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I was just wondering if anybody would be willing to meet other people with this condition in second life?I would like to create such a place but I have no idea wether people would come.
Have any other persons also noticed the corelation between the quality of the orgasm (the feel good feeling (=amount of dopamine released when orgasming?)) and the bad after-effects? That they are worse when you have a 'better' orgasm?
Is there any chance this could be related to sexual transferable diseases?
demografx: I googled Levitra and read up a bit about it. It's known as a PDE5 inhibitor--does anybody know what that means? I know Levitra increases blood flow, but HOW exactly it works in the body might be a clue as to why it helps the symptoms of POIS. Because there are some potentially very risky side effects from taking Levitra, especially prolonged use--like "serious cardiac events" (as in heart attacks), penile tissue damage, and potential loss of vision, due to a decrease of blood flow to the optic nerve--that isn't something I would want to experiment with. In general I am more inclined to using vitamin supplements, herbal remedies and hormonal cremes. (I've had far too many side effects and allergic reactions to pharmaceuticals.) But I'd like to know more details about how the chemistry of Levitra affects steroid hormone production, or if there is a link along those lines.
I am about to go insane. If I talk about this to anyone else, they won't understand and I don't want to see their confused expression and hear their useless advice. At least you guys understand. I simply have to talk about this somewhere...I am in hell. I just had a few orgasms in the past few days, even writing this is taking me forever. I simply can't function. I have homework and exams coming at me from left and right. The brain fog, lack of concentration, speech difficulty, depression, headache, and utter exhaustion has completely ruined my hopes of everything I seek for in the future. It hurts so damn much - knowing I can never be in an intimate relationship, where I have to turn down opportunities with girls despite my desperation, let alone go to graduate school and achieve the goals important to me, and knowing my future is pretty much screwed. I have to drag myself through each agonizing day trying to avoid people and struggle to act normal until the symptoms stop while in constant fear of getting a wet dream. I cannot live like this. It feels like my scalp is sore from overexertion. Does anyone else get this symptom? Where it feels like the muscles of your scalp are constantly tightened around your skull and it feels sore almost like a burning feeling?We need more data. These tests we get from the doctors who look at us funny are a joke; we need a group of some sort to research this in a laboratory setting...I've had it with doctors. And all these supplements I've been taking don't really seem to do much.Well, I think I've vented enough. Quote from: imre1 on 25/05/2008 20:47:59I was just wondering if anybody would be willing to meet other people with this condition in second life?I would like to create such a place but I have no idea wether people would come.I'd be willing; in fact I'm about to make an account on second life.
First time I measured my temperature when suffering from POIS: 5 hours after my temperature was 37,5°C .. So i've got a fever. Is this so with everyone?
We're looking for a research endocrinologist.
Quote from: demografx on 28/05/2008 21:59:22 We're looking for a research endocrinologist. How is this being done? And is there anyway I can help?
CAN YOU HELP?
Quote from: demografx on 29/05/2008 04:52:42CAN YOU HELP?I may be able to find someone at OHSU - one of the top ten med. schools/research facilities in the US. It might be tricky because I have to go around all the red tape with the help of a friend who's dad is a stomach doctor who may have some connections up at OHSU. I'm also planning on seeing a research doctor in neurology in California if I can somehow get an appointment and get insurance to pay the bill (I hear it could reach up to a 1000 bucks). If I do see him, I'll definitely show him this forum and try to convince him to join our discussions.
It can't be because I'm a virgin and have POIS full blast.
TO COUNTERPOINTS AND GUTHRIEWe have started a path toward getting a research endocrinologist on board this POIS Forum to take us to the next level. Are you opposed or thinking differently about this? If so, do you propose separate paths here? I'm not sure what you're implying with your suggestions as they relate to the path we already started.
Also, you might find this article interesting: http://www.reuniting.info/science/articles/acute_dopamine_depletion_causes_psychological_distress [Links inactive - To make links active and clickable, login or click here to register]
Quote from: Counterpoints on 01/06/2008 02:58:49Also, you might find this article interesting: http://www.reuniting.info/science/articles/acute_dopamine_depletion_causes_psychological_distress [Links inactive - To make links active and clickable, login or click here to register]I have read this text and I can not find any symptoms described that would match POIS symptoms.This is absolutely not the cause of POIS.Actually if you can identify with this text you are not even close to having POIS.
Pyropeach and I have found that we are physically the same height and body build. Also we have the same temperament.
Does anyone have a concrete plan about that yet?
I'm more inclined to submitting our data to a research endocrinologist than a neurologist or psychiatrist. I'd like to knowthe CAUSE of this condition and to treat that, rather than to treat it symptomatically with psychiatric drugs or other exper-mental medications. In my case specifically the only imbalances found in my blood work and other tests throughout the years have pointed to hormonal imbalances. These have included thyroid, cortisol, and DHEA levels. I think it's a great idea for all of us to submit our personal histories with POIS to a data sheet that includes: 1) Sex, current age, current medical status and medical conditions (diabetes, heart disease, CFS, etc.) 2) Age of onset of POIS symptoms, (including whether it was a sudden or gradual onset); 3) Inventory of POIS symptoms specific to each of us (including severity of debilitation and duration);4) Personal history relevant to POIS symptoms (Total number of years afflicted/how that's affected our lives);5) Diagnostic tests done in attempt to find cause (blood work, MRI's, etc); 6) Any significant abnormalities discovered in those tests;7) Attempted treatments, duration of treatments and their results; Personal observations and theories about our experience with POIS.We really do need a place to post this info in an organized way, and we need someone to compile it all for a study.Does anyone have a concrete plan about that yet?
I dont think there is a need to create a new forum with better compiled subsections, although anyone who feels the need can do so. We dont have a large volume of novel information. All the details listed so far can easily be incorporated into a letter. A comprehensive record of member details can be created but we should first try and get the attention of some research group or professional.
Anxiety, loss of fluency of speech, confusion, difficulty concentrating, dizziness, etc. following orgasm? From what I've read, that seems to fall under the symptoms that people have described here...
ATTENTION EVERYONE PLEASE: RESEARCH ENDOCRINOLOGISTSince this effort is underway for some time, yet ideas have been formulated only recently for other directions, I should ask the question: is anyone here opposed to the track I'm on? i.e., B_Jim and I have created a letter to find a research endocrinologist who will go through these 27 pages of posts and make concrete recommendations for low-risk cures to test. We are already in progress with Cambridge University and Oregon Health (OHSU) - per pyropeach, a top-10 rated medical research facility.Please post your "Yes" (agreed) or "No" (opposed) here by June 8. This will also tell me who is "on board" with this project.Thank you very much. I look forward to hearing from you.
Quote from: demografx on 01/06/2008 23:04:41ATTENTION EVERYONE PLEASE: RESEARCH ENDOCRINOLOGISTSince this effort is underway for some time, yet ideas have been formulated only recently for other directions, I should ask the question: is anyone here opposed to the track I'm on? i.e., B_Jim and I have created a letter to find a research endocrinologist who will go through these 27 pages of posts and make concrete recommendations for low-risk cures to test. We are already in progress with Cambridge University and Oregon Health (OHSU) - per pyropeach, a top-10 rated medical research facility.Please post your "Yes" (agreed) or "No" (opposed) here by June 8. This will also tell me who is "on board" with this project.Thank you very much. I look forward to hearing from you."Yes". Though an online data form would serve to organize whatever track you're currently on, not change it entirely. It could only help. Why don't you post your letter?