had the same problem, and I didn't get factual results until I had my bloodwork done with an endocrinologist, looking at testosterone and other hormones.

Previously, testing with a GP and a urologist showed "normal" testosterone. In one case, the lab reported my "adequate" results as a female! [;D]

TRT (testosterone replacement therapy) has brought my libido ("sex drive, horniness" as you indicated) to a level higher than it's been in decades. Normal.

I hope that helps.

« Last Edit: 28/06/2009 21:22:33 by demografx »

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Offline Limejuice

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4740 on: 28/06/2009 20:44:31 »
I will participate in the study.

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4741 on: 28/06/2009 21:06:14 »

I will participate in the study.


Many thanks, LJ!

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4742 on: 28/06/2009 21:37:49 »
Does anyone else experience severe jet lag? Excessive hangover from moderate drinking?...

...lasting for days, as POIS does.

I've always wondered if the above out-of-proportion reactions come from a disruptive mechanism similar to the one that creates POIS, but not with exactly the same symptoms. A mechanism whereby the mind and body (hormones? neurotransmitters? etc.) are thrown "off balance" .

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Offline GoingCrazy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4743 on: 28/06/2009 21:57:23 »
Does anyone else experience severe jet lag? Excessive hangover from moderate drinking?...

...lasting for days, as POIS does.

I've always wondered if the above out-of-proportion reactions come from a disruptive mechanism similar to the one that creates POIS, but not with exactly the same symptoms. A mechanism whereby the mind and body (hormones? neurotransmitters? etc.) are thrown "off balance" .

Well i did just drink last night.  A bit of a hangover today... not too bad though.  I believe it would be worse if you were in POIS and drank than the hangover will probably be twice as bad.  What I thought was interesting though is that when I orgasm, I get a lot of stuff in my eyes the next morning, and this morning (the morning after I drank)  I opened my eyes and could pretty much tell you that it was like looking through a foggy window, I had to rub the stuff out of my eyes and wait about half an hour for it to clear up.  I think we are all out of balance.

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Offline GoingCrazy

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4744 on: 28/06/2009 22:02:04 »
Welcome Chipdouglas.

About fatigue/exhaustion :

It's a recurrent debate we have here. Please keep in mind all Pois sufferers don't have the same symptoms and that's why it's so difficult to find some consensus. There are different "forms" of Pois.
Fatigue is of course a very common symptoms here but in the same time it's not acurate... Is this a physical fatigue (muscular...) ? Mental fatigue (cognition...) ? Both ? Keep in mind this : each case is different.


A very good point that it is crucial to clearly articulate what we mean when we say "fatigue" and "exhaustion". 

Good point.  "anxiety" might be another symptom that is difficult to clearly articulate.  I think the general impression people have is that "anxiety" is something consciously generated, or can be controlled through medication.  However, the anxiety I experience with POIS isn't anything like "normal" anxiety that I might get over an exam, etc.  It's long lasting, reasonably constant in duration, and largely unresponsive to medication or any conscious effort to control it.  One of the key differences is that "normal" anxiety is a result of thinking about something in particular, whereas this is present regardless of that.  I thought this might be similar to the "distress" experienced by people with sugar handling problems (or very high cortisol levels).  There's also a definite social anxiety that comes with (my) POIS, which isn't normally present when I am symptom free.  This is certainly just part of the larger "anxiety" issue, and may give some clues about its origin.  I think it's associated with POIS "bringing my defenses down".  I discussed the anxiety symptom with a neuroscientist who has done research on orgasm using functional imaging, and he suggested that the amygdala is de-activated, and my anxiety was generated by a "lack of alertness".  This is the opposite of what one might expect -- that the amygdala is over-activated.


Yes, I thought of that before too... I don't even think its anxiety.  I think it's somewhat similar but maybe its a signal your brain receives when it's being attacked?  It feels like mental torture for me and  I don't think people with normal anxiety issues feel like they're being attacked.

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Offline CertainlyPOIS

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4745 on: 28/06/2009 22:53:21 »
Am down for study, wherelse are they going to get people to participate.
On anxiety, I only have anxiety with social issures but is only because i feel like my IQ drops a nice degree during pois and also talking seems to be the glue during all types of social forms and during pois that aint happening.

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4746 on: 29/06/2009 15:52:58 »

Well i did just drink last night.  A bit of a hangover today... not too bad though. 


Thanks, GC, what I was looking for was  a   _disproportionate_  hangover. Did you feel the hangover was excessive considering the amount you drank? How much did you drink? Will the hangover last for days?

I'm looking for _similarities_ between POIS and other ways our systems can go haywire, not "drinking in or out of POIS".

Thanks.
« Last Edit: 29/06/2009 15:58:37 by demografx »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4747 on: 29/06/2009 16:01:02 »
Thanks, CC!

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Offline Langjahr

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4748 on: 29/06/2009 17:24:46 »
Does anyone else experience severe jet lag? Excessive hangover from moderate drinking?...

...lasting for days, as POIS does.

I've always wondered if the above out-of-proportion reactions come from a disruptive mechanism similar to the one that creates POIS, but not with exactly the same symptoms. A mechanism whereby the mind and body (hormones? neurotransmitters? etc.) are thrown "off balance" .

I do!. I used to be able to enjoy a few beers with the guys but since my POIS syptoms materialized 20 years ago I got to the point where if I drink 1 beer I get a hang over. In fact, I've likened my POIS symptoms to a hang over in many discussions.
« Last Edit: 29/06/2009 17:27:39 by Langjahr »

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Offline demografx

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Re: Post Orgasmic Illness Syndrome (POIS)
« Reply #4749 on: 29/06/2009 18:49:47 »
Does anyone else experience severe jet lag? Excessive hangover from moderate drinking?...

...lasting for days, as POIS does.

I've always wondered if the above out-of-proportion reactions come from a disruptive mechanism similar to the one that creates POIS, but not with exactly the same symptoms. A mechanism whereby the mind and body (hormones? neurotransmitters? etc.) are thrown "off balance" .


I do!. I used to be able to enjoy a few beers with the guys but since my POIS syptoms materialized 20 years ago I got to the point where if I drink 1 beer I get a hang over. In fact, I've likened my POIS symptoms to a hang over in many discussions.



Fascinating, Langjahr, thank you very much for that!

Always nice to know we're not the only ones on the planet with strange symptoms.
« Last Edit: 29/06/2009 18:54:59 by demografx »